OpenCharities

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

2022-05-31-accounts

REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

----- Start of picture text -----
Registered Charity No: 1050845
----- End of picture text -----

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Financial statements for the year ended 31 May 2022

Contents

Report of the Trustees
Executive Summary 2
Legal Structure and Governance 4
Objectives and Activities 5
Achievements and Performance 8
Strategic Report 26
Plans for the Future 28
Statement of Trustees’ Responsibilities 29
Independent Auditors’ Report 30
Statement of Financial Activities 33
Balance Sheet 34
Cash Flow Statement 35
Notes To The Accounts 36

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

1

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Executive Summary

Statement from CRY’s Chairman – Hugh Mulcahey

CRY was founded in 1995 to support families after a young sudden cardiac death and to save young lives through cardiac screening, research and raising awareness of heart conditions in young people. Whilst CRY’s goals have not changed, the impact of the services provided by CRY have continued to grow, operating a national screening programme which now tests tens of thousands of young people every year, throughout the UK. Prior to the COVID-19 pandemic, CRY was on track to have tested the hearts of more young people and to have raised more funds than at any point since the charity was founded in 1995. Like many in the charity sector and beyond the pandemic had a signifi cant impact on CRY’s business model and in particular our ability to fundraise and screen young people, resulting in a signifi cant loss in income.

However, the measures CRY took in response to COVID, including the precautionary measure of taking a Coronavirus Business Interruption Loan (CBIL), ensured we were in a sound fi nancial position to return to fundraising and screening as lockdown restrictions started to ease. Whilst we have not completely returned to the pre COVID levels of activity, and we anticipate further challenges with the cost of living crisis as well as disruption to operations caused by fl u and COVID, we are pleased to report screening and fundraising are moving in the right direction. Thanks to the tremendous eff orts of the CRY staff and the ongoing support from CRY’s families and fundraisers, CRY has been able to continue with our strategy to prevent young sudden cardiac deaths through screening, research and awareness as well as provide crucial support to bereaved families and young people diagnosed with cardiac conditions. The end of year level of free reserves was below the minimum level previously set by the Trustees. However, they have continued to improve since June 2022 and have been further supported by a signifi cant unrestricted legacy donation of £194,268 in September 2022. CRY is continuing to manage a diffi cult situation and will endeavour to adapt to the unpredictable environment as we rebuild our free reserves to pre COVID levels.

Statement on the impact of COVID-19 from CRY’s Chief Executive – Dr Steven Cox

COVID-19 has had a major impact on society and the charity sector. One of the greatest challenges CRY has faced coming out of the pandemic has been the re-establishment of the national cardiac screening programme. The programme has had to address the ongoing COVID risks faced by people at the screening. As well as incorporating routine lateral fl ow testing we also had to adapt to the additional requirements of PPE and social distancing. In June 2021, we converted the CRY offi ce into a National Screening Centre to be used at weekends, whilst maintaining the space as an offi ce for the staff returning from furlough during the week. The National Screening Centre had previously been based at St George’s Hospital but had to be suspended due to the increased demands on the hospital resources caused by COVID.

The result of moving the National Screening Centre to the CRY offi ce was a huge success. By converting the offi ce, CRY was able to restart testing the general population in response to the increased demand as the lockdown ended. In turn, CRY families, schools and sports clubs started to re-book screening events throughout the UK.

CRY’s screening programme is a non-profi t service which is supported by doctors who are funded through research fellowship grants. A proportion of these grants (approximately 40%) is funded out of the amount which is charged for screening events. In 2017, CRY increased the charge for a ringfenced Memorial Fund screening day (typically testing 100 young people) to £5,000. The intention was to review the cost in 2020. However, due to the impact of COVID-19, and our inability to off er

2

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

a screening service at the height of the pandemic, we postponed this review until March 2022 when we increased the amount that we charge for a screening event to £6,000 per day. This increase in cost was imperative to ensure the screening charge refl ected the direct costs being incurred by the charity (including PPE, additional cleaning costs and infl ation) and therefore the re-establishment, and expansion, of the screening programme would not further reduce CRY’s free reserves. It is important going forward that the screening programme becomes more sustainable and less reliant on amounts raised for core funding. Considering ongoing concerns about infl ation the cost of screening will be reviewed annually.

Total Restricted Funds (4.5 Million)

CRY currently has £4.5 million which is held within restricted funds (including 295 ringfenced memorial funds to support screening and research). On June 1st 2022 £1.375 million of these restricted funds were committed to screening events booked in the following 1-3 years. In the upcoming year it is expected that a further £1-1.5 million of these restricted funds will be committed to further events. The total amount of restricted funds ensures screening operations for 3 years, enabling the testing of more than 75,000 young people.

Uncommitted Funds

Committed Funds (at June 1st June 2022)

During this year, CRY families with restricted (ringfenced) funds responded positively to an appeal to release a proportion of those funds to enable us to recruit more doctors in order to re-establish the capacity of the screening programme. CRY Research Fellows (supported by research grants) are key to the CRY screening programme, with a direct relationship between the number of Research Fellows funded and the number of people we are able to screen. The Research Fellows dedicate one day a week to screening and the rest of their time to NHS work and research. CRY currently has more than 60,000 young people who have contacted the charity and registered an interest in cardiac screening. During the pandemic CRY lost tens of thousands of potential screening appointments that would normally be available in communities throughout the UK. Since restarting the programme in June 2021, CRY’s screening events are often fully booked within minutes of being promoted online and the demand for screening considerably outweighs the number of events we can off er.

Whilst CRY has signifi cant ringfenced funds which provide the funding required for the screening programme going forward for the next 3 years, the challenge with fundraising and the ongoing impact of COVID has meant that CRY’s free reserves have dropped below the required level set by the Trustees (£350k). Last year CRY made the decision to put cost control measures in place to safeguard free reserves, and a CBIL of £950,000 was arranged to ensure CRY would have suffi cient cash resources to be able to manage its free reserves before being able to restart screening and fundraising activities. The CBIL was secured against the CRY offi ce which CRY purchased outright in 2013. This is CRY’s largest asset and, as part of the loan fi nancing, the offi ce was independently valued at £990,000. This is a signifi cantly higher value than the historic cost in 2013 which is the basis upon which it is reported in the accounts on page 26.

There is reason for optimism this year, however, there is still a signifi cant fi nancial impact of COVID and the new challenges of the post COVID economic pressures. One of the reasons for securing the CBIL loan was to ensure CRY’s operations would not be compromised due to reduced free reserves as we re-establish the crucial component of the screening programme, namely the CRY research fellowship grants.

One of the signifi cant fi nancial challenges CRY has faced with re-establishing the screening programme is the additional costs we have incurred (e.g. PPE, infl ated travel and accommodation expenses) The additional measures taken with PPE and social distancing meant that we were able to off er fewer appointments at each screening event, whilst also seeing an increase in last minute appointment

3

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

cancellations due to COVID infections. We accepted these additional costs as a necessary and inescapable outcome in getting the screening programme back up and running, and this partly explains the higher expenditure than income in this fi nancial year. Reassuringly, recent analysis of June to September 2022 has shown that attendance at screening events has returned to pre COVID levels. In addition, whist many of the screening events in 2023 had already been booked at £5,000, all new ringfenced fund screenings are being charged at the increased rate of £6,000. Our fi nancial forecasts predict a further 6-12 months where screening expenditure will be greater than income, before this rebalances when the new increased costs are paid across the board. As such, we expect to continue to pay back the CBIL over 5 years as per the original agreement, rather than return the loan in full over the next 12 months. In November 2021 we agreed to fi x the rate of interest of the loan at 2.44% over the duration of the loan and therefore it is likely to be fi nancially prudent to retain the loan if interest rates remain elevated as well as also providing security against the unpredictable fi nancial and societal environment we are currently operating in.

The support of CRY families and their communities throughout the crisis has been exceptional and has ensured that CRY has maintained a stable fi nancial position. Whilst we are reporting negative free reserves of -£302k (for more information go to the reserves policy on page 26) at the end of this fi nancial year due to the issues we have identifi ed (e.g. increased costs of providing the screening service), the changes we have made are starting to have an impact and free reserves have markedly improved since June. This has been further supported by a signifi cant

unrestricted legacy donation of £194,268 in September 2022.

Whilst free reserves are below the level identifi ed as required by the Trustees, it is important to note that approximately £200,000 of the £1,375,000 of committed funds will provide the income required to pay for the research grants which are currently included in the provision of £435,000 (page 45). Provisions for all research grants are recognised in full at the time that the Research Fellow is appointed or their grant is extended and the amount of the grant is quantifi able.

CRY was founded in 1995 to support families after young sudden cardiac deaths and to screen young people to save lives. CRY’s screening programme is a non-profi t service, with events being booked on average 12 months in advance and therefore high levels of infl ation are a vulnerability. However, CRY’s mission is to save young lives through screening and research; it is why bereaved families go to such incredible lengths to support the charity and raise the funds for our vital work. Many fundraising events are planned 12 months in advance and therefore the reduction in fundraising income during this year was predictable. The signifi cant response we have experienced from families contacting us in the last 12 months, regarding their plans for future fundraising events gives rise to optimism that the fi nancial challenges we have experienced during the last 24 months will soon be behind us.

4

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Legal Structure and Governance

The Trustees present their annual report and audited fi nancial statements of the company for the year ended 31 May 2022.

Reference and Administrative Details

Company Registration Number: 3052985 Registered Charity Number: 1050845

Registered Offi ce: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD Principal Offi ce: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD Bankers: Lloyds TSB, High Street, Epsom, Surrey, KT19 8AT Auditors: BGM Helmores Ltd, Emperor’s Gate, 114a Cromwell Road, Kensington, London, SW7 4AG Solicitors: A J Lutley, Springfi eld, Rookery Hill, Ashtead Park, Ashtead, Surrey, KT21 1HY Trustees: Hugh Mulcahey (Chairman) Dr Tim Bowker Louise Brooker-Carey Peadar O’Donnell Paul Quarterman Rebecca Trewinnard Dr Jayesh Makan Chief Executive: Dr Steven Cox

3

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Structure, Governance and Management

Governing Document

Cardiac Risk in the Young was incorporated on 3 May 1995 as a company limited by guarantee and is governed by its Memorandum and Articles of Association. The company was subsequently registered as a charity with the Charity Commission and is also known by its initials – CRY.

Appointment of Trustees

The charity or the Trustees may appoint a person who is willing to act to be a Trustee either to fi ll a casual vacancy or as an additional Trustee. As set out in the Articles of Association the board appoints the chair of the Trustees.

Trustee induction and training

New Trustees are briefed on their legal obligations under charity and company law, the content of the Memorandum and Articles of Association, the Trustee board and decision-making processes, the business plan and recent fi nancial performance of the charity. Their induction involves the meeting of key employees and other Trustees. Trustees are encouraged to attend appropriate external training events.

Organisation

The board of Trustees administers the charity. The board meets three to four times a year. A Chief Executive is appointed by the Trustees to manage the day-to-day operations of the charity. To facilitate eff ective operations, the Chief Executive has delegated authority for operational matters including development, fi nance, employment, public relations and fundraising.

Audit Committee

The Audit Committee is comprised of Hugh Mulcahey (CRY Trustee), Peadar O’Donnell (CRY Trustee), Rebecca Trewinnard (CRY Trustee) and Dr Steven Cox (CRY Chief Executive). The Committee meets at least twice a year. The Committee helps to ensure that sound fi nancial policies and internal controls are in place by providing a formal mechanism for reviewing matters of corporate governance and risk management together with external audits.

