# THE LOWE SYNDROME TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1081241
- **Other names:** LOWE SYNDROME TRUST, LST
- **Status:** Registered
- **Legal form:** Other
- **Registered:** June 23, 2000
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1081241


## Contact

- **Address:** Lowe Syndrome Trust, 673 Finchley Road, LONDON
- **Postcode:** NW2 2JP
- **Phone:** 07958444020
- **Email:** info@lowetrust.com
- **Website:** www.lowetrust.org.uk



## Activities

**Objects:** TO EDUCATE THE PUBLIC IN ALL MATTERS RELATING TO THE LOWE SYNDROME, TO PROMOTE RESEARCH INTO ALL ITS CAUSES AND TREATMENT AND TO DISSEMINATE THE RESULTS OF SUCH RESEARCH.

**Activities:** TO RAISE AWARENESS OF LOWE SYNDROME, HELP FAMILIES INCLUSIVENESS AND TO STIMULATE GLOBAL  MEDICAL RESEARCH FOR BETTER TREATMENT.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, The General Public/mankind



## Areas of operation

- Italy
- United States
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| June 30, 2025 | £19707 | £49414 | — | — |
| June 30, 2024 | £38104 | £28794 | — | — |
| June 30, 2023 | £3860 | £67150 | — | — |
| June 30, 2022 | £18566 | £69554 | — | — |
| June 30, 2021 | £57582 | £56722 | — | — |



## Trustees

- Anastacia Lanzara — appointed Feb. 23, 2024
- Dr Joseph Laycock — appointed July 1, 2016
- Micheal Fennings — appointed Feb. 23, 2024