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2022-03-31-accounts

Annual Report 2021 /2022 41clc￿ I P sL34 Ikv5G your local children's hospice

 Front cover features Keren enjoying sensory play with teacher Maria

“They provided anything we needed to make all the memories we could whilst offering us constant support and reassurance that when the time came, they would be there for us.” Paul, Ryan’s Daddy who spent his final days at Helen & Douglas House

Contents

About Us 5

Chair of Trustees and Chief Executive Joint Statement 17 Reporting against our 2021 Interim Strategy 21

Successfully emerging from the Pandemic 27 Reporting against our new 2022 to 2025 Strategy 31

Looking to the future 37

Financial Review 43

Independent Auditor’s Report 54

Financial Statements

57

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 Max and his family having fun at our summer party
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Helen & Douglas House Annual Report 2021/22

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About

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 Josh and Clare meeting one of our PAT dogs at the Christmas party
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6 Helen & Douglas House Annual Report 2021/22
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Our Vision

Every life a full life, every death a dignified death

What we do

Helen & Douglas House hospice improves the lives of local terminally ill children and their families living in Oxfordshire and the surrounding counties. We help children live their lives to the full – even when that life is short.

Founded in 1982, we are the world’s first children’s hospice. We care for local terminally ill children and their families at our hospice in Oxford, at home or in hospital with life-enhancing care. This includes supportive stays, pain relief, symptom management, end of life care and bereavement support for parents and siblings.

Our amazing team, including doctors, nurses and carers, provides exceptional care tailored to the needs of the child throughout their life, whether that life lasts for hours, days, months, or years.

We help children living with a huge variety of complex conditions which will end their lives prematurely. Our experienced team helps reduce the fear and pain felt by families facing an uncertain future and, when life comes to an end, we are there to help them survive the loss of their child.

We are a local charity and need to raise £3.8m each year to fund our work.

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Our Values

committed to

V Sienna having a feed in one of OUT bedrooms

How we are funded

We are a local charity and we need to raise £3.8m each year to fund our work

Where does Helen & Douglas House receive its money from?

79%

from charity fundraising, legacies and trading

How we spend the money you give us

21% funded by statutory sources Excludes Covid-19 UK Government support

[ Direct care staff costs]

[ Medical staff costs]

[ Non pay costs*]

[ Support costs**]

[ Depreciation]

68p of every £1 donated pays for the cost of care

Fundraising expenditure £1.83m

Income available to care for terminally ill children £3.81m

Total income £5.64m*

*Excluding trading and Covid grants

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 Emma our transition worker, with two teenagers at our #Network Saturdays youth group

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“We are able to leave our beautiful boy for a short stay knowing he is receiving the best care and attention as he would at home.” Stephanie, Zac’s Mum, who visits Helen & Douglas House for respite care

Our year in numbers £3.8m cost o care f

4,586 volunteer hours

404 volunteers £40,861 economic value of volunteer hours

4,269 appointments in the community

£1.38m income from gifts in wills 1in3 children’s care funded by gifts in wills

162 patients on our caseload 642 bednights provided

£3.85m income from trading

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 Jack meeting an owl at our Christmas party
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 Keren and our teacher Maria enjoying sensory play
16 Helen & Douglas House Annual Report 2021/22
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Joint

Chair of Trustees and Chief Executive Joint Statement

We must start by acknowledging that it has been another challenging year for Helen & Douglas House and – more importantly – for the children and families that we care for. However, despite the many uncertainties in this post-pandemic world, our organisation has displayed its resilience once again. Thanks to the extraordinary generosity of our donors, we were able to continue to provide world-class palliative care and support to terminally ill children and their families.

This autumn marks the 40th anniversary of Helen & Douglas House. We were founded in 1982 by Sister Frances Dominica, who was inspired by a little girl called Helen who suffered from irreversible brain damage following an emergency operation. Helen’s parents took her home from hospital to care for her in family surroundings. A friendship developed between Sister Frances and Helen’s parents and, on occasion, Sister Frances looked after Helen for short periods to give her parents a break. From this friendship the idea of a small, homely hospice for children was born.

As the world’s first children’s hospice, we have gone on to inspire 49 others across the UK and around the world. Over the last 40 years, the way in which we care for terminally ill children has changed considerably from a simple respite-based model to a model that often provides the most complex and complicated care. What hasn’t changed, though, is our commitment to providing compassionate care to families during the most difficult of times, and our desire to help children live the most full and precious lives possible.

This year, we have been celebrating our anniversary with a series of special events including a family remembrance walk called The Butterfly Bimble at Blenheim Palace in May, and a staff party in July. In November, bereaved families will be invited to join us for our Annual Remembrance Service. The event is an important and cherished opportunity for families to gather together with Helen & Douglas House and remember the children they have lost.

While it’s incredible to reflect upon everything that we’ve achieved in the past, it’s also gratifying to recognise that we are still leading the charge when it comes to pushing boundaries to improve care for dying children.

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Ian Blair
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“Thanks to the generosity of our donors, we were able to continue to provide worldclass palliative care to children in another challenging year.” Clare Periton, Chief Executive Officer

One of the ways in which we’re doing this is through multidisciplinary teamwork. Because we offer both care and medical support, we have a wide and varied specialist team that comprises doctors, nurses, youth workers and social workers. We are well represented within the palliative care movement, and we are renowned as one of the leaders in our field.

Nationally, we influence through sitting on the NHS group for children and young people’s palliative and end of life care. Regionally, we sit on the Oxfordshire Palliative Care Network (the OPCN) which is a group of specialist palliative care providers looking at how we can work together to provide better care for the people of Oxfordshire.

In addition to this, our Level 4 Paediatric Palliative Consultant Emily Harrop holds a key regional role as co-Clinical Lead for children and young people’s palliative and end of life care for NHS South East England, while Dr Charlotte Holland is the Education Lead for children and young people’s palliative and end of life care for NHS South East England. These are both paid secondment roles that are funded by NHS England and give Helen & Douglas House real influence and a place at the table. For a small organisation, we really punch above our weight when it comes to improving children’s lives.

And, while we’re on the subject of helping children to live the best lives that they can, we are thrilled to report that earlier this year our Douglas House building became home to Oxford University Hospitals NHS Foundation Trust’s Children’s Rehabilitation Service. The service helps young people living with chronic conditions and long COVID in South East England to return to most, or even all, of their day-to-day activities.

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Given its former use as a young person’s hospice and its purpose-built facilities, Douglas House is the perfect location for the Children’s Rehabilitation Service. We are delighted to see the building in use again and, although there is little crossover between the children that we look after and the children that access the Children’s Rehabilitation Service, we aspire to work more closely with the service in the future.

So far, the feedback from families using the new service has been overwhelmingly positive with many remarking upon our beautiful setting and the peace and tranquillity of our outdoor space. This is something that we feel particularly proud of since our garden underwent its incredible redevelopment last year.

The garden now boasts specially designed sensory play equipment for children to enjoy such as a swing and a roundabout for wheelchair users, as well as outdoor musical instruments. It also features a wonderful water feature, comfortable seating areas, and a seasonal planting scheme that ensures an abundance of beautiful blooms and foliage all year round. It’s the ideal place for families to spend their precious time together, and we’re enormously grateful to everyone who helped make it a reality.

Over the last year we have been working to extend our services to everyone who needs us, and one of the ways in which we are doing it is by increasing the use of the Little Room. This specially cooled room is a place where families can spend time with their child after they have died, and it is now available for the families of children who have suffered unexpected deaths. This means we can offer practical and emotional support to even more families – particularly those who were not previously known to us.

The last year may have been a challenge, but many positives have emerged from it. One of these is the amendment that was added to the Health and Social Care Act making it a legal requirement for the NHS in England to plan and fund palliative care. We see this new development as a positive step forward, and one that gives us real leverage when talking to commissioners.

As a final thought, we want to praise the whole team at Helen & Douglas House and thank them for their hard work over the past 12 months. They have worked collaboratively, compassionately and creatively through challenging times to ensure we have been able to continue serving the families who rely on us. Our thanks also go to the Trustees of Helen & Douglas House for all that they do by contributing their time and expertise. As a result, we feel that we have emerged as a better and stronger charity. With the continued support of our committed team and our incredible donors, we know that we can go on to achieve even more in the years to come.

Ian Blair Chair of Trustees Clare Periton Chief Executive Officer 25 July 2022

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Strategy

Reporting against our 2021 Interim Strategy

The past financial year has been a time of enormous strategic change for Helen & Douglas House hospice. We have been busy dealing with the ongoing challenges of meeting the needs of terminally ill children and their families in a post-Covid world while also undergoing a strategic review to inform our new threeyear strategy for 2022-2025. You can read about the outcomes of this review on page 33 but, while that work was ongoing, we set a series of key interim priorities for the financial year that began in March 2021. The following pages detail how we performed against each of these priorities.

What did we say?

‘We will review and quantify our volunteering needs and develop a plan to recruit and retain volunteers for where they are needed in the organisation.’

How did we do?

During the last financial year, we prioritised the recruitment and retention of retail and events volunteers, because one of the biggest casualties of the pandemic for our retail stores was our volunteer base. Many of our longterm loyal volunteers decided not to return once restrictions were lifted, so without new recruits we simply would not have been able to keep our shops open or raise the funds that we so desperately need.

We spent much of the year building the foundations for volunteering and making sure we had the right support in place in preparation to move forwards with our 20222025 strategy. For example, work began to recruit a Head of Family Support Services who will work with the Head of Volunteering Services to explore how we can use volunteers to enhance our bereavement service, as many other hospice services have done.

Volunteers are absolutely pivotal to the success of Helen Douglas House. They bring fresh ideas, diverse skills, and they see things from a different perspective. They are also incredible ambassadors when it comes to helping us spread our message across the community.

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What did we say?

‘We will implement a robust organisational framework of integrated planning processes and tools which will ensure organisational, team and individual objectives are integrated and aligned to fund, deliver and support the service.’

How did we do?

A more cohesive approach to planning and budgeting across the organisation is crucial if we are to avoid waste or duplication and more effectively deliver on our mission of improving the lives of terminally ill children and their families.

In the last financial year, we identified that while a process is in place for planning and budgeting, it hasn’t been consistently applied across directorates. As a result, action is being taken to design and implement a structural framework that will ensure full organisational integration. This will take the organisation on a journey of change that will prioritise longterm thinking and focus on doing the right things in the right order.

What did we say? ‘We will make sure that people can work from home where they can and where they wish to; meanwhile the office will continue to be a place for productive collaboration.’

How did we do?

During the pandemic, our extraordinarily dedicated workforce adapted quickly and successfully to the different ways of working that became necessary. Evidence from both within Helen & House and more widely showed that people may work more effectively when enabled to work flexibly, so we continued with flexible working arrangements. We reviewed and consulted, and then implemented a hybrid working model where members of staff in certain roles are able to work in the office on some days and from home on others.

The results have been really positive. As well as enjoying the flexibility of working from home, members of staff have said they also enjoy being in the office and having the opportunity to collaborate with colleagues. We are currently looking at the working environment that we provide to make sure it matches the needs of our staff and encourages creativity and innovation.

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What did we say? ‘We will implement the recommendations of the Equality, Diversity and Inclusivity workstream.’

How did we do?

We are committed to making Helen & Douglas House an inclusive organisation for all people. While we recognise that this is something we are yet to achieve – particularly in respect of racial diversity within our workforce – we have worked hard to propel ourselves closer to this goal over the course of the last financial year.

As part of our Equality, Diversity and Inclusivity workstream, we have assembled both a steering group and an engagement

group to help support the development and implementation of plans and actions which recognise, respect and value people’s differences. We are planning a framework of equality, diversity and inclusion learning and development and, also, we have an equality and diversity champion on our trustee board. This ensures that inclusivity is embedded in the organisation’s governance framework and is ultimately considered in everything we do.

As an organisation, we are working to create opportunities and reduce barriers for everyone, particularly underrepresented groups. We are committed to making sure there is no discrimination in our processes for recruitment and selection, performance management and pay, and that promotion and retention is fairly granted across the organisation.

We have created an Equality, Diversity and Inclusivity recruitment toolkit and have incorporated Equality, Diversity and Inclusivity statements into all our job adverts and job descriptions. We have also signed up to the Association of Chief Executives of Voluntary Organisations’ (ACEVO) eight principles of Equality, Diversity and Inclusion, as well as signing up to the National Centre for Diversity’s Investors in Diversity Accreditation programme. On top of this, we’ve also become a Disability Confident Committed employer.

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What did we say?

‘As we begin to recover from the impact of the global pandemic, the clinical service is excited to be able to invite more family members to stay at Helen House. We will also be welcoming back some of the external partners who deliver enrichment activities such as music and animal visits on a timescale mirroring the relaxation of restrictions nationally.’

How did we do?

In March 2021, at the beginning of the last financial year, lockdown guidelines were still in full force and we had to limit the numbers of visitors to Helen & Douglas House in order to keep our vulnerable children, their families and our staff safe. Often, only the parents of significantly ill children were allowed to stay.

When restrictions began to ease in late July it was wonderful to be able to welcome brothers and sisters and other family members back into the hospice building and allow family groups to make use of our welcoming, newly redeveloped garden. In December, we were able to organise a series of wonderful Christmas parties where each family had their own bubble in which they could celebrate together and make special memories.

What did we say?

‘In this interim period, the clinical service is additionally implementing and embedding electronic patient records, as a linked site to Oxford University Hospitals.’

How did we do?

In June 2021 we successfully launched electronic patient records with support from Oxford University Hospitals. The electronic patient records, which allow members of staff to quickly access and record patients’ clinical details and interventions, will be replacing traditional paper records.

This new system means that all the advice and treatment that any patient receives – whether it’s at the hospice, at home or in any other medical setting – is stored in one central location. We believe that it will be transformative in supporting families to feel confident in the level of care that they are receiving.

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What did we say?

‘We are looking to proactively increase our reach both by ensuring that existing users access all elements of our service from which they may benefit, and by examining ways to identify groups of children in need of palliative care who are not yet known to us.’

How did we do?

In order to ensure the families in our current caseload really benefit from our service, we have been working hard to make sure our offer is as broad and holistic as it can possibly be. We pride ourselves on providing flexible care that fits the needs of each individual family – and we don’t have to physically look after a child overnight to give them world class palliative care.

Whether a child receives care at home, at our hospice or even in another hospice setting, our medical team, outreach nurses, social workers and siblings team work together seamlessly so the family can choose the kind of support they need to make the most of the time they have together.

We have also made progress in reaching children in need of palliative care who are not yet known to us through strengthening our relationships with partnership agencies including other hospices and community services. This increased engagement and coworking has prompted a number of new referrals in the last financial year. On top of this, we’re currently recruiting for two new posts in our outreach team, both of which have a remit of extending our reach.

What did we say?

‘We plan to extend our current model of bereavement support to families that have not previously had contact with our service. Our model of bereavement support is both practical and emotionally supportive and encompasses the entire family from before death, at the point of death and beyond. Effective bereavement support improves long term outcomes for families.’

How did we do?

During the last financial year, we remodelled our bereavement groups and created a specific group for newly bereaved parents. The participants said they gained a lot from the peer support they received in the group, and they all said they planned to maintain the cohesive relationships that they had formed as part of it. The newly bereaved parent group was so well evaluated that we plan to increase the number of groups we run in the future.

We are currently working to further increase our capacity in bereavement support by recruiting a Head of Family Support Services. Once in post, they will work with the Head of Volunteering Services to explore how we can use volunteers to enhance the service, as many other hospice services have done.

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Emerging Pandemic

Successfully emerging from the Pandemic

The last two years have been as challenging for Helen & Douglas House as they have been for charities globally. However, thanks to the generous support of our donors, additional government support, business support grants and the furlough scheme, we maintained a stable financial position. Not only were we able to continue providing support to the families who so desperately needed us, but we were also able to come through the pandemic in a strong financial position.

The clinical picture

As we emerged from the pandemic, our clinical team worked hard to open our service to more visiting families. We optimised every opportunity to increase our bed capacity and our availability for day visits to the hospice. Our focus remains doing everything in our power to respond to the needs of the families we serve.

We came out of the pandemic with fewer nurses, so we are working to manage that deficit. However, the agility, expertise, and can-do attitude our remaining members of staff demonstrated in taking on new ways of working over the past two years have given us real confidence in our ability to deliver care flexibly. We feel more knowledgeable than ever about where to put our resources so that we can make the biggest difference.

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 Leon enjoying arts and crafts at the hospice
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Helen & Douglas House Annual Report 2021/22

In terms of research, despite the pandemic we have maintained our reputation as an attractive research partner, and we have been involved in a number of research projects in the last year. These have focused on understanding and improving the patient and family experience of receiving care, including pain management, support for children with feeding tubes, and spiritual care needs. We believe that our patients have an equal right to care based on the experience of their own peers. This is likely to be safer and to better meet their individual needs.

We have worked with the Academic Health Science Network on a patient safety project relating to gastrostomy feeding and supporting parents to maintain their confidence with practical procedures relating to feeding. We also contributed to the PARAMOUNT study which aimed to improve support for those giving medical care for pain to infants, children and young people in their own homes. This study concluded this year and led to the creation of a ‘pain tool’ which is in the final stages of development.

Helen & Douglas House was also involved in the multi-centre Diamorphine Paediatric Palliative Evaluation of feasibility of Randomised control trial (DIPPER) study looking at how best to conduct pain studies in children with palliative care needs. To address some of the needs identified in the DIPPER study, we were privileged to be involved in the formation of the Collaborative Paediatric Palliative Care Network (CoPPAR). This project, based at Martin House Research Centre, seeks to bring together children, families, clinicians and scientists in a network that supports taking research forward collaboratively. Helen & Douglas House is proud to be one of six main hosting centres and looks forward

to pioneering several collaborative projects relating to spirituality, outcome measures, staff wellbeing and symptom management.

We have also emerged from the pandemic with our excellent reputation for education intact. Throughout last year, the medical team contributed to regional teaching for the John Radcliffe Hospital Grand Rounds, the Thames Valley Paediatric Conference, and the Dying Matters week, among other events. We also delivered virtual teaching to identified sub-groups and continued to run our twice-yearly informal regional network education evenings around pain control, ethics and law. A new initiative of delivering hour-long virtual teaching sessions as an introduction to palliative care every 6 to 8 weeks has also been well-received.

The medical team also regularly contributed to national teaching, through organising and delivering teaching to trainee doctors developing higher-level paediatric palliative care skills (APPM GRID/SPIN teaching), Project Echo (national multi-disciplinary team monthly teaching) and both chairing and submitting abstracts to the Royal College of Paediatrics and Child Health national conference palliative care session. After becoming a registered centre for palliative care SPIN (Special Interest Development) for doctors, we are now supporting two medical registrars in developing their skills.

All of these teaching sessions and meetings provided an opportunity for networking and increased the prominence of Helen & Douglas House. What’s more, they all contributed to better joined up working and the delivery of worldclass palliative care to the children and families that we support.

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 Harry having fun in our pool

The effects on fundraising and retail

The pandemic inevitably had an impact on our ability to fundraise and, given that our retail shops were closed for many months, we suffered a significant loss in revenue. The vital government support that we received in 2020 was not repeated apart from a considerably smaller retail restart grant so this means that we are, once again, reliant on our generous supporters to be able to provide services to local terminally ill children and their families.

While there have recently been changes in the structure of local NHS services – and consequently in how children’s palliative care is commissioned – the impact that these changes will have on our income is uncertain. Currently, we receive 17% of our income from statutory sources and we do not anticipate a major change to that figure. In the two financial years of the pandemic, our income outperformed our budget because we were fortunate to receive some large gifts in wills and several substantial, unexpected, one-off donations.

Over the last two years we have learned that we can adapt our fundraising activity quickly and draw on technology to support this change. We, like many fundraising organisations, turned to virtual events – particularly Facebook challenges – to fill the void left by physical events and we enjoyed a

 Leon with nurse Kath in our lovely garden on the roundabout

degree of success with these. Our community fundraising activity was impacted and has been slow to return, although we are seeing an increased desire for physical events and for supporters to return to holding their own fundraising activities.

While some income streams were impacted considerably, we found that others performed strongly. For example, our individual giving programme flourished, as our committed supporters responded energetically to our appeals for help. Other sources of funding from trusts and foundations also became available, and we were able to leverage some of these.

After trading for only 13 weeks in 2020/21, our retail operations quickly bounced back and we traded for 50 weeks in the financial year ending 31 March 2022. Retail outperformed our expectations as people returned to the high street in larger numbers than expected.

As noted earlier, one of the biggest casualties of the pandemic for our retail stores was our volunteer base. Many of our long-term loyal volunteers decided not to return once restrictions were lifted, so we are currently engaged in rebuilding this extremely valuable resource, without which we cannot continue to trade.

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New Strategy

V Beih ond Edith al our summer party IV //

Reporting against our new 2022-2025 Strategy

In 2016 we launched a new vision, mission, and values, as well as a five-year strategy with some ambitious goals. During the five years that followed, the environment in which we operate, changed locally, nationally, and globally. As a result, in 2021 we worked with a small group of our trustees and an independent strategy advisor to carry out a strategic review and develop a new strategy for the future.

The extensive project involved us scrutinising each area of our operation in detail. We undertook a detailed analysis, drawing on the knowledge and views of our internal staff and taking into account the views of a number of related external sources to ensure our assumptions were supported by others.

The new strategy that emanated from this review began in April 2022 and will span three years. This shorter review period will enable us to refine our plans and react more quickly to the extremely unpredictable and volatile times we live in.

The primary goal of the new strategy is to ensure children and their families receive world class palliative care. We have developed three key aims to help us achieve this. They are:

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How are we progressing against our new strategy?

What did we say?

‘We will extend our service to reach more children and families and offer a wider portfolio of care so we can provide care where and when that’s needed.’

How are we doing?

There are significant numbers of children living in England with a life limiting condition. We have started work to extend our reach to ensure that our service is accessible and equitable to more children and families. We have also been focussing on providing a broader range of services beyond nursing and medical care. On top of this we have been working to share our specialist knowledge, raise the profile of children’s unique needs, lead the development of paediatric palliative care and contribute internationally to research and education.

Here are some of our achievements so far:

Helen & Douglas House is delivering a more embedded paediatric palliative care service at clinician level.

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What did we say?

‘We will invest in our people because we recognise that all our staff, wherever they work in the organisation, play a vital role in achieving our goal.’

How are we doing?

People and their skills are our greatest asset and we want to be recognised as an employer of choice to ensure we attract and retain the best talent for our organisation. We also want to make our organisation a more inclusive place for our staff, volunteers and the children and families we care for.

Here are some of our achievements so far:

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What did we say? ‘We will ensure more of the money we receive is available to fund care by being more efficient about how we operate and by investing in technology.’

How are we doing?

Helen & Douglas House spends 68p out of every pound donated on providing care to children and their families. We want to increase this amount over time so that more of the money we receive is available to fund care. We plan to achieve this by being more efficient about how we operate and by investing in technology.

Here are some of our achievements so far:

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Looking Future

Looking to the future

Volunteering

Last year, we reviewed our volunteering capabilities, resources and processes, and identified opportunities for improvement. The review reported that our 395 existing volunteers are positive about their experience of giving time to Helen & Douglas House and are very proud of their contribution to our work. It also identified that there is an opportunity to grow by developing roles in other areas of the charity.

Since then, we have implemented a new volunteer strategy and recruited a Head of Volunteering who is overseeing an audit to identify and map retail and fundraising volunteer requirements and opportunities in the future.

We plan to review and improve our ambassador roles and introduce fundraising groups. We also plan to introduce advocacy roles to influence policy and investment in children’s palliative care. On top of this, we will undertake a scoping exercise to look at where volunteers can support paid members of staff to reduce our operational costs.

Leadership

Our most recent staff survey identified that there were opportunities for us to improve the standards of leadership in our organisation. People and their skills are our greatest asset, so it’s crucial that every member of the Helen & Douglas House team should be able to expect to work under supportive, inspiring and skilled management. What’s more, we recognise that leading others is a privilege, and we want to inspire our leadership to fulfil the potential of their teams.

In response to the survey, we are making it a priority to invest time in our managers and make sure they understand the expectations of a management role. We plan to upskill them through coaching, mentoring and a management development toolkit, and we are also building a line managers’ community where they will be able to share experiences and learn from their peers. We are confident that by investing in the skills of our people, we will boost retention and engagement, and be better equipped to develop potential leaders within our current workforce.

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“As the world’s first children’s hospice we have a responsibility to share our specialist knowledge and raise the profile of children’s unique needs.”

Extending our services

Over the next three years we plan to identify and fulfil the palliative care needs of the children who need us and extend the portfolio of care we offer to meet the needs of families beyond nursing and medical care. This means broadening the range of activities that we offer to children in the hospice – something that we have already started to do.

We also plan to increase the number of supportive stays we offer to families to give them a break, and work in partnership with other services to provide healthcare therapies and spiritual support for all faiths. On top of this, we are working to extend our nursing services in the community so that we can care for children at home, if that is where they prefer to be.

As the world’s first children’s hospice we have a responsibility to share our specialist knowledge and raise the profile of children’s unique needs. We will continue to lead the development of paediatric palliative care and contribute internationally to research and education. More locally, we are pioneering our local Managed Clinical Network for children’s palliative care in order to provide better integrated care solutions to children.

We are the sole providers of specialist Level 4 palliative care across our catchment area and local hospitals rely on the medical and outreach clinical nurse specialist teams at Helen & Douglas House to advise, support and deliver children’s palliative care across the Thames Valley area. To support that we are going to build on our expertise and recruit a second Level 4 paediatric palliative care consultant.

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 Frankie enjoying his time at the hospice
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Digital, data and technology

As a charity, we recognise that our digital development currently lags slightly behind the wider business sector, so we have embarked on a major digital transformation programme. We are currently at an advanced stage of formulating our three-year digital strategy. We approached the creation of our strategy with the aim to make significantly better use of digital, data and technology to benefit our three main groups of stakeholders: our service users, our supporters, and our staff and volunteers.

A full review of our technology and digital infrastructure was undertaken to assess our current level of digital maturity, as well as an organisation-wide digital skills audit and a series of workshops to engage staff in what

part digital might play in the future. As part of the strategy, we will be establishing how we manage our data more effectively in the future to realise the full potential and the associated value of the data that we hold.

Once our strategy is finalised, we will roadmap and sequence the work we will need to undertake to bring the digital strategy to life. This will be challenging and will, in many ways, break new ground for Helen & Douglas House, so it is important that we acknowledge and embrace this significant cultural change and ensure that we take all staff and volunteers with us on the journey that will follow. We are confident we will be able to harness the full potential that digital and technology have to offer to help improve the service we provide to families and enhance our ability to generate funding.

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 Taylor and care team member Julie enjoying sensory play
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Communication strategies for staff, volunteers and families

For Helen & Douglas House to be recognised as the world-class children’s palliative care provider that we are, it’s important that we are always consistent with our brand messaging. It’s also important that, underneath these overarching brand messages, we tailor our communications more effectively to our different audiences.

We recognise that, in the past, we have not always focused on the different needs of our three main audiences – our staff, our volunteers, and the families we serve. We know that we need to work harder to provide each of these groups with the information they need, in the personalised format they need, at a time that best suits them. Work is currently underway to map the different touchpoints that these groups will have with us so that we can develop communications that are informed by audience insights.

EDI accreditation

Supporting the principles of equality, diversity and inclusion (EDI) in our activities is not just morally and ethically the right thing to do, but it also underpins our ability to provide a world-class service and recruit the best people to organisational roles. We understand the importance of respecting and valuing each other’s differences, and we want to make our organisation a more inclusive place for our staff, our volunteers, and the children and families we care for.

In order to achieve this, we know that we need to understand and reflect the diverse communities we serve. We recognise that we need to improve in this area, so we are listening and learning. In 2021/22 we began to lay the foundations of change by partnering with the National Centre for Diversity and working towards Investors in Diversity Award Level One. Going forward we will build on these foundations to ensure we are a truly diverse and inclusive organisation.

Sustainability

Climate change is one of the defining challenges of our time and we recognise we have a part to play. We believe that it is our moral obligation to look after the planet by becoming an organisation with a net zero strategy. We will help our volunteers and staff to contribute towards this goal by making sustainability a key factor at the start of all projects.

Two upcoming projects that have been designed with sustainability at their heart are the refurbishment of the Tree Tops family accommodation into two new flats, and the redesign of the office space in Douglas House to make it suitable for hybrid working.

We are currently undertaking an audit to understand what our carbon footprint is. This will be followed by the development of a sustainability strategy later in the year which will help us to make large-scale sustainable changes in a cost-effective way.

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 Nathan and HRH The former Duchess of Cornwall decorating the Christmas tree at Clarence House

PicturSophi e Captionand her family having fun at the summer party

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Financial

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 Frankie with care team member Julie
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 Harry and Taylor baking with Siobhan and Jade
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Financial review

We ended the financial year with a deficit on restricted funds of (£0.195m) and a surplus on unrestricted funds of £1.556m, resulting in a consolidated increase in funds for the year ended 31 March 2022 of £1.361m (2021: £2.585m increase in funds). Our like for like income (excluding all COVID-19 related financial support) increased by 53% compared to 2020/21 with some of the key movements as follows:

Overall, with the inclusion of all income received, there was a year-on-year increase of £535k (6%). The additional COVID-19 financial support we received during 2021/22 is detailed below:

** The NHSE awarded funding to allow hospices to make available bed capacity and community support from December 2021 to March 2022 inclusive to provide support to people with complex needs in light of the omicron variant.

*** The retail units reopened in April 2021

As we came out of lockdown it enabled us to begin to do more particularly within Income Generation and so as a result our total costs increased, £9.0m versus £8.3m in 2020/21. In addition to a greater level of activity, there were increases to our cost base as a result of our annual pay review and inflationary increases in some of our on-going running costs.

