REGISTERED COMPANY NUMBER: 03262144 (England and Wales) REGISI'ERED CHARITY NUMBLR: 1059067 Report of the Trustees and Unaudited Financial Statements for the Year Ended 31 March 2025 for Wales Epllepsy Association CYF (A Company limited by Guarantee) Wales Epilepsy Association CYF Contents of the Financial Statements for the Year Ended 31 March 2025 Page Report of the Trustees Ito6 Independent Examiner's Report statement of Fina ncial Activities Balance Sheet 9tolO Notes to the Financial Statements Ilto15 Detailed Statement of Financia l Activities 16 Wales Epilepsy Association Trustees, Report for the year ended 31 March 2025 The trustees present their report and the financial statements for the year ended 31 March 2025. Governing instrument The charity is controlled by its governing document, the Memorandum and Articles of Association, and constitutes a company, limited byguarantee, as defined by the Companies Act 2006. The company was incorporated on Ilth October 1996 and is registered as a charity. Our Mission - Working throughout Wales wlth people affected by epilepsy Alms and Objectives To ensure that people with epilepsy, their family and carers have timely acce55 to the information and support they require to m inimise the impact and risks associated with the condition. To enable people with epilepsy to strlve towards achieving their full potential, have a better quality of life and improved seizure control. To raise awareness of the impact and risks associated with epilepsy, to inf luence policy makers, health professionals and individuals affected by epilepsy a nd ca mpaign for improvements In epllepsy care and services and the prevention of epilepsy related injury and death. Epilepsy Wales also aims to provide a voice and forum for people with epilep5V, their family and carers within Wales. We review our aims and objectives annually to assess our achievements and outcomes over the previous twelve months, thus ensurlng that we remain focused on our stated mission. We continue to take guidance from the Charity Commi55ion and adbere to government directives and NICE guidelines. Monitoring and feedback system5 ensure that our range of services are appropriate to the needs of people with epilepsy, their families and carers as well meeting the expectations of the wider community and commissioners. Focus of our Work We deliver support through a range of activities and involvement.. At a personal level, providing advice, information and fieldworker support. At a local level, providing services to neurologist, specialist GP a nd nurse-led clinics a nd through our involvement with Epilepsy Wales self-help and support groups. We also provide training, advocacy and support services within the community. At regional level through membership of professional and practice development group5. We work in partnership with Third sector, Epilepsy and Neurological forums promoting awareness and educatior7. At national, all-wales level through our work with the Welsh Government, Neurological Alliances and Research forums. We are also able to reach thousands of people through our website, www.epilepsy.wales The core objective of all of this work is to ensure that people with epilepsy: are able to live full and active lives enjoy good health and well-being have improved job and leisure opportunities, enjoying the friend and family relationships so important to wellbeing We also seek to promote freedom from discrimination and social exclusion often associated with this stigmatised condition through public education and awareness traini ng events. Rescue medication and epilepsy awareness training sessions are delivered to Health, Social Care, Education employees as well as third sector organisation5, care agencies and fami lies Activities and events during the year This year, thanks to the generous fundSng from the COL Community Fund and service level agreements with Health boards, donations and activities we successfully delivered inclusive and accessl ble services to individua Is with epilepsy, along with supporting family members, health and Social care professionals. Our work this year has allowed individuals and families affected by epilepsyto have the information and support to live full and healthy lives, limiting the impact of epilepsy, improvin8 wellbeing and confidence. We tackled health, social, and f inancial i nequalities by supporting individuals to start or retain employment through tailored advocacy, advice, and employer training providing speclfSc support and advice for those affected by cost of livi ng and financial difficulties as well developing our epilepsy and rescue medication training to meet the ever increasing demand by families, health, education and social care workforce. Our col laboration with partners In health, transport, mental.health, education, and neurological organizations fostered awareness events, reaching diverse audiences including NHS staff in primary ca re, hospltal, a nd community settings, learning d isability and mental health teams, Transport for Wales staff from across Wales. We took part in two conferences one a mental health conference and another in collaboration with Headway brain Injuries charity. Our services were accessed through referrals from a wide range of agencie5 and of course self- referrals. Th is i ncludes, neurologists, epilepsy specialist nurses, GPS, learning disabi lity and mental health teams, educatlonal institutlons, incl ud Ing schools and col lege nurses, housin8 and homele5S prevention teams, probation, drug and alcohol services, refugee support services. Our work helps to identify and reduce risks, promoting safety, independence, improved life opportunities and individual choice. This work promotes positive outcomes for individuals and prevents unnecessary hospital admissions. Duri ng the ongoing cost-of-living crisis, we observed significant effects on both mental and physical health, often exacerbating social isolation. Skilled intervention from our project staff and volunteers has proven invaluable. We are committed, with the support of our funders, staff, volunteer5 and trustees to continue in our mission of supporting individ uals and fami lies affected by epilepsy and deliveri ng quality services that make a difference in people l ives, red ucing the impact of epilepsy and promoting wellbeing for individuals with epilepsy and their famil ies. Volunteers remain a driving force within our epilepsy communityi supporting social events, promoting awarenes5 and raising funds including one long-standing volunteer, who despite having complex epilepsy, completed a sponsored walk. The Bangor Support group raising awareness about epilepsy on Purple Day. "Epilepsy Wales, group bring us all together by listening ond learning about how epilepsy ¢7ffects us and help each other through difficult times. Learning I'm not the only one has made me more confldent to soy, "I have epilepsy. Finances The funding we received this year has enabled us to continue services but unfortunately we have had to make cutback in staff as funding from our COL grant finished. We continue to look at diverse sources of income and are awaiting funding decisions. Unfortunately this has resulted In cuts to our outreach support in South Wales. Our other service5 including helpline, digital services and training continuing as normal in South Wales. Our North Wales outreach, trainin8 and other services continue supported by our health board service level agreement and other sources of funding. Looking Forward Our determination and strategic planning will help us navigate these funding challenges. With a firm understanding of our goals and the community's evolving needs, we are confident in our ability to sustain the critical services we offer. By ensuring funders recognise the va lue of our work a nd it5 alignment with their objectives, we aim to secure the mu5tiyear grants necessary for future growth and the retention of our skilled and ded icated staff. The year ended 31 March 2025 saw a deficit for the year of £57,938. As of 31 March 2025, there were total retained funds of £45,34912024 - £103,287). Reserves policy Our policy 15 to operate with reserves of at least 4 months running costs. As of 31 March 2025, unrestricted funds amounted to £45,349. Golng concern There are no material uncertainties about the charity's a bility to continue. Delivering public benefit The Directors have had regard to the Charity Commission's guidance on Public Benefit. Our activities deliver public benefit by 5UPPOrting individuals affected by epilepsy, including familv members, carers, educators, employers and other service providers to mlnlmlse the impact and risks associated with epilepsy and promote health, wellbeing and opportunities to contribute to the community. Our activities support people with epilepsy to live healthier, more independent and productive lives, reducing hospital admissions, promotlng employment opportunities and lessening the need for benefits and support serwices, This ha5 both financial and personal benefits for individuals affected by epilepsy, their families and the wider community, Our volunteers, many of them with epilepsy, contribute enthusiastically to thel r local communities. Ensurlng our work dellvers our aims Epi lepsy Wales will conti nue to.. Listen to people with epilepsy Fight for the changes that people with epllepsy and their families and supporters need Support people living with epi lepsy Give timely and accessible information a nd advice Work in partnership with people with epilepsy, families, groups and professionals Endorse collaborative working Our collaborative work has included.. Working with a variety of third sector, epilepsy and neurologica l organisations to raise awareness, provide support and share research. Working with Health, Social Care sector and Housing to better support our clients, needs. Also providing training to all the above sectors. Client research - in collaboration with various organisations. We review our aims and objectives annually to assess our achievements and outcomes over the previous twelve months, thus ensuring that we remain focused on our stated mission. We contlnue to take guidance from the Charity Commission and adhere to government dlrectives and NICE guidelines. Monitoring and feedback systems ensure that our range of services are appropriate to the needs of clients with epilepsy, their families and carers as well as meeting the expectation5 of the wider community and commissioners. Recruitment and appointment of new trustees Under the requirements of the Memorandum and Articles of Association the members of the Management Committee are elected to serve for a period of three years after which they must be re-elected at the next Annual General Meeting. All trustees give their time voluntarily and receive no benefits from the charity. Any expenses reclaimed are set out within the account5. The Management Committee ensures that as well as the traditional business and medical skills mix the needs our service users are reflected by the diversity of our trustee body where people with epi lepsy, fa mi ly and car¢rs are represented. Trustee induction All trustees are encouraged to be actively Involved with our work and as part of their induction are given the 'Essential Trustee Guide published by the Charities Commission. New Trustees will be briefed on their legal obligations under charity and company law, the content of the Memorandum and Articles of Association, the committee and declslon-making processes. Rlsk Management The trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate contro15 are in place to provide reasonable assurance against fraud and error. The Management Committee has conducted a review of the major risks to which the charity is exposed. Thls Is reviewed and updated at least annually. Systems and procedures are established, where appropriate, in order to mitigate potential risk. Seek out diversifled funding to develop outreach projects which enhance our existi ng service and focus on areas of identifled need as outlined in our Big Lottery Community fund proposal. Respond to the need and requests of fam ilies affected by epilepsy. Identify the gaps in service and reduce the impact and risk associated with epilepsy. Maintain existing service level agreements and n6gotiate to secure new SLAS with Health Boa rds in order to ensure continuity of the delivery of our epi lepsy services across Wa les. Continue to build on ourwork with partner organisations and as stakeholders to the National Institute of Clinlcal Excellence promoting an understandi ng of the needs of people affected by epilepsy and good practice. Work collaboratively with our partners - clients, families, health and Social care teams and commissioners to ensure that our services are "fit for purpose" and meet evidenced need, Develop opportunities for collaboration, cost savings and shared good practice with other orga nisations and partners. Undertake and support research that promotes good practice in service development. Ensure that staff and trustee5 are trained and supported in thelr roles so that they can be fully involved in the delivery of a service that is responsive a nd fit for purpose. Ensure the continued effective governance of Epilepsy Wales through regular review and compliance testing. REFERENCE AND ADMINISTRATIVE DETAILS Registered Company number 03262144 (England and Wales) Registered Charity number 1059067 Reglstered office Unit B15 Bersham Enterprise Centre Rhostyllen Wrexham LL14 4EG Trustees Mrs E M Jonkman {Chairl Mr F Patterson (Treasurer) Mr R Elias BEM Mrs l Elias Mrs L R Bidmead Independent examiner E&P Accountants Park House 45 Rhosddu Road Wrexham LLII 2NS Approved by order of the board of trustees on signed on its behalf by; and Ella Jonkman (Chairman) Independent Examiner's Report lo thL Trustees of Wales EpilLpsy Association CYF IndLpLndent exdminer's rop()rt to the tru.4tees uf Wales IpilLPYy A8soLiati(pn CYF ('the Com pany,) I i'epoi't to ilie chai-ity tiiistecs oil iny exllinuiatioii of Ille accoiillts of the Cotllp#Lly foi. the yeai. ellded 31 March 2025. Ilespun¥ihilitiLI.% and basis ()f report As tlie cliai'ity's tnistees of tlie Coinpaiiy (aiid also its dllectors for the piiiyoses of coinpaiiy law) yoii al'e i'espoiisible foi. tlie pJ'¢paratioIi of the accoullts ui accoTdallce witli tlie reqiiu'eineiits of the Coinpaiiies Act 2006 ('Ihe 20116 Act,). HEtviiig satistLed Inyself tliat tlie ac¢oiinis of tlie Coinpaiiy ai¢ iior i'eqiiired to be aiidited iiIider Part 16 ot. rhe 21106 ALI and arL Lligible foi. iiidepciideiil cxaniiTldli()ii, l itport in rLspLLI ()finy Lxaminaiion ()fyoiii' Lharity's accounl% Ms Larried ()iit uiider Section 145 1)r IhL Chui'ilies ALI 2011 ('tlIL 201 I ALI,). In canyiiig out Iny exaiiiii)g(ioii I liave r(IllowLd ilic l)ireLlioiis givei) by Ilic Cliarily CI)Iniiii5bi()ii uiidcr seLliui) 145(5) (b) of Ihe 2011 Act. Independent ¢xamlner's $tatement I liavc coiiiplel¢d niy Lxaininaiion. I confim Ih81 no mallers have coine to my altenli(¥n in connLLtion wilh the exaiiiiiialioii giviiig iiie caiise t() beliLVe.' accoiiniuig Lecoi'ds wei'e iiol kept iii respect of tlie Coiiipaiiy as reqiilltd by seelioii 386 of the 2006 Act, or 2. tlie accoiiI)ts do i)ol llec01￿ witli Ihose recoiyis. oi. Ihe Mc'coiiiils do noi comply wilh the accoiiiiling i-L'qL1ifLI￿L'nLS ()1" %LLlion 3()6 nf IhL 2006 Act oihei. than any IfClUil'ClllLI)I Ilial 11)e aLcoiiiils givL <1 Iiiic ￿]d frail. viLw wliicli is i)()I d 11)JIILI' Lciii.%idLrLd pul'l Ill. uii llidepeiideiit exainiiiation. or the aicounl% h8ve iiol heen pi'epftred in accoi'dancL Wlth ihe niclli()ds and pi'incTplcs of Ihe Statement of IILLninineiid(..d Practicc for ilLL()1113tiii8 ai)d i-Lp()I'liii& l)y cliari(ies | appliLablL lo Lliai'itl¥% Ill'¢Pill'lllg? Ilicir accouiits 111 kiL¢orddiice willi Ilie P'iiiiiiiciiil Reporliiig Staiida]'d (Ipplicable iii Ilie IJK Iii)d IILptibliL ()[' Irel￿ld (FRS 102)1. I liavL l)0 ¢()Iicern5 diid SiuvL comL' aCY055 no other mallLr% in con￿"Cli011 will) IhL' exuTninulion l() which allLnlioii 81i(>iild h¢ th'tjwii iii Iliis rcp()rl iii oi.dcr 10 eiiablc a pi'i)per iiiiderslJi)diiig ol. IliL uccoiiiils to be reaclied. ' A V EvAiis FCCA E&P Accountants 45 Rliosddu Road Wrexhain LLII 2NS Ddle.. c).¥....I, OY 12 W#les Epilepsy A.s.sociatinn CYF StatenivnÉ of Fln#nclal AL'tlvlties lor the Year Dded JI M#r¢h 2025 31.3.25 31.3.24 Uiircsli'iclLd Kcslri¢ied tuiid Total fllnds Total luiids Notcs IIYL()ME ANI) ENDOWMF,NT.S FRQM Doiidliviis ￿]d lobya¢ie8 Icomc troiii charilable uetivici¢s IiivLsliiiciit iiicoinc 5.912 9,317 925 5,912 102,25 I 925 29,771 96,267 822 92.934 Tottsl 16,154 9?,934 109,088 126.860 I xpfi NDITURf ON Chai'ilable aLlivili#5 F'uiidr8isiiig activities 73,876 216 92,934 166,810 216 120,8211 885 Total 74,092 92,934 167,026 121,713 NF,T INCOMF/(EXPENI)ITURF,) RECONCILIATION OF FUNDS (57,938) 0 (57,938) 5,147 Tothl I￿n(lI brought forwjrd TOTAL FUNDS CAKRIED F()RWARD 349 The notL￿￿ form part of these financial statements Wall's Epilepsy Association CYF RttlllnLQ £hLLIt At 31 MarLh 2025 31.3.25 31.3.24 unrcstric.tcd Rc.sliicted fiii)d 'rotal fiinds T()181 fuiids Nol¢s FIXET) A,SS'ITS -[￿IgIble assets 382 382 765 CURRENT ASSETS Siocks Cash al bank 50 50 50 1113 7911 46,683 46,683 103,840 ciir,i)ITORS Ai1)oiiiits lalliiig diie wiiliiii oiic yeai. (1,716) (1.716) (1,318) NF,T CURRF,NT AS¢iF,I'S 44,¢)07 44,967 102,522 TOTAL Assf,T% LESS) cuiiiir,NT LIAJJILITir. Nf,T ASSFTS FUIYI) Lliwe5lriLl¢(l LtiIids Resti'icled fuiids 45,349 103,287 TQTAL FUNDS The notes form part or these ftJnancA#l $tatement¥ Wales Epilep8y Assotiation CYF Balance Sheet- continued At 31 Mareh 2025 'Ihe Lhariiable coimpaiiy is ciititled co exeinptinn froni aiidit uiider Sectioii 477 ot the Companies Act 2006 Lor the year endLd 31 Mai'cli 202$, ThL incn)bLf8 1)ave ni)I rLqiiirL'd Ihe cornpany 10 obillin an aiidil of 118 financial 8tatenienls foi. thc ycar cndcd 31 Mdl'Lh 2025 in occorduiiLe wilh SLLliaii 476 of thc CompaniLS Act 21106. 'rhc tnisi¢es acknowledge Ihcir rcgpon8ibilitics for (a)eiisuriiig thal IhL charilablc Lompaiiy keep5 aiLOIITiling reLor£ls Ihat comply wilh Seciiong 3 86 and 387 of the Coiiipanics Act ?006 aiid (b)pi'eparuig tuiaiicial st the Financi#l Statements for th¢ Year FAnded 31 MarLh 21125 Movf.MINT IN FUNDS - eontinued ComparalivL IILI movLmenl in fiinds, iiicliided iii the above are us follows: hicomiT)g resoiii'cL'S Rcsoiiitcs Lxpeiidcd Movemenl in riinds Unrestrieted funds Geiieral fiiiid 35,622 (30,475) 5,147 Re.$triLted fund% (yeiiLI'al KLslriciLd FLlI)d 91,238 91238) TOTAL FUNI)Gi 12 713 A cuiitiil year 12 inoiitlis aiid Plior yeai. L2 inoi)tEis ¢oinbiiied positioii is is tollows,, Net Jiioveii)eiit lli liiIids At 1.4.23 At 31.3,25 UnrestrlLtL41 funds CyLIILral luiid 98,140 (52,791) 45.349 IIL'¥triLled t'und¥ Geii¢i'al Ilesti'icted fiiiid TOTAL FUNDS A CUiTClIt ycai. 12 moiillis aiid pi'ior yLdl' 12 111()Iiilis Loiiibiiied iiet iniivenienl ili I'uiids, ii)LludLd iii Ilie dbnvL are 1()Ilows'. Incoining I'LSuiifL¢. Resoui'ces expLiided Moveineiit iii fuiids UnrL'+>trlcted funds GLiiei'al luiid 51,776 (104.567) (52,791) IlestriLted funds GeiiLI'dl RestriLled Flind 184 172 1114 172) TOTAL FUNI)S 28 io. RELATED PARTY DI.SCLOSURES Therc werL no i'elalcd party transactions foi- Ili¢ ycaT Cl?ded 31 March 21125 15 Wales Ipilep8y Association CYF Detailed StatL'ment of Finaneial Activities for thL Year [% ndL.d 31 March 2025 31.3.25 31.3.24 INCOMF, ANI) F,NDOWMF.NTS Income from ch¥rital)le aLtivitie$ Betsi Cadwaladr UI-ID Big Lottery Tralliiiig provided 46,228 45,010 5,029 45,010 9,317 Donation% and leLiacies l)ondli()n5 and tiindi'uising 102,251 96,267 5,912 29,771 Tnv¢stment ineomc itercst i'eceivable 925 822 Tot#1 inLI)mlng resourL'es 109,OX8 12Cy,1160 EXI)F.NI)ITURF ChMrltal)le a¢tlvitiL.' BaT)k LhurgL.8 Siippoi'l gr()Iip expensL.8 Regisii'atioiis njid aftiliatioiis Ollice costs Travelliiig i)Iid %ubsislLIIC¢ TLILplioiie uiid p()Slag¢ Priiiliiig, siatioiieiy aiid Jdveriiseinent SlalTLosls IndLPLndenl examiiiali(In Fee In%iirunLe 98 376 15 999 240 4.041 5,354 1,974 1,270 150.493 1,200 1,621 5,015 5.444 1,812 981 103,166 1,21)0 1,573 DepreciatioiR 383 383 Fund ralslng actlvities PubliL'ily, pr()inoli()n ￿]d luiidraisiii 166,810 120.828 216 885 Total r¢sourcLs CXPL￿ded 167,026 121.713 Ne¢ (expendituro)linLome (57,938) 5,147 16