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← Itp Support Association

2025-03-31-accounts

CHARITY NUMBER 1064480

ITP SUPPORT ASSOCIATION

FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2025

ITP SUPPORT ASSOCIATION

FINANCIAL STATEMENTS

YEAR ENDED 31 MARCH 2025

CONTENTS PAGES
Report of the Trustees 1 - 3
Statement of Financial Activities 4 - 5
Balance Sheet 6
Notes to the Accounts 7 – 12
Independent Examiner’s Report 13

1

REPORT OF THE TRUSTEES

YEAR ENDED 31 MARCH 2025

The Trustees have pleasure in presenting their report, together with the financial statements for the year ended 31 March 2025.

REFERENCE AND ADMINISTRATIVE DETAILS

STATUS

The ITP Support Association is an unincorporated association, constituted by Deed of Trust and is a registered charity number 1064480.

ADDRESS OF THE CHARITY

ITP Support Association The Platelet Mission Kimbolton Road Bolnhurst Beds MK44 2EL

TRUSTEES AND EXECUTIVES

Mr M Morgan - Chief Executive Prof. A Newland CBE - Chair (Trustee) Mr D Elston - Trustee (until Dec 2024) Mrs X Norman - Trustee Mr C Williams - Trustee (until Nov 2024) Mr A Heard - Trustee (from January 2025) Mrs Rhonda Anderson - Patient Board Member Ms Dianne White - Patient Board Member

Trustees are recruited and appointed by approval from the existing Trustees.

No remuneration or benefits have been paid to trustees and no material donations received from them. Where expenses have been paid to trustees and related parties during the year, these are detailed in notes 5 to the accounts.

RISK MANAGEMENT & ORGANISATIONAL STRUCTURE

The charity is managed by the Trustees, who are responsible for setting policies and procedures, and managing the affairs of the charity to meet its objectives.

PROFESSIONAL ADVISORS

Bankers HSBC Bank Plc 12 Allhallows Bedford Bedfordshire MK40 1LJ CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling, Kent ME19 4JQ

2

PROFESSIONAL ADVISORS CONTINUED

PayPal (Europe) Sàrl et Cie SCA 5[th] Floor 22-24 Boulevard Royal L-2449, Luxembourg

Independent Examiner

Peter Duboff FCA

OBJECTIVES AND ACTIVITIES

Objectives

The charity is organised as an association, managed by the trustees, whose purpose is the relief of sickness of persons with Immune Thrombocytopenia (ITP), and in particular to promote, improve, develop and maintain the general welfare of ITP patients and the families of children with ITP. In forming our objectives and planning our activities, the Trustees have considered the charity Commission’s guidance on public benefit.

Activities

The activities of the association include the provision of:-

In addition, the Association uses its funds to assist the medical profession to understand ITP. It does this through awarding grants to support basic, clinical and qualitative scientific research work in the UK into the understanding, treatment and prevention of ITP.

ACHIEVEMENTS AND PERFORMANCE

During 2024/25 the Association has continued to grow and extend its reach across the whole of the United Kingdom and Ireland. We held our Annual Patient convention in May 2024 at the Cavendish Conference Centre in London, attendance was good but less than expected due to industrial action (second year in a row) by some of the Rail Unions which stopped many from travelling into London. We also held a meeting of the ITP International Alliance in London, at the Hallam Conference Centre. Likewise, our network of ITP Local Support Group meetings continued to expand with additional meetings being held on Zoom for the various regions of the United Kingdom and Ireland and in person meetings held at various Hospital Trusts, Liverpool, Nottingham and Chelmsford.

Our Shared Decision-Making Document entitled ‘Making the right choices in ITP Management and care’ which was endorsed by a number of Royal Colleges and the British Society for Haematology, is now in its fourth re-print since its launch, with more and more Hospitals requesting copies.

3

The Association also had representation at many of the main Haematology Conferences around the world in 2024/25 including BSH, ASH, PPTP and EHA. FINANCIAL REVIEW The ITP Support Association would like to thank the following pharmaceutical companies (Sobi, Novartis, Amgen, Argenx, Sanofi, Grifols) for their support in providing funding support during the year. This support included the following: We received unrestricted sponsorship to support the 2024 UK In-Person Patient Convention in London and the general running of the Association. We received sponsorship for our work during 2024/25 including our virtual events and our in-person Patient Convention: SOBI Platinum Sponsorship Novartis Bronze Sponsorship Amgen Bronze Sponsorship Sanofi Gold Sponsorship - £50,000 - £15,000 - £15,000 - £25,000 We also received grant funding for: Platelet Journal - Grifols - £10,968 This support has also enabled the Association to support the following projects, £27,000 to Barts Health NHS Trust to provide support for the Adult and Pregnancy ITP Registries. Support for the Paediatric ITP Registry has been put on hold as NHS England are looking to take over control of the registry. The accounts show a surplus for the year of £40,760 (2024 deficit £16, 133). RESERVES POLICY The aim of the Association is to hold sufficient reserves to allow the charity to pursue their charitable objectives as the opportunities arise. Reserves for the year end were £370, 161 against £329,401 in RISK MANAGEMENT The Trustees continue to review any major risk arising from, or impacting on, the activities of the charity. They are satisfied that the systems currently in place are sufficient to mitigate the risks in normal circumstances. TRUSTEES RESPONSIBILITIES The Trustees are responsible for preparing the annual report for the year ended 31 March 2025 and is approved on behalf of the Board of Trustees. ash Newland CBE Chairman of the Trustees.

4

STATEMENT OF FINANCIAL ACTIVITIES

YEAR ENDED 31 MARCH 2025

2025 2024
All restricted & All restricted &
unrestricted funds unrestricted funds
Total Total
£ £
Income and endowments from:
Donations and legacies:-
Donations and grants 158,873 135,010
Subscriptions 8,634 11,233
Gift Aid 1,331 1,422
Convention sponsorship 1,450 915
Other revenue 862 79
Other trading activities
Sale of health cards and books - 40
Sale of logo items 81 717
Income from investments
Bank interest received 3,436 2,098
174,667 151,514
==============================
Expenditure on:
Charitable activities:-
Research grant 27,000 27,000
Convention and seminar expenses 19,868 62,781
Other expenditure 3
87,039		 77,816
133,907 167,597
Raising funds:-
Cost of logo items - 50
133,907 167,647
Total expenditure 133,907 167,647
==============================
Net income/(expenditure) for the year 40,760 (16,133)
==============================

5

STATEMENT OF FINANCIAL ACTIVITIES continued

YEAR ENDED 31 MARCH 2025

Reconciliation of funds
Net income/(expenditure) for the year
Funds brought forward
Funds carried forward		 2025
All restricted &
unrestricted funds
Total
£
2024
All restricted &
unrestricted funds
Total
£
40,760 (16,133)
329,401
345,534
370,161
329,401
========================================

All income and expenditure in year ended 31 March 2025 relates to unrestricted funds. The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.

BALANCE SHEET YEAR ENDED 31 MARCH 2025 FIXED ASSETS Tangible assets 7 2025 73,751 CURRENT ASSETS Unrestricted: Cash at bank - current accounts Accounts receivable - current accounts 296,910 - 296,910 CURRENT LIABILITIES Creditors and accruals: amounts falling due within one year Unrestricted: Accrued expenses and commitments NET CURRENT ASSETS NET ASSETS FUNDS Unrestricted income fund 8 (500) 296,410 370,161 10 370,161 370,161 Approved by the Board on 17/9/2021 and signed on its behalf by:- Prof. A Newland CBE Chair of the Trustees 239,010 15,346 254,356 (1,000) 6 2024 76,045 253,356 329,401 329,401 329,401

7

NOTES TO THE ACCOUNTS

YEAR ENDED 31 MARCH 2025

1. ACCOUNTING POLICIES

Basis of Accounting

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) - (Charities SORP (FRS 102)) as amended by Update Bulletin 1, the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Charities Act 2011 and UK Generally Accepted Practice as it applies from 1 January 2015.

The accounts (financial statements) have been prepared to give a ‘true and fair’ view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a ‘true and fair view’. This departure has involved following Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.

ITP Support Association is an unincorporated association, constituted by a Deed of Trust. It meets the definition of a public benefit entity under FRS 102. The charity’s principal place of business is The Platelet Mission, Kimbolton Road, Bolnhurst, Bedfordshire, MK44 2EL.

Going concern

There are no material uncertainties about the charity’s ability to continue to operate.

Depreciation

Provision for depreciation of fixed assets held for use by the charity is made at annual rates calculated to spread the cost (less anticipated residual disposal value) of each asset evenly over its expected life. The depreciation rate currently in use is as follows:-

Rate Method
Tangible assets:-
Freehold land Not depreciated as immaterial
Freehold buildings 2% per annum Straight Line
Computer equipment 20% per annum Reducing Balance
Fixtures and fittings 5% per annum Straight Line

Fund accounting

Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.

Designated funds are unrestricted funds earmarked by the trustees for a particular future project or commitment.

8

Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.

Incoming Resources

All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:

Resources Expended

Expenditure is recognised on an accruals basis as a liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates:

All costs are allocated to expenditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.

9

Debtors

Debtors include amounts which are due to the charity and are measured at their recoverable amounts.

Creditors

Creditors include amounts payable to third parties. They are measured at the anticipated amount due to the third party in settlement of that liability.

Financial Instruments

Basic financial instruments are initially measured at the amount receivable or payable, including any related transaction costs.

2. GRANTS PAYABLE

GRANTS PAYABLE
2025 2024
Grants to Institutions
£ £
Manchester University Trust -
Barts Health Care Trust 27,000 27,000
______ ______
Total 27,000 27,000
======= =======

3. OTHER EXPENDITURE

Other expenditure supports the charity in achieving its charitable activities and can be analysed as follows:

Trustees’ travel expenses
Other travel expenses
General rates
Independent examiner’s fee
Office costs
Post freight and courier
Printing and stationery
Telephone
Light and heat
IT Costs
Insurance
Repairs and maintenance
Consultancy
Staff costs
Bank charges
Subscriptions and donations
Depreciation
Sundry costs		 2025
2024
£
£
1,575
1,352
4,923
3,926
772
-
500
500
2,615
-
201
1,165
14,757
9,475
857
701
(51)
768
7,068
7,806
1,064
1,032
300
1,500
1,122 (67)
45,990
42,807
866
792
1,017
1,769
2,296
2,366
1,167
1,924
87,039
77,816

================================

10

4. SELF EMPLOYED COSTS

The charity had no members of staff during the current or previous year.

During the year the charity paid £45,990 (2024: £42,806) to self-employed individuals for services rendered.

5. TRUSTEES’ REMUNERATION AND EXPENSES

During the period, no remuneration or benefits were paid to the Trustees.

UK Expenses were reimbursed to the trustees and staff during the year totalling £1,575 (2024: £1,352). These related to travel and meeting expenses.

.

6. VOLUNTEERS

The charity has the support of a number of volunteers who operate both to support the operational needs of the charity and its fundraising activities.

7. TANGIBLE FIXED ASSETS

Cost
As at 1stApril 2024
Additions
As at 31stMarch 2025
Depreciation
As at 1stApril 2024
Charge for year
As at 31stMarch 2025
Net Book Value
As at 31stMarch 2025
As at 31stMarch 2024		 Computer
Fixtures
Property
Equipment
& Fittings
Total
£
£
£
£
90,429
5,284
4,059
99,772
-
-
-
-
90,429
5,284
4,059
99,772
=============================================
17,937
3,869
1,921 23,728
1,809
283
203
2,296
19,746
4,152
2,124
25,852
=============================================
70,683 1,132
1,935 73,750
=============================================
72,942 1,769
2,341
76,044
=============================================

11

8. CREDITORS FALLING DUE WITHIN ONE YEAR

Creditors may be analysed as follows:

2025 2024 2024
£ £
Accruals for grants payable - -
Accrued expenses 1,000 500
1,000 1,000
======== ========
9. ANALYSIS OF NET ASSETS BY FUND
2025
All restricted &
2025		 2025 2025
unrestricted funds Unrestricted Restricted Total
Total
Funds		 Funds
£ £ £ £
Fixed assets 73,751 73,751 73,751
Current assets 296,910 296,910 296.910
Current liabilities (500) (500) (500)
Fund Balance 370,161 370,161 370,161
============================================
10. FUNDS
Movement in the Year to 31 March 2025
Balance at Balance at
1 April Incoming
Resources		 Transfer 31 March
2024 resources expended 2025
Unrestricted Funds
General income fund 329,401
174,667		 133,907 - 370,161
Restricted funds -
Total unrestricted funds 329,401 174,667 133,907 - 370,161
===============================================================

12

Movement in the Year to 31 March 2024

Balance at
1 April Incoming Resources Transfer 31 March
2023 resources expended 2024
Unrestricted Funds
General income fund 345,534 151,514 167,647 - 329,401
Restricted funds - - - - -
Total unrestricted funds 345,534 151,514 167,647 - 329,401
===============================================================

11. RELATED PARTY TRANSACTIONS

No related party transactions have occurred in the year that require disclosure.

13

INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF ITP SUPPORT

ASSOCIATION YEAR ENDED 31 MARCH 2025

I report on the accounts of the Trust for the year ended 31 March 2025, which are set out on pages 6 to 12.

Respective responsibilities of trustees and examiner

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

It is my responsibility to:

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below.

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

have not been met; or

Peter Duboff FCA Kingsbury House 468 Church Lane London NW9 8UA

Date: