2021-12-31-accounts - Diamond Blackfan Anaemia Support Group UK

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REGISTERED CHARITY NUMBER: 1083179

`REPORT OF THE TRUSTEES AND`

UNAUDITED FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2021

`FOR`

`DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK`

Ashdown Hurrey Auditors Limited
Statutory Auditors
20 Havelock Road
Hastings
East Sussex
TN34 1BP

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP

UK

`CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021`

		`Page`
`Message from the Chair, Leisa Batkin`		`1`
`Report of the Trustees`	`2`	`to`	`4`
`Independent Examiner's Report`		`5`
`Statement of Financial Activities`		`6`
`Balance Sheet`		`7`
`Notes to the Financial Statements`	`8`	`to`	`11`

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`MESSAGE FROM THE CHAIR, LEISA BATKIN FOR THE YEAR ENDED 31 DECEMBER 2021`

Thisisthe10thChair’sReportthatIhavehadtheprivilegetopresent.Intheseunusualtimesithasbeenaprivilege to
supportourfamiliesandhelpsupporttheminaccessingtherightinformationattherighttimeduringthepandemic of
COVID-19.

2021hasbeenachallengingyearwiththeCOVIDpandemictakingpriorityandcancellingourfamilyweekendfor the
secondyear.However,weorganisedseveralvirtualconferenceswhichwereveryimportantforourfamiliesand help
themremainconnected.Thereisalwayssomeexcitingopportunityjustaroundeverycorneranditremainsas important
toDBAUKnowtostriveforthemagicbroughtbyitsmembersasitdid20yearsagoatthestartoftheCharity. We
believe that we, as a charity have moved rapidly to respond to our family’s needs.

Ourlittlecharitycontinuestodelivertoallthemembers.Thisisallgoodnewsbutrequiresalotofworkbehind the
scenes.Thecommitteeworktirelesslytoraisefunds,tosupportourfamiliesandsupportyouramazing fundraising
efforts.Toallowanyofthistohappenistimeconsumingandmoreandmorepressureisplacedonthesevolunteers to
perform.Itisanincreasinglydifficultclimateforfundraising.Weareconstantlychallengedtomaintainthe income
requiredtocarryon.However,wewillcontinuetoworkwithcorporateinstitutionsandcompaniestosupport our
finances.

Iampleasedtoreportthatwearethrivingandit’sthankstothewonderfulfamiliessupportingourfundraisinggoal that
wefeelsecureinourfuture.Wehavefurtherdevelopeda‘CarePathway’workingwithourclinicalteaminLondon, a
fundingpacktoengageourfamiliesandfundedworkinImperialLondon.Wehavealsobeenabletodevelop some
patientinformationleafletswhichwillsupporttreatment,increaseconfidenceforpatientsandhelpwithdecision making
in local hospitals.

Perhapsoneofthemostsignificantandenrichingchangesinthelastcoupleofyearsisouralliancewithresearchers and
clinicalleads,andtheincollaborationofotherUKcharitiesactiveinredcellaplasiaandbonemarrowfailures,this union
broughtwithitnewactivitiesandideas,initiatedlocallyandprovidingastrongsensecollaborationandbelongingof the
charity.WeareworkingwithnewmedicsandhaveawonderfulambassadortochampionourCharity.We have
developedageneticpassportthatwilltrackallbloodtestssoweareincontrolofwhatwegiveandunderstandwhy we
do it.

WecontinuetoworkwithGlobalBridgesandtheDBAFandwillcontinuetoworkeffectivelywiththem.DBAUKoffers a
uniquecombinationofsocialinteraction,familysupport,clinicalmanagementandscientificbreakthroughin a
combinationthatistransparentandaccessible.DBAUKsupportspeopletoachievebesthealthoutcomesregardless of
location.

Wewillcontinuetosupportourfamiliesasmuchaswecanusingourdesignatedsupportphoneline,socialmedia and
email.Wewillalsodedicateoureffortstoensureallnationalguidanceisunderstoodandbespokewebinars are
scheduled with our clinical lead and nurse specialist, so family’s and patients can discuss concerns and issues.

Toend,DBAUKcontinuestooutperformforasmallcharityandweareextremelyproudofallwehaveachievedin these
unprecedented times.

