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2020-12-31-accounts

Annual Report and Accounts for the year ending 31 December 2020

Inform Award-winning information and education resources Support Outstanding support services Connect An established lymphoma community

Company Registration No 03518755 Charity Registration (England and Wales) No 1068395 (Scotland) No SC045850

Contents

Contents
Welcome Page 3
Who we are and what we do Page 4
Our year in numbers Page 5
Our response to COVID-19 Page 6
Our objectives and achievements Page 7
A thank you to our fundraisers Page 12
Reflections and lessons learnt Page 13
Our future plans Page 14
Governance, structure and management Page 16
Public benefit Page 17
Risk assessment and management Page 19
Our approach to fundraising Page 23
Financial review Page 25
Independent auditor’s report Page 28
Reference and administrative details Page 49

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Welcome

Welcome to this year’s report on our achievements in 2020.

Looking back on 2020 brings with it a range of reflections on the impact of COVID-19. It was an incredibly difficult year for all, with people affected by lymphoma having to face new and unexpected challenges from shielding to changes in treatments.

People with blood cancer were classified as clinically extremely vulnerable to COVID-19 at the outset and have depended on us for vital COVID-19 and lymphoma-related information and support throughout.

Lymphoma Action had robust emergency plans and a strong ICT infrastructure in place, which meant, fortunately, that we were well placed to react to the evolving situation. We continued to work in a responsive way, launching new digital services and increasing the organisation’s reach and impact.

Whilst COVID-19 impacted on many areas of our work and activities, and on our income, our mission and long-term strategy still stand. Despite the challenges presented by the pandemic, which transformed how we work and how we provide services, we have stayed focused, and are particularly proud of what we were able to achieve in a year disrupted by COVID-19.

We approach 2021 with hope for better times ahead. With this year marking our 35th anniversary, we look forward to reflecting on the ways in which we have made a difference over the past 35 years.

We also want to build on all that we have learnt in 2020 and to continue to better understand the needs of our patient and supporter audiences. This is key in helping us to address the barriers that may be holding us back from engaging with all of those who need our help.

We thank everyone who helped us during a tumultuous year, including our volunteers and staff for their commitment and hard work, and our supporters for their generosity in 2020.

Gordon Johns Chair of the Board of Trustees Lymphoma Action

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Who we are and what we do

Lymphoma Action is a national charity, established in 1986, to provide high quality information, advice and support to people affected by lymphoma – the fifth most common cancer in the UK.

Our vision

Everyone affected by lymphoma will receive the best possible support, treatment and care.

Our mission

Through information, education, support and influence, we will make sure no one has to face lymphoma alone.

Our values

Our goals

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2020 - Our ear in numbers y

Information

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Information books and sheets COVID-19 & lymphoma Lymphoma Matters
printed or sent: magazine sent:
online page views:
22,937 60,275
163,423
Website users: Lymphoma TrialsLink page views:
2,042,048 17,150
Support & volunteering
Helpline service interactions: Active volunteers: Buddy links:
2,055 318 38
Online support meeting Members in closed Online support
attendees:
Facebook support group: meetings: 188
1,520
1,493
Education & training
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360 people heard the first 3 390 healthcare professionals attended 3 episodes of our podcast series online educational events 12 virtual Live Your Life events 8 live webinars viewed by a total of attended by 93 people 5,204 people

Social media

555,000 37,003 9,084 3,273 YouTube Facebook Twitter Instagram views followers followers followers Income Total income: Challenge events: Legacies: £1,722,286 £256,846 £176,114

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Our res onse to COVID-19 p

Faced with the challenges of increasing demand for services and government restrictions affecting our activities, we navigated 2020 by accelerating our digital development to provide more of our services virtually.

From online support meetings, through to webinars, podcasts and virtual events, we were able to respond to the needs of those we support by doing things differently.

Together with wonderful ‘digital’ volunteers we delivered online peer support to nearly 2,000 people through online support meetings and our closed Facebook Group, whilst also continuing conversations with those who hadn’t or couldn’t access online support.

Our website (with its COVID-specific section) continued to be the main source of information for people, supported by our Helpline Services. We also delivered high quality virtual educational events, with highlights including our Lymphoma Management Course (seeing our highest ever uptake of places) and the digital relaunch of our Live your Life programme.

Throughout the pandemic, we continued our balanced and consensus-based approach in supporting the wider messages from the NHS and the Government. We supported national campaigns like the NHS Help us to Help You Campaign and joined with NHS Wales as part of their #DistanceAware initiative. This supported people who were concerned about staying safe outside their homes when restrictions were eased.

We had regular communication with healthcare

professionals to ensure a continued sharing of information, not only around COVID19, but wider updates and developments around lymphoma.

During the pandemic it was vital that we put forward the issues that impacted on our beneficiaries to the policymakers who could address them. To do this we collaborated with others in order to be heard. This enabled us to raise questions around issues of lymphoma treatment and care; COVID-19 and blood cancer, and on the detrimental impact of the pandemic on cancer treatments and services.

2020 saw us working with our many partners including, amongst others, the Blood Cancer Alliance, the One Cancer Voice coalition of charities and Cancer52 to advocate on behalf of people affected by lymphoma for restored and better cancer services. We also collaborated on fundraising and service provision, most notably delivering a series of webinars in collaboration with other blood cancer charities.

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1.
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Our objectives and achievements

In 2020 we worked towards the delivery of our intended priorities in a way that responded to the impact of COVID-19. Here we summarise our progress against our five main goals.

1. Create the highest quality information so that people can understand their lymphoma

2020 objective Key achievements in 2020
Develop
information to
cover more of what
people need and
provide COVID-19
specific
information

Produced three editions of_Lymphoma Matters_
magazine (including a COVID-19 special edition) sent
free of charge to over 60,000 people.

Revised 5 books, with nearly 23,000 information books
and sheets printed or sent.

Developed COVID-19 specific information and a new
section on the website covering all aspects from
shielding to vaccines and featuring_One Cancer Voice_
FAQs. Total views for the year: 163,423.

Created more bereavement support and information.
Increase the impact
and extend the
reach of our
information

Focused on unmet needs within information provision
and Chaired the subgroup of the Blood Cancer Alliance
(BCA) on this.

Commenced our work on the impact of health
inequalities on lymphoma patients.
Implementing the
digital and ICT
strategy for
information
provision

Revised 29 web pages, increasing web traffic by 24%
compared with 2019.

Drafted 99 news blogs to raise awareness of lymphoma
and explain specialist news and issues.

Launched a webinar series, delivering 8 webinars (5 held
jointly with Leukaemia Care and 1 with WMUK).

Produced 30 information videos.

Launched our_Lymphoma Voices_ podcast series.

Knowing I can always rely on the information from Lymphoma Action to be easy to understand and factual has 2. Ensure that people affected by lymphoma can access the been a huge support for me, and has made it easier for me treatment and care that they need to relay things to other people.

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2.
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2. Ensure that people affected by lymphoma can access the treatment and care that they need

2020 objective Key achievements in 2020
Help people
affected by
lymphoma
communicate
better with their
Healthcare
professionals
(HCPs)

162 trials listed on our Trialslink Database throughout
2020 (including open, closed or trials with results).

Provided HCPs with regular information and support
around COVID-19 and lymphoma related information
needs and updated our HCP pages to include Lymphoma
Education for nurses.
Deliver an
education
programme for
HCPs

Delivered a digital version of our_Lymphoma_
Management_course with 339 attendees.

Delivered two virtual CNS masterclasses for 51 delegates

1,430 post event video views from HCPs.

In partnership with Gateway C supported the_Lymphoma

_Early Diagnosis_course.
Help identify those
treatment
priorities, quality of
life issues and
behaviours which
would make the
biggest difference
in terms of better
access to
treatment and care

Had the highest UK response (679) to date to the
Lymphoma Coalition Global survey which highlighted
areas of need and led to development of resources
around e.g. fear of relapse.

Supported the NHS ‘_Help us to Help You’_campaign with
endorsement from Dr Sarah Jarvis.

22 Health Technology Assessments (HTA) completed
with NICE, 4 with the Scottish Medicines Consortium
(SMC) and 1 with NHS England (NHSE).

The Lymphoma Management course was a really excellent course. The speakers were excellent and very inspiring.

Your information made me contact my GP, as I have had symptoms for quite some time. I am booked for bloods on Monday.

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3. Ensure that people feel supported with and beyond lymphoma by others who understand what they are going through

2020 objective Key achievements in 2020
Continue to build
our lymphoma
community to
support each other
in person and/or
through digital
means

Delivered 188 online support meetings with
approximately 1,520 participants.

Made 38 successful Buddy links.

Launched new support groups in Northern Ireland; for
young people; and for family, friends and carers.

Launched our closed Facebook Support Group with
1,493 members as at the end of 2020, helping people
to feel more informed, supported and connected.
Increase the impact
of our helpline and
educational
services

2,055 interactions with our Helpline Service via phone,
email and Live Chat.

Relaunched our_Live your Life_(LYL) programme in
digital format with 93 participants across 12 online
workshops, and inducted new LYL facilitators.

Increased LYL information online including personal
stories and workbooks.
Build a large
volunteering
community that
increases the reach
and breadth of our
work

Recruited 75 new volunteers (total of 318).

Volunteers directly supported 1,305 people affected by
lymphoma.

Developed a range of digital volunteering roles to
support our Fundraising and Services Teams.

Just prior to the lockdown, I had finished my last chemotherapy treatment, but once the lockdown started, I felt like I’d fallen off a cliff. I was so used to the routine of seeing my incredible cancer nurses and speaking to my consultant whenever I had questions.

This is where Lymphoma Action stepped in to fill that void. I knew the first place that I could go to for information about lymphoma and COVID-19 was their website and that if I picked up the phone to their helpline that someone will be there to support.

I am a member of both Lymphoma Action’s closed Facebook support group and their online support meeting for the South West. Having this means of connecting with others has been vital – I feel like I am still surrounded by a number of people who all know the sort of journey that I have been on and what’s to come.

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4. Be a voice for people affected by lymphoma in order to influence the decisions that affect them and raise awareness of lymphoma

2020 objective Key achievements in 2020
Collaborate with our
partners to amplify the
voice of people affected
by lymphoma

Through the Blood Cancer Alliance (BCA) we
focused on developing a consensus approach to
changes to treatment and cancer services impacted
by the COVID-19 pandemic.

Through the NHS Cancer Charities Forum we
developed our COVID-19 information based on the
latest updates.

With our partners, we advocated for the needs of
patients and along with 24 other charities, we
developed the_One Cancer Voice_12 point plan for
the restoration of cancer services.
Develop our policy
strategy to strengthen
the voice of people
affected by lymphoma
on a national policy
platform

Continued involvement with the_Cancer52_group of
charities to press on policy issues.

We were guest speakers at the Lymphoma
Coalition global meeting, as well as at the AbbVie
Global roundtable, Gilead Patient Reported
outcomes in CAR-T seminar and the Bristol Meyers
Squibb (BMS) Car-T advisory panel.

We also represented people affected by lymphoma
at the NCRI Lymphoma Research Group meeting,
the BMS “Future of Blood Cancer” report launch,
the NICE methods review forum and the BMS
Healthcare summit.
Continue to strengthen
our engagement with
people affected by
lymphoma to increase
the quality and impact
of our work

Introduced a new Insights Panel, who reviewed the
recommendations of the BCA_Barriers to Accessing_
_Medicines_Report.

Continued to have user engagement through
mechanisms like our Reader Panel.
Develop
communications and
campaigns to deliver our
message to a wide and
diverse audience

Raised awareness of lymphoma and our work
through social media, 373 press features, radio
interviews and campaigns like_Distance Aware_and
Blood Cancer Awareness Month.

I am in awe of the work that goes on behind the scenes at Lymphoma Action to support people affected by the condition.

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5. Have the most effective resources so that we are sustainable and can deliver impactful services

2020 objective Key achievements in 2020
Implement our_People_
_Strategy_focusing on
supporting our staff to
work well and safely
through the pandemic

Focused on risk assessments, guidelines and
policies to support safe and effective home
working practices.

Developed wellbeing support for staff including
information and advice provision (including mental
health 1staid) and increased staff communications.

Supported the learning and development of staff,
particularly around digital.
Be financially strong and
strategically resilient for
longer term
sustainability

Established the emergency response protocol as
per policy and revised our fundraising and services
strategies and risk registers in response to COVID.

Put in place action plans to mitigate financial
impact of COVID-19 included emergency funding
asks; access to govt. support, adapting of existing
activities and significant savings on expenditure.

Collaborated with Leukaemia Care on our ‘Bridges
of Britain’ event and with other_Cancer52_charities
for ‘20 for 20’.
Develop an impact plan
to develop our impact
assessment

Repeated our_Inspiring Impact_assessment which
showed improvement in thirteen areas since 2019.
Develop our
infrastructure, ICT and
digital capabilities
aligned to our goals

Developed our digital strategy with pro bono
support and developed a combined ICT and digital
strategy for 2021.

Successfully implemented the_Breathe HR_system

Implemented a cloud-based telephone system and
began work on the implementation of a new CRM
system.

I can’t speak highly enough of the support that Lymphoma Action has given me. Without this, I don’t think I would have coped.

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Thank ou to our fundraisers y

Thanks to our wonderful supporters, we have been able to raise the income we needed to safeguard our services.

In response to the social distancing measures brought about by COVID-19, we adapted our planned fundraising activities to ensure that, where possible, they could be delivered in a virtual format, whilst introducing some new ideas along the way.

Faced with shortfalls in our income, we set about raising emergency funds. We were overwhelmed by the support we received including a £100,000 emergency grant from The National Lottery Community Fund, which enabled us to offset some of the losses we experienced from Community and Challenge Event fundraising.

Despite the cancellation of large fundraising events like the London Marathon , we had 17 runners take part in the Virtual London Marathon, raising over £17,000. Our virtual Santa Run raised over £25,000 and our Bridges of Britain event surpassed all expectations by raising £35,000.

Combined with the funds raised by the many people who ran, cycled or walked for us, we raised a fantastic £256,846 in Challenge Event income, which although significantly lower than budget, was better than expected.

Our supporters were incredibly loyal and generous and so long as we tried new things and gave them different ways to support us they continued to do so. From the 2.6 Challenge to lockdown head shaves our supporters found new and inventive ways to fundraise.

We are also hugely grateful to everyone who supported our Emergency Appeal, and to the charitable trusts, donors, companies and organisations who have helped us during this extraordinary time through their generous donations. The emergency funding was more than we could ever have hoped for, and together with a generous and unexpected legacy in December, was instrumental in us performing better than expected in 2020.

We would like to thank each and every person who has supported us. From funds raised by people taking part in fundraising challenges, to those making donations, setting up regular gifts or remembering us in their wills, every penny raised has helped us continue our work in making sure no one has to face lymphoma alone.

We are also grateful to those who gave us pro bono support so we could ensure our funds were focused on service provision. This is truly appreciated by us and the people we support. From the bottom of our hearts, thank you.

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Reflections and lessons learnt

Despite the challenges, we learnt how important it is to stay true to the values of our organisation and focus on our purpose. Our long-term strategy stands true, and reminding ourselves of why we exist, helped us to respond to what people affected by lymphoma needed. These are just some of the other learnings from 2020:

The year brought into stark reality the unequal impact of COVID-19 on different communities. Whilst we put digital services in place successfully, health inequalities and the impact of the digital divide showed how much work there is for us to do to reach everyone equally. We put in place our Diversity and Inclusion framework to give us a roadmap to ensure that no-one has to deal with their lymphoma alone and, as an organisation, we are committed to an ongoing process to make our services more accessible and inclusive.

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Our future lans p

Whilst we expect 2021 to continue to be dominated by COVID-19, our mission and long-term strategy still remain the same.

Our strategic aims for 2021 and beyond

We have ensured our strategy for 2021 reflects the needs of the people that we support in a world disrupted by COVID-19.

However, the themes that sit across all of our longer-term strategic goals still remain the same: increasing our impact and our reach; understanding our different communities and what role digital service delivery can play in supporting them; playing to our strengths and identifying gaps in our provision as well as being responsive to the external environment.

You can read more about our five-year strategy Changing how people live with lymphoma on our website.

1. Create the highest quality information so that people can understand their lymphoma

2. Ensure that people affected by lymphoma can access the right treatment and care that they need

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3. Ensure that people feel supported with and beyond lymphoma by others who understand what they are going through

4. Be a voice for people affected by lymphoma in order to influence the decisions that affect them and raise awareness of lymphoma

5. Have the most effective resources so that we are sustainable and can deliver impactful services

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Governance, structure and mana ement g

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Constitution

Lymphoma Action is incorporated as a charitable company limited by guarantee and is a registered charity in England and Wales, and in Scotland. It is governed by its Memorandum and Articles of Association, and the work, management, finances and strategy of the Charity are overseen by a Board of Trustees, who are also the Company Directors. The Trustees who held office during the financial year and at the date of the report are set out on page 49.

A minimum of four Trustees and a maximum of eleven Trustees in office at any one time are required by the Articles of Association. At every Annual General Meeting (AGM) four Trustees retire by rotation, but are eligible for re-election. There is no restriction on the term of tenure as a Trustee. Trustees do not receive remuneration for their duties.

Purpose

The Charity’s purposes are set out in its Memorandum of Association:

Public benefit

We inform people by providing the information and literature they need to understand the complexities of their type of cancer and the different treatment options.

We support anyone affected with our confidential phone and LiveChat support line, and education/training events.

We connect people to the best resources available and to others who understand what they are going through, including through our Buddy Service and Support Group meetings.

A diagnosis of lymphoma changes lives, whether someone is diagnosed themselves or caring for a loved one. We are often the first point of contact and continue to be there for people throughout their lymphoma journey. Despite being the fifth most common cancer, many people know very little about lymphoma. Therefore, as well as providing information and support services, we represent the interests and voice of people affected by lymphoma in areas of policy and raise awareness of lymphoma as a blood cancer.

The Trustees review the aims, objectives and activities of the Charity each year. This report looks at what the Charity has achieved and the outcomes of its work in the reporting period. The Trustees report the success of each key activity and the benefits the Charity has brought to those groups of people that it is set up to help. The review also helps the Trustees ensure the Charity's aims, objectives and activities remained focused on its stated purposes.

The Trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the Charity's aims and objectives and in planning its future activities. In particular, the Trustees consider how planned activities will contribute to the aims and objectives that have been set.

17

Board and management operations and structure

Board of Trustees

The Board of Trustees meets four times a year to review the organisation’s work, finances and services, and to agree the strategic goals for the Charity. The Chief Executive and Senior Management Team (SMT) attend all meetings. The Board also reviews its own operation, effectiveness and governance on an annual basis and every year there is a Trustee/SMT Away Day.

A Finance Committee, comprising three Trustees, including the Chair of the Board and the Treasurer, has specific responsibility for overseeing and reviewing the organisation’s financial operation. It usually meets four times a year, with the Chief Executive, the Director of Finance and the Director of Fundraising and Communications in attendance. However, during the course of 2020, the Finance Committee met monthly from May due to the impact of COVID on our finances.

In addition, a Remuneration Committee, comprising three Trustees, including the Chair of the Board, the Treasurer and one other Trustee (preferably with HR expertise), meets once a year to make recommendations on setting salary levels and to review the Chief Executive’s salary.

Recruitment and appointment of new Trustees

An annual review of the recruitment needs of the Board of Trustees is carried out under the leadership of the Chair, including a skills audit of the current knowledge, experience, skills and abilities and how they will be affected by any Trustee departures in the future. Any Trustee vacancies are advertised nationally and via relevant professional and organisational networks, depending upon the expertise and specialisms required.

Applicants are shortlisted against the criteria in the person specification for the role of Trustee, including any specific qualities highlighted during the above audit. Shortlisted applicants are invited for interview by at least two Trustees, one of whom will be the Chair. Shortlisted applicants are only appointed where they have the necessary skills and qualities to contribute effectively to the Charity’s management and development.

The Charity aims to have the following represented on the Board of Trustees in terms of personal knowledge or experience: lymphoma (directly or indirectly); medical or clinical practice; financial management or investment (with preferably a recognised accountancy or auditing qualification); legal and governance; fundraising; strategic planning, human resources; public relations; media and communications; lobbying and campaigning; sales or marketing; NHS and/or cancer policy; change management; digital / information technology; monitoring and evaluating performance.

All new Trustees receive a comprehensive induction, which includes detailed information about the Charity, including its Memorandum and Articles, accounts, financial reports and minutes of previous Trustees’ meetings. In addition, Trustees attend an induction process, where they are briefed by the Chief Executive and key staff members on all aspects of the Charity’s operations, staffing and organisational management.

Under the Charity’s Diversity and Inclusion Framework the Board of Trustees is committed to ensuring that the Charity’s leadership better reflects the communities that we are here to serve. This manifests itself in a commitment to an ongoing review of the Trustee recruitment process so that there is diversity of thought and experience reflected on the Charity’s Board.

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Management and organisation

Day-to-day operation of the Charity, and strategy implementation, is delegated to the Chief Executive, with the support of the Senior Management Team (SMT).

The Senior Management Team is comprised of:

Chief Executive Ropinder Gill Director of Operations and External Affairs Stephen Scowcroft Director of Finance Jim Howson Director of Fundraising and Communications Karen Rabjohn

Related parties

The only related parties are considered to be the Trustees and those connected with the Trustees including their close family, business and other charity interests. There have been no transactions with related parties, other than the reimbursement of any reasonable expenses for the purposes of attendance at Board meetings and other relevant organisational activities.

Risk assessment and management

Lymphoma Action has an overall risk appetite statement for the Charity as well as risk appetite statements covering each of the seven Board level risks. These set out the context of the risk, looking at the risks we may or may not be willing to take. They also consider the upside of taking appropriate risks as well as the emerging issues that require escalation.

2020 tested our risk management processes like no other year. As soon as the impact of COVID-19 started to become apparent the risk register was reviewed with a number of risks increasing as expected – most notably the financial risk to the Charity and the risk to people, although every area was affected from governance to ICT security. As is our usual process a number of resolving action plans were put in place to help us address the challenges.

We managed risk by being responsive, collaborating with others and learning new ways of doing things. We mitigated the risks to our services and reputation by moving services online; agreeing messaging with experts and partners for consistency and focusing on our staff welfare and safety.