Research Committee

The Research Committee is comprised of Paul Quarterman (CRY Trustee), Hugh Mulcahey (CRY Trustee), Dr Tim Bowker (CRY Trustee), Dr Jayesh Makan and Dr Steven Cox (CRY Chief Executive). The Committee oversees CRY’s research strategy.

Communications Committee

The Communications Committee is comprised of Hugh Mulcahey (CRY Trustee), Louise Brooker-Carey (CRY Trustee) and Dr Steven Cox (CRY Chief Executive). The Committee oversees CRY’s communication strategy.

Related parties

Professor Sanjay Sharma, CRY's Consultant Cardiologist, who is based at University of London and St George’s Hospital, oversees the CRY research programme plus the clinical aspects of the CRY cardiac screening programme. All services provided by Professor Sharma are on a voluntary basis.

Professor Mary Sheppard, CRY’s Expert Cardiac Pathologist, who is based at University of London, oversees the CRY Centre for Cardiac Pathology. Professor Sheppard is part funded by the Pathology research grant to the CRY Centre for Cardiac Pathology.

Trustee attendance at meetings during the year

Hugh Mulcahey (Chairman) All Dr Tim Bowker 0 of 4 Louise Brooker-Carey All Peadar O’Donnell All Paul Quarterman All Rebecca Trewinnard All Dr Jayesh Makan 3 of 4

4

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Objectives and Activities

Objectives

The objective of the charity is to support aff ected families and prevent young sudden cardiac deaths through awareness, screening and research.

CRY is a UK charity that supports families after a bereavement, both clinically and emotionally. CRY supports expert fast-track pathology and fast-track cardiology referral into the NHS to test the family. CRY also provides literature for the public written by leading cardiac experts. CRY off ers a unique bereavement support programme.

The screening programme that CRY has developed gives the opportunity to save the young lives of those at risk who are asymptomatic, “fi t and healthy”. There is no other charity that off ers screening for young people aged 14 to 35 to schools, elite and recreational athletes and communities in the UK. CRY does not discriminate in the service we off er, whether it is an Olympic Gold Medalist or an adolescent in any local community. CRY’s screening programme is not just a service provision; it is also a research programme. CRY off ers support to all people aff ected by cardiac conditions that can cause young sudden cardiac death.

The charity has two main aims:

1. Saving young lives

2. Helping those aff ected

The strategies employed to save young lives are:

The strategies employed to help those aff ected are:

The Trustees confi rm that they have complied with their duty to have due regard to the guidance on public benefi t published by the Charity Commission in exercising their powers or duties. The public benefi ts of the Charity’s activities are outlined under ‘Objectives and Activities’ above.

5

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

1. Saving young lives

Raising awareness of cardiac risk in the young

Through raising awareness of these conditions, the public, medical and sporting communities will become more alert to the symptoms that can lead to a young sudden cardiac death as well as the potential risks that these conditions have on an asymptomatic population. The public will be aware of courses of action that can help to minimise their risk, including the choice to be screened at one of CRY's screening clinics.

The medical community will be aware of the specialist services that are available to facilitate diagnosing these conditions, as well as how to best manage these patients. The sporting community will be aware of the specialist cardiac services available at the CRY Centre for Sports Cardiology as well the importance of screening athletic populations. CRY also raises awareness within Parliament. It is essential that MPs are well informed of the latest research as well as the implications these fi ndings have on public policy.

Operating a national screening programme

Systematic screening programmes are needed to establish the prevalence of cardiac conditions in the young. The aim of a screening programme is to detect a condition, or its risk factors. Once detected, preventative or therapeutic interventions can be implemented earlier and the disease can be treated when it is less advanced. In the case of cardiac conditions, the aim is to put in place treatments and lifestyle changes that will minimise the risk of a sudden cardiac death. These preventative actions may include medications, surgery or lifestyle changes. In some cases, the condition can be cured with the risk of sudden cardiac death removed. CRY operates screening programmes for the general public (between the age of 14 and 35), sports clubs and teams.

Funding medical research into young sudden cardiac death

CRY funds medical research through Research Fellowship grants. These grants cover a broad spectrum from fast track screening to pathology after a death. The grants also help to provide specialist knowledge of sports cardiology. The fi eld-gathered data in CRY's screening programme is analysed and reported in peer reviewed journals, providing essential information on the understanding of these conditions.

2. Supporting families aff ected

Following a tragedy in a family where a young person has died suddenly, family members will require support. CRY off ers both medical and emotional support.

CRY provides specialist cardiac information written by experts in the fi eld, specifi cally for families or a non-medical community. Following a young sudden cardiac death, it is important that all fi rst-degree relatives are screened. CRY can help with advising the family about seeing a cardiologist who specialises in these conditions. CRY off ers direct medical support via the specialist Centre for Cardiac Pathology and Centre for Inherited Cardiovascular Conditions at St George’s.

Funding the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

CRY also funds expert cardiac pathology. The importance of correct pathology cannot be overstated as it gives families the opportunity to obtain valid answers about the cause of death and to quantify the risk posed to other family members.

Funding the CRY Centre for Cardiac Pathology

CRY also funds expert cardiac pathology. The importance of correct pathology cannot be overstated as it gives families the opportunity to obtain valid answers about the cause of death and to quantify the risk posed to other family members.

Emotional Support

CRY has a select group of bereavement supporters - volunteers who have experienced a similar tragedy themselves and have been trained to help others cope with their traumatic experience. Our Bereavement Supporters have all completed the two-year Counselling Skills and Theory course so that they can support others through their loss. So many people have contacted CRY wondering if there are others who they could talk to who have suff ered similar tragedies. CRY off ers telephone bereavement support to anyone (aged 18 and over) who has lost a young person to a sudden cardiac death.

CRY has developed private Facebook groups specifi cally for bereaved mums, dads, partners, siblings, grandparents,

6

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

aunts and uncles, and friends, as a place to connect with others who have experienced a similar tragedy, and to create a support network for one another.

CRY also off ers other opportunities for bereaved families to come together our annual Heart of London Bridges Walk and our annual Heart of Durham Walk.

CRY has produced a series of grief booklets designed to help families and friends feel less alone after the tragedy of a young sudden cardiac death. Our series of grief booklets include; ‘A Mother’s Grief’, ‘A Partner’s Grief’, ‘A Father’s Grief’, ‘Sibling Grief’, ‘Coping with Christmas after a Young Sudden Cardiac Death’, ‘Coping with Anniversaries following a Young Sudden Cardiac Death’ and ‘A Friend’s Grief’.

Supporting those diagnosed – my heart Network

CRY has a support network called myheart for young people who have been diagnosed with cardiac condition. The group was set up after feedback from young people who found that the existing support groups were not eff ective in helping them deal with issues such as having an ICD fi tted or undergoing ablation surgery. The network was developed as a support system that increases eff ective coping and decreases social isolation for young people who have been diagnosed with a cardiac condition.

We hold two my heart meetings a year where members are off ered 'Question and Answer' sessions with a specialist cardiologist, and the opportunity to share experiences with other young people who have been diagnosed with a cardiac condition. The my heart website contains medical information, personal experiences from young people who are living with a cardiac condition, questions and answers videos with myheart’s Consultant Cardiologist, Dr Michael Papadakis, and a ‘members only’ area where young people living with a cardiac condition can connect and share experiences. There is also a private myheart network Facebook group which is exclusively for people who have been diagnosed with a cardiac condition.

7

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Achievements and Performance

CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Healthcare NHS Trust

In 1995 St George’s was the fi rst hospital in the UK to develop a family screening clinic after CRY’s donation of an echocardiogram machine established a specialist clinic in young sudden cardiac death and meant that whole families could be screened together after a tragedy.

The CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George's, combines three essential features of CRY’s mission to eliminate young (aged 35 and under) sudden cardiac death - off ering services for 'aff ected families', competitive athletes and the general population. The centre provides a ‘one stop shop’ for young people and ‘aff ected families’ who wish to be screened for potentially life-threatening cardiac problems.

The CRY Centre is led by CRY’s consultant cardiologist, Professor Sanjay Sharma, who is Professor of Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London.

It is a unique service where, after a young sudden death, families will be seen shortly after the referral is received. It is a “one stop shop” where all the tests will be conducted on the same day and all family members will be seen together wherever possible (even when travelling from diff erent parts of the country). The Centre is able to provide this service because CRY provides the funding for the doctors and support staff at the centre.

The Centre is also the leading referral centre for elite athletes whose results can often mimic disease and they can easily be misdiagnosed if not seen by an expert cardiologist.

CRY Centre for Cardiac Pathology

The CRY Centre for Cardiac Pathology (CRY CCP) is an international cardiac referral centre at St George’s University of London and the leading centre in the UK. The centre was established with a donation from the Howard and Sebastian English Memorial Fund. The service is led by Professor Mary Sheppard who is an expert cardiac pathologist, with a team of staff funded by CRY. When a cause of death is ‘unascertained’ and the person is aged 35 years or under, the centre will provide a free fast-track cardiac diagnostic service.

The examination and report from the centre will be completed on average within 2 weeks. When pathology is not referred to this centre it can take up to 2 years for an expert investigation to be conducted. Expert pathology is essential to help the family understand the cause of death. This information will guide clinical decisions when assessing the fi rst degree blood relatives. When expert pathology is not conducted the family could be off ered inappropriate clinical tests and there is the potential for false reassurance. As well as providing a support service for bereaved families, the work conducted at this centre is resulting in ground breaking research to improve our understanding of the causes of young sudden cardiac death. In this fi nancial year, CRY continued to fund the 3 staff that support Professor Sheppard at the centre, these being an administrator and two clinical technicians, as well as a PhD Research fellowship.

Cardiac Screening

The screening programme and procedures were reviewed to make sure that all changes were made as per the government advice in order to enable CRY to restart the screening programme. The screening programme restarted in June 2021 and 198 days of screening were held with 15,719 people screened.

8

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

The fi rst post-pandemic public event was held in Memory of Carli Lansley on the 29th and 30th June followed by the screening in Memory of Lily Webster on 3rd and 4thJuly.

ECG screening

ECG screening continues to be the most cost eff ective way of testing large numbers of young people. Echocardiogram tests are also conducted on the same day for those few people who may show abnormal or inconclusive ECG results.

After a tragedy a family will often raise funds specifi cally for screening, working to potentially save the life of someone else’s child even though it is too late for them.

The fi rst post-pandemic public event was held in Memory of Carli Lansley on 29th and 30th June followed by the screening in Memory of Lily Webster on 3rd and 4th July.

Once again there were 2 days of screening on the Isle of Man, where hundreds of people were screened by CRY for the charity Craig’s Heartstrong Foundation, which raised money for screening in memory of Craig Lunt.

There have been some new screenings this year in memory of Graeme (Tinka) Bell, Kieran Joyce, James Pilford,

Daniel Blackman, Matthew Gore, Alexander Jones and Jake Anthony Pickford.

Repeated 1 day and 2 day screening events were funded in memory of Jack Thomas, Adam Green, Alex Reid, Christopher and Steve Phillips, Zoe Teale, Neil Wickers, Harry Faulkner, Josh Merrick, Richard Brember, Tom Clabburn/ Claire Prosser, Oliver Marsden, James Nicholas, Thomas Hardman, Charlie Craig, Anthony Fitzgerald, Dean Mason, Andrew Parr, Jack Thomas, Andrew Oliver, Owen Morris, Kayleigh Griffi ths, Martin Luckett, Cloe Waddell, Nathan Butler, Ben Forsyth, Robert Rowan, Dale Tennent-Butler, Madeline Siddall, James Patterson and Laura Hillier.

CRY’s school screening continues to be an important factor in making these services readily available to young people. This year we screened: Eton College, Sedbergh School in Cumbria, Aylesbury Grammar School, Reed’s School, Bude Primary School, Bishop Stortford College, Queen Elizabeth Hospital School in Bristol and Wellington College.

A number of school and college screening events are being funded by CRY ringfenced Memorial Funds. Screening at Old Swinford Hospital School was funded in Memory of Zoe Teale, Berkhamstead School was funded in Memory of Harry Faulkner and Ravenwood School was funded in memory of Ben Daniels.

Over the year there were 2 days of screening on Orkney Isle in Scotland funded in Memory of Alan Bain.

Tesco Bags of Help Centenary Grant funded 25 screening days across the UK.

9

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Screening equipment

The VO2max machine based at St George’s Hospital was upgraded to newer version in Memory of Freya Cox.

Cardiac screening at CRY Head Offi ce in Leatherhead

In order to restart the screening programme, eff orts were made to transform the CRY Head Offi ce in Leatherhead and facilitate this as a screening centre. The fi rst screening at the CRY head offi ce / CRY National Screening Centre was held on 10th and 11th of July 2021.

A total of 32 screening events were held at the CRY Head Offi ces in Leatherhead; 4 days of screening were held in Memory of Christian Thunhurst, 3 days in Memory of Shamil Hamid, 2 days in Memory of Daniel Hughes, 2 days in Memory of Rory Embling and 2 days in Memory of Sara Pilkington.

A number of screening days were funded by Trusts: Edith Florence Memorial Trust funded 1 day, Aubrey Orchard-Lisle Charitable Trust funded 1 day, Fognal Trust funded 1 day and the Leathersellers Company Charitable Fund also funded 1 day of screening.

Screening in sport

CRY provides screening for many elite and professional sports teams/clubs which includes a medical questionnaire, resting ECG and consultation with the Cardiologist (one of Professor Sanjay Sharma’s Research Fellows). If an echocardiogram is required, this is also performed on the day. Some sports have ECG and echocardiogram as standard.

Screening in elite sport has been ongoing following the COVID-19 pandemic lockdowns with many sports trying to catch up on those athletes who should have been screened during the pandemic.

CRY has provided cardiac screening to the following governing bodies/organisations:

English Institute of Sport (EIS) – Loughborough EIS had two screenings and Lilleshall EIS had one screening for some of the Olympic/Paralympic athletes ahead of Tokyo 2020. These were for the sports based there, but also for other athletes to book into ahead of the games. These were all funded by the Aaron Dixon Memorial Fund with their funding provided by the JD Foundation.

Gallagher Premiership Rugby for senior/contracted academy players and u18s (all 13 clubs): Bath, Bristol Bears, Exeter Chiefs, Gloucester, Harlequins, London Irish, Newcastle Falcons, Northampton Saints, Leicester Tigers, Sale Sharks, Saracens, Wasps and Worcester Warriors. These results are then used for players called up to the National Teams e.g. England Rugby, Wales etc.

Gallagher Premiership Rugby/Rugby Football Union (RFU) also screen their u16s teams associated with the above 13 clubs and also Yorkshire Rugby. Due to the u16s missing their screening in 2020 screenings at each club were held for the u16s and u17s teams to attend, so meant an extra 14 screening days to catch up following the pandemic.

Championship Rugby Union: Doncaster Knights, Ampthill RFC (shared a day with Saracens), Coventry RFC.

Women's Rugby: Wasps Women organised a screening to have their players screened which was funded through a grant from the Wasps Legends Charity. They also extended this to other younger players and associates of the club to fi ll the appointments.

Football: AFC Wimbledon and Arsenal FC Academy. These screenings are a mixture of ECG only or ECG and echocardiogram with some players being funded to have their screenings by the Football Association (FA) or the English Football League (EFL). For any of these screenings the results are reviewed and reported on remotely by an FA approved Cardiologist via their digital results system rather than a CRY Research Fellow. Prof Sanjay Sharma and one of his previous Research Fellows, Prof Aneil Malhotra, are both FA approved Cardiologists to do this.

Welsh Rugby Union Teams: Ospreys and Scarlets. The National Governing Body – Welsh Rugby Union also held a screening for a mixture of their players including the women’s teams and men’s u20s team.

The National Football League (NFL) held a screening for their academy based in London once again.

10

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Cricket: England Cricket had their four disability squads (visually impaired, deaf, physical disability and learning disability) screened with ECG and ECHO. Leicestershire County Cricket Club shared a day with Loughborough Lightning who compete in the women’s Super League. Kent County Cricket Club.

Rugby League: Leeds Rhinos. London Broncos shared a day with London Skolars.

The Royal Ballet School held a screening day at their lower school in Richmond and their upper school in Covent Garden.

British Rowing for their u19s athletes at their trials camp – Holme Pierrepont.

World Wrestling Entertainment (WWE) for their NXT talent based in Europe.

British Canoeing – opened up the appointments to other Olympic Sports so also included British Cycling and Athletics/ Para-Athletics.

As CRY's other public screenings started up once again we were able to off er up to 5 athlete appointments at each of these as we did before the pandemic. This is a way for sports which have very few athletes due for screening to have them seen, rather than paying for a whole screening day/team to come out to their venue. The sports pay per athlete for these appointments so they are not funded through the memorial fund for the day. Sports/Clubs that have screened their athletes in this way include:

Research

CRY Research Fellows

CRY Research Fellows are trained to have considerable expertise in the athlete’s heart, the cardiomyopathies and ion channel diseases – thus expanding the pool of specialist doctors in this complicated fi eld of medicine.

The Research Fellows play an instrumental role in the CRY Inherited Cardiovascular Conditions Clinics within the NHS and with the fi eld work conducted in CRY’s screening programme. Each Fellow also pursues a specifi c area of research.

CRY has funded 6 full-time Research Fellows during all or part of the year. Dr Hamish MacLoughlan started his grant

11

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

under the supervision of Professor Sharma and Dr Michael Papadakis in October 2017.

Dr Uchenna Ozo started his fellowship grant under the supervision of Professor Sharma and Dr Michael Papadakis in February 2019.

Two Research Fellows started their grants under the supervision of Professor Sharma and Dr Michael Papadakis in February 2020, Dr Raghav Bhatia and Dr Sarandeep Kaur Marwaha.

Dr Saad Fyyaz started his grant in October 2020 and Dr Nikhil Chatrath started his grant in April 2021, both under the supervision of Professor Sanjay Sharma and Dr Michael Papadakis.

CRY is also funding the cardiologist position of Dr Michael Papadakis, to support and further expand its collaborative research programme with St George’s.

Dr Gherardo Finocchiaro is also funded by CRY.

CRY funds a research nurse and two specialist physiologists, to support research and conduct ECGs, echocardiogram and VO2 max tests at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology.

CRY’s screening programme continues to surpass all expectations and has fed into crucial research for the benefi t of all involved in this fi eld. CRY was fi rst to identify the upper limits of wall thickness and cavity size in British athletes; CRY is the fi rst organisation in the world to characterise cardiac dimensions in adolescent athletes – knowing how to diff erentiate pathology from physiology is vital for diagnosis; and the fi rst organisation to characterise ECG changes in athletes in a document that is now the blueprint for the Sports Cardiology Section of the European Society of Cardiology.

Apart from diagnostics and these physiological goals, CRY has also been pivotal in identifying the prevalence of conditions such as hypertrophic cardiomyopathy (HCM) in sportsmen. This includes recently identifying conditions such as long QT as more common than HCM.

CRY’s fi ndings are published in reputable peer reviewed journals and CRY’s guidelines are now nationally and internationally recognised. The current international cardiac screening guidelines have been based on a Caucasian population in the Veneto region of Italy. CRY’s research not only highlights the importance of establishing “normal” cardiac parameters in diff ering ethnic groups, but it is also guiding international screening recommendations when applied to these groups.

Being part of the CRY screening programme is not only about identifying those at risk through employing the highest level of cardiac expertise. It is about taking part in a national research programme.

The academic papers published in this fi nancial year include:

“This study explored the diagnostic role of myocardial native T1 mapping in patients with ARVC and their fi rstdegree relatives. Thirty ARVC patients (47% males, mean age 45 ± 27 years) and 59 fi rst-degree relatives not meeting diagnostic criteria underwent CMR with native T1 mapping.”

12

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

“Studies in lifelong male athletes aged above 40 years old show a higher prevalence of high coronary artery calcium scores (>300 Agatston units), a higher coronary plaque burden, and myocardial fi brosis compatible with subclinical myocardial infarction compared with relatively sedentary healthy controls, raising speculation that lifelong intense exercise imposes chronic coronary stress on the heart. This review article will provide a critical analysis of the existing data.”

“Remodelling of the cardiovascular system (including heart and vasculature) is a dynamic process infl uenced by multiple physiological and pathological factors. We sought to understand whether remodelling in response to a stimulus, exercise training, altered with healthy ageing.”

“Since cardiac hypertrophy may be considered a cause of death at autopsy, its assessment requires a uniform approach. Common terminology and methodology to measure the heart weight, size, and thickness as well as a systematic use of cut off values for normality by age, gender, and body weight and height are needed.”

“We explored the diversity of opinion among 24 clinicians with expertise in long-QT syndrome. Experts from various regions and institutions were presented with 4 challenging clinical scenarios and asked to provide commentary emphasizing why they would make their treatment recommendations.”

“This survey aimed to map the use of imaging in the setting of [pre-participation evaluation] PPE and explore physician beliefs and potential barriers that may infl uence individual practices.”

“Brugada syndrome (BrS) is associated with mutations in the cardiac sodium channel gene, SCN5A. However, genetic studies of patients with BrS with arrhythmic events have been limited. We sought to compare various

13

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

clinical, ECG, and electrophysiological parameters according to SCN5A genotype in a large cohort of BrS probands with fi rst arrhythmic event.”

“This review explores the potential harms and benefi ts of sports disqualifi cation in athletes with HCM and details the challenges and limitations of shared decision-making when all parties may not agree.”

“The purpose of this study was to evaluate the indications and yield of ILR monitoring in a single-center BrS registry.”

“In conclusion, higher spatial resolution may aff ect the sensitivity of diagnostic measurements and in addition could allow for novel measurements such as counting of trabeculations.”

“Exercise has a deleterious eff ect on the phenotypic expression of arrhythmogenic right ventricular cardiomyopathy (ARVC) and increases the risk of sudden death. The aim of the study was to determine the prevalence and correlates of exercise-induced arrhythmias during exercise tolerance test (ETT) in patients with ARVC.”

“In arrhythmogenic cardiomyopathy (ACM), sustained ventricular tachycardia (VT) typically displays a left bundle branch block (LBBB) morphology while a right bundle branch block (RBBB) morphology is rare. The present study assesses the VT morphology in ACM patients with sustained VT and their clinical and genetic characteristics.”

“This study sought to characterize the presence and distribution of ventricular myocardial fi brosis in a cohort of decedents experiencing sudden cardiac death caused by BrS.”

“There is limited evidence on characterization and natural history of supraventricular tachycardia (SVT)-induced

14

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

left ventricular (LV) dysfunction. The aim of this work was to characterize clinical features and long-term evolution of SVT-induced LV dysfunction.”

“Before ablation, predicting the site of origin (SOO) of outfl ow tract ventricular arrhythmia (OTVA), can inform patient consent and facilitate appropriate procedural planning. We set out to determine if OTVA variability can accurately predict SOO.”

“This article provides an overview of the recommendations from the Sports Cardiology section of the European Association of Preventive Cardiology on sports participation in individuals with valvular heart disease (VHD). The aim of these recommendations is to encourage regular physical activity including sports participation, with reasonable precaution to ensure a high level of safety for all aff ected individuals.”

“We assessed the diagnostic yield and costs of an electrocardiogram-based national screening programme in elite cricket players and the incremental value of transthoracic echocardiography and periodic evaluation.”

“The ongoing prevalence of SARS-CoV-2 and subsequent 'second waves' require urgent best practice guidelines to be developed to return recreational (non-elite) sports as quickly as possible while prioritising the well-being of the participants and support staff . This guidance document describes the need for such advice and the process of collating available evidence.”

“These extremely rare vaccine-related adverse events are much less common than the risk of myocarditis and other lethal complications from COVID-19 infection. The benefi ts of vaccination far exceed the risks of COVID-19 infection.”

“Our primary aim was to evaluate the healthcare resource use associated with the diagnosis of transthyretin amyloidosis cardiomyopathy. Second, we aim to assess the eff ect of the number of diagnostic tests and clinical contact points on the total time and costs between symptom onset and diagnosis defi ning a quantitative hypothetical optimized diagnostic pathway.”

“Myocardial infl ammation in COVID-19 has been documented. Its pathogenesis is not fully elucidated, but the two main theories foresee a direct role of ACE2 receptor and a hyperimmune response, which may also lead to isolated

15

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

presentation of COVID-19-mediated myocarditis. The frequency and prognostic impact of COVID-19-mediated myocarditis is unknown. This review aims to summarise current evidence on this topic.”

“In a large cohort of BrS patients, continuous ILR monitoring yielded a diagnosis of tachy- or bradyarrhythmic episodes in 22% of cases. Recurrences of syncope were associated with bradyarrhythmic events. Use of ILR can be helpful in guiding the management of low-/intermediate-risk BrS patients and ascertaining the cause of unexplained syncope.”

“This review highlights the evidence base that has resulted in a paradigm shift in the approach to exercise in HCM and liberalised recent international exercise guidelines in HCM. Practical tips for prescribing exercise in symptomatic patients and relevant precautions are provided to aid clinicians when recommending exercise as part of the management plan for all patients with HCM.”

“This is the fi rst European Core Curriculum for Preventive Cardiology, which will help to standardize, structure, deliver, and evaluate training in preventive cardiology across Europe. It will be the basis for dedicated fellowship programmes and a European Society of Preventive Cardiology (EAPC) subspecialty certifi cation for cardiologists, with the intention to improve quality and outcome in CVD prevention.”

“Our data further supports the inclusion of strong evidence cardiomyopathy-susceptibility genes on the genetic testing panels used to evaluate unexplained SCA survivors and autopsy-inconclusive/negative SUD decedents. However, to avoid diagnostic miscues, the careful interpretation of genetic test results in patients without overt phenotypes is vital.”

“The aims of this centre-based survey, promoted and disseminated by the European Heart Rhythm Association (EHRA), was to investigate the current practice for the investigation of Sudden Unexplained Death in the Young (SUDY) amongst European countries. An online questionnaire composed of 21 questions was submitted to the EHRA Research Network, European Cardiac Arrhythmia Genetics (ECGen) Focus Group members, and European Reference Network GUARD-Heart healthcare partners. There were 81 respondents from 24 European countries.”

16

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

March 2022.

“This Position Paper reviews the recent literature and represents an update to the previously published Position Paper published in 2006. The objective is to inform physicians, athletes, coaches, and those participating in sport for a health enhancement purpose, about the adverse cardiovascular eff ects of doping substances, commonly prescribed medications and ergogenic aids, when associated with sport and exercise.”

“This case series assesses the cardiac conditions associated with sudden deaths during or immediately after sexual intercourse.”

“Due to ethical concerns about obtaining heart biopsies in children with no apparent disease, it has not been possible to analyze molecular changes in cardiac myocytes with the onset/progression of clinical disease. Using buccal smears as a surrogate for the myocardium may facilitate future studies of mechanisms and pathophysiological consequences of junctional protein redistribution in ACM. Buccal cells may also be a safe and inexpensive tool for risk stratifi cation and potentially monitoring response to treatment in children bearing ACM variants.”

We provide a comprehensive characterisation of hypoperfusion-related changes in the heart following successful CPR with survival, which are time related. These features can lead to diagnostic confusion among pathologists but knowledge of history of resuscitation with survival should help with general and expert pathology assessment and improve SADS diagnostic yield, prompting genetic screening of decedents' relatives.

This case demonstrated that a high PVC burden of common morphology does not also represent a benign fi nding and requires a comprehensive evaluation to rule out any pathological condition. Furthermore, the present case highlights the critical role of pre-participation cardiac evaluation in identifying cardiac disease in asymptomatic athletes.

17

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Conferences

CRY International Medical Conference October 3, 2021

With the continued concern of COVID, the annual CRY International Medical Conference was once again held online, as it was in 2020. For this latest online conference, we were pleased to welcome audience members from around the world as leading experts in cardiology gave presentations, discussed various case-based scenarios and how to deal with them, and held interactive debates that viewers could engage with.

Some of CRY’s doctors such as Professor Sanjay Sharma, Dr Michael Papadakis, Professor Elijah Behr and Dr Sabiha Gati gave excellent talks at the event, along with several other experts including Professor Matts Borgensson, Professor Antonio Pelliccia and Dr John Drezner.

18

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Core Fundraising Events

PLEASE NOTE: The fi gures detailed below are based on the total amount raised throughout the duration of each event. Due to the process of collecting sponsorship and donations, these fi nal totals raised can often span more than one fi nancial year and so do not refl ect the fi gures that are presented in the audited accounts.

London 10,000 2021

Due to the pandemic, the 2021 event was cancelled. A virtual equivalent was off ered to all participants that had places and funds.

CRY Heart of London Bridges Walk 2021

The CRY Heart of London Bridges Walk took place on Sunday 27th June 2021, but it was to be a diff erent kind of event for its 15th year. Due to the pandemic, the event took place virtually in local communities across the UK and worldwide. 321 people registered to participate in their own version of the walk and £12,550.44 was raised. To replicate the tribute wall that we usually have at the event, we replaced the CRY website homepage for 24 hours with all those photos and messages we received so that those visiting the CRY website would see them. To keep with usual traditions, speeches were recorded from CRY Patron, Kathryn Harries and Dr Steven Cox and played through social media and the website and a 2-minute silence was observed at 11am. See the full write-up here – www.c-r-y.org.uk/london-bridges-walk2021-write-up/

RideLondon-Surrey 46 & 100 2021

Due to the pandemic, the 2021 event was cancelled. A virtual event was off ered to cyclists on the day, but this was provided independently to the physical event. Any places left for this event were converted to LM places. A new event will be unveiled for 2022.

Great North Run 2021

The 2021 event went ahead with Covid restrictions in place. The long-awaited return of the event was welcomed by all that attended. It was a brilliant day, with good running conditions for most of the day, other than a few showers. With the change of route and charity village location, the event still felt the same and everyone we spoke to felt very positive about the experience. 28 CRY runners took part in the event raising £22,729.86.

CRY Heart of Durham Walk 2021

The 12th CRY Heart of Durham Walk took place on Sunday 19th September 2021, back at Durham Amateur Rowing Club, walking through the city centre. We also launched #MyWalkForCRY for those who were unable to join us in Durham. We had 122 supporters register to take part in Durham, in addition to 12 supporters registering to walk in their local area, raising a total of £3,378.04. The Durham Walk homepage turned into the digital message wall on the day. See the full write-up here – www.c-r-y.org.uk/write-up-durham-walk-2021/

London Marathon 2021

It was announced in 2020 that the 2021 event would take place on Sunday 3rd October 2021, instead of April due to the ongoing concern of the Pandemic. The virtual London Marathon also took place on the same day. CRY had 105 runners in the physical London Marathon: 60 with a CRY place and 45 with their own place. 15 supporters took part in the Virtual London Marathon: 3 with a CRY place and 12 with their own place. In total they raised a combined £229,960.46. See the full write-up here - www.c-r-y.org.uk/london-marathon-2021-write-up/

Royal Parks Half Marathon 2021

The 2021 event went ahead with Covid restrictions in place. The event was able to go ahead at the usual date in October. 8 CRY runners took part in the event raising £4,588.40.

19

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

CRY Great Cake Bake 2021

The 10th CRY Great Cake Bake took place on Friday 26th November 2021, as part of CRY’s Raising Awareness Week. The event was unfortunately hampered by the pandemic with many offi ces and schools not being allowed to hold cake sales. A digital pack was sent to those taking part, including 6 recipes created by CRY Staff member Nat Jenkins's Grandmother, Mollie Baggs, which were kindly donated by Nat's family. Jo Brand was involved as a judge deciding on the best cake design. A total of £7,406.94 was raised by 38 participants.

London Landmarks Half Marathon 2022

With close to 12,000 runners taking to the streets of London, the buzzing atmosphere along the route really made the day special. The enthusiastic CRY cheering team spurred on our CRY London Landmarks team with noisy whistles and cowbells! 26 CRY runners took part raising £18,254.99 to date.

London 10,000 2022

CRY doctors: Dr Michael Papadakis, Prof Sanjay Sharma, Dr Jayesh Makan, Dr Raghav Bhatia, Dr Nikhil Chatrath, Rachel Simmons & Dr Anna Marciniak took part in the London 10,000 2022, raising over £10,000.

RideLondon-Essex 2022

Around 20,000 cyclists took part in the event, with brand new routes into Essex, as the event returns after more than 1,000 days away. Riders taking on the 100-mile challenge made their way into Essex via the historic Epping Forest. From there, they cruised past some of the county’s most picturesque towns and villages – where residents lined the streets to cheer them on – for around 65 miles, before heading back into central London, where rapturous applause awaited them at Tower Bridge: a fi tting end to an epic day in the saddle. 6 cyclists took part in the event raising £3,643 to date.

London Marathon 2022

The 2022 edition of this event was postponed due to the pandemic and has been moved to October 2nd 2022.

Trust Donations

In this fi nancial year CRY received 78 donations from Charitable Trusts and Foundations totalling £202,484.90. In total £60,758.90 went towards Memorial Funds, £39,420 was ringfenced for certain projects/items and £102,306 went to core funding.

Grants that we have permission to acknowledge are £200 from The Rachel & David Barnett Charitable Trust; £3,000 from the A & R Woolf Charitable Trust; £5,000 from the Aubrey Orchard-Lisle Charitable Trust; £400 from the CMS Cameron McKenna Foundation; £2,000 from The Samuel Story Family Charitable Trust; £5,000 from the Edith Murphy Foundation; £2,000 from The James Tudor Foundation; £2,000 from the Borrows Charitable Trust; £3,000 from the GC Gibson Charitable Trust; £1,400 from the G M Morrison Charitable Trust; £500 from the Cecil Rosen Foundation.

Support

Telephone Bereavement Support

CRY has a network of 27 Bereavement Supporters who have themselves been aff ected by a young sudden cardiac death and have since completed a two year counselling skills and theory course so that they can off er individual telephone support to other people following a tragedy. No matter how much professional support is off ered, sometimes just talking to someone “who has been through a similar experience” helps the most. In the period 1st June 2021 to 31st May 2022, CRY’s Bereavement Supporters accepted 42 new referrals from bereaved families. This included bereaved mums, dads, siblings and partners.

20

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Private Bereavement Support Facebook Groups

CRY has private Facebook groups specifi cally for bereaved mums, dads, siblings, partners, friends, grandparents, aunts and uncles, and a group for all family and friends. The groups are private communities for people who are in touch with CRY to connect, share their feelings and experiences with others who have experienced the loss of a young person, and be part a network of support for one another.

At the end of May 2022, there were the following number of people in each group:

Mums – 172, Dads – 28, Siblings – 115, Partners – 101, Friends – 18, Family & Friends – 72, Aunts & Uncles – 18, Grandparents – 4.

