REGISTERED COMPANY NUMBER.. 03253584 IEngland and Wales) REGISTERED CHARITY NUMBER-. 1058968 THE PITUITARY FOUNDATION A COMPANY LIMITED BY GUARANTEE TRUSTEES. REPORT AND UNAUDITED FINANCIAL ST TEMENT R THE YEAR ENDED 30 JUNE 2023
THE PITUITARY FOUNDATION
CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023
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| Reference and Administrative Details | ||
| Trustees' Report | 2 | to18 |
| Independent Examiner's Report | 19 | |
| Statement of Financial Activities | 20 | |
| Statement of Financial Position | 21 | |
| Notes to the Financial Statements | 22 | to33 |
THE PITUITARY FOUNDATION REFERENCE AND ADMINISTRATIVE DETAILS FOR THE YEAR ENDED 30 JUNE 2023 TRUSTEES Mr T Sumpster (Chairl Mr A M Mackintosh Ivice Chairl Dr l E Macdon8ld IHon Secretary) Mr P Rouse IHon Treasurer) Dr S E Baldeweg Mrs H Frazer Dr A M Brooke Ms D L Cooper Ms A Deleligne Mr A H Matty Dr J Newell Prf¢e Iresigned 3.5.231 Ms J A Phillip5 Dr S Sinha (resigned 7.12.231 Mrs C E Thatcher COMPANY SECRETARY Dr l E M8cdonald REGISTERED OFFICE Brunswick Court Brunswick Square Bristol BS2 8PE REGISTERED COMPANY NUMBER 03253584 IEngland and Wales) REGISTERED CHARITY NUMBER 1058968 SOLICITORS TLT LLP One Redcllffe Square Bristol BS16TP BANKERS National Weslmlnsler Bank 32 Corn Streel Bristol BS1 11Q Royal Bank ol Scotland 36-38 Baldwin Street Bristol BN1 1NR INVESTMENT AOVISORS Evelyn Partners Po(Iwall Place Portwall Lane BS16NA Page 1
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 The trustees who ar6 also directors of the charity for the purpose5 of the Companies Act 2Q06, Present their report with the financial statements ol the charity for the year ended 30 June 2023. The trustees have adopted the provisions ol Aceounlirig 8nd Reporting by Charities.. Statement of Recornmended Practice applicable lo charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021 leffective 1 January 20191. OBJECTIVES AND ACTIVITIES Tha purposes of the charity as set out In our governing document. The Gharily's objects, as describèd in our Memorandum and Articlos of Association, are to promote the relief 8nd treatment ol persons suffering from pituitary disorders and related conditions and diseases. and their families, friends and carers. and to provide inlomalion and support.. and lo promote and support research and to disseminate for the PLJbli¢ benefit the results of any such rèséar¢h. The main activities that Ihts Foundation undertakes lo dèliver on these services are.. the delivery ol general and specialised helplines., o devéloprnent afjLI dissemination ol resour¢es online and in print., o presentation of information and holding of community bullding events online and in person,, facilitation of palient-palient $LJPPOrt services.. engagement in, 8nd the dissemination of, research.. support ol volunteers., and undertaking of fundralslng schemes induding ovanls. b. Our strategy and core alm8 During this financial year we developed a n8W Str8legy lor the period 2023- 2027. This w8s developed with staff, trustees and stakeholder5 and builds on the success of the 2019 2022 strategy. Tho new strategy slatès Ihal.. Our vl$lon Is that all people with pituitary conditions can live well, now and in the future. Our m186ion (the way in which we achleve our wsionl is that., We work wllh everyone with a pituitary condition, their support networks and hoallhcare professionals lo raise piluilary awareness, and lo reduce lime lo diagnosis. We empower patients to navig818 the UK healthcare system and obtain the best clinical OUtMe$ possible and provide support lo enable everyone with a pilui18ry condition to live as well as possibl8. Our values (which infomi how we approach achieving our vision) 8re'. We are welcoming We are raring We are empowering We are trusOrthY We are Collaborative Page 2
THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2023 Our Objectlves Iwhich break down th8 practical steps we will take lo achievè our vision) are.. 1-. We will work to reduce the time it tsk¢$ to b• diagnosed with a pituitary condltion by incrÈa$ing awareness We have threè locus areas lo achieve this oble¢tive'. Raise awareness within Endocrinology spècialists Raise awareness in primary care Raise the general public's awareness 2.. We will empower every patlant to receive the best ¢•r• avallable to them, now and in the future We have three are83 that w8 focus on lo achieve this objective., Offer support 3nd education to everyone impa¢led by pituitary conditions Advocate lor th8 best medi1 care possible in the NHS lor evaryone with pituitary conditions Champion valuable p81iènl ¢entrèd investment in the future of piluilary care 3: We will support all peoplé wlth pltultary condition¥ to Ilva wèll We have thrèe areas that we focus on lo achieve this oblecllve.. Increase the accessibility and inclusivity of suppori and services Provide lileslyle support to people with piluilary ¢onditions Seek lo ensure Psychologic81 Support and broader wellbeing advice Is available lo everyone impacted by a pituitary Condition 4: We wlll ensure Th$ Foundatlon Is robust and su3talnabl• We have three ar88s that we locus on to achieve this obsectiva.. Ensure we have the right resources lo deliver our strategy Ensure our financial resources match our ambition Work 5UStainably ACHIEVEMENTS AND PERFORMANCE a. OvaNlew of activities throughout th• y•ar The development of our strategy has resulted in an ambillous plan, responding to posl-pandemic needs. 11 has a clear locus on not only supporting people living with pituitary nditionS today, bul also those who will be diagnosed in the coming years. Against a backdrop of the challenges in the NHS, our specialist helpline services, delivered so ex¢ellenlly by Pat McBride and Nurses Pauline Vvhillingham and Darshna Patel, are more important than ever. We look foTward to ensuring their increasing inclusivity and reach. This report outlines some ol the achievements made against this strategy lo date. After 24 years al our former Bristol office. we were given notice lo lèave. Finance and Operalions Manager Gabrielle Welland secured a fully accessible and well-priced space near Okjr old offices. Moving anywhere 8fter two decades involves 8 lol of sorting, and the tearn, along with volunteer support. have reduced paperwork, moving us towards our paper frèe goal. Alongside this our Systerns and IT M8nager Martin Cookson. supported by Administrator James Charli¢k, led tha migration of our database to Bèacon, a cloud based Fundraising CRM system which will increase our efficièncy and security. This has been a considerable undertaking and Martin's work in particular is recognized and thanked. This migration was an important step for our new websrte, which was launched during the year". th¢ website was developed. along with the Foundation's refreshed brand identity, with support from three Bristol based organizations. We are graleful for their support. and lor funding frorn pfLzer, which assisted Page 3
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 this investment. lthile it w85 vital that the whole team. and stakeholders. led into thi$ process. Communications Officer Loltie Slorey led the process and ensured its success. The macro-econowio18ndscape has been particu18rly Challenging this year as the cost-of-living crisis is keenly felt. It is particularly notable that Head ol Fundr8i51ng Jay Sheppard's work has remained so strong. Jay has delivered excellent fundraising events and has developed new relalionships enabling us not only to support people living with pituitary conditions. bul also to build our community. Our community, comprising patients, healthcare profession815. volunteers, people connected lo these groLlPS, as well 3s our supporters and donors. Is truly inspiring. We are grateful for the widespread financial generosity we have received this year, and also lor the er)ergy and lime so many people havé given 8$ volunteers. professionals. and champions, and in raising awarene55 and sharing your stories. In particular we are hugely grateful for all that our volunteers do and wè vèry much value the importance of their ongoing dediaalion. Kim Wegner, who started in the post of Volunteèr. Events and Campaig Coordinator this year. is a grÈgl asset to our work in this area and has already provided èxcellent support to our volLinl8ers. The continued work of the Ch8rity is only possible through the dedication and hard work ol our staff, volunteers, and through the con11nLied financial support ol our donors, both individual and corporate. 11 has been a positive year for Ihe Gh8rity18d so well by our CEO Rén Renwick. The Trustees wish to thank everyone lor their contributions and commilrnent to the charity throughout this year. b. D•llvery against th8 Strategy In this sèction we will look al spécific activity relating lo each objeclive, and 8re8s we arè looking to develop in the lulure. 1.. We wlll work to reduce thè Ilm• It takes to be diagn08•d wlth a pltultary condltlon by Increasing awar•na8S Our first objective is focused on reducing the lime il lakes lo be diagnosed through Increased awarenes8 ol piluilary conditions. Alongside selling sever81 projects in motion. we have delivèred the following achievements to increase aw8reness. I lal G8neral Awaren$$s Ralslng Awarènéss Month. October 2022 saw our largest ever Awareness month programme generously funded by Novo Nordisk, Merck and Gonsilient Health. We partnerèd with 6 other charities and organisations and sold 600 tickèts. and 5,000 minutes of content was viewed by mor& than 14,000 people in thè first month. Online sessions were rated as Excellent or Good by 920/0 of the people who gave us feedback,. 92°k also said the sessions definitely, Of partly, improved their understanding of the subject area, and Quotes included.. "I'd hil an 811-lime low &nd Ihe Awareness Monlh has giv8n me direclion Jnd hope agaiii.. Awaronèss monlh attendee .1 just want to Say 8 huga thank you for organislng tho Zoom meelings I w8S inCdIblY 8nxious about attending bul I'm $0 pleased I did. Only Iwo zooms in and YOU'V6 given ine the confidence And informalion I need lo k&&p lrying.I"Awar8n8S8 moiith 8llende& We will build on the success of these online sessions, spreading them throughout the year for greater accessibility. P8ge 4
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 Webslte. The launch of the website is a significant element ol our awareness raising. We worked with a speualist MpanY to help improve th& functionality of the site which has huge amount of valuable content. "I'v8 b6gn playing amund with it and I have to say that I'm impTrssed. 11 looks so much mor6 pmfessional and modem and it is definilely easy to navigate now. W811 done lo everyone who had a haiid in it.. "I'm loving the overall look olthe website. Its much mor8 US8r friendly anLI l s88 that it11 be much easi8rforpeopl8 lo find rBl8led articles. We will aim lo improve the findability and use of our website by improving our content and our SEO (search engine optimi5ationl and further increase our resources. particulady the conlenl aimed at healthcare professionals. Our Social media lollowlng Is 8124.910 8cross all platforms, and this has grown by almost 2,000 over the year. Our overall reach has decreased. due lo a reduction in paid advertising and capacity bèlng lo¢uss6d lo olh£r projects. However, the median engagement rale (likes and comments) has increased by 24°A from lasl year demonstrating th81 we are engaging our audience 5ignificanlly more effecllvely. We are delighted that there has been notable coverage in the press induding Jennifer Clark on Sleph's Packed Lunch speaking about Acromegaly, a piece in the Noltingharn Post about Sara Lomas, inspiring fundraising after her Cushings diagnosis, and a podcast lor Pituitary World News about the Pituitary Foundallon. I Ibl Awarene08 wlthln Endocrlnology. These initiatives raise awareness acr055 the board, and we have also worked speclflcally lo raise 8war¥néss within endocrinology. Conf¢rèn¢¥$. We presenlod a posler surnmarising our recent Patient Care Survey at the BES Conference in Harrogale in Novernbei 2022, reaching 1,100 endocrine professionals. In 8ddillon, we havo attandèd sevan conferences across the year reaching 4.000+ ¢linithan8', these included SfE clini¢81 meeting and BSPED. Connecting, promoting and engaging al these conferences is an irnportanl stream ol work and we will continuo lo do this in the coming years. Cllnl¢$. In p8rtnership with support groups, we installed inforrnalion points in clinics in thelsle ol Wight. Southampton and Portsmouth Iwith thanks lo the Sue Cooper leg8cy and the Solenl Support Group), and in Bristol and Cardiff. These are valuable resources lor both patients and clinicians. "We are so grdleful to The Piliiilary Foundation and Sug Coop8r for PlDvidiiig the information stand. Ils only been ov8ilablé for a fow days, anrl we are alarlY seeing Ihe positive imp8GI that il is hgving. I saw a palient who had been very Erauniatised afler h8ving emergency surgery on a piluilary tumour hvo weeks ogo. 11 was so Iielpful lo be 8ble to discuss The 14luilary Found8lioii gs 8 soure& of siipport, and Ihe fact that she was nol alone and give hor some information booklets Irom the stand. Its a great way to raise awareness of The Foundation for piluilary p8lienl$ and about piluitgry conditions forolh&r8 attending Ihe Clinics. We are developing posters signposting our services, both in partnership with the Socièty of Endocrinology and other patient SUPPart groups, and on our own. We will continue to engage with clinician5 to find the bÈs1 way of signposting our services at the point of care. Page 5
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 1 Icl Awarene$8 in Primary Care. Emergency Car•. In partnership with Addison's Disease Sell Hèlp Group IADSHGI, we are working with the Asso¢iation of Ambulance Chief Exeeutive5 IAACEI to develop training lor call h8ndleis around Adrenal Crisis and Adren81 insufficiency. This will be piloted in 2023 with a view lo rolling il out more widely. We are supporting the implementation of the Pati8nl Safety Alert, and the Steroid Emergency Card. We have secured card5 to send out from our office and ceased produ¢lion of our old cards to avoid confusion. Following our correspondence, The Royal College of Emergency Medicine will further promote the cards, most likely ln a Safely Flash during 2023. Work 15 also being ulldertaken lor an AVP-D IDI) NHS ernergency cardlalert too Imilès Lèvy and Helen Simpson are involved with this). We are working with a group of Endocrinologists and patients, 18d by Professor Miles Levy, to drive forward the change of n3we from Diabetes Insipidus lo AVP-D. Alongside this we are seeking lo increase awareness of the safely ol AVP-D. Professor Levy notes the importance ol our work saying., "Working wilh lh8 Piluilary Foundation is 8 really hèlpful way of 8nsuring th8 pali8nt's voice 1$ 81 the heart of olirlliinkiiig amund lh& DI name Ghange agenda. Thgiroiigoiiig support and Gamp8igniiig has baen an iniportanl el8me171 of Ilie success ol Iliis work GP Awar•n888. Wé Ar8 seeking lo secure funding lo deliver education sessions for GPS around pituitary conditions and are in convers81ion with fvrfo providers lo delivèr this in 2023124. This year Professor Newell Price trlalled a new initiative lo signp051 our services and rosourc8s lo GPS on all referral letters as standard, and we will continue to encourage this. 2.. Wo wlll empower every patlent to rnc•lv• th$ bost Care avallabl8 to them, now And In the futur• Our second oblectlve locuses on empowering all patients lo revlew the best care available to them. W8 play an instrumental rolg in this by provldlng support and education lo complement Ihal provided by the NHS. 2a. Offerfng Support and Edu¢ation Helpllnès. The heart of Ihls care Is our specialist nurse helpllne. whi¢h remains invaluable. Wè responded to 1,875 helpline enquiries on phone and email during the year. "Its a 8tunnings6ryiGe lo offer. I'v8 188nt on Ihe support so many limes since diagnosis and su@ery which wos jusl before Covid struck. A m81 h&lp esp8Cl8lly where I could ask questions belore IBlking to my Endo." Survey responder '8&ing Bble to spg&k lo & peTron ther than a ft)bol is vital 88 YOU Gan gel the Information you wanl ralher than answering questions wilhoul gelling anywh6r6' Survey responder We are piloting the usè of bookable slots for our helpline, to help us make our service more available, and will continue to èxplore how we can support more pituitary patients with this service. Currently these slots are lor members only. and this will be reviewed in the coming months. We also operate a general helpline servieè. Two longstanding volunteers on this helpline Stood down this y$ar, and we are grateful for their incredible sèrvice an(J support over the years. Al Page 6
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 thÉ samè time, we are really pleasèd to welcome two new helpline volunteers, who have been trained and supported and are delivering an excellent service. We have worked with our incredible nurses and helpline volunteers lo continually improve OLJr helplines, by offering training and support which, in particular. addresses the significant increase in mental health related ca115. A pre-recorded message. applied in April. clearly defines what we can and can't do.. this has been most h$lpful in redu¢ing inappropriate calls, allowing spacfj for those who do nèèd our support. Wè aré delightèd to have recèivèd funding from Oiurnal lor the pilot ol a Paediatric Nurse Helpline and we are in the process of recruiting lor thi5 role. having established a guidance group ol experts lo inform our work in Ihis area. Resources. We have developed new resourees for OLJr website, including reSoUrS on emergency care and the sick day rules. We have also increased our ability lo share information on drug shortages and things patients rnay want lo consider if this affecls Iherll. We have started the process of securing Piff ick Accredilalion on our resources and will review our print matarials in lina with OLJr online resources through the corning year. We know these re$our¢es are valuèd - as onè sp@Cl81isl nurs8, Emma B, says,. "We fiiid the Pitiiilary Foiindalioii booklets and onlin8 rvsoiirces inv8liiabla. We us8 Ihem for 811 ourpiliii18iyp8tienls c8n rely on them being excellenl qualily end Oftan th8 only option to give to p8118nls" "The le8flels inlormalion booklels are an importanl source lo giv8 lo lamily mombars, to help them undarsland whal you are going tlimiigli SiiNey responder Events. W8 have bLJiII on the value of Awar8ness month and have delivered 28 events through the year including online and face lo lace events as part ol awarene55 month. Each has attracted around 30-50 attendees, 8nd 300-500 vlews after the event. 'F8n18slic session, very sad story lo bagin with. Very inlomlallve and good to know Ihe n8me changa is glob811' .1 have pilijilary Cushings Disease These lypes ofdiscussloiis ar6 SOOOO necess8ry forp8lienls like mys&ifii Th&nk you so muchll" Pltultsry Llfe. Pituilary Life, which has enjoyed a brand refresh, includes Vrtal information on current developrnenls in endocrinology as well as lived experien¢es. Our most rèeènl disliibulion was 1,900 posted and a few digital copies. As with others, we have had positive feedback on this 8dition'. "I thoughl I would comment on how easy il was for me to readyour flssuè 541 magazine. The layout, clarity and simplicily ol the desigii encoiiraged me lo read it from lop to bottom... .1 loved all Ihe p8tienl stories and their experiences in the inagaziiie, as il really helps m&." In the coming ye8r we will develop the conlenl, to maximise accessibility and reach. We continue to be as diverse as possible, for example, ensuring patients stories cover varied conditions and age groups, also offering variety within images lo engage more widely. Page 7
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 2b. Advocacy for best ¢aTe within the NHS NHS. We are 8dvo¢81ing for thè bèst medical care possible for everyone with a piluilary condition within the NHS. Our work detailed above around the implementation ol the Safety Alert, and the AVP-D l DI narne ¢hange ale important components ol this, and we will continue this work in the coming year. Se¢tor Engagèment. We have joined meetings of the Scottish Modi¢al Consortium Patient Group, the Welsh Patient and Public Interest group and the NICE Voluntary Sector and Community Sector Forurll. We were pleased to see the NICE guidelines on Head Injury which were published this year, into which we inpLJlled. We are curren15y involved in the consullalion on the management ol Acute and Chronic Adrenal Crisis, due lor publication in 2024 and are contributing to conversation5 about how NICE will work on consullalions in lulur8. We have engaged with BSPED around the response lo adrenal cris1$ in children and will look lo develtsp edu¢alion rèsources alongside Ihgir guidancè in th& coming year. Govemment advocacy. We are a member of the Specialised He8llh Care Alliance and contributed lo their report published in June 2023 around delayed diagnosis. We will continue to engage in this 8warene8s raising work. Through the SHCA and the advocacy ol our longstanding volunteer Peter O, Malley, we met with two MPS lo raise awareness of piluilary conditions and the parti¢ular ch811enges patients lace in the NHS. Thts challenging findings ol last year's Patient Care survey were imporiant lo share in Ihese meetings, and we will be continuing these conversations seeking lo ensure patients, voices are al the he8rt of developments In the sector. 2c. Patlent centred Inv•$tment As this work demonstrates. we recognise that we need to ensure that the patient voice is al the tte8rt of developments in endocrine care. and alongside meeting with MPS 3nd policy m8ker8 there are other way5 we 818 ensurins this happens. Netsvoth5. We are an active rnernber ol the SfE P81ienl Support Group neiwork, representing a valuable way ol ensuring the patient voice Is heard at a foundational level. The SIE say.. "The Society lor EndoGIFnology works closely wilh Ihe Piluilary Fou17dalion being one of our affiliated pat19nl sUPPOrt groups, advNsing forr8sg&r¢h project steering gn)ups, 8nd olhgrproj8Cts wh61B their expertisa is apprecia166. Tlie Pitiiitary Foundation s enewelic involv8menl is integral lo oijr work iij supporting endoorinologisls and nurses lo delivar the best $8lVleè to patl8nt$ 11 is goat to work with th6m. Robert Brady, who leads the Ireland Support Group. is on the Board of WAPO representing Pituitary Ireland lour ROI based support group), which is part of the Foundation. Page 8
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 Research. We are proactively involved in research within the pituitary and endoerine fields, and shar8 opportunities and findings where we can. Nol8bly, this year we have been involved in.. SHCA report- N8vigating the l&byrinlh.' reducing dBl&ys to a rare disaase diègnosis European Society ol Endocrinology IESEI Drkjg shortages survey Potential renaming of pituitary adenomas Oxytocin research led by Departments of Endocrinology, Diabelology and Metabolism, Univèrsity Hospital Basel, Switzerland. Pat McBride was the patient representative for a study lor patients with AVP-D IDI) NCEPOD INational Confidential Enquiry Palienls, Outcome and Deathl research around blood sodium Ihypon & hypernatremial Adrenal Insufficiency research project IHC inièclion d@vicesl lèd by Aldon$ Chua. Endocrine CNS, Sl Bartholomew's H05pilal, following on from rèsearch around Self Management in Adrenal Insuffi¢i&n¢y study, which we also supported Tech Development8. We recognise tttal technology WIIS hav& an increasingly important role lo play in the diagnosis and care of piluilary conditions, We are al the start ol this area ol work bul are seeking to understand the landscape and role ol tech in this area, with a view lo ensuring patients, naeds are at the heart of developrnenls, and that great prole¢ls can thrive. 3.. We will Support all people wllh pltultary condltlons to Ilva well The heart of this objective is ensuring that as many people as possible ¢an aecess. engage with and benefit from our services. 3a. Accesslblllty and Incluslvlty A¢¢asslblllty. Ensuring th81 our servi¢&s arè accessible and inclusive is fundamental. Our brand refresh was in part driven by our desire lo be more accessible and our new website meets WCAG 2 standards ol accessibility. The colours we use meet a¢¢ess requirements and we are working to reduce the use of PDFS, whlch are less accessible. This work will rernain under constant review. Training. Staff and truslaes were invited on DEI training, which wa5 in lum cascaded lo volunteers. Support Group*. Our Support Groups are at the heart ol our accesslbilily, as they offer local places to meet and sharè Èxperiènces. A number of support group5 have ceased operating over the last 18 Months, partly influenced by the Challenges of Covid. bul also due to the retirement ol fantastic volunteers- and we would like to recognise their brilliant work supporting people living with pitLJilary oondilions across the country. Page 9
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 We are pleased to welcome three new groups this year, bringing our active total to 16. We have introduced one online Condition specific group for people living with Prolaclinoma. and two new local 5UPPOrt groups in Bristol and Coventry. We will seek to ensure a balance of online and in person meetings, lo rernain acces51ble lo a widè group ol people. You can find rnore inlofmation about our volunteer5 in the structure, governance and rllan8gement section below. 3b. Lifestyle Support We reco9nisè that piluilary conditions can often be lifelong. and we want lo support people throughout their life. not just al th& lime ol diagnosis. We are developing new resource3 around rilness and wellbeing and $8e this as an area we will expand on in the coming year. 3c. Psychological Support WÉ have recognised the increased need for psychologlc81 support for patients. This has been exacerbated through the panderni¢ and remains 8 sionificant need. We are looking at ways we can evidence this need and how we can best signpost services, and will develop this over the coming yè8rs. Our GLJildlord Support group are looking lo offer p5y¢hologi¢al support lo local patients in the coming year, with thanks to a generous legacy from Mr Hawlay. We have also offered support lo our volunteers and staff on our helpllne, as many ca115 are increasingly complex and challenging, This has been well reGeived, and we will conllnue lo review this. 4: We wlll ensure The Foundatlon Is robust and su8talnable This objective locuses on our internal robusiness and considerable work has been achieved. Our three objectives in Ihis 8r88 locus our attention to ensure we have the righl resources, and work sustainably lo ensure our ongoing success. Dlgltal Upgradè. The migration to Beacon, our digital CRM system, ha5 been 3n Important part of achièving Ihls objective. It builds on the rnigration at the 5t8rt of the year lo Office 365, removing our reliance on physical servers and increasing our security. Stsff RecruStmanL The recruilmenl Into the Volunteer, Events and Campaign Coordinator role h8$ beèn an Important element in ensuring our staff have appiopriale ¢apa¢ity. We are also delighted that Georgia Eyles has joined us lor a mid-length paid internship, increasing our oapacity in communications. Staff Support. We undertook a benefits review mid-year, increased thè annual leave allowance for all staff, and supported staff with cost-of-living challenges. These initiatives build on the offer of an Employee Assistance programme and flexible working. offering a strong package to relain great staff. Sustalnable Workplace. Our new office is fil for PLJrpose, and is both physically accessible and well18id out for the in¢reasirig reliance on virtual meetings. We are moving lo a one per50n, onè devi policy reducing costs and increasing flexibility. Our brilliant office volunteers have been digilising paper records. Page 10
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 Policies and Proceduras. We have reviewed our Heamh and Safely procedLJres, along with our Staff Handbook and fLJII suite of Policies and Procedures. We have brought in new policie5 where néeded and revised exi51ing ones. We will have a particular focus on our green agenda in the coming year, We are also working with Local Support Groups to bring their financial processes in line with our procèdurès, and to achieve best practise. Membership. Our membership is 2.080 irTr June 2023, and we wlll look at providing the b85t service lo those members, whlle seeking lo attract new groups. Collaboration. Collaboration is T40ted 8s an Important element of our ongoing susl8inabllily, and we have explored several collaborations with peer support gTOUPS as well as pharmaceutical Companies and networks this ye8r. c. Publlc b•nèflt The Trustees have considered the Charity Commission's requirement in réspect ol Public Benefit. In their view the chaiily mééts, in full. the criteria to satisfy the lesl. The Trustees, Annual Report describes the actlvilles undertaken to further its charitable purposes for public benefit. FINANCIAL REVIEW . Overview Al the Start of Ihls year, the pandemic had ceased lo be 8 major influence on the charity's fundraising activitie5, but given sliongly rising inflation and the onset of a c05t of living ¢risis across the UK we were cautious in our budgeting, selling a break.even budget lor the 12 months lo 30 June 2023, CEO Ren Renwick was planning significant expenditure on inlraslruclure improvemen15 Inew CRM d8labas8, brand refresh and new websilel, as described in her report, and it had been agreed Ihal this spend was lo be funded from the charity's reserves. Given the econornic headwinds whlch laced the Charity this year, it is again ple85ing lo report another good f1n8neial outturn., when we exclude the infrastructure spend1£29,7041 in the year, the charity made a surplus for the fourth consecutive year. This was 8 good result in the clrcumslances. achieved by our Fundraiser Jay Shepp3rd and the whole team. Jay oversaw a 5u¢cesslLJI programme ol fundraising events, Includlng a team of more than 70 people running thé London Landmarks Half Marathon on the charity's behalf, raising over £40,000. Once again, our many members and supporters exhibited wonderful generosity in donating to the charity, and we received Significant donations from a number of Trusts and Pharmaceutical companies. In total, we recorded income slightly highei than the pr&vioLJS year at £483,843. As in previous years, the team managed our Costs effoctively, in particular negolialing an ex¢ellent outcome on our property move., we also benefitted from operating at least one staff member short for much ol the year. Excluding the infrasltu¢ture spend, our total costs lor the year were £473,955 almosl £18,000 below the year's budgeted figure. After infrastructure cos15. all of whi¢h have been expensed. we posled a net loss ol £19,636 for the year,. our 8c¢umulated reserves at the end of the year Iherèlore reduced to £480,298, with unrestrictèd Cash resources of £410,010.. this level ol reserves still represents around 9 rnonlhs of typical expenditure. It has bts¢ome apparent from our results in the last lew months of the year that some of Page 11
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 OLJr in¢omÈ eatègorios are eoming under a bit of pressLJre. so it is comforting that the charity's overall financial position remains so robust as we lace the new financial year. b. Incomlng rèsourcas In 2022123 The Foundation made income of £483,843 compared lo £468,087 in the previous financial year. c. Funders The Foundation enjoys an extraordinary level of support frorn its community. The Trustees express their huge giatitude to all our donors." mombers, donors, fundraisers. companies and Trusts and Foundations. Without this support we simply could not continue. Thank you. There are a huge number of 5UPPOrter5, many ol whom wish to remain anonymou8. We would like lo recognize some of the ganeroslly we have benefilled from this financial year. This is not cornplele picture, but hopefully gives a flavour ol the support we enjoy. Events and ¢ommunlty fundralslng returned to pre-pandemic levels, which was extremely plèasing, and we saw fundraisers take on all sorts of wonderful challenges. These included Alastair Norris who completed a Irialhlon raising £5.045. Georgina Ellis who Completed the Barcelona Ironrllan irTr rllernory of her mother raising £1,066, Indya Harvey who completed the Cambridge Hall Marathon raising £455, and Mike, Lotlie and Roger who look on the Tharnes Path 25KM walk raising £1,250. We had several charity of the year partn¢rshlp$ during the year". Courtiers Investments r81S8d £5,400, Lancaster Goll Club £4.040, Beau Desert Goll Club £7.200 and Exeter School £1,500. Our Challenge even¢s were stsc¢essful. We amassed OLJr largest ever running 1è8m al thè London Landmarks Hall Marathon, which continues to be an ever.popular event in our events portfolio, raising over £40,000. Our annual trek up Snowdon wa5 once again successful with a team of 13 managing lo raise over £5.000 between them, Our sinceresl thanks go lo staff member Lottie Slorey for m8naging this event in the absènce of our Héad of Fundraisino, and thanks also to Bryn Williams Mountaineering for safely looking after our team. Thè plcturesque Four Falls Trek in the heart of the Brecon Beacons attracted walkers from all over the UK with some travelling as lar afield as Kent to join us. The learn enjoyed some ol the most speclacular scenery in the UK and collectively raised £4,500 for our charity. Sincere thanks 10 all and th8nks also lo JT Expeditions for looking after our group. Nine brave individuals joined us 81 our Skydive in May and together raised £10,100 for our charity. The daring individua1sjumpgd in glorious sunshine with many conquering their lear of heights in the process. Once again. we saw a team ol brave individuals taking on the Arcelormittal Orbit ch811enge, the hlghesl freefall abseil in the UK. The téam managed to raise a SLSbstantial £4,500. Gifts in Wllls. We received some very generous gifts in the wills ol long-lemi supporters, and we would like to thank these individu815 for kindly thinking of us. Thèy were-. Wendy Harrop Mary P8r50n8ge Patricia Leigh James Lambert Caroline B8yIis Rosem8ry Evans Paoe 12
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 Donations. In addition to the considerable generosity of individuals, we are hugely grateful for donations we have received frorn commercial companies, Trusts arid Foundations. In particular, we would like lo thank.. The Eveson Trust The D'oyly Carte Charitable Trust The DJS Glasdon Charitable Programme St James, Place Foundation randwells Construction Lotus Charitable Foundation The Gilander Foundation The Chrlslopher Lane Trust Sincere thanks to all of our pharmaceutical supporters that made donations durlng the period. They included.. Consilienl Healtl Icare - £1,000 towards Awareness Monlh 2022 Oiurnal- £3,000 towards Pituitary Life HRA Pharma- £5,000- towards core frontlinè services psen £5.000 towards our new publications Pfizer- £15,000 towards our new website Novo Nordisk- £8,000 towards Awareness Month 2022 Sparrow Pharrnaceulica15 £3905 toward5 the updating of our publlc811ons Merck- £5.000 towards our new PLJblicalions and £3,500 towards Awareness Month 2022 Recordali Rare Diseases- £4,000 for unreslricled use We work in line with ABPI guldelines in 8ccepling funds from pharmaceutical Gompanies. Thè year ahead will be challenging and we will review our fundraising strategy, acknowledging the ifflmellse value of our mMunitY In supporting our work. d. Resource8 expended The staff team, alongside the Finance Committee, work5 hard to keep costs down, seeking compellllve quotes and adhering to financial processes. As noted above, we used reserves ol almost £30,000 to fund our work lo replace QLJr ageing database with a new CRM solution, for a brand refresh, and for the development and impletllenl8lion of our new website. e. Inve¥tm•nt Pollcy and p•rfomiane• We have rationalized our banking in the past 12 months. We hold general gnd reslricled funds In our ma1n Nat Wesl and RBS Accounts. We have some modest sums with Monlhmouthshire Building Society, Julian Hodge Bank and Virgin Money., we are seeking to Close two of the latter accounts. Alongside these accounts we are pleased with the use of the CAF Online platform which we sel up last financial year. This has allowed us to secure the best rates with a mixture of shorter ancf longer- term savings Inveslrnenls, which has in¢reased our income and allowèd us lo take advantage of increasing interest rates more effectively. Our illveslments rnanaged by Evelyn Partners Ipieviously called Smith & Wlliamsonl have improved in value from a low point at the end ol last financial year and we are pleased to see our overall savings and investment position balanang income generation and managed risk. The investwenls with Evelyn Partners are intended lo be held for the longer lerrH and their vale will flu¢luale over time. Our total funds held with Evelyn partners is £91,376 and we have benefitted from an income of £2,450 frorn these Investments. Page 13
