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2023-12-31-accounts

Annual report and accounts 2023 Juvenile Arthritis Research

1 January 2023 to 31 December 2023

The only UK-wide charity focussing solely on JIA.

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Charity number 1091620
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Structure, Governance and Management

Juvenile Arthritis Research is a charity, registered with the Charity Commission for England and Wales. Charity registration number 1091620.

The charity was constituted by a Trust Deed made on 24 October 2001, originally known as Jabez Charitable Trust. Juvenile Arthritis Research was formed on 3 January 2018.

When new trustees are to be appointed they must be professionally competent and identify with the Charity’s broad purpose.

The trustees during the period 1 January to 31 December 2023 were:

Nigel Thomas Rev Robert Mitchell Jill Mitchell Timothy Bower Richard Kemsley

The charity is managed on a day-to-day basis by the Director, Richard Beesley.

None of the trustees have been paid any remuneration or received any other benefits from an employment with the charity or a related entity. No trustee expenses have been incurred.

There are currently no fully paid members of staff, with personnel working in a voluntary and unpaid capacity other than freelance contractors for specific activities.

Number of employees 0
Number of employees with benefits of more than £60,000 0
Number of volunteers 25

Juvenile Arthritis Research is registered with:

Every organisation in the UK that handles personal information (including names, addresses or email addresses) of individuals must by law be registered with the Information Commissioner's Office also known as the ICO, unless they are exempt. We are registered with the ICO, and you can check that using their register search tool. As well as complying with the law, being registered shows we care about the data we hold about people and we will work hard to keep it safe. We will never sell your personal data, and will never share it without your consent.

We are also registered with the Fundraising Regulator. This shows we are committed to their Fundraising Promise and work hard to ensure all our fundraising activities are carried out fairly, ethically and sustainability. Being registered also allows us to access their support services to help us become more effective in our fundraising activities.

Charitable purposes

The Trustees have paid due attention to the requirements of the Charity Commission in respect of the need to make plain the public benefit of the activities of the Charity.

I am

A world where no child has to suffer from arthritis

4 years old and I have arthritis

inkJIA =_ ArthritisResearch www.jarproject.org

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What is Juvenile Idiopathic Arthritis (JIA)

Juvenile Idiopathic Arthritis (JIA) is an autoimmune disorder where the body’s natural defences (designed to stop infections) start to attack the joints.

This causes inflammation of the joints, leading to pain, discomfort and reduced mobility.

The impacts of the condition are profound – both physically and mentally – for both children and their families.

Juvenile – means the arthritis began before the age of 16. Idiopathic – means that the cause is unknown. Arthritis – means that one or more joints are inflamed.

20 children under 16 are diagnosed with Juvenile Idiopathic Arthritis in the UK >. every week.

JIA is an autoimmune condition, where the body’s natural defences attack the joints.

JIA is . not contagious A diagnosis of JIA remains for life. When a young person with JIA turns 16, their diagnosis is still called ‘JIA’.

Juvenile Arthritis Research : Who we are

Juvenile Arthritis Research is a charity supported by donations (registered charity number 1091620). We are parent-led, and family-focussed.

Our vision is a world where no child has to suffer from arthritis.

Once upon a time…

… a 10 year old girl was diagnosed with Juvenile Arthritis after a year of delays and misdiagnoses. With no effective treatment options and a lack of support, a lifetime of pain and joint deformity follows.

Thirty years on, history looks like it is repeating itself when her daughter is diagnosed with the same painful, debilitating condition, Juvenile Idiopathic Arthritis (JIA). The medication and treatment options have improved but the lack of awareness and lack of support for children with JIA is obvious.

In 2018, having seen first-hand in his own family with first his wife and then his daughter the devastation that JIA can cause, Richard Beesley founded Juvenile Arthritis Research. Bringing his background in biomedical research, combined with decades of experience in senior leadership in a variety of sectors, Richard started the charity in order to make a real difference to the lives of those with JIA.

Juvenile Arthritis Research now help hundreds of children in the UK and around the globe with the information and resources we have developed and the services we provide.

Research We undertake research into JIA to understand the causes, the effects and the impacts of the condition and to work towards finding a cure. i Awareness Raising awareness that children and young people get arthritis helps reduce delays to A diagnosis, and that can lead to better outcomes for children and young people with JIA. As we increase awareness of the condition, we can help make life better for those with JIA by removing the stigma attached to having a long-term, but often invisible, health condition. Support /

We undertake research into JIA to understand the causes, the effects and the impacts of the condition and to work towards finding a cure.

At Juvenile Arthritis Research, we support children and young people with JIA and their families on their journey. We provide support packs and other resources, and are continuing to develop new ideas and projects to help those with JIA.

Advocacy

Through the work we do in research, awareness and support, we advocate for the needs of children with JIA and their families to policymakers and healthcare professionals.

Boundless

We demand better. More than treatment, more than respite, more than relief, and are fearless in our pursuit of a cure.

Expert

We develop a deep and broad understanding of juvenile arthritis and how it affects children and young people. We look at research not just in the field of juvenile arthritis, but also other autoimmune and related conditions that may hold vital clues to help us find a cure for JIA.

Collaborative

We collaborate with others who share our passion and determination for making a real difference (both in the UK and globally).

Ethical

We work in an open, transparent and accountable way that builds the trust and respect of all our stakeholders. We also ensure high environmental and ethical standards throughout our organisation and with all our suppliers, never compromising on our standards and values.

What makes us unique?

Juvenile Arthritis Research is unique. Here are just some of the reasons why:

1. Parent-led with direct experience

Unlike many other charities, Juvenile Arthritis Research is driven by parents who have first-hand experience of juvenile idiopathic arthritis (JIA) in their children. This lived experience fuels our dedication and ensures a deep understanding of the needs and challenges faced by families affected by JIA, leading to more impactful programmes and support initiatives.

2. Holistic approach

At Juvenile Arthritis Research, we are passionate about finding a cure for JIA, but also recognise the complex needs of children with JIA and their families, offering a three-pronged approach:

⚫ Research - Supporting high-quality research to find a cure and improve treatments for JIA.

⚫ Awareness - Raising awareness about JIA in the medical community and general public to ensure timely diagnosis, reduce stigma and isolation, and improve access to effective support.

⚫ Support - Providing practical and emotional support to families through resources, events, and a community network.

This holistic approach addresses the immediate needs of families while simultaneously focussing on long-term solutions.

3. Collaborative and inclusive

Juvenile Arthritis Research fosters collaboration with leading researchers, clinicians, academics, and other organisations around the world. We also actively involve patients and families in research through the JIA VIP Research Panel, ensuring their voices are heard and research priorities are aligned with their needs. This collaborative and inclusive approach increases the potential for effective solutions and empowers the JIA community.

These three unique aspects – parent-led expertise, holistic approach, and collaborative spirit – make Juvenile Arthritis Research a powerful force in the fight against JIA.

A little of what we do…

Juvenile Arthritis Research …

Find out more about our services on our website or in our Little Book of Hope (available upon request).

www.jarproject.org

Our people

Our Trustees have overall legal responsibility for the charity. They oversee all aspects of our work, as well as being keen advocates for us. They bring a wealth of experience from the private and charity sectors. They include experienced charity leaders, who have worked as Trustees in other capacities for many years, who bring with them the knowledge and experience required to oversee the work of the charity. The Trustees also include business leaders and partners who have developed their own companies and are able to now utilise their management and leadership skills to support Juvenile Arthritis Research.

Our Parent Panel helps ensure the voices of those we support and represent are heard and are integral to our work. The panel comprises parents of children with JIA from a wide range of backgrounds. They share their personal and family experience, as well as their professional knowledge and expertise, as we develop new projects and review existing work programmes.

We work closely with a broad diverse group of individuals from the world of JIA. This includes children and young people with arthritis, parents, adults with arthritis, teachers, paediatric rheumatologists, physiotherapists, and other healthcare professionals. They bring a multitude of appropriate skills and knowledge, as well as personal lived experience of either being a child or young person with arthritis, being a parent of a child with arthritis, or being a healthcare or other professional caring for children with arthritis.

Our volunteers are the key people that make Juvenile Arthritis Research happen. They are the people who send out support packs, School Toolkits, fundraising packs, GP awareness packs, hospital resources and more. They are the people who engage with families in our private secure networks and parent Zoom events. They are the ones who manage our social media accounts, reaching thousands of families affected by JIA and raising awareness of the condition. They are often the first person who understands JIA that a family will speak to, and the most important contact in that family’s life. They are the true force behind Juvenile Arthritis Research. We are proud to have grown our volunteer team this year, and grateful to them for giving so much when their own lives are already full.

A few of our volunteers at an online meeting.

Partnerships

We are delighted to have joined the Connect Immune Research Partnership this year. The partnership comprises charities from different autoimmune conditions, working together across specialisms to tackle multiple conditions at once. Understanding similarities and using existing knowledge of different conditions could help transform lives much faster than small groups of specialists working on separate conditions.

This year we have worked with NCEPOD on their study into patient care for those with JIA. We are members of the project Steering Group and contribute to the data collection methodology, design and connections.

Throughout the year we have continued to work closely with the BSR Quality Improvement project called JIA Learn , which aims to equip hospital teams to make incremental changes using Quality Improvement methodology to their service to benefit families. We have been part of the Steering Group, overseeing the whole project, as well as leading on engaging with families and ensuring their voice is heard throughout the project.

As members of National Voices we contribute to and influence national government policy and how it affects healthcare, with our particular focus being on families affected by JIA.

We work closely with EULAR , the European Alliance of Associations for Rheumatology. They are the leading international network for rheumatology professionals and patients. We are involved in a number of projects with them, and this year have been invited to speak at several of their events.

We are proud to be members of ENCA , the global network for children with arthritis and autoinflammatory conditions. They are the umbrella body that supports all patient organisations for children with arthritis, rheumatic conditions and autoinflammatory diseases across the continent of Europe and beyond. We also sit on the ENCA Board, as key decision-makers for the network.

The British Society for Rheumatology (BSR) is the UK's leading specialist medical society for rheumatology and musculoskeletal professionals. Our founder is a member of the BSR, allowing us to be part of the diverse community of rheumatology professionals from across the UK.

We are members of the NCVO , the community for charities in England, building our capacity within a supportive network of voluntary organisations.

We work closely with like-minded charities, patient organisations, research teams, universities and hospitals all over the world. By working together we can learn from each other, and collectively achieve much more. We are careful which networks we join and who we work with, and only link with those that add real value to the people we exist for - children with Juvenile Idiopathic Arthritis and their families. Any affiliation has to help us be more effective in our research, awareness and support work as well as policy-making and lobbying activities that take place behind the scenes.

Our year in review | Research

Our research work has continued to develop over the past year, through three main themes.

Our own research

Research can mean different things to different people… we are proud to support Supporting so many research Patient other projects in so many involvement ways. projects

Our year in review | Research

Our own research

We conduct our own research studies to better understand the causes, the effects and the impacts of Juvenile Idiopathic Arthritis and to work towards finding a cure. This year we have started to redevelop the research publications area on our website to highlight our main findings. This page now promotes over 50 of our research publications.

www.jarproject.org/research/publications

During 2023 we were invited to present at the international EULAR Congress in Milan about our work with schools, to a packed hall of global delegates from the field of rheumatology. Our research in this area was highlighted in a EULARissued Press Release, helping showcase our work to a wider audience.

We were invited to present at a EULAR webinar and a separate AGORA[1] webinar about the impact of JIA on the family.

We were also invited to present at the PReS[2] Congress in Rotterdam about the impact of mental health on families with JIA, about our work in schools, and about the development of patient education materials – helping to train and support health professionals from across Europe as they support families.

Attending conferences also enables us to hear the latest research, connect with like-minded researchers and patient organisations, and improve the ways in which we can support our families.

1 AGORA is an umbrella organisation for national and regional organisations representing patients with Rheumatic and Musculoskeletal Diseases in southern Europe. 2 PReS is the Paediatric Rheumatology European Society, an international organization dedicated to advance the care and improve the health and well-being of children and young people with rheumatic conditions.

Our year in review | Research

Our own research

Early in 2023 we undertook the first ever research study in the general community into awareness that children and young people get arthritis, with results published at PReS Congress. These findings are a vital first step and help form a foundation against which future awarenessraising work can be measured.

The most recent publication from the European Patient Registry – a global project we ran during 2020 at the height of the COVID-19 pandemic, was published this year, highlighting anxiety levels amongst patients with rheumatic diseases. We launched the COVID-19 European Patient Registry on 24 March 2020, less than two weeks after the World Health Organisation (WHO) declared a pandemic. Our final weekly follow-up survey was sent to participants on 28 December 2020. A total of 4,336 participants took part in the study, completing weekly follow-up surveys, and providing us with 12.4 million data points over 41 weeks, responding to 219,427 emails, representing every inhabited continent in the world.

Our Director is currently undertaking a PhD in Epidemiology at the University of Manchester, and presented work from that project at EULAR and PReS congresses, with the first journal article from this PhD due to be published very soon.

EULAR Congress 2023

Our year in review | Research

Supporting other projects Ld)

Within the context of our research work, we spend a considerable amount of time supporting research work led by researchers and clinicians from universities and hospitals across the world. Due to the nature of research, we are not able to share details about a lot of the work until it is complete and published, but there is a lot of exciting potential and we are proud to support the global research community in projects that will make a tangible difference to the lives of children with JIA and their families.

Since the inception of Juvenile Arthritis Research in 2018 the number of projects we have been invited to take part in has grown. Whilst many projects are high-quality and are likely to show benefits to families, unfortunately there has also been an increasing number of low quality and low value projects, which create a burden on families with little to no return. As a result, we have become increasingly selective in which projects we support to help improve the quality of JIA research and ensure our time – and that of the families we work with – is most effective. This led to the development of the JIA VIP Research Panel.

You can find out more about the JIA VIP Research Panel at www.jarproject.org/vip

Our year in review | Research ee

In 2023 we launched the successful and greatly valued JIA VIP Research Panel. The JIA VIP Research Panel is a longitudinal patient and parent panel survey for Juvenile Idiopathic Arthritis, developed and managed exclusively by Juvenile Arthritis Research.

The Panel contributes to current JIA research in two ways:

  1. By enabling people to take part in high quality research; and

  2. By supporting PPIE (Patient and Public Involvement and Engagement), helping codevelop research and enabling the voice of patients and parents to be heard.

Within 3 days of launch, over 100 families joined the JIA VIP Research Panel, with a representative spread of participants; recruitment is an ongoing and continuous process.

The Panel has already contributed to 2 internal short surveys for Juvenile Arthritis Research, and provided PPIE representatives for major multi-year projects. We are working with researchers to build our portfolio of projects in 2024, and will be presenting about the Panel at the British Society for Rheumatology conference 2024 and elsewhere.

Our year in review | Research

Patient involvement

There is a growing recognition within research that patients and family members play a key role in developing, managing and delivering research projects. At Juvenile Arthritis Research, we are experienced patient partners and have been involved in a range of different projects. This year we co-authored a paper about patient involvement in research (also known as ‘PPIE’), highlighting the value of patients and the unique and vital perspective they bring.

As with direct involvement in research, it is not always possible to talk about projects until they are complete. However, we are delighted to have been involved in a number of different projects with the University of Manchester, University of Liverpool, and Sheffield Hallam University in the past year.

In addition, our work with CLUSTER has continued as part of the patient Champion network. This has included supporting researchers and developing lay summaries.

More crucially, our role in OCTAVE (a national multi-disciplinary research project investigating the effectiveness of vaccination against COVID-19 for people with reduced immune systems, such as due to JIA and medications) has been pivotal. In addition to the regular Trial Study Group meetings we are part of, we helped develop the lay summary and created the infographics that highlight the main findings of the study. Analysis into the paediatric data continues, with results due in 2024. The OCTAVE study has already helped influence government policy, and led to the follow-up vaccination programme for people with reduced immunity. The OCTAVE study also reflects best practice in patient involvement, something we actively encourage and support.

Our year in review | Awareness

Raising awareness is the biggest single thing anyone can do to make a difference to the lives of children and young people with JIA.

Increased awareness leads to earlier diagnosis, prompt treatment, and better outcomes. It reduces stigma and isolation. Increased awareness changes lives.

WORD Day is the biggest global day to raise awareness that children and young people get rheumatic disease such as JIA. We sent packs out for WORD day, reaching over 7,500 families with our awareness-raising resources. Our supporters and families flooded social media with awareness-raising images, and coordinated their own events locally. Building on the success of previous years, through our targeted social media campaign we reached tens of thousands of people who would otherwise never have heard that children get arthritis. We remain committed members of the WORD Day international planning committee, delivering the programme and webinars.

Our year in review | Awareness

In 2023 Juvenile Arthritis Research were invited to make use of an otherwise empty building in Tonbridge in Kent. According to the government statistics, 20,000 vehicles drive past the building every day. With large windows overlooking the road, this is an ideal awareness-raising location.

Local families were invited to take part in a photoshoot – thanks to Lily, Logan, Maisie, Maddison, Penelope, Aria and Trinity for taking part, and their families. We would also like to thank Janet from Hushabye Photography for giving her time and expertise to take and edit the photographs and CK Office Furniture for loaning us office furniture.

The transformation has been reported in local press, and has made a positive impression amongst local residents. It has enabled us to raise awareness in an effective way in the local community. We are also using the building as an office and a base for activities and events for local families.

Our year in review | Awareness

Delays in diagnosis lead to worse outcomes for children with JIA. Research has shown that low awareness in primary care can be an obstacle in getting a referral to rheumatology for a diagnosis and treatment, and our own research has found long delays for many children with JIA, in part due to low awareness amongst GPs.

In 2023 we attended the Royal College of GPs annual conference in Glasgow, with the aim of raising awareness that children and young people get arthritis. During the conference we spoke with hundreds of GPs and medical students, sharing information and resources with them.

We have also updated our pivotal #ThinkJIA website, which raises awareness of JIA amongst frontline health professionals and the general public. Over recent years, the campaign has been highlighted in numerous international conferences as best practice, enabling other patient networks to use our resources and develop them for their own communities.

We were also invited to take part in a video with EULAR, launched on World Arthritis Day 2023. This helped highlight what life with JIA is like, as well as the difference increased awareness can make. The video can be found at www.jarproject.org/hope/videos

Our year in review | Awareness

During the year we’ve had a lot of amazing people taking part in events both to raise funds and, just as crucially, to raise awareness of JIA. This has included events in Tonbridge, Manchester, Brighton, Cardiff, London, Glasgow and elsewhere. All wearing our custom Juvenile Arthritis Research sports top, raising awareness of JIA. We are truly grateful to everyone who has fundraised for us this year.

Our year in review | Support

We have sent out Little Box Of Hope packs to hundreds of families across the UK, helping them have the information they need and the support that is so important for them.

Our School Toolkits have been delivered to schools across the country, helping schools confidently support children with JIA.

We have provided one-to-one support for schools and local education authorities, giving them clear and impartial advice, information and support as they work with children with JIA. Our volunteers have delivered presentations in schools and assemblies. With input from health professionals, at the request of families we developed and launched a letter template to enable hospitals write to schools to provide support to children with JIA; this year that template has been downloaded over 220 times.

We continue to provide one-to-one support to families when they request it, delivered by our volunteers.

Our mental health hub has continued to grow, with links to some of the best resources available to help children with JIA and their families.

We have provided emergency support for children reaching a mental health crisis due to their JIA for whom other mental health services were not available.

We have grown our private secure network to support families affected by JIA.

Our resources have now been translated and adapted for use in more countries – now including Ukraine, Netherlands, Russia, Costa Rica, Mexico, Australia, India and Brazil. In the UK, our resources have been widely used with My JIA being downloaded over 700 times this year alone, our Schools Factsheet over 400 times.

Our year in review | Support

In 2023 we expanded our private secure network for families affected by JIA. This network, moderated by our volunteers, provides peer support when parents and carers need it. Available 24/7, there is always someone available to answer questions, chat or simply provide a listening ear. Life with JIA can be difficult, and having a child with JIA is hard. Our network and support services ensure no family needs to feel alone.