We managed the risk to our finances through even closer financial monitoring; by developing a number of financial modelling scenarios to consider; controlling expenditure and maximising our potential to benefit from emergency funding streams and government support.

Overall risk appetite statement

The Board is responsible for setting and monitoring risk appetite, balancing our need to be sustainable with our desire to meet our strategic objectives. We understand that taking risks, when well assessed and managed, is healthy - often leading to innovation,

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improvement and growth and that, when taking risks, we must do so in an open and transparent way.

We also understand that risks fluctuate and it is important to monitor and report on risk in order to be the most effective that we can be. Lymphoma Action operates a dynamic approach to risk assessment with each of the seven Board level risks ‘owned’ by a senior manager and actively managed. A risk matrix, showing all the risks relative to each other, is regularly reviewed so that Trustees are satisfied that major risks have been accurately identified and that measures for managing those risks are in place. The Board approach to, and appetite for risk, is summarised in the risk appetite statements relating to each of the Board level risks.

Top level risks and their measures and controls

Top-level risks Measures and controls
Services strategy
Lack of coherent and
effective strategy around
service delivery to drive
impact and/or reduced
quality of services

Long-term strategy in place with KPIs and business
planning/strategy processes and cycles.

Groups to provide advice e.g. Medical Advisory
Panel, Insights Panel.

Effective Board decision making and governance
processes.

COVID-19 mitigation plan in place including move
to digital services; information gathering from
partners and official sources and scenario planning.
Financial
Significant drop in fundraised
income of more than £50k in
one or more major income
streams/failure to meet
income and expenditure
targets, which affects net
income, Charity reserves and
ability to deliver strategic
goals

Diversified income streams and income generating
strategies, mapping risks and assumptions.

Robust reserves policy.

Internal and external monitoring mechanisms e.g.
market trends, management accounts.

Robust budget setting process with finance
committee in place.

COVID-19 mitigation plan with financial modelling
scenarios and short and medium action plans.
People
Failure to recruit or retain
the required skills and talent
to deliver our strategy; the
negative impact of COVID on
the health and wellbeing of
our staff; and a lack of
diversity and inclusion, all of
which impact on our ability
to effectively deliver our
strategy and services

Competitive pay and benefits for staff.

Staff and volunteer surveys.

Robust policies and procedures.

Remuneration Committee in place.

People strategy in place and a Diversity and
Inclusion Framework.

Internal communications processes.

COVID-19 mitigation actions including development
of safe working practices; focus on wellbeing of
staff and supporting them to work from home.
Reputation
Reputational risk which
impacts on financial
sustainability and ability of
the Charity to continue its
services due to incidents or

Preventative policies and procedures, including
conflicts of interest and whistleblowing.

Monitoring of feedback, complaints, incidents.

Mechanisms to detect, investigate, report and
respond on issues.

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events which damage or
negatively impact the
Charity's reputation or
operations (e.g. policy
position, non-compliance,
security, major incidents and
catastrophes, inappropriate
support or poor information
provision)

Support from experts e.g. Medical Advisory Panel
and new Insights Panel.

Public and professional liability insurance in place.

Member of the Fundraising Regulator.

Media training and crisis communications policy in
place.

Monitoring of COVID-19 risks and provision of
evidence and consensus-based information on
COVID-19.
Systems and facilities
Inadequate, antiquated or
prone to failure which will
impact on our ability to
provide services or raise
income

ICT and Digital Strategy in place including COVID-19
mitigation in 2020 with new telephony system and
more cloud based systems.

Office/lease management and maintenance plan.

Premises Strategy in place.

Emergency response policy and procedures in
place.
Data and Information
Security
Accidental or malicious loss
of personal data or
confidential information

DPO and data protection policy in place.

GDPR risk register, robust documents and
procedures in place.

Training for staff and volunteers.

2 factor authentication and security measures
across our IT systems.

Cyber Essentials security certificate.

COVID-19 mitigation plans in place including
drafting of new guidance and policies around safe
remote working.
Governance
Inadequate governance
and/or financial controls
(leading to possibility of
fraud) or non-compliance to
legislation or regulation,
leading to unbudgeted
losses, reputational loss,
cashflow problems and/or
lack of compliance with
statutory requirements

Effective HR provision in place.

Policies and procedures including effective
emergency response policy and procedures.

Reviews against financial regulations in place.

Quorate number of Trustees on the Board with
varied experience and expertise.

Adhere to guidance from the Charity Commission.

Appropriate insurance cover and measures.

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Remuneration policy

The Board of Trustees formally approved a remuneration policy in February 2016 which was reviewed in November 2020 and can be summarised as follows:

Lymphoma Action is committed to ensuring that we pay our staff fairly and in a way that ensures we attract and retain the right skills to have the greatest impact in delivering our charitable objectives. We also recognise that pay is part of a wider employment offer to staff, which includes, amongst others, satisfaction of working for a charity, personal development, good working practices and a range of other benefits.

To ensure we pay a fair salary that is competitive within the charitable sector, we monitor sector pay levels using a benchmarked market pay system. We also ensure that pay is proportionate to the complexity of each role, in line with our organisational objectives and without discrimination on grounds of protected characteristics as set out in the Equality Act 2010.

As set out in detail in the full policy, Lymphoma Action aims to provide remuneration which:

A review of salaries normally takes place annually in March/April to take effect from the January before and, if changes are to be made, staff will be advised in writing of the amount and the date from which it takes effect.

A salary review does not imply an increase and in making any pay award the review will be based on the organisation’s financial health. The remuneration policy is reviewed annually, and a Remuneration Committee oversees its application, providing advice to the full Board. The Board of Trustees is committed to including the following information within its annual statutory accounts the following:

22

Our approach to fundraising

We uphold the highest standards in how we communicate with supporters and ensure that our fundraising practices meet the requirements of the recommended Codes of Practice. We are registered with the Fundraising Regulator, which maintains the standards for charitable fundraising and we ensure that our fundraising is respectful, open, honest and accountable to the public. Key aspects of our approach to fundraising:

23

Financial review 24

Financial overview and review

In 2020 our income was £1,722,280, down by just over 6% or £112,693 on last year’s £1,834,973. This reduction of 6% was much more positive than the forecast reduction due to COVID-19 that we expected earlier in the year.

A number of factors contributed to our better than expected performance: a conservative original budget for 2020; strong engagement and performance on individual lines; persuasive and targeted applications for emergency funding (especially in the Trusts and Grants line); responsive communications and an unexpected legacy windfall in December all helped us to offset some of the significant reduction on the Community and Challenge Events income lines.

This was a great achievement involving every member of the Lymphoma Action Team and is testament to the hard work and cohesion across the organisation which enabled us to demonstrate our impact to funders.

Expenditure decreased to £1,392,738, down by £127,728 from last year’s £1,520,466 reflecting significant controlling of costs across a whole range of activities. Staff costs, whilst they were lower than the annual budgeted target (due to the freezing of some vacancies), were higher than 2019 due to maternity leave cover, which increased headcount.

Whilst overall there was a reduction in information and support costs, publications and ICT costs increased to reflect an investment in digital support and investment in the website (part-funded through a restricted grant). Whilst some central costs such as travel and related staff expenditure decreased, finance, HR and IT costs increased slightly.

At 31 December 2020 the net assets of the Charity were £1,196,117 (2019: £866,578), comprising £1,036,426 in uncommitted unrestricted funds (2019: £717,069) and £116,920 in designated unrestricted funds (2019: £116,276). We had an excess of income over expenditure of £329,542 which we expect to help us shore up a more difficult 2021 in which there is expected to be significantly less emergency funding.

Our reserves policy

In 2019 we reviewed our Reserves Policy in line with best practice guidance to better build a resilience within the finances of the Charity. By developing an intelligent reserves policy (with a clear understanding of income and expenditure), we could more effectively consider financial risk. Our policy identifies three elements of reserve:

The reserves are reviewed in line with this policy annually at budget setting time and in time for the new financial year. Notwithstanding this, the reserves amount is calculable at any point of the year if required. Lymphoma Action will continue to express the reserves amount in ‘months expenditure’ for the purposes of external communications and will consider and recalculate the reserves level should it fall under what would be deemed three months of expenditure. At 31 December 2020 we held £1,036,426 as free reserves (2019: £717,069) representing 10.8 months of unrestricted annual expenditure not met from designated reserves.

25

Statement of Trustees’ responsibilities

The format and content of the report and financial statements comply with the requirements of the Statement of Recommended Practice, Accounting and Reporting by Charities (SORP 2019) issued October 2019, applicable accounting standards, the Charities Act 2011 and the Companies Act 2006.

Company law requires the Trustees, as Directors of the Charitable Company, to prepare financial statements for each financial period which give a true and fair view of the state of the affairs of the Charitable Company as at the balance sheet date and of its incoming resources and application of resources, including income and expenditure, for the financial period. In preparing those financial statements, the Trustees follow best practice and:

The Trustees are responsible for maintaining adequate accounting records which disclose with reasonable accuracy at any time the financial position of the Charitable Company and to enable them to ensure that the financial statements comply with the Charities Act 2011 and the Companies Act 2006.

The Trustees are also responsible for safeguarding the assets of the Charitable Company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Disclosure of information to the Auditor

In accordance with company law, as the Company’s Trustees, we certify that:

Auditor

The Auditor, Sayer Vincent LLP, have signified their willingness to continue in office. A resolution to re-appoint them as Auditor will be proposed at the forthcoming annual general meeting.

Financial statements are published on Lymphoma Action's website in accordance with legislation in the United Kingdom governing the preparation and dissemination of financial statements, which may vary from legislation in other jurisdictions.

26

The maintenance and integrity of Lymphoma Action's website is the responsibility of the Trustees. The Trustees' responsibility also extends to the ongoing integrity of the financial statements contained therein.

The Trustees have prepared this report in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small entities.

Signed by Gordon Johns, chair, on behalf of the Trustees of Lymphoma Action

Gordon Johns

Date 10 May 2021

Chair

27

Independent auditor’s report to the members of Lymphoma Action

Opinion

We have audited the financial statements of Lymphoma Action (the ‘charitable company’) for the year ended 31 December 2020 which comprise the statement of financial activities, balance sheet, statement of cash flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including FRS 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice). In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on Lymphoma Action’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

28

Other Information

The other information comprises the information included in the trustees’ annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the trustees’ annual report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and the Charities Accounts (Scotland) Regulations 2006 (as amended) require us to report to you if, in our opinion:

29

in preparing the trustees’ annual report and from the requirement to prepare a strategic report.

Responsibilities of trustees

As explained more fully in the statement of trustees’ responsibilities set out in the trustees’ annual report, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

We have been appointed as auditor under section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 and under the Companies Act 2006 and report in accordance with regulations made under those Acts.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud are set out below.

Capability of the audit in detecting irregularities

In identifying and assessing risks of material misstatement in respect of irregularities, including fraud and non-compliance with laws and regulations, our procedures included the following:

30

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities . This description forms part of our auditor’s report.

Use of our report

This report is made solely to the charitable company's members as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006 and section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005. Our audit work has been undertaken so that we might state to the charitable company's members those matters we are required to state to them in an auditor’s report and for no other purpose.

31

To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's members as a body, for our audit work, for this report, or for the opinions we have formed.

Jonathan Orchard (Senior statutory auditor)

18 May 2021

for and on behalf of Sayer Vincent LLP, Statutory Auditor

Invicta House, 108-114 Golden Lane, LONDON, EC1Y 0TL

Sayer Vincent LLP is eligible to act as auditor in terms of section 1212 of the Companies Act 2006

32

Lymphoma Action

Statement of financial activities (incorporating an income and expenditure account)

For the year ended 31 December 2020

Note
Income from:
2
3
4
5
6
6
6
6
13
Reconciliation of funds:
Total funds carried forward
Net movement in funds
Total funds brought forward
Net gains / (losses) on investments
Investments
Total income
Expenditure on:
Other trading activities
Raising funds
Total expenditure
Net income / (expenditure) before net
gains / (losses) on investments
Charitable activities
Education and training
Publication production & distribution,
information and raising awareness
Support for people affected by
lymphoma
Donations and legacies
Charitable activities
Unrestricted
£
1,157,982
27,535
281,632
954
Restricted
£
254,177
-
-
-
2020
Total
£
1,412,159
27,535
281,632
954
1,722,280
427,721
424,914
428,349
111,754
1,392,738
-
329,542
866,576
1,196,117
329,542
Unrestricted
£
1,075,885
49,488
368,068
1,224
2019
Restricted
Total
£
£
340,308
1,416,193
-
49,488
-
368,068
-
1,224
340,308
1,834,973
-
488,630
79,987
395,674
262,713
467,336
57,359
168,826
400,059
1,520,466
-
-
(59,751)
314,507
92,982
552,069
33,231
866,576
314,507
(59,751)
1,468,103 254,177 1,494,665
427,721
375,134
290,470
54,777
-
49,780
137,879
56,977
488,630
315,687
204,623
111,467
1,148,102 244,636 1,120,407
-
320,001
-
9,541
-
374,258
320,001
833,345
9,541
33,231
374,258
459,087
1,153,346 42,772 833,345

All of the above results are derived from continuing activities. There were no other recognised gains or losses other than those stated above. Movements in funds are disclosed in Note 19 to the financial statements.

33

Lymphoma Action

Company no. 03518755

Balance sheet

As at 31 December 2020

Note
Fixed assets:
12
13
Current assets:
14
15
Liabilities:
16
18
19
Total unrestricted funds
Stock
Debtors
Unrestricted income funds:
Designated funds
Net assets
General funds
Total charity funds
The funds of the charity:
Creditors: amounts falling due within one year
Net current assets
Restricted income funds
Investments
Cash at bank and in hand
Tangible assets
£
6,814
135,099
1,179,167
2020
£
£
28,471
-
28,471
8,379
118,947
820,414
947,740
(118,214)
1,167,646
1,196,117
42,771
116,276
717,069
1,153,346
1,196,117
2019
£
37,050
-
37,050
829,526
1,321,080
(153,434)
116,920
1,036,426
866,576
33,231
833,345
866,576

Approved by the trustees on 10 May 2021 and signed on their behalf by

Gordon Johns Chairman

34

Lymphoma Action

Statement of cash flows

For the year ended 31 December 2020

Note 2020 2020 2019
£ £ £ £
Cash flows from operating activities
Net income / (expenditure) for the reporting period (as
per the statement of financial activities) 329,542 314,507
Depreciation charges 14,327 6,967
(Gains)/losses on investments - -
Interest from investments (954) (1,224)
(Increase) Decrease in stocks 1,565 (6,341)
Decrease / (Increase) in debtors (16,154) 2,797
Increase/(decrease) in creditors 35,220 37,702
Net cash (used in) operating activities 363,546 354,408
Cash flows from investing activities:
Dividends, interest and rents from investments 954 1,224
Purchase of fixed assets (5,747) (33,115)
Proceeds from sale of investments - -
Net cash provided by investing activities (4,793) (31,891)
Change in cash and cash equivalents in the year 358,753 322,517
Cash and cash equivalents at the beginning of the year 820,414 497,897
Cash and cash equivalents at the end of the year 1,179,167 820,414

35

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

1 Accounting policies

a) Statutory information

Lymphoma Action is a charitable company limited by guarantee and is incorporated in England, Wales, and Scotland.

The registered office address is 3 Cromwell Court, New Street, Aylesbury, HP20 2PB.

b) Basis of preparation

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019) - (Charities SORP FRS 102), The Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (March 2018) and the Companies Act 2006.

Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy or note.

In applying the financial reporting framework, the trustees have made a number of subjective judgements, for example in respect of significant accounting estimates. Estimates and judgements are continually evaluated and are based on historical experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances. The nature of the estimation means the actual outcomes could differ from those estimates. Any significant estimates and judgements affecting these financial statements are detailed within the relevant accounting policy below.

c) Public benefit entity

The charity meets the definition of a public benefit entity under FRS 102.

d) Going concern

The trustees consider that there are no material uncertainties about the charity's ability to continue as a going concern. We have free reserves in excess of ten months of unrestricted expenditure which provides the capacity to respond to changing circumstances.

The trustees do not consider that there are any sources of estimation uncertainty at the reporting date that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next reporting period.

e) Income

Income is recognised when the charity has entitlement to the funds, any performance conditions attached to the income have been met, it is probable that the income will be received and that the amount can be measured reliably.

Income from government and other grants, whether ‘capital’ grants or ‘revenue’ grants, is recognised when the charity has entitlement to the funds, any performance conditions attached to the grants have been met, it is probable that the income will be received and the amount can be measured reliably and is not deferred.

For legacies, entitlement is taken as the earlier of the date on which either: the charity is aware that probate has been granted, the estate has been finalised and notification has been made by the executor(s) to the charity that a distribution will be made, or when a distribution is received from the estate. Receipt of a legacy, in whole or in part, is only considered probable when the amount can be measured reliably and the charity has been notified of the executor’s intention to make a distribution. Where legacies have been notified to the charity, or the charity is aware of the granting of probate, and the criteria for income recognition have not been met, then the legacy is a treated as a contingent asset and disclosed if material.

Income received in advance of the provision of a specified service is deferred until the criteria for income recognition are met.

36

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

f) Donations of gifts, services and facilities

On receipt, donated gifts, professional services and donated facilities are recognised on the basis of the value of the gift to the charity which is the amount the charity would have been willing to pay to obtain services or facilities of equivalent economic benefit on the open market; a corresponding amount is then recognised in expenditure in the period of receipt.

g) Interest receivable

Interest on funds held on deposit is included when receivable and the amount can be measured reliably by the charity; this is normally upon notification of the interest paid or payable by the bank.

h) Fund accounting

Restricted funds are to be used for specific purposes as laid down by the donor. Expenditure which meets these criteria is charged to the fund.

Unrestricted funds are donations and other incoming resources received or generated for the charitable purposes.

Designated funds are unrestricted funds earmarked by the trustees for particular purposes.

i) Expenditure and irrecoverable VAT

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably. Expenditure is classified under the following activity headings:

Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.

j) Allocation of support costs

Resources expended are allocated to the particular activity where the cost relates directly to that activity. However, the cost of overall direction and administration of each activity, comprising the salary and overhead costs of the central function, is apportioned on a per capita basis.

Governance costs, comprising the audit fee, trustees' expenses and indemity insurance, and the cost of recruiting new trustees, are apportioned on a per capita basis.

k) Operating leases

Rental charges are charged on a straight line basis over the term of the lease.

37

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

Items of equipment are capitalised where the purchase price exceeds £1,000. Depreciation costs are allocated to activities on the basis of the use of the related assets in those activities. Assets are reviewed for impairment if circumstances indicate their carrying value may exceed their net realisable value and value in use. Major components are treated as a separate asset where they have significantly different patterns of consumption of economic benefits and are depreciated separately over its useful life.

Where fixed assets have been revalued, any excess between the revalued amount and the historic cost of the asset will be shown as a revaluation reserve in the balance sheet.

Depreciation is provided at rates calculated to write down the cost of each asset to its estimated residual value over its expected useful life. The depreciation rates in use are as follows:

m) Listed investments

Investments are a form of basic financial instrument and are initially recognised at their transaction value and subsequently measured at their fair value as at the balance sheet date using the closing quoted market price. Any change in fair value will be recognised in the statement of financial activities. Investment gains and losses, whether realised or unrealised, are combined and shown in the heading “Net gains/(losses) on investments” in the statement of financial activities. The charity does not acquire put options, derivatives or other complex financial instruments.

Stocks are stated at the lower of cost and net realisable value. In general, cost is determined on a first in first out basis and includes transport and handling costs. Net realisable value is the price at which stocks can be sold in the normal course of business after allowing for the costs of realisation. Provision is made where necessary for obsolete, slow moving and defective stocks.

o) Debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

p) Cash at bank and in hand

Cash at bank and cash in hand includes cash and short term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.

Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

r) Financial instruments

The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value.

s) Pensions

Contributions payable to the company's pension scheme are charged to the statement of financial activities in the period to which they relate.

38

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

Fundraising and
individual giving
In memoriam
Trusts and companies
Big Lottery Fund
Gift aid
Legacies
HMRC JRS Grant
Unrestricted
£
415,397
107,715
215,493
100,000
35,017
108,246
176,114
Restricted
£
30,000
-
224,177
-
-
-
-
2020
Total
£
445,397
107,715
439,670
100,000
35,017
108,246
176,114
Unrestricted
£
520,758
105,373
91,754
-
-
93,047
264,953
2019
Restricted
Total
£
£
-
520,758
-
105,373
229,414
321,168
110,894
110,894
-
-
-
93,047
-
264,953
340,308
1,416,193
1,157,982 254,177 1,412,159 1,075,885
Education and training Unrestricted
£
27,535
£
-
Restricted
2020
Total
£
27,535
Unrestricted
£
49,488
2019
Total
£
£
-
49,488
-
49,488
Restricted
27,535 - 27,535 49,488
Challenge events
Trading income
Unrestricted
£
256,846
24,786
£
-
-
Restricted
2020
Total
£
256,846
24,786
Unrestricted
£
337,619
30,449
2019
Total
£
£
-
337,619
-
30,449
-
368,068
Restricted
281,632 - 281,632 368,068

5 Income from investments

Investment income
Bank interest
Unrestricted
£
954
-
£
-
-
Restricted
2020
Total
£
954
-
Unrestricted
£
1,224
-
2019
Total
£
£
-
1,224
-
-
-
1,224
Restricted
954 - 954 1,224

39

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

Staff costs (Note 8)
Direct costs
Generating donations and legacies
Challenge event fees
Merchandise and other costs
Publications
Raising awareness and website
Helpline and support services
Regional and international activities
Workshop, conference and events
Support costs
Finance, HR & IT
Premises
Stationery, post, phone, equipment and sundry
Depreciation
Governance
Support costs
Governance costs
Total expenditure 2020
Generating
donation
and legacies
Costs of
activities for
generating
funds
£
£
219,302
27,591
44,483
-
-
3,578
-
18,377
-
-
-
-
-
-
-
-
-
-
44,483
21,955
-
-
-
-
-
-
-
-
-
-
-
-
263,785
49,546
92,029
8,634
12,550
1,177
368,364
59,357
Cost of raising funds
Charitable activities Charitable activities Education
and training
£
69,687
-
-
-
-
-
-
-
11,620
11,620
-
-
-
-
-
-
81,307
26,793
3,654
111,754
Governance
costs
£
31,592
-
-
-
-
-
-
-
-
-
-
-
-
-
-
11,751
43,343
-
(43,343)
-
Support
costs
£
119,085
-
-
-
-
-
-
-
-
-
93,744
42,222
48,454
14,327
-
-
317,832
(317,832)
-
-
2020
Total
2019
Total
£
£
961,920
944,425
44,483
63,874
3,578
42,874
18,377
16,141
52,341
66,465
51,697
39,593
35,024
37,579
3,199
11,557
11,620
77,585
220,319
355,668
93,744
86,598
42,222
67,114
48,454
47,033
14,327
6,967
11,751
12,661
1,392,737
1,520,466
-
-
-
-
1,392,737
1,520,466
Generating
donation
and legacies
£
219,302
44,483
-
-
-
-
-
-
-
44,483
-
-
-
-
-
-
263,785
92,029
12,550
368,364
Publication
production &
distribution,
information and
raising awareness
£
222,648
-
-
-
52,341
51,697
-
-
-
104,038
-
-
-
-
-
-
326,686
86,439
11,788
424,913
Support for
people
affected by
lymphoma
£
272,015
-
-
-
-
-
35,024
3,199
-
38,223
-
-
-
-
-
-
310,238
103,937
14,174
428,349

40

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

6b Analysis of expenditure (prior year)

Staff costs (Note 8)
Direct costs
Generating donations and legacies
Challenge event fees
Merchandise and other costs
Publications
Raising awareness and website
Helpline and support services
Regional and international
Workshop, conference and events
Support costs
Finance, HR & IT
Premises
Stationery, post, phone, equipment
Depreciation
Governance
Support costs
Governance costs
Total expenditure 2019
Generating
donation
and legacies
Costs of
activities for
generating
funds
£
£
210,517
26,968
63,874
-
-
42,874
-
16,141
-
-
-
-
-
-
-
-
-
-
63,874
59,015
-
-
-
-
-
-
-
-
-
-
-
-
274,391
85,983
100,641
16,646
9,478
1,491
384,510
104,120
Cost of raising funds
Charitable activities Charitable activities Education
and training
£
58,882
-
-
-
-
-
-
-
77,585
77,585
-
-
-
-
-
-
136,467
29,699
2,660
168,826
Governance
costs
£
20,650
-
-
-
-
-
-
-
-
-
-
-
-
-
-
12,661
33,311
-
(33,311)
-
Support
costs
2019
Total
£
£
146,107
944,423
-
63,874
-
42,874
-
16,141
-
66,465
-
39,593
-
37,579
-
11,557
-
77,585
-
355,668
86,598
86,598
67,114
67,114
47,033
47,033
6,967
6,967
-
-
12,661
353,819
1,520,466
-
-
-
-
-
1,520,466
Generating
donation
and legacies
£
210,517
63,874
-
-
-
-
-
-
-
63,874
-
-
-
-
-
-
274,391
100,641
9,478
384,510
Publication
production &
distribution,
information and
raising awareness
£
194,724
-
-
-
66,465
39,593
-
-
-
106,058
-
-
-
-
-
-
300,782
86,685
8,207
395,674
Support for
people
affected by
lymphoma
£
286,577
-
-
-
-
-
37,579
11,557
-
49,136
-
-
-
-
-
-
335,713
120,148
11,475
467,336

41

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

This is stated after charging:

This is stated after charging:
2020 2019
£ £
Depreciation 14,327 6,967
Operating lease rentals payable:
Property 28,535 28,982
Other 4,383 5,156
Auditor's remuneration (excluding VAT):
Audit 7,500 7,300

Staff costs were as follows:

Salaries and wages
Employer’s contribution to defined contribution pension schemes
Income protection and life assurance
Social security costs
Redundancy and termination costs
2020
2019
£
£
828,403
806,958
-
12,000
74,291
70,896
47,605
45,547
11,621
9,024
961,920
944,425

The following number of employees received employee benefits (excluding employer pension costs and employer's national insurance) during the year between:

2020 2019
No. No.
£70,000 - £79,999 1 1

The total employee benefits (including pension contributions and employer's national insurance) of the key management personnel were £253,232 (2019: £247,416) in relation to four key management posts.

The charity trustees were neither paid nor received any other benefits from employment with the charity in the year (2019: £nil). No charity trustee received payment for professional or other services supplied to the charity (2019: £nil).

Trustees' expenses represent the payment or reimbursement of travel and subsistence costs totalling £158 (2019: £1,984) incurred by 2 (2019: 6) members relating to attendance at meetings of the trustees.

During the year trustee liability insurance was obtained for £2,594 (2019: £1,831)

42

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

9 Staff numbers

The average number of employees (head count based on number of staff employed) during the year was 31 (2019: 30).

Staff are split across the activities of the charity as follows (head count basis):

Raising funds
Support staff
Charitable activities
2020
2019
No.
No.
9
9
17
16
5
5
31
30

10 Related party transactions

There are no related party transactions to disclose for 2020 (2019: none).

11 Taxation

The charity is exempt from corporation tax as all its income is charitable and is applied for charitable purposes.

12 Tangible fixed assets

Tangible fixed assets
Disposals in year
Disposed of in year
At the start of the year
Additions in year
Depreciation
At the end of the year
At the start of the year
Charge for the year
At the end of the year
Cost
At the end of the year
Net book value
At the start of the year
Property
improvements
£
4,457
-
-
Computer
equipment
£
46,570
-
5,747
Furniture &
equipment
£
10,208
-
-
Total
£
61,235
-
5,747
4,457 52,317 10,208 66,982
4,457
-
-
10,294
-
13,847
9,434
-
480
24,185
-
14,327
4,457 24,141 9,914 38,512
- 28,177 294 28,471
- 36,277 774 37,051

All of the above assets are used for charitable purposes.

13 Stock

Goods for resale

2020 2019
£ £
6,814 8,379
6,814 8,379

43

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

Accrued income
Income tax receivable
Prepayments
2020
2019
£
£
27,688
16,303
102,588
94,749
4,823
7,895
135,099
118,947

15 Creditors: amounts falling due within one year

Trade creditors
Taxation and social security
Accruals
Deferred income (note 16)
2020
2019
£
£
45,663
50,196
14,024
18,996
9,000
9,489
84,747
39,533
153,434
118,214

16 Deferred income

Deferred income comprises income received in advance for events, including entry deposits and sponsorships for individuals undertaking challenge events.

Balance at the beginning of the year
Amount released to income in the year
Amount deferred in the year
Balance at the end of the year
2020
2019
£
£
39,533
16,918
(10,199)
(16,310)
55,413
38,925
84,747
39,533

17a Analysis of net assets between funds (current year)

Net assets at 31 December 2020
Tangible fixed assets
Net current assets
General
unrestricted
£
-
1,036,427
Designated
£
28,177
88,745
Restricted
Total funds
£
£
294
28,471
42,477
1,167,649
42,771
1,196,120
1,036,427 116,922

17b Analysis of net assets between funds (prior year)

Net assets at 31 December 2019
Tangible fixed assets
Net current assets
General
unrestricted
£
-
717,069
Designated
£
36,276
80,000
Restricted
Total funds
£
£
774
37,050
32,457
829,526
33,231
866,576
717,069 116,276

44

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

18a Movements in funds (current year)

Total restricted funds
Total designated funds
General funds
Value of functional assets net of
restricted funds
Premises fund
Information and publications
Publications
Webinar equipment
Total unrestricted funds
Facebook settlement fund
Restricted funds:
Support for people affected by
lymphoma
Counselling/psychological support
Information & support, including
helpline, buddy scheme & support
groups
Live Your Life - Big Lottery Fund
Live Your Life - other
Research
Regional Development
Total funds
Education and training
Events and activities
Unrestricted funds:
Designated funds:
Unplanned information products
Legacy fluctuation fund
At 1
January
2020
£
-
774
3,200
-
17,232
12,024
-
-
Income &
gains
£
49,300
-
-
124,900
-
23,000
-
-
56,977
Expenditure
& losses
£
(49,300)
(480)
-
(97,647)
(17,232)
(23,000)
-
-
(56,977)
Transfers
£
-
-
-
-
-
-
-
-
-
At 31
December
2020
£
-
294
3,200
27,253
-
12,024
-
-
33,231 254,177 (244,636) - 42,771
-
30,000
50,000
36,276
-
-
-
-
-
-
-
(13,847)
8,745
-
-
5,746
8,745
30,000
50,000
28,175
116,276 - (13,847) 14,491 116,920
717,069 1,468,103 (1,134,255) (14,491) 1,036,426
833,345 1,468,103 (1,148,102) - 1,153,346
866,576 1,722,280 (1,392,738) - 1,196,117

The narrative to explain the purpose of each fund is given at the foot of the note below.

45

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

18b Movements in funds (prior year)

Total restricted funds
Total designated funds
General funds
Restricted funds:
Unrestricted funds:
Total funds
Premises fund
Value of functional assets net of
restricted funds
Total unrestricted funds
Information and publications
Publications
Webinar equipment
Support for people affected by
lymphoma
Counselling/psychological support
Information & support, including
helpline, buddy scheme & support
groups
Research
Regional Development
Education and training
Events and activities
Designated funds:
Unplanned information products
Legacy fluctuation fund
Live Your Life - Big Lottery Fund
Live Your Life - other
At 1
January
2019
£
-
1,254
3,200
-
-
23,764
12,024
52,739
Income &
gains
£
79,507
-
-
81,148
110,894
11,400
-
-
57,359
Expenditure
& losses
£
(79,507)
(480)
-
(81,148)
(93,662)
(35,164)
-
(52,739)
(57,359)
Transfers
£
-
-
-
-
-
-
-
-
-
At 1 January
2020
£
-
774
3,200
-
17,232
12,024
-
92,982 340,308 (400,059) - 33,231
10,000
-
-
9,647
-
-
-
-
-
-
-
(6,487)
(10,000)
30,000
50,000
33,116
-
30,000
50,000
36,276
19,647 - (6,487) 103,116 116,276
439,440 1,494,665 (1,113,920) (103,116) 717,069
459,087 1,494,665 (1,120,407) - 833,345
552,069 1,834,973 (1,520,466) - 866,576

The narrative to explain the purpose of each fund is given at the foot of the note below.

46

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

Purposes of restricted funds

Information and publications

Lymphoma nurse educational resource

We have continued to develop a combination of online resources through videos in conjunction with our education and training programme and make these available to participants of our National Lymphoma Training Programme. We have piloted these resources being available to a wider audience and this will continue on our website in 2021.

Publications

Grants to fund information booklets from our award-winning range about lymphomas and their treatment (all of which are accredited with the Department of Health’s Information Standard).

Support for people affected by lymphoma

Counselling / psychological support

Grants towards a counselling psychological support service for people affected by lymphoma, helping them to come to terms with a diagnosis and deal with distress, anxiety and depression.

Information and support, including helpline, buddy scheme and support groups

Grants received towards our information and support services. These include our helpline (telephone, email and live chat enquiries from people worried about or needing information on lymphoma), buddy scheme (putting people in touch with others going through a similar experience) and a network of support groups across the UK (where patients, relatives and friends can meet on a regular basis to learn from each other and give mutual support).

Live Your Life – Big Lottery Fund

Funds received as part of a three-year grant totalling £318,000 from the Big Lottery Fund to launch an education and support programme for people returning to a ‘new normal’ after treatment has finished and for those on a ‘watch and wait’ regime.

Live Your Life – other

Grants and donations for Live Your Life work other than that funded by the Big Lottery Fund

Research

Funds received and carried over for research into lymphoma and the lives of those affected by lymphoma, work to scope activity has taken place in 2018, which we expect to launch in 2021.

Regional Development

A significant grant to develop our regional structure and significantly extend our organisational reach.

Education and training

Education and training events and activities Events for healthcare professionals are held throughout the year

Purposes of designated funds

The legacy fluctuation fund is set aside to offset any lower than expected legacy income.

The premises fund is created to cover potential costs of relocation and or refurbishment when the current lease expires.

The unplanned information products fund was held to cover unplanned publishing costs.

47

Lymphoma Action

Notes to the financial statements

For the year ended 31 December 2020

19 Operating lease commitments payable as a lessee

The charity's total future minimum lease payments under non-cancellable operating leases is as follows for each of the following periods

of the following periods
Less than one year
One to five years
2020
2019
£
£
29,311
78,469
19,713
130,782
49,024
209,251
Property
2020
2019
£
£
4,382
13,148
11,687
48,209
16,069
61,357
Equipment
49,024 209,251

20 Legal status of the charity

The charity is a company limited by guarantee and has no share capital. The liability of each member in the event of winding up is limited to £1.

48

Reference and administrative details

Trustees

Gordon Johns (#,) Chair (and Chair of Remuneration Committee) Dr Cathy Burton Tricia Cavell-Hill (#) Jeremy Harrington (Retired November 2020) James Cray (Appointed July 2020) Mark Harrison Nicola King Keith McLeod (#,) Treasurer (and Chair of Finance Committee) David McNeill Sarah Wells David Barnett (retired 2 January 2020)

Member of Finance Committee

Ropinder Gill

Chief Executive Ropinder Gill Key management Stephen Scowcroft Director of Operations & External Affairs personnel Jim Howson Director of Finance Karen Rabjohn Director of Fundraising & Communications

Company secretary Ropinder Gill President Professor John Radford Patron Lord Menzies Campbell of Pittenweem Charity number England and Wales 1068395 Scotland SC045850 Company number 03518755 Registered office 3 Cromwell Court New Street Aylesbury Buckinghamshire HP20 2PB Website www.lymphoma-action.org.uk Bankers CAF Bank Ltd 25 Kings Hill Avenue, West Malling, Kent ME19 4JQ National Westminster Bank plc 22 Market Square, Aylesbury, Buckinghamshire HP20 1TR

49

Auditor Sayer Vincent LLP Invicta House 108-114 Golden Lane London EC1Y 0TL

Medical Advisory Panel

Dr Kirit Ardeshna Miss Charlotte Bloodworth Dr Adrian Bloor Professor Kristian Bowles Dr Cathy Burton Dr Graham Collins Professor David Cunningham Professor Stephen Devereux Professor Martin Dyer Dr Paul Fields Dr George Follows Dr Christopher Fox Dr Eve Gallop-Evans Dr Georgina Hall Dr Chris Hatton Professor Peter Hoskin Professor Tim Illidge Professor Graham Jackson Professor Peter Johnson Dr Rod Johnson Dr Nagesh Kalakonda Dr Ben Kennedy Professor David Linch Dr Kim Linton Professor Andrew Lister Dr Prem Mahendra Dr Robert Marcus Dr Pam McKay Dr Andrew McMillan Dr Christopher McNamara Dr Wendy Osborne Dr Shankara Paneesha Dr Ruth Pettengell Professor Andrew Pettitt Professor John Radford (Chair) Dr Ravi Ratnavel Professor Simon Rule Ms Barbara Von Barsewisch Ms Sarah Wells Dr Andy Wotherspoon Dr Shirley D’ Sa

50