## 

## 

## 

|||Page|
|---|---|---|
|Trustees'<br>Annual<br>Report|||
|Independent<br>Examiner's<br>Report|to the Trustees||
|Statement<br>of Financial<br>Activities|||
|Statement of Financial<br>Position|||
|Notes to the Financial Statements|||
|The Following Pages Do Not|Form Part ofthe Financial Statements||
|Detailed Statement of Financial|Activities|17|





## 

## 

## 

## 

## 



## 

## 

## 

## 

## 



## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 

## 

## 



|Reference and Administrative|Reference and Administrative|Reference and Administrative|Reference and Administrative|Details||||
|---|---|---|---|---|---|---|---|
|Registered||charity|name|The British Porphyria|||Association|
|Charity|registration||number|1089609||||
|Principal|office|||136Devonshire|Road|||
|||||Durham<br>City||||
|||||County<br>Durham||||
|||||DH1 2BL||||
|The Trustees||||||||
|||||A Newton<br>(Treasurer)||||
|||||JW Chamberlayne||||
|||||K E Harris||||
|||||A Molyneux||||
|||||R Bennett||||
|||||N Chadwick||||
||||||||(Served from 15October 2022 to|
|||||Danil Lopukhov|||23 February 2023)|
|Independent||Examiner||Jane AscroR FCA MA|||(Cantab)|
|||||Enterprise<br>House||||
|||||Harmire<br>Enterprise||Park||
|||||Bamard Castle||||
|||||County Durham||||
|||||DL128XP||||
|The trustees'||annual|report was|approved<br>on ....J../..7g.+X... and signed on behalf ofthe board of<br>pl<br>t.||||
|trustees|by:|||||||





## 

## 

## 

## 

## 

## 



## 

## 

## 

|||||2023||2022|
|---|---|---|---|---|---|---|
||||Unrestricted|Restricted|||
||||funds|funds|Total funds|Total funds|
|||Note||F|||
|Income and endowments|||||||
|Donations||4|30,338|10,384|40,722|22,147|
|Other trading<br>activities||5|508||508|906|
|Investment<br>income||6|54|42|96|9|
|Other income||7|2,223||2,223||
|Total income|||33,123|10,426|43,549|23,062|
|Expenditure|||||||
|Expenditure<br>on raising funds:|||||||
|Costs ofother trading|activities|8|345||345|1,468|
|Expenditure<br>on charitable|activities|9,10|37,054|10,733|47,787|21,643|
|Total expenditure|||37,399|10,733|48,132|23,111|
|Net expenditure|||(4,276)|(307)|(4,583)|(49)|
|Transfers<br>between<br>funds||||(5)|||
|Net movement<br>In funds|||(4,271)|(312)|(4,583)|(49)|
|Reconciliation<br>offunds|||||||
|Total funds brought forward|||24,545|19,419|43,964|44,013|
|Total funds carried forward|||20,274|19,107|39,381|43,964|





## 

## 

## 

|||||2023|2022|
|---|---|---|---|---|---|
||||Note|||
|Current Assets||||||
|Debtors|||15|108|117|
|Cash at bank and in hand||||39,573|44,099|
|||||39,681|44,216|
|Creditors: amounts|falling|due within one year|16|300|252|
|Net Current Assets||||39,381|43,964|
|Total Assets Less Current||Liabilities||39,381|43,964|
|Net Assets||||39,381|43,964|
|Funds ofthe Charity||||||
|Restricted funds||||19,107|19,419|
|Unrestricted<br>funds||||20,274|24,545|
|Total charity funds|||17|39,381|43,964|





## 

## 

## 

## 

## 

## 

## 

## 

## 

## 

## 



## 

## 

## 

## 

## 

## 

## 

## 

## 



## 

## 

## 

## 

|||||Unrestricted|Restricted|Total Funds|
|---|---|---|---|---|---|---|
|||||Funds<br>f|Funds<br>f|2023<br>f|
|Donations|||||||
|Donations||and subscriptions||16,438||16,438|
|Gift aid||||1,400||1,400|
|Grants|||||||
|Alnylam|grant|||10,000||10,000|
|Mitsubishi||Tanab||2,500||2,500|
|Disc Medicine|||||884|884|
|National|Lottery Community||Fund||9,500|9,500|
|||||30,338|10,384|40,722|
|||||Unrestricted|Restricted|Total Funds|
|||||Funds|Funds<br>f|2022<br>f|
|Donations|||||||
|Donations||and subscriptions||10,019||10,019|
|Gift aid||||1,128||1,128|





## 

## 

|Donation|s<br>(contlnuedj|||||
|---|---|---|---|---|---|
||||Unrestricted|Restricted|Total Funds|
||||Funds|Funds|2022|
||||F|F|F|
|Grants||||||
|Ciinuvel|Pharmaceuticais|grant|1,000||1,000|
|Ainylam|grant||2,000||2,000|
|Recordati|Rare Diseases|grant|5,000||5,000|
|Albert Hunt|||1,000||1,000|
|Mitsubishi|Tanab||2,000||2,000|
||||22,147||22,147|



## 

|||||Unrestricted|Total Funds|Unrestricted|Total Funds|
|---|---|---|---|---|---|---|---|
|||||Funds|2023<br>f|Funds<br>f|2022|
||Merchandise||sales|508|508|906|906|
|6.|Investment||income|||||
||||||Unrestricted|Restricted|Total Funds|
||||||Funds<br>f|Funds<br>f|2023|
||Bank interest||receivable||40|42|82|
||Dividends|receivable|||14||14|
||||||54|42|96|
||||||Unrestricted|Restricted|Total Funds|
||||||Funds|Funds|2022|
||||||f|f||
||Bank interest||receivable||2|7|9|
||Dividends|receivable||||||



## 

|Other Incom|e|||||||
|---|---|---|---|---|---|---|---|
|||Unrestricted|Total|Funds|Unrestricted|Total|Funds|
|||Funds||2023<br>f|Funds<br>F||2022<br>f|
|Consultancy|fees|2,223||2,223||||





## 

|8.|Costs ofOther Trading Activities|Costs ofOther Trading Activities|Costs ofOther Trading Activities|Costs ofOther Trading Activities|Costs ofOther Trading Activities|Costs ofOther Trading Activities|||||
|---|---|---|---|---|---|---|---|---|---|---|
||||||||Unrestricted|Total Funds|Unrestricted|Total Funds|
||||||||Funds|2023|Funds|2022|
||Merchandise|costs|||||345|345|1,468|1,468|
|9.|Expenditure|on Charitable|||Activities||by Fund Type||||
|||||||||Unrestricted|Restricted|Total Funds|
|||||||||Funds|Funds|2023|
|||||||||f|||
||Costs ofcharitable||activities|||||37,054|10,733|47,787|
|||||||||Unrestricted|Restricted|Total Funds|
|||||||||Funds|Funds|2022|
|||||||||F|||
||Costs ofcharitable||activities|||||21,576|67|21,643|
|10.|Expenditure|on Charitable|||Activities||by Activity Type||||
||||||||Activities||||
||||||||undertaken|Grant funding|Total funds|Total fund|
||||||||directly|ofactivities|2023|2022|
||||||||||R||
||Costs ofcharitable||activities||||47,138|649|47,787|21,643|
|11.|Analysis of|Grants|||||||||
||||||||||2023|2022|
||Grants to Institutions||||||||||
||University<br>of|Dundee||||||||1,000|
||Grants to Individuals||||||||||
||Travel bursaries||||||||349||
||Other grants||||||||300||
||||||||||649||
||Total grants||||||||649|1,000|
|12.|Independent|Examination|||Fees||||||
||||||||||2023|2022|
||||||||||R||
||Fees payable|to the independent||||examiner for:|||||
||Independent|examination||of|the financial statements||||300|252|





## 

## 

## 

## 


## 

## 




## 

## 

|||At||||At 31 March|
|---|---|---|---|---|---|---|
|||1 April 2022|Income|Expenditure|Transfers|2023|
|||E|||||
|Helen Gibbs Fund||17,197|37|(349)||16,885|
|Light Protection<br>Fund<br>Festival 2019fund||1,025<br>1,197|2<br>3||(5)|1,022<br>1,200|
|National<br>Lottery|||||||
|Community<br>Fund|||9,500|(9,500)|||
|Disc Medicine|||884|(884)|||
|||19,419|10,426|(10,733)|(5)|19,107|
|||At||||At 31 March|
|||1 April 2021|Income|Expenditure|Transfers|2022|
|||||F||F|
|Helen Gibbs Fund||17,195|2|||17,197|
|Light Protection|Fund|1,020|5|||1,025|
|Festival 2019fund||1,264||(67)||1,197|
|||19,479||(67)||19,419|



## 

|Analysis of Net A|ssets Between Funds||||
|---|---|---|---|---|
|||Unrestricted|Restricted|Total Funds|
|||Funds|Funds|2023|
||||P||
|Current assets||21,458|18,223|39,681|
|Creditors less than|1 year|(300)||(300)|
|Net assets||21,158|18,223|39,381|
|||Unrestricted|Restricted|Total Funds|
|||Funds|Funds|2022<br>f|
|Current assets||24,797|19,419|44,216|
|Creditors less than|1 year|(252)||(252)|
|Net assets||24,545|19,419|43,964|





## 

## 

||||2023|2022|
|---|---|---|---|---|
|Income and endowments|||||
|Donations|||||
|Donations<br>and subscriptions<br>Gift aid<br>Clinuvel<br>Pharmaceuticals<br>grant<br>Alnylam<br>grant<br>Recordati Rare Diseases grant<br>Albert Hunt<br>Mitsubishi<br>Tanab<br>Disc Medicine|||16,438<br>1,400<br>10,000<br>2,500<br>884|10,019<br>1,128<br>1,000<br>2,000<br>5,000<br>1,000<br>2,000|
|National<br>Lottery Community||Fund|9,500||
||||40,722|22,147|
|Other trading activities|||||
|Merchandise<br>sales|||508|906|
|Investment<br>income|||||
|Bank interest receivable|||82||
|Dividends<br>receivable|||14||
||||96||
|Other income|||||
|Consultancy<br>fees|||2,223||
|Total income|||43,549|23,062|





## 

||||2023|2022|
|---|---|---|---|---|
|Expenditure|||||
|Costs ofother trading|activities||||
|Merchandise<br>costs||||1,468|
|Costs ofcharitable<br>activities|||||
|Activities undertaken|directly||||
|BPA events|||10,935|168|
|Festival costs||||67|
|Counselling<br>8 wellbeing|||230||
|Insurance|||1,068|821|
|International<br>conference|fees||1,231||
|Trustees'<br>ordinary<br>travel|expenses||2,682|391|
|Ordinary<br>travel expenses|||4,152|832|
|Accountancy<br>fees|||300|252|
|Storage fees|||584|532|
|Printing,<br>postage, stationery||and telephone|1,244|1,558|
|Newsletter|||550|441|
|Advertising<br>and promotional||goods|586|48|
|Subscriptions|||346|935|
|ITand software|||519|175|
|Fundraising|||684|225|
|Administration<br>fees|||19,804|14,198|
|Consultancy<br>fees|||2,223||
||||47,138|20,643|
|Grant funding activities|||||
|Grants given||||1,000|
|Expenditure<br>on charitable||activities|47,787|21,643|
|Net expenditure|||(4,583)|(49)|