Page 1

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2021`

Thetrusteespresenttheirreportwiththefinancialstatementsofthecharityfortheyearended31December2021. The
trusteeshaveadoptedtheprovisionsofAccountingandReportingbyCharities:StatementofRecommended Practice
applicabletocharitiespreparingtheiraccountsinaccordancewiththeFinancialReportingStandardapplicableinthe UK
and Republic of Ireland (FRS 102) (effective 1 January 2019).

`OBJECTIVES AND ACTIVITIES`

`Objectives and aims`

a)ForthereliefofsicknessofthosesufferingeitherdirectlyorindirectlyfromDiamondBlackfanAnaemia(DBA) and
associated conditions.

b)Toeducatethegeneralpublicthroughpromotionofresearchandthedisseminationofknowledgeabout Diamond
Blackfan Anaemia (DBA).

`Significant activities`

Sadly,duetotherestrictionsoftheCovidpandemic,ourAnnualFamilyWeekendatCaythorpeCourtPGLcentre in
Lincolnshirewascancelledagainthisyear.So,wecouldnotmeetwithourfamiliesinperson.However,weorganised a
‘two-day’virtualconferenceviaZoomwhichincludedinternationaldelegatesandspeakers.Theeventwas hugely
successfulwithover100peopleattendingoverthetwodays.Theresponsewassogoodthatwehave introduced
regular, topic-specific webinars as part of our ongoing support service.

`Annual Adult Patient Conference`

EveryyearweorganiseandhostanannualresidentialweekendinLondonjustforouradultswithDBA.Weinvite lead
clinicianstotalktoouradultpatientstomanagetheirconditionmaybemorerelevanttoadultsratherthan children.
Unfortunately, the event had to be postponed this year due to the Covid pandemic.

`Support of DBA Research and improved clinical management techniques`

Althoughwearearelativelysmallcharity,wesupportresearchprojectsfromallaroundtheworld,alltryingto discover
and understand the mechanisms for the occurrence of DBA and to improve the management of the condition.

DrDeenaIskanderofImperialCollegeLondonhasbeenworkingonherownDBAresearchprojectsforthelastfew years
andwehavefundedthisworkinthepast.ThisyearDeenaaskedifwecouldagainprovidefundingfora research
assistant to support her current project which we were delighted to be able to do (£5K).

WealsocontinuedtosupporttheexcitingresearchofDrDevonGermain,currentlybasedattheUniversityofVienna in
Austria. This is Year 3 of a 3-year project supported by DBA UK (£10K per year).

TheAnnualDBAFInternationalConsensusConferenceinAtlanta,USA.ThiseventbringstogetherDBA specialists,
consultantsandresearchersfromallovertheworldtoshareknowledgeandestablishcommonstandardsof treatment
andmanagementforDBA.Unfortunately,theeventwasagainpostponedduetoCovidtravelrestrictionsbut will
hopefully take place in 2022. DBA UK continue to financially support this event.

`Online support through Social Media via our website`

SupportviasocialmediabecameevenmoreimportantduringtheCovidpandemicin2021.DBAUKFacebook pages
continuetobeaninvaluablesourceofsupportforallourDBApatientsandfamilies.Wealsohaveawebsitewhich is
packedwithinformationrelatingtoDBA.Nextyearweareplanningtorebuildthewebsite,reviewingitscontent and
makingmoreuserfriendlyformobilephonesandtablets.Wearealsoinvestigatingthepotentialtodevelopanonline app
forourfamiliestouse.Thegoalforthisisforourfamiliestorecordtestresults,planhospitalappointments,have easy
access to important information and to manage their child’s treatment and care from one central location.

`Telephone Helpline`

DBAUKcontinuetoprovideatelephonehelplineforDBAsupport.However,withtheincreasingpopularityof social
media,wereceiveveryfewtelephonecalls.OurfocushasthereforeswitchedtoonlinesupportviaourFacebook pages
which have proved hugely successful.

`Information Leaflets`

DBAUKhaveproducednewandmuchimprovedinformationleafletswhichweregularlycirculateandprovide as
downloads via our website. This reflect the changing approaches to DBA treatment and management.

Page 2

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2021`

`ACHIEVEMENT AND PERFORMANCE`

Sadly,duetotherestrictionsoftheCovidpandemic,ourAnnualFamilyWeekendatCaythorpeCourtPGLcentre in
Lincolnshirewascancelledthisyear.So,wecouldnotmeetwithourfamiliesinperson.However,weorganised a
‘two-day’virtualconferenceviaZoomwhichincludedinternationaldelegatesandspeakers.Theeventwas hugely
successfulwithover100peopleattendingoverthetwodays.Theresponsewassogoodthatwehave introduced
regular, topic-specific webinars as part of our ongoing support service.

Wealsocontinuedthroughouttheyearwithfrequentupdatesviasocialmediaplatforms,literatureandwebinars. Our
familiesfeltsupportedandconnected.Itwasreallyimportantthatweofferedguidancethatwasuptodate,relevant and
easytounderstand.Weprovidedourfamilieswithmasks,lettersforschools,signpostedtoemploymentsupport services
and offered a place to discuss issues and difficult decisions.

Inthisexceptionalyear,ourcommitteeandtrusteeshaveworkedtirelesslytosupportourDBAfamiliesand patients.
SomeofwhomhavebeenthroughoraregoingthroughtheBoneMarrowTransplantprocesswiththeirchildren.This is
ahugelystressfulandemotionaljourneyandweareveryfortunatetohavefamilieswhocanhelpussharetheir support
and BMT experiences.

`FINANCIAL REVIEW`

`Financial Review`

Despite there being very few fundraising events for most of the year, 2021 saw an excellent annual income of £71,326.

Our total expenditure for 2021 was £30,598.

ThiswaspredictablylowduetotheongoingCovidpandemicduring2021.TheannualFamilyWeekendwas again
postponed and many research projects and requests for funding were temporarily suspended.

Notable expenditure this year included;

`- Dr Devon Germain Research Year 3 of 3 (Austria)`	`£10,000`
`- Dr Deena Iskander (support for Research Assistant)`	`£5,000`
`Total cash assets at 31 December 2021`	`£129,062`

`Reserves policy`

OurannualFamilyWeekendremainsthecoreeventforourcharity.Consequently,theCommitteehavedecidedthat the
charityshouldhold"3yearscostsforFamilyWeekends"inreserve.CurrentlyeachFamilyWeekendcoststhe charity
approximately £25,000 so we must therefore hold £75,000 in reserve.

`FUTURE FUNDRAISING OBJECTIVES AND PLANS`

TheCommitteeacknowledgethatgoingforwardthecharitywillhavetoworkhardertosecureagoodannual income.
Thismayinvolveexploringothersourcesofincomesuchascorporatesponsorshipsandgrants.Thecommittee discussed
thepossibilityofseekingexternaladviceonputtingtogetherafundraisingstrategyforthecharity.However,we are
awarethatputtingsuchastrategyintopracticemaybechallenginggiventhatwerelyheavilyonsuchasmallgroup of
volunteers.Weacknowledgethatagreatcontributionismadebyourcommitteevolunteersandwearegratefulfor the
manyhourstheyhavespentsharingtheirskills,knowledgeandexperience.Withoutthisvaluablecontribution,we would
nothavebeenabletoachievesomuchthisyear.However,likemostcharities,wemustactivelymakeprovisionto recruit
new Committee members to support the few we have currently.

`STRUCTURE, GOVERNANCE AND MANAGEMENT`

`Governing document`

The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.

`Recruitment and appointment of new trustees`

ElectionfrommembersatAGMon3Yearrotation,1/3rdresigninginturneachyear,whoaretheneligiblefor re-election
at our AGM usually held at our Family Weekend usually in May.

Trusteesgivetheirtimevoluntarilyandgenerallyreceivenoremunerationorotherbenefits.However,asa temporary
emergencymeasure,LeisaBatkin,ourChairandTrusteereceivesasmallsumpermonthtosecuretimeforthe vital
workshedoesforthecharity.ThiswillbereviewedasandwhennewCommitteemembersarerecruitedand the
workload is reduced for the few committee members we currently have.

Page 3

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2021`

`STRUCTURE, GOVERNANCE AND MANAGEMENT`

`Committee Roles and Responsibilities`

Likemanyothercharities,westruggletofindvolunteerswhoarewillingtocommittheirtimeandskillstoour cause.
Naturally,thisputsevenmorepressureonourexistingvolunteerswhoalreadyworktirelesslytosupportthecharity. We
recognisethatthissituationisnotsustainablesonextyearitisourprimarygoaltorecruitnewvolunteersonto the
Committee. We are truly grateful to the core four committee members who work tirelessly for the charity.

WecontinuedtofundLeisaBatkin,ourmostmedicallyqualifiedandexperiencedcommitteemember(andChair),on a
'consultancybasis'forasetnumberofhoursperweek.ThisensuresthatLeisacandedicateherprecioustime to
supportingourvolunteercommitteeuntilsuchatimethatwecouldrecruitmorenewmembers.This temporary
arrangementhasprovedtobeahugesuccessandweareextremelyverygratefultoLeisaforher continued
commitment.

`Risk management`

Thetrusteeshaveadutytoidentifyandreviewtheriskstowhichthecharityisexposedandtoensure appropriate
controls are in place to provide reasonable assurance against fraud and error.

`REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number`

`Principal address`

71-73 Main Street
Palterton
Chesterfield
Derbyshire
S44 6UR

`Trustees`

J Whitaker
L Batkin
P Redmond
H S Till
J Hubbard

`Independent Examiner`

Ashdown Hurrey Auditors Limited
Statutory Auditors
20 Havelock Road
Hastings
East Sussex
TN34 1BP

`PUBLIC BENEFIT`

InlinewiththeCharityCommission'sguidanceonpublicbenefit,thecharityregularlyreviewsitsobjects and
achievementsinordertoensurethattheguidelinesarecompliedwith.Followingthecessationofthecoursesat Preston
CollegethetrusteesareinconsultationwiththeCharityCommissioninordertoensurethatfundscontinuetobeused in
accordance with the charity's objectives and the Commission's guidelines.

Approved by order of the board of trustees on 27 October 2022 and signed on its behalf by:

P Redmond - Trustee

Page 4

`INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK`

`Independent examiner's report to the trustees of Diamond Blackfan Anaemia Support Group UK`

IreporttothecharitytrusteesonmyexaminationoftheaccountsofDiamondBlackfanAnaemiaSupportGroupUK (the
Trust) for the year ended 31 December 2021.

`Responsibilities and basis of report`

AsthecharitytrusteesoftheTrustyouareresponsibleforthepreparationoftheaccountsinaccordancewith the
requirements of the Charities Act 2011 ('the Act').

IreportinrespectofmyexaminationoftheTrust'saccountscarriedoutundersection145oftheActandincarrying out
myexaminationIhavefollowedallapplicableDirectionsgivenbytheCharityCommissionundersection145(5)(b)of the
Act.

`Independent examiner's statement`

Ihavecompletedmyexamination.Iconfirmthatnomaterialmattershavecometomyattentioninconnectionwith the
examination giving me cause to believe that in any material respect:

1. accounting records were not kept in respect of the Trust as required by section 130 of the Act; or

2. the accounts do not accord with those records; or

3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

Ihavenoconcernsandhavecomeacrossnoothermattersinconnectionwiththeexaminationtowhichattention should
be drawn in this report in order to enable a proper understanding of the accounts to be reached.

S R Sampson BFP FCA FCIE DChA
Ashdown Hurrey Auditors Limited
Statutory Auditors
20 Havelock Road
Hastings
East Sussex
TN34 1BP

Date: 28 October 2022

Page 5

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2021`

		`31.12.21`	`31.12.20`
		`Unrestricted`	`Total`
		`fund`	`funds`
	`Notes`	`£`	`£`
`INCOME AND ENDOWMENTS FROM`
`Donations and legacies`		`68,831`	`70,360`
`Other trading activities`	`3`	`2,483`	`8,532`
`Investment income`	`4`	`12`	`84`
`Total`		`71,326`	`78,976`
`EXPENDITURE ON`
`Raising funds`		`305`	`1,006`
`Other`		`30,293`	`75,729`
`Total`		`30,598`	`76,735`
`NET INCOME`		`40,728`	`2,241`
`RECONCILIATION OF FUNDS`
`Total funds brought forward`		`87,494`	`85,253`
`TOTAL FUNDS CARRIED FORWARD`		`128,222`	`87,494`

The notes form part of these financial statements

Page 6

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`BALANCE SHEET 31 DECEMBER 2021`

`31.12.21` `Unrestricted` `fund` `Notes` `£` `CURRENT ASSETS` `Cash at bank` `129,062` `CREDITORS` `Amounts falling due within one year` `8` `(840)` `NET CURRENT ASSETS` `128,222` `TOTAL ASSETS LESS CURRENT LIABILITIES` `128,222` `NET ASSETS` `128,222` `FUNDS` `9` `Unrestricted funds` `128,222` `TOTAL FUNDS` `128,222`	`31.12.20` `Total` `funds` `£` `88,334` `(840)` `87,494` `87,494` `87,494` `87,494` `87,494`

The financial statements were approved by the Board of Trustees and authorised for issue on 27 October 2022 and were signed on its behalf by:

P Redmond - Trustee

L Batkin - Trustee

H S Till - Trustee

The notes form part of these financial statements

Page 7

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021`

`1. STATUTORY INFORMATION`

DiamondBlackfanAnaemiaSupportGroupisanunincorporatedcharity,registeredinEngland&Wales. The
charity's registered number and principal address can be found in the Report of the Trustees.

`2. ACCOUNTING POLICIES`

`Basis of preparing the financial statements`

Thefinancialstatementsofthecharity,whichisapublicbenefitentityunderFRS102,havebeenprepared in
accordancewiththeCharitiesSORP(FRS102)'AccountingandReportingbyCharities:Statement of
RecommendedPracticeapplicabletocharitiespreparingtheiraccountsinaccordancewiththeFinancial Reporting
StandardapplicableintheUKandRepublicofIreland(FRS102)(effective1January2019)',Financial Reporting
Standard102'TheFinancialReportingStandardapplicableintheUKandRepublicofIreland'andthe Charities
Act 2011. The financial statements have been prepared under the historical cost convention.

Inpreparingthefinancialstatements,thetrusteesarerequiredtomakeanassessmentoftheabilityof the
charitytocontinueasagoingconcern.Thetrusteeshaveconsideredallavailableevidencefortheycharity which
coversthe12monthperiodfromthedateofsigningthesefinancialstatements.Againstthebackdropof the
COVID-19Pandemicthetrusteeshavepaidparticularattentiontolikelycashflowrequirementsandthe future
availability of adequate cashflow to the charity.

Onthebasisofthisconsideration,thetrusteesaresatisfiedthatthecharityhasadequateresourcesto continue
inoperationalexistenceandtomeetitsliabilitiesastheyfallduefortheforeseeablefuture.Inreaching this
conclusiontheyconsiderthatnomaterialuncertaintyexists.Asaresult,thetrusteeshaveconcludedthat it
remains appropriate to adopt a going concern basis of preparation in these financial statements.

`Income`

AllincomeisrecognisedintheStatementofFinancialActivitiesoncethecharityhasentitlementtothefunds,it is
probable that the income will be received and the amount can be measured reliably.

`Expenditure`

Liabilitiesarerecognisedasexpenditureassoonasthereisalegalorconstructiveobligationcommitting the
charitytothatexpenditure,itisprobablethatatransferofeconomicbenefitswillberequiredinsettlement and
theamountoftheobligationcanbemeasuredreliably.Expenditureisaccountedforonanaccrualsbasisand has
beenclassifiedunderheadingsthataggregateallcostrelatedtothecategory.Wherecostscannotbe directly
attributedtoparticularheadingstheyhavebeenallocatedtoactivitiesonabasisconsistentwiththeuse of
resources.

`Taxation`

The charity is exempt from tax on its charitable activities.

`Fund accounting`

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restrictedfundscanonlybeusedforparticularrestrictedpurposeswithintheobjectsofthecharity. Restrictions
arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

continued...

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DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2021`

`3. OTHER TRADING ACTIVITIES`

`3.`	`OTHER TRADING ACTIVITIES`
		`31.12.21`	`31.12.20`
		`£`	`£`
	`Fundraising events`	`2,483`	`8,532`
`4.`	`INVESTMENT INCOME`
		`31.12.21`	`31.12.20`
		`£`	`£`
	`Deposit account interest`	`12`	`84`

`5. INDEPENDENT EXAMINERS' REMUNERATION`

	`31.12.21`	`31.12.20`
	`£`	`£`

`Fees payable to the charity's independent examiners for the independent` `examination of the charity's financial statements`	`840`	`840`

`6. TRUSTEES' REMUNERATION AND BENEFITS`

DuringtheyearTrustee;LBatkinwasremuneratedforconsultancyservicestotalling£5,000(2020:£4,800). This
ispermittedinaccordancewitharesolutiondated9July2019updatingtheTrusteeBenefitClausein the
Charity's Governing Document which was approved by the Charity Commission.

`Trustees' expenses`

Expenses totalling £190 were paid to one Trustee during the year in relation to travel expenses.

`7. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES`

	`Unrestricted`
	`fund`
	`£`
`INCOME AND ENDOWMENTS FROM`
`Donations and legacies`	`70,360`
`Other trading activities`	`8,532`
`Investment income`	`84`
`Total`	`78,976`
`EXPENDITURE ON`
`Raising funds`	`1,006`
`Other`	`75,729`
`Total`	`76,735`
`NET INCOME`	`2,241`
`RECONCILIATION OF FUNDS`
`Total funds brought forward`	`85,253`
`TOTAL FUNDS CARRIED FORWARD`	`87,494`

continued...

Page 9

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2021`

`8. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR`

			`31.12.21`	`31.12.20`
			`£`	`£`
	`Other creditors`		`840`	`840`
`9.`	`MOVEMENT IN FUNDS`
			`Net`
			`movement`	`At`
		`At 1.1.21`	`in funds`	`31.12.21`
		`£`	`£`	`£`
	`Unrestricted funds`
	`General fund`	`87,494`	`40,728`	`128,222`
	`TOTAL FUNDS`	`87,494`	`40,728`	`128,222`
	`Net movement in funds, included in the above are as follows:`
		`Incoming`	`Resources`	`Movement`
		`resources`	`expended`	`in funds`
		`£`	`£`	`£`
	`Unrestricted funds`
	`General fund`	`71,326`	`(30,598)`	`40,728`
	`TOTAL FUNDS`	`71,326`	`(30,598)`	`40,728`
	`Comparatives for movement in funds`
			`Net`
			`movement`	`At`
		`At 1.1.20`	`in funds`	`31.12.20`
		`£`	`£`	`£`
	`Unrestricted funds`
	`General fund`	`85,253`	`2,241`	`87,494`
	`TOTAL FUNDS`	`85,253`	`2,241`	`87,494`
	`Comparative net movement in funds, included in the above are as follows:`
		`Incoming`	`Resources`	`Movement`
		`resources`	`expended`	`in funds`
		`£`	`£`	`£`
	`Unrestricted funds`
	`General fund`	`78,976`	`(76,735)`	`2,241`
	`TOTAL FUNDS`	`78,976`	`(76,735)`	`2,241`

continued...

Page 10

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2021`

`9. MOVEMENT IN FUNDS - continued`

A current year 12 months and prior year 12 months combined position is as follows:

		`Net`
		`movement`	`At`
	`At 1.1.20`	`in funds`	`31.12.21`
	`£`	`£`	`£`
`Unrestricted funds`
`General fund`	`85,253`	`42,969`	`128,222`
`TOTAL FUNDS`	`85,253`	`42,969`	`128,222`

Acurrentyear12monthsandprioryear12monthscombinednetmovementinfunds,includedintheabove are
as follows:

	`Incoming`	`Resources`	`Movement`
	`resources`	`expended`	`in funds`
	`£`	`£`	`£`
`Unrestricted funds`
`General fund`	`150,302`	`(107,333)`	`42,969`
`TOTAL FUNDS`	`150,302`	`(107,333)`	`42,969`

`10. RELATED PARTY DISCLOSURES`

Transactions with Trustees during the year are summarised in note 6.

Page 11