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 All of thè charity's funds are subject lo regular review by our Finance Sub Committee. The Trustèes have a confident expectation that The Foundation will continue in operational existence for the foreseeable future and have, therefore, used the going concern basis in preparing the financial statements. We have an Inveslmelll Policy. devèloped in line with Charity Commission guidelines and reviewed and approved by the Finance Cornmittee and Trslees, lo which wè continLJe to adhere. f. Reserves pollcy We have changed the way in which we view and manage our rèsèrvès as a whole this year. We plan to relain operational reserves iepresenling 9 months of our annual operating costs, equating to around £355,000. Thé rèmaining funds, lo be known as the Development Reserve and curiently around £55,000, is available for investrnent in the charity's infrastructure and in patient support. Free reserves are calculated a5 unre51ricled reserves less design8l&d funds and fixèd assets. The free reserves of the Foundation 8130tr JLJne 2023 were £410,01012022.' £424,421). STRUCTURE. GOVERNANCE AND MANAGEMENT a. Govemlng document The Plluilary Foundation was established in 1994 and became a Corrpany Limited by Guarantee and a Registered Charity in 1998. 11 is, therefore, governed by company law and the Charity Commissioll. Ils governing documents are Ils Memorandum and Articles ol Association. Membership Is encourag¢d and is open to all who wish to SUPPOrt The Pilullary Foundation., howev8r, Ihtt principal servl¢e$ prothd8d are available to all who require them regardless ol mernbershlp, b. Appolntment of Trustee$ Al each General Meeting IGMI, one Ihird of the Trustees retire by rolalion. Any member of The Foundation rnay nomin819 any other mernber for a vacant Trustee position, If there are more nominations than vacancie5. member5 are balloted, and thè result announced al the GM. In addition. the diversity and skills required by the Board are monilortrd by the Trustees and any identified under representation that occurs may result in advertising for prospective Iruslees that meet the specification. Trustees may then be co- opted onto the Board until the next GM al which time they rnusl sland lor re-election. c. Trust•è Induetlon and trainlng TrLJslees are inducted within three months ol election. They are inducted online or at the Bristol Office. Al induction, the member5 of staff and represenlalives from the Trustees work with the new Trustee lo explain the business, services, aims and objectives of The Foundation. Al the lime ol Induction, each Trustee is givèn a Trustee Induction Pack. Trustee training is undertaken on an ad hoc basis. d. Organisation The Board of Trustees governs The Foun(J81ion. 11 comprisès up to fifteen members, who are also Directors of the Company. A limit of one third has been set on the number ol Trustees who are employed in the he8lth sector to ensure strong representation of patients and carers. At report date there were three Ttustèès èmployed in the health sector. The Board of Trustees stages meetings a rninimurn ol three limes per year. The Trustees have appointed four Officers of The Foundation. These comprise the Chair, the Vice Chair. the Secretary and the Trèasurer. Page 14
THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2023 The Foundation is a member ol.. Helplines Partnership o The National Council for Voluntary Organisatioll INCVOI Charity Finance Group ICFGI AfflIa16d with the Society lor Endocrinology The charity is registered with the Fundraising Regulator and the Foundation's Head of Fundraising is a member of Thè Institute ol Fundraising. The Foundation has sub-comrnittees. which rèport lo the Trustees through their respèctive Chairs. Each 5ub-commiltee has Terms of Reference (foRI, The Medical Ctsmmlttao Our volunteer Medical Cornmillee is made up of endo¢r4ne and related medical professionals who provide invaluable expertise answering cornplicaled patient queries. speaking al conferences, writing articles for our magazine, Pil£iilary Lile, and content for our website and booklèts. The Foundation undÈrslands the members of our Medical Committee are professionals with demanding o¢¢upallons and we are Indebted lo them lor all ol their lime 8nd effort working with staff and other volunteer5 10 provide support lo thè pituitary community. Members ol the Medical Committo8- Prof Stephanie Baldeweg, Vice Chair 8nd Chair from May 2023 (Consultant Endocrinologi811 University College London Hospllal, London Dr Robert Murray deputy Chair from May 2023 Consultant Endocrinolo Leeds Royal Infirm8ry Aberdeen Royal Infirmary, And The Foundalion Ro al Cornwall H05 ital Truro Churchill Hospital. Oxford Winterbourne, Bristol righlon and Sussex University Hospitals NHS Trust Sheffield Ghildren's Hospital and Royal Hallamshire Hos Ro al Manchester Children's Hos Alison Milne (Endocrine Specialist Nurse) Dr Jonathan Pinkne Con5ullanl Endo¢rinolo Prof. John Wass (Consullanl Endocrinolo Dr Su8 Jackson Ilndependenl Chartered P5 cholo Or Anna Crown (Consultant Endocrinologist & Honora Clinical Senior LeclLJrer Mr Saurabh Sintta (Adult and Paediatric Pituitary Sur eon Dr Indi Bane ee Paedialric Endocrinolo Sherwin Criseno IAdvanced Nurse Pi8clilionerlLead Nurse in Endo¢rino10 Dr Niki Kaiavitaki (Senior Clinical Lecturer & Consultant Endociinolo Pauline Whillin ha S ecialisl Endocrine Nurse Darshna Patel ecialisl Endocrine Nurse Dr Sofia Llahana Mr Ornar Palhrnanaban Fiona Cains Sui Dr Alex Stilwell Anesthelisl Dr Matthew Heppel (Advanced Clinical Diabetes & Endocrinolo Pharmacist Dr Philip Newland-Jones Iconsultant Pharmacist in D1abeles & Endocrinolo Queen Elvzabeth Hospltal. Birmingham Queen E1128beth Hospital, Birrningharn The Pituila Foundation The Pituila Foundation Universil Colle e Lon!5on Hospital$ Manchester Manchester London Sur eon ecialisl Nurse Hull University Tèaching Hospitals University Hospitals Southampton NHS Foundation Trust Univèrsity of Leicester, Consultant Phy5iC18n and Endocrinologist, UHL Professor Miles Levy (Prof of Clinical Endocrinology) Page 15
THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2023 The Finance Committee The Finance Committee reports lo the Board and assists the Operations and Finance Manager and CEO in the development ol the budgets and the man8gemenl ol Ihe finances. The Fin8nce Commiltea Is chaired by Phil Rouse. Honorary Treasurer. and ils member5 include Torr Sumpsler, Ghaiiman, Alasdair Mackintosh, Vice Chair and trustee Hilary Frazer. The CEO and relevant staff members may be in attendance. This Committee reviews the financial position on a quarterly basis and meets as and when required lal least quarterly). Most of the dealings of the Finance Committeè arè carried out 8leclronically. The Patient Committee We are pleased lo have committed lo es18blishlng 8 Patient Committee lo infortn 8nd 8dviye on our work and services. The Committee will develop a Terms 01 Relerence. and will comprise people living with a range of pituitary conditions from a range of backgrounds lo represenl the breadth ol the Cotnrnunily we Serve. There is currently no reporting mechanism. and thi5 will be deleimined a5 the ¢omrnittee formalizes laler this year. Volunteers The cornrniltees above are filled by generous. and skilled volunteers. We are hugely grateful for all our 109 volunteers, amongst other things leading support groups. manning the helpline, helping in the office and supporting ovr furidraising and awarenèss. Wilhoul 3 team ol dedicatèd, 8nd gènèrous people w& would not be ab 10 5UPPOrt people across the country in the way we do. Wa are delighted that we h8V8 recruilad a new Volunteer, Events and Campaigning Coordinator who is working with volunleors and has coordinated and daliv&red a new training programm$ 8nd revisèd handbook, Volunteers deliver wlal roleB. generously Sharing their lived experience and knowledge ol the patient pathway lo support people with recent diagnoses, their friends and families, as well as longer term pituitary patients. Our volunteers say.. I love helping olh8rpeople and Ih81 s the main rBason I wanled lo be a voliinteei. in Ihe firsl place. Vou gel lo maat lols of people along Iha way, and you gal lo do soma reslly lun sluff Ih8t nobody elsa would probebly want lo do.. Slipport Gmup le&d "Over tho yegrs I have 18arnl a gr821 daal from experienced members of the communily. Now l find mys&lf using Ihal information and insight in olher calls., H8lpline wolunta8r "I lik8 tha volunteèr helpline mosl b6cause I can sh8ra my know16dgg ènd 6xp8rtgnc8 lo h81p olhers, 6specially those who are newly diagnosed. l also eiijoy wnning the Support Group. especially the meetings. Helpline 8nd Support Group Volunleer f. Staff Employ8d As of 30 June 2023 The Foundation employed ten rnerllbers of 51aff17.63FTEI and one paid intern on contract.. Chief Executive Officer Head of Support Service8 Head ol Fundraising Operations and Finance Manager IT alld Systems Manager Endocrinè Sp8cialist Nursè Helen Renwick IRenl Pal McBride Jay Sheppard Gabrielle Welland Martin Cookson Pauline Vthittingham Page 16
THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2023 Endocrine Specialist Nurse Communications Officer Volunteer. Even15 and Campaigning Administrator Intern Ipaidl Darshna Patel Lollie Slorey Kim Wegner Ifrom 11 April 20231 Jarnes Charlick Georgia Eylès (from 25 April 20231 The Charity's staff has a clear line management rèporting structure to the Chief Executive Officer. who reports lo the Board of Trustées thiough the Chair. The Chief Executive Officer and ttte Chairman of the Trustees mèet online or in person on a regular basis. There are clear reporting ling5 for all staff, and regular 1-1's supporting the annual apprai881 process. Staff wellbeing is celllral lo thè culture of our work and staff benefits have been reviewed lo include accéss lo an EAP prograrnme, 30 day5 annual leave, flexible working and 50/0 pension conlribulions. The team are supremely dedicated and bring a huoe amount of energy and corllmilmenl lo their work, supporting and seeking the bèst outcomes lor all people living with piluilary conditions and their support networks. The Trustees would like lo thank Ihern for their ongoing dedication and hard work. g. Risk managem$nt The Foundation maintains a current and ¢omprehensive Risk Register. Management of this register is held jointly by the Chair ol the Trusl$es and the Chief Executive Officer. This is ieviewed on 8 règular basis and Is reported quarterly lo the Board of Trustees, including e8lablish¢d controls and action5 to miligale the identified risks. Page 17
THE PITUITARY FOUNDATION TRUSTEES, REPORT FOR THE YEAR ENDED 30 JUNE 2023 TRUSTEES, RESPONSIBILITY STATEMENT The trustees (who are 8150 the directors ol The Pituitary Foundation for the purposes ol company lawl xre résponsible lor preparing the Trustees, Report and the financial slalemen15 in accordance with applicable law and United Kingdom Accounting Standards Iunited Kingdom Generally Accepted Accounting Practice) includillg Firiancial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland" Company law requires the trustees lo prepare financial statement5 for each financial year which give a true and Igir view ol the stat& ol affairs ol the ch8rilable ¢ompany and of the incorring resources 8nd application of resources, induding the Income and expenditure, of the chafilable company lor that period. In preparing those financial slalemenls, the trustees are r&quired lo select suitable accounting policies and then apply them conslstenlly., observe the methods and principles in the Charity SORP, make judgements and estimates that are reasonable and prudent., preparè th6 financial statèments on the going ¢oncarn basis unless il is inappropriate lo presume that the charitable company will continue in business. The trustees are responslble for keèping proper accounting re¢ords which disclose with reasonable 8¢cura¢y el any lime the financial p05ilion of the charitable company and lo enable them lo ensure that the financial slalemenls comply with Ihe Cornpanies Ad 2006. They are also resporisible for s81eguarding the assels ol Ihe charitable Company and hence for taking re8sonable steps for the prevention and detection of IraLsd and other irregularities. Trustees, report, incorporating a strategic report, 8pproved by order of the board ol Iruslees. as the company directors, on and 51gned on the board's behalf by.. Mr T Surnpster- Trustee Page 18
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF THE PITUITARY FOUNDATION Independent exzminerfs report to the trustees of The Pituitary Foundation I'the Company'l I report to the charity trustee5 on examination ol the a¢Gounts of the Company for the year ended 30 June 2023. Responsibilities and basis of report As the charity's ITUStees of the Company land also its directors for Ihe purposes of company lawl you are responsible for the preparation ol the accounts ir5 accordance with the requirements of the Companies Act 20061.the 2006 Acfl. Having satisfied myself that Ihe accounts of the Ctsmpany are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination. I report in rèspect of my examination of your charity's aecounts as carried out under Section 145 of the Charities Act 2011 (the 2011 Act'l. In carrying trut my examinatiorTr I havè followed the Directions given by the Charity Commission under Section 145{51 Ibl of the 2011 Act. Independent examinerfs statement Since your chaiity's gross income exceeded £250,000 your examiner musl be a membei of a listed body. I can confirm that l arn qualrfied to undertake the examination because l am a member of the Institute of Chartered Accountants in Engnd and Waks. which is one of the listed bodies. I have completed my exam5nation. I confitrn that no matters have come to my attention in connection with the examination giving me cause lo believe- accounting records were not kept in respect of the Company as requi by Section 386 of the 2006 Act". or the accounts do not acwrd wtth those records", or the accounts do not comply wrth the accounting requiiements of Section 396 of the 2tX)6 Act other than any requirement that the accounts gwe a true and tsii VEW which is not a matter considered as part of an independent examination. or the accounts have not been prepared in accordance vhth the methods and prinpIeS of the Statement of Recommended Practice for accounting and reporting by charib.es lapplicable lo charities preparing their accounts in accordance wrth the Finanual Rerthing Standaid applicable in the UK and Republic of Ireland IFRS 10211. I have no cAJncems and have come a(xoss no other matters in connection with the examination to which attention should be drawn in this report in order to enable a pioper undèrstsnding of the accounls to be reached. n-w,IliQtrnf C Moefvryn-mfilliams, Bsc FCA Dale". Page 19
THE PITUITARY FOUNDATION STATEMENT OF FINANCIAL ACTIVITIES INCORPORATING AN INCOME AND EXPENDITURE ACCOUN FOR THE YEAR ENDED 30 JUNE 2023 2023 Total funds 2022 Total funds Unrestricted fund Restricted funds Notes INCOME AND ENDOWMENTS FROM Voluntary income 347,034 29,819 376,853 350,831 Charitable actlvStles General 21,593 40,4( 61,999 e7,355 Aclivities for generating funds Investment income 43.263 1,728 43,263 48,550 Totsl 413618 70,225 483,843 468 087 EXPENDITURE ON Costs of Generating Voluntary Income 134,600 134,600 125,926 Chorftsble a¢tlvltlo$ G8neral 298.767 70.292 389.059 330 045 Total 433 367 503 659 455 971 Nel galns115osse81 on Investments 180 180 NET INCOMEIIEXPENDITUREI 119.5891 1671 119,6361 3,302 Transfers betsveen funds 19 5.1581 N•t movèmènt In fund8 114,4111 15.2251 119,6361 3,302 RECONCILIATION OF FUNDS Total funds brought forward 424,421 75,513 499,934 496.632 TOTAL FUNDS CARRIED FORWARD 410010 480,298 499,934 CONTINUING OPERATIONS All income and expènditurè has arisen from continuing activities. The notes form part of these finallcial slalemenls Page 20
THE PITUITARY FOUNDATION REGISTERED NUMBER: 03253584 STATEMENT OF FINANCIAL POSITION 30 JUNE 2023 2023 2022 Notes FIXED ASSETS Investments 15 91,376 91,196 CURRENT ASSETS Debtois Cash at bank 16 5,282 417,203 3,901 426.694 422,485 430.595 CREDITORS Amounts falling due within one year 17 {33,5631 121.857) NET CURRENT ASSETS 388,922 408.738 TOTAL ASSETS LESS CURRENT LIABILITIES 480,298 499.934 NET ASSETS 480 298 499,934 FUNDS Unrestricled funds Restricted funds 19 410,010 70.288 424,421 75,513 TOTAL FUNDS 480,298 499.934 The Charitable ¢ompany is entrtled to exemption from 8j]I under Section 477 of the Companies Act 2006 for the year ended 30 June 2023. The members have not required the MpanY to obtain an audit of its financial statements for the year ended 30 June 2023 in accordance th Section 476 of rhe Cornpanies Act 2006. The trustees acknowledge fheiF responsibilitiès for lal ensuring that the charitable company keeps accimjnting records that ojmply with Sections 386 and 387 of the Companies Act 2006 and prepanng financial statements which give a true and fair wew of the state of affairs of the charitab company as at the end of ead) financial year and of its surplus or deficrt for each financial year in accordance wrth the requirements of Sections 394 and 395 and whith otherwise comply wilh the requirements of the Companies Ala 2( relating to finanaal statements, so far as applicable to the charitable company. Ibl h financial statements were approved by the Board of Trustees and authorised for i8sue on - and were signed on its behaw by" T Sumpster- Trustee Mr P Rouse- Truslee The notes foTh part of these finanryal statements Page 21 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023 ACCOUNTING POLICIES Basi8 of preparing the financial statements The financial statements ol the charitablè company, which is a public benefit entity under FRS 102, hav8 been prepared in a¢coid8nce with the Charities SORP IFRS 1021 'Accounting and Reporting by Charities. Slalement ol Recommended Practice applicable to charities preparing their accounts in accordance with the Fnancial Reporting Standard applicable in the UK and Republic of Irelarid IFRS 1021 leffeclive 1 January 20191,. Financial Reporting Sl3ndard 102 'The Firiancial Reporting Slandard applicable in the UK and Republio af Ireland, and the Cornpanies Act 2006. The financial slalemenls have been prepared undei the historical cost convention. with the exception ol investments which arè included al market value, as modified by the revaluation ol certain assets. Flnan¢lal réporting $1ond¥rd 102 - reduced disclosure exemptions The ch8rilab16 company ha$ taken advantage ol the following disclosure exemptions in preparing these financial statemen15, as permitted by FRS 102 'The Financial Reporting Standard appli¢8ble in the UK and Republic ol Ireland.: the requirements ol Section 7 Staternent of Cash Flows., the requirement ol paragraph 3. 17ldl', the requirements ol paragraphs 11.42, 11.44, 11.45, 11.47. 11.481alliiil, 11.481alllvl, 11.48lbl and 11.48lcl', the requirements of paragr8phs 12.26. 12,27. 12.291al, 12.29lbl and 12.29A', the requirement of paragraph 33.7. Income All income is recognised in the Slalemenl ol FinanrAal Activities once the Gharily has entillemanl lo the funds, il ig probable that the income will be received and the amount pan be measLJred reliably. Expenditur Liabilities are re¢ognl8ad as expendllure as soon as there Is a legal or conslruclive obligation committing the ¢harlly lo that expenditure, il is prob8ble that a Iransler of economic benefits will be required in selllernenl and the amount of the obligation can be rneasured reliably. Expenditure is accounted lor on an accruals basis and has been classified under headings that 8ggieg8le all cost related lo the category. Where ¢osls cannot be dire¢lly allribuled lo particular headings they have been allocated lo activities on a basis consislenl with the use of resources. Taxation The charity is exempt from corporation lax on ils charitable activllles. Fund a¢¢ounting Unreslricled funds can be used in accordance with the charitable objectives al the discretion ol the trustees. Restricted funds can only be used for p8rtl¢u18r reslricled purposes wthin the objects of the charity. Restrictions aii5e when specified by the donor or when funds are raised for parti¢ular reslricled purposes. Further explanation of the natu 8nd purpose of each fund 15 iricluded in the notes to the financial statÈrnenls. Pension costs and other post-retlrement beneflts The charitable company operates a defined contiibulion pension stheme. Colltributions payable to the charitable company's pension scherne are charged to the Staternent of Financial Activities in the pariod lo which they relate. Investments Assets held for investment purposes are valued at rrarket value al the balance sheet date. Net gains and losses arising on revaluation and disposals during the year are ineludÈd in Ihe statement of rinancial activities. Page 22 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 ACCOUNTING POLICIES . continued Cash at bank and in hand Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturily of Ihiee months or less from the date ol acquisition or opening of the deposit or similar account. Flnanclal Instruments The charity only has financial a55ets and financial liabilities ol a kind Ihal qualify as basic financial inslrutnents. Basic financial instruments are Initially re¢ognised al transaction value and subsequently rneasured al their settlement value. Dèbtors Trade and olh8r debtors are recognised al the settlernenl amount after any Irade discount offered, Prep8yments are valued al the amount prepaid net ol any tradè discounts due. VOLUNTARY INCOME 2023 Total funds 2022 Total funds Unrestricted funds Reslri¢led funds Donallons Gift aid Legacies Membership Sundry income 252,584 28,244 36,155 29,056 995 29,819 282.4Q3 28,244 36.15S 29,056 995 2cf.810 36,630 69,225 37.794 372 347,034 376 853 350 831 Voluntary Income in th8 prior year included £335,769 of unreslricled In¢om6 and £15,062 of restricted income. ACTIVITIES FOR GENERATING FUNDS 2023 Total funds 2022 Total funds Unrestricted Reslrlcled funds funds Lottery & raffle proceeds Merchandise proceeds 31.184 31,184 12079 36,451 12099 43 263 48.550 Activities for generating funds in the prior year Included £48,550 of unrestricted income and no restricted income. Page 23 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 INVESTMENT INCOME 2023 Total funds 2022 Total funds Unreslricled Reslricled funds funds 88nk interest receivable 1.728 1.351 Investment income in the prior year induded £1,350 of unrestricted incorne and £1 of restricted income. INCOME FROM CHARITABLE ACTIVITIES 2023 2022 Total Gen8ral Grants Publications e1,545 454 66,655 700 Income from charitable activrtie$ in the prior year included £22,775 of unrestricted income and £44,580 of reslrlcled Income. COSTS OF GENERATING VOLUNTARY INCOME Co8t$ of g•n¢ratlng voluntsry In¢¢me 2023 Tol81 funds 2022 Total fund5 UnreslrScled Reslrlcled funds lund5 S18ff costs Event costs Online giving lees Printing, postage & promotion costs Other staff costs Other fundrai3ing costs 81,009 16,631 5,154 4,893 7,976 81,009 16.631 5.154 4,893 7.976 70.747 19.351 5,587 6.112 4,343 914 115463 115,483 107,054 Costs of generating volLJntary income in the prior year included £104,598 of unrestricted costs and £2,458 of restiicled costs. Page 24 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 COSTS OF GENERATING VOLUNTARY INCOME- continued Fundraising trading: cost$ of goods sold and other costs 2023 Total funds 2022 Total funds unstriCted funds Restricted funds Purchases 19.137 19,137 18,872 Costs of good5 sold and olhar costs in the prior year induded £18,872 01 unrestricted costs and no restricted costs. Aggr89al8 amoLJnts 134,600 125,926 CHARITABLE ACTIVITIES COSTS Direct Costs Isee note 81 Support osls Ise8 note 91 Totals General 118880 250 179 369,059 Charitable activities costs In the prfor year were £330,045, made up of £288,774 01 unreslricled costs and £41,271 of restricted cost5. DIRECT COSTS OF CHARITABLE ACTIVITIES 2023 2022 Staff costs Staff training Publication costs Local support group eosls 102,36d 2,232 14,284 108,591 998 12,252 118880 125.818 SUPPORT COSTS Governan¢9 costs Other Totals General 222,464 27.715 250,179 Page 25 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 SUPPORT COSTS- continued Support ¢osls, induded in the above, are as follows.. Other 2023 2022 Total General Wages Rent payable under operallng lease5 Insurance Telephone, photocopier, postage & office supplies Sundries 8ank charges Websit& & online Other s18ff co$t$ D31a prote¢iion and IT sècurity Software linCeS & expenses Equipment Professional leas Flnance & HR consultancy Recruitrnent expenses Accommodation, travel & subsistence Membership subscriptions Fore1gn exchange Igalnllloss PR & Branding Depreciation of tangible fixed assets 80,599 5.994 3.152 66.066 12.383 4.023 18,416 1.488 2,099 21.635 13,485 16,791 3.646 2,007 5,378 3,164 28,456 2,701 2,435 29,12S 1,686 2,453 2,242 35,723 55 7,036 18,8S4 3,753 2,277 197 7,701 241 222,484 182,797 Gov$rnanc• ¢08ts 2023 2022 Total activities General Wages Social security Pensions Indèpendonl Examination faes Other governanco costs 22,423 2,000 1,127 1,710 455 16,585 1,264 822 1,710 1,051 27.715 21,432 Page 28 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 10. NET INCOMEIIEXPENDITUREI Net incomellexpenditurel is slated after chargingllcreditingl.. 2023 2022 Deprèciation- owned assets 241 11. TRUSTEES, REMUNERATION AND BENEFITS There were no trustees, remuneration or other benefits for th& year ènded 30 June 2023 nor for ltte year endecj 30 June 2022. Trustees. expense8 During the year two Truslees received reimbursernenl of expenses amounting lo £27012022- £341 12. STAFF COSTS The key management personnel of the charity comprl$e thé Chièf Executlve Officer, the Head ol Support Servicès and the Head ol Fundraising. The lolal empltsyee benefits ol the key manAgemènl personnel ol the ¢harity were £142,48512022'. £120,106). 13. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Ullreslricled fund Reslrf¢l8d funds Total funds INCOME AND ENDOWMENTS FROM Voluntary incomg 335,769 15,062 350,831 Charitable actlvitles General 22,775 44.580 67,355 Activities for generating funds Inv851menl income 48,550 48,550 1,351 Total 59 643 468 087 EXPENDITURE ON Costs ol Generating Voluntary Incom 123,468 2,458 125,926 Charitable activities General 288 774 41.271 330 045 Total 412,242 43,729 455 971 Net gainslllosses) on investments 8.8141 NET INCOMEIIEXPENDITUREI 112,e121 15,914 3,302 Page 27 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continuèd FOR THE YEAR ENDED 30 JUNE 2023 COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES- continved Unre5tn¢ted Restricted fund funds Total funds RECONCILIATION OF FUNDS Total lund5 bioughl forward 437,033 59,599 496,632 TOTAL FUNDS CARRIED FORWARD 424.421 75,513 499 934 14. TANGIBLE FIXED ASSETS Fixtures and Computer equipment Totals COST AI 1 JLJIY 2022 and 30 June 2023 1.522 DEPRECIATION At 1 July 2022 and 30 June 2023 47,309 1.522 48.831 NET BOOK VALUE AI 30 June 2023 AI 30 June 2022 15. FIXED ASSET INVESTMENTS Unlisted inveslrnents MARKET VALUE Al 1 July 2022 Revaluations 91,196 180 AI 30 June 2023 NET BOOK VALUE AI 30 June 2023 91,376 At 30 June 2022 91,19e There werè no investment assets oulslde th& UK. Cost or valuation at 30 June 2023 is represented by.. Unlisted inve51rnents Valuation in 2023 Cost 18,6341 100,010 91,376 Page 28 continued..
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continuèd FOR THE YEAR ENDED 30 JUNE 2023 16. DEBTORS.. AMOUNTS FALLING DUE WITHIN ONE YEAR 2023 2022 Prepayments and accrued income 17, CREDITORS.. AMOUNTS FALLING DUE WITHIN ONE YEAR 2023 2022 Trade creditors Social security and other taxes Other creditors Accruals and deferred incorne 12,077 12,507 1,859 2.101 7,254 1.867 10.835 33.563 21,857 Deferred income includes income invoiced during the period of £5.290 12022.. tnill which relates to the linaneial yèar énded 30 JLJn& 2024. 18. ANALYSIS OF NET ASSETS BETWEEN FUNDS 2023 Tolal funds 2022 Total funds Unrestricted fund Reslricled funds Investments CLJrrenl assets 91,376 352.197 33,5631 91,378 422,485 33 S631 91,196 430,595 21,8571 70.2e8 410,010 70,288 480,298 499 934 19. MOVEMENT IN FUNDS Nel movement in funds Transfers between funds At 30.6.23 At 1.7.22 Unrestricted funds General fund 424.421 119.5691 5.158 410,010 Re$trl¢t¥d funds Eridocrine Nurse helpline Issy Appeal Patient Info Helpline Publications Volunteer Training Sociely for Endocrinology 2nd Endocrine Nursè Helpline Legacy- Solént & IOW Support Group Legacy- Nurse helpline Paediatric Endocrine Nurse 111.1661 27.457 12,7251 131 16,291 2.725 24,$04 2,997 12,0171 22,487 12,9971 433 14331 ie.1e61 9,880 7,950 27,457 3,714 7,950 127.4571 19.846 75,513 70,288 TOTAL FUNDS 499,934 19.6361 480,298 Page 29 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS. continued FOR THE YEAR ENDED 30 JUNE 2023 19. MOVEMENT IN FUNDS- continued Net movement in funds, included in the above are as follows.. Incoming resources Resourc65 expended G8ins and Movement 10sse5 in funds Unmstricted funds General fund 413,618 1433,3671 180 119,5691 Restricted funds Endocrine Nurse helpline Palienl Info Helpline Publicalions Society lor Endocrinology 2nd Endocrine Nurse Helpline Awareness month 2022 P8edi3lri¢ Endocrinefvurse Website funding 5.853 117,0191 111,1661 14,906 116,9231 14331 18.2861 112.5001 12,Q171 14331 16,1661 2.120 12.500 19.846 15,000 19,846 150001 70.225 70,2921 67 TOTAL FUNDS 483,843 503,6591 180 196361 Ctsmporntlvè8 for movement In funds Nel movement in funds Al 30.8.22 Al 1.7.21 Unre$trletsd fund8 General fund 437,033 112,6121 424,421 Re$trl¢t¥d fund8 Endocrine Nurse helpline 15sy Appeal Patient Info Helpline PLJblicalions Voluntèer Trainin9 2nd Endocrine Nurse Helpline Legacy- Solent & IOW Support Group Legacy. Nurse helpline 377 13771 2,725 18,4381 18,842 2,725 8,438 5,662 2,997 24,504 2,997 9,880 7,950 27,457 9,880 12,9751 3,7431 10,925 TOTAL FUNDS 496,832 499,934 Page 30 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 19. MOVEMENT IN FUNDS- continued Comparative nel movement in funds, included in the above are as follow5.. Incorning resources Resources expended Gains and Movement losses in funds Unrestricted funds General fund 408.444 1412,2421 18,8141 112,6121 Restricted funds Endocrine Nurse helpline Issy Appeal Patient Info Halpline Publicalions 2nd Endocrine Nurse Helpline Legacy- Solént & IOW Support Group Legacy- Nurse helplme 5.025 2,725 8,330 27.000 16.563 15,4021 13771 2,72S 18.4381 18,842 9,880 12.9751 3,7431 116.7681 18,1581 16,6831 12,9751 3,7431 59,843 43 7291 TOTAL FUNDS 488.087 455,9711 A current year 12 months and prior year 12 months combined position 18 as follows.. N&1 movemènt in funds Transfers between funds Al 30,6.23 At 1.7.21 Unrestrictsd lund$ General fund 437,033 132.1811 5,158 410,010 Re$trletèd funds Endocnne Nurse helpline Issy Appeal P81i8nt Info Helpline Publications Volunteer Training Society for Endocrinology 2nd Endocrine Nurse Helplille Lega¢y- Solent & IOW Support Group Legacy- Nurse helplin8 Paediatric Endocrine Nurse 377 111,5431 2,725 18,5691 16.825 27,457 12,7251 131 16,291 8,438 5.662 2,997 22,487 12,9971 433 14331 3,714 12,9751 13,7431 19.848 3,714 7,950 10,925 31,200 127,4571 19846 59,599 TOTAL FUNDS 496.632 16 3341 480 298 Page 31 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS. continued FOR THE YEAR ENDED 30 JUNE 2023 19. MOVEMENT IN FUNDS- contlnuod A current year 12 months and prior year 12 months combined net movement in funds. inclLJdèd in the abovè are as follows.. Incoming resources Resouroes expended Gains and losses Movement in funds Unrestrictèd funds Gener81 fund 822,062 1845,6091 18,6341 132,1811 Rèstrlct•d fund$ Endocrinè Nursè hglpline 155y Appeal Patient Info Helpline Publications Society for Endocrlnology 2nd Endocrine Nurse Helpline Legacy- Solent & IOW Support Group Legacy- Nurse helpline Awarèness month 2022 Paediatric Endocrine Nurse Website funding 10,878 2,725 8,330 41,906 122,4211 111,5431 2,725 18,5691 16.825 14331 3.714 12,9751 13,7431 116,8991 125,0811 14331 114,9691 12,9751 13,7431 112,5001 18,683 12,500 19,846 15000 19.848 150001 129868 1140211 15,847 TOTAL FUNDS 951,930 osè of fund8 Unrestricted revenue fund8'.. These funds are held for meeting the oblecllve8 of the ch8rily, and lo provlde reserves for future activities, and, subject lo charity legislation. are free from all restrictions on their use. Restricted fund8'.. Endocrine Nurse Hel line A specialist endocrine nurse helpline service for pituitary patients, carers, family and the wider pltuilaiy community. Iss A fundraising appeal raising money in Isabella Andrews, name. Patient Info Hel line Helplines service delivered by telephone. email and text. Publications The charity provides v8riou5 bookle15, lactsheels and other information publlcations. Volunteer Irainin Funding lo deliver training to our team of volunteers. Le ac Solenl & IOW Su ort Grou Legacy income received to specifically support the Solenl 8 IOW support group Le a¢ Publications Legacy income received lo be usèd for publications Page 32 continued...
THE PITUITARY FOUNDATION NOTES TO THE FINANCIAL STATEMENTS- continued FOR THE YEAR ENDED 30 JUNE 2023 19. MOVEMENT IN FUNDS- continued Le a¢ Nurse hel line Legacy income received lo be used for the nurse helplints Awareness Month 2022 Funding lo support with the delivery ol Awareness Month In October 2022. P edialric Endocrine Nurse Funds received lo support with the recruitment and appointment of a Paedialric Endocrine Nurse. Website Fundin In¢om8 rèceived lo specifically support Website funding. 20. EMPLOYEE BENEFIT OBLIGATIONS The ¢omp8ny op8r8les a defined contributions pension scherne. The assets of the scherne are held separately from those of the company in an independèntly administered fund. The pension cost charge represents contributions payable by the corrpany lo the fund and amounted lo £12,39712022'. £11,484). Contributions totalling £2,02312022., £1,716) were payable lo th8 fund al the balance shoet dale and are included in creditors. 21. RELATED PARTY DISCLOSURES There were no identified related parties other than the Iruslees. DelaI15 01 any payments lo Iruslees are detailed in note 11. The lolal amount of donations received wilhoul condition Iroin the trustees during the year was £82012022.. £6201. 22. ULTIMATE CONTROLLING PARTY The Pitui18ry Foundation is a company limited by guaranteo governed in accordance with its Memorandurn and Artide8 ol Association. The charitable company is wholly controlled by its rnembers, who are also trustees of the charity. Page 33