# ALSTROM SYNDROME UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1071196
- **Other names:** AS UK
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [03557191](https://find-and-update.company-information.service.gov.uk/company/03557191)
- **Registered:** Aug. 25, 1998
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1071196


## Contact

- **Address:** The Rectory, Barnstaple Hill, Swimbridge, BARNSTAPLE, Devon
- **Postcode:** EX32 0PH
- **Phone:** 07980 122404
- **Email:** steve.scoffield@alstrom.org.uk
- **Website:** www.alstrom.org.uk



## Activities

**Objects:** 1. To promote the health and wellbeing of people with Alstr?m Syndrome - particularly (but not exclusively) through the provision of awareness raising, support, advice and information for people living with Alstr?m Syndrome, their families, carers and those working with them. 2. To promote research into Alstr?m Syndrome and related conditions in the UK and abroad and disseminate the results to the public.

**Activities:** Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman&#x27;s and Children&#x27;s Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.




## Classification

- **How:** Provides Human Resources, Provides Buildings/facilities/open Space, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Sharon Bates** | Chair | Nov. 2, 2019 |
| Alexandra Rayson Line |  | April 1, 2024 |
| Alisha Sadique |  | Oct. 15, 2025 |
| Carol Prescott |  | March 9, 2022 |
| Haris Hamid |  | March 9, 2022 |
| JANE ELIZABETH Biglin |  | July 18, 2022 |
| Mathilde Victoria Yates |  | July 18, 2022 |
| Prof. Timothy Barrett |  | Nov. 2, 2019 |
| TREVOR PARKIN |  | June 21, 2023 |
| Tarekegn Hiwot |  | Nov. 23, 2023 |




