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2021-03-31-accounts

Trustees’ Annual Report and unaudited financial statements for the year ended 31 March 2021

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Status: Company Limited by Guarantee No.03542195 Charity Registration No.1069607 The Company's governing document is its Memorandum and Articles of Association dated 7 April 1998

Registered Office: 7 Bell Yard, London WC2A 2JR The Company does not have a separate principal office. Trustees: John Dunster (Chairperson) - appointed 27 March 2019 Simon Parker - resigned 8th October 2021 Natalie Ambersley - appointed 16th February 2017 Lisa Frontino - appointed 8 February 2020 Denise Oduntan - appointed 8 February 2020 Catherine Davidson - appointed 17 December 2020 Dale Beirmann - appointed 20th November 2021 Emily Murfin - appointed 20th November 2021 Alexandre Schneider - appointed 20th November 2021 Independent examiner: Shruti Soni FCCA FCIE Shruti Soni Ltd 117A St Johns Hill Sevenoaks TN13 3PE Bankers: Lloyds Bank Plc 25 Gresham Street London EC2V 7HN Unity Trust Bank Plc Nine Brindley Place Birmingham B1 2HB

The trustees present their report and the financial statements for the year ended 31 March 2021. This is also a Directors’ Report required by s.417 of the Companies Act 2006 and all trustees are directors.

This Trustees’ Report and the associated Financial Statements have been prepared in accordance

with guidance for preparing Charity Accounts and Reports presented in “Accounting and Reporting by Charities: Statement of Recommended Practice” and are therefore in accordance with the Charities SORP (FRS 102) – Second edition October 2019 – Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019) together with The Companies Act 2006 .

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Contents

Introduction

Introduction
Overview 4
A word from the Chairperson of The Vitiligo Society 6
The Society’s achievements and activities, from
1st April 2020 to 31st March 2021 8
Financial review 16
Financial policies 17
Independent Examiner’s report & financial statements 19
Statement of financial activities
Balance sheet
Notes to the financial statements

The Vitiligo Society has complied with its duty to have due regard to the guidance on public benefit published by the Charity Commission in exercising its powers or duties.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

Overview

Who we are

The Vitiligo Society was established in 1985 as the London Vitiligo Group and on 13 January 1986 was officially registered as a charity. The charity later changed its name to the Vitiligo Group before becoming The Vitiligo Society in 1990. The Vitiligo Society was incorporated on 7 April 1998 as a company limited by guarantee.

The Vitiligo Society is a national charity headquartered in London, and supports those living with vitiligo across the UK. As an organisation, we are proud of our long heritage and our continued commitment to improve the lives of those diagnosed with vitiligo.

Vitiligo, also called ‘leucoderma’, is a long-term skin condition that causes an area of the skin to lose its colour (pigmentation), which results in the area looking white or pink in appearance. Because pigment cells give colour to hair as well as skin, some people with vitiligo may notice early onset greying of the hair or a loss of colour on the lips.

Vitiligo affects 1-2% of the world’s population. There is no prejudice in terms of who can develop the condition. Therefore, it can affect anyone, whatever their skin colour or ethnic origin, but will be more visually prominent in those with darker skin.

Vitiligo is not life-threatening and for some, embracing their new life with vitiligo is not a problem. That being said, often people find that vitiligo negatively impacts their quality of life and self-esteem. We are a charity that delivers services to support all aspects of living with vitiligo, both physically and emotionally.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

The Society’s mission

Our mission is to beat vitiligo by eradicating the psychological, social and physical effects on people’s lives and by finding effective treatments and a cure.

The Society’s vision

Our vision is to provide information, tools, strategies and action to help people overcome the physical, psychological and social impact that vitiligo has on their lives.

The Society’s priorities:

Our values:

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

A word from the Chairperson of The Vitiligo Society

Another step forward for the Society

This year represents another step forward for The Vitiligo Society, which has all been possible thanks to the vision and achievements of our former trustee and Chairperson, Simon Parker.

Simon led the modernisation of the charity, achieved through a radical digital transformation, reduction of operating costs and associated increase of income. This gave us stability and certainty in a sector where that was in very short supply during the Covid-19 pandemic, and has set the charity up for a period of exciting growth. Most importantly, all of this is enabling us to have even more of an impact for the vitiligo community and better support our members and their families.

John Dunster , Chairperson of The Vitiligo Society

This year has seen us hire our first Charity Director, Abigail Hurrell, who has been driving forward our strategy and daily operations since January 2021. This is a key milestone for the Society and has also allowed our volunteer Board of Trustees to take a step back from the operational running of the charity.

With Abbie's leadership, our volunteer base has grown exponentially, which has been a key enabler for delivering our valued digital support services to members. We have many exciting new projects and partnerships on the horizon for the coming year and I am thrilled to be leading the charity at what feels like a real 'moment in time' for us.

