2024-03-31-accounts

CHARITY NUMBER 1064480

ITP SUPPORT ASSOCIATION

FINANCIAL STATEMENTS

YEAR ENDED 31 MARCH 2024

ITP SUPPORT ASSOCIATION

FINANCIAL STATEMENTS

YEAR ENDED 31 MARCH 2024

CONTENTS	PAGES
Report of the Trustees	1 - 3
Statement of Financial Activities	4 - 5
Balance Sheet	6
Notes to the Accounts	7 – 12
Independent Examiner’s Report	13

1

REPORT OF THE TRUSTEES

YEAR ENDED 31 MARCH 2024

The Trustees have pleasure in presenting their report, together with the financial statements for the year ended 31 March 2024.

REFERENCE AND ADMINISTRATIVE DETAILS

STATUS

The ITP Support Association is an unincorporated association, constituted by Deed of Trust and is a registered charity number 1064480.

ADDRESS OF THE CHARITY

ITP Support Association The Platelet Mission Kimbolton Road Bolnhurst Beds MK44 2EL

TRUSTEES AND EXECUTIVES

Mr M Morgan - Chief Executive Prof. A Newland CBE - Chair (Trustee) Mr D Elston - Trustee Mrs X Norman - Trustee Mr C Williams - Trustee Mr A Heard - Patient Board Member Mrs Rhonda Anderson - Patient Board Member Ms Dianne White - Patient Board Member

Trustees are recruited and appointed by approval from the existing Trustees.

No remuneration or benefits have been paid to trustees and no material donations received from them. Where expenses have been paid to trustees and related parties during the year, these are detailed in notes 5 to the accounts.

RISK MANAGEMENT & ORGANISATIONAL STRUCTURE

The charity is managed by the Trustees, who are responsible for setting policies and procedures, and managing the affairs of the charity to meet its objectives.

PROFESSIONAL ADVISORS

Bankers HSBC Bank Plc 12 Allhallows Bedford Bedfordshire MK40 1LJ CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling, Kent ME19 4JQ

2

PROFESSIONAL ADVISORS CONTINUED

PayPal (Europe) Sàrl et Cie SCA 5[th] Floor 22-24 Boulevard Royal L-2449, Luxembourg

Independent Examiner Peter Duboff FCA

OBJECTIVES AND ACTIVITIES

Objective

The charity is organised as an association, managed by the trustees, whose purpose is the relief of sickness of persons with Immune Thrombocytopenia (ITP), and in particular to promote, improve, develop and maintain the general welfare of ITP patients and the families of children with ITP. In forming our objectives and planning our activities, the Trustees have considered the charity Commission’s guidance on public benefit.

Activities

The activities of the association include the provision of:-

• Patient and family support

• Local ITP Support Groups

• ITP contact volunteers known as ITP Friends

• Social networking platforms for patients to communicate

• Information for patients through the Association publications and website

• Regular newsletters/journals

• Guidelines for schools

• Guidelines for dentists of patients

• Advice for patients and families on referrals to specialists

• National annual conventions for patients and families

• Occasional surveys of membership for educational purposes

• Collation and dissemination of information relating to ITP

• Occasional medical seminars for health professionals

In addition, the Association uses its funds to assist the medical profession to understand ITP. It does this through awarding grants to support basic, clinical and qualitative scientific research work in the UK into the understanding, treatment and prevention of ITP.

ACHIEVEMENTS AND PERFORMANCE

During 2023/24 the Association has continued to grow and extend its reach across the whole of the United Kingdom and Ireland. We held our Annual Patient convention in May 2023 at the Royal College of Pathologists in London, attendance was good but less than expected due to industrial action by some of the Rail Unions which stopped many from travelling into London. We also held a meeting of the ITP International Alliance in London, also at the Royal College of Pathologists. Likewise, our network of ITP Local Support Group meetings continued to expand with additional meetings being held on Zoom for the various regions of the United Kingdom and Ireland.

Our Shared Decision-Making Document entitled ‘Making the right choices in ITP Management and care’ which was endorsed by a number of Royal Colleges and the British Society for Haematology, is now in its third re-print since its launch, with more and more Hospitals requesting copies.

The Association also had representation at many of the main Haematology Conferences around the world in 2023/24 including BSH, ASH, PPTP and EHA.

3

FINANCIAL REVIEW

The ITP Support Association would like to thank the following pharmaceutical companies (Sobi, Novartis, Amgen, Argenx, Sanofi, Grifols) for their support in providing funding support during the year. This support included the following:

We received unrestricted sponsorship to support the 2023 UK In-Person Patient Convention in London and the general running of the Association.

We received sponsorship for our work during 2024 including our virtual events and our inperson Patient Convention:

SOBI Platinum Sponsorship	- £50,000
Novartis Bronze Sponsorship	- £13,000
Amgen Bronze Sponsorship	- £13,000
Argenx Bronze Sponsorship	- £13,000
Sanofi Bronze Sponsorship	- £13,000
We also received grant funding for:
CRM System – Grifols	– £6,091
Further re-print of our SDM Document – Grifols	- £5,221

This support has also enabled the Association to support the following projects, £27,000 to Barts Health NHS Trust to provide support for the Adult and Pregnancy ITP Registries.

Support for the Paediatric ITP Registry has been put on hold as NHS England are looking to take over control of the registry.

The accounts show a deficit for the year of £16,133 (2023: £57,797 surplus).

RESERVES POLICY

The aim of the Association is to hold sufficient reserves to allow the charity to pursue their charitable objectives as the opportunities arise. Reserves for the year end were £329,401 against £345,533 in 2023.

RISK MANAGEMENT

The Trustees continue to review any major risk arising from, or impacting on, the activities of the charity. They are satisfied that the systems currently in place are sufficient to mitigate the risks in normal circumstances.

TRUSTEES RESPONSIBILITIES

The Trustees are responsible for preparing the annual report for the year ended 31 March 2024 and is approved on behalf of the Board of Trustees.

Prof. A Newland CBE

Chair of the Trustees

4

STATEMENT OF FINANCIAL ACTIVITIES

YEAR ENDED 31 MARCH 2024

		2024	2023
		All restricted &	All restricted &
		unrestricted funds	unrestricted funds
		Total	Total
		£	£
Income and endowments from:
Donations and legacies:-
Donations and grants		135,010	175,380
Subscriptions		11,233	15,154
Gift Aid		1,422	1,024
Convention sponsorship		915	-
Other revenue		79	1,468
Other trading activities
Sale of health cards and books		40	50
Sale of logo items		717	2,364
Income from investments
Bank interest received		2,098	538
		151,514	195,978
		==============================
Expenditure on:
Charitable activities:-
Research grant		27,000	48,944
Convention and seminar expenses		62,781	16,408
Other expenditure	3	77,816	71,510
		167,597	136,862
Raising funds:-
Cost of logo items		50	1,319
		167,647	138,181
Total expenditure		167,647	138,181
		==============================
Net income/(expenditure) for the year		16,133	57,797
		==============================

5

STATEMENT OF FINANCIAL ACTIVITIES continued

YEAR ENDED 31 MARCH 2024

Reconciliation of funds Net expenditure/income for the year Funds brought forward Funds carried forward	2024 All restricted & unrestricted funds Total £ 2023 All restricted & unrestricted funds Total £ (16,133) 57,797 345,534 287,736
	329,401 345,533 ========================================

All income and expenditure in 2024 relates to unrestricted funds.

The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.

6

BALANCE SHEET YEAR ENDED 31 MARCH 2024 FIXED ASSETS Not e £ 2024 £ 7 76,045 CURRENT ASSETS Unrestricted: Cash at bank - current accounts 239,010 Accounts receivable Sundry debtors 15,346 - 254,356 CURRENT LIABILITIES Creditors and accruals: amounts falling due within one year Unrestricted: Accrued expenses and commitments 8 (1,000) NET CURRENT ASSETS 253,356 NET ASSETS 329,401 FUNDS Unrestricted income fund 10 329,401 329,401 Approved by the Board on and signed on its behalf by:-

£ 267,623 - -

267,623 (500)

Prof. A Newland CBE Chair of the Trustees

7

NOTES TO THE ACCOUNTS

YEAR ENDED 31 MARCH 2024

1. ACCOUNTING POLICIES

Basis of Accounting

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) - (Charities SORP (FRS 102)) as amended by Update Bulletin 1, the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Charities Act 2011 and UK Generally Accepted Practice as it applies from 1 January 2015.

The accounts (financial statements) have been prepared to give a ‘true and fair’ view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a ‘true and fair view’. This departure has involved following Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.

ITP Support Association is an unincorporated association, constituted by a Deed of Trust. It meets the definition of a public benefit entity under FRS 102. The charity’s principal place of business is The Platelet Mission, Kimbolton Road, Bolnhurst, Bedfordshire, MK44 2EL.

Going concern

There are no material uncertainties about the charity’s ability to continue to operate.

Depreciation

Provision for depreciation of fixed assets held for use by the charity is made at annual rates calculated to spread the cost (less anticipated residual disposal value) of each asset evenly over its expected life. The depreciation rate currently in use is as follows:-

	Rate	Method
Tangible assets:-
Freehold land	Not depreciated as immaterial
Freehold buildings	2% per annum	Straight Line
Computer equipment	20% per annum	Reducing Balance
Fixtures and fittings	5% per annum	Straight Line

Fund accounting

Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.

Designated funds are unrestricted funds earmarked by the trustees for a particular future project or commitment.

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Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.

Incoming Resources

All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:

• income from donations or grants is recognised when there is evidence of entitlement to the gift, receipt is probable, and its amount can be measured reliably.

• legacy income is recognised when receipt is probable, and entitlement is established.

• income from donated goods is measured at the fair value of the goods unless this is impractical to measure reliably, in which case the value is derived from the cost to the donor or the estimated resale value. Donated facilities and services are recognised in the accounts when received if the value can be reliably measured. No amounts are included for the contribution of general volunteers.

• income from contracts for the supply of services is recognised with the delivery of the contracted service. This is classified as unrestricted funds unless there is a contractual requirement for it to be spent on a particular purpose and returned if unspent, in which case it may be regarded as restricted.

Resources Expended

Expenditure is recognised on an accruals basis as a liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates:

• expenditure on raising funds includes the costs of all fundraising activities, events, non- charitable trading activities, and the sale of donated goods.

• expenditure on charitable activities includes all costs incurred by a charity in undertaking activities that further its charitable aims for the benefit of its beneficiaries, including those support costs and costs relating to the governance of the charity apportioned to charitable activities.

• other expenditure includes all expenditure that is neither related to raising funds for the charity nor part of its expenditure on charitable activities.

All costs are allocated to expenditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.

9

Debtors

Debtors include amounts which are due to the charity and are measured at their recoverable amounts.

Creditors

Creditors include amounts payable to third parties. They are measured at the anticipated amount due to the third party in settlement of that liability.

Financial Instruments

Basic financial instruments are initially measured at the amount receivable or payable, including any related transaction costs.

2. GRANTS PAYABLE

GRANTS PAYABLE
	2024	2023
Grants to Institutions
	£	£
Manchester University Trust	-	21,944
Barts Health Care Trust	27,000	27,000
	______	______
Total	27,000	48,944
	=======	=======

3. OTHER EXPENDITURE

Other expenditure supports the charity in achieving its charitable activities and can be analysed as follows:

Trustees’ travel expenses Other travel expenses Advertising and marketing Independent examiner’s fee Bookkeeping costs Post freight and courier Printing and stationery Telephone Ligh and heat IT Costs Insurance Repairs and maintenance Legal and professional Staff costs Bank charges Subscriptions Depreciation Sundry costs	2024 2023 £ £ 1,352 1,027 3,926 3,545 - 562 500 700 - - 1,165 639 9,475 13,051 701 812 768 636 7,806 6,746 1,032 950 1,500 - (67) - 42,807 37,977 792 1,047 1,769 85 2,366 2,454 1,924 690
	77,816 71,510

================================

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4. SELF EMPLOYED COSTS

The charity had no members of staff during the current or previous year.

During the year the charity paid £42,806 (2023: £37,977) to self-employed individuals for services rendered.

5. TRUSTEES’ REMUNERATION AND EXPENSES

During the period, no remuneration or benefits were paid to the Trustees.

UK Expenses were reimbursed to the trustees and staff during the year totalling £1,352 (2023: £1,027). These related to travel and meeting expenses.

.

6. VOLUNTEERS

The charity has the support of a number of volunteers who operate both to support the operational needs of the charity and its fundraising activities.

7. TANGIBLE FIXED ASSETS

Cost As at 1stApril 2023 Additions As at 31stMarch 2024 Depreciation As at 1stApril 2023 Charge for year As at 31stMarch 2024 Net Book Value As at 31stMarch 2024 As at 31stMarch 2023

Computer Fixtures Property Equipment & Fittings Total £ £ £ £ 90,429 5,284 4,059 99,772 - - - - 90,429 5,284 4,059 99,772 ============================================= 16,129 3,515 1,718 21,361 1,809 354 203 2,366 17,938 3,869 1,921 23,728 ============================================= 72,491 1,415 2,138 76,045 ============================================= 74,300 1,769 2,341 78,410 =============================================

11

8. CREDITORS FALLING DUE WITHIN ONE YEAR

Creditors may be analysed as follows:

			2024	2023
			£	£
	Accruals for grants payable		-	-
	Accrued expenses		1,000	500
			1,000	1,000
		========		========
9.	ANALYSIS OF NET ASSETS BY FUND
		2024
		All restricted &	2024	2024	2023
		unrestricted funds	Unrestricted	Restricted	Total
		Total	Funds	Funds
		£	£	£	£
	Fixed assets	76,045	7,045	-	78,410
	Current assets	254,366	254,356	-	267,623
	Current liabilities	(1,000)	(1,000)	-	(500)
	Fund Balance	345,533 345,533		-	345,533
		============================================

10. FUNDS

Movement in the Year to 31 March 2024

	Balance at				Balance at
	1 April	Incoming	Resources	Transfer	31 March
	2023	resources	expended		2024
Unrestricted Funds
General income fund	345,533	151,514	167,647	-	329,401
Restricted funds	-
Total unrestricted funds	345,533	151,514	167,647	-	329,401
	===============================================================

12

Movement in the Year to 31 March 2023

	Balance at
	1 April	Incoming	Resources	Transfer	31 March
	2022	resources	expended		2023
Unrestricted Funds
General income fund	287.736	195,978	138,181	-	345,533
Restricted funds	-	-	-	-	-
Total unrestricted funds	287,736	195,978	138,181	-	345,533
	===============================================================

11. RELATED PARTY TRANSACTIONS

No related party transactions have occurred in the year that require disclosure.

13

INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF ITP SUPPORT

ASSOCIATION YEAR ENDED 31 MARCH 2024

I report on the accounts of the Trust for the year ended 31 March 2024, which are set out on pages 6 to 12.

Respective responsibilities of trustees and examiner

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

It is my responsibility to:

• examine the accounts under section 145 of the 2011 Act;

• to follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and

• to state whether particular matters have come to my attention.

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below.

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

• (1) which gives me reasonable cause to believe that in any material respect the requirements:

• to keep accounting records in accordance with section 130 of the 2011 Act; and

• to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act

have not been met; or

• (2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Peter Duboff FCA Kingsbury House 468 Church Lane London NW9 8UA

Date: