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2022-03-31-accounts

ENCEPHALITIS SOCIETY The brain inflammation charity FNB ijil, Annual Report and Accounts 2021/22

CONTENTS

Company Information . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3 Our Purpose and Activities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Chair’s Report . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 Achievement and Performance . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 Structure, Governance and Management . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Financial Review and Policies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12 Independent Auditor’s Report . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15 Statement of Financial Activities and . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18 Income and Expenditure Account Balance Sheet . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19 Statement of Cashflows . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20 Notes to Financial Statements . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21

Front cover photo:

World Encephalitis Day 2022 – University Teaching Hospital Zambia – Zincare Team

2 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

Company Information

Trustees’ Report

The Trustees present their Annual Report with the financial statements of the charity for the year ended 31 March 2022 .

Reference and Administrative Details

Full name of charity: Encephalitis Support Group (operating as the Encephalitis Society) 04189027 Company registration number: England and Wales charity number: 1087843 SC048210 Scottish charity number: Encephalitis Society is a Named Fund member of the Chapel & York US Foundation, Inc. The Chapel & York US Foundation, Inc. is a 501(c) (3) tax-exempt organization. Registered office of the charity: 32 Castlegate, Malton, North Yorkshire, YO17 7DT

Directors and Trustees:

The Directors of the charitable company (the charity) are its Trustees for the purposes of charity law. The Trustees and officers serving during the year and since the year end were as follows:

APPOINTED RESIGNED Gagun Gahir Chair April 2020 Dr Mark Ellul Vice Chair January 2019 Tim Spring October 2007 Adele MacKinlay January 2015 Andrew Stephens Treasurer March 2020 December 2021 David Smith March 2021 Donna Chen March 2021 March 2021 Dr Paola Tinti John Mayhew Treasurer December 2021 CHIEF EXECUTIVE OFFICER: Dr. Ava Easton

Our Advisors

Auditors:

HPH 54 Bootham York YO30 7XZ

Bankers:

CAF BANK HSBC 25 Kings Hill Avenue 27 Market Place West Malling Malton Kent ME19 4JQ YO17 7LU

Solicitor:

HAGUE & DIXON Bank House 1 The Square Stamford Bridge York YO41 1AG

Investments:

REDMAYNE-BENTLEY LLP 9 Bond Court Leeds LS1 2JZ

ANNUAL REPORT AND ACCOUNTS 2021- 2022 3

OUR VISION

A world where encephalitis matters to everyone.

OUR MISSION

Building better futures by driving research, accelerating awareness, and saving lives.

OUR OBJECTIVES

By 2027, we aim to:

OUR VALUES

Our core beliefs shape our culture and our work:

PASSIONATE:

We are dedicated to making a positive impact in the lives of our beneficiaries

INCLUSIVE: Our aim is for everyone to be respected for who they are and feel supported and empowered

CHANGEMAKERS: We create the change in the world that makes life better for our community

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STRATEGIC PLAN 2019-2020 4

Chair’s Report

This financial year has seen investment in our future and our ability to continue to save encephalitis lives around the world. We have always made bold decisions at the Encephalitis Society and are unafraid to try new approaches to best meet the needs of our community. This year we have very much taken the now or never approach. We agreed as a Board of Trustees to an expansion of our staff team, investment in our capability to fundraise – an increasingly difficult and competitive area of our work - and commissioned audits and reviews of our work which will contribute to our commitment to transparency and inclusivity.

As Chair of this small but mighty organisation I am proud of the pioneering work the Encephalitis Society has launched in 2021/22. Our Global Impact Report is a gamechanger in terms of the encephalitis landscape globally and has been the catalyst to commencing conversations with the World Health Organisation and other key stakeholders. Collaborating with an organisation as impactful as the World Health Organisation will help elevate the importance of encephalitis on a global platform and accelerate our vision on a global scale.

As a team we embrace change and welcome the feeling of slight discomfort it brings, working through the innovative thinking it evokes. Using agile methodologies, we worked through complex topics ranging from how to further our reach to as broad and diverse a population as possible to how to support and develop our people at Encephalitis Society for long and satisfying careers with the team. We have done a lot of analysis and visionary thinking which will contribute to new ways of reaching and helping those that have been affected by encephalitis. Looking to the future is key to ensuring we continue to provide life-changing support to thousands of people impacted by encephalitis in a rapidly changing world.

As always it is with thanks to our family of fundraisers, volunteers, trusts and foundations, Ambassadors, regular donors, scientists, vice-presidents and corporate partners. We have once again raised almost £1 million, an incredible achievement and testament to the continuing generosity of our supporters – and all this despite a pandemic and a cost of living crisis on the horizon. A huge thank you to the staff team, our supporters, volunteers, fundraisers and partners for your continued resilience, energy and dedication.

Together we can make encephalitis matter to everyone.

Gagun Gahir Chair

ANNUAL REPORT AND ACCOUNTS 2021- 2022 5

Achievements and Performance

*All increases and decreases relate to the previous financial year – 2020/21.

Key Figures in Numbers

65% of our expenditure was spent on our charitable activities. So, for every £1 donated, 65 pence was spent on Support, Awareness and Research. A 4% reduction since 2020/21 due to increased demands on fundraising, investment in sustainable fundraising, expansion costs and regulation requirements.

Support Key Stats

We spent £334,687 on support which represented 38% of our expenditure (37% in 2020/21 - 1% increase).

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4%
DECREASE £957,252 INCOME
22%
EXPENDITURE £880,304 INCREASE
UNRESTRICTED
25%
DECREASE £576,715 (as recommended byRESERVES
New Philanthropy Capital)
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OBJECTIVE EXPENDITURE
% INCREASE/
2020/2021 2021/2022 DECREASE
AWARENESS £124,964 £140,269 12% INCREASE
SUPPORT & £266,285 £334,687 26% INCREASE
INFORMATION
RESEARCH £104,789 £96,651 8% DECREASE
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Awareness Key Stats

We spent £140,269 on awareness, which represented 16% of our expenditure (17% in 2020/2021- 1% decrease).

Research Key Stats

We spent £96,651 on research which represented 11% of our expenditure (15% in 2020/21 – 4% decrease)

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107 58.8M 14,100
PIECES OF PEOPLE WEBSITE
COVERAGE REACHED VIEWS
155 SEEN BY www
COUNTRIES
22M PEOPLE
4M 21,900
30.4 TVVIEWERS TIK-TOKVIEWS
MILLION 13,600
RADIO LISTENERS YouTube VIEWS
1.7M
347,900
DIGITAL
FACEBOOK
21,800 339,000 AD VIEWS
IMPRESSIONS
INSTAGRAM TWITTER
IMPRESSIONS IMPRESSIONS
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ANNUAL REPORT AND ACCOUNTS 2021- 2022 7

Fundraising Key Stats

We spent £272,848 on fundraising, which is 31% of our expenditure (25% in 2020/21 - 6% increase).

The decision was taken invest in this of our work to ensure the sustainability of the Society and our life saving work. The impact of the pandemic, war in Ukraine and cost of living crisis is resulting in more resources required to ensure the same level of income. We intend to expand our reach and the Board and SLT made financial decisions to increase fundraising expenditure which we hope to see the impact of in the next few years.

Governance Key Stats

We spent £35,849 on our Governance, which is 4% of our expenditure (6% in 2020/21 - 2% decrease)

Fundraiser Andrew Red4WED birthday party

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Encephalitis Challenges

Encephalitis is inflammation of the brain, an indiscriminate syndrome that is usually caused by infection or by a person’s own immune system attacking the brain in error. It is estimated that around 500,000 people/a year across the globe1 are affected with this often-deadly (up to 40% depending on the cause2) brain condition – one person every minute. It is agreed this is quite probably a significant underestimate of the true incidence of the condition.

77% of people around the world do not know what encephalitis is3, and we also recognise now that encephalitis has a higher incidence, in many countries, than Motor Neurone Disease, Bacterial Meningitis, Multiple Sclerosis and Cerebral Palsy - conditions which have much higher clinical and public profiles. Therefore, our strategic priorities mean that in addition to securing the funds that keep us operating, awareness of the condition is one of our top strategic aims.

There are many challenges in managing encephalitis, not only in the acute illness, but also in the recovery and rehabilitation stage. Initial features do not show sufficient clues towards an etiological diagnosis and establishing the exact cause of encephalitis in a timely manner can be difficult. In many areas, reluctance to perform certain tests (e.g., lumbar puncture), lack of or poor resources, and insufficient medical training are barriers in diagnosing and treating encephalitis. Global guidelines for diagnosis and treatment are still lacking.

Adequate discharge planning, information regarding the illness and its consequences and future care for patients and their family/carers are essential to improve the overall outcomes. However, people continue to be discharged from hospital without adequate referral and follow-up plans in place.

Nevertheless, improvements in diagnosis and management of encephalitis have happened over the years. These have resulted in more people surviving than in the past. Whilst this is good progress toward attempts to mitigate the clinical burden of the disease and its related mortality, it does mean that we are seeing an increase in the numbers of people (up to two thirds depending on the type of encephalitis4) left with the consequences of the condition: an acquired brain injury resulting in a range of, often hidden difficulties, such as cognitive, physical, emotional, behavioural and social problems. These challenges can often result in social problems too, such as mental health issues, family breakdown, social isolation, and losses in terms of employment, education, independence, confidence and self-esteem. The nature of hidden disabilities often means people’s needs are not met or recognised. Specialist clinical, therapeutic, rehabilitative interventions and support are needed to help people (and their families) adjust to, and cope with, such difficulties. Families also provide a major part of the care needed - sometimes to the detriment of their own lives resulting in stress and associated disorders..

The public’s response to vaccination and misinformation around vaccinations, including that for illnesses often

considered eradicated in the past (e.g., measles), for travellers and for new illnesses such as Covid-19 also present their own challenges, and contribute to preventable cases of encephalitis occurring. Encephalitis research therefore remains a high priority in our strategic plan and must be a greater priority for clinicians, researchers, policymakers and public health officials.

Future Plans

In 2021 we launched a report entitled Encephalitis: an Indepth Review and Gap Analysis of Key Variables Affecting Global Disease Burden. The 180-page analysis identifies global issues surrounding encephalitis and proposes a range of solutions, from epidemiology, incidence, and economic impacts through to prevention, diagnosis and treatment, and the needs of patients and families. In short it concludes there needs to be better access and better standards of encephalitis healthcare for people around the world especially those who live in low-to-middle income countries.

In early 2021, we presented the report to Dr Tarun Dua, the head of the World Brain Health Unit at the World Health Organization (WHO). It was subsequently confirmed that the WHO would be keen to continue talks and a working group was put together between the WHO and the Encephalitis Society. Discussions have been progressing through 2021 and into 2022 resulting in the launch of the report in the Lancet Neurology in time for World Encephalitis Day on 22nd February 2022. Further meetings and associated work are planned for 2022 onwards.

Our strategic plan is our guide to prioritise our work, whilst also enabling us to clearly report upon not only the outcomes of our work, but also the impact they have for our beneficiaries and people affected by encephalitis throughout the world. Work began on developing our new strategic plan in January 2022 – in-depth and thorough process to identify how to better meet the needs of our beneficiaries, be more inclusive and accessible and prioritise our resources where we can have the biggest impact on the encephalitis landscape. Internally from January 2022 we have expanded our staff team and conducted a safeguarding audit which resulted in very high praise of our work. Introduced new Risk and Human Resource software and commissioned an external reward and benefit audit. We intend to launch our new strategy in 2023 .

Encephalitis and the infections that cause it continue to present a threat to public health. Our proximity to animals, increasing industrialisation, climate change and other environmental factors will mean that new and emerging infections will continue to occur. COVID-19 is of course one example however there are others in recent years such as Zika, Monkeypox and in March 2022 the unprecedented Japanese Encephalitis outbreak in Australia. The work of the Encephalitis Society therefore is relevant and important perhaps now more than ever.

ANNUAL REPORT AND ACCOUNTS 2021- 2022 9

Structure, Governance and Management

Governing Document

The Encephalitis Support Group registered as a charity on 25 February 1995. On 28th March 2001, it was incorporated as a company limited by guarantee and re-registered with the Charity Commission on 2nd August 2001. On 27 May 2003 it began operating as the Encephalitis Society. It is governed by its Articles of Association which were amended and adopted in November 2016. We registered as a charity in Scotland in 2018. Encephalitis Society is a Named Fund member of the Chapel & York US Foundation, Inc. The Chapel & York US Foundation, Inc. is a 501(c) (3) tax-exempt organization.

Trustees

The Board of Trustees is responsible for the overall governance, policy and strategic direction of the Society. The Board meets four times a year with digital mid-point meetings. The Trustees are volunteers, and many have personal experience of encephalitis. The Board recruits to skills-gaps whereby professionals and others with an interest in encephalitis who can meet those areas of need, are invited to take a Board position.

Dr Ava Easton is the Chief Executive of the Encephalitis Society, having worked for the Society and in the field of encephalitis since 2000; Phillippa Chapman is the Deputy Chief Executive having worked for the Society since 2012 and Alina Ellerington is Director of Services having worked for the charity since 2008. Together they make up the Executive and Senior Team. You can see the current full Board of Trustees and Staff Team here: www.encephalitis. info/our-trustees www.encephalitis.info/our-staff

Recruitment and Training of the Trustees

Prospective Trustees initially attend Board meetings as Observers. Along with a Trustee buddying system, each new Trustee is provided with access to an online induction microsite which includes briefings on key responsibilities, objects of the Society and its vision and mission, the structure and workings of the Society, its staff and volunteers. The Society organises a one-day training event each year for all the Trustees to update their knowledge about their role and responsibilities as charity Trustees and Company Directors. The Trustees also attend conferences, seminars and other related learning opportunities.

Due to the limited number of interested specialists in encephalitis the Board have agreed that Trustees can remain on the Board, following a review at Board level, for a maximum of nine years. We currently have one Board member that falls into this category.

All Trustees, staff, consultants, suppliers and volunteers undergo a Disclosure and Barring check at the appropriate level depending on the role.

Pay policy for senior staff

The Trustees and Senior Leadership Team comprise the key management personnel of the charity in charge of directing and controlling, running and operating the charity on a day-to-day basis. All Trustees give their time freely and no Trustee received remuneration in the year. Details of Trustees’ expenses and related party transactions are disclosed in Note Nine to the accounts. The pay of staff is reviewed annually.

Related parties

None of the Trustees receive remuneration or other benefits from their work with the charity. Any connection between a Trustee or Senior Leader of the charity with a contractual relationship to a related party must be disclosed to the full Board of Trustees. In the current year no such related party transactions were reported.

Employees

The Encephalitis Society has a staff of 14: 8 full time (37 hours per week) and 6 part-time (ranging from 22.5 to 34 hours per week) employees (11.07 full-time equivalents). The Encephalitis Society aims to be an organisation where employees enjoy working and feel supported and developed. The Society makes contributions of 6% to a pension scheme for all its employees and supplies all its driver-employees with a free local parking permit. The Society also provides a staff subscription to the CALM App, access to an employee assistance programme and a private healthcare scheme, as well as flexible hours and hybrid working. The Society aims to deliver positive programmes for training and personal development for its employees, with the objectives of maintaining high standards of service provision and opportunities for employee development. Employees are kept fully informed about, and involved in, the Society’s strategy and objectives.

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Volunteers

The Society 97 active volunteers (including Trustees (9), Ambassadors (10), Vice Presidents (8), Presidents (2), Scientific Panel (18) and Team Encephalitis Volunteers (50) Office Volunteers (2). The Society values the volunteers and their work and has dedicated volunteer policies for the volunteers to feel safe and appreciated while volunteering for the Society. Training opportunities are available to the volunteers and opportunities for the staff and volunteers to mix and feel part of the same team have been created.

Encephalitis Society Scientific Advisory Panel

An expert Scientific Advisory Panel provides the Society with professional resources. Members of the Panel include highly regarded experts from neurological, neuropsychological, neuropsychiatric,

neuro-immunology, paediatric, therapeutic and other relevant fields. The Panel meets annually to exchange information and progress research initiatives. Members of the Panel also assist with enquiries of a complex clinical nature.

VIPs/Ambassadors

We are very privileged to have Professor Tom Solomon, CBE as our President and Professor Barbara Wilson, OBE as our President Emeritus. Professor Solomon is joined by eight Vice-Presidents: Richard Lockwood, Baroness Anne McIntosh of Pickering, Kika Markham, Tom NaylorLeyland, Leigh Palmer, David Jennings and Tiggy and Robert Sutton. Our Ambassadors are actor and artist Mathew Bose, quadruple-Olympic-medal winning swimmer Rebecca Adlington OBE, Welsh international rugby player Aled Davies, Emmy nominated director, producer and cinematographer Mike Day, Features Editor at The Guardian Simon Hattenstone, previous BBC news presenter Charlotte Leeming, security risk consultant and reality TV personality Alecia Emerson-Thomas, and three International Ambassadors, New York Post journalist and author of Brain on Fire, Susannah Cahalan, Crossover-singer and Britain’s Got Talent semi-finalist, Aliki Chrysochou and Australian award winning sports broadcaster Karen Tighe. These appointments and support can help us in drawing attention to a condition which has a devastating effect on the lives of those it touches.

affected by encephalitis. To see our corporate partners, visit www.encephalitis.info. The Encephalitis Society is committed to upholding our reputation of independence, impartiality and transparency in all that we do. We recognise the importance of working collaboratively with all stakeholders to ensure we do our best to meet the needs of people affected by encephalitis and their families. However, the views of the charity are always reached independently and are based on informed and balanced evidence.

We also work with other stakeholders as we believe that our supporters want us to work in partnership with key players; from academics, national and international organisations, and health professionals to corporate partners including pharmaceutical companies. We believe it is important to maintain cooperative relationships with companies that manufacture and market drugs used by people affected by encephalitis, but under no circumstances will these or other companies influence our strategic direction, activities or what we say.

Environmental Policy

The Society recognises that every aspect of its operation can influence the environment. Therefore, we aim to minimise negative impacts and maximise the positive. Climate change is a major challenge. Government, business and the wider society will be affected, and all have a role to play in positively addressing the issue. Our staff and Trustees agree that the role of energy champion is a team role and not an individual one, and therefore we work collectively to reduce the Society’s impact on the environment.

Diversity

We are working towards improving our Diversity and Inclusion (D&I) as part of our ongoing strategic developments. We recognise that we need to create an environment where all people affected, carers and their families feel they are treated equally as individuals and enables our staff and volunteers to thrive and achieve their full potential. We are developing projects to enable to better inclusion of hard-to-reach communities. In 2020 we recruited and appointed a D&I Lead to the Board and in early 2022 we have a staff D&I champion group.

Ethical issues

Funding Research that tests on animals

Working with Corporates

The Encephalitis Society receives support from a range of pharmaceutical, legal and other companies with an interest in encephalitis as part of a diverse fundraising strategy involving people fundraising for us and people donating their own money, together with support from charitable trusts. The support provided by companies has made an important contribution to our work on behalf of people

The Society will only consider funding applications for research that tests on animals on a case-by-case basis, where there is evidence of no other model or known alternative, and only for studies being conducted in the UK. The Society wishes to actively support research which is working toward eradicating the need for animal testing and will always choose to fund studies that do not test on animals over and above equivalent studies that do.

ANNUAL REPORT AND ACCOUNTS 2021- 2022 11

Financial Review

The overall result for the year is a net income before gains on investments of £76,948 which was better than expected having budgeted for a planned deficit of £92,700. The Balance Sheet at 31 March 2022 shows total retained funds of £ 1,517,935. This includes restricted funds of £308,911.

A breakdown of restricted funds, showing movements in the year by project and closing balances at 31 March 2022 and the reasons the funds are restricted is shown in Note 17.

At the end of the year, there was a 25% decrease in the unrestricted reserve (£576,715), compared with the previous year. Following the most intense part of the pandemic months occurring, we planned to increase our activities and expenditure resulting in an increase in expenditure and reduction in our unrestricted reserves.

Public Benefit Statement

The Trustees have complied with their duty to have due regard to the guidance on public benefit published by the Charity Commission. This report describes our charitable work and this in turn illustrates how the charity delivers public benefit. We strive to meet our vision through all our activities and focus all our decisions on how our work will benefit the individuals and families now and, in the future, affected by this devastating condition.

Investment Policy

The Encephalitis Society are tasked by the Charity Commission to act prudently with our public money. The Board of Trustees took the decision that the most prudent course of action for the Society was to invest inactive charitable income. The Society has chosen a portfolio of investments and government bonds that can be liquidated in 24/48 hours and is monitored monthly to protect public money. This portfolio contains unrestricted and at times dormant restricted income. Our investments are in a 100% ethical portfolio.

Reserves Policy

The Board of Trustees of the Encephalitis Society resolve to pursue a policy of establishing and maintaining a contingency fund sufficient to meet twelve months’ unrestricted expenditure, as the COVID-19 pandemic brought into sharp focus the importance of having sufficient reserves as a protection from income shocks and unexpected events (£502,213 based on 2021/22 expenditure).

This should be regularly reviewed by Trustees to ensure that it meets the organisation’s changing needs and circumstances. This fund can be identified as the Contingency Fund in designated funds.

Risk Management

This Encephalitis Society has a detailed risk register, which is reviewed in detail by the Risk Sub-committee which comprises members of the Board and executive team. The Board of Trustees including the executive team have an overview of the risk register every three months and in detail annually. Significant new risks are brought to the attention of the Board as necessary.

The risk assessment process identified the following top major risks which the charity should be mindful of :

The charity put measures in place to manage these risks and monitor the likelihood of these risk events, to minimise the financial and reputational impact they would have on the charity. The charity is also looking into software tools to enable a more modern approach to risk management.

12 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

Safeguarding

As a charity working extensively with people affected by brain injury, we do come into contact with individuals at-risk and are especially careful and sensitive when interacting with them. All our staff, trustees and specialist volunteers receive training and guidance and our long history of working with people affected by encephalitis has given us the knowledge and expertise our supporters and wider public expect from us as encephalitis experts. Safeguarding our community is of paramount importance and we take this issue seriously, constantly reviewing our processes to make sure we comply with best practice. We have commissioned an external Safeguarding audit to take place in 2022-23 financial year.

Fundraising Standards

The Encephalitis Society voluntarily subscribes to the Fundraising Regulator and its Code of Practice. We are committed to working with the Fundraising Regulator and the Institute of Fundraising to improve fundraising standards across the sector.

The Encephalitis Society’s approach to fundraising focuses on five main areas:

The charity has published its Fundraising Promise, which is available at www.encephalitis.info/fundraising-policy and has a complaints policy and process in place. There were no complaints about fundraising received during the year.

The charity is a member of the Fundraising Regulator scheme and is thereby entitled to use the Regulator’s logo on its fundraising materials and operates in accordance with the Code of Fundraising Practice. The charity is also registered with the Gambling Commission for the purposes of running a lottery and conducting a raffle draw.

We have continued to review our approach to consent and data protection considering the implementation of the General Data Protection Regulations on 25 May 2018.

The charity also operates a Whistleblowing Policy.

Working with Third Party Fundraisers

We do not currently work with any third-party fundraisers as we believe our small but expert fundraising team are the best people to support our growing number of supporters. We do however work with a small number of organisations who donate proceeds from the sale of their goods or services and we expect them to follow the Code of Fundraising Practice.

Complaints

We are pleased to report that we had no complaints about our services, however we do have a clear and easy to use complaints procedure as we recognise that people may be dissatisfied at some point. Complaints and supporter feedback are important, and we welcome them as a source of information on how our work impacts on others. www. encephalitis.info/complaints

Eley family taking part in BrainWalk 2022

ANNUAL REPORT AND ACCOUNTS 2021- 2022 13

Responsibilities of the Trustees

The Trustees (who are also the Directors of Encephalitis Support Group for the purposes of company law) are responsible for preparing the Trustees Annual Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the Trustees to prepare financial statements each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the Trustees are required to:

The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and to enable them to ensure that the financial statements comply with the Companies Act 2006. The Trustees are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

This report has been prepared in accordance with the special provisions of Part 156 of the Companies Act 2006 relating to small companies and the Statement of Recommended Practice – Accounting and Reporting by Charities.

Approved by the Board of Trustees on 5 December 2022 and signed on its behalf by:

Gagun Gahir Chair

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Red4WED 2022 in California
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14 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

Independent Auditor’s Report

TO THE MEMBERS OF ENCEPHALITIS SUPPORT GROUP

(OPERATING AS THE ENCEPHALITIS SOCIETY)

Opinion

We have audited the financial statements of Encephalitis Support Group for the year ended 31 March 2022, which comprise the Statement of Financial Activities and Income and Expenditure Account, the Balance Sheet, the Cash Flow Statement and the related notes, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’ (United Kingdom Generally Accepted Accounting Practice).

In our opinion the financial statements:

Basis of opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the United Kingdom, including the Financial Reporting Council’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees’/director’s use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the directors with respect to going concern are described in the relevant sections of this report.

Other information

The trustees/directors are responsible for the other information contained within the annual report. The other information comprises the information included in the Annual Report, other than the financial statements and our Auditor’s report thereon. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Opinion on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

ANNUAL REPORT AND ACCOUNTS 2021- 2022 15

Matters on which we are required to

report by exception

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the Trustees’ report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and the Charities Accounts (Scotland) Regulations 2006 requires us to report to you if, in our opinion:

Responsibilities of Directors

As explained more fully in the Trustees’ responsibilities statement on page 19, the trustees are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

We have been appointed as auditor under section 44(1) (c) of the Charities and Trustee Investment (Scotland) Act 2005 and under the Companies Act 2006 and report in accordance with the Acts and relevant regulations made or having effect thereunder.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error,

and to issue an Auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of noncompliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below:

Owing to the inherent limitations of an audit, there is an unavoidable risk that we may not have detected some material misstatements in the financial statements, even though we have properly planned and performed our audit in accordance with auditing standards. We are not responsible for preventing non-compliance and cannot

16 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

be expected to detect non-compliance with all laws and regulations. These inherent limitations are particularly significant in the case of misstatement resulting from fraud as this may involve sophisticated schemes designed to avoid detection, including deliberate failure to record transactions, collusion, or the provision of intentional misrepresentations. We are not responsible for preventing fraud and cannot be expected to detect all fraud.

A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities. This description forms part of our Auditor’s report.

Use of our report

This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006, and to the charitable company’s trustees, as a body, in accordance with Regulation 10 of the Charities Accounts (Scotland)

Regulations 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed .

Adrian Rodaway Senior Statutory Auditor For and on behalf of HPH, Chartered Accountants Statutory Auditor 54 Bootham York YO30 7XZ

Date: 5 December 2022

ANNUAL REPORT AND ACCOUNTS 2021- 2022 17

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) STATEMENT OF FINANCIAL ACTIVITIES AND INCOME

AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2022

Note
Income and endowments from:
Donatons and legacies
2
Charitable actvites
3
Other trading actvites
4
Investments
5
Total
Expenditure on:
6
Raising funds
Charitable actvites
Total
Net income and net movement
in funds before gains on investments
Net gains on investments
Net income/(expenditure)
Transfers between funds
16, 17
Net movement in funds
Reconciliaton of funds:
Total funds brought forward
Total funds carried forward		 Unrestricted
General
Designated
Fund
Funds
£
£
292,231
50,000
76,516
8,358
228,168
47,208
17,242
-
614,157
105,566
206,292
-
295,921
127,484
502,213
127,484
111,944
(21,918)
9,943
-
121,887
(21,918)
(312,000)
312,000
(190,113)
290,082
766,828
342,227
£ 576,715
£ 632,309
Restricted
Funds
£
907
236,622
-
-
237,529
-
250,607
250,607
(13,078)
-
(13,078)
-
(13,078)
321,989
£ 308,911		 Year Ended

31 March
2021
£
343,138
321,496
275,376
17,242
957,252
206,292
674,012
880,304
76,948
9,943
86,891
-
86,891
1,431,044
£ 1,517,935		 Year Ended
31 March
2020
£
313,721
388,170
278,944
16,076
996,911
143,301
575,782
719,0831
277,8289
80,661
358,489
-
358,489
1,072,555
£ 1,431,044

The notes on pages 21 to 36 form part of these financial statements.

18 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) BALANCE SHEET AS AT 31 MARCH 2022

Note
Fixed assets:
Tangible assets
13
Investments
12
Current assets:
Stocks
Debtors
14
Cash at bank and in hand
Liabilites:
CREDITORS: amounts falling due
within one year
15
Net current assets
Total net assets
The funds of the charity:
Unrestricted funds
16
Undesignated
Designated
Restricted Funds
17
Total charity funds		 2022
£
£
10,708
1,063,305
1,074,013
16,846
70,673
478,244
565,763
121,841
443,922
£ 1,517,935
576,715
632,309
1,209,024
308,911
£ 1,517,935		 2021
£
£
12,669
1,052,563
1,065,232
17,038
61,965
400,199
479,202
113,390
365,812
£ 1,431,044
766,828
342,227
1,109,055
321,989
£ 1,431,044

The accounts have been prepared in accordance with the special provisions of the Companies Act 2006 applicable to small companies and the Charities SORP (FRS 102).

Approved by the Board of Directors and Trustees on 3 December 2022 and signed on its behalf by:

G Gahir Director and Trustee

J Mayhew Director and Trustee

The notes on pages 21 to 36 form part of these financial statements.

ANNUAL REPORT AND ACCOUNTS 2021- 2022 19

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) STATEMENT OF CASHFLOWS FOR THE YEAR ENDED 31 MARCH 2022

Note
Cash fows from operatng actvites:
Net cash provided by operatng actvites
21
Cash fows from investng actvites:
Dividends, interest and rents from investments
Proceeds from the sale of property, plant and equipment
Purchase of property, plant and equipment
Purchase of investments
Sales of investments
Net cash provided by/(used in) investng actvites
Change in cash and cash equivalents
in the reportng period
Cash and cash equivalents at the
beginning of the reportng period
Cash and cash equivalents at the
end of the reportng period
The notes on pages 21 to 36 form part of these fnancial statements.		 2022
£
65,660
17,242
350
(4,408)
(648,248)
647,449
12,385
78,045
400,199
478,244		 2021
£
333,903
16,076
-
(9,476)
(816,681))
602,807
(207,274)
126,629
273,570
400,199

20 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

1. ACCOUNTING POLICIES

Legal entity

Encephalitis Support Group is a company limited by guarantee (04189027). It is registered in England and Wales with the Charity Commission (1087843) and in Scotland with the Scottish Charity Regulator (SC048210). The address of the registered office and principal place of business is 32 Castlegate, Malton, North Yorkshire, YO17 7DT.

Basis of preparation

The financial statements have been prepared in accordance with the Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued in October 2019 and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Companies Act 2006 and UK Generally Accepted Practice as it applies from 1 January 2019.

The Charitable Company constitutes a public benefit entity as defined by FRS 102.

Going Concern

The Trustees have prepared financial projections, taking into consideration the current economic climate and its potential impact on the sources of income and planned expenditure. They have a reasonable expectation that adequate financial resources are available to enable the charity to continue in operational existence for the foreseeable future, and have adequate contingency plans in the event that income streams are reduced. Consequently the financial statements have been prepared on the basis that the charity is a going concern .

Income recognition

Incoming resources represents income received in the form of grants, donations, and fundraising.

Voluntary income is received by way of donations, legacies and gifts.With the exception of legacies these are accounted for in the Statement of Financial Activities at the time of receipt.

Legacies are included in the Statement of Financial Activities where probate was granted prior to the Balance Sheet date and where receipt was in the year or took place shortly after the year end. Other legacies notified are not accrued when there are uncertainties of the value and timing of the receipt.

The value of services provided by volunteers has not been included.

Grants, including grants for the purchase of fixed assets, are recognised in full in the Statement of Financial Activities in the year in which they are receivable.

Expenditure and irrecoverable VAT

Resources expended are recognised in the period in which they are incurred. Resources expended include attributable VAT which cannot be recovered.

Support costs include central functions such as general management, information technology and human resources and have been allocated to activity cost categories (Awareness, Research, Member Support Information, Fundraising and Governance) on a basis consistent with the use of resources and size of department. Support costs do not, in themselves, constitute an activity, instead they enable output creating activities undertaken.

Pension Costs

The company operates a defined contribution pension scheme. Contributions payable for the year are charged to the profit and loss account.

Fixed Assets

Depreciation is provided at the following annual rates in order to write off the cost of each asset over its estimated useful life:-

Office equipment and furniture 25% straight line basis

Leasehold property improvement 20% straight line basis

All capital expenditure in excess of £2,000 is capitalised as tangible fixed assets and all expenditure is transferred from restricted funds to the unrestricted general fund including depreciation.

Stock

Stock is valued at the lower of cost or market value.

Fund accounting

Unrestricted funds

Unrestricted funds are donations and other incoming resources receivable or generated for the objects of the Charity without further specified purpose and are available as general funds.

Unrestricted funds are identified as £1,209,024 on the balance sheet. The Trustees follow the New

ANNUAL REPORT AND ACCOUNTS 2021- 2022 21

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022

Philanthropy Capital recommended policy for unrestricted funds which does not include designated funds for specific purposes. Therefore our current unrestricted funds are £576,715.

Designated funds

Designated funds are unrestricted funds earmarked by the Board of Trustees for specific purposes.

Restricted funds

Restricted funds are to be used for specific purposes as laid down by the donor. Expenditure which meets these criteria is charged to the fund, together with a fair allocation of management and support costs.

Investments

Investments are valued at market value at the year end. All movements in value from investment changes or revaluation are recognised in the Statement of Financial Activities.

Debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit of similar account.

Creditors and provisions

Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in a transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

Financial instruments

The Charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.

Operating leases

Rentals payable under operating leases are charged against income on a straight line basis over the lease term.

Cash at bank and in hand

Cash at bank and cash in hand includes cash and short

2. DONATIONS AND LEGACIES

Gif and donatons
Gif Aid
Legacies and bequests
Gif in Kind
Corporate income (donatons)		 2022
£
169,359
54,372
8,250
15,987
95,170
£ 343,138		 2021
£
151,665
42,745
7,000
3,7509
108,561
£ 313,721

22 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

3. CHARITABLE ACTIVITIES 2022 2021
£ £
Services provided/contributons - meetngs 55,524 43,248
Grants received
CAF Resilience - 12,500
The Natonal Lotery 37,500 60,000
The Sylvia and Colin Shepherd Charitable Trust 500 500
The Rank Foundaton - 30,000
The Rank Foundaton Emergency Fund - 850
The Rank Foundaton Emergency Fund 2 - 25,000
The Rank Foundaton Recovery Fund - 25,000
The Sir Jules Thorn Charitable Trust 1,250 1,000
The Blakey Foundaton - 3,000
The Maristow Trust - 250
Trustees of Col R N Crossley - 1,000
The Marsh Christan Trust - 400
Ryedale District Council 965 10,000
Duncan Louis Stewart Foundaton - 2,500
The Natonal Lotery - Covid 19 response - 95,304
The Michael & Anna Wix Charitable Trust 200 200
Lloyds of London - 30,000
Persimmon Charitable Foundaton 5,000 1,000
Awards for All - 10,000
Clothworkers Foundaton - 3,418
The de Laszlo Foundaton 16,500 10,000
Masonic Charitable Foundaton - 20,000
Guarantors of Brain - 3,000
The Worshipful Company of Insurers Charitable Trust 5,000 -
Four Acre Trust 17,500 -
The Sir James Roll Charitable Trust 1,000 -
The Kirkby Foundaton 2021 16,440 -
Marguerite Foundaton 2 60,000 -
The Nikki Waterhouse Trust 2,450 -
The Norman Collinson Charitable Trust 1,000 -
Guarantors of Brain 3,000 -
Marsh Christne Trust 450 -
The D’Oyly Carte Charitable Trust 4,000 -
The Garfeld Weston Foundaton 15,000 -
The Misses Barrie Charitable Trust 2,000 -
The Shears Foundaton 5,000 -
Ardwick Trust for children and young people 200 -
The Jack Brunton Charitable Trust 2,000 -
Friendly Hand 6,600 -
The Fellowship of Postgraduate Medicine 6,000 -
The Hospital Saturday Fund 2,000 -
The Liz & Terry Bramall Foundaton 10,000 -
The Hugh Fraser Foundaton 5,000 -
UCB King Baudouin Foundaton 36,392 -
Sovereign Healthcare 2,500 -
The Leonard Curts Foundaton 525 -
£ 321,496 £ 388,170

ANNUAL REPORT AND ACCOUNTS 2021- 2022 23

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

4. OTHER TRADING ACTIVITIES

4. OTHER TRADING ACTIVITIES
Fundraising
Merchandise
Corporate income (services)
Training room hire		 2022
£
195,045
7,210
72,981
140
£ 275,376		 2021
£
189,699
8,618
80,627
-
£ 278,944

5. INVESTMENTS

5. INVESTMENTS
Bank interest
Investment income		 2022
£
68
17,174
£ 17,242		 2021
£
132
15,944
£ 16,076

24 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

6. ANALYSIS OF TOTAL EXPENDITURE

Raising funds
Fundraising
Staf Costs
Bank charges & fnance fees
Merchandise (adjusted for stock)
Investment fees
Charitable actvites
Members actvites
Research
Publicity/Awareness
Publicatons and printng
Postage and ofce supplies
Telephone/internet
Informaton technology
Afliaton fees
Rent, rates & other premises costs
Repairs and renewals
Sundry expenses
Staf Costs
Training costs
Staf travel, accommodaton & subsistence
Volunteer travel, accommodaton & subsistence
Outsourced services
Recruitment
Depreciaton
Proft of disposal of fxed assets
Trustees expenses
Accountancy, audit & legal fees
Bank charges & fnance fees		 2022
£
42,110
145,344
8,194
5,083
5,561
£ 206,292
85,858
26,480
57,785
27,200
12,232
3,056
34,401
6,769
30,630
8,835
420
300,140
5,955
12,648
5,069
30,730
4,668
6,369
(350)
6,463
7,710
944
£ 674,012		 2021
£
7,853
117,107
6,074
7,880
4,387
£ 143,301
63,713
62,870
5,934
10,598
11,545
2,813
19,789
3,601
27,178
11,856
122
291,801
7,814
397
207
34,897
5,995
5,148
-
1,283
7,522
699
£ 575,782

ANNUAL REPORT AND ACCOUNTS 2021- 2022 25

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

7. SUPPORT COSTS

*Support Costs are the definition used by the Charity Commission and do not refer to The Encephalitis Society’s Member support activities. See note on page 20.

Member
Support & Support
Awareness Research Informaton Fundraising Governance Costs Total
£ £ £ £ £ £ £
Fundraising - - - 42,110 - - 42,110
Merchandise - - - 5,083 - - 5,083
Investment fees - - - - 5,561 - 5,561
Members Actvites 7,630 27,247 37,665 19,000 - - 91,542
Publicity/Awareness 42,301 4,595 3,153 1,903 150 - 52,102
Publicatons & Printng 3,156 3,945 18,796 806 390 107 27,200
Postage & Ofce Supplies 1,888 625 4,133 2,686 505 2,395 12,232
Telephone & Internet 443 153 1,070 657 92 642 3,057
Informaton Technology 6,456 1,408 13,681 6,095 845 5,916 34,401
Afliaton fees 750 766 1,018 3,581 207 446 6,768
Rent and other premises cost 4,441 1,531 10,720 6,585 919 6,432 30,628
Repairs & Renewals 1,037 261 5,118 1,164 157 1,098 8,835
Sundry Expenses 52 18 124 76 76 75 421
Staf Costs 53,488 14,461 197,799 144,546 4,047 31,143 445,484
Training costs 261 90 2,648 936 1,642 378 5,955
Staf Travel/Accom 1,648 2,463 3,242 4,568 519 208 12,648
Vol - Travel/Accom 37 2,210 2,598 224 - - 5,069
Outsourced services 4,456 1,536 10,755 6,607 922 6,453 30,729
Recruitment - - - 4,668 - -4,668
Depreciaton & proft on
sale of assets 873 301 2,107 1,294 180 1,265 6,020
Governance including travel
and training - - - - 6,463 - 6,463
Legal & accountancy 26 9 235 146 7,256 38 7,710
Bank charges & investments fees
6		 61 13 8,793 257 8 9,138
Research - 26,480 - - - - 26,480
Total 128,949 88,160 314,875 261,528 30,188 56,604 880,304
*Support cost Allocaton 11,320 8,491 19,812 11,320 5,661 (56,604) -
Total costs £ 140,269 £ 96,651 £ 334,687 £ 272,848 £ 35,849 £ - £ 880,304

8. NET INCOMING RESOURCES FOR THE YEAR

2022 2021
The net incoming resources are stated afer charging: £ £
Depreciaton 6,369 5,147
Auditor’s remuneraton - Audit services 3,700 3,700
- other fnancial services 2,910 2,954

26 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022

9. REMUNERATION AND EXPENSES OF TRUSTEES

None of the Trustees received any remuneration or benefits by virtue of being a Trustee of the Charity Travel and subsistence expenses were reimbursed to, and accommodation paid for on behalf of 7 Trustees (2021: none), totalling £2,824 (2021: £nil).

10. STAFF COSTS AND NUMBERS

Wages and salaries
Social security costs
Pension costs
The average monthly head count was 11 staf (2021: 12).
Employees earning £60,000 or more per annum
£60,000 - £69,999		 2022
2021
£
£
389,251
357,790
33,301
30,345
22,975
20,773
£ 445,527
£ 408,908
1
1

The key leadership personnel of the Charity comprise the Trustees and Senior Leadership Team. The total employee benefits of the key leadership personnel of the Charity were £140,042 (2021: £165,883)

11. TAXATION

The company is accepted as a charity for tax purposes and is exempt from tax on its income or gains to the extent that they are applied for charitable purposes.

12. INVESTMENTS

Market value at 1 April 2020
Additons
Disposals
Net unrealised investment gain
Market value at 31 March 2022
The historical cost of the above investments amounts to:
Listed investments:
Within the UK
Outside the UK		 2022
2021
£
£
1,052,563
758,028
648,248
816,681
(647,449)
(602,807)
9,943
80,661
£ 1,063,305
£ 1,052,563
£ 1,025,945
£ 983,073
457,578
335,794
605,727
716,769
£ 1,063,305
£ 1,052,563

The Trustees consider that there were no material individual holdings in the year which require disclosure.

£300,000 of investments relates to restricted funds (2021: £300,000).

ANNUAL REPORT AND ACCOUNTS 2021- 2022 27

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

13. TANGIBLE FIXED ASSETS

Cost or valuaton
At 1 April 2021
Additons in year
At 31 March 2022
Depreciaton
At 1 April 2021
Charge for year
At 31 March 2022
Net book value
At 31 March 2022
At 31 March 2021
All of the tangible fxed assets relate to unrestricted funds.		 Leasehold
Plant and
improvements
machinery
to building
etc.
Total
£
£
£
50,667
41,009
91,676
-
4,408
4,408
50,667
45,417
96,084
44,640
34,367
79,007
2,421
3,948
6,369
47,061
38,315
85,376
£ 3,606
£ 7,102
£ 10,708
£ 6,027
£ 6,642
£ 12,669
14. DEBTORS
Other debtors
All debtors relate to unrestriced funds.
15. CREDITORS: amounts falling due within one year
Trade creditors
Accruals and deferred income
Taxaton and social security
Other creditors
All creditors relate to unrestricted funds.
Deferred income: movement in year
Deferred income brought forward
Released in the year
Deferred in the year
Deferred income carried forward		 2022
2021
£
£
70,673
61,965
£ 70,673
£ 61,965
2022
2021
£
£
36,025
26,979
72,973
72,569
10,074
8,990
2,769
4,852
£ 121,841
£ 113,390
66,269
6,185
(66,269)
(6,185)
62,932
66,269
£ 62,932
£ 66,269

Deferred income represents monies received in advance for events to be held in financial year 2022/23 (2021: £66,269 for various events to be held in 2021/22).

28 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

16. UNRESTRICTED FUNDS

16. UNRESTRICTED FUNDS
1 April Incoming Outgoing Gains on 31 March
2021 Resources Resources Investments Transfers 2022
£ £ £ £ £ £
Undesignated 766,828 614,157 (502,213) 9,943 (312,000) 576,715
Designated
Building Liabilites Fund 58,485 - (11,850) - - 46,635
Contngency Reserve 230,745 - - - 107,000 337,745
Encephalits Conference 23,548 25,317 (19,322) - - 29,543
Internatonal Development and Research - 47,000 (37,019) - - 9,981
Pfzer - 10,000 (10,000) - - -
World Encephalits Day (WED) - 21,999 (24,402) - 5,000 2,597
World Encephalits Day Alliance (WEDA) 4,530 - - - - 4,530
Young People’s Project 24,919 1,250 (24,891) - - 1,278
Capital/Building Fund - - - - 100,000 100,000
WHO - - - - 100,000 100,000
342,227 105,566 (127,484) - 312,000 632,309
£ 1,109,055 £ 719,723 (£ 629,697) £ 9,943 £ - £ 1,209,024
1 April Incoming Outgoing Gains on 31 March
2020 Resources Resources Investments Transfers 2021
£ £ £ £ £ £
Undesignated 355,472 671,631 (337,219) 80,661 (3,717) 766,828
Designated
Building Liabilites Fund 62,651 - (4,166) - - 58,485
Contngency Reserve 230,745 - - - - 230,745
Encephalits Conference 20,000 13,383 (9,835) - - 23,548
World Encephalits Day (WED) 486 34,916 (39,119) - 3,717 -
World Encephalits Day Alliance (WEDA) - 5,058 (528) - - 4,530
Young People’s Project - 50,947 (26,028) - - 24,919
313,882 104,304 (79,676) - 3,717 342,227
£ 669,354 £ 775,935 (£ 416,895) £ 80,661 £ - £ 1,109,055

ANNUAL REPORT AND ACCOUNTS 2021- 2022 29

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

16. UNRESTRICTED FUNDS (Continued)

Building Liabilities Fund

Designated funds raised to establish and maintain the Encephalitis Society building/offices including rent and rates.

Contingency Reserve

Designated fund to reflect the Trustee’s reserves policy of twelve months unrestricted expenditure. This policy equates to £502,213 for 2021/22 and so the fund is currently £164,468 below target.

Encephalitis Conference

Funding towards our annual event The Encephalitis Conference.

International Development and Research

Funding towards our international work.

Pfizer

WED22 and BrainWalk.

World Encephalitis Day

Funding towards our flagship awareness campaign revolving around World Encephalitis Day.

Word Encephalitis Day Alliance (WEDA)

Designated fund towards WEDA activities (in person and/or virtually) which are held, usually around World Encephalaitis Day, in collaboration with the other Alliance members (North America organisations).

Young People’s Project

Designated fund toward projects aimed at young people.

Capital/Building Fund

A designated fund for future office building expansion.

WHO

Funding towards our work with WHO following global imapct report.

30 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

17. RESTRICTED FUNDS

Awards for All
The Astor Foundaton
The de Laszlo Foundaton
The D’Oyly Carte Charitable Trust
The Fellowship of Postgraduate Medicine
Friendly Hand
The Garfeld Weston Foundaton
Guarantors of Brain
The Hospital Saturday Fund
The Hugh Fraser Foundaton
The Jack Brunton Charitable Trust
The James Ellis Charitable Trust
The Kirkby Foundaton 2021
The Leonard Curts Foundaton
Live Foundaton
Liverpool Fellowship
Malton, Norton & District Lions
Marguerite Foundaton 2
Masonic Charitable Foundaton
The Misses Barrie Charitable Trust
The Natonal Lotery
The Natonal Lotery special 25th Anniversary Fund
The Nikki Waterhouse Trust
The Norman Collinson Charitable Trust
Persimmon Charitable Foundaton
PhD Fellowship
The Rank Foundaton
The Research Fund
Ryedale District Council
Seed Funding
The Shears Foundaton
The Sir Jules Thorn Charitable Trust
Sovereign Healthcare
The Sylvia & Colin Shepherd Charitable Trust
UCB King Baudouin Foundaton
The Worshipful Company of Insurers Charitable Trust		 1 April
Incoming
Outgoing
31 March
2021
Resources
Resources
Transfers
2022
£
£
£
£
£
5,490
-
(5,490)
-
-
1,000
-
(1,000)
-
-
5,000
16,500
(20,500)
-
1,000
-
4,000
(4,000)
-
-
-
6,000
(6,000)
-
-
-
6,600
(6,600)
-
-
-
15,000
(14,207)
-
793
-
3,000
(3,000)
-
-
-
2,000
(2,000)
-
-
-
5,000
-
-
5,000
-
2,000
(2,000)
-
-
3,000
-
(3,000)
-
-
-
16,440
(3,697)
-
12,743
-
525
-
-
525
1,916
-
(1,614)
-
302
7,500
-
(3,750)
-
3,750
250
-
-
-
250
-
60,000
(60,000)
-
-
20,000
-
(17,819)
-
2,181
-
2,000
(2,000)
-
-
25,988
37,500
(63,488)
-
-
1,000
-
(1,000)
-
-
-
2,450
(2,450)
-
-
-
1,000
(1,000)
-
-
-
5,000
-
-
5,000
6,500
-
-
-
6,500
22,500
-
(6,979)
-
15,521
221,834
907
(1,741)
-
221,000
-
965
(965)
-
-
11
-
-
-
11
-
5,000
(5,000)
-
-
-
1,250
(1,250)
-
-
-
2,500
-
-
2,500
-
500
(500)
-
-
-
36,392
(4,557)
-
31,835
-
5,000
(5,000)
-
-
£ 321,989
£ 237,529
(£ 250,607)
£ -
£ 308,911

ANNUAL REPORT AND ACCOUNTS 2021- 2022 31

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

17. RESTRICTED FUNDS (continued)

17. RESTRICTED FUNDS (continued)
Awards for All
The Ardwick Trust
The Astor Foundaton
CAF Resilience
The Charles and Elsie Sykes Trust
Clothworkers’ Foundaton
Coral Samuel Charitable Trust
The de Laszlo Foundaton
Frank Litchfeld General CT
Garfeld Weston Foundaton
Guarantors of Brain
The James Ellis Charitable Trust
The Kirkby Foundaton 2020
Live Foundaton
Liverpool Fellowship
Malton, Norton & District Lions
Marguerite Foundaton 1
Marguerite Foundaton 2
Masonic Charitable Foundaton
The Natonal Lotery
The Natonal Lotery special 25th Anniversary Fund
Persimmon Homes
Pfzer
PhD Fellowship
The Rank Foundaton
The Rank Foundaton Emergency Fund
The Rank Foundaton Emergency Fund 2
The Rank Foundaton Recovery Fund
Ryedale District Council
Seed Funding
The Research Fund		 1 April
Incoming
Outgoing
31 March
2020
Resources
Resources
Transfers
2021
£
£
£
£
£
-
10,000
(4,510)
-
5,490
200
-
(200)
-
-
1,000
-
-
-
1,000
22,259
12,500
(34,759)
-
-
3,000
-
(3,000)
-
-
-
3,418
(3,418)
-
-
675
-
(675)
-
-
7,500
10,000
(12,500)
-
5,000
1,250
-
(1,250)
-
-
19,220
-
(19,220)
-
-
-
3,000
(3,000)
-
-
3,000
-
-
-
3,000
6,807
-
(6,807)
-
-
1,916
-
-
-
1,916
15,000
-
(7,500)
-
7,500
250
-
-
-
250
42,720
-
(42,720)
-
-
11,994
-
(11,994)
-
-
-
20,000
-
-
20,000
-
60,000
(34,012)
-
25,988
1,000
-
-
-
1,000
-
1,000
(1,000)
-
-
-
10,000
(10,000)
-
-
6,500
-
-
-
6,500
15,000
30,000
(22,500)
-
22,500
-
850
(850)
-
-
-
25,000
(25,000)
-
-
-
25,000
(25,000)
-
-
-
10,000
(10,000)
-
-
20,000
-
(19,989)
-
11
223,910
208
(2,284)
-
221,834
£ 403,201
£ 220,976
(£ 302,188)
£ -
£ 321,989

32 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

17. RESTRICTED FUNDS (continued)

Awards for All

This is intended to support volunteer hubs and to fund the cost of volunteer meetings and resource packs. In the event of Covid 19 these meetings have so far been held virtually.

The Astor Foundation Funding for PhD research.

The de Laszlo Foundation Funding for Silver Jubilee PhD research.

The D’Oyly Carte Charitable Trust

Retreat 2021.

The Fellowship of Postgraduate Medicine Encephalitis Conference.

Friendly Hand Retreat 2021.

Garfield Weston Foundation Funding towards core costs.

Guarantors of Brain

Funding contributing to the cost of the Encephalitis conference .

The Hospital Saturday Fund Core - Support Services.

The Hugh Fraser Foundation Adult and childrens guides.

The Jack Brunton Charitable Trust Kirkby Room Capital Appeal.

The James Ellis Trust Charitable Trust Funding towards PhD research.

The Kirkby Foundation 2021 Support database.

The Leonard Curtis Foundation Research.

Live Foundation For research seed funding.

Liverpool Fellowship Funding of a PhD research fellowship.

Malton, Norton & District Lions For the purchase of a branded gazebo.

Marguerite Foundation 2 Funding towards the UK volunteer programme.

The Misses Barrie Charitable Trust

Core - support services.

The National Lottery

Life after Encephalitis’- funding for an enhanced communications strategy empowering us to better reach diverse and minoritycommunities, a secure digital support platform and delivery of patient and professional education events.

The National Lottery special 25th Anniversary Fund Funding towards the Retreat workshops.

The Nikki Waterhouse Trust Childrens digital assets.

The Norman Collinson Charitable Trust Core - support services.

Persimmon Charitable Foundation Funding towards the Connection Scheme.

PhD Fellowship

Funding for PhD research.

Rank Foundation

Funding towards core costs for salary, training and organisational overheads associated with the post of Director of Services.

The Research Fund

To fund and facilitate research into encephalitis.

Ryedale District Council Kirkby Room Capital Appeal.

Seed Funding Funding towards small research projects.

The Shears Foundation Encephalitis Conference.

The Sir Jules Thorn Charitable Trust Core - Support and Awareness.

Sovereign Healthcare Adults and childrens guides.

The Sylvia & Colin Shepherd Charitable Trust Core - Support Services.

UCB King Baudouin Foundation Core - Support Services.

The Worshipful Company of Insurers Charitable Trust Core services.

Masonic Charitable Foundation A grant to run for 3 years for helping young people.

ANNUAL REPORT AND ACCOUNTS 2021- 2022 33

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

18. ANALYSIS OF NET ASSETS BETWEEN FUNDS

Fund balances at 31 March 2022 are represented by:
Unrestricted Funds
Designated funds
Restricted Funds		 Tangible
Net Current
Fixed Assets Investments
Assets
2022
2021
£
£
£
£
£
-
-
576,715
576,715
766,828
10,708
763,305
(141,704)
632,309
342,227
-
300,000
8,911
308,911
321,989
£ 10,708 £ 1,063,305
£ 443,922 £ 1,517,935 £ 1,431,044
Fund balances at 31 March 2021 are represented by:
Unrestricted Funds
Designated funds
Restricted Funds		 Tangible
Net Current
Fixed Assets Investments
Assets
2021
2020
£
£
£
£
£
-
-
766,828
766,828
355,472
12,669
752,563
(423,005)
342,227
293,396
-
300,000
21,989
321,989
423,687
£ 12,669 £ 1,052,563
£ 365,812 £ 1,431,044 £ 1,072,555

34 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2022

19. OPERATING LEASE COMMITMENTS

As at 1 March 2022 the charitable company had future minimum lease payments under non-cancellable operating leases as follows:

Operatng leases which expire:
Not later than one year
Later than one year and not later than fve years
Later than fve years		 31 March
31 March
2022
2021
£
£
20,687
19,690
177
687
353
530
£ 21,217
£ 20,907

The amount of non-cancellable operating lease payments recognised as an expense during the reporting period was £21,009 (2021: 18,671).

20. RELATED PARTY TRANSACTIONS

There were no related party transactions in the year that require disclosing.

  1. RECONCILIATION OF NET MOVEMENT IN FUNDS TO NET CASH FLOW FROM OPERATING ACTIVITIES
Net income for the reportng period
Adjustments for:
Depreciaton charges
Gains on investments
Dividends, interest and rents from investments
Proft on the sale of fxed assets
Decrease in stocks
(Increase)/decrease in debtors
Increase in creditors
Net cash provided by operatng actvites
ANALYSIS OF CASH AND CASH EQUIVALENTS
Cash at bank and in hand
Total cash and cash equivalents
ANALYSIS OF CHANGES IN NET DEBT		 At
01/04/2021
£
400,199		 31 March
31 March
2022
2021
£
£
86,891
358,489
6,369
5,147
(9,943)
(80,661)
(17,242)
(16,076)
(350)
-
192
4,197
(8,708)
19,436
8,451
43,371
£ 65,660
£ 333,903
478,244
400,199
478,244
400,199
At
Cash-fows
31/03/22
£
£
78,045
478,244
78,405
400,199 78,405
478,244

ANNUAL REPORT AND ACCOUNTS 2021- 2022 35

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) NOTES TO FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022

22. PENSION CONTRIBUTIONS

The Charity operates a defined contribution pension scheme. The assets of the scheme are held separately from those of the Charity in an independently administered fund. Contributions for the year totalled £22,975 (2021: £20,773). At the balance sheet date included in other creditors is £2,764 (2021: £2,986) of pension contributions to be paid over to the fund provider.

23. VOLUNTEERS

The Society has two regular office volunteers and 80 active volunteers (including Ambassadors (8), Vice Presidents (8), Presidents (2), Scientific Panel (18) and Team Encephalitis Volunteers (44)). The Society values the volunteers and their work and has dedicated volunteer policies in order for the volunteers to feel safe and appreciated while volunteering for the Society. Training opportunities are available to the volunteers and opportunities for the staff and volunteers to mix and feel part of the same team have been created.

  1. COMPARATIVE STATEMENT OF FINANCIAL ACTIVITIES AND INCOME AND EXPENDITURE ACCOUNT
Income and endowments from:
Donatons and legacies
Charitable actvites
Other trading actvites
Investments
Total
Expenditure on:
Raising funds
Charitable actvites
Total
Net income/expenditure and net movement
in funds before gains/(losses) on investments
Net gains/(losses) on investments
Net income
Transfers between funds
Net movement in funds
Reconciliaton of funds:
Total funds brought forward
Total funds carried forward		 Unrestricted
Year ended
Year ended
General
Designated
Restricted
31 March
31 March
Fund
Funds
Funds
2021
2020
£
£
£
£
£
52,725
50,020
210,976
313,721
493,156
388,170
-
-
388,170
324,649
214,660
54,284
10,000
278,944
331,052
16,076
-
-
16,076
14,133
671,631
104,304
220,976
996,911
1,162,990
142,582
569
150
143,301
119,684
194,637
79,107
302,038
575,782
689,897
337,219
79,676
302,188
719,083
809,581
334,412
24,628
(81,212)
277,828
353,409
80,661
-
-
80,661
(50,291)
415,073
24,628
(81,212)
358,489
303,118
(3,717)
3,717
-
-
-
411,356
28,345
(81,212)
358,489
303,118
355,472
313,882
403,201
1,072,555
769,437
£ 766,828
£ 342,227
£ 321,989 £ 1,431,044 £ 1,072,555

36 ANNUAL REPORT AND ACCOUNTS 2021 - 2022

----- Start of picture text -----
We register as
a charity.
Our first leaflet
is produced
www
The first encephalitis Regular
awareness week is held. meetings are
Our website is We produce an held across the
established. information pack for UK
1995 children.
1996
INFO
INFO
----- End of picture text -----

Timeline of the Encephalitis Society

The Encephalitis Support Group is launched with a telephone line.

office base. Nationwide generously grant funds for materials.

----- Start of picture text -----
established.
1994 1995
1996
----- End of picture text -----

1997

----- Start of picture text -----
1998
----- End of picture text -----

We appeal for funds to establish a Resource Centre. Results of a survey are presented at The World Brain Injury Congress in Italy.

1999

BBC Children In Need ever International kindly funds family Encephalitis support. Conference for The Encephalitis health Resource Centre is professionals. opened and the charity name is changed to The Encephalitis Society.

2000 The jigsaw logo is established. We are generously supported by The Encephalitis - a parents’ National Lottery. handbook is launched, followed by Gilley the Giraffe, a Martin Kemp storybook for becomes Society children and a comic book for teenagers. first Society

2001

2002

Presentations at the World Brain Injury Congress in Australia. An independent evaluation finds that the support service is ‘a light in a very dark place’.

2003

Martin Kemp becomes Society patron and Mathew Bose becomes our first Society Ambassador. Prof. Barbara Wilson becomes Society President.

2004

Our 10th Anniversary is celebrated with tea at The House of Commons. Our website is hailed as the most comprehensive source of information on encephalitis in the world.

2005

~~2~~ 006 President. 2007 2008 Society Research 2009 presented at World Brain Injury Rebecca Adlington, OBE Congress in becomes an Ambassador. Portugal. Major 10-year study into encephalitis launched by the Health Protection Agency.

Society presents at the World Brain Injury Congress 2007 in Washington DC. Ava Easton Prof. Tom Solomon becomes becomes Chair of Scientific 2008 CEO of the Advisory Panel. Society Society Research 2009 presented at World Brain Injury Rebecca Adlington, OBE Congress in 2010 becomes an Ambassador. Portugal. 2011 Major 10-year study into encephalitis launched by the Health Protection Agency. 2012 We come of age and celebrate 21 years by 2013 visiting 21 cities in 21 days with our #ShowYouKnow We move Susannah Cahalan,Simon Hattenstone World Encephalitis Day is launched - 22nd February. roadshow.We now have five Vice and Aliki Chrysochou Presidents - Richard to new, more premises in spacious become Ambassadors.We benefitted from The October 2014 Lockwood, Kika Markham, Tom Naylor-Leyland, Tiggy Malton Club’s generosity raising £500k. Sutton and Robert Sutton. We win Charity BrainWalk, our innovative Times Charity of Charlotte Leeming joins & award-winning App the Year award. us as an Ambassador. 2015 is launched at We take on a fresh Our 25th anniversary is celebrated with a party at the House of new brand. 2016 Commons. City Hall in London. World Encephalitis Day 2019 2017

Our 25th anniversary is celebrated with a party at City Hall in London. World Encephalitis Day 2019 is named Communications Campaign of the Year in the Third Sector Awards.

We launch our Global Impact Report and begin work with global stakeholders including the WHO. Australian sports broadcaster Karen Tighe and award-winning writers Abi Morgan and Suzie Miller join us as Ambassadors. We win Charity Times' Fundraising Team of the Year Award.

----- Start of picture text -----
2018
2020
Following the 2021
----- End of picture text -----

2019

The Encephalitis Conference moves to the Royal College of Physicians and is lauded as the world’s ‘go-to’ conference on encephalitis. Leigh Palmer becomes a Vice President Alecia Emerson-Thomas joined as an Ambassador We launch Encephalitis Research Month

Tim Spring and Janet and Stuart Brown become Vice Presidents.

Following the outbreak of COVID-19, we launch The Professor Tom Solomon Encephalitis Podcast, is named President of the Encephalitis introduce Virtual Society. Encephalitis Information Week is Gatherings and launched in October. release a series of David Jennings joins us as a Vice President short animated films Aled Davies and Mike Day join us as about encephalitis. Ambassadors.

----- Start of picture text -----
2022
2023
We look forward to
celebrating the 10th
anniversary of World
Encephalitis Day!
----- End of picture text -----

SUPPORT TEAM +44(0) 1653 699599 support@encephalitis.info

ADMIN +44(0) 1653 692583 admin@encephalitis.info

PRESIDENT

Professor Tom Solomon CBE

PRESIDENT EMERITUS Professor Barbara A Wilson OBE

VICE PRESIDENTS

David Jennings Richard Lockwood Kika Markham Baroness Anne McIntosh Tom Naylor-Leyland Leigh Palmer Tiggy Sutton Robert Sutton

AMBASSADORS Rebecca Adlington OBE Mathew Bose Susannah Cahalan Aliki Chrysochou Aled Davies Mike Day Alecia Emerson-Thomas Simon Hattenstone Charlotte Leeming Suzie Miller Abi Morgan Karen Tighe

Encephalitis Society 32 Castlegate, Malton, North Yorkshire YO17 7DT, United Kingdom www.encephalitis.info

@encephalitis /encephalitissociety The_Encephalitis_Society_ /company/the-encephalitis-society Youtube.com/EncephalitisSociety

Copyright © 2022 Encephalitis Society The Encephalitis Society is the operating name of the Encephalitis Support Group Registered Charity in England and Wales No. 1087843, Registered Charity in Scotland No. SC048210, Charitable Company registered in England and Wales No. 04189027