Lastly, I'd just like to take this opportunity to thank all of our fantastic volunteers, donors, fundraisers, members and trustees for their amazing support. Without you, none of this would be possible. Thank you.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

VITILIGO )OCIETY EST 1985

The Society’s achievements and activities, from 1st April 2020 to 31st March 2021

OUR YEAR IN NUMBERS

We welcomed 81 new members, bringing our total membership to 786

Our website provided information to 72,197 users

We shared over 150 updates on social media, reaching over 100,000 people and gaining over 600 new followers.

We had over 100 people register for our annual Summit event

We answered 138 of your questions through our Contact Form, with the help of our team of Dermatologists

We shared results from 4 new research papers, and provided our community with 4 research participation opportunities

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

DELIVERING UP-TO-DATE ACCURATE INFORMATION ON VITILIGO

A key objective for our Society is to deliver up-to-date information on vitiligo to our community and the medical and research community. We are UK based and the experts on vitiligo in the UK. We also recognise the part we need to play interacting with organisations around the globe, within our role as the UK vitiligo community representatives.

Maintaining up-to-date digital platforms (website)

Our website vitiligosociety.org continues to be our main hub of information, resources and signposting. Whilst the bulk of the work on this site was completed in the previous financial year, we continue to update information by uploading news articles, VitLife articles and additional information pages relating to our newly produced Patient Leaflet and our Medical and Scientific Panel.

In total we published 9 news articles on our website, and introduced our new service - a vitiligo news roundup , where we circulate information on new research, treatments and events to members every two months. This complements our existing communication The VitLife roundup well, and ensures we are communicating with our community every month.

Maintaining up-to-date digital platforms (social media)

We have focused on growing our reach through our social media presence; this year showed growth across all our platforms as follows:

Partnership work

We were delighted to establish some new working partnerships including joining the patient support group forum provided by the Global Vitiligo Foundation . As the only international representative from the UK, we will use these networks to learn and share developments, news and help our community understand how developments from around the world impact treatment and research in the UK.

We also reached out to Vitiligo Support UK a small, growing facebook community support group. We are looking forward to working in collaboration with them to help support our community together.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

INFORMING ON AND CONTRIBUTING TO THE LATEST RESEARCH

Whilst we want to support everyone with vitiligo to feel confident in their own skin, we know that vitiligo is a health condition and we should always be striving to find a cure. This will only come from us contributing to and informing on the latest research.

Strengthening our relationships with research organisations

This year saw us establish key new relationships with Pfizer UK and the National Institute for Health and Care Excellence. We are excited to be collaborating with these new partners and bringing the patient voice to their research activities. We remain active members of the All Party Parliamentary Group on Skin (APPGS), Dermatology Council of England (DCE) and British Association of Dermatologists (BAD).

Provide information on current and pipeline research

Over the past year we shared 4 new vitiligo research study reports with our community via social media and news roundups. We recognise not only the importance of sharing reports, but also helping our community to understand the impact of research and what it means to them.

Facilitate patient and public involvement in research

We continue to use our platform to identify participants for research opportunities. We found participants to support psychological and social PHD research activities, and to support the shaping of future medical research. We have shared these opportunities working in collaboration with NICE, UWE, University of Sheffield and the British Association of Dermatologists.

Grow and develop MaSAP

This year we re-established our Medical and Scientific Advisory Panel. Panelists have been helping us by responding to medical enquiries from our community, writing articles for our magazine, participating in our events and spreading awareness of our work through their networks.

Hosted our first online summit event

On Friday 11th December 2020, we hosted our first ever virtual summit. The event saw three incredible speakers present on the latest developments in relation to vitiligo: Dr John Harris, Dr Viktoria Eleftheriadou and Dr Alia Ahmed.

Funding research - Stigma scale work

At the end of 2020 we were approached by the Vitiligo Clinic at St John’s institute of Dermatology, led by Dr John Ferguson, requesting funding assistance for a new research study. The research explores explanations as to why people with vitiligo experience poor health-related quality of life and distress. In particular in regard to illness perceptions and stigma. It is hoped that the study will help shape the support that vitiligo patients have have access to.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

DEVELOPING OUR SUPPORT SERVICES

Our support service development is an exciting new area of work for us. Whilst we have always been here to respond to member enquiries and host an annual AGM event, we want to do more to proactively support our community and find ways to bring people together to share information and support one another.

Membership app

We were delighted to receive funding from the BAD to develop a new membership app. This initiative, driven by Simon Parker, will bring an easier way for our members to access information about vitiligo and connect with our charity and work.