During 2023 we also launched our new Parent Zoom service. During these video calls, parents and carers of children with JIA can connect with each other and our volunteers to share their experiences and ask questions in a nonjudgemental and safe environment. We plan to continue to grow the Parent Zoom service this coming year, and have a new volunteer whose role is to lead on this service.

Growth in support pack requests, 2018 to 2023.

Growth in social media followers, 2018 to 2023.

Sam’s story

“ One night, Sam woke up in the night to tell me how painful his knee was. The doctors thought it was just an injury and we were sent away and told that it may take weeks to heal. Sam’s knee didn’t appear to get any better – in fact his left ankle became swollen too.

After many more visits to the doctor where we were told to wait and give it time to heal, we managed to get a referral to a consultant. The first consultant we saw didn’t even look at Sam’s ankle. It was only after managing to get a second opinion that we were eventually referred to rheumatology.

around. We knew something was wrong but had no idea what. It was heartbreaking to see him struggling so much.

Once we received the diagnosis of oligoarticular Juvenile Idiopathic Arthritis, we were absolutely stunned; we had no idea children could get arthritis or how serious it could be. That day was one of our worst days. I felt so anxious. I was worried for Sam and what the future would bring. I had a list of questions and no-one to ask.

Finding Juvenile Arthritis Research was absolutely amazing and I will always be grateful to the teacher who first told us about the charity. Juvenile Arthritis Research has helped our family in millions of ways. From the exceptional information on the website, to the volunteers who answered question after question and reassured me.

blood test results to medication, to flares, injections, the impact of chicken pox, uveitis, as well as giving me guidance and helpful tips.

Most of all, Juvenile Arthritis Research gave us hope. They gave us hope that Sam can live a good life despite the challenges of having JIA. I needed that reassurance. They helped me focus on the positive and put all the negatives into perspective.

are other children out there with JIA. The books and information included in the support pack helped Sam understand his condition and explain it to others.

Having access to meaningful information and someone with personal experience, who had the patience, understanding and a willingness to give up their own valuable time was a lifesaver.

Because JIA can be an invisible illness, it made it hard for school to fully understand. The School Toolkit pack from Juvenile Arthritis Research was brilliant and helped the school understand Sam’s condition.

Sam is doing well at the moment on his new medication. He is absolutely able to do all the things he loves; he plays the guitar and drums, plays football, skateboarding, going to music gigs, helping on the farm and looking after animals.

I will be forever grateful to Juvenile Arthritis Research and I will never be able to thank them enough for the support they have given us. ” Michaela Sam’s mum

For more stories, visit www.jarproject.org/stories

Social media

Our social media presence has continued to grow, and we continue to have the most engaged network of families across our social media channels. We use our social media to support all aspects of our work.

In 2023 we brought our hard-hitting Christmas social media campaign to a conclusion, showing that life with JIA does not stop at Christmas. In addition to the images shared in previous years, we added the final image in this series – the ‘Shocking Stocking’.

In total, over 24,000 people saw the images and associated text and video. We received many comments and messages from families, for whom the thought-provoking images resonated – their experience, like ours, is that JIA does not stop at Christmas… with the continued need for injections, medications, blood tests, X-rays, MRI scans and treatments that our children endure through the festive period – a period where traditionally most people get to have some time off from work. Children with JIA never get a break from having JIA – it is a lifelong condition for which there is currently no cure. That is why our support services continue throughout the year, and our networks continue to operate.

Grants i

Our work would not be possible without the generous support of fundraisers, donors and grant-making bodies.

We are deeply grateful to the following for providing grants to support our vital work during 2023:

A grant has also been awarded by Tesco, due to be paid in early 2024.

Annual accounts

INDEPENDENT EXAMINER'5 REPORT INDEPENDENT EXAMINER'S REPORT

I I report to the trustees on my examination of the financial statements of Juvenile Arthritis Research (the report to the trustees on my examination of the financial statements of Juvenile Arthritis Research (the charity) charity) for the year ended 31 December 2023, as set out on the Statement of Financial Activities and for the year ended 31 December 2023, as set out on the Statement of Financial Activities and Balance Balance Sheets. Sheets.

