# ECTODERMAL DYSPLASIA SOCIETY

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1089135
- **Other names:** EDS
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Oct. 31, 2001
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1089135


## Contact

- **Address:** UNIT 1 MAIDA VALE BUSINESS CENTRE, LECKHAMPTON, CHELTENHAM, GLOS
- **Postcode:** GL53 7ER
- **Phone:** 01242 261332
- **Email:** diana@edsociety.co.uk
- **Website:** www.edsociety.co.uk



## Activities

**Objects:** THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

**Activities:** The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind



## Geography

- **Area of benefit:** NOT DEFINED. IN PRACTICE WORLDWIDE
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **PAUL COLLACOTT** | Chair |  |
| ALAN WALLER |  | April 24, 2013 |
| Alison Smith |  | Jan. 10, 2026 |
| Andy Ponting |  | May 6, 2017 |
| DIANA PERRY |  |  |
| Elaine Aylward |  | March 22, 2025 |
| Helen Wickins |  | July 12, 2025 |
| Larissa Donna Pelham |  | April 25, 2020 |
| Nick Briggs |  | April 25, 2020 |
| SHARON COOPER |  | Nov. 26, 2012 |
| Sarah James |  | Jan. 10, 2026 |
| Scott Gallacher |  | May 16, 2015 |
| Stuart Atkiss |  | May 7, 2016 |