Support resources

CRY’s information pack for bereaved families was converted into a digital format so that we could respond to bereaved families’ requests for information without delay, even during the national lockdowns due to the COVID-19 pandemic. CRY provides emotional support literature and medical information written specifi cally for bereaved families, free of charge upon request by any bereaved family member. This information is off ered in both digital and print format.

my heart Network meetings

The myheart network meetings are informal meetings for young people aged 18-35 who have been diagnosed with life-threatening cardiac conditions. Members have the opportunity to spend time in a group, sharing experiences and asking questions informally of an expert consultant cardiologist.

National my heart meeting October 2021

6 young people registered to attend the October meeting, held via Zoom. CRY myheart cardiologist, Dr Sabiha Gati, off ered the opportunity for those attending to informally discuss any medical queries.

National my heart meeting March 2022

4 young people registered to attend the Spring 2022 myheart meeting, again held via Zoom. The session was led by Consultant Cardiologist, Dr Gherardo Finnocchiaro.

my heart Network Newsletter

The my heart annual newsletter, containing the latest news from the myheart network, personal stories from young people living with a cardiac condition and articles written by my heart’s Consultant Cardiologist and CRY’s Research Fellows, was distributed to cardiac units in hospitals across the UK to enable more young patients to fi nd out about the support available.

Raising Awareness

Comment on the collapse of footballer Christian Eriksen June 13, 2022

The sudden collapse of Danish midfi elder Christian Eriksen at the 2021 Euros is another terrible reminder of the horrendous impact cardiac conditions have on so many young people every day in the UK and across the world. CRY Chief Executive Dr Steven Cox gave a full statement on the incident and CRY’s work to save young lives, while Professor Sanjay Sharma spoke with various news outlets following Eriksen’s collapse to off er his expertise on the situation and explain how cases like this can be responded to or prevented to begin with.

CRY’s 15th Heart of London Bridges Walk June 27, 2021

Our fl agship event took place virtually for the second year in a row in 2021, as we marked the 15th anniversary of the CRY Heart of London Bridges Walk. Over 315 people from all over the country took part in their local areas to connect with each other and remember those they have lost. Many supporters taking part created their own walking routes, taking in local sights and landmarks.

CRY Patron Kathryn Harries took part and gave a speech before the event offi cially began, followed by a speech from Dr Steven Cox. There was then a 2-minute silence before walkers set off . We also brought back the digital message wall which was introduced for the fi rst virtual version of this event in 2020. This became the homepage of the CRY website for the day, and 80 messages were shared from supporters about why they were taking part and who they

21

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

were walking in memory of.

CRY transforms its offi ce into national screening centre July 10-11, 2021

CRY typically provides free heart checks for over 32,000 young people in a normal year. But due to the COVID-19 pandemic and the restrictions and lockdowns in place, we had to put our screenings on hold for around 15 months. Tens of thousands of people missed their heart tests as a result, which would have led to around 150 young people not receiving a diagnosis of a potentially life-threatening condition and the treatment, lifestyle advice or surgery that would reduce their risk of suff ering a cardiac arrest.

Our screening services in the community and for both grass roots and elite sports were already scheduled to resume on June 28, but due to the waiting lists caused by the pandemic and the increased awareness and anxiety following Christian Eriksen’s collapse, we worked to increase our testing capacity at the newly established screening centre at CRY’s head offi ce. Starting on July 10 and 11, CRY’s offi ces in Leatherhead, Surrey were transformed into a specialist screening centre – with regular weekend appointments scheduled for the rest of the year and beyond as part of this innovative new service.

2021 London Landmarks Half Marathon August 1, 2021

The London Landmarks Half Marathon had a new theme this year to celebrate ways the nation has come together during the pandemic. CRY staff attended on the day along with a fantastic group of volunteers, whilst 32 CRY runners took part for Team CRY.

2021 Great North Run September 12, 2021

To help begin our fundraising eff orts in this four-month period, we were pleased to send a team to take part in the Great North Run, one of the biggest running events of the year. It was fantastic for CRY to be well represented by 25 runners, along with their supporters who came along to cheer on the day.

CRY Heart of Durham Walk September 19, 2021

We were so pleased to be back in Durham in 2021 for the 12th annual CRY Heart of Durham Walk after having to use a virtual event format in 2020 due to COVID. In 2021, we welcomed walkers back to our 8km route through Durham and some of its most iconic landmarks. Meanwhile, people who preferred to not travel took part by completing walks in their own local areas.

BBC news story on young sudden cardiac death October 1, 2021

This BBC news segment raised awareness of the incidence of young sudden cardiac death and CRY’s work to carry out screening events all over the UK and save young lives. It also told the story of BBC journalist Gem O’Reilly, who was diagnosed with a heart condition when she was 16 years old and has had to be careful with her health and exercise since. Gem explained how some heart conditions can be managed so you can maintain an active lifestyle.

Niki and Finn Mason were also interviewed to talk about Finn’s experience with an undiagnosed heart condition, and how he has since been able to receive a diagnosis and the appropriate medical care he needed.

The report was an informative one, and also noted that we often only hear about the risk of young sudden cardiac death on a larger scale when there are high-profi le cases, like with Christian Eriksen and Fabrice Muamba.

CRY’s Raising Awareness Week November 20-28, 2021

We were thrilled to see so many supporters get involved with CRY’s 2021 Raising Awareness Week. We brought back the 12 A Week Challenge, where supporters aim to complete 12 miles by either walking, running, cycling or swimming, and 76 people took part. Along with the CRY Great Cake Bake and everyone’s diff erent eff orts to raise awareness, it was another successful week.

CRY announces further 12-month partnership with Sunrise Radio February 1

To start Heart Month 2022, we were excited to announce that we have renewed our partnership with Sunrise Radio for another 12 months. Our partnership with Sunrise Radio fi rst started in January 2020, and since then they have used regular interviews, testimonials from CRY doctors and families, and on-air advertising to highlight CRY’s work and why it’s so important we do all we can to reduce the incidence of young sudden cardiac death.

Raising awareness of our eff orts, the need to raise funds and encouraging people to sign up to our events has never

22

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

been more important – and that’s why we’re so pleased to be working with Tony and the team at Sunrise Radio again on such a positive media collaboration.

Pro cyclist Alice Barnes auctions cycling gear for CRY February 12

Professional British cyclist Alice Barnes, who also races for team Canyon-SRAM, has been actively supporting CRY online. To help raise awareness and funds during Heart Month in February, Alice held an auction on eBay, selling off some of her cycling gear that she didn’t need anymore.

Dr Raghav Bhatia interviewed on Sunrise Radio March 14

As our partnership with Sunrise Radio continues, so do their interviews with members of the CRY team. Recently, this included one of our Research Fellows, Dr Raghav Bhatia. Dr Bhatia began by talking about how he fi rst learned about CRY, before explaining more about his role with the charity and why our work is so important. CRY’s research programme is a fundamental part of our work, enabling us to transform our understanding of young sudden cardiac death and the conditions that cause it. It’s always important for us to raise further awareness on large platforms like this.

London Landmarks Half Marathon April 3

The main fundraising event in this four-month period was the London Landmarks Half Marathon. As nearly 12,000 returned to London to take part, CRY was represented by a great team of 26 runners. It’s been fantastic to see fundraising events like this return closer to normal after the pandemic lockdowns, and for so many CRY supporters around the country to be getting involved.

Christian Eriksen and Thomas Frank visit CRY screening event April 30

After his sudden collapse at last year’s Euros, Christian Eriksen returned to play in the Premier League with Brentford FC – a club that’s had a strong connection to CRY for years. CRY Patron Andy Scott played and managed at Brentford, they hosted the fi nal screening days of CRY’s 2009 testmyheart screening tour in memory of Tom Clabburn, and the club has also been supporting us in memory of the team’s former technical director Robert Rowan since he died suddenly in 2018.

At the end of April, Eriksen and the club’s manager Thomas Frank attended one of CRY’s screening events, held in

memory of Robert at Gunnersbury Park Sports Hub.

“I think it’s very important,” Christian said on the screening day. “To get clear of something you can avoid. I think is a very healthy thing to do. It’s obviously something that, even in my case, something happened that you wouldn’t know was going to happen. So to get that cleared out of the way from a doctor’s perspective is only a positive thing.”

Social Media

CRY continues to expand its online activity with Facebook, Twitter and Instagram. Further work expanding these networks and integrating them into our existing social media activity should see an increase in these numbers. CRY continues to use SproutSocial, a social media software that enables CRY access to in-depth analytics and the ability to track the success of its messages. CRY has also started creating graphics, infographics and short videos in-house to increase engagement and noticeability across social networks as part of the raising awareness initiative.

CRY on Twitter

Over the year CRY had 850 new followers an increase of 4.8% on the main Twitter account @CRY_UK (www.twitter. com/CRY_UK), making a total of 18,604 followers as of May 2022. Tweets have covered a variety of topics, including promoting upcoming screening days; highlighting research publications as they go to press; announcing new Patrons; thanking supporters and promoting CRY fundraising events and launching new videos.

my heart on Twitter

CRY’s Twitter account for the myheart support network has gained 46 followers an increase of 10.2% making a total of 496 followers. Tweets have covered subjects such as information on support meetings, news about the members attending events/ sharing their stories, conditions and advice. With the increase of videos fi lmed with Dr Michael Papadakis there has been an increase in engagement with myheart members.

23

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

CRY on Facebook

Over the year there were 874 new ’likes’ an increase of 7.1% on the CRY Facebook page (www.facebook.com/ CardiacRiskintheYoung), making a total of 36,704 ‘likes’ as of May 2022. Posts on Facebook allow CRY to give more detail about upcoming screening days, research publications and CRY fundraising events. CRY has also been using Facebook advertising to reach out to new audiences to raise awareness and engage new supporters. A total of £3,236.59 was spent on adverts and sponsored posts, these adverts and posts reached 721,200 people.

my heart on Facebook

Over the year there were 4 new pages likes an increase of 1.9% for the myheart page on Facebook, which has increased the total number of 'likes' to 987.

CRY on Instagram

CRY gained 1,453 followers, an increase of 20.5% on Instagram (www.instagram.com/cardiacriskintheyoung), the total number of followers is now 8,417. The account was setup to show the ‘positives’ of CRY’s work and add more engagement with our fundraisers. Using the hashtag #cardiacriskintheyoung we have created a feed of pictures onto the homepage of the CRY website, showing what our supporters are up to with fundraising, raising awareness and more recently screenings. The CRY account shares images from CRY and supporter events with an aim to raise awareness and thank our supporters. Thanking our supporters is crucial to keep them engaged with CRY and for CRY to engage with our younger supporters. There have been over 2,000 images posted this year with #cardiacriskintheyoung (these are a mixture of supporter and CRY posted images).

CRY’s YouTube Channel

CRY has continued to expand its library of videos to raise awareness of young sudden cardiac death; support those living with conditions; and off er a catalogue of talks from the CRY conference. There were over 39,000 new views on the range of videos. There has also been an increase in subscribers with the new total being 2,070 an increase of 22%.

my heart’s YouTube Channel

CRY’s myheart YouTube channel is dedicated to support videos, and has had over 12,500 new views and increased in subscribers to 160. The increase on views is up compared to last year.

CRY Websites

Total number of visitors to the main CRY website was 346,997 visitors. This is an increase of 60%.

Total number of visitors to the myheart website was 11,415 visitors. This is a decrease of 47%.

Total number of visitors to sads.org.uk website was 25,057 visitors. This is a decrease of 29%.

Total number of visitors to testmyheart.org.uk website was 280,725 visitors. This is an increase of 534%.

24

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

CRY in the Media

There were 270 articles on CRY published in print media, including 26 articles in national newspapers and 16 in magazines.

Month Total Articles National/magazine articles
June 2021 44 •The Mail On Sunday.‘“How on earth could my healthy son
drop dead without warning?”’ – This article told the story of Toby
Berlevy, who died suddenly when he was just 22 years old, and
how his family have been working to raise awareness of young
sudden cardiac death. 6/6/2021.
•The Times.‘“I was one of the lucky ones – if I’d played in second
half I’d have died”’ – CRY Patron and former footballer Andy Scott
was diagnosed with hypertrophic cardiomyopathy, and he recalled
his own experience and the importance of screening after seeing
Christian Eriksen’s collapse. 6/6/2021.
July 2021 22
August 2021 14 •The Daily Telegraph.‘How Brentford miracle is tinged with pain:
“Rob is looking down with pride”’ – This article told the story of
Robert Rowan, who used to work for Brentford Football Club.
Since his sudden death, Robert’s family and friends have done
what theycan to raise awareness and funds for CRY. 12/8/2021.
September 2021 24
October 2021 28 •Sunday Mail.‘When my boy died he was 25, f t and looked
so healthy. I just don’t want any other parent to suf er like this’
– Robert Cowan lost his 25-year-old son, Scott, and wants all
young people to be given free heart checks at work to prevent
other similar deaths. Robert and his friends and family have been
supportingCRY in Scott’s memory. 3/10/2021.
November 2021 15
December 2021 8
January 2022 12
February 2022 31
March 2022 29
April 2022 15
May 2022 28

Fundraising Regulator Requirements

As members of the Fundraising Regulator, CRY is committed to having a complaints procedure in place. During the period of this annual report, we received no fundraising complaints.

25

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

Strategic Report

Financial Review

During the year the funds receivable by the charity increased from £1.91 million to £2.85 million. The resources expended increased from £2.37 million to £3.09 million.

Reserves policy

The Trustees have established the level of reserves that the charity ought to have.

Unrestricted funds are needed to:

The Trustees consider it prudent that unrestricted reserves should be suffi cient to cover 6 months Support and Management Costs. The Trustees have set the required level of free reserves for the above matters at £350,000. The fi nancial forecasts since March 2020 predicted there would be a signifi cant ongoing impact of COVID on CRY’s ability to fundraise. Income has continued to be impacted by COVID throughout this year and the free reserves reduced from £48,000 at 31st May 2021 to a negative £302,000 at 31st May 2022. The free reserve fi gure is calculated by subtracting CRY’s tangible assets (£630,733, page 34) from the Total unrestricted funds carried forward at 31st May 2022 (£328,498, page 33). Since 1st June 2022 the free reserves have signifi cantly improved as fundraising and screening activity have started to return to pre-COVID levels. Whilst free reserves are below the level identifi ed as required by the Trustees, it is important to note that approximately £200,000 of the £1,375,000 of restricted funds which are already committed will provide the income required to pay for the research grants which are currently included in the provision of £435,000 (page 45). In accordance with the Charities SORP provisions for all research grants payable are made at the time that the Research Fellow is appointed or their grant is extended, and the payment can be measured reliably.

In 2020 a plan was put in place to arrange a CBIL loan to ensure CRY would maintain suffi cient free reserves going forward and this is recognised in the accounts in note 11 on page 44. This loan was borrowed against the value of CRY’s offi ce which was purchased in 2013 and was valued at £990,000 just prior to the CBIL loan being approved. The level of reserves is monitored and reviewed by the Trustees throughout the year and this will inform whether to repay the loan before it is due.

An explanation of CRY’s reserves and Ringfenced Funds

A signifi cant proportion of CRY’s reserve funds are “ringfenced” and have to be used for a specifi c project. The majority of these funds are raised by families who have suff ered a tragedy from young sudden cardiac death, in order to take forward a screening programme in their community in memory of their child, sibling or partner. Once the family has reached the appropriate sum, CRY supports them in taking forward one or more screening events.

£4.5 million is now ringfenced by CRY families specifi cally for screening and these funds will be spent during the next 3-4 years. On 1st June 2022 £1.375 million of these ringfenced funds were committed to screening events booked in the following 1-3 years. In the upcoming year it is expected that a further £1-1.5 million of these restricted funds will be committed to further events. The total amount of ringfenced funds ensures screening operations for 3 years, enabling the testing of more than 75,000 young people.

CRY cannot use these funds for other activities such as bereavement support or raising awareness. CRY encourages families to use the funds that are ringfenced, and funding their own screening programme in memory of their relative is important to many bereaved families. We do not want to stop this essential aspect of what we off er families who contact CRY seeking support.

26

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Investment Policy

The Trustees have considered the most appropriate investment policy for funds, and have decided that interest bearing accounts with clearing banks eff ectively meet their requirements to generate income and meet operational contingencies.

Risk Management

The Trustees have a risk management strategy, which comprises:

The major risks are considered to be those that would prevent CRY from carrying out its charitable objects permanently. The Trustees have identifi ed the following as possible risks that the charity faces: impact of economic climate; failure to govern eff ectively; major fraud or fi nancial mismanagement. The risks are regularly reviewed by the main board.

Achievements and Performance

Our achievements and performance are discussed in detail on pages 8 to 25 of this report.

Going Concern

The Trustees have reviewed the budget for the next 12 months and consider the charity has adequate resources to continue for the foreseeable future.

Related Parties

None of the Trustees received remuneration or other benefi ts for their work for the charity. Any transactions between the charity and the Trustees or senior management or related parties must be disclosed to the board. In the current year no such related party transactions were reported.

27

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Plans for the Future

1. To continue funding the CRY Centre for Cardiac Pathology at St George’s Hospital:

2. To continue funding the Research Fellows, the specialist physiologist and the maintenance of the machinery that is used at the CRY Centre for Sports Cardiology at St George’s Hospital and maintaining the current service, where a fast-track cardiac screening service is available to elite athletes.

3.

4.

5.

6.

To raise awareness of cardiac risk in the young:

7. To campaign to establish a national strategy for the prevention of young sudden cardiac death.

28

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Statement of Trustees Responsibilities

The Trustees (who are also directors of Cardiac Risk in the Young for the purposes of company law) are responsible for preparing the Trustees’ Report (including the Strategic Report) and the fi nancial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the Trustees to prepare the fi nancial statements for each fi nancial year which give a true and fair view of the state of aff airs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these fi nancial statements, the Trustees are required to:

The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the fi nancial position of the charitable company and enable them to ensure that the fi nancial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

In so far as the Trustees are aware:

The Trustees are responsible for the maintenance and integrity of the corporate and fi nancial information included on the charitable company’s website. Legislation in the United Kingdom governing the preparation and dissemination of fi nancial statements may diff er from legislation in other jurisdictions.

Auditors

A resolution will be proposed at the Annual General Meeting that BGM Helmores Limited be re-appointed as auditors to the charity for the ensuring year.

By order of the Board

Trustee:

Date: 30th November 2022

29

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31 MAY 2022

Independent Auditors’ Report

Opinion

We have audited the fi nancial statements of Cardiac Risk in the Young for the year ended 31 May 2022 which comprise Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and the related notes, including a summary of signifi cant accounting policies. The fi nancial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion the fi nancial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the fi nancial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the fi nancial statements in the UK, including the FRC’s Ethical Standard, and we have fulfi lled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is suffi cient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the fi nancial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the fi nancial statements is appropriate.

Based on the work we have performed, we have not identifi ed any material uncertainties relating to events or conditions that, individually or collectively, may cast signifi cant doubt on the company's ability to continue as a going concern for a period of at least twelve months from when the fi nancial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report

Other information

The other information comprises the information included in the annual report, including the trustees’ report, other than the fi nancial statements and our auditor’s report thereon. The trustees are responsible for the other information. Our opinion on the fi nancial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

In connection with our audit of the fi nancial statements, our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the fi nancial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether there is a material misstatement in the fi nancial statements or a material misstatement of the other information. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

30

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE INDEPENDENT AUDITORS’ REPORT TO THE MEMBERS OF CARDIAC RISK IN THE YOUNG

Opinion on other matter prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the company and its environment obtained in the course of the audit, we have not identifi ed material misstatements in the directors’ report or the strategic report included within the trustees’ report.

We have nothing to report in respect of the following matters where the Companies Act 2006 requires us to report to you if, in our opinion:

Responsibilities of Trustees

As explained more fully in the Trustees' Responsibilities Statement set out on page 29, the Trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the fi nancial statements and for being satisfi ed that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of fi nancial statements that are free from material misstatement, whether due to fraud or error.

In preparing the fi nancial statements, the trustees are responsible for assessing the company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the fi nancial statements

Our objectives are to obtain reasonable assurance about whether the fi nancial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists.

Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to infl uence the economic decisions of users taken on the basis of these fi nancial statements.

A further description of our responsibilities for the audit of the fi nancial statements is located on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities

This description forms part of our auditor’s report.

Extent to which the audit was considered capable of detecting irregularities, including fraud

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We identify and assess the risks of material misstatement of the fi nancial statements, whether due to fraud or error, and then design and perform

31

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE INDEPENDENT AUDITORS’ REPORT TO THE MEMBERS OF CARDIAC RISK IN THE YOUNG

audit procedures responsive to those risks, including obtaining audit evidence that is suffi cient and appropriate to provide a basis for our opinion.

In identifying and addressing risks of material misstatement in respect of irregularities, including fraud and noncompliance with laws and regulations, our procedures included the following:

Due to the inherent limitations of an audit, there is an unavoidable risk that we may not have detected some material misstatements in the fi nancial statements, even though we have properly planned and performed our audit in accordance with auditing standards. For example, as with any audit, there remained a higher risk of non-detection of irregularities, as these may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal controls. We are not responsible for preventing fraud or non-compliance with laws and regulations and cannot be expected to detect all fraud and non-compliance with laws and regulations.

Use of our report

This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed

Date: 9th December 2022

Paul Davis FCA (Senior Statutory Auditor) for and on behalf of BGM Helmores Limited

Chartered Accountants and Statutory Auditors 114a Cromwell Road, London, SW7 4AG

32

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE INDEPENDENT AUDITORS’ REPORT TO THE MEMBERS OF CARDIAC RISK IN THE YOUNG

Statement of Financial Activities

Note
INCOMING
RESOURCES
Donations and Legacies
2
Investment Income
Screening
Other Income Received
3
TOTAL INCOMING
RESOURCES
RESOURCES
EXPENDED
Raising Funds
Charitable Activities
Screening
Family support
Research Grants
4
Awareness & PR
Other Expenditure
TOTAL RESOURCES
EXPENDED
5
Net Incoming / (Outgoing)
Resources
Transfers between funds
Net movement in funds
for the year
Total Funds brought forward
at 1 June 2021
Total funds carried forward
at 31 May 2022		 Unrestricted
Funds
2022
£
1,549,084
6,197
300,090
59,104		 Restricted
Funds
2022
£
938,112
-
-
-		 Total
Funds
2022
£
2,487,196
6,197
300,090
59,104		 Unrestricted
Funds
2021
£
939,126
15,772
22,420
353,575		 Restricted
Funds
2021
£
581,186
-
-
-		 Total
Funds
2021
£
1,520,312
15,772
22,420
353,575
1,914,475 938,112 2,852,587 1,330,839 581,186 1,912,079
441,453 - 441,453 362,177 - 362,177
501,149
285,793
530,432
484,950		 659,691
-
97,935
-		 1,160,840
285,793
628,367
484,950		 517,307
294,386
305,288
390,996		 39,054
-
394,064
-		 556,361
294,386
699,352
390,996
1,802,234 757,626 2,559,950 1,507,977 433,118 1,941,095
86,650 - 86,650 70,524 - 70,524
2,330,427 757,626 3,088,053 1,940,678 433,118 2,373,796
(415,952)
-		 180,486
-		 (235,466)
-		 (609,785)
25,000		 148,068
(25,000)		 (461,717)
-
(415,952)
744,450		 180,486
4,323,009		 (235,466)
5,067,459		 (584,785)
1,329,235		 123,068
4,199,941		 (416,717)
5,529,176
328,498 4,503,495 4,831,993 744,450 4,323,009 5,067,459

There are no recognised gains or losses other than disclosed above. All results derive from continuing operations.

33

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE STATEMENT OF FINANCIAL ACTIVITIES (including Income and Expenditure Account) FOR THE YEAR ENDED 31 MAY 2022

Balance Sheet at 31 May 2022

Note
Fixed assets
Tangible assets
7
Current assets
Debtors
8
Cash at bank and in hand
9
Creditors: Amounts falling due
within one year
10
Net current assets
Total assets less current liabilities
Creditors: Amounts falling due
greater than one year
11
Net assets
13
The funds of the charity:
Unrestricted funds:
14
Restricted funds
14
Total Charity Funds		 2022
£
249,507
6,019,142		 2022
£
630,733



4,864,718		 2021
£

125,424
6,268,892		 2021
£
696,001



5,230,153
6,268,649 6,394,316
1,403,931 1,164,163


5,495,451
663,458		 5,926,154
858,695
4,831,993 5,067,459
328,498
4,503,495		 744,450
4,323,009
4,831,993 5,067,459

The fi nancial statements on pages 33 to 47 were approved by the Board of Trustees on 30th November 2022 and signed on its behalf by:

H Mulcahey - Trustee P O'Donnell - Trustee

Date: 30th November 2022

34

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE BALANCE SHEET AT 31 MAY 2022 COMPANY REGISTRATION NUMBER: 3052985

Cash Flow Statement

Notes
Net cash provided by operating activities
1
Cash f ows from investing activities:
Interest from investments
Purchase of plant and equipment
Net cash used in investing activities
Cash f ows from f nancing activities:
Proceeds from borrowings
Net cash generated in f nancing activities
Change in cash and cash equivalents in the reporting period
Cash and cash equivalents at the beginning of the reporting
period
Cash and cash equivalents at the end of the reporting period
2
1. Reconciliation of net incoming resources to net cash
inf ow from operating activities
Net outgoing resources for reporting period
Depreciation charges
Movement in debtors
Movement in creditors
Net cash (used)/provided by operating activities
2. Analysis of cash and cash equivalents
Cash at Bank		 2022
£
(253,090)
3,919
(579)
3,340
-
-
(249,750)
6,268,892
6,019,142
2022
£
(235,466)
65,843
(128,002)
44,535
(253,090)
2022
£
6,019,142
6,019,142		 2021
£
157,561
1,279
(25,293)
(24,014)
950,000
950,000
1,083,547
5,185,345
6,268,892
2021
£
(461,717)
77,999
206,095
335,184
157,561
2021
£
6,268,892
6,268,892

35

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE CASH FLOW STATEMENT FOR THE YEAR ENDED 31 MAY 2022

Notes to the Accounts

1. Accounting Policies

1.1 Basis of preparation

The fi nancial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK (FRS 102) (Eff ective 1 January 2019) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.

Cardiac Risk in the Young ('CRY') meets the defi nition of a public benefi t entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s).

1.2 Legal status of the Charity

The charity is a company limited by guarantee and has no share capital. In the event of the charity being wound up, the liability in respect of the guarantee is limited to £1 per member of the charity.

1.3 Incoming resources

Screening fees income are accounted for on a receivable basis.

Donations are accounted for on a receivable basis as soon as they are capable of accurate fi nancial measurement and includes any taxation recoverable under Gift Aid. Gifts in kind are included in the Statement of Financial Activities at their gross value to the charity.

Donated professional services and donated facilities are recognised as income when the charity has control over the item, any conditions associated with the donated items have been met, the receipt of economic benefi t from the use by the charity of the items probable and that economic benefi t can be measured reliably. In accordance with the Charities SORP (FRS 102), general volunteer time is not recognised.

Donated professional services and donated facilities are recognised on the basis of the value of the gift to the charity which is the amount the charity would have been willing to pay to obtain services or facilities of equivalent economic benefi t on the open market; a corresponding amount is then recognised in expenditure in the period of receipt.

Government grants are recognised at the fair value of the asset received or receivable when there is reasonable

assurance that the grant conditions will be met and the grants will be received.

Donated fi xed assets are taken to income at the value to the charity with the other entry being capitalised in fi xed assets.

Legacies receivable are considered on a case by case basis and recognised as the earlier of the date on which: the charity is aware that probate has been granted, the estate has been fi nalised and notifi cation has been made by the executor(s) to the charity that a distribution will be made, or when a distribution is received from the estate. Receipt of a legacy, in whole or in part, is only considered probable when the amount can be measured reliably and the charity has been notifi ed of the executor’s intention to make a distribution. If the legacy is in the form of an asset other than cash or an asset listed on a recognised stock exchange, recognition is subject to the value of the asset being able to be reliably measured and title to the asset has passed to the charity. Where legacies have been notifi ed to the or the charity is aware of the granting of probate, and the criteria for income recognition have not been met, then the legacy is a treated as a contingent asset and disclosed if material.

36

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

1.4 Tangible Fixed Assets

Tangible fi xed Assets are initially measured at cost net of depreciation and impairment losses.

Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the following basis- assets held under fi nance leases are depreciated in the same way as owned assets:

Leasehold Property 2% Equipment 25% Motor vehicles 20%

It is the charity's policy not to capitalise fi xed assets costing below £500.

The gains or loss arising on disposal of an asset is determined as the diff erence between the sale proceeds and the carrying value of the asset, and is credited or charged to profi t or loss.

At each reporting period end date, CRY reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suff ered an impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of the impairment loss (if any). Where it is not possible to estimate the recoverable amount of an individual asset, the company estimates the recoverable amount of the cashgenerating unit to which the asset belongs.

1.5 Expenditure

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably. All expenditure is accounted for on an accruals basis under the following activity headings:

Fundraising

Costs incurred in fi nancing fundraising activities including allocated staff costs and support costs.

Screening

These include all costs associated with the screening of individuals including the salary cost of time spent by employees, travel, subsistence and depreciation of related fi xed assets.

Family Support

Costs incurred in undertaking Family Support including allocated staff costs and support costs.

Awareness and PR

This includes all costs for the purpose of promoting the charity's activities and increasing awareness in the public.

Research

The costs include research fellows, research assistants, donated equipment and related research expenses.

Governance

Includes staff time and expenses for time spent in connection with trustees meetings, plus the cost of audit and professional fees. Salary costs are charged in accordance with time spent.

Support costs

Costs incurred directly in support of expenditure on the objects of the charity and include functions such as Human Resources and Information Technology. All costs are allocated between the expenditure categories of the SOFA on a basis designed to refl ect the use of the resource.

Stationery and brochures

Costs incurred in respect of stationery and brochures are written off as incurred.

37

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

1.6 Debtors

Trade and other debtors are recognised at the settlement amount due after any discount off ered. Prepayments are valued at the amount prepaid net of any trade discounts due. Accrued income and tax recoverable is included at the best estimate of the amounts receivable at the balance sheet date.

1.7 Financial Instruments

The charity only has fi nancial assets and fi nancial liabilities of a kind that qualify as basic fi nancial instruments. Basic fi nancial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the eff ective interest method.

1.8 Cash and Cash Equivalents

Cash and cash equivalents are basic fi nancial assets and include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts.

1.9 Creditors and Provisions

Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Debt instruments are subsequently carried at amortised cost, using the eff ective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of business from suppliers. Amounts payable are classifi ed as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the eff ective interest method.

1.10 Employee Benefi t

The costs of short-term employee benefi ts are recognised as a liability and an expense.

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefi ts are recognised immediately as an expense when the company is demonstrably committed to terminate the employment of an employee or to provide termination benefi ts.

1.11 Pensions

In line with recent changes in pension legislation CRY has enrolled eligible employees into an auto- enrolment pension scheme. The basic contributions for the scheme are 3% (3% April 2021) of pensionable earnings by CRY and 5% (5% April 2021) by the employees. Pension costs are charged to the Statement of Financial Activities as incurred. There were £7,168 (2021: £7,174) of outstanding contributions at the year end.

1.12 Leases

Leases are classifi ed as fi nance leases whenever the terms of the lease transfer substantially all the risks and rewards of ownership to the lessees. All other leases are classifi ed as operating leases.

Assets held under fi nance leases are recognised as assets at the lower of the assets fair value at the date of inception and the present value of the minimum lease payments. The related liability is included in the balance sheet as a fi nance lease obligation. Lease payments are treated as consisting of capital and interest elements. The interest is charged to the profi t and loss account so as to produce a constant periodic rate of interest on the remaining balance of the liability.

Rentals payable under operating leases, including any lease incentives received, are charged to income on a straight line basis over the term of the relevant lease except where another more systematic basis is more representative of the time pattern in which economic benefi ts from the lease asset are consumed.

1.13 Funds held by the charity are either:

Unrestricted funds – these are funds which can be used in accordance with the charitable objects at the discretion of the trustees.

38

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

Designated funds – these are funds which have been designated by the trustees for research projects.

Restricted funds – these are funds that can only be used for particular restricted purposes within the charity's objects.

Restrictions arise when specifi ed by the donor or when funds are raised for particular restricted purposes.

1.14 Going Concern

After producing a budget for 12 months from the date of signing the accounts, the trustees have reasonable expectations that the charity has adequate resources to continue acting as a going concern and has thus adopted this basis in preparing the accounts.

1.15 Signifi cant areas of estimation and judgement

The preparation of the fi nancial statements requires judgements, estimations and assumptions to be made which aff ect the reported values of assets, liabilities, income and expenditure. The nature of such could result in actual outcomes diff ering from expectation. Management has applied judgement in the follow material area:

– Research grants are recognised in full by the charity as soon as the criteria for a constructive obligation has been met, payment is probable, can be measured reliably and there are no conditions attached which limit its recognition.

39

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

2. Donations and Legacies

Donations
Gifts
Legacies
Trusts
Sponsorship
3. Other Income Received
Furlough grant receivable
Other government grants
4. Research
Research costs
Medical Research - Professor Sharma - St George’s, University of London
Cardiac Pathology and Coroners’ Referral Research
Medical Research - Dr Papadakis - St George’s, University of London
Medical Research - Liverpool John Moores
See note 12		 2022
£
2,362,202
8,967
101,807
14,220
2,487,196
51,645
7,459
59,104
2022
£
328,997
231,938
66,488
944
628,367		 2021
£
1,468,287
13,000
39,700
(675)
1,520,312
346,242
7,333
353,575
2021
£
332,822
233,652
132,878
-
699,352

Please see the trustees report page 45 for further information in respect of provisions for research grants.

5. Total resources expended

Direct
Staf
Costs
£		 Other
Direct
Costs
£		 Support &
Management
Costs
£		 Total
2022
£
Screening 674,350 340,319 146,171 1,160,840
Family Support 220,687 8,060 57,046 285,793
Awareness & PR 201,858 128,114 154,978 484,950
Governance 12,481 - 74,169 86,650
Research (Note 4) - 628,367 - 628,367
Fundraising 249,181 83,110 109,162 441,453
1,358,557 1,187,970 541,526 3,088,053

40

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

Prior year analysis

Prior year analysis Prior year analysis Prior year analysis
Direct
Staf
Costs
£
Other
Direct
Costs
£
Support &
Management
Costs
£
Total
2021
£
Screening
384,478
33,446
138,437
556,361
Family Support
237,119
1,605
55,662
294,386
Awareness & PR
198,671
73,583
118,742
390,996
Governance
11,144
-
59,380
70,524
Research (Note 4)
-
699,352
-
699,352
Fundraising
259,821
18,985
83,371
362,177
1,091,233
826,971
455,592
2,373,796
Support and Management Costs
2022
£
2021
£
Staf Costs (not included in direct staf costs above)
223,173
184,601
Rent & Rates
8,072
11,316
Heat, Light & Power
5,170
2,264
Motor Expenses
11,837
7,963
Travelling
186
75
Printing, Stationery and Telephone
20,656
12,610
Postage and carriage
22,244
5,802
Computer Expenses
61,178
45,829
Professional Fees
21,439
34,286
Auditors Remuneration
21,600
23,640
Insurance
36,687
30,424
Maintenance
16,619
9,562
Bad Debts
-
-
General Expenses
1,542
(526)
Bank charges and Interest
25,280
12,747
Depreciation
65,843
77,999
Prof t on disposal of f xed assets
-
(3,000)
541,526
455,592
2022
£
223,173
8,072
5,170
11,837
186
20,656
22,244
61,178
21,439
21,600
36,687
16,619
-
1,542
25,280
65,843
-
541,526 455,592

41

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

Support Costs allocated
to activities
Screening
Family
support
Awareness
& PR
Fundraising
Governance
£
£
£
£
£
Premises
2,426
539
6,839
1,980
1,461
General Of ce
91,189
12,098
121,748
36,690
36,534
Management
7,624
6,013
3,800
11,816
1,415
Finance
34,815
30,497
9,986
48,260
22,532
Information Technology
826
817
1,421
808
184
Human Resources
9,291
7,082
11,184
9,608
12,043
Total
146,171
57,046
154,978
109,162
74,169		 Total
2022
£
13,245
298,259
30,668
146,090
4,056
49,208
541,526
Prior year analysis
Support Costs allocated
to activities
Screening
Family
support
Awareness
& PR
Fundraising
Governance
£
£
£
£
£
Premises
3,164
548
6,495
1,878
1,494
General Of ce
89,706
9,721
87,710
26,497
31,736
Management
9,571
7,729
6,404
10,362
1,714
Finance
26,486
29,572
6,195
35,389
23,790
Information Technology
509
613
1,063
466
60
Human Resources
9,001
7,479
10,875
8,779
586
Total
138,437
55,662
118,742
83,371
59,380		 Total
2021
£
13,579
245,370
35,780
121,432
2,711
36,720
455,592

Costs were allocated on the basis of staff time other than premises and general offi ce costs which were allocated on a usage basis.

6.Staff costs and number of employees

Wages and salaries
Social security costs
Pension costs
Other staf costs (including staf training)
Direct Staf Costs
Support Staf Costs		 2022
£
1,402,197
110,872
39,659
29,002		 2021
£
1,099,644
89,502
21,512
65,176
1,581,730 1,275,834
1,358,557
223,173		 1,091,233
184,601
1,581,730 1,275,834

One employee received a salary in excess of £60,000 in the year to 31 May 2022 (2021: 1).

'The charity trustees were not paid or received any other benefi ts from employment with CRY in the year (2021: £nil) neither were they reimbursed expenses during the year (2021: £nil). No charity trustee received payment for professional or other services supplied to the charity (2021: £nil)

42

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

'The key management personnel of the charity, comprise the CRY Founder, the Chief Executive Offi cer and the Director of Screening and Research. The total employee benefi ts of the key management personnel of the charity were £133,599 (2021:£140,959).

Total employee benefi ts include: Salary, pension and healthcare.

The average monthly number of employees during the year was:

Management and administration
Charitable work
Total
The above includes the following part time staf		 2022
8
68
76
31		 2021
8
60
68
23
Net incoming resources before transfers
This is stated after charging: 2022 2021
£ £
Depreciation 65,843 77,999
Auditors’ remuneration
For audit services 9,970 9,970
For other services 11,630 13,670
Loss/(Prof t) on disposal of f xed assets - (3,000)

7. Tangible fi xed assets

Cost
At 1 June 2021
Additions
At 31 May 2022
Depreciation
At 1 June 2021
Charge for the year
At 31 May 2022
Net Book Value
At 31 May 2022
At 31 May 2021		 Long
Leasehold
Property
£
Equipment
£
Motor
Vehicles
£
Total
£
678,201
914,477
99,491
1,692,169
-
575
-
575
678,201
915,052
99,491
1,692,744
108,488
845,256
42,424
996,168
13,488
37,699
14,656
65,843
121,976
882,955
57,080
1,062,011
556,225
32,097
42,411
630,733
569,713
69,221
57,067
696,001

All fi xed assets are used for charitable purposes.

43

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

8. Debtors

Trade Debtors
Prepayments
Accrued Income
9. Cash at bank and in hand
Deposit account
Current account
Cash in hand		 2022
£
24,600
93,007
131,900
249,507
2022
£
5,061,138
955,402
2,602
6,019,142		 2021
£
11,650
79,181
34,593
125,424
2021
£
5,303,500
960,563
4,829
6,268,892

10. Creditors: Amounts falling due within one year

Bank Loan (Note 11)
Trade Creditors
Other Creditors
Taxation and Social Security
Accruals and deferred
income
Research (Note 12)		 2022
£
189,323
109,002
34,863
19,271
616,671
434,801
1,403,931		 2021
£
91,547
36,119
14,649
19,271
595,094
407,483
1,164,163

11. Creditors: Amounts falling due after one year

Bank Loan 2022
£
663,458
663,458		 2021
£
858,695
858,695

The bank loan is secured by fi xed charges over all the charity’s leasehold property.

The loan is for a term of 6 years and with monthly instalments commencing in November 2021, after an initial 12 month capital repayment holiday. Interest accrues at 2.44% over Bank of England Base Rate.

44

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

12. Research

Provision at 1 June 2021
Recognised in statement of f nancial activities
(Note 4)
Grant payments in the year
Provision at 31 May 2022		 2022
£
407,483

628,367
(601,049)
434,801		 2021
£
428,505
699,352
(720,374)
407,483

Grant commitment at 31 May 2022

Institution
Activity
Type
St George’s University of
London
Research
under Professor
Sharma
Fellows
St George’s University of
London
Research
under Professor
Sharma
Cardiac
Physiologists
Cardiac Pathology and Coroners’ Referral
Research
Total Grants		 Number
of grants
8
2
2		 Total
326,467
33,334
75,000
12 434,801

See note 16 in respect of further information on these projects

13. Analysis of net assets between funds

Unrestricted funds
Restricted funds
14. Analysis of Funds
Balance at 1 June
2021
£
Unrestricted funds
744,450
Restricted funds (Note 16)
4,323,009
5,067,459		 Tangible
assets
£
Net current
assets
£
630,733
(302,235)
-
4,503,495		 Total
£
328,498
4,503,495
630,733
4,201,260		 4,831,993

Incoming
Funds
£
Outgoing
Funds
£

1,914,475
(2,330,427)
938,112
(757,626)		 Balance at 31
May 2022
£
328,498
4,503,495
2,852,587
(3,088,053)		 4,831,993

45

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

15. Research Costs

Cardiac Pathology Research

After a death, fast track expert pathology is crucial. CRY has designated signifi cant funds to support essential research and fund the expertise required to conduct these investigations at The CRY Centre for Cardiac Pathology (CRY CCP), which is based at St George's Hospital, University of London, Tooting, London. Expert cardiac pathology is essential to help understand the cause of death as well as inform which tests are required for the testing of fi rst degree blood relatives.

Coroners' Referral

CRY is funding coroners' referrals to The CRY Centre for Cardiac Pathology for young people (aged 35 or under) where the cause of death in the initial pathology is "unascertained". Coroners sometimes do not have the funds to access a service where they can refer complex cases to an expert pathologist. This means that many deaths are simply recorded as unascertained or, incorrectly, such as epilepsy, asthma or drowning. This service allows coroners to refer cases directly and receive a full report of the actual cause of death within 2 weeks.

St George's, University of London

CRY has funded 7 research fellowship grants during this year. All seven grants are supervised by Professor Sharma and Dr Michael Papadakis. CRY is funding a cardiologist to support and further expand its collaborative research programme with St George’s. The fellows under the supervision of Professor Sharma and Dr Papadakis focus on the data obtained in CRY's screening programme and take forward projects relating to Young Sudden Cardiac Death, inherited cardiovascular conditions and sports cardiology. Research Fellowship funding is essential for CRY's screening programme. A research fellow is present at every screening to ensure that all abnormal ECG fi ndings are evaluated immediately with follow-up ECHO (ultrasound of the heart). CRY is also funding a cardiac nurse and two full time physiologists to work at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology. The research fellows, physiologists, and the nurse support Professor Sharma, to provide a specialist service for bereaved families after a tragedy, where all family members can be seen together and have all necessary tests conducted on the same day.

46

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

16.Restricted Funds
Balance at 1
June 2021
£
Incoming
Funds
£
Outgoing
Funds
£
Restricted		 Balance at 31
May 2022
£
Memorial Funds
4,170,994
840,192
(568,430)		 4,442,756
Cardif City Football Club
19,946
-
(15,000)		 4,946
Robert Luf Foundation
20,000
20,000
(20,000)		 20,000
Stanley Grundy Foundation
5,000
-
(5,000)		 -
Aubrey Orchard-Lisle Charitable Trust
5,000
-
(5,000)		 -
The Geof and Fiona Squire Foundation
477
-
-		 477
Carval Foundation
3,521
-
(3,521)		 -
James Tudor Foundation
3,000
1,670
(4,353)		 317
The Anthony and Elizabeth Mellows
Charitable Settlement
1,000
-
-		 1,000
W.E.D. Charitable Trust
1,000
500
-		 1,500
Brian Shaw Trust
1,000
-
(1,000)		 -
Wrexham Rugby Club
2,500
-
-		 2,500
The Rothley Trust
821
-
(821)		 -
The Edith Florence Spence Memorial Trust
2,000
5,000
(7,000)		 -
Chapman Charitable Trust
1,000
-
-		 1,000
Wasps Foundation
2,500
-
(2,500)		 -
Tesco Bags of Help Grant
77,500
57,500
(120,000)		 15,000
The Sir Robert Gooch Charitable Trust
500
500
-		 1,000
The Pannet Charitable Trust
250
250
-		 500
The Fognal Trust
5,000
-
(5,000)		 -
The Stanton Ballard Charitable Trust
-
500
-		 500
Glasdon Charitable Programme
-
12,000
-		 12,000
4,323,009
938,112
(757,626)		 4,503,495

47

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MAY 2022

16. Restricted Funds (continued)

Restricted funds include 295 active funds (2021: 289) which have been set up to fund primarily screening events, but also provide funds for research fellows, raising awareness and for the purchase of ECG machines and a screening van.

18. Contingent liability

The charity had no contingent liabilities at 31 May 2022.

19. Taxation

The charity is considered to pass the tests set out in Sch. 6, para. 1 of the Finance Act 2010 and therefore it meets the defi nition of a charitable company for UK corporation tax purposes. Accordingly, the company is potentially exempt from taxation in respect of income or capital gains received within categories covered by Pt. 11, Ch. 3 of the Corporation Tax Act 2010 or s. 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.

48

CARDIAC RISK IN THE YOUNG A COMPANY LIMITED B Y GUARANTEE 49