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2022-06-30-accounts

REGISTERED COMPANY NUMBER: 03253584 (England and Wales) REGISTERED CHARITY NUMBER: 1058968

THE PITUITARY FOUNDATION (A COMPANY LIMITED BY GUARANTEE)

TRUSTEES' REPORT AND

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

THE PITUITARY FOUNDATION

CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

Page
Reference and Administrative Details 1
Trustees' Report 2 to 13
Independent Examiner's Report 14
Statement of Financial Activities 15
Statement of Financial Position 16
Notes to the Financial Statements 17 to 26

THE PITUITARY FOUNDATION

REFERENCE AND ADMINISTRATIVE DETAILS

FOR THE YEAR ENDED 30 JUNE 2022

Trustees

Mr. T Sumpster (Chair) Mr. A M Mackintosh (Vice Chair) Dr I E Macdonald (Hon Secretary) Mr. M P Beaven (Hon treasurer until 8 July 2021, resigned 8 July 2021) Mr. P Rouse (Hon Treasurer from 8 July 2021) Dr S E Baldeweg Ms. H Frazer Dr A M Brooke Ms. D L Cooper (appointed 8 July 2021) Ms. A Deleligne (appointed 8 July 2021) Mr. A H Matty Dr J Newell Price Ms. J A Phillips Mr. S Sinha Mrs C E Thatcher

Company Secretary Dr IE Macdonald

Registered office

Brunswick Court, Brunswick Square, St Paul’s, Bristol, BS2 8PE

Registered Company Number

03253584 (England and Wales)

Registered Charity Number

1058968

Independent Examiner

TCA Accountants, Third Floor, 21 St Mary’s Street, Shrewsbury, SY1 1ED

Solicitors

TLT LLP, One Redcliffe Square, Bristol, BS1 6TP

Bankers

National Westminster Bank, 32 Corn Street, Bristol, BS1 1IQ Royal Bank of Scotland, 36-38 Baldwin Street, Bristol, BN1 1NR

Investment Advisors

Evelyn Partners, Portwall Place, Portwall Lane, Bristol, BS1 6NA

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT

FOR THE YEAR ENDED 30 JUNE 2022

The Trustees, who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 30 June 2022.

The Trustees confirm that the Trustees’ Report and financial statements of the company comply with current statutory requirements, the requirements of the company's governing document and the provisions of the Statement of Recommended Practice (Charities SORP (FRS102), second edition, effective 1 January 2019).

Since the company qualifies as small under Section 383, the strategic report required of medium and large companies under The Companies Act 2006 (Strategic Report and Director's Report) Regulations 2013 is not required.

Objectives and Activities

a. The need for our charity

Too many patients are still diagnosed late. Too many patients feel isolated. Too many patients have a poor quality of life. Too many failings still occur in the care of pituitary patients. Too few patients feel supported, informed and able to manage their condition. The need for our charity is clear and we continue to work to improve care, and the experience, of people affected by pituitary conditions.

b. Core aims

Our Vision

Every person affected by a pituitary condition has a timely diagnosis and access to high quality treatment, information and support.

Our mission

From the moment someone is diagnosed with a pituitary condition, through their treatment and beyond, we're here providing support, information and a community. We empower people who have pituitary conditions and work towards greater awareness and understanding of pituitary disease.

Our Values

We are trustworthy We are open We are knowledgeable We are patient led We are caring

Our 2019 - 2022 Strategic Goals

Our vision and goals for the future were previously published in our strategic plan 2019 - 2022. The plan includes our four strategic pillars, and from these identifies eleven realistic and achievable strategic goals designed to achieve our vision.

The four strategic pillars are: - Support - Community - Voice

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2022

Support

Our ambition is that anyone affected by pituitary conditions feels supported. Our goals for this Strategic Pillar include:

Goal 1 - Providing modern, high quality, trusted and person-centred support services.

Goal 2 - Developing our support services to reach a more diverse audience, including young people and families.

Community

Our ambition is to build a stronger network and community of people who are passionate about improving the patients' experience. Our goals for this Strategic Pillar include:

Goal 3 - Growing our membership and audience further through developing our digital offering and engagement.

Goal 4 - Developing our volunteering team.

Goal 5 - Developing our network of local support groups and effective regional

Voice

Our ambition is to raise awareness and amplify the voices of people affected by pituitary conditions, and to represent their interests. Our goals under this Strategic Pillar include:

Goal 7 - Representing the needs and experiences of people affected by pituitary conditions. Goal 8 - Participating in opportunities to influence policy relating to pituitary conditions and to work with others to raise awareness of pituitary conditions and rare diseases.

Education

Our ambition is to improve knowledge and understanding of pituitary conditions so that standards of care are improved. Our goals for this Strategic Pillar include:

Goal 9 - Providing high quality up-to-date information.

Goal 10 - Building closer relationships with health care professionals and championing improvements in the education and training of healthcare professionals.

Goal 11 - Building alliances with other organisations in order to share resources and knowledge.

c. Volunteers

The Foundation is fortunate to have a widespread team of dedicated volunteers who take on a variety of roles to provide support and service to our community. These include:

There was a reduction in our volunteers largely due to the pandemic reducing opportunities for activity. At the end of June 2022 there were 107 volunteers working on behalf of the Foundation.

The pandemic was also challenging for our Local support Groups, which often rely on face to face meetings. Several Local Support Groups closed, with longstanding leaders retiring after invaluable work. Some local

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2022

support groups remain in ‘hibernation’ until it is safe for meetings to resume, others are assessing their future. In total there are 22 groups operating around the United Kingdom, together with a group in the Republic of Ireland.

d. Public benefit

The Trustees have considered the Charity Commission's requirement in respect of Public Benefit. In their view the charity meets, in full, the criteria to satisfy the test. The Trustees' Annual Report describes the activities undertaken to further its charitable purposes for the public benefit.

Achievements and performance

a. Review of activities

While Covid continued to influence things during this financial year, the year was dominated by significant staff change. After 10 years of excellent leadership Menai Owen-Jones stood down as CEO of the Charity. Her stewardship has seen the Foundation significantly increase its income, reach more patients than ever and build a strong, resilient base with rigorous policies and procedures complementing its financial strength and excellent governance. We are grateful for her work and her legacy.

