# PROTEUS SYNDROME FOUNDATION UK

## Details

- **Country:** England & Wales
- **Charity number:** 1077796
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Oct. 14, 1999
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1077796


## Contact

- **Address:** 2 watermill close, Bexhill, East Sussex
- **Postcode:** TN39 5EJ
- **Phone:** 07740 085919
- **Email:** traceywhitewoodneal@yahoo.co.uk
- **Website:** www.proteus-syndrome.org



## Activities

**Objects:** 1) THE RELIEF OF PERSONS WITH PROTEUS SYNDROME AND THE RELIEF OF THEIR FAMILIES AND CARERS.2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF PROTEUS SYNDROME.3) THE PROMOTION OF RESEARCH INTO THE CAUSE AND TREATMENT OF PROTEUS SYNDROME ENSURING THAT USEFUL RESULTS ARE PUBLISHED.

**Activities:** The relief of persons with Proteus Syndrome and the relief of their families and carers.  The advancement of the education of the public in the subject of proteus syndrome.  The promotion of research in to the cause and treatment of Proteus Syndrome ensuring that useful results are published

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| July 31, 2025 | £7448 | £15496 | — | — |
| July 31, 2024 | £9229 | £570 | — | — |
| July 31, 2023 | £2782 | £479 | — | — |
| July 31, 2022 | £3317 | £2062 | — | — |
| July 31, 2021 | £3016 | £2540 | — | — |



## Trustees

- AMANDA SUMMERS — appointed May 8, 2012
- DEBRA LYNN MILTON
- TRACEY WHITEWOOD-NEAL — appointed Oct. 14, 1999