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2024-06-30-accounts

REGISTERED COMPANY NUMBER: 032535841England and Wales) REGISTERED CHARITY NUMBER: 1058968 THE PIT ITARY FOUNDATION A COMPANY LIMITED BY GUARANTEE TRUSTEE 'REP ND ITED FINANCIAL FOR THE YEAR O JUNE 20

THE PITUITARY FOUNDATION

CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2024

Page
Reference and Administrative Details 1 1
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Trustees' Report 3 3
to20
Independent Examiner's Report 21
Statement of Financial Activities 22
Statement of Financial Position 23
Statement of Cash Flows 24
Notes to the Statement of Cash Flows 25
Notes to the Financial Statements 26 26
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THE PIT ITARY FOUNDATION REFERENCE AND ADMINISTRATIVE DETAILS FOR THE YEAR ENDED 30 JUNE 2024 TRUSTEES Mr T Sumpster {Chair) Mr A M Mackintosh (Vice Chair} Dr l E Macdonald (Hon Secretary) Mr P Rouse {Hon Treasurer) Dr S E Baldeweg Mrs H Frazer (resigned 4.6.24) Dr A M Brooke Ms D L Cooper Ms A Deleligne MrAHMatty Ms J A Phillips Dr S Sinha (resigned 7.12.23) Mrs C E Thatcher COMPANY SECRETARY Dr l E Macdonald KEY MANAGEMENT PERSONNEL Emma Cooper- CEO (appointed July 2024) Ren Renwick- CEO (resigned June 2024> Pat McBrlde - Head of Support Services Jay Sheppard - Head of Fundraising REGISTERED OFFICE Brunswick Court Brunswick Square Bristol BS2 8PE REGISTERED COMPANY NUMBER 03253584 (England and Wales) REGISTERED CHARITY NUMBER 1058968 SOLICITORS TLT LLP One Redcliffe Square Bristol BS16TP BANKERS National Westminster Bank 32 Corn Street Bristol 8S1 11Q Royal Bank of Scotland 36-38 Baldwin Street Bristol BS1 1NR Page 1

THE PITUITARY FOUNDATION REFERENCE AND ADMINISTRATIVE DETAILS FOR THE YEAR ENDED 30 JUNE 2024 INVESTMENT ADVISERS Evelyn Partners Portwall Place Por￿11 Lane Bristol BS16NA INDEPENDENT EXAMINER TCA (Shrewsbury) LLP Third Floor 21 St Mary's Street Shrewsbury Shropshire SY11ED Page 2

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 The Trustees, who a￿ also directors of the charlty for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 30 June 2024. The Trustees have adopted the provisions of Accounting and Reporting by Charities.. Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019). Objectives and Actlvltles a. The purposes of the charlty as set out In our governlng document; The charity's objects, as described in our Memorandum and Articles of Association, are to promote the relief and treatment of persons suffering from pttuitary disorders and related conditions and diseases, and their families, friends and carers, and to provide information and support., and to promote and support research and to disseminate for the public benefit the results of any such research. The main activitias that the Foundation undertakes to deliver on these services are: the delivery of general and specialised helplines., development and dissemination of resources online and in print., presentation of information and holding of community building eveni$ online and in per80n; facilitation of patient-patient Support service8', engagement in, and the dissemination of, research., support of volunteers., and undertaking of fundraising schemes including events. b. Our strategy and core alms Our strategy states that.. Our vlglon is that all people wrth prtuitary conditions can Ilve well, now and in the future. Our ml8slon (the way in which we achieve our vision> is that.. We work with everyone with a pituitary condition, their support networks and heallhcare professionals to raiso pituitary awareness, and to reduc? time to diagnosis. We empower patients to navigate the UK healthrAre system and obtain the best clinical outcomes possible and provide support to enable everyone with a pituitary condition to live as well as possible. Our values (which inform how we approach achieving our vision) are.. We are welcomin9 We are caring We are empowering We are trUS￿OrthY We are collaborative Our obJectlve8 (which break down the practical steps we will take to achieve our vision) are: I: We wlll work to reduce the tlme It takes to be dlagnosed wlth a pltultary condltlon by Increaslng awareness We have three focus areas to achieve this objective: 1.1 Raise awareness amongst Endocrinology specialists 1.2 Raise awareness in primary care 1.3 Raise the general public's awareness Page 3 The • Pituitory Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 2: We will empower every patlent to recalve the best care avallable to them, now and In the future We have three areas that we focus on to achieve this objective.. 2.1 Offer support and education to everyone impacted by pituitary conditions 2.2 Advocate for the best medical care possible in the NHS for everyone with pituitary conditions 2.3 Champion valuable patient centred investment in the future of pituitary care 3: We wlll support all people wlth pltultary condltlons to Ilve well We have three areas that we focus on to achieve this objective.. 3.1 Increase the accessibility and inclusivity of support and services 3.2 Provide lifestyle support to people with pituitary condrtions 3.3 Seek to ensure Psychological Support and broader wellbeing advice is available to everyone impacted by a pituitary condition 4: We wlll •nsure The Foundatlon Is robust and sustalnable We have three areas that we focus on to achieve this objective.. 4.1 Ensure we have the right resources lo deliver our strategy 4.2 Ensure our financial resources match our ambition 4.3 Work sustainably Achlevements and perforniance Overvlew of actlvltles throughout the year Our new strategy has guided the work we undertook this year. Overseen by Head of Support Services Pal McBride, and provided by Pat and a team of staff and volunteers. our helpline services continue to be hugely valued. During the year Pauline Whittingharn, a much-valued specialist nurse, leftlhe charity, and Aldons Chua and Vanessa Quinn subsequently joined Darshna Patel to deliver the excellent nurse helpline. Volunteers are at the heart of our work, and we are as always so grateful for their time and expertise in helping the Foundation deliver its remit with kindness and understanding. It is with heartfelt thanks that we recognize the work of our office volunteers. helpline volunteers, telephone buddies, Ambassadors and support group leads., Volunteer, Events, and Campaigns Coordinator Kim Wegner worked with many ofthem during the year to increase the number of support groups, both in person and online, and also to introduce in person events across the country. Led by our Communication CoThOrdinator Lottie Storey. our communications have continued to grow in reach and impact this year, both our online communication5 and our regular Pituitary Life magazine,. the magazine remains a well-received member benefrt, providing a range of patient stones and endocrine insights and updates. We are pleased to have achieved Pif Tick Accreditation, and are undertaking a full review of all of our information booklets to ensure that they contain high quality, up- ttrdate and accessible health information. Our IT and Systems Manager, Martin Cookson, led the implementation of a new CRM during the year, ensuring that we are using all data in the right way. Alongside this, Operations and Finance Manager Gabrielle Welland has worked extensively to streamline our finance and intemal procedures, ensuring increased efficiency and value for money. We were delighted to welcome Sleph Gauvin as our new Administrator, providing support to our finance and fundraising functions alongside her administrative work. Page 4 The • Pituitary Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 3 NE2 24 Underpinning all ourwork is the need for income., our FundraiserJay Sheppard has continued to deliver a diverse portfolio of fundraising with integrty. As ever, we are indebted to the generosty of our community. who offer so much, both financial and in kind, and we wognize that we would not be here wrthout their continued support. Our excellent CEO, Ren Renwick, gave notice of her departure towards the end of the year. the Trustees would like to extend their sincere gratitude for everything Ren has done for the charrty over the last t¥VO years, for her work building our new strategy and leading our staff team so well. Ren leaves the charty with excellent infrastructure, a robust strategic framework and a sound financial base, positioning things well for the incoming CEO to realise the charity's strategic ambitions. Before the end of the year, and prior to Ren's departure, we were delighted to confirm the recrurtment of new CEO, Emma Cooper. Emma joined in July, bringing many years, experience of senior management within the health-related charity sector. b. Dellvery agaln8t the strategy In this section we look at specrfic activity relating to each objective, and areas we are looking to develop In the future. We measure our success against qualitative and quantitative measures. For projects we have targets that are set at inception meetings, whilst for ongoing work we review anonymous surveys and feedback from participants. Our Lived Experience Committee a8SlSt8 in reviewing and guiding our work and compliments our Trustees who interrogate the value and Impact of our service8. 1: Wo wlll work to roduce the tlme ft takes to be dlagnosed wlth a pltultary Condlllon by Increaslng awareness Our first objective is focused on reduclng the time It takes to be diagnosed through increased awareness of pituitary conditions. Alongside setting several projects in motion, to increase awareness we achieved the foll¢)wing'. 1 (a) Ganaral Awaren•ss Ralslng Awareness Month. Our Awareness month focused on spotlighting Prolactln and Prolactinoma, a condition on which we had not focused before. The month comprised 7 online and in person events and a strong infomiation-Iocu5ed online campaign. 97 /• of respondents rated the events excellent or good, with 820/0 saying they improved their understanding of the subject. Two attendees said.. 'The zoom sessions bvere brilliant and I hope they continue. They are a lrfeline for people. thank you so much.; and 'Really enjoyed the session, easy to follow, good time length and brilliant how all questions were answered.. We Saw a signif￿ant increase in engagement across social media in the month,. for exampFe, we enjoyed Instagram impressions of 67,485, up from 26,000 the month before. A signrficant statistic for Instsgram was that our profile was viewed over 2,307 times, far higher than normal view rates of around 600-800. Webslte. Having launched our new website in the last year we will continue to evolve and develop it to ensure its accuracy and that it delivers effectively against our needs. Feedback from our community evidences that our website is the heart of our support service, with most people saying they used it alongside other services such as in person meetings or the helpline. We have seen decrease in visltors. but a 390A irbcrease in the lime people are Spending on the srte, suggesting we are getting more relevant visitors due to better links and navigation. We have secured a Google Ad Grant to increase findabilty, and look forward to deploying this. Page 5 The • Pituitory Foundation

THE PIT IT RY FOUNDATION TRUSTEES, REPORT R THE YEAR ENDED 30 JUNE 2024 Electronic Communlcations. Our social media following is at 26,000 across all plattoms, showing modest growth. We are pleased that individuals, posts are getting strong traction, especially ones that feature lived experience stories and share medical insights. Our newsletters continue to have strong open rates, and we have spent time improving the backond processes to streamline these communications. Prnss Coverage. We were pleased to be referenced in national coverage when a celebrity announced they had a related condition. Our website saw an increase in visitors and we followed up wrth awareness raising online around the condition. 1 Ib) Awareness wlthln Endocrlnology. Awareness Ralslng wlth Cllnlc8. During the year we contacted all Endocrine Clinics asking for a response to a survey to understand the perception of the Foundation. This had very lrtlle response. We followed this up by sending a poster and selection of booklets to all clinics Wlth a cover letter reminding people of our services. We recognise that we want to increase awareness of our sepiices especially in smaller clinics where staff may not be familiar with the charty. Confornnces. Attendance at conferences is an important way in which we spread awareness of the charity and its work amongst clinicians across the country and beyond. This year we attended four conferences.. Society for Endocrinology's Clinical Update, Brrtish Endocrinology Society, British Society for Paediatric Endocrinology and Diabetes's conference and the 24th Clinicopathologic81 Conference on Pituitary Disease. We estimated that we reached more than 2,000 health care professionals through these conferences, and have been able to talk about our services and share resources wilh them. Medlcal Commlttee. Professor Baldeweg is the incoming Chair of the charity's Medical Committee and will work with us to increase the reach and impact of the Foundation's work and resources within the Endocrine communrty. This year Dr Rob Murray agreed to be deputy chair. 11¢) Awareness In Prlmary Caro. Em•rg•ncy Care. In partnership with Addison's Disease Solf Help Group (ADSHG}, we have continued to work with the Yorkshire Ambulance Service to develop an awareness session for call handlers. Our work supporting the implementation of the Patient Safety Alert and the Steroid Emergency Card continues and we have distributed over 500 cards in addition to the print at home version8 in Pituitary Lrfe. GP Awarene88. This year we delivered 8 GP training session reaching 500+ GPS and are developing a second session, wrth financial support provided as an Independent Medical Education Grant from Pfizer Limited. Pfizer have provided only financial support and have no input into the content provided. One respondent to the first session noted .1 *elt rt was very infonnative. This is not an area l am very familiar with so I have definitely learnt some things this evening." 2: We wlll empower every patlent to recelve the bost care avallable to them, now and In the future Our second objective focuse5 on empowering all patients to receive the best care available to them. We play an instrumental role in this by providing support and education to complement that provided by the NHS. Page 6 The • Pituitary Foundation

THE PITUITARY F NDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 2. (a). Offerlng Support and Education Helplines. Our helplines remain a vital 1-1 support offering. We responded to over 1,584 enquiries across our various helplines. We introduced bookable slots for members to help offer certainty of speaking to a nurse. We undertook a risk review ofthe helplines, introducing supporting documents for staff and volunteers to help direct and support callers whilst retaining the highest level of service. Pauline Whittingham, one of our Endocrine Specialist Nurses, left the Foundation after fNe years. Her support to people impacted by pituitary conditions was hugely valuable and valued by so many people. Since then, we have been pleased to have recruited two nurses, Aldons Chua and Vanessa Quinn, in her place, who have joined Darshna Patel in supporting our community brilliantly. Calls to the Infomiation and Support Helpline, ansvRred by our wonderful and experienced volunteers, have decreased this year., we have interrogated this to understand the reasons and how we can develop this support in the future. Some quotes this year evidencing the value of our helpline, and the invaluable impact it has for people, include,. .1 find myself seeking your kind advice once more, you are alway8 $0 reassuring in your responses.. 'Thank you for 811 the information. It's been a great contribution. .1 enjoyed and greatly benefitted from our chat yesterday. You were candid, clear and supportive. Much appreciated. I will contact you again as I progress further along my journey.. Resources. We are delighted to have achieved Prf Tick Accreditation during the year and have been reviewing and rationalising our booklets in line with this rigorous accreditation. During the year we reviewed all our condition specific booklets and several 'Living with, and associated resources. We are grateful for the support of funders to enable this to happen. Events. We have reached over 500 people through our own online events during this financial year. This is in addition to events organised by others (such as conferences) and meetings held by our support groups. These sessions have included talks from professlonals on toplcs such as Sick Day Rules, Body Positivity and GrowAh Homone. Through all our events, 950A of people completing feedback rated the sessions excellent or good, wfth 750kn 8aylng they Improved thelr understanding of the area. Feedback from these 8es8ions has included.. 'Thank you for this event- it was enormously helpful and I really appreciated the time that Ithe speaker] took in answering questions, desprte the session running late.. 'The doctor's presentation was excellent. She talked at just the right level for the audience, using medical terms, but explaining them where required in a friendly non-condescending way. She gave a huge amount of information in a very accessible way.. "Great session, although l am a long-standing patient it is always nice to hear from other Consultants with different backgrounds.. Get Togethers. Prior to Covid the Foundation rdn successful bi-annual in person conferences which allowed our communty to come together, listen to speakers and share thoughts and experiences. Post pandemic we understood that many in our community were less keen on traveling, and we recognize the impact of the cost of living crisis on the abilty to pay for travel and overnight stays. In response to this, we have developed the concept of a 'Get Together,. These are day long events comprising talks from professionals, a stxial lunch and facilitated discussions. We delivered one in Glasgow in November 2023 and another in Cardiff in March 2024, with a view to holding Ihese Page 7 The • Pltultory Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT R THE YEAR ENDED 30 JUNE 2024 throughout the UK at regular intervals. These are cost effective and have been well re￿ived. Participants largely rated the events as excellent and most found their understanding had increase. We have had positive feedback on these events including.. 'Thank you for coming to Glasgow. '[1] enjoy8d it very much, learnt a lot and met some wonderful people. I will look fopward to future events.. .1 thought li was truly an amazing beneficial day. I didn't know what to expect but it 8XC8eded any possible expectation.. Cushlng's Day. We were pleased to be able to hold a condition Specific day focusing on Cushing's at Imperial, London. This was made possible with funding from Recordati (who had no involvement in the content or administration of the day). This funding also enabled us to contribute to travel and accommodation costs for participants who may not otherwise have been able to attend. 75Vo of attendees had never attended an event wrth the Pituitary Foundation. The day comprised talks from Health Care Professionals, people with liv•d experiencé, and Rare Minds who focused on psychological challenges. It was a real success, and we are hoping to make It an annual event. Feedback included.. .1 really enjoyed the day, and l am so glad l attended, as I was anxious al)out attending, but everyone was so friendly. I found the day informative, but also emotional (which I wasn't expecting) and motivational hearing other stories. Being able to share my 8tory, and listen to others, face to face, is really powerful.. 'After this conference l am so thankful. It was helpful, interesting and emotional. Thank youl. Pltultary Llfa magazln•. We produced and mailed out three editions of the magazine In thls period -Autumn 2023, Spring 2024, and Summer 2024. All of these have been 24 pages, with an increased font size for easier readability, and we met with the designer and printer to look at ways ol saving costs, whilst delivering a more accessible publication. In our Spring 2024 edition, included adrenal insufficiency and AVP Deficiency (Diabetes Insipidus) Sick Day rules as a centre pages 'pull out, feature. We also launched our 301h anniversary within this edition, together with a cover image of our 30 years. Our thanks go to the Medical Committee, patients and staff plus other contributors for providing the content for all of our magazines. 2 (b). Advocacy for bost carn wlthln tho NHS Sector Engagement. Pat McBride is part of the NCEPOD (National Confidential Enquiry Patients, Outcome and Death) Working group focusing on blood sodium, led by Dr Neil Smith, Deputy Chief Executive, Senior Clinical Researcher. Pat also represents the patient voice on the NHS England Policy Working group for Acromegaly (2337 Pasireotide Pamoate), BSPED (education standards working group and DI name change working group), and Oxytocin Study (Diabetes Insipidus Project | Patient representative). We continue to contribute to the Scottish Medical Consortium Patient Group, the Welsh Patient and Public Interest Group and the NICE Voluntary Sector and Community Sector Forum. This year we also joined the ABPI Patient Organisation Forum. Page 8 The • Pltuitory Foundation

THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2024 NHS. We continue to work to support the implementation of the Patient Safety Alert. We are also part of the international working group supporting the implementation of the AVP-Deficiency name change. 2 (c). Patlent centred Investment Networks. We continue to be an active member of the Society for Endocrinology Patient Support Group network, representing a valuable way of ensuring that the patient voice is heard at a foundational level. Robert Brady, who leads the Ireland Support Group. is on the Board of WAPO (World Alllance of Prtuitary Organizations) representing Pituitary Ireland (our ROI based support group), which has been part of the Foundation to May 2024. Lfved Experlence Commlttee. We are continuing to develop the Lived Experience Committee, a mechanism for the patient voice to input clearly into both our work and wider consultations as required. This work will continue through the coming years, and has trustee representation creating a dirKt link to the Trustee group. R•u4￿h and Con$ultatlons. We continue to contribute to consultations including with NICE'S People and Engagement Strategy and SMC'S consultation on Somapacitan (Sogroya). Work continues in the Oxytocin research led by Departments of Endocrinology, Diabetology and Metabolism, University Hospital Basel, Switzerland. Addilionally, we supported the Royal Osteoporosis Society's Better Bones campaign, and fed Into Specialised Heath Care Alliance's research into mental heatth for people wrth complex or rare heatth conditions. We have also explored the role of dats in understanding our population, and helping us to best support currentand future people affected by Pituitary conditions. This work will continuetodevelop. Tech Developments. In a similar way we have continued conversations exploring how tech and Al developments could support people impacted by Pituitary conditions. We have prototyped a simpl chat bot for a website (with grateful thanks to voluntary support for this) and have started conversations about the role of Al in diagnosis and ongoing condition management. This is all largely speculative at present and wlll develop over the coming years. 3: Wo wlll support all pwplo wlth pltultary condltlon8 to Ilve well The heart of this objective is ensuring that as many people as possible can access. en9age with and benefit from our services. 3 (al. Accesslblllty and Incluslvlty Incluslvlty. This remains an important area for us. We are pleased to have presented a wider range of lived experience stories, and welcomed people who have not attended our events before. We have found Instagram to be an important tool to reach people who have not engaged with us before. We are exploring how we can survey in selected clinics to understand any barriers to the take up of our resource5. We will use these finding5 to address barriers to engagement in general. Tralnlng and Rèvlèw. We have followed up formal training with informal internal conversations including a session on digital accessibility. We are in the process of reviewing our helpline provision, to ensure that it is best serving our community, appreciating that many people prefer not to speak on the phone. This review will complete and relevant actions will be implemented in the next financial year. Page 9 The • Pltultory Foundatlon

THE PITUITARY FOUNDATION TRUSTEES, REPORT R THE YEAR ENDED 30 JUNE 2024 Support Groups. We have successfully introduced new online, condition specrfic support groups to complement those that meet in person. New groups meeting during the year include Prolactinoma group, a young persons, group and an Acromegaly group. We had 20 active groups in the financial year. During the year, the Board of Trustees reluctantly made the decision to cease operating a volunteer led group in the Republic of Ireland as a result of regulatory changes brought about by Brexit. Robert Brady, who has led the group for many years, is exploring alternative ways in which he may take his work forward. The Foundation will remain open to people accessing support from all geographies, but sadly we are no longer able to have a direct presence in Ireland. Membershlp. We are grateful to those in our communty who support our work by becoming members and who enjoy being part of our community in that way. This yearwe introduced welcome meetings to members and non members to help showthe ways in which the Foundation can support people, and the ways in which people can gel involved. We are pleased that our membership has started to grow again, with monthty growlh at the 8tart of 2024 the highest for several years. Our total membership stands at over 2,000. As noted below, we have introduced a psychological support service, and have established an enhanced membershlp in order to offer access to wellbelng and psychological support from June 2024 onwards. 3 (b). Llfestyle Support We recognise that many pituitary condrtions are lifelong, and we want to support people throughout their life, not just at the time of diagnosis. We are developing new resources around fitness and wellbeing and see this as an area we will expand on in the coming year, with a830ciated talks scheduled for the summer and autumn of 2024. 31c). Psychologlcal Support Rare Mlnd8. We have been delighted to Introduce the provision of p8ychologlcal support in partnership with specialist charity Rare Minds this year. Alongside other wellbeing benefrts, members wlth enhanced membership are able to access up to 8 sessions of counselling, subject to availability of sessions. We are able to offer thls seprfice due to the generosty of Indlviduals as well as grants and help from commercial funders. Gulldford Support. The volunteer-run Guildford Support Group has been able to offer a similar psychological support to people in the Guildford area thanks to a generous legacy from Mr Hawley. This service stsrted in April 2024. We continue to offer support to our helpline volunteers and are grateful to Dr Sue Jackson who shares her time to be able to do that. 4: Wé wlll ensure The Foundatlon 18 robust and sustalnable This objective focuses on our internal and financial robustness, and considerable work has been completed this year in this area. Our three objectives in this area focus our attention to ensure we have the right resources, and work sustainably to ensure our ongoing success. Govornance. This year we have done significant work on various areas of our governance. Trustees completed a survey reviewing working methodologies and approaches, and we held an in person away day for the first time since the pandemic. From this we have established working groups, and amongst other things are reviewing the tenure and roles of Trustees. Staff. We are fortunate lo have an excellent staff team. Each person's commrtment and passion for their role is inspiring and greatly valued. We enjoyed having Claudia Tavella as our second intem from University of the West of England this year, and it has been a pleasure to offer paid contracts Page 10 The • Pituitary Foundation

THE PITUITARY FOUNDATI TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 both to Claudia and Georgia, the previous intem. Staff have undertaken a range of formal training during the year, including first aid and fire marshal training as well as a sesS￿n on heatth infonnation writing. Flnance admlnlstratlon. We have migrated several support groups to a new way of working financially which both reduces administration and increases compliance and security. This will continue to roll out. We have new Bookkeepers (Mendip Accounting) who have revwied and streamlined our financial information and processes. Fundralslng. We have worked to increase our ability to secure income from Trusts and Foundations, vntking with a consultsnt to bring additional expertise and capacty. Our Fundraiser Jay has refreshed our fundraising offer, including supporting people in various challenge events. A full report follows, and we will continue to develop our fundraising work. Pollclas and procedures. We have fully updated our handbook, both in line wrf<h legislative change and best practice, in partnership with our external advisors. We are pleased to have introduced several new policies as w811 as reviewing and refreshing our GDPR and Safeguarding Policies. Collaboratlon. We continue to strive towards collaboration where It is in the interests of our Community. We have had active conversations with peer patient support groups, and havé opened dialogue wlth several charltles and both univer$itles in Brisiol, b. Publlc benefft The Trustee5 have considered the Charity Commission's requirement in respect of Public Benefrt. In their view the charity meets, in full, the criteria to satisfy the test. The Trustees, Annual Report describes the activities undertaken to further its charitable purposes for public benefit. Plans for Future Perlodg Our strategy sets out our aims and objectives for the period to 2027. Good progress has been made and we recognise the opportunity to increase our activty given our reserves posltion. Our new CEO, Emma Cooper, will work with Trustees to identfy existing or new activities for development utilising the available reserves. These activities represent areas of our work which we understand are important to ourcommunity and will increase our reach, raise more awareness, and enable us to develop our support services. The proposed activity areas fully align with our stratggi¢ aims and objective8: 1: We wlll work to reduce the tlme It takes to be dlagnosod wlth a pltultary condltlon by Increaslng awareness Wewill focus on increasing awareness ofthe Pituitary Foundation and our seNices through tsrgeted campaigns. We will also deliver al least two campaigns aimed at improving knowledge of pituitary condrtions and health care needs in primary and secondary NHS settings. 2: We wlll empower •v•ry patlent to recelve the best care avallable to them. now and In the future Vve want more people to benefrt from our infomiation and support ser11￿S and will be increasing investment in our hea￿h infomiation (print and other formats) and delivery of support groups and get-togethers (online and in person). We will amplfy the voice and experience of our community to effect positive change and will do this through our advocacy and campaigns. 3: We wlll support all people wlth pltultary condltlons to Ilve well The provision of psychological support services in 2024 will be evaluated and we exped to develop this area of our activity further. Page11 The • Pltultary Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 We will develop our offer for parents. children, and young people. This is likely to include health information and opportunrties for engagement. We will further develop our lifestyle support following engagement and involvement with our community. 4: We wlll ensure The Foundatlon Is robust and Sustslnable The delivery of these areas of activty is only possible because of the generosty of our donors and supporters. The activities described above will increase our visibilty, awareness ofour support, and drive further engagement and involvement. Flnanclal revlew a. OveNlew In the face of continuing general economic and cost of living pressures, we again set a cautious break- even budget for the 12 months to 30 June 2024. Whilsl being pleased with our general financial performance through the year, in May 2024 we received very substantial legacy of £278,000 from Ihe estate of Malcolm Glayzer, which has meant that we have been able to record a large surplus this year. The charity extends its heartfelt thanks to the Glazer family for this very significant legacy gift. Wrth the help of this legacy, we are pleased to announce a net surplus for the year ended 30 June 2024 of £298.776 on income totalling £779,585. Excluding the legacy, we recorded income of £501,565, an uplift of 3.10A on the previous year, and a net surplus of £20,776. The Trustees would like to extend their thanks to the staff team, and in particular Head of Fundraising Jay Sheppard, for their contributions in achieving such a good result in drfficult circumstances. Jay oversaw another suc￿sSful programme of fundraising events, including the well liked Four Falls walk in South Wales and a trek up Snowdon. These events were supplemented by an amazing array of fundraising challenges completed by numerous supporters of the charity. some of which are highlighted below. Once again, our many members and supporters exhibrted wonderful generosity in donating to the charity, and we received significant donations from a numbef of Trusts and Pharmaceutical companies. As in previous years, the team managed our costs effectively, and we benefited from lower event costs and from operating for periods without a full staff complement. Our total costs for the year were £486,732. Our accumulated reserves al the end of the year increased to £779.074. with unrestricted reserves of £648,501. Our reserves policy, and our plans for investing funds, are sel out later in the section. b. Incomlng resources In 2023124 The Foundation made income of £779,565 compared to £486.512 in the previous financial year. c. Prlnclpal Rlsks and uncertalntles The charty is highly reliant on donations from individuals, Trusts and Foundations and companies,. these may be affected by broad economic and other circumstances over time. We manage a database of more than thousand members and supporters and work hard to appeal to them for their support, and we maintain strong relationships with a range of organisations many of which continue to support the charity year on year. Page 12 The • Pituitary Foundation

THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2024 The Foundation receives some of its income from legacies,. by its nature this income stream is unpredictable, and therefore the charty seeks to limit its reliance on this element of income, budgeting for a modest amount of legacy income. d. Funders The Foundation enjoys an extraordinary level of support from its community. The Trustees express their huge gratitude to all our donors.. members. donors, fundraisers, companies and Trusts and Foundations. Wrthout this support we simply could not continue. Thank you. There are a huge number of supporters, many of whom wish to remain anonymous. We would like to recognize some of the generosity we have benefitted from during this financial year. This is not complete picture, but hopefully gives a flavor of the support we enjoy. e. Events and communlty fundralslng Our events and communty fundraising returned to pre-pandemic levels, which was pleasing, and we saw fundraisers take on all sorts of wondertul challenges. These included.. Abbie Lau ran the Battersea Half Marathon raising over £3,100; Alex Arkell took on the Edinburgh KIl￿alk wrth her mum and dad, Jason and Amanda, and managed to raise £2,400.. Oscar Simpson walked a whopping 400.000 steps during October and raised £1,300,. Jake Swingler ran the Leeds Half Marathon and raised £1,500., Wayne Scammell look on a skydive and raised £1,050,. Vicky Endicott swam the equivalent of the English Channel in the pool and raised £636., Sara Lomas ran the Robin Hood Half Marathon and raised £800,. Ryan Fletcher ran the London Marathon raising £1.200, whilst Rich Allen also ran the London Marathon raising £395. There were many other fantastic fundraisers with this just being a snapshot. During the year we were saddened to hear the news that long-term supporter and friend of the charity Tim Vince had sadly passed away His wife Sarah set up a memorial collection in his honour and his brother Ryan ran the London Marathon in his memory helping to raise well over £20.000 in memory of Tim. We had several charlty of the year partnershlps during the year including Boyce Hill Golf Club and FCS Compliance which helped to raise over £8,000 between them. Our Challeng• events were successful once again. Our annual trek up Snowdon saw a team of 21 managing to raise over £5,000 between them. Our sincerest thanks go to staff member Lottie Storey for managing this event in the absence of our Head of Fundraising, and thanks also to Bryn Williams Mountaineering for safely looking after our team. The picturesque Four Falls Trek in the heart of the Brecon Beacons attracted 29 walkers from all over the UK. The team enjoyed some of the most spectacular scenery in the UK and collectively raised £6,000 for our charrty. Sincere thanks to all and thanks also to JT Expeditions for looking after our group. A team of daring individuals took on Zlpworld Veloclty in North Wales and collectively managed to raise over £3.000. We had a team of 14 who braved the heat of a Flre Walk held at Trago Mills in Merthyr Tydfil which saw us raising over £4.000. We introduced the Anfleld Absell to our events portfolio and saw a team of brave individuals ranging in age from ten to seventy-five. The team included a fantastic singer, Paul Coles, who led a rendition of the Liverpool FC anthem'you'll never walk alone" on top oflhe stadium, much enjoyed by everyone. Collectively the team raised £11,247, and this will now become an annual challenge event for us. Page 13 The • Pituitary Foundation

THE PIT ITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 Glfts In Wllls. We received some extremely generous gifts in the wills of long-temi supporters, and we would like to thank these individuals for kindly thinking of us. They were: Peter Smith Dr Linda Herbert Malcolm Glayzer Jane Hickford Christopher Thompson Donatlons. In addition to the considerable generosty of individuals, we are hugely grateful for donations we have received from commercial companies, Trusts and Foundations. In particular, we would like to thank.. Nationwide Foundation National Lottery Awards for All- England Garfield W88ton Foundation St James, Place Foundation Society for Endocrinology The Kelton Trust The NeTrghbourly Foundation The Gledswood Charitable Foundation Brandwells Construction Lotus Charitable Foundation The Gilander Foundation The Christopher Lane Trust The Mich881 and Anna Wix Charitable Foundation The Sir James Roll Charitable Trust Penllegaer Lodge Masonic Charitable Foundation Sincere thanks to all of our pharmaceutical supporters that made donations during the period. They included.. Diurnal £15,000 towards our paediatric work HRA Pharma £4,000 towards the funding of Cu5hing'8 information content Pfizer £19,680 toward5 our GP Awareness campaign Sandoz £6.000 towards the updating of our publications Sparrow Pharmaceuticals £3,900 towards the updating of our publications Recordati Rare Diseases £7,000 towards the cost of our Cushing's Day in London Recordati Rare Diseases £8,000 towards our psychological support services project We work in line with A8PI guidelines in accepting funds from phamiaceutical companies. The year ahead will be challenging and we will review our fundraising strategy, acknowledging the immense value of our community in supporting our work. f. Resources expended The staff team, alongside the Finance Committee, y￿rkS hard to keep costs down, seeking competitive quotes and adhering lo financial processes. Within our total costs figure this year, we spent £2,520 on completing our new website. Page 14 The • Pituitary Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 g. Investment Pollcy and perfom7ance We hold general and restricted funds in our main N8tWest and RBS bank accounts. We have some modest sums with Monmouthshire Building Society, Julian Hodge Bank and Virgin Money. We continue to use the excellent CAF Online deposits platfom to secure competitive savings rates across a mixture of shorter and longer-term savings investments, which has increased our income and allowed us to take advantage of increasing interest rates more effectively. Our investments, which are ethically selected (in line with our Investment Policy) and managed by our investment advisers Evelyn Partners, have improved in value over the course of the year. Our total funds held with Evelyn partners at the year end were £99,344 and we have benefitted from an income of £2,611 from these investments during the year. All of the charity's funds are subject lo regular review by our Finance Sub Committee. The Trustees have a confident expectation thal The Foundation will continue in operational existence for the foreseeable future and have, therefore, used the going concern basis in preparing the financial statements. We have an Investment Policy, developed in line with Charity Commission guidelines and reviewed and approved by the Finance Committee and Trustees. to which we continue to adhere. In particular, the Policy.. excludes direct investment in Oil and Gas, Amiaments or Tobacco sectors requires that the investment adviser seeks to ensure no investments are made into companies whose activities comprise rn0￿ than 5 % coal extraction, alcohol or tobacco production, gambling or animal testing requires, where monies are invested in funds, the investment adviser to target funds with positive ethical and environmental objectives. h. Reserves pollcy We plan to retain free operational reserves representing 9 months of our annual operating costs, equating to around £400,000. The remaining funds, known as the Development Reserve, are available for investment in the chanty's infrastructure, resources and patient support. Total restricted funds held at the year end were £130,573. Free resenies are calculated as unrestricted reserves less designated funds and fixed assets. Following the strong financial result this year, enhanced by receipi of the large legacy from the Glazer family. the Foundation's free reserves al 30 June 2024 increased to £646,56012023'. £410.010). These represented 162 % of our free operational reserves target. As a result, our Development Reserve increased to £246,560 al the year end. Our CEO and Trustees are determined to make use of this substantial Reserve to accelerate achievement of our strategic goals and optimise the services which the charity provides. Accordingly, the following areas have been identified in which we Intend to invest the majority of these Development Reserve funds over the next two to three years.. 1. Awareness.. resource to develop our use of data with a view to inC￿8$1ng awareness,. to deliver strategic awareness campaigns focused on our services., and to deliver targeted campaigns focused on specific condrtions and healthcare needs. 2. Best Care.. resource to review, update. and develop our portlolio of health information, working in conjunction wrth our Lived Experience and Medical Committees., to develop our work in policy and research in order to promote this and communicate it effectivety to, the pituitary communily. 3. Support: resource to build on our core services-to review and develop our support services. adding new elements where appropriate; develop and expand our lifestyle support services,. Page 15 The Pituitary Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 investing in our volunteers. The Reserves policy was reviewed in the financial year to ensure rt remains appropriate to the Foundations needs and the wider economic landscape. structure, governance and management a. Governlng document The Pituitary Foundation was established in 1994 and became a Company Limited by Guarantee and a Registered Charity in 1996. It is, therefore, governed by company law and the Charty Commission. Its governing documents are its Memorandum and Articles of Association. Membership is encouraged and is open to all who wish to support The Pituitary Foundation,. however, the principal seNices provided are available to all who require them regardless ol membership. b. Appolntment of Trustees At each General Meeting IGM), one third of the Trustees retire by rotation. Any member of The Foundation may nominate any other member for a vacant Trustee position. If there are more nominations than vacancies, members are balloted, and the result announced at the GM. In addition, the diversty and skills required by the Board are monitored by the Trustees and any identrfied under- representation that occurs may result in advertising for prospective trustees that meet the specification. Trustees may then be co-opted onto the Board until the next GM at which time they must stand for re- election. c. Trusts8 Inductlon and tralnlng Trustees are inducted within three months of electlon. They are inducted online or at the Bristol Office. At induction, members of staff and representatives from the Trustees work with the new Trustee to explain the business, sep4ices. aims and objectives of The Foundation. At the time of induction, each Trustee is given a Trustee Induction Pack. Trustee Iraining is undertaken on an ad hoc b8SiS. d. Organlsatlon The Board of Trustees governs The Foundation. It comprises up to frfteen members, who are also Directors ofthe Company. A limit of one third has been set on the number of Trustees who are employed in the health sector to ensure strong representation of patients and carers. At ￿port date there were two Trustees employed in the heatth sector. The Board of Trustees holds meetings a minimum of three times per year. The Trustees have appointed four Officers of The Foundation. These comprise the Chair, the Vice Chair, the Secretary and the Treasurer. The Trustees debate and make decisions based on recomrnendations brought to Trustee meetings and infomied by the wider staff, relevant Committees and relevant infonnation. The Foundation is a member of.. Helplines Partnership The National Council for Voluntary Organisations (NCVO) Charity Finan￿ Group (CFG) and is affiliated with the Society for Endocrinology. The charity is registered with the Fundraising Regulator and the Foundation's Head of Fundraising is a member of The Institute of Fundraising. Page 16 The • Pituitary Foundotion

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED NE 2024 The Foundation has sub-committees, which report to the Trustees through their respective Chairs. Each sub-committee has Terms of Reference (TOR). The Medlcal Commlttee Our volunteer Medical Committee is made up of endocrine and related medical professionals who provide invaluable expertise answering complicated patient queries, speaking at conferences, writing articles for our magazine. Pituitary Life, and content for our website and booklets. The Foundation understands the members of our Medical Committee are professionals with demanding occupations and we are indebted to them for all of their time and effort working with stsff and other volunteers to provide support to the pituitary community. Members of the Medical Committee.. Prof Stephanie Baldeweg, Chair (Consultant Endocrinologist> University College London Hosprt81, London Dr Robert Murray deputy Chair Consuttant Endocrinolo 1st Leeds Royal Infirmary Aberdeen Royal Infirmary, And The Pituita Foundation Ro al Cornwall Hos ital, Truro Churchill Hos ital Oxford Alison Milne (Endocrine Specialist Nurse) Dr Jonathan Pinkne Consultant Endocrinolo Prof. John Wass Consultant Endocrinol 1st Dr Sue Jackson (Independent Chartered Ps cholo Dr Anna Crown {Consultant Endocrinologist & Honora Clinical Senior Lecturer Dr Indi Baner ee Paediatric Endocrinol 1st Sherwin Criseno {Advanced Nurse PractitionerlLead Nurse in Endocrinolo Dr Niki Karavitaki (Senior Clinical Lecturer & Consultant Endocrinolo 1st Pauline Whittingham (Specialist Endocrine Nurse) until Janua 2024 Darshna Patel ecialist Endocrine Nurse Aldons Chua Endocrine S ecialist Nurse Vanessa Quinn Endocrine S ecialist Nurse Dr Sofia Llahana Mr Omar Pathmanaban Pituita Fiona Cains Pituita Sur Dr Alex Stilwell Anesthetist Dr Matthew Heppel (Advanced Clinical Diabetes & Endocrinol Pharmacist Dr Philip Newland-Jones {Consultanl Pharmacist in Diabetes & Endocrinol 1st Winterbourne, Bristol Brighton and Sussex Universty Hospitals NHS Trust al Manchester Children's Hos ital Queen Elizabeth Hospital, Birmingham Queen Elizabeth Hospital, Birmingham The Pituitary Foundation The Pituita Foundation The Pituita Foundation The Pituita Foundation Universit Colle e London Hos Salford Ro al Hos Salford Ro al Hos Kin s Colle eHos itals Sur eon ecialist Nurse ilal ital London Hull University Teaching Hospitals University Hospitals Southampton NHS Foundation Tfust University of Leicester, Consultant Ph sician and Endocrinolo 1st, UHL Professor Miles Levy (Prof of Clinical Endocrinology) The Flnance Commlttee The Finance Committee reports to the Board and assists the Operations and Finance Manager and CEO in the review of budgets and the management of the finances. The Finance Committee is chaired by Phil Rouse, Honorary Treasurer, and rts members include Tom Sumpster, Chair, Alasdair Mackintosh, Vice Chair and trustee Hilary Frazer (until her retirement in June 2024)- The CEO and relevant staff members may be in attendance. This Commtttee reviews the financial position on a quarterly basis and meets as and when required {at least quarterly). Page 17 The • Pituitary Foundation

THE PIT ITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUN 024 Most of the dealings of the Finance Committee are carried out online. Tho Llvod Experlence Commlttee We have worked to establish the Lived Experience Commrttee (previously known as the Patient Committee} to inform and advise on our work and services. The Committee has a Temis of Reference, and comprises people living wilh a range of pituitary conditions from a range of backgrounds to represent the breadth of the community we serve. The reporting mechanism and input of the committee will be established in the coming months. e. Volunteers We have about 100 active volunteers supporting our work this year. Volunteers give their time on committees, as trustees, as office volunteers, helpline call takers, support group leads, ambassadors and fundraisers. Volunteers deliver vital roles, generously sharing their lived experience and knowledge of the patient pathway to support people with recent diagnoses, their friends and families, as well as longer term pituitary patients. Wa slmply could not do the work we do without the energy, commitment and generosty of each one of the3e people. The Trustees would like to extend heartfelt thanks to each person for their time and kindness being involved in our work. We are pleased to have a volunteer coordinator replacing Kim Wegner who left during the year. Kim led excellent training for volunteers during the year- we had hoped to have rt in person for the first time since the pandemic, but train strikes sadly changed our plans. Regular catch ups for volunteers are held, often supported by Sue J8ck8on, and resources are in place to support our volunteers more broadly. f. Staff Employ As of 30 June 2024 The Foundation employed ten members of staff (7 FTE).. Chief Executive Officer Helen Renwick (Ron) Head of Support Services Pat McBride Head of Fundraising Jay Sheppard Operations and Finance Manager Gabrielle Welland IT and Systems Manager Martin Cookson Endocrine Specialist Nurse Darshna Patel Endocrine Specialist Nurse Aldons Chua (from 15 April 2024) Endocrine Speci81ist Nurse Vanessa Quinn (from 30 May 2024) Communications Officer Lottie Storey Administrator Stephanie Gauvin (from 18 September 2023) During the year our Administrator, James Charlick, left the charty. Pauline Whittingham, our Endocrine Specialist Nurse left in January and Kim Wegner, Volunteer and Events Coordinator, left in March. We are hugely grateful for the contribution each made to our work. Each directty and indirectly supported our community and will be missed by our team and communty. Claudia Tavella joined us as a paid int8rn from UIOE and subsequently undertook some paid contract employment supporting our communications work. Our Chief Executive, Ren, gave notice of her resignation before the year end, and we are pleased to confinn that a new CEO, Emma Cooper has joined us in July 2024. Page 18 The • Pituitary Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 The Charity's staff has a clear line management reporting structure to the CEO, who reports to the Board of Trustees through the Chair. The CEO and the Chair of the Trustees meet online or in person on a regular basis. There are clear reporting lines for all staff, and regular 1-1 's supporting an annual appraisal process. Staff wellbeing is central to the culture of our work and staff benefits have been reviewed to include access to an EAP programme, 30 days annual leave, flexible working and 50/0 pension contributions. Salaries are reviewed annually and benchmarked againsl similar roles either in the Bristol area, or in the NHS for specialised nurse roles. Recommendations for pay increases, or new salaries where a role is being advertised, are made by the CEO for review by the Finance Committee and remitted to the Trustee Board for approval. The team are supremely dedicated and bring a huge amount of energy and commitment to their work, supporting and seeking the best outcomes for all people living with pituitary conditions and their support nehvorks. The Trustees would like to thank them for their ongoing dedication and hard work. g. Rlsk management The Foundation maintains a current and comprehensive Risk Register. Management of this register is held jointly by the Chair of the Trustees and the CEO. The Register is reviewed on a regular basis and is reported on quarterly to the Board of Trustees, including established controls and actions to mitigate relevant identified risks. Page 19 The • Pituitary Foundation

THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2024 TRUSTEES. RESPONSIBILITY STATEMENT The Trustees (who are also the directors of The Pituitary Foundation for the purposes of company law) are responsible for preparing the Trustees. Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice) including Financial Reporting Standard 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" Company law requires the Trustees to prepare financial statements for each financial year which give true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing those financial statements, the Trustees are required to select suitable accounting policies and then apply them consistently; ob8eNe the methods and principles in the Charty SORP., make judgements and estlmates that are reasonable and prudenl; prepare the financial Ststements on the going concern basis unless It Is Inappropriaie to presume that the charitable company will continue in business. The Trustees are re8pon8ible for keeping proper accounting records which disclose wfth reasonable accuracy at any time the financial position ofthe charitable company and to enable them to ensure that the financi81 statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. Trustees, report, incorporating a strategic report, approved by order of the board of trustees, as the company directors, on .l.l*M.....K¥J.dm.i£r...20ZIÈ.... and signed on the Board's behalf by.. Mr T Sumpster- Trustee Page 20 The • Pitultary Foundation

INDEPENDENT EXAMINER'S REPORT T TH THE PITUITARY FOUNDATION TRUSTEES OF Independent axaminerfs report to the trustees of The Pltultary Foundatlon (Ihe Company.) I report to the charty truslee5 on my examination of the accounts of the Company for the year ended 30 June 2024. Responslbllltles and basls of report As the charty's trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act,). Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts as carried out under Section 145 of the Charities Act 2011 ('the 2011 Act.). In carrying out my examination I have followed the Directions given by the Charity Commission under Section 145(5) (b) of the 2011 Act. Independent examlnerfs statement Since your charty's gross income exceeded £250,000 your examiner must be a member of a listed body. I can confirm that l am qualified to undertake the examination because l am a member of the Institute of Chartered Accountsnts in England and Wales, which is one of the listed bodies. I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe.. accounting records were not kept in respect of the Company as requlred by Section 386 of the 2006 Act., or the accounts do not accord with those records,. or the accounts do not comply with the accounting requirements of Section 398 of the 2006 Act other than any requirement that the accounts glve a true and fair view which is not a matter considered as part of an independenl examination., or the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities {applicable to charities preparing their accounts in accordance wrth the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)). I have no concerns and have come across no other matters in connectlon wrth the examination to which attention should be drawn in this report in order to enable a proper understsnding of the accounts to be reached. CIL((EL C Moelyryn-williams, 8Sc FCA Page 21

THE PIT ITARY FO NDATI TATEMENT OF FINANCIAL ACTIVITIE INCORPORATING AN INCOME AND EXPENDITURE ACCOUN FOR THE YEAR ENDED 30 JUNE 2024 2024 Total funds 2023 Total funds Unrestricted Restricted fund funds Notes INCOME AND ENDOWMENTS FROM Voluntary income 596,222 482 596,704 376,853 Charltable actlvltles General 38,760 92,274 131,034 81,999 Activities for generating funds Investment income 39,523 39,523 43,263 Total 686,809 92,756 779 565 EXPENDITURE ON Costs of Generating Voluntary Income 119,272 1,059 120,331 134,600 Charltable actlvttle8 General Total 454,261 486.732 Net gainsl(1088e81 on investments NET INCOMEI(EXPENDITUREI 238,491 60,285 298,776 (19,836) RECONCILIATION OF FUNDS Total funds brought forward 410,010 70,288 480,298 499,934 TOTAL FUNDS CARRIED FORWARD 130,573 779 074 480 298 CONTINUING OPERATIONS All income and expenditure has arisen from continuing activities. The notes fom part of these financial statements Page 22

THE PITUITARY FOUNDATION REGISTERED NUMBER: 032 STATEMENT OF FINANCIAL POSITION 30 JUNE 2024 2024 2023 Notes FIXED ASSETS Tangible assets Investments 14 15 1,941 99,344 101,285 91,376 CURRENT ASSErs Debtors Investments Cash at bank 5,458 119,000 571,423 5,282 17 417.203 895,881 422,485 CREDITORS Amounts falling due within one year 18 (18,092) (33,583) NET CURRENT ASSETS 677,789 388 922 TOTALASSETS LESS CURRENT LIABILITIES 779,074 480,298 NET ASSETS 779,074 480 298 FUNDS Unrestricted funds Restricted funds 21 648,501 130 573 410,010 70,288 TOTAL FUNDS 779,074 480 298 The charitable company is entitled to exemption from audit under Section 477 01 the Companies Act 20¢K for the year ended 30 June 2024, The members have not required the company to obtain an audit of its financial statements for the year ended 30 June 2024 in accordance with Section 476 of the Companies Act 2006. The trustees acknowledge their responsibilities for (a) ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply wrth the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company. (b) The financial statements were approved by the Board of Trustees and authorised for issue on .I.ILl*& WtMW....IQW......... and were signed on its behalf by.. Mr T Sumpster - Trustee Mr P Rou8e- Trustee The notes form part of these financial statements Page 23

THE PITUITARY F NDATI STATEMENT OF CASH FLOWS R THE YEAR ENDED 30 JUNE 2024 2024 2023 Notes Cash flows from operatlng actlvlties Cash generated from operation5 275,294 10,091 Net cash provided byl{used in) operating activities 275,294 10,091) Cash flows from Inve8tlng actlvltles Purchase of tangible fixed assets Purchase of fixed asset inveslment8 Sale of fixed asset investments Purchase of current asset investments Interest received 12.426) {63,3761 61,351 {119,0001 2,377 (2,669) 600 Net cash {used in)Iprovided by investing activities 121074) 600 Change In cash and cash •qulvalents In the reportlng perlod Cash and cash equlvalents at the beglnnlng of the r•portlng perlod 154,220 (9,491) 417 203 426,694 Cash and cash equlvalents at the and of the reportlng perlod 571423 417203 The notes fomi part of these financial statements Page 24

THE PIT ITARY FOUNDATION NOTES TO THE STATEMENT OF CASH FLOWS R THE YEAR ENDED 30 JUNE 2024 RECONCILIATION OF NET INCOMEI(EXPENDITURE) TO NET CASH FLOW FROM OPERATING ACTIVITIES 2024 2023 Net Incomel(expenditure} for the reportlng perlod (as per the Statement of Financial Activitias) Adjustments for: Depreciation charges {Gain)Ilosses on investments Interest received Increase in debtors {Decrease)lincrease in creditors 298,776 (19,636) 485 (5.943) (2,377) (176) 15,471 1,889 (2,669) {1,381) 11,706 Nat cash provlded byl(u$od Inl operatlons 10,091) ANALYSIS OF CHANGES IN NET FUNDS At 1.7.23 Cash flow At 30.6.24 Net cash Cash at bank 417 203 154,220 571423 417 203 154,220 571423 Llquld resources Deposits included in cash Current asset investments 119 000 119000 119 000 119000 Total 417 203 273 220 690,423 The notes form part of these financial statements Page 25

THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENT FOR THE YEAR ENDED 30 JUNE 2024 ACCOUNTING POLICIES Basls of preparlng the financlal statements The financial statements of the charitable company, which is a public benefrt entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 1021 'Accounting and Reporting by Chaflties.. Stalement of Recommended Pradice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102} {effeclive 1 January 2019}', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland, and the Companies Act 2006. The financial statements have been prepared under the historical cost convention, with the exception of investments which are included at market value, as modified by the revaluation of certain assets. Flnanclal reportlng standard 102 - reduced dlsclosure exemptlons The charitable company has taken advantage of the following disclosure exemptions in preparing these financial statements, as pemiitted by FRS 102 'The Financial R8POrting Standard applicable in the UK and Republic of Ireland,: the requirement of paragraph 3.17(dl', the requirements of paragraphs 11.42, 11.44, 11.45, 11.47, 11.481a)(iii), 11.48{a)(iv), 11.48lb) and 11.48(c)', the requirements of paragraphs 12.26, 12.27, 12.29(a), 12.29(b) and 12.29A: the requlrement of paragraph 33.7. Income All income is recognised in the Statement of Financial Activrties once the charlty has entitlement to the funds, It 18 probable that the income will be received and the amount can be measured reliabty. Exp•ndlture Liabilrties are recognised as expenditure as soon as there 18 a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economr benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classffjied under headings that aggregate all cost related to the category. 1OJhere costs cannot be directly attributed to particular headings they have been 811ocated to activities on a basis consistent with the use of resources. Tanglble tlxed assets Depreciation is provided at the following annual rates In order to write off each asset over its estimatgd useful life. Computer equipment- 5 years straight line Taxatlon The charity is exempt from corporation tax on its charitable activities. Fund accountlng Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees. Restricted funds can only be used for particular restricted purposes wtthin the objects of the charity. Restrictions arise when specrfied by the donor or when funds are raised for particular restricted purposes. Further explanation of the nature and purpose of each fund is included in the notes to the financial statements. Penslon costs and other post-retlrement beneflts The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activrties in the period to which they relate. Page 26 continued...

THE PITUITARY FOUNDATI NOTES TO THE FINANCIAL STATEMENTS - contlnued R THE YEAR ENDED 30 JUNE 2024 ACCOUNTING POLICIES - continued Investments Assets held for investment purposes are valued at market value at the balance sheet date. Nel gains and losses arising on revaluation and disposals during the year are included in the statement of financial activities. Cash at bank and In hand Cash at bank and in hand includes cash and short-term highly liquid inveslments with a short maturity of three months or less from the date of acquisition or opening of the deposrt or similar account. Flnanclal Instruments The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value. Debtors Trade and other debtors are recognised at the settlement amount after 8ny trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts dua, 0￿ratIng Loasos Rentals under operating leases are charged to the statement of financial activitles on a stralght line basis over the lease temi. VOLUNTARY INCOME 2024 Total funds 2023 Total funds Unrestricted Restricted funds funds Donations Gifta Legacies Membership Sundry income 226,742 35,538 298,095 31,699 482 227.224 35,538 298,095 31,699 282,403 28,244 36,155 29,056 995 596 222 482 376 853 Included within unrestricted voluntary income is £nil (2023.. £nil) of income raised by the local support groups. Voluntary income in the prior year included £347,034 of unrestricted income and £29,819 of restricted income. ACTIVITIES FOR GENERATING FUNDS 2024 Total funds 2023 Total funds Unrestricted Restricted funds funds Lottery & raffle proceeds Merchandise proceeds 24,537 14,986 24,537 31,184 39 523 39.523 43 263 Activities for generating fvnds in the prior year included £43,263 of unrestricted income and no restricted income. Page 27 continued...

THE PITUITARY FOUNDATI NOTES TO THE FINANCIAL STATEMENTS - contlnued FOR THE YEAR ENDED 30 JUNE 2024 INVESTMENT INCOME 2024 Total funds 2023 Total funds Unrestricted Restricted funds funds Bank interest receivable Dividend Income Investment Income 9,927 1,994 383 9,927 1,994 383 1,728 2,471 198 12,304 12,304 4,397 Investment income in the prior year included £1,728 of unrestricted income and no restricted income. INCOME FROM CHARITABLE ACTIVITIES 2024 2023 Total activiiies General Grants Publications 131,034 61,545 454 61.999 Income from charitable activities in the prior year included £21,593 of unrestricted income and £40,406 of restricted income. COSTS OF GENERATING VOLUNTARY INCOME Costs of ganeratlng voluntary Income 2024 Totsl funds 2023 Total funds Unrostricted Restricted funds funds Stsff costs Event costs Online giving fees Printing, postage & promotion costs Other staff costs Local Support Group costs 86,878 7,091 5,273 5,995 5,055 27 86,878 7,215 5.273 6,545 5,440 27 81,009 16,631 5,154 4,693 7,976 124 550 385 110,319 1,059 111,378 115,463 Costs of generating voluntary income in the prior year included £115,463 of unrestricted costs and no restricted costs. Page 28 continued...

THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - continu FOR THE YEAR ENDED 30 JUNE 2024 COSTS OF GENERATING VOLUNTARY INCOME - contlnued Fundraising tradlng: costs of goods sold and other costs 2024 Total funds 2023 Total funds Unrestricted Restricted funds funds Purchases 8,953 8,953 19,137 Costs of goods sold and other costs in the prior year included £19,137 of unrestricted costs and no restricted costs. Aggregate amounts 119,272 1,059 120,331 134,600 CHARITA8LE ACTIVITIES COSTS Direct Costs {see note 8) Support costs (see note 9) Totals General 139 959 368 401 Charitable activities costs in the prior year were £369,059, made up of £298,787 of unrestricted costs and £70,292 of restricted costs. DIRECT COSTS OF CHARITABLE ACTIVITIES 2024 2023 Staff costs Staff training Publication costs Depreciation 114,964 11,815 12,695 485 102,364 2,232 14,284 139959 118,880 SUPPORT COSTS Governance costs Other Totals General 194,377 32,065 226,442 Page 29 continued...

THE PIT ITARY F NDATION NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 JUNE 2024 SUPPORT COSTS - continued Support costs, included in the above, a￿ as follows.. other 2024 2023 Totsl activities General Wages Social security Pensions Rent payable under operating leases Insurance Telephone, photocopier, postage & off￿e supplies Sundries Bank charges Website & online Other staff costs Sthare licences & expenses Equipment Professional fees Flnance & HR consultancy Accommodation, travel & subsistence Membership subscriptions Foreign exchange (gain)11088 PR & Branding 77,559 5,710 3,821 21,866 4,578 71,726 5,328 3,545 5,994 3,152 13,882 410 3,729 9,655 12,007 20,604 13 10,473 3,173 3,896 2,579 18,416 1.488 2,699 21,635 13,485 35,723 55 7,038 18,854 3,753 2,277 197 422 Governance costs 2024 2023 Total activitles General Wages Social security Pen5ion8 Independent Examination fees Other governance costs Trustee training 23,230 2,084 1,162 2,850 1,419 1,320 22,423 2,000 1,127 1,710 455 32,065 10. NET INCOMEI(EXPENDITURE Net incomel(expenditure) is stated after chargingllcrediting).. 2024 2023 Depreciation - owned assets 485 Page 30 continued...

THE PITUITARY FOUNDATIO NOTES TO THE FINANCIAL STATEMENTS - contlnued FOR THE YEAR ENDED 30 JUNE 2024 11. TRUSTEES, REMUNERATION AND BENEFITS There were no trustees, remuneration or other benefits for the year ended 30 June 2024 nor for the year ended 30 June 2023. Trustees, exponsas During the year two Trustees received reimbursement of expenses amounting to £145 {2023 - £270>. 12. STAFF COSTS 2024 2023 Wages and salaries Social security costs Other pension costs 281,167 21,013 259,065 18,836 315408 289,522 The average monthly number of employees during the year was as follows.. 2024 10 2023 10 Core activities No employees received emoluments in excess of £60,000. The key management personnel of the charty comprise the Chief Executive Officer, the Head of P8tient and Family SeNices and the Head of Fundraising. The total employee benefits of the key management personnel of the charity were £160,534. {2023.' £157,893). 13. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Unrestricted Restricted fund funds Total funds INCOME AND ENDOWMENTS FROM Voluntary income 347,034 29,819 376,853 Charltable actlvltle8 General 21,593 40.406 61,999 Activities for generating funds Investment income 43,263 4,397 43,263 Total 416 287 486 512 EXPENDITURE ON Costs of Generating Voluntary Income 134,600 134,600 Charltable actlvltles General 299,367 Total 433,967 70.292 504.259 Net gainsl{losses) on investments 1,889 NET INCOMEIIEXPENDITURE) (19,569) (67) {19,636) Page 31 continued...

THE PIT ITARY FOUNDATION TES TO THE FINANCIAL STATEMENTS - c FOR THE YEAR ENDED NE2 24 13. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - contlnued Unrestricted Restricted fund funds Total funds Transfers between funds 5,158 5.158 Net movement In funds {14,411) 15,225) (19,636) RECONCILIATION OF FUNDS Total funds brought fO￿ard 424,421 75.513 499,934 TOTAL FUNDS CARRIED FORWARD 410,010 70,288 480,298 14. TANGIBLE FIXED ASSETS Fixtures and frttings Computer equipment Totals COST At 1 July 2023 Additlons 47,309 1,522 48,831 At 30 June 2024 DEPRECIATION At 1 July 2023 Charge for year 47,309 485 1,522 48,831 485 At 30 June 2024 1,522 49,316 NET BOOK VALUE At 30 June 2024 1,941 1,941 At 30 June 2023 16. FIXED ASSET INVESTMENTS Cash and settlements pending Unlisted investments Totals MARKET VALUE At 1 July 2023 Additions Disposals Revaluations 91,376 28,860 (27,7491 91,376 63,376 (61,351) 34,516 (33,602) At 30 June 2024 98,430 914 NET BOOK VALUE At 30 June 2024 98,430 914 99,344 At 30 June 2023 91,376 91,376 440/0 of the investment value is held within the UK. The remainder is held in ov8rseas investments. Page 32 continued...

THE PITUITARY F UNDATI NOTES TO THE FINANCIAL STATEMENTS - contlnued FOR THE YEAR ENDED 30 JUNE 2024 15. FIXED ASSET INVESTMENTS- contlnued Cost or valuation at 30 June 2024 is represented by.. Cash and settlements pending Unlisted investments Totals Valuation in 2024 Cost 5,943 92,487 5,943 93,401 914 98,430 914 99,344 16. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 Prepayments and accrued income 17. CURRENT ASSET INVESTMENTS 2024 2023 Unlisted investments 119 000 18. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 2024 2023 Trade creditors Social security and other taxes Other creditors Accruals and deferred income 6,390 8,889 1,666 12,077 12,507 1,859 33,563 Deferred income in the prior period included income of £5,290 received in relation to the current financial year ended 30 June 2024. This income has been released in full during this financial year. 19. LEASING AGREEMENTS Minimum lease payments under non-cancellable operating leases fall due 85 follows.. 2024 2023 wrthin one year Be￿een one and five years 23,975 24,194 60,350 70,350 84.544 Page 33 continued...

THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - contlnued R THE YEAR ENDED 30 JUNE 2024 20. ANALYSIS OF NET ASSETS BETWEEN FUNDS 2024 Total funds 2023 Total funds Unrestricted Restricted fund funds Fixed assets Investments Current assets Current liabilities 1,941 99,344 565,308 18.092) 1,941 99,344 695,881 18,092) 91,376 422,485 33,563) 130,573 648,501 130,573 779,074 480,298 21. MOVEMENT IN FUNDS Net movement in funds Transfers be￿een funds At 30.6.24 At 1.7.23 Unrestrlcted funds General fund 410,010 238,491 848,501 Restrlcted funds Endocrine Nurse helpllne Publications Society for Endocrinology 2nd Endocrine Nurse Helpline Legacy - Solent & IOW Support Group Paediatric Endocrine Nurse Cushing's Disease Day GP Professional Development Nl Support Group Paediatric Work Psychological Support Cushings Inforniation Content 16,291 22,487 (14,438) 8,954 615 (3,714) 1,853 31,441 615 3,714 7,950 19,846 7,950 (19,846) 6,878 11,180 152 15,030 31,630 6,876 11,180 152 34,876 31,630 19.846 70,288 130 573 TOTAL FUNDS 480,298 298 776 779,074 Page 34 continued...

THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - contlnued R THE YEAR ENDED NE2 24 21, MOVEMENT IN FUNDS - continued Net movement in funds, included in the above are as follows.. Incoming resources Resources expended Gains and Movement losses in funds Unrestricted funds General fund 686.809 1454,261) 5,943 238,491 Restrlcted fund8 Endocrine Nurse helpline Publications Society for Endocrinology 2nd Endocrine Nurse Helpline Cushing's Disease Day GP Professional Development Nl Support Group Paediatric Work Psychological Support Cushings Inforniation Content 114,4381 {945) {385) (3,714) {124) (8,500) {14,438) 8,954 615 (3,714) 6,876 11,180 152 15,030 31,830 9,899 1,000 7,000 19.680 152 15,030 35,995 (4,385) TOTAL FUNDS 779 565 488 732) 298 776 Comparatlves for movement In funds Net movement in funds Transfers betsveen funds At 30.8.23 At 1.7.22 Unrestrlcted funds General fund 424,421 (19,569) 5,158 410,010 Restrlcted fund8 Endocrine Nurse helpline Issy Appeal Patient Info Helpline Publications Volunteer Training Society for Endocrinology 2nd Endocrine Nurse Helpline Legacy- Solent & IOW Support Group Legacy- Nurse helpline Paediatric Endocrine Nurse (11,166) 27,457 (2,725) 131 16,291 2,725 1131) (2,017) 24,504 2,997 22,487 (2,997} 433 {433} (6,186) 9,880 7,950 27,457 3,714 7,950 (27,457) 19,846 19,846 75,513 67 5,158 TOTAL FUNDS 499,934 19,638) 480,298 Page 35 continued...

THE PITUITARY F NDATION TES TO THE FINANCIAL STATEMENTS - c FOR THE YEAR ENDED 30 JUNE 2 24 21. MOVEMENT IN FUNDS- contlnued Comparative net movement in funds, included in the above are as follows.. Incoming resources Resources expended Gains and losses Movement in funds Unrestrlcted funds General fund 416,287 {433,967) (1,889) (19,569) Restrfcted funds Endocrine Nurse helpline Patient Info Helpline Publications Society for Endocrinology 2nd Endocrine Nurse Helpline Awareness month 2022 Paediatric Endocrine Nurse Website funding 5,853 (17,0191 (1311 (16,923) (4331 18,2861 (12,500) (11,168) 1131) (2,017) {433) (6,166) 14,906 2,120 12,500 19,846 19,846 15000) 67 TOTAL FUNDS 486,512 19,636) A current year 12 months and prior year 12 months combined position is as follows.. Net movement in funds Transfers betr￿een funds At 30.6.24 At 1.7.22 Unr•8trlcted funds General fund 424,421 218,922 5,158 648,501 Restrlctod funds Endocrine Nurse helpline Issy Appeal Patient Info Helpllne Publications Volunteer Training Society for Endocrinology 2nd Endocrine Nurse Helpline Legacy- Solent & IOW Support Group Legacy- Nurse helpline Paediatric Endocrine Nurse Cushing's Disease Day GP Professional Development Nl Support Group Paediatric Wo Psychological Support Cushings Infomiation Content (25,604) 27,457 12,725) 131 1,853 2,725 1131) 6,937 24,504 2,997 31,441 {2,997) 433 182 (9,880) 615 9,880 7,950 27,457 7,950 127,457) 119,848) 19.846 6,876 11,180 152 15,030 31,630 4,000 6,876 11,180 152 34,876 31,630 19,846 75,513 5,158 130,573 TOTAL FUNDS 499,934 279,140 779,074 Page 36 continued...

THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - continued THE YEAR ENDED 30 JUNE 2024 21. MOVEMENT IN FUNDS- contlnued A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows: Incoming resources Resources expended Gains and Movement losses in funds Unrestrlcted funds General fund 1,103,096 (888,228) 4,054 218,922 Restrlcted funds Endocrine Nurse helpline Patient Info Helpline Publications Society for Endrxrinology 2nd Endocrine Nurse Helpline Awareness month 2022 Paediatric Endocrine Nurse Website funding Cushing's Disease Day GP Professional Development Nl Support Group Paediatric Work Psychological Support Cushings Information Content 5,853 (31,457) (1311 (17,868) (8181 (12,000) (12,500) (25,804) (131) 6,937 182 {9,880) 24,805 1,000 2,120 12,500 19,846 15,000 7,000 19,680 152 15,030 35,995 4,000 19.846 (15,000) 1124) (8,500) 6,876 11,180 152 15,030 31,630 (4,385) 162 981 102 763 TOTAL FUNDS 1266 077 990,991) 279 140 Pu ose of funds Unrestrlcted r6venue funds:. These funds are held for meeting the objectives of the charity, and to provide reserrfes for future activities, and, subject to charity legislation, are free from all restrictions on their use. Restrlcted fund8:. Endocrine Nurse Hel line A specialist endocrine nurse helpline service for pituitary patients, carers, family and the wider piiuitary communty. Iss A fundr818ing appeal raising money in Isabella Andrews, name. P tient Info Hel lin Helplines seplice delivered by telephone, email and text. Publications The charity provide8 various booklets, factsheets and other information publications. V lunteer trainin Funding to deliver training to our team of volunteers. lent IOW Su ort Grou Legacy income received to specifically support the Solent & IOW support group Page 37 continued...

THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - contlnued FOR THE YEAR ENDED 30 JUNE 2024 21. MOVEMENT IN FUNDS - contlnued ac Publications Legacy income received to be used for publications Le ac Nurse hel line Legacy income received to be used for the nurse helpline Awareness Month 2022 Funding to support with the delivery of Awareness Month in October 2022. Societ for Endocrinolo Funds received to cover expenses related to attendance at the BES Conference in November 2024. hin 's Disease D Funding provided for delivery of a support event in London for Cushing's patients. GP Prof ssional Develo nt Funding provided for the provision of an outsourced training event for all UK GP'S focused on pitUFtary illnesses. NISU Funds given for use by the Northern Ireland Support Group In providing the Group's services to pituitary patients and their families and carers in Northern Ireland. tric Work Funds provided for the charity's work in supporting children and young people, and their families and carers. Ps cholo ical Su ort Funds for the provision of counselling and other psychological support services, provided In conjunction with Rare Minds, a charity with expertise in providing psychological support for patients suffering from rare diseases. nf ontent Funds received for the creation of Informative media regarding Cushing's Disease. 22. EMPLOYEE BENEFIT OBLIGATIONS The company operates a defined contributions pension scheme. The assets of the scheme are held separately from those of the company in an independently administered fund. The pension cost charge represents contributions payable by the company to the fund and amounted to £12,066 {2023'. £12,397). Contributions totalling £1,96812023'. £2,023) were payable to the fund at the balance sheet date and are included in creditors. 23. RELATED PARTY DISCLOSURES There were no identified related parties other than the trustees. Details of any payments to trustees are detailed in note 11. The total amount of donalions received without condilion from the trustees during the year was £290 {2023.' £820). Page 38 continued...

THE PIT ITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS - continuad R THE YEAR ENDED 30 JUNE 2024 ULTIMATE CONTROLLING PARTY The Pituitary Foundation is a company limited by guarantee governed in accordance wrth its Memorandum and Article5 of Association. The charitable company is wholly controlled by tts members, who are also trustees of the charity. Page 39