# THE BRITISH PORPHYRIA ASSOCIATION

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1089609
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Nov. 30, 2001
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1089609


## Contact

- **Address:** 4 Festival Villas, Woodland, BISHOP AUCKLAND, County Durham
- **Postcode:** DL13 5RG
- **Phone:** 0300 302 0030
- **Email:** helpline@porphyria.org.uk
- **Website:** www.porphyria.org.uk



## Activities

**Objects:** THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY PORPHYRIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO:(A)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO PORPHYRIA AND ITS IMPLICATIONS FOR THE FAMILY;(B)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF PORPHYRIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

**Activities:** Support for people with porphryia and their relatives. Improve understanding of porphryia.  Support research into porphryia.




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Dr Victoria Anne McGuire** | Chair | Sept. 30, 2024 |
| ALAN MOLYNEUX |  |  |
| ANNE NEWTON |  | Nov. 30, 2001 |
| Claire Jarvis |  | March 19, 2024 |
| JOHN WALTER CHAMBERLAYNE MA |  | Sept. 30, 2024 |
| KAREN ELIZABETH HARRIS |  | Nov. 30, 2001 |
| Natassja Chadwick |  | Sept. 19, 2020 |
| Richard Bennett |  | April 19, 2018 |
| Victoria Harrold |  | Oct. 3, 2023 |




