2021-03-31-accounts - Itp Support Association

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CHARITY NUMBER 1064480

ITP SUPPORT ASSOCIATION

FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021

ITP SUPPORT ASSOCIATION

FINANCIAL STATEMENTS

YEAR ENDED 31 MARCH 2021

CONTENTS	PAGES
Report of the Trustees	1 - 3
Statement of Financial Activities	4 - 5
Balance Sheet	6
Notes to the Accounts	7 – 12
Independent Examiner’s Report	13

REPORT OF THE TRUSTEES

YEAR ENDED 31 MARCH 2021

The Trustees have pleasure in presenting their report, together with the financial statements for the year ended 31 March 2021.

REFERENCE AND ADMINISTRATIVE DETAILS

STATUS

The ITP Support Association is an unincorporated association, constituted by Deed of Trust and is a registered charity number 1064480.

ADDRESS OF THE CHARITY

ITP Support Association The Platelet Mission Kimbolton Road Bolnhurst Beds MK44 2EL

TRUSTEES AND EXECUTIVES

Mr M Morgan - Chief Executive Prof. A Newland CBE - Chair of the Trustees Mr D Elston - Trustee Mrs X Norman - Trustee Mr C Williams - Trustee

Trustees are recruited and appointed by approval from the existing Trustees.

No remuneration or benefits have been paid to trustees and no material donations received from them. Where expenses have been paid to trustees and related parties during the year, these are detailed in notes 5 to the accounts. M MORGAN

RISK MANAGEMENT & ORGANISATIONAL STRUCTURE

The charity is managed by the Trustees, who are responsible for setting policies and procedures, and managing the affairs of the charity to meet its objectives.

PROFESSIONAL ADVISORS

Bankers HSBC Bank Plc 12 Allhallows Bedford Bedfordshire MK40 1LJ CAF Bank Ltd 25 Kings Hill Avenue Kings Hill West Malling, Kent ME19 4JQ

PROFESSIONAL ADVISORS CONTINUED

PayPal (Europe) Sàrl et Cie SCA 5[th] Floor 22-24 Boulevard Royal L-2449, Luxembourg Independent Examiner Peter Duboff FCA

OBJECTIVES AND ACTIVITIES

Objective

The charity is organised as an association, managed by the trustees, whose purpose is the relief of sickness of persons with Immune Thrombocytopenia (ITP), and in particular to promote, improve, develop and maintain the general welfare of ITP patients and the families of children with ITP. In forming our objectives and planning our activities, the Trustees have considered the charity Commission’s guidance on public benefit.

Activities

The activities of the association include the provision of:-

Patient and family support
Local ITP Support Groups
ITP contact volunteers known as ITP Friends
Social networking platforms for patients to communicate
Information for patients through the Association publications and website
Regular newsletters/journals
Guidelines for schools
Guidelines for dentists of patients
Advice for patients and families on referrals to specialists
National annual conventions for patients and families
Occasional surveys of membership for educational purposes
Collation and dissemination of information relating to ITP
Occasional medical seminars for health professionals

In addition, the Association uses its funds to assist the medical profession to understand ITP. It does this through awarding grants to support basic, clinical and qualitative scientific research work in the UK into the understanding, treatment and prevention of ITP.

ACHIEVEMENTS AND PERFORMANCE

During 2020/21 the Association has continued to grow and extend its reach across the whole of the United Kingdom and Ireland. Even with the Covid Pandemic at its height the network of ITP Local Support Group meetings continued to expand with additional meetings being held on Zoom for the various regions of the United Kingdom and Ireland.

The ITP Support Association in-person convention, originally scheduled for May 2020 was postponed to a virtual event in October 2020, the virtual format was highly successful and extremely well received.

FINANCIAL REVIEW

The ITP Support Association would like to thank the following pharmaceutical companies (Amgen, UCB, Argenx and Grifols) for their support in providing funding to support our changes due to the Covid Pandemic. In addition, we would also like to thank Argenx for supporting our quarterly magazine ‘The Platelet’ with £10k sponsorship.

Amgen also supported our ITP survey project with a grant of £5k.

We also received a total of £70,000 in unrestricted sponsorship to support the 2020 UK Virtual Convention in London and the general running of the Association.

£20,000 UCB Pharma £15,000 Argenx £15,000 Novartis £10,000 Principia Biopharma £10,000 Amgen

This support has also enabled the Association to support the following projects, £21,944.25 to Barts Health NHS Trust to provide support for the Adult ITP Registry. In addition, there was a further allocation of £21,944 to Manchester University Trust to support the Paediatric ITP Registry. We also paid a legacy grant (agreed back in 2017) to the University of Leeds for £8,500 to cover the costs of a research project.

The accounts show a deficit for the year of £22,026 (2020 surplus, £7,447).

RESERVES POLICY

The aim of the Association is to hold sufficient reserves to allow the charity to pursue their charitable objectives as the opportunities arise. Reserves for the year end were £229,687 against £251,713 in 2020.

RISK MANAGEMENT

The Trustees continue to review any major risk arising from, or impacting on, the activities of the charity. They are satisfied that the systems currently in place are sufficient to mitigate the risks in normal circumstances.

TRUSTEES RESPONSIBILITIES

The Trustees are responsible for preparing the annual report for the year ended 31 March 2021 and is approved on behalf of the Board of Trustees.

Prof. A Newland CBE Chair of the Trustees

STATEMENT OF FINANCIAL ACTIVITIES

YEAR ENDED 31 MARCH 2021

		2021	2020
		All restricted &	All restricted &
		unrestricted funds	unrestricted funds
		Total	Total
		£	£
Income and endowments from:
Donations and legacies:-
Donations and grants		61,131	50,280
Subscriptions		14,810	10,586
Gift Aid		1,569	1,702
Convention sponsorship		15,000	67,619
Other revenue		1,081	-
Other trading activities
Sale of health cards and books		-	-
Sale of logo items		2,333	1,764
Income from investments
Bank interest received		20	62
		95,944	132,013
		==============================
Expenditure on:
Charitable activities:-
Research grants and subsidiaries	2	52,444	56,328
Newsletter/Journal printing		-	8,864
Convention and Seminar expenses		9,638	12,261
Other Expenditure	3	55,408	45,563
		117,490	123,016
Raising funds:-
Cost of logo items		564	1,550
		564	1,550
Total Expenditure		118,054	124,566
		==============================
Net (Expenditure)/Income for the year		(22,110)	7,447
		==============================

STATEMENT OF FINANCIAL ACTIVITIES continued

YEAR ENDED 31 MARCH 2021

Reconciliation of funds Net (expenditure)/income for the year Funds brought forward Funds carried forward	2021 All restricted & unrestricted funds Total £ 2020 All restricted & unrestricted funds Total £ (22,110) 7,447 251,713 244,266 229,603 251,713 ==============================

All income and expenditure in 2021 relates to unrestricted funds.

The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.

BALANCE SHEET

YEAR ENDED 31 MARCH 2021

FIXED ASSETS Note £ 2021 £ 81,926 81,926 CURRENT ASSETS Unrestricted: Cash in hand - Cash at bank - current accounts 140.970 Other debtors Sundry debtors - Gift Aid outstanding 5,640 1,567 148,177 CURRENT LIABILITIES Creditors and accruals: amounts falling due within one year Unrestricted: Accrued expenses and commitments 8 (500) NET CURRENT ASSETS 147,677 NET ASSETS 229,603 FUNDS Unrestricted income fund 10 229,603 229,603 Approved by the Board on and signed on its behalf by:-	£ - 141,771 25,640 1,567	2020 £ 83,235 83,235 168,478 251,713 251,713 251,713
	168,978 (500)

Prof. A Newland CBE Chair of the Trustees

NOTES TO THE ACCOUNTS

YEAR ENDED 31 MARCH 2021

1. ACCOUNTING POLICIES

Basis of Accounting

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) - (Charities SORP (FRS 102)) as amended by Update Bulletin 1, the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Charities Act 2011 and UK Generally Accepted Practice as it applies from 1 January 2015.

The accounts (financial statements) have been prepared to give a ‘true and fair’ view and have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a ‘true and fair view’. This departure has involved following Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 rather than the Accounting and Reporting by Charities: Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn.

ITP Support Association is an unincorporated association, constituted by a Deed of Trust. It meets the definition of a public benefit entity under FRS 102. The charity’s principal place of business is The Platelet Mission, Kimbolton Road, Bolnhurst, Bedfordshire, MK44 2EL.

Going concern

There are no material uncertainties about the charity’s ability to continue to operate.

Depreciation

Provision for depreciation of fixed assets held for use by the charity is made at annual rates calculated to spread the cost (less anticipated residual disposal value) of each asset evenly over its expected life. The depreciation rate currently in use is as follows:-

	Rate	Method
Tangible assets:-
Freehold land	Not depreciated as immaterial
Freehold buildings	2% per annum	Straight Line
Computer equipment	20% per annum	Reducing Balance
Fixtures and fittings	5% per annum	Straight Line

Fund accounting

Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.

Designated funds are unrestricted funds earmarked by the trustees for particular future project or commitment.

Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.

Incoming Resources

All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:

income from donations or grants is recognised when there is evidence of entitlement to the gift, receipt is probable, and its amount can be measured reliably.
legacy income is recognised when receipt is probable, and entitlement is established.
income from donated goods is measured at the fair value of the goods unless this is impractical to measure reliably, in which case the value is derived from the cost to the donor or the estimated resale value. Donated facilities and services are recognised in the accounts when received if the value can be reliably measured. No amounts are included for the contribution of general volunteers.
income from contracts for the supply of services is recognised with the delivery of the contracted service. This is classified as unrestricted funds unless there is a contractual requirement for it to be spent on a particular purpose and returned if unspent, in which case it may be regarded as restricted.

Resources Expended

Expenditure is recognised on an accruals basis as a liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates:

expenditure on raising funds includes the costs of all fundraising activities, events, non- charitable trading activities, and the sale of donated goods.
expenditure on charitable activities includes all costs incurred by a charity in undertaking activities that further its charitable aims for the benefit of its beneficiaries, including those support costs and costs relating to the governance of the charity apportioned to charitable activities.
other expenditure includes all expenditure that is neither related to raising funds for the charity nor part of its expenditure on charitable activities.

All costs are allocated to ex600penditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.

Debtors

Debtors include amounts which are due to the charity and are measured at their recoverable amounts.

Creditors

Creditors include amounts payable to third parties. They are measured at the anticipated amount due to the third party in settlement of that liability.

Financial Instruments

Basic financial instruments are initially measured at the amount receivable or payable, including any related transaction costs.

2. GRANTS PAYABLE

GRANTS PAYABLE
	2021	2020
Grants to Institutions
	£	£
Manchester University Trust	21,944	21,944
Barts Health Care Trust	22,000	34,000
University of Leeds	8,500	-
Subsidiaries	-	384
	_	_
Total	52,444	56,328
	=======	=======

3. OTHER EXPENDITURE

Other expenditure supports the charity in achieving its charitable activities and can be analysed as follows:

and can be analysed as follows:
	2021	2020
	All restricted &	All restricted &
	unrestricted funds	unrestricted funds
	Total	Total
	£	£
Travel expenses	534	3,546
Independent examiner’s fee	700	1,507
Bookkeeping costs	1,305	-
Post freight and courier	1,216	575
Printing and stationery	7,659	266
Telephone	707	584
Heat and light	348	357
IT Costs	2,186	2,252
Insurance	873	867
Repairs and maintenance	519	341
Donations	33	-
Staff costs	36,645	32,811
Bank charges	273	234
Depreciation	2,327	2,152
Sundry costs	83	71

55,408 45,563

================================

4. Self Employed Costs

The charity had no members of staff during the current or previous year.

During the year the charity paid £36,645 (2020: £32,811) to self employed individuals for services rendered.

5. TRUSTEES’ REMUNERATION AND EXPENSES

During the period, no remuneration or benefits were paid to the Trustees.

Expenses were reimbursed to the trustees and staff during the year totalling £534 (2020: £3,456). These related to travel and meeting expenses.

6. VOLUNTEERS

The charity has the support of a number of volunteers who operate both to support the operational needs of the charity and its fundraising activities.

7. TANGIBLE FIXED ASSETS

TANGIBLE FIXED ASSETS
Cost As at 1stApril 2020 Additions As at 31stMarch 2021 Depreciation As at 1stApril 2020 Charge for year As at 31stMarch 2021 Net Book Value As at 31stMarch 2021 As at 31stMarch 2020	Computer Fixtures Property Equipment & Fittings Total £ £ £ £ 90,429 3,063 4,059 96,852 - 1,019 - 1,019
	90,429 4,082 4,059 98,570 ============================================= 10,703 2,504 1,109 14,316 1,808 316 203 2,328
	12,511 2,820 1,312 16,644 ============================================= 77,918 1,262 2,747 81,926 ============================================= 79,726 559 2,950 83,235 =============================================

8. CREDITORS FALLING DUE WITHIN ONE YEAR

Creditors may be analysed as follows:

			2021	2020
			£	£
	Accruals for grants payable		-	-
	Accrued expenses		500	500
			500	500
		========		========
9.	ANALYSIS OF NET ASSETS BY FUND
		2021
		All restricted &	2021	2021	2020
		unrestricted funds	Unrestricted	Restricted	Total
		Total	Funds	Funds
		£	£	£	£
	Fixed assets	81,926	81,926	-	83,235
	Current assets	148,177	148,177	-	168,978
	Current liabilities	(500)	(500)	-	(500)
	Transfer	-			-
	Fund Balance	229,603	229,603	-	251,713
		============================================

10. FUNDS

Movement in the Year to 31 March 2021

	Balance at				Balance
	1 April	Incoming	Resources	Transfer	31 March
	2020	resources	expended		2021
Unrestricted Funds
General income fund	251,713	95,944	(118,054)	-	229,603
Restricted funds	-
Total unrestricted funds	251,713	95,944	(117,970)	-	229,603
	===============================================================

Movement in the Year to 31 March 2020

Balance at				Balance
	1 April	Incoming	Resources	Transfer	31 March
	2019	resources	expended		2020
Unrestricted Funds
General income fund	244,266	132,013	(124,566)	-	251,713
Pregnancy fund	-	-	-	-	-
Restricted funds	-	-	-	-	-
Total unrestricted funds	244,266	132,013	(124,566)	-	251,713
	===============================================================

The pregnancy fund contains unrestricted funds which have been designated by the trustees towards the compilation of a pregnancy register. The cost of this register is accrued at the period end and is thus included within expended resources on the Statement of Financial Activities.

11. RELATED PARTY TRANSACTIONS

No related party transactions have occurred in the year that require disclosure.

INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF ITP SUPPORT

ASSOCIATION YEAR ENDED 31 MARCH 2021

I report on the accounts of the Trust for the year ended 31 March 2021, which are set out on pages 6 to 12.

Respective responsibilities of trustees and examiner

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

It is my responsibility to:

examine the accounts under section 145 of the 2011 Act;
to follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
to state whether particular matters have come to my attention.

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below.

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

(1) which gives me reasonable cause to believe that in any material respect the requirements:
to keep accounting records in accordance with section 130 of the 2011 Act; and
to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act

have not been met; or

(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Peter Duboff FCA Kingsbury

Date: