2020-12-31-accounts - Diamond Blackfan Anaemia Support Group UK

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

REGISTERED CHARITY NUMBER: 1083179

`REPORT OF THE TRUSTEES AND`

UNAUDITED FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 DECEMBER 2020

`FOR`

`DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK`

Ashdown Hurrey Auditors Limited
Statutory Auditors
20 Havelock Road
Hastings
East Sussex
TN34 1BP

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP

UK

`CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2020`

		`Page`
`Message from the Chair, Leisa Batkin`		`1`
`Report of the Trustees`	`2`	`to`	`4`
`Independent Examiner's Report`		`5`
`Statement of Financial Activities`		`6`
`Balance Sheet`		`7`
`Notes to the Financial Statements`	`8`	`to`	`11`

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`MESSAGE FROM THE CHAIR, LEISA BATKIN FOR THE YEAR ENDED 31 DECEMBER 2020`

2020 was an unprecedented year for us all and we faced true adversity both personally and as a Charity.

ThepandemicwasanextremelydifficulttimeforthefamiliesaffectedwithDBA.Whenthefirstlockdownwas nationally
instructedallourchildrenandadultswithDBAwereinstructedtoshield,removingthemfromschool,jobs,friends and
lovedones.Werecognisedthatnationalinformationwasattimesconfusingandunhelpfulandourfamilieswere very
anxious.Asacharityweorganisedvirtualmonthlyupdateswithourclinicalteamswithourfamiliestotalkwith the
medicalteamtosupportdecisionmaking.Wesupportedthemedicalteamtodevelopclearguidelines,wealso organised
ameetingwithamemberofSAGEtotalkthroughourissuesanddirectlyreportbacktotheGovernment.We anticipated
wewereunabletohostourbrilliantweekendaway,soweorganisedavirtualconferencewhichincluded international
delegatesandover100peopleattendedoverthetwodays.Wecontinuedthroughouttheyearwithfrequentupdates via
socialmediaplatforms,literatureandwebinars.Ourfamiliesfeltsupportedandconnectedanditwasreally important
thatweofferedthisguidancethatwasuptodate,relevantandeasytounderstand.Weprovidedourfamilies with
masks,lettersforschools,signpostedtoemploymentsupportservicesandofferedaplacetodiscussissuesand difficult
decisions.

Wewereveryfortunatetobeofferedagranttobeabletosendourfamiliesavouchertohelpwiththeir Christmas
shoppingandgifts.Wecouldn'tbetogether,butwecouldlookaftereachother.Unsurprisingly,throughoutthiswe have
comeoutstronger,closerandmoreactivatedtomakechanges.Wehaveworkedwiththeclinicalteamto promote
e-reviewsandvirtualappointmentswithourspecialistinLondon.Wehavealsoprovidedfundingtoensurethe research
underway is future proofed and real changes to our treatment plan will be made.

Duringthelockdownswealsodevelopedagoodworkingrelationshipwithadigitalteamwhohavedeveloped patient
informationleafletswithourguidance.Thesearenowavailableashardordigitalcopiesforallourfamiliesand health
careworkforce.Throughoutallofthisourcommitteestandsatjust4people.Thisreducednumberremainsa strong
cohortwhoturntoeachotherforsupport,recognisethevalueineachotherandprovidesuchahugeamountof support
toourfamilies.Itisaprivilegetobeapartofthissmall,butamazingteam.Wearehoping2021iskindertousall,but in
the meantime, we will endeavour to support our families as much as we can.

Page 1

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020`

Thetrusteespresenttheirreportwiththefinancialstatementsofthecharityfortheyearended31December2020. The
trusteeshaveadoptedtheprovisionsofAccountingandReportingbyCharities:StatementofRecommended Practice
applicabletocharitiespreparingtheiraccountsinaccordancewiththeFinancialReportingStandardapplicableinthe UK
and Republic of Ireland (FRS 102) (effective 1 January 2019).

`OBJECTIVES AND ACTIVITIES`

`Objectives and aims`

a)ForthereliefofsicknessofthosesufferingeitherdirectlyorindirectlyfromDiamondBlackfanAnaemia(DBA) and
associated conditions.

b)Toeducatethegeneralpublicthroughpromotionofresearchandthedisseminationofknowledgeabout Diamond
Blackfan Anaemia (DBA).

`Significant activities`

Sadly,duetotherestrictionsoftheCovidpandemic,ourAnnualFamilyWeekendatCaythorpeCourtPGLcentre in
Lincolnshire was cancelled this year. So, we could not meet with our families in person.

However,weorganiseda'two-day'virtualconferenceviaZoomwhichincludedinternationaldelegatesandspeakers. The
eventwashugelysuccessfulwithover100peopleattendingoverthetwodays.Theresponsewassogoodthatwe have
introduced regular, topic-specific webinars as part of our ongoing support service.

`Annual Adult Patient Conference`

EveryyearweorganiseandhostanannualresidentialweekendinLondonjustforouradultswithDBA.Weinvite lead
clinicianstotalktoouradultpatientstomanagetheirconditionmaybemorerelevanttoadultsratherthan children.
Fortunately,wemanagedtoholdthiseventinFebruary,priortotheCovidoutbreakinMarch.Thisyearbrought together
manyouradultDBApatientslivingintheUK.Onceagain,theweekendwasahugesuccesswithpositivefeedback from
all our attendees.

`Support of DBA Research and improved clinical management techniques.`

Althoughwearearelativelysmallcharity,wesupportresearchprojectsfromallaroundtheworld,alltryingto discover
and understand the mechanisms for the occurrence of DBA and to improve the management of the condition.

DrDeenaIskanderofImperialCollegeLondonhasbeenworkingonherownDBAresearchprojectsforthelastfew years
andwehavefundedthisworkinthepast.ThisyearDeenaaskedifwecouldagainprovidefundingfora research
assistant to support her current project which we were delighted to be able to do. (£30K)

WealsocontinuedtosupporttheexcitingresearchofDrDevonGermain,currentlybasedattheUniversityofVienna in
Austria. This is Year 2 of a 3-year project supported by DBA UK (£10K per year)

Onceagain,wemadeacontributionof$20,000USD(£16,047)totheDBAFInternationalConsensusConference in
Atlanta,USA.ThiseventbringstogetherDBAspecialists,consultantsandresearchersfromallovertheworldto share
knowledgeandestablishcommonstandardsoftreatmentandmanagementforDBA.Unfortunately,theevent was
postponed due to Covid travel restrictions but will hopefully take place in 2021.

`Online support through Social Media via our website`

SupportviasocialmediabecameevenmoreimportantduringtheCovidpandemicin2020.DBAUKFacebook pages
continuetobeaninvaluablesourceofsupportforallourDBApatientsandfamilies.Wealsohaveawebsitewhich is
packedwithinformationrelatingtoDBA.Nextyearweareplanningtorebuildthewebsite,reviewingitscontent and
makingmoreuserfriendlyformobilephonesandtablets.Wearealsoinvestigatingthepotentialtodevelopanonline app
forourfamiliestouse.Thegoalforthisisforourfamiliestorecordtestresults,planhospitalappointments,have easy
access to important information and to manage their child's treatment and care from one central location.

`Telephone Helpline`

DBAUKcontinuetoprovideatelephonehelplineforDBAsupport.However,withtheincreasingpopularityof social
media,wereceiveveryfewtelephonecalls.OurfocushasthereforeswitchedtoonlinesupportviaourFacebook pages
which have proved hugely successful.

`Information Leaflets`

DBAUKhaveproducednewandmuchimprovedinformationleafletswhichweregularlycirculateandprovide as
downloads via our website. This reflect the changing approaches to DBA treatment and management.

Page 2

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020`

`ACHIEVEMENT AND PERFORMANCE`

Sadly,duetotherestrictionsoftheCovidpandemic,ourAnnualFamilyWeekendatCaythorpeCourtPGLcentre in
Lincolnshire was cancelled this year. So, we could not meet with our families in person.

However,weorganiseda'two-day'virtualconferenceviaZoomwhichincludedinternationaldelegatesandspeakers. The
eventwashugelysuccessfulwithover100peopleattendingoverthetwodays.Theresponsewassogoodthatwe have
introduced regular, topic-specific webinars as part of our ongoing support service.

Wealsocontinuedthroughouttheyearwithfrequentupdatesviasocialmediaplatforms,literatureandwebinars. Our
familiesfeltsupportedandconnected.Itwasreallyimportantthatweofferedguidancethatwasuptodate,relevant and
easytounderstand.Weprovidedourfamilieswithmasks,lettersforschools,signpostedtoemploymentsupport services
and offered a place to discuss issues and difficult decisions.

Inthisexceptionalyear,ourcommitteeandtrusteeshaveworkedtirelesslytosupportourDBAfamiliesand patients.
SomeofwhomhavebeenthroughoraregoingthroughtheBoneMarrowTransplantprocesswiththeirchildren.This is
ahugelystressfulandemotionaljourneyandweareveryfortunatetohavefamilieswhocanhelpussharetheir support
and BMT experiences.

`FINANCIAL REVIEW`

`Financial Review`

Despitetherebeingveryfewfundraisingeventsformostoftheyear,2020sawanexcellentannualincomeof £78,976.
Thiswasboostedbyadonationof£20KfromoneofourverycloseDBAfamilies,theRosefamilywiththeir hugely
successful'RoseBall'.Wewerealsoverygratefultoreceiveagrantfor£14,200from'ContactAFamily'.Anotherof our
amazing DBA families, the Rhodes family successfully applied for the grant on our behalf.

Our total expenditure 2020 was £76,735

 Notable expenditure included;

`- Contribution to DBAF ICC 2020 in Atlanta`	`£16,047`
`- Dr Devon Germain Research Year 2 of 3 (Austria)`	`£10,000`
`- Dr Deena Iskander (support for Research Assistant)`	`£30,000`
`Total cash assets at 31 December 2020`	`£88,334`

`Reserves policy`

OurannualFamilyWeekendremainsthecoreeventforourcharity.Consequently,theCommitteehavedecidedthat the
charityshouldhold"3yearscostsforFamilyWeekends"inreserve.CurrentlyeachFamilyWeekendcoststhe charity
approximately £25,000 so we must therefore hold £75,000 in reserve.

`FUTURE FUNDRAISING OBJECTIVES AND PLANS`

TheCommitteeacknowledgethatgoingforwardthecharitywillhavetoworkhardertosecureagoodannual income.
Thismayinvolveexploringothersourcesofincomesuchascorporatesponsorshipsandgrants.Thecommittee discussed
thepossibilityofseekingexternaladviceonputtingtogetherafundraisingstrategyforthecharity.However,we are
awarethatputtingsuchastrategyintopracticemaybechallenginggiventhatwerelyheavilyonsuchasmallgroup of
volunteers.Weacknowledgethatagreatcontributionismadebyourcommitteevolunteersandwearegratefulfor the
manyhourstheyhavespentsharingtheirskills,knowledgeandexperience.Withoutthisvaluablecontribution,we would
nothavebeenabletoachievesomuchthisyear.However,likemostcharities,wemustactivelymakeprovisionto recruit
new Committee members to support the few we have currently.

`STRUCTURE, GOVERNANCE AND MANAGEMENT`

`Governing document`

The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.

`Recruitment and appointment of new trustees`

ElectionfrommembersatAGMon3Yearrotation,1/3rdresigninginturneachyear,whoaretheneligiblefor re-election
at our AGM usually held at our Family Weekend usually in May.

Trusteesgivetheirtimevoluntarilyandgenerallyreceivenoremunerationorotherbenefits.However,asa temporary
emergencymeasure,LeisaBatkin,ourChairandTrusteereceivesasmallsumpermonthtosecuretimeforthe vital
workshedoesforthecharity.ThiswillbereviewedasandwhennewCommitteemembersarerecruitedand the
workload is reduced for the few committee members we currently have.

Page 3

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 DECEMBER 2020`

`STRUCTURE, GOVERNANCE AND MANAGEMENT Committee Roles and Responsibilities`

Unfortunately,thisyearsawtwomorecommitteemembersstepdownasTrustees.Thiseffectivelyleavesuswith four
activecommitteemembersandonehonorarymember.Likemanyothercharities,westruggletofindvolunteerswho are
willingtocommittheirtimeandskillstoourcause.Naturally,thisputsevenmorepressureonourexisting volunteers
whoalreadyworktirelesslytosupportthecharity.Werecognisethatthissituationisnotsustainablesonextyearitis our
primary goal to recruit new volunteers onto the Committee.

WecontinuedtofundLeisaBatkin,ourmostmedicallyqualifiedandexperiencedcommitteemember(andChair),on a
'consultancybasis'forasetnumberofhoursperweek.ThisensuresthatLeisacandedicateherprecioustime to
supportingourvolunteercommitteeuntilsuchatimethatwecouldrecruitmorenewmembers.This temporary
arrangementhasprovedtobeahugesuccessandweareextremelyverygratefultoLeisaforher continued
commitment.

`Risk management`

Thetrusteeshaveadutytoidentifyandreviewtheriskstowhichthecharityisexposedandtoensure appropriate
controls are in place to provide reasonable assurance against fraud and error.

`REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number`

`Principal address`

71-73 Main Street
Palterton
Chesterfield
Derbyshire
S44 6UR

`Trustees`

J Whitaker
L Batkin
P Redmond
M D Winter (resigned 17.5.20)
H S Till
J Hubbard
L Watson (resigned 1.2.20)

`Independent Examiner`

Ashdown Hurrey Auditors Limited
Statutory Auditors
20 Havelock Road
Hastings
East Sussex
TN34 1BP

`PUBLIC BENEFIT`

InlinewiththeCharityCommission'sguidanceonpublicbenefit,thecharityregularlyreviewsitsobjects and
achievementsinordertoensurethattheguidelinesarecompliedwith.Followingthecessationofthecoursesat Preston
CollegethetrusteesareinconsultationwiththeCharityCommissioninordertoensurethatfundscontinuetobeused in
accordance with the charity's objectives and the Commission's guidelines.

Approved by order of the board of trustees on 29 October 2021 and signed on its behalf by:

P Redmond - Trustee

Page 4

`INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK`

`Independent examiner's report to the trustees of Diamond Blackfan Anaemia Support Group UK`

IreporttothecharitytrusteesonmyexaminationoftheaccountsofDiamondBlackfanAnaemiaSupportGroupUK (the
Trust) for the year ended 31 December 2020.

`Responsibilities and basis of report`

AsthecharitytrusteesoftheTrustyouareresponsibleforthepreparationoftheaccountsinaccordancewith the
requirements of the Charities Act 2011 ('the Act').

IreportinrespectofmyexaminationoftheTrust'saccountscarriedoutundersection145oftheActandincarrying out
myexaminationIhavefollowedallapplicableDirectionsgivenbytheCharityCommissionundersection145(5)(b)of the
Act.

`Independent examiner's statement`

Ihavecompletedmyexamination.Iconfirmthatnomaterialmattershavecometomyattentioninconnectionwith the
examination giving me cause to believe that in any material respect:

1. accounting records were not kept in respect of the Trust as required by section 130 of the Act; or

2. the accounts do not accord with those records; or

3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

Ihavenoconcernsandhavecomeacrossnoothermattersinconnectionwiththeexaminationtowhichattention should
be drawn in this report in order to enable a proper understanding of the accounts to be reached.

S R Sampson FCA FCIE DChA
Ashdown Hurrey Auditors Limited
Statutory Auditors
20 Havelock Road
Hastings
East Sussex
TN34 1BP

29 October 2021

Page 5

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2020`

		`31.12.20`	`31.12.19`
		`Unrestricted`	`Total`
		`fund`	`funds`
	`Notes`	`£`	`£`
`INCOME AND ENDOWMENTS FROM`
`Donations and legacies`		`70,360`	`65,911`
`Other trading activities`	`3`	`8,532`	`5,850`
`Investment income`	`4`	`84`	`231`
`Total`		`78,976`	`71,992`
`EXPENDITURE ON`
`Raising funds`		`1,006`	`5,452`
`Other`		`75,729`	`114,066`
`Total`		`76,735`	`119,518`
`NET INCOME/(EXPENDITURE)`		`2,241`	`(47,526)`
`RECONCILIATION OF FUNDS`
`Total funds brought forward`		`85,253`	`132,779`
`TOTAL FUNDS CARRIED FORWARD`		`87,494`	`85,253`

The notes form part of these financial statements

Page 6

`DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK`

`BALANCE SHEET 31 DECEMBER 2020`

		`31.12.20`	`31.12.19`
		`Unrestricted`	`Total`
		`fund`	`funds`
	`Notes`	`£`	`£`
`CURRENT ASSETS`
`Cash at bank`		`88,334`	`86,003`
`CREDITORS`
`Amounts falling due within one year`	`8`	`(840)`	`(750)`
`NET CURRENT ASSETS`		`87,494`	`85,253`
`TOTAL ASSETS LESS CURRENT LIABILITIES`		`87,494`	`85,253`
`NET ASSETS`		`87,494`	`85,253`
`FUNDS`	`9`
`Unrestricted funds`		`87,494`	`85,253`
`TOTAL FUNDS`		`87,494`	`85,253`

ThefinancialstatementswereapprovedbytheBoardofTrusteesandauthorisedforissueon29October2021and were
signed on its behalf by:

P Redmond - Trustee

L Batkin - Trustee

H S Till - Trustee

The notes form part of these financial statements

Page 7

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2020`

`1. STATUTORY INFORMATION`

DiamondBlackfanAnaemiaSupportGroupisanunincorporatedcharity,registeredinEngland&Wales. The
charity's registered number and principal address can be found in the Report of the Trustees.

`2. ACCOUNTING POLICIES`

`Basis of preparing the financial statements`

Thefinancialstatementsofthecharity,whichisapublicbenefitentityunderFRS102,havebeenprepared in
accordancewiththeCharitiesSORP(FRS102)'AccountingandReportingbyCharities:Statement of
RecommendedPracticeapplicabletocharitiespreparingtheiraccountsinaccordancewiththeFinancial Reporting
StandardapplicableintheUKandRepublicofIreland(FRS102)(effective1January2019)',Financial Reporting
Standard102'TheFinancialReportingStandardapplicableintheUKandRepublicofIreland'andthe Charities
Act 2011. The financial statements have been prepared under the historical cost convention.

Inpreparingthefinancialstatements,thetrusteesarerequiredtomakeanassessmentoftheabilityof the
charitytocontinueasagoingconcern.Thetrusteeshaveconsideredallavailableevidencefortheycharity which
coversthe12monthperiodfromthedateofsigningthesefinancialstatements.Againstthebackdropof the
COVID-19Pandemicthetrusteeshavepaidparticularattentiontolikelycashflowrequirementsandthe future
availability of adequate cashflow to the charity.

Onthebasisofthisconsideration,thetrusteesaresatisfiedthatthecharityhasadequateresourcesto continue
inoperationalexistenceandtomeetitsliabilitiesastheyfallduefortheforeseeablefuture.Inreaching this
conclusiontheyconsiderthatnomaterialuncertaintyexists.Asaresult,thetrusteeshaveconcludedthat it
remains appropriate to adopt a going concern basis of preparation in these financial statements.

`Income`

AllincomeisrecognisedintheStatementofFinancialActivitiesoncethecharityhasentitlementtothefunds,it is
probable that the income will be received and the amount can be measured reliably.

`Expenditure`

Liabilitiesarerecognisedasexpenditureassoonasthereisalegalorconstructiveobligationcommitting the
charitytothatexpenditure,itisprobablethatatransferofeconomicbenefitswillberequiredinsettlement and
theamountoftheobligationcanbemeasuredreliably.Expenditureisaccountedforonanaccrualsbasisand has
beenclassifiedunderheadingsthataggregateallcostrelatedtothecategory.Wherecostscannotbe directly
attributedtoparticularheadingstheyhavebeenallocatedtoactivitiesonabasisconsistentwiththeuse of
resources.

`Taxation`

The charity is exempt from tax on its charitable activities.

`Fund accounting`

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restrictedfundscanonlybeusedforparticularrestrictedpurposeswithintheobjectsofthecharity. Restrictions
arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

continued...

Page 8

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020`

`3. OTHER TRADING ACTIVITIES`

		`31.12.20`	`31.12.19`
		`£`	`£`
	`Fundraising events`	`8,532`	`5,850`
`4.`	`INVESTMENT INCOME`
		`31.12.20`	`31.12.19`
		`£`	`£`
	`Deposit account interest`	`84`	`231`

`5. INDEPENDENT EXAMINERS' REMUNERATION`

	`31.12.20`	`31.12.19`
	`£`	`£`

`Fees payable to the charity's independent examiners for the independent` `examination of the charity's financial statements`	`840`	`750`

`6. TRUSTEES' REMUNERATION AND BENEFITS`

DuringtheyearTrustee;LBatkinwasremuneratedforconsultancyservicestotalling£4,800(2019:£2,900). This
ispermittedinaccordancewitharesolutiondated9July2019updatingtheTrusteeBenefitClausein the
Charity's Governing Document which was approved by the Charity Commission.

`Trustees' expenses`

Expenses totalling £489 were paid to one Trustee during the year in relation to travel expenses.

`7. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES`

	`Unrestricted`
	`fund`
	`£`
`INCOME AND ENDOWMENTS FROM`
`Donations and legacies`	`65,911`
`Other trading activities`	`5,850`
`Investment income`	`231`
`Total`	`71,992`
`EXPENDITURE ON`
`Raising funds`	`5,452`
`Other`	`114,066`
`Total`	`119,518`
`NET INCOME/(EXPENDITURE)`	`(47,526)`
`RECONCILIATION OF FUNDS`
`Total funds brought forward`	`132,779`
`TOTAL FUNDS CARRIED FORWARD`	`85,253`

continued...

Page 9

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020`

`8. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR`

Other creditors
MOVEMENT IN FUNDS
At 1.1.20
£
Unrestricted funds
General fund
85,253
TOTAL FUNDS
85,253
Net movement in funds, included in the above are as follows:
Incoming
resources
£
Unrestricted funds
General fund
78,976
TOTAL FUNDS
78,976
Comparatives for movement in funds
At 1.1.19
£
Unrestricted funds
General fund
132,779
TOTAL FUNDS
132,779
Comparative net movement in funds, included in the above are as follows:
Incoming
resources
£
Unrestricted funds
General fund
71,992
TOTAL FUNDS
71,992 31.12.20
31.12.19
£
£
840
750
Net
movement
At
in funds
31.12.20
£
£
2,241
87,494
2,241
87,494
Resources
Movement
expended
in funds
£
£
(76,735)
2,241
(76,735)
2,241
Net
movement
At
in funds
31.12.19
£
£
(47,526)
85,253
(47,526)
85,253
Resources
Movement
expended
in funds
£
£
(119,518)
(47,526)
(119,518)
(47,526)

`9. MOVEMENT IN FUNDS`

continued...

Page 10

DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP
UK

`NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 DECEMBER 2020`

`9. MOVEMENT IN FUNDS - continued`

A current year 12 months and prior year 12 months combined position is as follows:

		`Net`
		`movement`	`At`
	`At 1.1.19`	`in funds`	`31.12.20`
	`£`	`£`	`£`
`Unrestricted funds`
`General fund`	`132,779`	`(45,285)`	`87,494`
`TOTAL FUNDS`	`132,779`	`(45,285)`	`87,494`

Acurrentyear12monthsandprioryear12monthscombinednetmovementinfunds,includedintheabove are
as follows:

	`Incoming`	`Resources`	`Movement`
	`resources`	`expended`	`in funds`
	`£`	`£`	`£`
`Unrestricted funds`
`General fund`	`150,968`	`(196,253)`	`(45,285)`
`TOTAL FUNDS`	`150,968`	`(196,253)`	`(45,285)`

`10. RELATED PARTY DISCLOSURES`

Transactions with Trustees during the year are summarised in note 6.

Page 11