# Stickler Syndrome UK

## Details

- **Country:** England & Wales
- **Charity number:** 1060421
- **Other names:** STICKLER SYNDROME SUPPORT GROUP, DAVID PITCHER TRUST FOR YOUNG PERSONS, STICKLER SYNDROME CHARITABLE TRUST
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Jan. 28, 1997
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1060421


## Contact

- **Address:** 30 Juniper Close, MAIDSTONE, Kent
- **Postcode:** ME16 0XP
- **Phone:** 08000668273
- **Email:** contact@stickler.org.uk
- **Website:** www.stickler.org.uk



## Activities

**Objects:** TO PROTECT AND PRESERVE HEALTH BY INFORMING THE PUBLIC OF THE DANGERS OF RETINAL DETACHMENT AND THE IMPORTANCE OF EARLY DIAGNOSIS AND TREATMENT; TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF STICKLER SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY; TO RELIEVE PERSONS SUFFERING FROM STICKLER SYNDROME AND ASSOCIATED CONDITIONS.

**Activities:** Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Provides Advocacy/advice/information, Other Charitable Activities
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind



## Areas of operation

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Sept. 30, 2024 | £46388 | £32619 | — | — |
| Sept. 30, 2023 | £11882 | £8701 | — | — |
| Sept. 30, 2022 | £10385 | £10682 | — | — |
| Sept. 30, 2021 | £5738 | £7772 | — | — |
| Sept. 30, 2020 | £6040 | £8410 | — | — |



## Trustees

- Elaine Bruley — appointed March 23, 2023
- Ian Ernest Joslin — appointed March 23, 2023
- Sarah Catherine Maybourne — appointed Nov. 21, 2023