# THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS

## Details

- **Country:** England & Wales
- **Charity number:** 1079504
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Feb. 23, 2000
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1079504


## Contact

- **Address:** Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, ENGLAND
- **Postcode:** NN3 6BJ
- **Phone:** +1-647-203-2117
- **Email:** alliance@als-mnd.org
- **Website:** www.alsmndalliance.org



## Activities

**Objects:** 1) FOR THE RELIEF OF PERSONS WORLDWIDE WHO ARE OR WHO ARE SUSPECTED OF BEING AFFECTED BY AMYOTROPHIC LATERAL SCLEROSIS (ALS)/ MOTOR NEURONE DISEASE (MND) AND ASSOCIATED CONDITIONS; AND2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN MATTERS RELATING TO ALS/MND

**Activities:** The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world.  Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Charities Or Voluntary Bodies, Other Defined Groups



## Areas of operation

- Argentina
- Belgium
- Canada
- China
- Colombia
- Croatia
- France
- Germany
- Iceland
- India
- Ireland
- Israel
- Netherlands
- Russia
- Scotland
- South Africa
- Spain
- United States
- Northamptonshire



## Finances

| Period end | Income | Expenditure | Assets | Employees | Accounts |
|---|---|---|---|---|---|
| June 30, 2025 | £699821 | £737463 | £75337 | 0 | [PDF](https://files.opencharities.uk/ew/1079504/2025-06-30-accounts.pdf) (464.0 KB) |
| June 30, 2024 | £595025 | £693541 | £112978 | 1 | [PDF](https://files.opencharities.uk/ew/1079504/2024-06-30-accounts.pdf) (541.3 KB) |
| June 30, 2023 | £633871 | £585958 | £211494 | 1 | [PDF](https://files.opencharities.uk/ew/1079504/2023-06-30-accounts.pdf) (7.1 MB) |
| June 30, 2022 | £374814 | £345565 | — | — | [PDF](https://files.opencharities.uk/ew/1079504/2022-06-30-accounts.pdf) (414.6 KB) |
| June 30, 2021 | £164202 | £228139 | — | — | [PDF](https://files.opencharities.uk/ew/1079504/2021-06-30-accounts.pdf) (1.1 MB) |




## Trustees

| Name | Role | Appointed |
|---|---|---|
| Clare Sullivan |  | Jan. 1, 2025 |
| Evy Reviers |  | Jan. 1, 2025 |
| Jennifer Bedford |  | Jan. 1, 2025 |
| Jennifer Hjelle |  | Nov. 29, 2025 |
| Marcela Santos |  | Nov. 19, 2020 |
| Mary Ellen Bench |  | Jan. 1, 2025 |
| Nina Riffath Barakzai |  | Jan. 28, 2026 |
| Pablo Aquino |  | Nov. 29, 2025 |
| Riccardo Zuccarino |  | Jan. 1, 2025 |
| Tammy Moore |  | Dec. 1, 2023 |
| Valeria Gerbino |  | Nov. 29, 2025 |
| Yohei Yomada |  | Nov. 29, 2022 |