Expenditure on Raising Funds is categorised between Donations & Legacies and Trading Activities. Within raising funds expenditure, the costs of raising donations and legacies increased by 9.6% and on trading activities (including the retail network and lottery) increased by 11.3%. Both year on year increases are largely as a result of the easing of lockdown restrictions and allowing an increase in activities within income generation.

Expenditure on Charitable Activities is categorised between Hospice Care and Bereavement. There was a 5.6% increase in the level of charitable activities expenditure, driven by a greater level of activity post-lockdown.

There was positive movement in the total value of our investments held by CCLA with a net increase of 5% in our total fund(s) value. Of this increase, £0.441m is net gains. Whilst the largest elements of our investments are included in fixed asset investments, there is £0.382m held in our CCLA deposit fund which is classified as short-term investment within current assets.

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Risk management

The Trustees examined the principal areas of the charity’s operations and reviewed the major risks associated with each. The Trustees consider that the charity’s systems are such that these risks are managed to an acceptable level. The risk management strategy forms part of the annual planning process against which the Trustees regularly review progress. The Trustees review the risk register twice a year. The Trustees seek to anticipate future risks by undertaking risk analysis as part of the long-term strategic planning programme

The table below summaries our key risks and control measures that are in place:

Risk Management
Failure to safeguard service users,
staff and volunteers
Due to the conduct of a member of staff or volunteer or
organisational change
Robust safeguarding policy and procedure
Governance structures and policies Safeguarding team
Safeguarding framework
Safeguarding steering group with representatives in
different departments
Board reporting and nominated board member
Safe recruitment procedures
Rolled out training to retail staff
Posters in all shops and departments
Reporting culture
Mandatory training in safeguarding
Risk assessments
Freedom to Speak UpGuardians
Unable to deliver a 24/7 inpatient service
Therefore not able to consistently deliver care and end of
life care in the place that a family chooses
Outreach to support families
Telephone support from the medical
team and the care team
Support from the Community and Family Support Team
Recruitment Plan – FTC Clinical Recruiter Creative use of
the HDH services (day cases, mid-week stays)
Joint working with the acute trusts and other community
services (statutory and third sector)
Use of virtual multi-disciplinary meetings between teams
to plan care efficiently
Significant increase in our community and in-reach offer
Ongoing gap analysis and capacity monitoring
with partners via Thames Valley Paediatric
Palliative Care Network
Work towards formalising a managed clinical network
Engagement with NHS South East of England Palliative
and End of Life Care Strategic Clinical Network

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Recruitment and retention of talent does not enable
HDH to effectively deliver its strategy
Could lead to lack of support for HDH at the expected
level to meet stakeholder requirements
EDI Strategy and action plan completed
Clinical Recruitment Specialist in post
Positive action taken following last staff survey
MHFAs and Freedom to Speak up Guardians in place
Use of bank and agency staff
Looking creatively at staffing and skill mix
Pulling RN’s from other areas of the
organisation (surge action plan)
Flexible working policy implemented
Relaunched Staff Forum with more proactive messaging
in advance of launching key initiatives
HR Performance Dashboard in place and reviewed
First People Day for Exec to discuss
strategic people priorities
Line Managers Community of Practice embedded to
upskill Line Managers
Our voluntary income and retail income shows an
immediate decline due to a reputational issue or a
slow and sustained decline over time
Potential for operational expenditure
to exceed net income
Monthly monitoring of all income streams
performance against budget & discussion
regarding contingency plans
A mix of income sources and products which are
at different stages of the product life, this enables
us to spread our risk
Investing in sustainable income sources
such as regular giving
Extensive networks across the sector and regular
contact with key fundraising consultants, the Institute of
Fundraisingand the CharityRetail Association
Electronic Communication Failure
A breakdown of the organisation’s electronic and
telephonic communication systems
Emergency plans (Business Continuity)
Emergency mobile phones for the care team
Use of personal mobile phones
Robust backup measures & processes
Firewall
End point security on all laptops and desktops
Periodic penetration testing
Periodic phishing tests
Back Up generator
ICT Support Contracts (Security/Licencing/Phone System)
Investment in robust ICT infrastructure
ICT Headcount Increased
Out of Hours On-Call Support
Regular 1:1, between Director of Finance
and ICT and Head of ICT
Clear ICT Processes and Communication methods
Clear plans for safe administration of
medicines if EPR fails
Adhoc external, independent ICT review audit
Formal business case sign off for new ICT
projects and initiatives
Targeted staff comms on best practice
egPasswords/Phishingetc

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Investment Policy

The charity invests in pooled funds managed by CCLA Investment Management Ltd. Investments are primarily held in equity funds. The portfolio is reviewed at least annually, with consideration given to the weighting of our total exposure in equities, bond-like investments and cash. Under the guidance of CCLA Investment Management Ltd, we make amendments according to the anticipated market conditions and the organisational needs identified in our review(s). The quarterly reports from CCLA’s Social Responsibility Investigation Unit confirm to the Trustees that the CBF funds’ managers adopt a rigorous approach to corporate social responsibility in line with the Trustees’ instructions on ethical codes.

One element of the CCLA CBF fund long-term investment objective is to achieve an average annual return of inflation plus 5% on a portfolio of prudently and ethically invested financial assets. During 2021/22 our total portfolio return (net of fees and expenses) was 7.4% . There were investment income payments totalling £0.234m and an overall net gain of £0.441m .

Reserves Policy & Going Concern

Reserves are held to enable us to continue to help beneficiaries and to secure the future of the charity. They provide investment income, cash resources for capital projects and a subsidy for years when income does not match expenditure.

Our policy is to have free reserves of at least six months’ total operational costs of providing charitable activities including support costs. The value is based on the annual budget and is reviewed each year:

Summary of Free reserves 31 March 2022 £’000
Unrestricted Reserves at 31 March 2022 16,177
Less the value of fixed assets 3,697
Less amounts allocated or designated 1,998
‘Free’ reserves at 31 March 2022 10,482

As at March 2022, it cost c£318k * per month to provide hospice care, family support and bereavement care. The 2022/23 six-month total operational costs budget is £5.402m so the March 2022 level of ‘free’ reserves represents c11 months’ total operational costs**. Unrestricted reserves less fixed assets represent c14 months’ total operational costs.

* - basis of calculation is annual total of 2021/22 Hospice and Bereavement expenditure including their share of support costs and depreciation.

** - the total operational costs budget includes hospice & bereavement, support services and income generation costs.

The Charity has recently embarked on a new three-year strategy with the aim of increasing the scale and breadth of services that we offer, investing in systems & technology and building an engaged, diverse and collaborative team. This will require significant investment and over the timeframe of the strategy our reserves will be decremented to a level more aligned with our policy level.

The Charity has considered its future service costs in relation to projected income in the short to medium term future. Whilst there remains some uncertainty around certain income streams, there is a reasonable expectation that the Charity has adequate resources to continue in operational existence for the foreseeable future.

The Trustees believe that the Charity is well placed to manage its risks successfully. There are no material uncertainties about the group and Charity’s ability to continue as a going concern.

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Allocated/designated amounts

Helen & Douglas House makes several allocations from its unrestricted reserve. These cover:

Pay policy

The organisational pay policy sets out the principles that the Charity follows, for example, in setting pay, the following areas are taken into account:

It is reviewed annually by the people and remuneration committee.

Pay Scales and Rates

The Charity has moved away from NHS Agenda for Change to determine pay scales and rates, but is committed to remaining competitive against the NHS for Clinical staff

As of 31 March 2022, with the exception of the CEO, Retail and Doctors, all employees are paid on a rankings scale, their position on which is determined by their job role. Retail staff are on a separate pay scale.

The CEO salary is approved by the Chair of Trustees and Doctors’ sessional rates are determined by the Department of Health.

The minimum hourly rate paid in 2021/22 was £8.91 , this is in line with the National Living Wage.

Pension Schemes

The Charity offers two pension schemes.

NHS Pension

Employees who join, having paid into an NHS pension in the previous 12 months, are entitled to re-join the NHS Scheme.

Employer’s Pension

Employees are able to join one of two schemes.

There is a higher contribution rate scheme that has been in operation for some time. This requires the employee to contribute 6% and the Charity 7%. If the employee chooses not to join this scheme and meets the requirements, they will be automatically enrolled into a scheme offering the minimum level of contributions (2021/22: 5% for employee & 3% for employer). Staff must choose to opt out of the autoenrolment scheme if they do not wish to join.

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Administrative details

The Trustees, who are also directors of the charity for the purposes of the Companies Act, submit their annual report and the audited financial statements for the year ended 31 March 2022. The annual report and financial statements comply with the Charities Act 2011, the Companies Act 2006, Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standards applicable in the UK and Republic of Ireland (FRS 102), the charity’s memorandum and articles of association and the requirements of a directors’ report as required under company law.

The table below is a list of all trustees covering the relevant reporting period and the Assurance Committee they sit on.

Committee they sit on.
Trustees: Clinical Governance Organisational
Audit and Health & Safety
Finance
and Income Generation
People and Remuneration Trading Company
Tanya Baldwin ü
Lord Blair of Boughton
Katherine Boyce ü ü
Sir Stephen Bubb (Resigned April 2022)
Dr Ann Goldman ü
David Gye ü ü
Colin Love (Resigned May2021)
Peter Marland
Sister Jean Raphael ü
Annewen Rowe ü
Simeon Tinant
Martin Wildsmith ü ü
Ian Watson ü
Professor Andrew Wilkinson ü
Catherine Worswick (Resigned Jan 2022)
Gina Gill (Appointed July2022)

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Key managementpersonnel:
Chief Executive Officer & TradingCompanyDirector Clare Periton
Director of Clinical Services Andrea Lambert
Director of Support Services AshleyRoper
Director of Income Generation Hazel Bedford
Director of Finance and ICT Mark Stowe
Medical Director Dr EmilyHarrop
CompanySecretary& TradingCompanyDirector Mike Cooper

Solicitors:

Freeths LLP, Spires House, 5700 Oxford Business Park South, Oxford OX4 2RW Pennington Manches, 9400 Oxford Business Park, Garsington, Oxford, OX4 2HN

Independent auditor: Sayer Vincent LLP, Invicta House, 108-114 Golden Lane, London, EC1Y 0TL

Banks:

National Westminster Bank plc, 32 Cornmarket Street, Oxford, OX1 3HA Barclays Bank plc, 54 Cornmarket Street, Oxford, OX1 3HB

Investment managers:

CCLA, Senator House, 85 Queen Victoria Street, London, EC4V 4ET

The charity and public benefit

Helen & Douglas House accepts patients based on an objective assessment of need against defined criteria, and in line with principles adopted nationally for children and young people with palliative care needs (ref. Together for Short Lives). We operate a principle of equality of access to care, according to assessed need, and offer services to any member of the public within those criteria without discrimination (subject to operating capacity).

We provide care free of charge to our beneficiaries. We are only able to do this through the generosity of public donations and through our continual pursuit of a fair funding contribution from statutory sources. For every £1 received of statutory money, the charity itself generates a further £3.87 of income from voluntary donations, representing significant return on investment for the state.

The trustees have had regard to the Charity Commission’s guidance on public benefit in carrying out the charity’s objectives and are satisfied that any eligible child or young person, and their family members/ carers can benefit from the charity’s services.

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Organisation structure, governance and management

Helen House and Douglas House were each originally established under the aegis of the Society of All Saints Sisters of the Poor (ASSP), a registered charity and Anglican religious community for women, whose Mother House is in Oxford. The two hospices are built within the grounds of the Society’s Convent. On 14 October 2016, a Special Resolution was adopted by the Trustees of the ASSP which gave Helen & Douglas House independence from their organisation structure.

The Chief Executive is responsible for organising an induction programme for new trustees and on- going training for all trustees. Each trustee receives a trustee induction file on appointment. This and on-going training are based on material provided by Hospice UK, the umbrella body of the hospice movement in the United Kingdom, and the Charity Commission.

Whilst the trustees have, and accept, ultimate responsibility for directing the charity’s affairs they have delegated authority for day-to-day operational decisions to the chief executive, who reports to them at the quarterly meetings of the board.

Helen & Douglas House (Trading) Limited, a wholly owned subsidiary of Helen & Douglas House, was established to generate funds for the charity from the sale mostly of donated goods, with a small element of new goods in the sales-mix. In April 2006, a decision was taken to directly account for the sale of donated goods through the charity rather than channelling them through the trading company. The sale of new goods continues to be accounted for through Helen & Douglas House (Trading) Limited. The results of the subsidiary company have been incorporated into these financial statements. The profit for the trading subsidiary was £12k (2021: £11k loss) and the negative reserve position has been eliminated.

Trustee board members

A sister of All Saints Sisters of the Poor is a Trustee of Helen & Douglas House. The remaining trustees do not have a beneficial interest.

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Trustees’ responsibilities

The trustees (who are also directors of Helen & Douglas House for the purposes of company law) are responsible for preparing the trustee’s annual report, including the strategic report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practices).

Company and charity law require the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and group and of its incoming resources and application of resources, including the income and expenditure, of the group for that period. In preparing these financial statements the trustees are required to:

The trustees are responsible for keeping adequate accounting records that disclose reasonable accuracy, at any time, the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act. They are also responsible for safeguarding the assets of the charitable company and group and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

The trustees confirm that so far as they are aware, there is no relevant audit information of which the charity’s auditors are unaware. They have taken all the steps that they ought to have taken as trustees in order to make they are aware of any relevant audit information and to establish that the charity’s auditors are aware of that information.

The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

The trustees’ annual report which includes the strategic report has been approved by the trustees on 25 July 2022 and signed on their behalf by

Ian Blair Chair of Trustees Date: 25 July 2022

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Independent auditor’s report to the members of Helen & Douglas House

Opinion

We have audited the financial statements of Helen & Douglas House (the ‘parent charitable company’) and its subsidiary (the ‘group’) for the year ended 31 March 2022 which comprise the consolidated statement of financial activities, the group and parent charitable company balance sheets, the consolidated statement of cash flows and the notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including FRS 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the group financial statements section of our report. We are independent of the group and parent charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on Helen & Douglas House’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report

Other Information

The other information comprises the information included in the trustees’ annual report, including the strategic report, other than the group financial statements and our auditor’s report there on. The trustees are responsible for the other information contained within the annual report. Our opinion on the group financial statements does not cover the other information, and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the group financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the group financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

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Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the group and the parent charitable company and their environment obtained in the course of the audit, we have not identified material misstatements in the trustees’ annual report, including the strategic report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and Charities Act 2011 requires us to report to you if, in our opinion:

Responsibilities of trustees

As explained more fully in the statement of trustees’ responsibilities set out in the trustees’ annual report, the trustees (who are also the directors of the parent charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the group’s and the parent charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the group or the parent charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

We have been appointed auditor under the Companies Act 2006 and section 151 of the Charities Act 2011 and report in accordance with those Acts.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud are set out below.

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Capability of the audit in detecting irregularities

In identifying and assessing risks of material misstatement in respect of irregularities, including fraud and noncompliance with laws and regulations, our procedures included the following:

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor’s report.

Use of our report

This report is made solely to the charitable company’s members as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006 and section 144 of the Charities Act 2011 and regulations made under section 154 of that Act. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed.

Fleur Holden (Senior statutory auditor) 14 December 2022

for and on behalf of Sayer Vincent LLP, Statutory Auditor Invicta House, 108-114 Golden Lane, LONDON, EC1Y 0TL

Sayer Vincent LLP is eligible to act as auditor in terms of section 1212 of the Companies Act 2006

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Financial statements

Consolidated statement of financial activities for the year ended 31 March 2022 Incorporating an income and expenditure account

Financial statements Financial statements Financial statements Financial statements Financial statements
Consolidated statement of financial activities for the year ended 31 March 2022
Incorporating an income and expenditure account
Restricted
funds

Unrestricted
funds
Total funds
2021/22

Total funds
2020/21
NOTE £000 £000
£000
£000
Income from: 4,548
4,699
0
969
3,847
3,847
234
234
Donations & legacies 2a 151 5,002
Charitable activities 2b 969 2,243
Other tradingactivities 2c 0 1,323
Investments 2d 0 235
Other 2e 0 208
208
619
Total 1,120
8,837
9,957
9,422
Expenditure on: 1,828
1,830
3,390
3,390
2,236
3,313
Raisingfunds: Donations & legacies 3 2 1,670
Raisingfunds: Tradingactivities 0 3,045
Charitable activities: Hospice care 1,077 3,201
Charitable activities: Bereavement 204 300
504
414
Total 1,283
7,754
9,037
8,330
Net income before net gains
on investments
(163) 1,083
920
441
441
1,092
Netgains on investments 6 0 1,493
Transfer between funds (32) 32
0
0
Net movement in funds (195)
1,556
1,361
2,585
Reconciliation of funds:
Total funds brought forward 17 481 14,621
15,102
12,517
Total funds carried forward 286
16,177
16,463
15,102
All of the above results are derived from continuing activities. There were no other recognised gains or losses other than those
stated above. Movements in funds are disclosed in Note 15 and the comparativeprioryear SOFA is disclosed in Note 17.

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Balance sheets as at 31 March 2022

Balance sheets as at 31 March 2022 Balance sheets as at 31 March 2022 Balance sheets as at 31 March 2022 Balance sheets as at 31 March 2022 Balance sheets as at 31 March 2022 Balance sheets as at 31 March 2022 Balance sheets as at 31 March 2022
Group Charity
NOTE 2021/22
£000

2020/21
£000
2021/22
£000

2020/21
£000
Fixed assets
– tangible fxed assets
5
Buildings 3,403 3,672 3,403 3,672
Fixture,fttings & equipment 181 192 181 192
IT Costs 113 85 113 85
3,697
3,949
3,697
3,949
Fixed assets – investments
Investments 6 9,866
7,148
9,866
7,148
Current assets 0
Stock 1 0 0
Debtors 8 1,007 745 1,007 744
Short term investments 9 382 2,504 382 2,504
Cash & bank 2,055 1,296 2,054 1,295
3,445
4,545
3,443
4,543
Current liabilities
Creditors 10 (545) (540) (544) (545)
(falling due in less than oneyear)
Net current assets 2,900 4,005 2,899 3,998
Net assets 16,463
15,102
16,462
15,095
Accumulated funds
Unrestricted – Designated 15a 1,998 2,352 1,998 2,352
Unrestricted – General 15a 14,179 12,269 14,178 12,262
Restricted 15a 286 481 286 481
16,463
15,102
16,462
15,095
Company Number:4120488
These fnancial statements were approved and
their behalf by:
Ian Blair
Chair of Trustees
25 July2022
authorised for issue by the Trustees and signed on

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Statement of cash flows for the year ended 31 March 2022

Statement of cash flows for the year ended 31 March 2022 Statement of cash flows for the year ended 31 March 2022 Statement of cash flows for the year ended 31 March 2022
2021/22 2020/21
Net cash flow from £000 £000
Cash fows from operating activities:
Net income for the reporting period 1,361 2,585
Adjustments for:
Depreciation charges 444 398
Netgains on investments (441) (1,493)
Dividends,interest and rent from investments (234) (235)
Investment donation(shares) (155)
(2)
0
Loss/ (proft)on disposal of fxed assets 0
(Increase) /Decrease in stock (1) 3
Increase in creditors 5 51
(Increase) /Decrease in debtors (262) 462
Net cashprovided by operating activities 715 1,772
Cash fows from investing activities:
Dividends,interest and rents from investments 234 235
Proceeds from the sale of fxed assets 2 0
Purchase of fxed assets (192) (156)
Purchase of investments 0 (1,000)
Net cashprovided by / (used in) investing activities
44
(921)
Increase in cash balance 759 851
Movement in cash balances Start ofyear
1,296
445
End ofyear
2,055
1,296
Change
759
851

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Accounting Policies

Statutory information

Helen & Douglas House is a company limited by guarantee and is incorporated in England, registered in England and Wales (No. 4120488).

It is a registered charity in England and Wales (No. 1085951).

The registered office address and principal place of business is 14a Magdalen Road, Oxford OX4 1RW .

The following accounting policies have been used consistently with items considered material in relation to the group accounts.

Basis of preparation

The accounts have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK & the Republic of Ireland (FRS 102) – (Charities SORP FRS 102), the Financial Reporting Standard applicable in the UK & the Republic of Ireland (FRS 102) and the Companies Act.

The consolidated financial statements comprise the accounts of Helen & Douglas House and its trading subsidiary, Helen & Douglas House (Trading) Limited, made up to 31 March 2022. The trading results of the subsidiary are shown in note 7. Transactions and balances between the charitable company and its subsidiary have been eliminated from the consolidated financial statements. Balances between the two companies are disclosed in the notes of the charitable company’s balance sheet.

A separate statement of financial activities, or income and expenditure account, for the charitable company itself is not presented because the charitable company has taken advantage of the exemptions afforded by section 408 of the Companies Act.

Public benefit entity

Helen & Douglas House meets the definition of a public benefit entity under FRS 102.

Going concern basis

The trustees consider that there are no material uncertainties about the charitable company’s ability to continue as a going concern.

The charity has investment and bank balances of some £12.3m (2021: £10.9m) which the trustees consider adequate to meet future operational commitments.

The trustees do not consider that there are any sources of estimation uncertainty at the reporting date that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next reporting period.

Investment in subsidiaries

The investment in subsidiaries is at cost.

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60

Income

Expenditure and irrecoverable VAT

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required, and the amount of the obligation can be measured reliably. Expenditure is classified under the following activity headings:

Charitable activities (Hospice Care) The direct cost of running Helen House and Douglas
House, Clinical management, Medical Team
and direct support services of Catering, Domestic
and Facilities teams.
Charitable activities (Bereavement) The cost of the operation of the community and family
support services team which includes bereavement.
Costs of raising funds The cost incurred to receive voluntary contributions as
well as the cost of activities with a fundraising purpose.
Trading activities The cost related to running our network of shops and
our Lotteryoperation.

Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.

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61

Allocation of support services

Expended resources are allocated to the particular activity where the cost relates directly to the activity. The cost of overall management and administration of each activity, comprising salary and overhead costs of central functions, is apportioned on the following basis:

Support Area Basis of apportionment to the four main cost areas
Finance Based on the combined value of income and expenditure
CEO Office Apportionment based on the % time allocated byindividual employees
Governance Apportionment based on the total cost in each area
ICT Apportionment based on the % time allocated byindividual employees
People,
Volunteering & Resources
A combination of allocation methods used based on an individual
employee role, including recruitment numbers, number of employees
and number of volunteers
Brand and Marketing** Apportionment based on the % time allocated byindividual employees

** 2021/22 is the first year that Brand and Marketing have been allocated across activity. In previous years the costs were included fully within ‘Raising Funds : Donations & Legacies’

Governance costs are the costs associated with the governance arrangements of the charity. These costs are associated with constitutional and statutory requirements and include any costs associated with the strategic management of the charity’s activities.

Debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discount due.

Cash at bank and in hand

Cash at bank and cash in hand includes cash and short term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.

Creditors and provisions

Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

Fund accounting

Restricted funds are to be used for specific purposes as laid down by the donor. Expenditure which meets these criteria is charged to the fund. Funds restricted for the purchase of fixed assets are transferred to unrestricted funds once the asset has been acquired.

Unrestricted funds are donations and other incoming resources received or generated for the charitable purposes.

Designated funds are unrestricted funds earmarked by the trustees for particular purposes.

Stock

Stock is valued at the lower of cost and net realisable value. The stock of donated goods is not valued.

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62

Tangible fixed assets

Items of expenditure are capitalised where the purchase price exceeds £1,000.

Depreciation charges are allocated to activities on the basis of the use of the related assets in those activities.

Depreciation is provided at rates calculated to write down the cost of each asset to its estimated residual value evenly over its expected useful life. The depreciation rates in use are as follows:

Buildings 2.5%
Building Improvements 10.0%
Fixtures & fittings 15.0%
Computer equipment 33.3%
Motor vehicles 25.0%

Major components are treated as a separate asset where they have significantly different patterns of consumption of economic benefits and are depreciated separately over its useful life.

Listed investments

Investments are a basic form of financial instrument and are initially recognised as their transaction value and subsequently measured at their fair value as at the balance sheet date, using the closing quoted market value. Any change in the fair value will be recognised in the Statement of Financial Activities. Investment gains and losses, whether realised or unrealised, are combined and shown in the heading “Net gains on investments” in the Statement of Financial Activities.

The charity does not acquire complex financial instruments.

Investment properties

Investment properties are measured initially at cost and subsequently included in the balance sheet at fair value. Investment properties are not depreciated. Any change in the fair value is recognised in the Statement of Financial Activities. The valuation method used to determine fair value will be stated in the note to the accounts.

Taxation

No corporation tax is payable due to the charitable status of the parent company. Taxable profits are generated by the Trading subsidiary and are transferred as a gift to the parent company.

Pension costs

The Charity operates its own defined contribution scheme, currently provided by Scottish Widows. In addition, some employees are entitled to be members of the NHS pension scheme. For the Charity to allow the employee to continue with membership of the NHS Pension Scheme they must have paid into it in the 12 months prior to joining the Charity.

The NHS Pension Scheme is an unfunded, defined benefit scheme for NHS employers, GP Practices and other bodies allowed under the direction of the Secretary of State.

The scheme is not designed to be run in a way that would enable NHS bodies to identify their share of the underlying scheme assets and liabilities. Therefore, the scheme is accounted for as if it were a defined contribution scheme: the cost to the Charity of participating in the scheme is taken as equal to the contributions payable to the scheme for the accounting period.

Operating leases

Rentals applicable to operating leases are charged on a straight-line basis over the period of the lease.

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Notes to the financial statements for the year ended 31 March 2022

Notes to the financial statements for the year ended 31 March 2022 Notes to the financial statements for the year ended 31 March 2022 Notes to the financial statements for the year ended 31 March 2022 Notes to the financial statements for the year ended 31 March 2022
2 Income
2021/22
2020/21
£000 £000
2a Donations
3,222
Legacies
1,382
Coronavirus Job Retention Scheme**
0
2,772
1,187
726
Retail Support Grants
95
317
4,699
5,002
- At__31 March 2022there wasc£624kin the legacy pipeline
(at
31 March 2021 c£980k**)
2b Charitable activities
NHS England Children’s Hospice Grant(see Note 15a)
472
458
NHS and Local Authoritycontributions to cost of care
312
217
Government Funding (Hospice UK) (see Note 15a)
185
1,568
969
2,243
2c Trading activities
Sales of donated and bought ingoods
3,163
831
Gift Aid on sales of donatedgoods
265
72
Web sales
73
58
Lotteryincome
311
318
Other
35
44
3,847
1,323
2d Investments
Rent income
0
10
Fund and Dividend income
234
225
234
235
2e Other income
Proft on sale of Warehouse
2
17
Other(Including Business Continuity Insurance Claim relating to the frst lockdown of Covid-19)
206
603
208
619
Total income
9,957
9,422

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64

3 Expenditure
– Current Year
Hospice Care Bereavement Fundraising Trading 2021/22
£000 £000 £000 £000 £000
Paycosts 2,091 411 815 1,491 4,808
Non-paycosts 335 6 550 1,350 2,241
Central support costs 540 87 465 452 1,544
(see below)
Depreciation 347 0 0 97 444
3,313 504 1,830 3,390 9,037
Central Support Costs: £000 £000 £000 £000 £000
Finance 35 6 86 95 222
CEO Offce 121 0 40 40 201
Governance 6 1 3 8 18
IT 22 11 164 22 219
People & ResourcingTeam 238 35 54 220 547
Brand & Marketing* 118 34 118 67 337
540 87 465 452 1,544
* For the purpose of the 2021/22 accounts Brand & Marketing has been included within Central Support Costs. In prior year
accounts Brand & Marketing was included with Fundraising.
3 Expenditure
– Prior Year
Hospice Care Bereavement Fundraising Trading 2020/21
£000 £000 £000 £000 £000
Paycosts 2,072 362 945 1,548 4,927
Non-paycosts 316 7 489 1,091 1,903
Central support costs 478 45 236 343 1,102
(see below)
Depreciation 335 0 0 63 398
3,201 414 1,670 3,045 8,330
Central Support Costs: £000 £000 £000 £000 £000
Finance 35 4 79 79 197
CEO Offce 160 0 34 34 228
Governance 5 1 3 5 14
IT 68 19 67 39 193
People & ResourcingTeam 210 21 53 186 470
478 45 236 343 1,102
3 Net income / (expenditure) for the year is stated after charging:
2021/22
£000

2020/21
£000
Auditor’s remuneration(excluding VAT):
Audit of these fnancial statements 17 16
Audit of fnancial statements of subsidiary 1 1
Other Services 0 1
Operatinglease rentals –Property 809 798
Operatinglease rentals –Other 5 16

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65

4 Salaries and employees

The number of permanent employees and (Full Time Equivalent status) as at 31 March 2022 & 31 March 2021, by function was:

2021,byfunction was:
2021/22 2020/21
Head Count
FTE
Head Count FTE
Nursing,medical and care 51
(44.31)
49 (39.05)
Fundraising 20
(18.23)
23 (21.38)
Management & administration 26
(24.96)
21 (20.05)
Retail 60
(52.41)
61 (50.57)
Estates,domestic and catering 11
(9.73)
10 (9.12)
168
(149.64)
164 (140.18)
The organisation employed people on bank contracts (zero hours). In 2020/21 there were 70individualswho
worked zero hours contracts totalling the equivalent of6.85 FTE(2020/21: 59 individuals, 3.49 FTE). Bank FTE are
notincluded in the table above.
4 Salaries and employees Salaries and employees Salaries and employees Salaries and employees Salaries and employees Salaries and employees
The number of permanent employees and (Full Time Equivalent status) as at 31 March 2022 & 31 March
2021,byfunction was:
2021/22
Head Count
FTE
2020/21
Head Count FTE
Nursing,medical and care 51
(44.31)
49 (39.05)
Fundraising 20
(18.23)
23 (21.38)
Management & administration 26
(24.96)
21 (20.05)
Retail 60
(52.41)
61 (50.57)
Estates,domestic and catering 11
(9.73)
10 (9.12)
168
(149.64)
164
(140.18)
The organisation employed people on bank contracts (zero hours). In 2020/21 there were 70individualswho
worked zero hours contracts totalling the equivalent of6.85 FTE(2020/21: 59 individuals, 3.49 FTE). Bank FTE are
notincluded in the table above.
Staff salary costs: £000 £000
Salaries*** 4,981 4,877
National Insurance Contributions 464 440
Pension Contributions 360 343
*** - Includes actual & accrued redundancy costs 5,805 5,660
Agency,advertisingand other employee costs 115 93
5,920 5,752
Employee emoluments:* 2021/22 2020/21
£90,000 - £99,999 2 1
£80,000 - £89,999 0 1
£70,000 - £79,999 2 1
£60,000 - £69,999 3 2
- Excludes Employer NI and Pension_
Key management personnel (as defned in the Trustees’ Annual Report) total remuneration was
£582,185
(2020/21:
£518,458)
_
- Includes Employer NI and Pension_
Termination payments*
In
*2021/22
the Charity had 5 (2020/21:1) termination payments that amounted to £12,913
(2020/21: £4,374)
- any redundancy costs are_*includedwithin the terminationpayments total.

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66

4 Salaries and employees (continued)

Pension costs

Total pension contributions charged to the statement of financial activity, by scheme

4 Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued) Salaries and employees (continued)
Pension costs
Totalpension contributions charged to the statement of fnancial activity,byscheme
2021/22
£000

2020/21
£000
Charitydefned contribution scheme 202 203
NHSpension scheme 158 140
360
343
Volunteers
The number of individuals who volunteered for thegroupis set out in the table below:
Number of volunteers Number of hours
volunteered
Economic value
of the hours (£)
2021/22 2020/21 2021/22 2020/21 2021/22 2020/21
Care 83 101 4,017 763 35,791 6,653
Fundraising 0 0 0 0 0 0
Retail 304 355 255 0 2,272 0
Other 17 14 314 0 2,798 0
Total 404 470 4,586 763 40,861 6,653

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67

5 Fixed Assets Land &
Buildings
Building
Improve-ments
Fixtures, fittings
& equipment

IT Cost
Motor vehicles Total
£000 £000 £000 £000 £000 £000
Cost
At 1 April 2021 6,206 1,353 1,734 385 25 9,703
Additions 0 0 67 125 0 192
Disposals 0 0 0 0 (15) (15)
At 31 March 2022
6,206
1,353
1,801
510
10
9,880
Depreciation
At 1 April 2021 (2,943) (944) (1,542) (300) (25) (5,754)
Charged inyear (158) (111) (78) (97) 0 (444)
Eliminated on disposal 0 0 0 0 15 15
At 31 March 2022
(3,101)
(1,055)
(1,620)
(397)
(10)
(6,183)
Net book value
At 31 March 2022
3,105
298
181
113
0
3,697
At 1 April 2021
3,263
409
192
85
0
3,949
Douglas House property assets continue to be recognised in the fnancial statements as the expectation is the
assets will continue to deliver benefts to the Charity.
As at 31st March 2022 the Charity agreed to sublease Douglas House to Oxford University Hospitals NHS
Foundation Trust. The operating lease annual rent is £51,000 per annum, with the initial contractual term
ending 26th April 2023.
All assets are used for charitablepurposes.
6 Investments 2021/22
£000
2020/21
£000
CCLA – Investment Fund 9,477 6,887
Other listed investments(Bonds and Shares) 389 261
Total Fixed Asset Investments 9,866 7,148
CCLA – Deposit Fund 382 2,504
Total Current Asset Investments 382 2,504
10,248 9,652
Market value at 1 April 2021 9,652 7,509
CCLA – Investment Fund Purchases 2,122 -
CCLA – Deposit Fund Investment (2,122) 1,000
Donation of shares 155 -
Transfer of Investment Property 0 (350)
Netgain on revaluation 441 1,493
Market value at 31 March 2022 10,248 9,652
6 Investments 2021/22
£000
2020/21
£000
CCLA – Investment Fund 9,477 6,887
Other listed investments(Bonds and Shares) 389 261
Total Fixed Asset Investments 9,866 7,148
CCLA – Deposit Fund 382 2,504
Total Current Asset Investments 382 2,504
10,248 9,652
Market value at 1 April 2021 9,652 7,509
CCLA – Investment Fund Purchases 2,122 -
CCLA – Deposit Fund Investment (2,122) 1,000
Donation of shares 155 -
Transfer of Investment Property 0 (350)
Netgain on revaluation 441 1,493
Market value at 31 March 2022 10,248 9,652

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68

7 Subsidiary Undertaking

The charity owns the whole of the issued ordinary shares of Helen & Douglas House (Trading) Limited, a company incorporated in England (Co. Number : 05090748). The subsidiary is used for non-primary purpose trading activities. All activities have been consolidated on a line by line basis in the statement of financial activities. Available profits are distributed under gift aid to the charitable company. Clare Periton, of the charitable company, Michael Cooper, and Martin Wildsmith, are directors of Helen & Douglas House (Trading) Limited.

A summary of the company’s results are as follows:

(Trading) Limited.
A summaryof the company’s results are as follows:
2021/22
£000
2020/21
£000
Turnover 61 27
Cost of sales (38) (25)
Grossproft 23 2
Administrative expenses (11) (13)
Proft on ordinary activities before taxation 12 (11)
Taxation onproft on ordinaryactivities 0 0
Proft for the fnancialyear 12 (11)
Retained earnings brought forward (3) 8
Proft for the fnancialyear 12 (11)
Profts distributed toparent undergift aid (1) 0
Retained earnings carried forward 8 (3)
All of the above results are derived from continuing activities. There were no other recongnised gains or
losses other than those stated above. All movements in equityare included within the statement above.
Parent charity
Theparent charity’sgross income and the results for theyear are disclosed as follows:
2021/22
£000
2020/21
£000
Gross income 9,957 9,422
Result for theyear 1,361 2,585

Parent charity

Parent charity Parent charity Parent charity Parent charity
Theparent charity’sgross income and the results for theyear are disclosed as follows:
2021/22 2020/21
£000 £000
Gross income 9,957 9,422
Result for theyear 1,361 2,585

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69

Group Group Charity Charity
2021/22
£000
2020/21
£000
2021/22
£000
2020/21
£000
8 Debtors
Trade debtors 54 107 54 107
Investment income receivable 22 12 22 10
Accrued income 279 218 279 220
Accrued legacyincome 220 25 220 25
Prepayments 312 307 312 307
VAT recoverable 80 59 80 58
Other debtors 40 17 40 17
1,007 745 1,007 744
Group Charity
2021/22
£000
2020/21
£000
2021/22
£000
2020/21
£000
9 Current asset investments
CBF Deposit Fund 382 2,504
382
2,504
Group
Charity
2021/22
£000
2020/21
£000
2021/22
£000
2020/21
£000
10 Creditors
Trade creditors 195 99 195 95
Social securityand other taxes 146 110 146 110
Other creditors 94 161 94 171
Accruals and deferred income 110 170 109 169
545 540 544 545
11 Trustee remuneration
No trustees (2021/22: None) received remuneration for their offce. No trustees were reimbursed for
expenses(2020/21: None)for representingthe charity.
12 Leasing commitments
At the end of the year the Charity & Group had total commitments undernon-cancellable leases
as follows:
Property Other
2021/22
£000

2020/21
£000
2021/22
£000
2020/21
£000
Less than oneyear 620 730 7 8
Between one and fveyears 804 1,030 3 11
More than fveyears 0 10 0 0
1,424 1,770 10 19

13 Related party transactions

Helen & Douglas House paid rent of £46,747 (2020/21 £46,747) to The Society of All Saints, Sisters of the Poor. In addition there is a contribution of £5,400 (2020/21 £5,400) to the maintenance of the communal garden. The trustees of The Society of All Saints were members of Helen & Douglas House until October 2016, however one Trustee is now common to both Boards.

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70

14 Analysis of group net assets between funds

14 Analysis of group net assets between funds Analysis of group net assets between funds Analysis of group net assets between funds
2021/22
£000
2020/21
£000
General charitable funds
14,179
12,269
Designated funds
1,998
2,352
Restricted Funds
286
481
16,463 15,102
The funds are represented by:
Restricted
£000

Designated
£000

Unrestricted
£000
2021/22
£000
Fixed assets 0
0
3,697
3,697
Investments 0
1,998
7,868
9,866
Current assets 286 0 3,159
3,445
Current liabilities 0
0
(545)
(545)
286
1,998
14,179
16,463
Restricted
£000

Designated
£000

Unrestricted
£000

2019/20
£000
Fixed assets 0
0
3,949 3,949
Investments 0
2,352
4,796 7,148
Current assets 481 0 4,064 4,545
Current liabilities 0
0
(540) (540)
481
2,352
12,269
15,102

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71

15a Movements in funds (Current Year)

15a Movements in funds (Current Year) Movements in funds (Current Year) Movements in funds (Current Year) Movements in funds (Current Year) Movements in funds (Current Year) Movements in funds (Current Year)
Balance
01/04/2021

Income &
Gains

Expenditure
& Losses

Transfers
between
funds
Balance
31/03/2022
Restricted funds £000 £000 £000 £000
£000
Charitable Activities
NHS England Children’s
Hospice Grant
0 472 (472) 0
0
NHS and Local Authority
contributions to cost of care
0 312 (312) 0
0
Government Funding
(via Hospice UK)
0 185 (185) 0
0
0
969
(969)
0
0
Donations andLegacies
Enablement 38 0 (37) 0
1
HHplay 74 1 (39) 0
36
HH music 1 0 0 0
1
HH art 2 0 0 0
2
HH in-patient 25 9 (24) 0
10
Outreach work 109 61 (106) 0
64
Thames Valley Health
Education
29 0 0 0
29
Clinical training 33 0 (9) 0
24
Clinical equipment 121 40 (18) (25)
118
Volunteering 1 0 (1) 0
0
Care and Family
Support Services
10 29 (39) 0
0
Projects 38 11 (41) (7)
1
481
151
(314)
(32)
286
481
1,120
(1,283)
(32)
286
Unrestricted funds
Designated funds: £000 £000 £000 £000
£000
Lease commitments 1,788 0 0 (354)
1,434
Redundancyfund 350 0 0 0
350
Shopfund 65 0 0 0
65
Maternityfund 149 0 0 0
149
Total designated funds
2,352
0
0
(354)
1,998
General funds 12,269 9,278 (7,754) 386
14,179
Total unrestricted funds 14,621 9,278 (7,754) 32
16,177
Total funds
15,102
10,398
(9,037)
0
16,463

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72

15b Movements in funds (Prior Year)

15b Movements in funds (Prior Year) Movements in funds (Prior Year) Movements in funds (Prior Year) Movements in funds (Prior Year) Movements in funds (Prior Year) Movements in funds (Prior Year)
Balance
01/04/2020

Income &
Gains

Expenditure
& Losses

Transfers
between
funds
Balance
31/03/2021
Restricted funds £000 £000 £000 £000
£000
Charitable Activities
NHS England Children’s
Hospice Grant
0 458 (458) 0
0
NHS and Local Authority
contributions to cost of care
0 217 (217) 0
0
Government Funding
(via Hospice UK)
0 1,568 (1,568) 0
0
0
2,243
(2,243)
0
0
Donations andLegacies
Enablement 0 38 0 0
38
HHplay 103 2 (31) 0
74
HH music 1 0 0 0
1
HH art 2 0 0 0
2
HH in-patient 18 7 0 0
25
Outreach work 69 134 (94) 0
109
Thames Valley Health
Education
29 0 0 0
29
Clinical training 36 0 (3) 0
33
Clinical equipment 85 40 (4) 0
121
Volunteering 1 0 0 0
1
Care and Family
Support Services
0 10 0 0
10
Projects 19 110 (39) (52)
38
363
341
(171)
(52)
481
363
2,584
(2,414)
(52)
481
Unrestricted funds
Designated funds: £000 £000 £000 £000
£000
Lease commitments 2,405 0 0 (617)
1,788
Redundancyfund 350 0 0 0
350
Shopfund 160 0 0 (95)
65
Maternityfund 149 0 0 0
149
Total designated funds
3,064
0
0
(712)
2,352
General funds 9,090 8,332 (5,917) 764
12,269
Total unrestricted funds 12,154 8,332 (5,917) 52
14,621
Total funds
12,517
10,916
(8,331)
0
15,102

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73

Purposes of Restricted Funds

NHS England Children’s Hospice Grant

The annual grant contribution funded by NHS England has been restricted to our provision of children’s hospice care during the financial year, and fully used for that purpose.

NHS Clinical Commissioning Groups and Local Authorities

Funding contributions from a Clinical Commissioning Group (CCG) or Local Authority may be attributed to the care of a specific patient or may be in respect of all care provided to patients registered with a GP in a particular CCG. In 2021/22 we had NHS contract and grant agreements with the following CCGs:

2021/22 2020/21
NHS Buckinghamshire CCG £67,800 £31,200
NHS Milton Keynes CCG £21,897 £26,708
NHS Nene CCG - £1,568
NHS Northamptonshire £21,000 £21,000
NHS Oxfordshire CCG £100,000 £100,000
NHS Swindon CCG £14,526 £15,000
NHS Wiltshire CCG £23,176 £23,130

All the funds received from public sector sources were fully used in the financial year for the purposes intended. During 2021/22 further one-off Government funding payments were received totalling £0.185m to ensure the availability of bed capacity should it be needed. We also received NHS funding to support our 24/7 helpline offer, the total funding was £63k .

----- Start of picture text -----
 Leon with nurse Jade and chicken Thelma during Farmer Gow’s animal visit
----- End of picture text -----

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74

Enablement

To fund staff and project work related to patient enablement activities.

HH Play

The income in this fund has been generated in order to invest into resources supporting play activities.

HH Music

The income in this fund has been generated in order to invest in music therapy and activities for patients.

HH Art

The income in this fund has been generated in order to invest in art activities for patients.

HH In-Patient

The income in this fund has been generated in order to invest into resources supporting in-house patient care

Outreach Work

The aim of this fund is to cover costs of Outreach Workers who provide assistance in the patient’s home.

Thames Valley Health Education

A fund of money to help continued development of clinical supervision within the organisation.

Clinical Training

A restricted fund of money to help pay for internal training of Helen & Douglas House clinical employees.

Clinical Equipment

This fund is for the donations we receive that are required to be spent on purchases of large items of clinical equipment.

Volunteering

Staff Cost or project work supporting volunteering across the organisation.

Care and Family Support Services Project

The aim of this fund is to support families pre and post bereavement.

Projects

Funding received for specific projects pertaining to the development and enhancement of the building, gardens and facilities There was a transfer of funds during the year due to the terms of the restricted donation being satisfied once the specified assets were acquired, thus allowing the charity to use the assets on an unrestricted basis for any charitable purpose.

Designated Funds

The details of designated funds purposes can be found in the financial review section of the annual report.

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16 NHS pension scheme

Past and present employees are covered by the provisions of the two NHS Pension Schemes. Details of the benefits payable and rules of the Schemes can be found on the NHS Pensions website at www.nhsbsa.nhs.uk/pensions. Both are unfunded defined benefit schemes that cover NHS employers, GP practices and other bodies, allowed under the direction of the Secretary of State for Health in England and Wales. They are not designed to be run in a way that would enable NHS bodies to identify their share of the underlying scheme assets and liabilities. Therefore, each scheme is accounted for as if it were a defined contribution scheme: the cost to the NHS body of participating in each scheme is taken as equal to the contributions payable to that scheme for the accounting period.

In order that the defined benefit obligations recognised in the financial statements do not differ materially from those that would be determined at the reporting date by a formal actuarial valuation, the FReM requires that “the period between formal valuations shall be four years,with approximate assessments in intervening years”. An outline of these follows:

a) Accounting valuation

A valuation of scheme liability is carried out annually by the scheme actuary (currently the Government Actuary’s Department) as at the end of the reporting period. This utilises an actuarial assessment for the previous accounting period in conjunction with updated membership and financial data for the current reporting period and is accepted as providing suitably robust figures for financial reporting purposes. The valuation of the scheme liability as at 31 March 2022, is based on valuation data as 31 March 2021, updated to 31 March 2022 with summary global member and accounting data. In undertaking this actuarial assessment, the methodology prescribed in IAS 19, relevant FReM interpretations, and the discount rate prescribed by HM Treasury have also been used.

The latest assessment of the liabilities of the scheme is contained in the report of the scheme actuary, which forms part of the annual NHS Pension Scheme Accounts. These accounts can be viewed on the NHS Pensions website and are published annually. Copies can also be obtained from The Stationery Office.

b) Full actuarial (funding) valuation

The purpose of this valuation is to assess the level of liability in respect of the benefits due under the schemes (taking into account recent demographic experience), and to recommend contribution rates payable by employees and employers.

The latest actuarial valuation undertaken for the NHS Pension Scheme was completed as at 31 March 2016. The results of this valuation set the employer contribution rate payable from April 2019 to 20.6% of pensionable pay.

The 2016 funding valuation was also expected to test the cost of the Scheme relative to the employer cost cap set following the 2012 valuation.

In January 2019, the Government announced a pause to the cost control element of the 2016 valuations, due to the uncertainty around member benefits caused by the discrimination ruling relating to the McCloud case.

The Government subsequently announced in July 2020 that the pause had been lifted, and so the cost control element of the 2016 valuations could be completed. The Government has set out that the costs of remedy of the discrimination will be included in this process. HMT valuation directions will set out the technical detail of how the costs of remedy will be included in the valuation process. The Government has also confirmed that the Government Actuary is reviewing the cost control mechanism (as was originally announced in 2018). The review will assess whether the cost control mechanism is working in line with original government objectives and reported to Government in April 2021. The findings of this review will not impact the 2016 valuations, with the aim for any changes to the cost cap mechanism to be made in time for the completion of the 2020 actuarial valuations.

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17 Comparative SOFA
Restricted
funds

Unrestricted
funds
Total funds
2020/21
£000 £000
£000
Income from:
Donations & legacies 340 4,662
5,002
Charitable activities 2,243 0
2,243
Other tradingactivities 0 1,323
1,323
Investments 0 235
235
Other 0 619
619
Total
2,583
6,839
9,422
Expenditure on:
Raisingfunds: Donations & legacies 0 1,670
1,670
Raisingfunds: tradingactivities 0 3,045
3,045
Charitable activities: Hospice care 2,319 882
3,201
Charitable activities: Bereavement 94 320
414
Total
2,413
5,917
8,330
Net income before netgains on investments 170 922
1,092
Netgains on investments 0 1,493
1,493
Netgains on investments (52) 52
0
Net movement in funds
118
2,467
2,585
Reconciliation of funds:
Total funds brought forward 363 12,154
12,517
Total funds carried forward
481
14,621
15,102

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 Jack and his family with a Chinchilla at our Christmas party
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 Max with nurse Jade enjoying sensory play
78
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Helen & Douglas House Annual Report 2021/22

•BAI AVY Royyan. Zacky and Alisha al our summer party

Fundraise Donate Volunteer Shop

Helen & Douglas House 14A Magdalen Road Oxford OX4 1RW

E: Fundraising@helenanddouglas.org.uk T: 01865 799150

www.helenanddouglas.org.uk

Company number 4120488 Registered charity number 1085951 80 Registered office address Helen & Douglas House, 14A Magdalen Road, Oxford OX4 1RW

Helen & Douglas House Annual Report 2021/22