During the year Sammy Harbut, Sian Pitman and Miranda Payne also left for new roles. Each of them contributed hugely to the work we do, but also to the team spirit and commitment that saw us successfully navigate the pandemic.

This staff change was a very difficult period internally, but the team withstood and performed brilliantly meeting every deadline and ensuring ‘business as usual’ on all fronts. Trustees took on considerable responsibility in supporting and working alongside staff in this period of transition and supporting the recruitment process. Particular thanks should go to Phil Rouse, Honorary Treasurer, who was present in the Bristol office, and supported staff, undertaking many of the CEO responsibilities in the interim.

We were pleased to welcome Darshna Patel, our second endocrine specialist nurse, Lottie Storey, our Communications Officer and Ren Renwick, our new CEO, to the team during the year.

The second half of the year focused on putting plans for the future in place. This is the final year of the current strategy, and the staff and trustees worked on developing our plans for the coming years. Alongside this work we started to refresh the brand, move to a new CRM system and develop the website. Much of this activity will be completed in the following financial year.

The foundation was given notice to leave their office of 24 years in Colston Street. We worked with commercial property agents to look for a new office, and appointed solicitors to advise on our legal position given the situation. Since the year end we have moved to our excellent new office, within the same landlords’ portfolio.

Our work would not be possible without our volunteers. The pandemic has been a challenging time for face to face meetings, and we are hugely grateful for the tenacity and ingenuity that has been evident in our volunteers, especially in keeping a momentum for local support groups.

The Trustees wish to thank everyone for their contributions and commitment to the charity throughout this year. We are continually grateful for the dedication, passion and commitment of staff and volunteers.

Support

Our helplines are our engine, supporting patients day to day. We responded to almost 2,500 enquiries in the last year, with almost half being emails. Due to a lack of use we retired the text service and online forum. Our helpline volunteers are skillful, empathetic listeners and we would like to thank them for their ongoing work, often in difficult times. We offer training and updates for volunteers and create space for feedback, and are currently recruiting new volunteers into this invaluable role.

The Endocrine nurse helpline remains invaluable to patients, with excellent feedback underlining its often lifesaving role. The demand on this line continues to increase and the appointment of Darshna Patel has been an excellent service improvement.

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TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2022

Some feedback includes:

“Friendly people who understand your every question, as well as being able to answer your questions”

“I honestly believe in my early days the input & help from folk at The Pituitary Foundation actually saved my life!”

We have worked to revise the way in which we collate and interpret helpline data to help us provide the most relevant service now and in the future.

We produced 3 editions of our magazine Pituitary Life, which continues to get excellent feedback from members, and we will continue to evolve its content and design to ensure accessibility and relevance. In the words of readers:

“Arrived today, lovely bright cheerful cover, thank you. Always helpful and interesting read”

“Got mine today, lovely to read all the stories in it.”

“Thanks for the latest edition. Especially for the article on low mood. It's very timely since I have recently contacted the local mental health services. I'll mention this article at my next session. And I do like the cover of the magazine also.”

We continue to develop our online and print resources , including a new video about Diabetes Inspidus with Professor John Wass and board member and patient Debbie Cooper. The Patient and Family services team developed new factsheets available for free on the website including factsheets on fertility and recognising adrenal crisis.

The ongoing uncertainty of the pandemic meant we could not plan for a face-to-face conference . Work was undertaken to develop a programme of online and face to face talks through October comprising awareness month, which falls in the next financial year.

Community

We undertook a review of our Local Support Groups , recognising that we had a number of area coordinators who wished to retire. As noted above several groups remain in ‘hibernation’ following the pandemic, while others have closed. We are grateful for the continued support that Area Coordinators provide and look forward to engaging new groups for the post pandemic landscape.

We have given talks at Local Support Group Zoom meetings, for example our Nurse Specialist Pauline Whittingham generously sharing her knowledge and insights around sick day rules and crisis recognition with the Aberdeen group.

Our membership was 2,089 (down from 2,215 in June 2021) at the end of June 2022. We are grateful for the ongoing support that our members offer us and will look to review our membership scheme in the coming year to offer increased benefit.

Our online community continued to grow, with over 10,000 followers on Instagram and twitter and over 35,000 on Facebook. Our newsletters reach around 8,000 and enjoy a strong open rate. We have developed our newsletters, refining content for relevance.

We have continued with our popular virtual events, restarted #PitHour which has improved twitter engagement, and also held some successful Facebook live sessions in a Q&A style.

Work was undertaken towards the development of a new website - a comprehensive brief has been developed building on scoping work done in the last financial year. The new site will aim to ensure accessibility of information, and greater findability through google searches.

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT

FOR THE YEAR ENDED 30 JUNE 2022

We have underlined the importance of equality and inclusion in all our work by active questioning and engagement. We have implemented Userway on the website allowing users to set the readability for their own needs and will continue with further training and learning in this area.

Our community of Volunteers remains vital to us, and we celebrated their contribution through Volunteer week in June with a virtual appreciate wall and personal stories. This was a heart-warming outpouring of the value we place on all our volunteers. We are delighted to recruit new volunteers to various roles, ensuring an ongoing relevance and legacy.

Voice

We published our 2021 Patient Survey, which drew together feedback from 982 patients. 98% had received NHS endocrine care in the past 3 years. Of those leaving comments, a number of areas of concern for the pituitary patient group were identified.

The results were startling, highlighting some significant issues in the systems that patients navigate. Whilst there were some instances of good quality care, there were many examples where care has fallen below a standard that should be expected, with potentially life-threatening consequences.

Immediate remedial action and improved communication are clearly needed. The good news is that we believe this is achievable in the short term, and we would hope this can be extended in the longer term.

There is a clear urgency to raise awareness and increase education around pituitary conditions in GP, emergency and non-endocrine settings. Within endocrinology, patient experiences are patchy. It is interesting that this is often due to communication – which ought to be simple, and arguably easy to remedy.

We have partnered with the Society for Endocrinology and brought together a working group to address key areas in the survey, which will be central to our work over the coming years.

Our research work continues. We held our annual update for Pharmaceutical companies virtually in February 2022, and continue to work with companies on specific research and projects. For example, we have worked with Novo Nordisk on their Growth Hormone website & pen recycle launch. We worked with Pfizer on a new patient website for acromegaly, and brought the patient voice to many other companies helping to produce the best possible outcomes for patients in the future.

We continue to work with psychologist Dr Sue Jackson, including projects focusing on:

We have fed into the NICE consultation on adrenal insufficiency: acute and long term management.

Alongside this we advocate for our patients. Working with one of our long term volunteers, Peter O’Malley, we have sought to raise awareness of pituitary conditions in Parliament. We are engaged with the Association of Ambulance Chief Executives over patient safety procedures, and continue to advocate for the Patient Safety Alert and Steroid Emergency Card.

Education

We maintained an active presence at relevant conferences , including the British Endocrine Society conference in Edinburgh and the Society for Endocrinology clinical meeting in Birmingham in April.

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TRUSTEES' REPORT

FOR THE YEAR ENDED 30 JUNE 2022

We collaborated with Addisons and other endocrine charities to present slides (virtually) on ‘Preventing Adrenal Crisis: The importance of dialogue between patient and clinician’ at the European Society for Endocrinology in May.

We worked with Consilient to publish a poster about the burden of IST to patient and healthcare staff, presented at this conference as well.

Pat McBride sits on the BSPED endocrinology group, and we are active members of patient organisation collaborations and meetings seeking to share knowledge and leverage benefit for our patients.

We remain an engaged partner with WAPO (World Alliance of Pituitary Organisations), attending virtual meetings and we are pleased to partner with them for our October Awareness month programme.

Internal Work

Internal Assurance

As ever, we continued to work on our charity governance, focusing on a number of areas including data protection, data and cyber security.

Policies and Insurance. Gabrielle Welland undertook an extensive review of our Policies & Procedures, ensuring these are up to date and easily accessible. They remain under regular review. We continue to seek best value for comprehensive insurance.

Health and Safety. We ensured we followed all government guidance for staff in the workplace relating to Covid, and engaged H&S Dept for an additional year to advise us during the pandemic. Our yearly Fire Assessment was completed in January 2022.

Digitization. Our IT support function worked on our server to ensure recoverability alongside our work to establish a new regime for website back-ups. Martin Cookson set up internal and external security scans on our main website which resolved all vulnerabilities.

Alongside our amazing volunteer Steve Hurley, the team are working to digitize our gift aid declarations, an important step is moving to a paper free office.

Website and Data Management. Marc Goblot and Zoe Amar delivered a Systems Review report for us, identifying nine application areas that need to be updated, the main ones being: a Customer Relationship Management system (CRM), Content Management System (CMS) and Digital eCommerce System.

Their main recommendation is that we implement a new CRM system first, closely followed by a new website, shop and payment platform. Work was undertaken to research and engage specialist providers in CMS, CRM and brand. This work will be delivered in the next financial year.

Financial review

When the financial year started, Covid was still a threat to our Events-led income, and we budgeted quite cautiously, anticipating that we might make a modest loss for the year. The departure of long time CEO Menai Owen-Jones in September 2021 exacerbated things further.

So it is all the more pleasing to be able to report that the charity managed to navigate successfully through the year, making a surplus for the third year running. With Jay Sheppard leading the fundraising efforts, the whole team did a fantastic job of maintaining all of the charity’s services and delivering a solid financial result.

We were once again overwhelmed by the generosity of so many of our supporters, and helped by a sizeable legacy from the Hawley family we reported income for the year of £468,087 and a net surplus of £3,302. We continued to manage our costs effectively, aided by the period without CEO cost.

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT

FOR THE YEAR ENDED 30 JUNE 2022

The surplus for the year added to our accumulated reserves, such that we ended the year with cash resources of £426,694 and reserves of £499,934. It is a great help to be facing the many challenges now in front of us, with pressure on our costs and on our generous supporters, in such a robust financial position. This strength enables us to invest in the charity’s infrastructure and resource at a time when other charities are pulling in the reins.

Funders

The Foundation enjoys an extraordinary amount of support from its community. We wish to extend our special thanks to those companies, trusts and organisations who offer ongoing, long-term financial support which is essential to the stability of our work.

We organised several successful events through this financial year, including a Four Falls Trek raising £2,500, The Snowden trek, raising £2,250, and a Zip World event raising £5,100. A large team took part in the London Landmarks Half Marathon where runners raised £16,500 for the Foundation. Alongside this we generated over £11,000 in our Christmas card sales, and saw great engagement with our raffles.

A number of people competed in various events through the year to raise funds for our work. Notably Garry Park ran his successful Golf For Isabella day in October, seeing the busiest year ever with over 80 golfers. Ketan Mistry completed the World Marathon Majors and raised over £3,000 in the process and Minal Shah and 56 friends and family took the 1 million step challenge and raised over £10,000 collectively. We would like to thank everyone who undertook challenges to support us.

As always, we are extremely grateful to our corporate supporters, especially Brandwells Construction Ltd, Buchanan and Leighton Harris, and Orbis Investment Advisory ltd. We also would like to thank the various pharmaceutical companies who have supported our work through the year.

Gifts in Wills

Several very generous individuals left us gifts in their wills during the year and we are extremely grateful to them for thinking of us. They were:

Indeed, the legacy of the late Susan Cooper proved to be a fitting legacy that will provide long term benefit to patients living in Susan’s local community, the Solent area. Thanks to Sue’s generous gift we were able to fund one of our Endocrine Nurse Helpline Nurses for an entire year to help pituitary patients on a national level, and we also implemented three information points at hospitals on the Isle of Wight, in Portsmouth and Southampton. All three of these hospitals now have information stands with resources and publications provided by The Pituitary Foundation for an indefinite period, all thanks to the estate of the late Susan Cooper.

Trusts & Foundations

We would also like to extend our thanks to the following Trusts and Foundations for their very generous support during 2021/22:

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2022

a. Incoming resources

In 2021/22 The Foundation reported income of £468,087 compared to £517,882 in the previous financial year.

The Trustees wish to express their appreciation to all of our fundraisers, members, supporters and donors for all they do to assist our efforts to maintain help and support to our community.

b. Resources expended

Diligent control of existing expenditure was maintained and the Foundation staff have ensured that bought-in services are reviewed regularly to ensure best value for money.

c. Investment Policy and performance

The Foundation's funds, both general and restricted are maintained with NatWest, in current accounts and a working reserve account and an online current account for the payment of suppliers and expenses is held with RBS. In addition, deposit accounts (to the maximum of the FSA Investor Compensation Scheme) are also held with RBS, Cater Allen, the Monmouthshire Building Society, Cambridge and Counties Bank, Julian Hodge Bank and Virgin Money. During the year we took the decision to invest £100,000 of our funds into a portfolio of longer-term investments, advised by Smith & Williamson.

We also reviewed our process of submitting Bi Annual returns by our LSG groups and are reviewing the need and use of bank accounts for some groups.

All of the charity’s funds are subject to regular review by our Finance Sub Committee and we are working to streamline our use of accounts to secure the best value. During the year we opened an account with CAF giving us access to their Deposit Platform. We are now in a process of recovering funds from savings accounts, and placing those with banks via the Platform. This will remove a considerable administrative burden, will ensure that the Foundation adheres to the UK banking FSC scheme, and manages its cash reserves across a mixture of instant access and longer term savings accounts at the best possible interest rates.

The charity has a defined Investment Policy which has been developed in line with Charity Commission guidelines to secure income generation and manage risk. Since our investment funds were placed, it has been a challenging time in the markets, and at the year-end we had an unrealised loss on investments of £8,814. These investments are intended to be held for the longer term and their value will fluctuate over time. Their value has recovered significantly since the year end.

The Trustees have a confident expectation that The Foundation will continue in operational existence for the foreseeable future and have, therefore, used the going concern basis in preparing the financial statements.

d. Reserves policy

We have changed the way in which we view and manage our reserves as a whole this year. We plan to retain operational reserves representing 9 months of our annual costs, equating to around £300,000. The remaining funds, to be known as the Development Reserve and currently around £124,000, is available for investment in the charity’s infrastructure and in patient support. In the coming financial year, a portion of these Development funds will be used to finance a new website and digital infrastructure.

Free reserves are calculated as unrestricted reserves less designated funds and fixed assets. The free reserves of the Foundation at 30[th] June 2022 were £424,421 (2021: £436,792).

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2022

Plans for the future

A lot of preparatory work has been taken for realisation in the coming financial year. Since the year end we have moved to a new office, which offers many benefits including better internet connection and accessible premises.

However, the heart of the work for next year is the development of a new strategy which will guide the Foundation for the coming years. This strategy is being finalised at the time of writing, but will respond to a landscape like no other before. The NHS is challenged, and the country faces an unprecedented cost of living crisis and broad economic uncertainty. The needs of pituitary patients remain clear, however, and our role is more important than ever.

We will establish a patient committee to work as a mirror to our medical committee and advise and guide our services. We will seek to enhance our research and advocacy, ensuring we are investing in the future for pituitary patients. Our work around awareness and reduced diagnosis time will continue, along with our excellent education and support work. Most fundamentally we will look to develop our wellbeing agenda, supporting people to live well with a lifelong condition, in whatever way is best for them.

Alongside this work we will develop our website and refresh our brand. We recognize that we need to reach and engage newly diagnosed patients and their support network, and that how we are perceived is a fundamental component of this.

We will seek to strengthen our income generation further, exploring new approaches to ensure our sustainability and best engage those who wish to support our work.

The year ahead offers many opportunities and we are confident the excellent team, passionate volunteers and engaged supporters will contribute to our successful support of patients.

Structure, governance and management

a. Governing document

The Pituitary Foundation was established in 1994 and became a Company Limited by Guarantee and a Registered Charity in 1996. It is, therefore, governed by company law and the Charity Commission.

Its governing documents are its Memorandum and Articles of Association.

Membership is encouraged and is open to all who wish to support The Pituitary Foundation; however, the principle services provided are available to all who require them regardless of membership.

b. Appointment of Trustees

At each General Meeting (GM), one third of the Trustees retire by rotation. Any member of the Foundation may nominate any other member for a vacant Trustee position. If there are more nominations than vacancies, members are balloted and the result announced at the GM. In addition, the diversity and skills required by the Board are monitored by the Trustees and any identified under representation that occurs may result in advertising for prospective trustees that meet the specification. Trustees may then be co- opted onto the Board until the next GM at which time they must stand for reelection.

c. Trustee induction and training

Trustees are inducted within three months of election. They are inducted at the National Support Office. At induction, the members of staff and the Chairman of the Trustees work with the new Trustee to explain the business, services, aims and objectives of The Foundation. At the time of induction, each Trustee is given a Trustee Induction Pack. Trustee training is undertaken on an ad hoc basis.

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THE PITUITARY FOUNDATION

TRUSTEES' REPORT FOR THE YEAR ENDED 30 JUNE 2022

d. Organisation

The Board of Trustees governs the Foundation. It comprises up to fifteen members, who are also Directors of the Company. A limit of one third has been set on the number of Trustees who are employed in the health sector to ensure strong representation of patients and carers. At report date there were four Trustees employed in the health sector. The Board of Trustees stages meetings a minimum of three times per year. The Trustees have appointed four Officers of The Foundation. These comprise the Chair, the Vice Chair, the Secretary and the Treasurer.

The Foundation is a member of:

The Foundation's Head of Fundraising is a member of The Institute of Fundraising.

The Foundation has two sub committees, which report to the Trustees through their respective Chairs. Each sub-committee has a Terms of Reference (ToR). The first committee is the Medical Committee, with Chair Dr John Newell Price (March 2007 to present).

Members of the Medical Committee are:
Prof. John Newell-Price, Chairman, (Consultant
Endocrinologist)		 Royal Hallamshire Hospital. Sheffield
Prof
Stephanie
Baldeweg,
Vice
Chairman
(Consultant Endocrinologist)		 University College London Hospital, London
Dr Steve Ball (Consultant Endocrinologist) Manchester Royal Infirmary
Dr Christina Daousi (Consultant Endocrinologist &
Senior Lecturer)		 Aintree University Hospital, Liverpool
Alison Milne (Endocrine Specialist Nurse) Aberdeen Royal Infirmary, And The Pituitary
Foundation
Dr Jonathan Pinkney (Consultant Endocrinologist) Royal Cornwall Hospital, Truro
Mr. Michael Powell (Consultant Neurosurgeon) National Hospital for Neurology and Neurosurgery,
London
Prof. John Wass (Consultant Endocrinologist) Churchill Hospital, Oxford
Prof Bill Ledger (Consultant Endocrinologist) University of New South Wales, Sydney, Australia
Dr
Sue
Jackson
(Independent
Chartered
Psychologist)		 Winterbourne, Bristol
Dr Anna Crown (Consultant Endocrinologist &
Honorary Clinical Senior Lecturer)		 Brighton and Sussex University Hospitals NHS
Trust
Professor
Peter
Hindmarsh
(Transition
Endocrinologist)		 University College London Hospitals
Andy Baines (Advanced Paramedic) North West Ambulance Service, Cheshire &
Merseyside Area
Mr. Saurabh Sinha (Adult and Paediatric Pituitary
Surgeon)		 Sheffield Children’s Hospital and Royal Hallamshire
Hospital
Dr Indi Banerjee (Paediatric Endocrinologist) Royal Manchester Children’s Hospital
Dr Robert Murray (Consultant Endocrinologist) Leeds Royal Infirmary
Sherwin Criseno (Advanced Nurse Practitioner/Lead
Nurse in Endocrinology)		 Queen Elizabeth Hospital, Birmingham
Dr Niki Karavitaki (Senior Clinical Lecturer &
Consultant Endocrinologist)		 Queen Elizabeth Hospital, Birmingham
Pauline Whittingham (Specialist Endocrine Nurse) The Pituitary Foundation
Dr Sofia Llahana University College London Hospitals
Mr. Omar Pathmanaban (Pituitary Surgeon) Manchester
Fiona Cains (Pituitary Surgery Specialist Nurse) Manchester
Dr Alex Stilwell (Anaesthetist) London

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Dr Matthew Heppel (Advanced Clinical Diabetes &
Endocrinology Pharmacist)		 Hull University Teaching Hospitals
Dr Philip Newland-Jones (Consultant Pharmacist in
Diabetes & Endocrinology)		 University Hospitals Southampton NHS Foundation
Trust

Our volunteer Medical Committee is made up of endocrine and related medical professionals who provide invaluable expertise answering complicated patient queries, speaking at conferences, writing articles for our magazine, Pituitary Life, and content for our website and booklets. The Foundation understands the members of our Medical Committee are professionals with demanding occupations and we are indebted to them for all of their time and effort working with staff and other volunteers to provide support to the pituitary community. We are pleased to have pharmacists joining the committee in this financial year.

The second committee is the Finance Committee, which reports to the Board and assists the Finance and Resources department and the CEO in the development of the budgets and the management of the finances. The Finance Committee is chaired by Phil Rouse, Honorary Treasurer, and its members include Tom Sumpster, Chairman, Alasdair Mackintosh, Vice Chair and Trustee Hilary Frazer. The CEO and relevant staff members may be in attendance. This Committee reviews the financial position on a quarterly basis, or more frequently by exception, and meets as and when required (at least quarterly). Most of the dealings of the Finance Committee are carried out electronically.

Staff Employed

As at 30[th ] June 2022 the Foundation employed nine members of staff (7.13FTE):

Chief Executive Officer Menai Owen Jones (to 5 October 2021)
Helen Renwick (Ren) (from 28 February 2022)
Head of Patient and Family Services Pat McBride
Head of Fundraising Jay Sheppard
IT and Systems Manager Martin Cookson
Office and Finance Manager Gabrielle Welland
Endocrine Specialist Nurse Pauline Whittingham
Darshna Patel (from 21 September 2021)
Events and Volunteers Manager Sian Pitman (to 31 December 2021)
Patient and Family Services coordinator Sammy Harbut (to 23 November 2021)
Administrator James Charlick
Senior Administrator Miranda Payne (to 31 December 2021)
Communications Officer Lottie Storey (from 1 January 2022)

This dedicated team continue to deliver so much under the professional leadership of their Chief Executive Officer, and the Trustees would like to thank her and her team for their dedication and hard work under considerable pressure.

The Charity's staff has a clear line management reporting structure to the Chief Executive Officer, who reports to the Board of Trustees through the Chair. The Chief Executive Officer and the Chairman of the Trustees meet formally on a regular basis.

e. Risk management

The Foundation maintains a current and comprehensive Risk Register. Management of this register is held jointly by the Chairman of the Trustees and the Chief Executive Officer. This is reviewed on a regular basis and is reported quarterly to the Board of Trustees, including established controls and actions to mitigate the identified risks.

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THE PITUITARY FOUNDATION TRUSTEES. REPORT FOR THE YEAR ENDED 30 JUNE 2022 TRUSTEES. RESPONSIBILITY STATEMENT The trustees (who are also the directors of Thè Pituitary Foundation for the purposes of company lawl ale responsible for preparing the Trustees, Report and the finanoial slalemenls in accordance with applicable law and United Kingdorn Accounting Standards (United Kingdom Generally Accepted Accounting Practicel including Financial Reporting Standard 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland" Cornpany law requires the trustees to prepare financial statements for each financial year which give a tme and fair view of the slate of affairs of the charitable company and of the incoming resources and application of resources, including the inGotne and expenditure. of the charitable company lor that peiiod. In pieparing those financial statètnenls, the Iruslees are required lo select suitsble a￿o￿ntIng policies 8nd then apply Ihetn consislenlly., observe the methods and principles in the Charity SORP., make jucfgernents and estimates that are reasonable and prudent., prepare thè financial statèments on the going concem basi5 unless il Is inappropriate lo presume that thè charitable ￿t￿panY will continue In business The trustees are responsible for keeping proper accounting records which disdose with rèasonablè aecuracy at any time the financial position ol the charitable company and to ènable them to ensure that the financial statèmènts comply with the Companie5 Act 2006. They are also responsible for safeguarding the assets of the charitable cornpany and hence for taking reasonable steps lor the prevention and detection of fraud and other irregularities. Trustees, report, incorporating a strategic report, approved by order of the board of trustees, as the company directors, on 23 February 2023 and signed on the board's behalf by.. Mr T Sumpster- Trustee Page 13

THE PIT ITARY FOUNDATION INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES THE PITUITARY FOUNDATION FOR THE YEAR ENDED 30 JUNE 2022 Independent examiner's report to the trustees of Tho Pituitary Foundation I'the Company'l I report lo the charty trustees on my examination of the accounts of the Company for the year ended 30 June 2022. Rosponsibllltles and bas18 of rnport As the charity's Iruslees of the Company land also ils directors for the purposes of Company lawl you are responsible for the preparation of the accounts in accordance with the iequiremenls of the Comp8nies Act 20061'lhe 2006 Acri. Havlng satisfied myself that the aceounts of the Company ar8 not required lo be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examinatKJn of your charity's a¢counls as carried out under Section 145 of the Charities Act 2011 I'lhe 2011 Acl'l. In carrying out my examination I have followed the Directions given by the Charity Commission under Section 14SISI Ibl of the 2011 Act. Independent gxamlner's Statement Since your charity's gross incorne exceeded £250.000 your examiner musl be a member of a listed body. I can confimi that l am qualifièd to undertake the ex8minalion because l am 8 registered member of ICAEW which 1$ one of the listed bodle$. I have completed my examination. I confim that no matter8 have come lo my attention in connection wlth the ex8minalion giving me c8u$è lo b01ieve', accounting racord$ were not kept in respect of Ihg Company 88 required by Section 386 of the 2006 Act.. or the 8ceounl$ do not accord with Iho8e rg¢ords,' or the accounts do not comply with the accounting requlremenls of S$¢lion 396 of the 2006 Act oth81 than any requirement that the accounts give a true and fair view which is not a matter considered a8 part of an independent examination., or the accounts have not been prepared in accordanc8 w¢th the methods and prineipl85 of the Slalemenl of Recommended Practice for accounting and reporting by charities (applicable lo Charilios preparing their accounts in accordance with the Finan¢io1 Reporting Standard applicablg in the UK and Republ of Ireland IFRS 10211 I have no concerns and havo come acro88 no other matters in connection with the examination lo which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. C rvtCELW .UJLLLiCLM C moe￿n-will1am$. Bsc FCA TCA Accounlanls Third Floor 21 Sl Mary's Street Shrewsbury Page 14

THE PITUITARY FOUNDATION

STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING AN INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 30 JUNE 2022

2022 2021
Unrestricted Restricted Total funds Total funds
fund funds
Notes £ £ £ £
INCOMING RESOURCES
Incoming resources from generated
funds
Voluntary income 2 335,769 15,062 350,831 384,495
Activities for generating funds 3 48,550 - 48,550 50,363
Investment income 4 1,350 1 1,351 1,253
Incoming resources from charitable
activities 5
General 22,775 44,580 67,355 81,771
Total incoming resources 408,444 59,643 468,087 517,882
RESOURCES EXPENDED
Costs of generating funds
Costs of generating voluntary income 6 104,596 2,458 107,054 82,702
Fundraising trading: cost of goods sold and
other costs 6a 18,872 - 18,872 24,026
Charitable activities 7
General 288,774 41,271 330,045 301,614
Total resources expended 412,242 43,729 455,971 408,342
NET INCOMING RESOURCES (3,798) 15,914 12,116 109,540
Net gains/(losses) on investments 14 (8,814) - (8,814) -
NET INCOME/(EXPENDITURE) (12,612) 15,914 3,302 109,540
RECONCILIATION OF FUNDS
Total funds brought forward 437,033 59,599 496,632 387,092
TOTAL FUNDS CARRIED FORWARD 424,421 75,513 499,934 496,632

CONTINUING OPERATIONS

All incoming resources and resources expended arise from continuing activities.

The notes form part of these financial statements

Page 15

THE PITUITARY FOUNDATION REGISTERED NUMBER= 03253584 STATEMENT OF FINANCIAL POSITION 30 JUNE 2022 2022 2021 Notes FIXED ASSETS Tangible assets Investments 13 14 241 91,196 91.196 241 CURRENT ASSETS Debtors Cash at bank 15 3,901 426,694 31,607 483.236 430,595 514,843 CREDITORS Amounts falling due wrthin one year {21,8571 118,4521 NET CURRENT ASSETS 408,738 496,391 TOTAL ASSETS LESS CURRENT LIABILITIES 499,934 496,632 NET ASSETS 499,934 496.632 FUNDS Unrestricted funds Restricted funds 18 424,421 75,513 437.033 59,599 TOTAL FUNDS 499,934 496.632 Thè charitable company is entitled to exemption from audit ￿nder Section 477 of the Companies Acl 2006 for the ye8r ended 30 June 2022. The metnbers have not required the cotmpany lo obtain an audit of its financial slalemenls foi the year ended 30 June 2022 in accordance with Section 476 of the Companies Act 2006. The trustees a¢knowlèdgè their responsibilities for lal ensuring that the Gharilable compally keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and Ibl preparing financial statements which give a IruÈ and fair view of the state of affairs of the charitable company 8$ at the end of each financial year and ol its surplLJS or deficit for each financial year in accordance with the requirements of Section5 394 and 395 and which olhetWi5e cotnply wtth the requirernenls of the Companies Act 2008 relating to financial statements, so far as applicable to the eharilable company. The financial statements were approved by the Board of Trustees and authorised foi is5U8 on 23 February 2023 and were signed on its behaK by.. Mr Sumpster- Trustee Mr P Rouse- Trustee The notes fomi part of these financial sl8lemenls Page 16

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention, with the exception of investments which are included at market value, as modified by the revaluation of certain assets.

Financial reporting standard 102 - reduced disclosure exemptions

The charitable company has taken advantage of the following disclosure exemptions in preparing these financial statements, as permitted by FRS 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland':

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Taxation

The charity is exempt from corporation tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

Pension costs and other post-retirement benefits

The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.

Page 17

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

2. VOLUNTARY INCOME

Unrestricted
Restricted
funds
funds
£
£
Donations
191,748
15,062
Gift aid
36,630
-
Legacies
69,225
-
Membership
37,794
-
Sundry income
372
-
335,769
15,062		 2022
Total
funds
£
206,810
36,630
69,225
37,794
372
350,831		 2021
Total
funds
£
232,017
30,072
75,357
46,468
581
384,495

Included within unrestricted voluntary income is £nil (2021: £1,147) of income raised by the local support groups.

Voluntary income in the prior year included £337,632 of unrestricted income and £46,863 of restricted income.

3. ACTIVITIES FOR GENERATING FUNDS

Unrestricted
Restricted
funds
funds
£
£
Lottery & raffle proceeds
36,451
-
Merchandise proceeds
12,099
-
48,550
-		 2022
Total
funds
£
36,451
12,099
48,550		 2021
Total
funds
£
35,561
14,802
50,363

Activities for generating funds in the prior year included £50,363 of unrestricted income and no restricted income.

4. INVESTMENT INCOME

INVESTMENT INCOME
2022 2021
Unrestricted Restricted Total Total
funds funds funds funds
£ £ £ £
Bank interest receivable 1,350 1 1,351 1,253

Investment income in the prior year included £1,253 of unrestricted income and no restricted income.

5. INCOME FROM CHARITABLE ACTIVITIES

Grants
Publications		 2022
£
66,655
700
67,355		 2021
£
80,733
1,038
81,771

Income from charitable activities in the prior year included £25,128 of unrestricted income and £56,643 of restricted income.

Page 18

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

6. COSTS OF GENERATING VOLUNTARY INCOME

Unrestricted
funds
£
Staff costs
70,747
Event costs
19,351
Online giving fees
5,587
Printing, postage & promotion costs
3,654
Other staff costs
4,343
Other fundraising costs
914
104,596		 Restricted
funds
£
-
-
-
2,458
-
-
2,458		 2022
Total
funds
£
70,747
19,351
5,587
6,112
4,343
914
107,054		 2021
Total
funds
£
65,484
7,871
4,817
2,782
884
864
82,702

Costs of generating voluntary income in the prior year included £82,242 of unrestricted costs and £460 of restricted costs.

6a. FUNDRAISING TRADING: COST OF GOODS SOLD AND OTHER COSTS

2022 2021
Unrestricted Restricted Total Total
funds funds funds funds
£ £ £ £
Purchases 18,872 - 18,872 24,026

Costs of goods sold and other costs in the prior year included £24,026 of unrestricted costs and no restricted costs.

7. CHARITABLE ACTIVITIES COSTS

General

Direct Support
Costs (see costs (see
note 8) note 9) Totals
£ £ £
125,816 204,229 330,045

Charitable activities costs in the prior year were £301,614 made up of £224,988 of unrestricted costs and £76,626 of restricted costs.

8. DIRECT COSTS OF CHARITABLE ACTIVITIES

Staff costs
Staff training
Publication costs
Local support group costs (prior year)
Local support group costs		 2022
£
108,591
998
12,252
-
3,975
125,816		 2021
£
120,567
119
15,451
1,972
-
138,109

Page 19

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 30 JUNE 2022

9. SUPPORT COSTS

General
Support costs, included in the above, are as follows:
Other
Wages
Rent payable under operating leases
Insurance
Telephone, photocopier, postage &
office supplies
Sundries
Bank charges
Website & online
Data protection and IT security
Software licences & expenses
Equipment
Professional fees
Finance & HR consultancy
Other contractors
Recruitment expenses
Training & welfare
Accommodation, travel & subsistence
Membership subscriptions
Depreciation of tangible fixed assets
Governance costs
Wages
Social security
Pensions
Independent Examination fees
Other governance costs
10.
NET INCOME/(EXPENDITURE)
Net income/(expenditure) is stated after charging/(crediting):
Depreciation - owned assets		 Governance
Other
costs
£
£
182,797
21,432
2022
General
£

66,066
12,383
4,023
16,791
3,646
2,007
5,378
3,164
28,456
2,701
2,435
29,125
-
1,686
-
2,453
2,242
241
182,797
2022
General
£
16,585
1,264
822
1,710
1,051
21,432

2022
£
241		 Totals
£
204,229
2021
Total
activities
£
65,328
13,019
3,982
14,965
1,437
1,864
4,611
5,844
11,155
299
402
9,879
2,520
838
217
246
2,609
507
139,722
2021
Total
activities
£
19,319
1,639
959
1,668
198
23,783
2021
£
507

Page 20

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

11. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 30 June 2022 nor for the year ended 30 June 2021.

During the year one Trustee received reimbursement of expenses amounting to £34 (2021 - £nil)

12. STAFF COSTS

The key management personnel of the charity comprise the Chief Executive Officer, the Head of Patient and Family Services and the Head of Fundraising. The total employee benefits of the key management personnel of the charity were £120,106 (2021: £140,654).

13. TANGIBLE FIXED ASSETS

COST
At 1 July 2021 and 30 June 2022
DEPRECIATION
At 1 July 2021
Charge for year
At 30 June 2022
NET BOOK VALUE
At 30 June 2022
At 30 June 2021
14.
FIXED ASSET INVESTMENTS
MARKET VALUE
Additions
Revaluations
At 30 June 2022
NET BOOK VALUE
At 30 June 2022
At 30 June 2021
The investments are in UK, overseas and global assets.
Cost or valuation at 30 June 2022 is represented by:
Valuation in 2022
Cost		 Fixtures
and
Computer
fittings
equipment
£
£
47,309
1,522
47,309
1,281
-
241
47,309
1,522
-
-
-
241		 Totals
£
48,831
48,590
241
48,831
-
241
£
100,010
(8,814)
91,196
91,196
-
£
(8,814)
100,010
91,196

Page 21

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

15.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Other debtors
Prepayments and accrued income
16.
CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Trade creditors
Social security and other taxes
Other creditors
Accruals and deferred income
17.
ANALYSIS OF NET ASSETS BETWEEN FUNDS
Unrestricted
Restricted
fund
funds
£
£
Fixed assets
-
-
Investments
91,196
-
Current assets
355,082
75,513
Current liabilities
(21,857)
-
424,421
75,513
18.
MOVEMENT IN FUNDS
At 1.7.21
£
Unrestricted funds
General fund
437,033
Restricted funds
Endocrine Nurse helpline
377
Issy Appeal
-
Patient Info Helpline
8,438
Publications
5,662
Volunteer Training
2,997
Legacy - Solent & IOW Support Group
10,925
Legacy - Nurse helpline
Second Endocrine Nurse
31,200
-
59,599
TOTAL FUNDS
496,632		 2022
£
-
3,901
3,901
2022
£
2,101
7,254
1,667
10,835
21,857
2022
Total
funds
£
-
91,196
430,595
(21,857)
499,934
Net
movement
in funds
£
(12,612)
(377)
2,725
(8,438)
18,842
-
(2,975)
(3,743)
9,880
15,914
3,302		 2021
£
1,191
30,416
31,607
2021
£
3,235
7,439
3,420
4,358
18,452
2021
Total
funds
£
241
-
514,843
(18,452)
496,632
At
30.6.22
£
424,421
-
2,725
-
24,504
2,997
7,950
27,457
9,880
75,513
499,934

Page 22

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

18. MOVEMENT IN FUNDS - continued

Net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Endocrine Nurse helpline
Issy Appeal
Patient Info Helpline
Publications
Legacy - Solent & IOW Support Group
Legacy - Nurse helpline
Second Endocrine Nurse
TOTAL FUNDS
Comparatives for movement in funds		 Incoming
resources
£
408,444
5,025
2,725
8,330
27,000
-
16,563
59,643
468,087		 Resources
expended
£
(412,242)
(5,402)
-
(16,768)
(8,158)
(2,975)
(3,743)
(6,683)
(43,729)
(455,971)		 Gains and
Movement
losses
in funds
£
£
(8,814)
(12,612)
-
(377)
-
2,725
-
(8,438)
-
18,842
-
(2,975)
(3,743)
-
9,880
-
15,914
(8,814)
3,302
Unrestricted funds
General fund
Restricted funds
Endocrine Nurse helpline
Patient Info Helpline
Publications
Volunteer Training
Virtual Conference 2021
Legacy - Solent & IOW Support Group
Legacy - Publications
Legacy - Nurse helpline
TOTAL FUNDS		 At 1.7.20
£
354,372
11,437
9,342
2,249
9,692
-
-
-
-
32,720
387,092		 Net
movement
in funds
£
83,120
(11,060)
(904)
3,413
(6,695)
(459)
5,925
5,000
31,200
26,420
109,540		 Transfers
between
funds
£
(459)
-
-
-
-
459
-
-
-
459
-		 At
30.6.21
£
437,033
377
8,438
5,662
2,997
-
5,925
5,000
31,200
59,599
496,632

Page 23

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

18. MOVEMENT IN FUNDS - continued

Comparative net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Endocrine Nurse helpline
Patient Info Helpline
Publications
Volunteer Training
Virtual Conference 2021
Legacy - Solent & IOW Support Group
Legacy - Publications
Legacy - Nurse helpline
TOTAL FUNDS		 Incoming
resources
£
414,376
4,681
47,894
12,500
(6,695)
3,001
5,925
5,000
31,200
103,506
517,882		 Resources
Movement
expended
in funds
£
£
(331,256)
83,120
(15,741)
(11,060)
(48,798)
(904)
(9,087)
3,413
-
(6,695)
(3,460)
(459)
-
5,925
-
5,000
-
31,200
(77,086)
26,420
(408,342)
109,540

A current year 12 months and prior year 12 months combined position is as follows:

Unrestricted funds
General fund
Restricted funds
Endocrine Nurse helpline
Issy Appeal
Patient Info Helpline
Publications
Volunteer Training
Virtual Conference 2021
Legacy - Solent & IOW Support Group
Legacy - Nurse helpline
Second Endocrine Nurse
TOTAL FUNDS		 At 1.7.20
£
354,372
11,437
-
9,342
2,249
9,692
-
-
-
-
32,720
387,092		 Net
movement
in funds
£
70,508
(11,437)
2,725
(9,342)
22,255
(6,695)
(459)
7,950
27,457
9,880
42,334
112,842		 Transfers
between
funds
£
(459)
-
-
-
-
-
459
-
-
-
459
-		 At
30.6.22
£
424,421
-
2,725
-
24,504
2,997
-
7,950
27,457
9,880
75,513
499,934

Page 24

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2022

18. MOVEMENT IN FUNDS - continued

A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Endocrine Nurse helpline
Issy Appeal
Patient Info Helpline
Publications
Volunteer Training
Virtual Conference 2021
Legacy - Solent & IOW Support Group
Legacy - Nurse helpline
Second Endocrine Nurse
TOTAL FUNDS		 Incoming
resources
£
822,820
9,706
2,725
56,224
39,500
(6,695)
3,001
10,925
31,200
16,563
163,149
985,969		 Resources
expended
£
(743,498)
(21,143)
-
(65,566)
(17,245)
-
(3,460)
(2,975)
(3,743)
(6,683)
(120,815)
(864,313)		 Gains and
Movement
losses
in funds
£
£
(8,814)
70,508
-
(11,437)
-
2,725
-
(9,342)
-
22,255
-
(6,695)
-
(459)
-
7,950
-
27,457
-
9,880
-
42,334
(8,814)
112,842

Purpose of funds

Unrestricted revenue funds:-

These funds are held for meeting the objectives of the charity, and to provide reserves for future activities, and, subject to charity legislation, are free from all restrictions on their use.

Restricted funds:-

Endocrine Nurse Helpline

A specialist endocrine nurse helpline service for pituitary patients, carers, family and the wider pituitary community.

Issy Appeal

A fundraising appeal raising money in Isabella Andrews' name.

Patient Info Helpline

Helplines service delivered by telephone, email and text.

Publications

The charity provides various booklets, factsheets and other information publications.

Volunteer training

Funding to deliver training to our team of volunteers.

- Legacy Solent & IOW Support Group

Legacy income received to specifically support the Solent & IOW support group

Legacy - Publications

Legacy income received to be used for publications

Page 25

THE PITUITARY FOUNDATION

NOTES TO THE FINANCIAL STATEMENTS

FOR THE YEAR ENDED 30 JUNE 2022

18. MOVEMENT IN FUNDS - continued

Legacy income received to be used for the nurse helpline

19. EMPLOYEE BENEFIT OBLIGATIONS

The company operates a defined contributions pension scheme. The assets of the scheme are held separately from those of the company in an independently administered fund. The pension cost charge represents contributions payable by the company to the fund and amounted to £11,484 (2021: £11,530). Contributions totalling £1,716 (2021: £1,752) were payable to the fund at the balance sheet date and are included in creditors.

20. RELATED PARTY DISCLOSURES

There were no identified related parties other than the trustees. Details of any payments to trustees are detailed in note 11. The total amount of donations received without condition from the trustees during the year was £620 (2021: £593).

21. ULTIMATE CONTROLLING PARTY

The Pituitary Foundation is a company limited by guarantee governed in accordance with its Memorandum and Articles of Association.

The charitable company is wholly controlled by its members, who are also trustees of the charity.

Page 26