Contact & voicemail service

The voicemail service and enquiry form continue to be used by our community to reach us, request information and ask questions. We are fortunate that we have support from dermatologists to help answer these queries and we have spent the second half of the year developing template responses and FAQs to help us manage the volume of enquiries we receive.

Parent Support Network

The Society trustees are working together to re-launch the historic parent support network, with the launch date planned for April 2021. Our vision for the group is twofold: to provide support for those who have questions or concerns relating to vitiligo; and to create a space where parents can feel supported and listened to, whilst being able to ask questions and feel reassured in an environment where you may share common concerns.

The VitLife

The VitLife continues to be a source of inspiration and storytelling for our community. We try to provide a couple of new articles and content every month, with information ranging from stories, research and treatment, lifestyle and community..

eBook written and launched to members

We were thrilled to complete work on our new eBook this year, ‘The Definitive Guide to Vitiligo’. The book took 18 months to complete, and involved us collating all the most relevant and up-to-date information on vitiligo in one free resource. We’ll be launching the guide to the public early next year.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

BUILDING A STRONG VOICE FOR OUR COMMUNITY

An important part of our work is providing a voice and advocacy for our community. In order to do this we recognised that we first needed to strengthen our Society internally by reviewing our governance and building internal capacity. We also acknowledge the importance of creating a strong brand and messaging that represents our community and our voice as a united collective.

Strengthen our governance

This year we completed a policy review, and submitted new policies for approval to the Board to help reinforce our safeguarding and financial procedures. We also agreed a stance on the use of animal testing in research.

Strengthen our brand

We started work on building the Society Values and Messaging which we link back to a photoshoot carried out with volunteers in 2018. We are looking to expand our picture library and are planning to schedule another photoshoot next year with the hope to include a more diverse age range of models.

Develop and distribute educational resources

Updating our patient leaflet was a priority for us this year. Good patient information ensures that anyone who has just received a diagnosis of vitiligo is prepared and fully aware of the next steps of their treatment pathway. Many people experience feelings of anxiety and worry about their new condition, its treatment or its effects on appearance, and it can be difficult to retain information and decided which data is reliable when faced with a plethora of online resources.

The patient leaflet we released this year provides clear written information that a patient can go back to re-read, as well as introducing our community and contact information, so no one needs to go through a vitiligo diagnosis alone.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

REACHING ALL THE PEOPLE WHO NEED US

A key challenge for our Society is how we reach all the people who need us. Our transition to a digital-first organisation is the start of this journey, but there is so much work we still need to do.

Legacy programme

We recognise the importance of all our supporters, especially those who have been with us for years and for whom our digital work may not feel relevant. We continue to keep in contact with members who are not online, and we ensure that there are a number of different routes through which people can access our information, advice and services. Legacy donations play a vital role in bringing much needed income into our charity, and we are sensitive to the fact that we need to remain relevant to all our supporters, regardless of age or technical ability. We also need to develop better pathways to create a larger culture of legacy giving from our supporters.

Grants and Investments

We were successful in a small lottery grant, securing £7,800 for staffing and marketing costs in 2021-22. This will really help contribute to our organisation and allow us to invest in project work next year. This comes in addition to the grant we received for App work from the BAD.

Community Fundraising

The fundraising pack continues to be worked on and is approaching sign-off. We hope to have this piece of work completed by the end of April 2021. In addition we signed up to Amazon Smile and can now receive facebook donations - giving people a new way to support us.

Online Shop

The online shop has been worked on for the past year and is almost ready to launch. Work is still required to finalise payment setup and to test the customer experience of the purchase process. Once feedback in analysed from this work we will be able to launch the service.

Growing our membership

We have commissioned a second phase of work with KickPoint to work with us to improve our SEO, Ad grant management and help launch our e-book campaign.

Registered with the Fundraising Regulator

We took the decision to register with the UK Fundraising Regulator to ensure that donors feel confident in supporting us, and in our ability to protect their information and contribution to our work.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

TEAM CHANGES

Simon Parker , Chairperson and Trustee for the Society resigned in October 2021 after over 5 years of service. We’d like to thank Simon for volunteering his time and leading the Society.

We wish Simon all the best in his future endeavours.

We were also delighted to welcome Denise, Lisa and Catherine to the Board of Trustees.

Denise Oduntan joined the Society in 2019 and then joined our board with the hope of raising awareness of vitiligo and getting more families the support they need when they are affected by vitiligo.

Denise brings experience and qualifications in economics, procurement and finance management.

Lisa Frontino joined the Society in 2020 with an aim to raise more awareness about the condition and provide support to people and especially young children with vitiligo.

Lisa is a governance professional with experience working for commercial as well as charitable organisations.

Catherine Davidson has been a member of the society for a number of years. She was diagnosed with vitiligo as a student and is keen to provide support and advice to people living with vitiligo.

Catherine brings over 20 years of experience in government relations, predominantly in the financial services sector.

Abbie Hurrell joined the Society as the only staff member in January 2021. The Charity Director role is a new part-time role for the Society, responsible for leading on the development and delivery of the charity’s strategy.

Abbie brings with her 10 years experience of working in charities and community development. She also works as an Investment Manager.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

VITILIGO SOCIETY EST 1985

Financial review

Total income for the year was £115,170 , up 102 % as compared to the previous year £56,877. This increase is due to a grant valued at £75,700 received as a donation in kind of free search engine advertising in the form of Google AdGrants. We observed a 126% increase in donations which are one-off in nature and subject to large swings across financial years. Memberships (Subscriptions), the charity’s largest source of income, were up 10% . However, we expect both Memberships(Subscriptions) and one-off donations to steadily increase over the next 5-years due to investments that we have made in member-facing services.

Total expenses were £115,638 , up 24 % on the previous year £93,299, driven primarily by increased investment in the Society’s digital services, staff costs and Fundraising & Publicity (which includes the expenditure of £75,700 for the Google AdGrants). See note 5 of the financial statements for further details.

The Vitiligo Society generated a net loss, termed “Net Expenditure” in the Statement of Financial Activities, of £468 in 2021. This compares to a net loss of £36,422 in 2020. This net loss was predicted as we expect an income return on a number of investment areas over the next 36 months.

The Society’s work is entirely reliant on Memberships (Subscriptions) and donations from its members, together with other donors and charitable trusts. Each year the Trustees agree to a financial budget, setting out expected income together with planned expenses. This is monitored on a regular basis and the results for the year to 31 March 2021 were in line with this budget. Net Current Assets (see the Balance Sheet as at 31st March 2021) have fallen to £59,522 from £59,990 in 2020. Out of these Net Current Assets, Cash at Bank and in hand form the vast majority, £68,438 (2020: £60,925). This is equivalent to more than two years’ worth of expenses at current levels. In line with previous years, the Society carries minimal liabilities and no loans/debt.

We recognise the investment made this year has significantly increased, which has been a deliberate strategy. This investment has gone into far improving the services we offer today (as detailed above) and ensuring we are a charity which is sustainable and can continue to serve the vitiligo community long into the future.

As always, we are extremely grateful to those paying the Memberships (Subscriptions) fee and also to those who feel able to provide donations, of whatever amount. All monies received are carefully managed and with this in mind the Trustees remain ever vigilant, making sure that our operational costs are the lowest they can pragmatically be and we will continue to do this going forward.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

Financial policies

Grant policy

The Society, occasionally awards grants to people from a variety of disciplines such as dermatology, psychology and biochemistry.

Reserves policy

The trustees believe it would be prudent to maintain the charity’s reserves to at least a sum equivalent to between six and twelve months’ operating costs currently projected to be £19,564 and £39,127 in order to ensure the charity has sufficient funds in reserve to meet its statutory and contractual obligations.

Unrestricted reserves are available, at the discretion of the Trustees, to further the general objects of the charity. The unrestricted funds available to the charity as at 31 March 2021 were £55,197 (£58,165 in 2020). This is considered sufficient to meet these objectives.

Managing risk of harm

The Trustees carry out an annual review of the major risks to which the Society is exposed and ensure that the systems and procedures established to manage the risks remain robust and fit for purpose. This year the Society dedicated considerable effort in ensuring that we would comply with GDPR legislation.

Structure, governance and management

The Governing document of the Society is the Memorandum and Articles of Association. The trustees of the charity, for the purpose of charity law, are also the directors of the company for the purposes of the Companies Act.

The Society is governed by a council of management that at all times must comprise a majority of members who have vitiligo or have partners, children or siblings with the condition. One third of the members of the council retire each year and retiring members are eligible for re-election. Decisions on behalf of the Charity are made by the directors, (known by the charity as Trustees) who meet approximately once every six weeks. Trustees are appointed on recommendation by the Board of Trustees or by election at the Annual General Meeting. All new trustees are required to demonstrate a knowledge of their responsibilities and where necessary undergo training in certain areas.

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

Going concern

The trustees are satisfied that the charity will continue to be a going concern for the foreseeable future.

Statement of Trustees' responsibilities

The trustees (who are also directors of the charitable company for the purposes of company law) are responsible for preparing the Trustees' Annual Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure of the charitable company for that period. In preparing these financial statements, the trustees are required to:

a) select suitable accounting policies and apply them consistently; b) observe the methods and principles in the Charities SORP; c) make judgments and accounting estimates that are reasonable and prudent; d) state whether applicable UK accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; e) prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in operation.

The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

This report, which has been prepared in accordance with the special provisions relating to companies subject to the small companies regime within Part 15 of the Companies Act 2006, was approved by the Board on 21st December 2021 and signed on its behalf.

Trustee: Signed:

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The Vitiligo Society Trustees' Report for the year ended 31 March 2021

VITII IGO 1985 19

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Independent
Examiner’s Report
& Financial
Statements
For the year ended
31 March 2021
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Independent Examlner's Report to the Trustees of The Vltlllgo Soclety I report on the flnanclal statements of the company for rhe year ended 31 March 2021 as set out on pages 21 to 30. Respon$lbllltles and basls of feport As the charlty'5 trustees of the Company (who are also the dlrectors of the company for the purposes of company lawl. you are re5pon5ible for the prepararlon of the accounts In accordance with the requlrements of the Companles Act 200617he 2006 Act?. Having satlsfied myself that the accounts of the Company are not required to be audited for this year under Part 16 of the 2006 Att and are ellglble for independent examination. I report In respecr of my examinatlon of your charity's account5 as carried out under section 145 of the Charities Att 2011 he 2011 Act"). In carrying out my examination. I have followed the Directions given by the Charity Commission (under section 145(5)(b) of the 2011 Aa. Independent examlnerfs statement I have completed my examination. I confirm that no material matters have come to my attention in connection with the examlnation giving me cause to believe that in any material respect.. l. accountSng records were not kept in accordance wtth sectlon 386 of the Companies Art 2006.. or 2. the accounts do not accord with such records- or 3. the accounts do not comply with relevant accounting requirements under section 396 of the Companies Act 2006 other than any requirement that the accounts give a 'rrue and fair, view which is not a matter considered as part of an independent examination,. or 4. the accounts have not been prepared in accordance with the Charities SORP {FRSI 021. I have no concerns and have come acr055 no other matters in connection with the examination to which attention should be drawn in this reporr in order to enable a proper understanding of the accounts to be reached. Shnrtl Sonl FCCA FCIE Shruti Soni Ltd • Chartered Certified Accountants 17A St Johns Hill, Sevenoaks TNI 3 3PE Date.. 21

The Vltlllgo Soclety Statement of Ilnncl•l iclmtles (incorporating an Incoffle and expendlture account) For the ar ended 31 March 2021 2021 Total Unresrrlcted Restrlcted 2020 Total Unrestrlcied Restrlcted Note Inrome from: Donation5 and legacles Chan'table attivltles 97.062 2.SOO 99.562 42,476 42,476 ReseaKh. Informatlon and Suppon Other tradin9 artlvltle5 InNsiments 15.606 15.606 14.195 158 48 14.195 158 48 Total Income 112,670 2.500 115,170 56,877 56,877 Expendlturn on.. Raising funds Charitable activltles 6.608 6.608 4.178 4.178 Research, Information and Support 109,030 709.030 89,073 48 89,121 Toul expondlture 115,638 115.638 93,251 48 93.299 Net Income l (expendlture) for the year (2.968) 2.500 (468) (36.374) (48) 136.42ZI Net movement In funds 12.9681 2,500 (468) (36.374) 148) 136.422) Recondllatlon of funds: Total fund5 brought forward 58.165 1,825 59.990 94.539 1,873 96.412 Total funds carrled forwar 55,197 4.325 59.522 58,165 1.825 59.990 All of the above results are defived from contlnulng activhies. There were other recoyni5ed gains or losses other than those stated above. Movements In funds are disclosed in Note 14 to the financial ststements.

The Vltlllgo Soclety Company no. 03542195 Balance sheet t31 M h2021 2021 2020 Note Current assets: Debtors Cash at bank and In hand io 422 68,438 60.925 68.860 61,040 Uabllltles= Creditor5= amounts falllng due wlthin one year 9.338 i.oso Net current assets l Olabllitles) 59.522 59.990 Total net assets l (Ilabllltles) 59.522 59,990 The fund5 of the charly. Restricted income funds Unrestricted income funds.. General funds 4.325 1.825 55.197 58.165 Total unrestricted funds 55.197 58.165 Total charlty funds 59.522 59,990 For the year ending 31 March 2021. the company was entltled to exemption from audit under settion 477 of the Companles Aa 2006 relating to small companies. Tn￿tee4 R￿n￿bIlItIeS. -The members have not required the company to obtain an aimlit of its financkil statements forthe year in questlon In xcordance wlth section 476 - The trustees acknowledBe thebr reSpO￿bIlIty for tomplying wrth the requirements of the Art with respert to accounting records and the preparation of financial statements. These financial ststements, whlch have been prepared in accordan￿ with the speclal provislons relating to the small companies regime within Part 15 of the Companies Act 21))6and in accordance with the Financial Rewtin8 Standard applicable In the UK and Republic of Ireland IFRS 1021 leffertive l January 20151. were approved by the Board on 21 IkL ￿￿1 drid siBned on its behatf by: Trustee Name

The Vltlllgo S(Klety Nffts tt> the flnandal rtaiernents 31 l ACt￿jntIn9 polldes The prlnclpal accountin9 pollclts are surnmadsed bel(Av. The a¢countlng pollots have been applled consistentty throughout the year and the precedlng year. a) B•s1s of weparat The financial siatements have been prepa¥ed in accordance with Accounting and Reportlng by ChadtTes.' Statement of Recommended Praaice applicable to charities prepar4ng iheir accounts In accordance with the Chartlles SOAP IFRS 7021- Second edltlon Ottober 2019 - Accouniing and Reporting by Charities.. Statement ol Recommended Practlce applicable io charities preparlng their a£counis in accordance with the Financlal Reporting Standard applicable In the UK and Republic of Ireland IFRS 1021 leffectlve l January 20191. the FlnancSal Reporting Standard appliable in the UK and Republic of Ireland IFRS 1021 and the Companles Act 2006. The accounts are presented in GBP rounded to £1. Assets and Ilabllltles are inltlally reco9nised at historical rost or tran5artion value unless otheThYlse stated in the relevant arcouniln9 pollcy or note. bl Publlc benefit entity The charitable company meets ihe definttion of a public benefit entity under FRS 102. c) Golng concern The tTVStees consider that there are no material uncertainties about the charltable companvs ab116ty to Cty)tinue a5 a golng concern. There are no key Judgements thar the charltable company has made which have a slgnrflcant effect on the accoltnis. The trustees do not consider that there are any sources of estimation uncertainty ai the reportin9 date that have a significant rlsk of causing a material adjustment to the carrying arnount5 of assets and Ilabilities within the next reportFn9 pedod. d) Incom All income included in the statement of finartoal acrivitles tthen the chartty is entitled to the income and the amount can be quayttified with reasonable accuracy. The follrywing specific policies are applied to particular categories of income". Voluntary Income is received by way of grants. donatlons and gfft5 and Is Induded In full in the stattrnent of financial aaivities when receivable. Granrs where entitlernent is not conditional on the delivery of a specific performance by the charity. are recogni5ed when the charity becomes unconditionalty entitled to the grant. Donated service5 artd facKlltles are included at the value to the charity where this can be Quantified. The value of seMces provided by volunteers has not been Included. Mefflbershlps Isubscriptionsl are credited to income for the year io which they relate. Life subscrfptions a redlted ro income in full in the year of receipt. Incorne receiwed in advance of the provision of a specified service is deferred until the crlterla for incorne recognition are met e) Donadons of glfts. seryl¢es and fadlttle5 Oonated professional services and donated facilities a￿ recognised as incoffle when the tharfjty has conirol ov the item or recel¥ed the serwce. any conditions associated with the donation have been met. the receipt of economic benefit from the vse by the charity of the item Is probable and ihat economic benefit ian be measured reliabty. In accordance ¥Ath the Charitles SORP (FR5 TOZI. volunteer tiffle is not recognlsed so refer to the trustees, annual reFKJrr for more Information about thelr contribution. On fecelpt. donated glfts. professlonal seThlcs and donated facllltles are reco9nlsod on the bas15 of the v41ue of the grft io rhe thaflty which Is the amoltnt the charlty would have been wllling to pay to obtaln sorvlces or facllffitles of equlvalent econornlc benefit on the open Ma￿tI,. a corrspondln9 amount Is then recognlsed Ih expeTrdlture In the perlod of recelpt. 24

The Vltlllgo Soclety Note5 to the flnanclal statemems I k¢wtlng Wld•s (ctyttlftu•d) f) Interest rocehbl• Interest on funds held on deposli Is Included when receivable and the amount Can be rnea5ured reliably by the charlty.. this Is normally upon noilfi(aiion of the inteiest paid or payable by the bank. gl Fund accoUn￿n9 Rostrlrted funds are io be ysed for speclflc purposes as lald down by the donor. Expendlture whlch meets these criteria Is char9ed to the fund. unre$￿tted funds art donations and other Incomlng resources received or generated for the charitable purposes. Designaied funds are unrestrlcted funds earmarked by the trustees for partlcular purposes. h) Expendjture Expendlture Is recogni5ed once there Is a le9al or con5lruct￿e obligation to make a paymenr to a thlrd party. It is probable that settlement will be required and the amount of the obllgation be measured rellably. Expenditure Is classlfied under the following activity headin95'. Fundraising Cost comprlse the costs associated with artracting voluntary incorne. Charitable expenditure comprise5 those costs Incvrred by the charity in the delivery of its activitie5 and services for its beneficiaries. It includes both cost5 that can be allocated directly to such actlvities and those costs of an indirect nature necessary to support ihem. Support costs are those cosis incurred dlrectly in support of expendfture on the objects of the charty and Include projea management. Expenditure is recognised on an accrual basis as a liability is incurred. Expendltuie Èncludes any VAT which cannot be fully recovered, and is reported as part of the expendtture to which it relates. Allocauon of support (05ts Resource5 expenijed ale allocated to the particular activity where the cost relates direttly to that artIv￿. H¢)wever. the cost of overall direction and adminisiration of each acrivity. comprising the salary and overhead Costs of the central function. 15 apportioned on the following basis which are an estimate. based on staff time, of the amount attributable to each acrivity. Charitable AttivÉiies ioox Tanglble flxed assets Items of equlpment are capitalised where the purchase préce exceeds £750. Depreciation costs are allO￿ted to actIvI￿e$ on the basis of the use of the relaied assets in those actlvttles. Assets are reviewed for impairment if drcumstances indicate their carrying ¥alue may exceed thelr net realisable valye and value in use. Depreciation is provided at rates calculated to write dThYn the c05t of eath asset to its estimated residual value over its expected useful life. The dtpreciation rates In yse are as foll￿.. Office Equlpment k) Stock5 Stocks are stated at the lower of cost and net realisable value. In general. cost Is deterrnined on a first in first out basis and includes transport and handling costs. Net reallsable value Is rhe price at which stock5 can be sold in the normal course of business after all(swing for the costs of realisation. Provision is made where n*cessary for obsolete. 51ow moving and defeatve siocks. Donated iiems of stock. held for dlstrtbution or resal¢, art fecognis¢d at fwr value which 15 the amount ihe charity would ha¥e ljeen willln9 to pay for the Items on the open market. 20% per anrtum

The Vltlllgo Soclety P4LW to tho flnandal thtements I A(￿￿￿1n9 polldes (contbnuedj n) Credltors and prO￿$l￿nI Crediiof5 and pft)vlslon5 are rtcognlsed where the charlty h45 a present ob14gatlon resulting from ¥ past event thai will probably result In ihe transfer of fund5 to a ihlrd party and tht arnoum due to settle the obllgatlon can be measured or e511mated reliably. CredIto￿ and provlslons are normally recognlsed ai ihelr settlement amount after allowlng for any trade dlscounts due. p) Tax•tlon The charlty's a(￿￿tIeS fall Tththln thè txemmlons afforded by the provlslons of the Income and Corporation Taxes Act 1988. Actordingly. there 15 no taxaion charge in these accounts. 2 Incorne from donatlons and legacles 2021 total T(Kat 2020 Total Unrestrl(ted Restrirted Donatlons - Membefs General Donations Grants and Donations - Trusts and Foundatlons Donations in Kind 6.043 6.632 8.687 75.700 6.043 9.132 8.687 75.700 3.622 6,947 2,500 31.907 97,062 2.500 99,562 42,476 Donarion In kind compri5e5 valut to The Witlllgo Society of free advert15ing the forrn of AdGrants on Google for not for profits within thelr search engine. 3 Inclxne from charltable a¢¥vlttes 2021 Totsl 2020 Total Unrestritted Restritted Researth. Infomiaiion and Supptyt Memberships (5ub5criptii)nsl 15.606 15.606 14.195 Tot￿ Income from charltable att¥￿tIeS 1 S.606 15.606 14.195 4 Incthne from other tradlng acrmtles 2021 2020 Unre5rriCted Restrlcred Great Weather Lottery 158 158

The Vltlllgo 5odety Anaty515 of oxpendltsrn Cost of raI51n9 funds Charltab a(tMtles Support cosis 2021 Tof41 5t•ff costs (Note 61 Travel & Cost of Mtttln9S Fundralslng & Publiclty Nesletter- Prlnting & posia9è Skln Deep App Deslgn Fees Merch3ndlsin9 Premlse5 Expenses WebsitelCRM Println9. Stationery & Posta9t Office Expenses Insurance Syndry Expenses & Bank Charge5 Cornputer Support & sof￿are Phone & internet Independent examination & Accountan(y Depreciation Le9al, Professlonal & Consultancy Fees 681 2,271 1.590 4,542 5.927 76.511 1.272 82.438 7.272 300 300 58 15.764 623 1.319 306 463 208 420 S8 15,764 623 1,319 306 463 208 420 1.170 1.170 6.755 6.755 6.608 96,118 12.912 12.912 {12.9121 115.638 SuP￿rt costs Trtal expendlture 2021 6.608 109.030 115.638 Fundralsing & Publidty Includes tjonation Sn kind of £75.70012020.. £31.907) which is the value to The Vitillgo Society of free advertising In the fom¥ of AIJGrants on Google for not for profits ￿thin their search engine. Cost of ising funds Charitable activitses SuppDrt Costs 2020 T￿a￿ Staff costs {Note 6) Travel & Cost of Meeiings Fundraising & Publicity Skin Deep App DesigTr Fees Merchandlsing Rent & Raies Premises Expenses WebsitelCRM Printin9. Stationery & Postage Offlce Expense5 Insurance Sundry Expenses & Bank Charges Computer Support & Softwaie Independent examination & Accountancy Legal. Professlonal & ConJyltancy Fee5 16.889 16.889 146 4,178 31.907 48 367 36.085 48 367 7.520 1,023 23,989 187 89 S30 381 74 7,520 1.023 23.989 187 89 530 381 74 1,243 3.959 1.243 3.959 4.178 73.200 15,921 (15.9211 93.299 Support costg 15.921 T￿11 empendlture 2020 4.170 89.121 93.299 01 the thtal expendllur. £1 15.638 unrestiiued 12020.. £93,251) and £NII was ￿$trIcted 12020: £48).

The Vltlllgo Soclety Notos to the fin￿￿1￿ ststements Trustee remuneratlon and expenses Staff costs were as follryws.. 2021 2020 Salarles and wages Redundancy and termlnation costs Social securlty costs Employer's contrlbutlon to deflned contrSbutlon pen51on Schemes Other forrns of employee beneflt5 4.000 10,126 6,763 249 73 220 4.542 16,889 No employee earned more than £60.000 durlng the year (2020.. nil). The charity trustee5 were not paid or received any other benefits from employment wlth the charrty in the year12020'. £nlll. No charity trustee recelved payment for professional or orher services supplied to the charity12020= £nill. No trustees were reimbursed any expenses incurred in relation to thelr dutles as trustees. Related party transartlon5 Aggregate donations from related parTles during the year were £nll 12020.. £nil>. There are no donations from related parries which are outside the normal course of the charit￿5 business and no restrirted donations from related parties. Some trustees donate back out of pocket expenses incurred. Taxatlon The charitable company is exempt from corporaiion tax as all Its income is charlrable and is applied for charitable purposes. Tanglble flxed assets Office Furnltures Equlpment & Flxtures Tthl Cost or valuatlon At the start of the year 10,010 2.200 12.210 At the end of the year io,010 2.200 12.210 Depreclatlon At the start of the year Charge for the year io.oio 2.200 72.210 At the end of the year Net book value At the end of tho ￿ar io.010 2.200 12.210 A¢ the start of rhe year All of the above assets are used for charltable purposes.

The Vltlllgo Soclety Notes to the fin￿rIal statements i O Debtors 2021 2020 Other debtors Prepayment5 125 297 115 422 115 I I Credltors: amounts falllng due wlthln one year 2021 2020 Taxation and social security Accruals Deferred income 254 1.284 7.800 I,oso 9.338 1,050 12 Deferred Income 2021 2020 Balance at the beginning of the year Amount released to income in the year Amount deferred in the year 7.800 Balance at the end of the year 7.800 13 Analys15 of net assets between fund5 General unrestricted Desi9nated Restrlrted Totsl funds Tangible fixed assets Net current assets 55.197 4.325 59.522 Net a55ets at 31 March 2020 55.197 4.325 59.522 Anatysls of net assets bet￿eTr funds General Deslgnated Restrlcttd Total funds Tanglble fixed assets Net currenr assets 58.165 1.825 59.990 Net assets at 31 March 2019 58.165 1.825 59,990

The Vltlllgo Soclety Notes to the flTranclal statements 14 Movements In funds Incomlng Outgoing At l Aprll resources & resources 2020 gains & losses At31 Transfers March 2021 Restrlrttd funds: Research Informatlon Support 1,206 210 409 1,206 210 2,909 2.500 Total restrlcted funds 1 ,825 2.500 4.325 Unrestricted funds.. Ger*eral funds 58,165 7 12.670 {115.638) 55.197 Tokl unre5trftttd funds 58.165 112.670 1115.638) 55.197 Total fvnds 59,990 115,170 1115.6381 59.522 Incoming At l Aprll resources & 2019 gains Outgoing resources & losses At31 Transfers March 2020 Restrlcttd funds.. Research Information Suppon 1.206 210 457 1.206 210 (48) Total restrlaed funds 1 ,873 1481 1.825 General funds 94.539 56.877 193,251) 58.165 Total Unre5￿cted funds 94,539 56.877 193.251) 58.16S Total funds 96.412 56,877 193.299) 59.990 Purpose5 of restrfrted funds The purpose of restrlcted fund is Research Information and support for people wlth Witlligo. 15 Legal status of the charltv The charlty Is a company Ilmlted by guarantee and has no Share capltal. The Ilabillty of each member In the event ol wlndlng up Is Ilmlred to £1.