RESPONSIBILITIES RESPONSIBILITIES AND BASIS OF REPORT AND BASIS OF REPORT

As As the trustees of the charity you are responsible for the preparation of the financial statements in the trustees of the charity you are responsible for the preparation of the financial statements in accordance accordance with the requirements of the Charities Act 2011 (the 2011 Act). with the requirements of the Charities Act 2011 (the 2011 Act).

I I report in respect of my examination of the charity’s financial statements carried out under section 145 report in respect of my examination of the charity’s financial statements carried out under section 145 of of the 2011 Act. In carrying out my examination I have followed all the applicable Directions given by the 2011 Act. In carrying out my examination I have followed all the applicable Directions given by the the Charity Commission under section 145(5)(b) of the 2011 Act. Charity Commission under section 145(5)(b) ofthe 2011 Act.

INDEPENDENT INDEPENDENT EXAMINER'S STATEMENT EXAMINER'S STATEMENT

I I have completed my examination. I confirm that no matters have come to my attention in connection have completed my examination. I confirm that no matters have come to my attention in connection with with the examination giving me cause to believe that in any material respect: the examination giving me cause to believe that in any material respect:

    1. accounting accounting records were not kept in respect of the charity as required by section 130 of the 2011 records were not kept in respect of the charity as required by section 130 of the 2011 -Act; Act; or or
    1. the the financial statements do not accord with those records; or financial statements do not accord with those records; or 3. 3. the the financial statements do not comply with the applicable requirements concerning the form and financial statements do not comply with the applicable requirements concerning the form and content content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement requirement that the accounts give a true and fair view which is not a matter considered as part of an that the accounts give a true and fair view which is not a matter considered as part of an independent independent examination. examination.

I I have no concerns and have come across no other matters in connection with the examination to which have no concerns and have comé across no other matters in connection with the examination to which attention attention should be drawn in this report in order to enable a proper understanding of the financial should be drawn jf thisfeport in order to enable a proper understanding of the financial statements statements to be reached. to be reached.

Signed: Signed: ________ i| retical Name: Name: Paul Paul Clark Clark Address: Address: 14 14 Courtwood Drive Courtwood Drive Sevenoaks Sevenoaks Kent Kent TN13 2LR TN13 2LR

Date:

STATEMENT OF FINANCIAL ACTIVITIES

Note Unrestricted
funds £		 Restricted
funds £		 2023 Total
funds £		 2022 Total
Funds £
Income from:
Donations and legacies 1,8 29,510 6,840 36,350 14,930
Charitable activities 2 25,684 0 25,684 0
JARShop 3 217 10 227 309
Reclaimed tax 4 70 0 70 751
Grants 5 7281 0 7281 1,250
Total income 62,762 6,850 69,612 17,240
Expenditure on:
Raisingfunds 6 5,119 0 5,119 560
Charitable activities 7,8 38,213 6,977 45,190 16,734
Totalexpenditure 43,332 6,977 50,309 17,294
Net (expenditure)/income for the year /
Netmovementin funds		 19,430 (127) 19,303 (54)
Fund balances as at1January 1,121 127 1,248 1,302
Fund balances as at 31 December 20,550 0 20,550 1,248

Note 1 ‘Donations’ includes one-off donations and gifts from regular donors, as well as legacy and gifts in memoriam.

These accounts are prepared on a receipts and payments basis.

BALANCE SHEETS

As at 31 December 2023
£		 2022
£
Fixed assets
Tangible assets 0 0
Current assets
Debtors 0 0
Cash at bank and in hand 20,550 1,248
Creditors: amounts fallingdue within oneyear 0 0
Net current assets 20,550 1.248
Total assets less current liabilities 20,550 1,248
Income funds
Unrestrictedfunds 20,550 1,121
Restrictedfunds 0 127
20,550 1,248

Nigel Thomas, Chair of Trustees Dated: 28 July 2024

Contarting Juvenile Arthritis Research Email Website kipo@jarproject.org www.jarproject.org @jarproject @jarproject @jarproject youtube.com/@juvenilearthritisresearch /company/juvenile-arthritis-research Twitter Instagram Facebook YouTube Linkedln in Juvenile Arthritis Research