including the following: |
|
|---|---|
| Information booklets | |
| A medical Guide for Patients with Myasthenia Gravis |
Ocular Myasthenia - a guide for the medical professionals |
| A medical Guide for Patients with LEMS | Myasthenia andpregnancyfactsheet |
| MyastheniaforComplete Beginners | WhoamI? Booklet(myasthenia simplified) |
| Congenital Myasthenia - aguide | Variety offlyerspromotingmyaware services |
| Ocular Myasthenia - a guideforpatients |
| Support | £540,833 |
|---|---|
| Research | £366,588 |
| Awareness | £105,233 |
| Fundraising | £9,499 |
| Website performance | ||||
|---|---|---|---|---|
| 2020/2021 | 2021/2022 | |||
| Visitors to the website: | 157,717 | 151,229 | ||
| Pages most visited: | • Drugs to avoid • Pyridostigmine information • Coronavirus information |
• Drugs to avoid • Extraocular muscles • Pyridostigmine information |
||
| Averages session length | 1.41seconds | 1.46 seconds | ||
| Bounce back rate: | 74.09% | 72.65% | ||
| Numberofpages viewed duringeach session |
2.02 | 2.12 |
| Notes INCOME AND ENDOWMENTS FROM Donationsandlegacies 3 Othertrading activities 4 Investment income 5 Total EXPENDITUREON Raising funds 6 Charitableactivities 7 Research Support Awareness Total Netgainsoninvestments NETINCOME/(EXPENDITURE) Transfersbetweenfunds 21 Netmovementinfunds RECONCILIATIONOFFUNDS Totalfundsbroughtforward TOTALFUNDS CARRIED FORWARD |
Unrestricted fund £ 635,330 118,908 7!832 |
Restricted funds £ 5,636 (60,802) |
2022 Total funds £ 640,966 58,106 71832 |
2021 Total funds £ 675,821 306,918 10,060 992,799 10,329 326,043 635,542 80,503 1,052,417 35,783 (23,835) (23,835) 2,726,884 2,7031049 |
|
|---|---|---|---|---|---|
| 762,070 9,499 75,563 520,538 104,441 |
(55,166) 291,025 20,295 792 |
706,904 9,499 366,588 540,833 105,233 |
|||
| 710,041 18,493 70,522 16,715 |
312,112 (367,278) (16,715) |
1,022,153 18,493 (296,756) |
|||
| 87,237 1,640,760 1!7271997 |
(383,993) 1,062,289 6781296 |
(296,756) 2,703,049 214061293 |
| Notes FIXEDASSETS Intangible assets 14 Tangible assets 15 Investments 16 CURRENTASSETS Stocks 17 Debtors 18 Cashatbankandinhand CREDITORS Amountsfallingduewithinoneyear 19 NETCURRENTASSETS TOTALASSETSLESSCURRENTLIABILITIES CREDITORS Amountsfallingdueaftermorethanoneyear 20 NETASSETS FUNDS 21 Unrestricted funds Restricted funds TOTALFUNDS |
Unrestricted Restricted fund funds £ £ 7,709 4,030 229,797 |
2022 Total funds £ 7,709 4,030 229,797 |
2021 Total funds £ 23,477 3,661 211,304 |
||
|---|---|---|---|---|---|
| 241,536 4,364 577,599 914,288 1,178,742 |
241,536 4,364 577,599 2,093,030 |
238,442 2,138 859,595 2,040,174 |
|||
| 1,496,251 1,178,742 (9,790) (200,690) 1,486,461 978,052 1,727,997 978,052 (299,756) 1z727,997 678,296 |
2,674,993 (210,480) 2,464,513 2,706,049 (299,756) 2,4061293 |
2,901 ,907 (273,400) 2,628,507 2,866,949 (163,900) 2,703,049 |
|||
| 1,727,997 678,296 |
1,640,760 1,062,289 |
||||
| 2,406,293 | 2,703,049 |
| 2022 | 2021 | ||
|---|---|---|---|
| Notes | £ | £ | |
| Cashflowsfrom operating activities | |||
| Cash generated from operations | 1 | 48,226 | 195,137 |
| Net cash provided by operating activities | 48,226 | 195,137 | |
| Cashflowsfrominvesting activities | |||
| Purchase of intangible fixed assets | (14,759) | ||
| Purchase of tangible fixed assets | (3,445) | (2,768) | |
| Saleofintangible fixed assets | 243 | ||
| Interest received | 7,832 | 10,060 | |
| Net cash provided by/(used in) investing activities | 4,630 | (7,467) | |
| Changeincash and cash equivalentsin | |||
| thereporting period | 52,856 | 187,670 | |
| Cash and cash equivalentsatthe | |||
| beginningofthereporting period | 2,040,174 | 1,852,504 | |
| Cash and cash equivalentsatthe endof | |||
| thereporting period | 2,093,030 | 2,040,174 |
| 1. | RECONCILIATION OF NET EXPENDITURE TO NET CASH FLOW FROM | OPERATING ACTIVITIES | OPERATING ACTIVITIES |
|---|---|---|---|
| 2022 | 2021 | ||
| £ | £ | ||
| Net expenditureforthereporting period (as pertheStatementof | |||
| FinancialActivities) | (296,756) | (23,835) | |
| Adjustmentsfor: | |||
| Depreciation charges | 18,601 | 31,643 | |
| Gain on investments | (18,493) | (35,783) | |
| Interest received | (7,832) | (10,060) | |
| (lncrease)/decrease in stocks | (2,226) | 1,491 | |
| Decrease in debtors | 281,996 | 3,802 | |
| Increase in creditors | 72,936 | 227,879 | |
| Net cashprovidedbyoperations | 48,226 | 195,137 |
| 2. ANALYSISOF CHANGESINNET FUNDS At1/4/21 £ Net cash Cash at bank and in hand 2,040,174 2,040,174 Total 2,040,174 |
Cash flow £ 52,856 52,856 |
At 31/3/22 £ 2,093,030 2,093,030 |
|
|---|---|---|---|
| 52,856 | 2,093,030 |
| OTHER TRADING ACTIVITIES | |||
|---|---|---|---|
| Affinity programmes Appeals Collections Corporate Grants Lotteries National events Regional events Salesofmerchandise Trusts |
2022 £ 1,890 7,370 468 7,339 (53,847) 4,334 17,906 36,813 4,928 30,905 58,106 |
2021 £ 623 15,978 921 7,065 140,428 5,382 9,225 36,263 4,686 86,347 306,918 |
|
| 2022 | 2021 | |
|---|---|---|
| £ | £ | |
| Deposit account interest | 908 | 3,815 |
| Current account interest | 538 | 150 |
| Dividends on shares and other investments | 6,386 | 6,095 |
| 7,832 | 10,060 | |
| =--, |
| 2022 £ Donations 95,583 Legacies 490,115 Grants 9,218 InMemoriam 46,050 640,966 |
2021 £ 83,601 519,560 29,355 43,305 675,821 |
|---|---|
| Raisingdonationsand legacies | ||
|---|---|---|
| 2022 | 2021 | |
| £ | £ | |
| Merchandise | 2,173 | 2,976 |
| Events | 3,098 | 3,357 |
| Appeal mailings | 996 | 349 |
| Lottery | 3,232 | 3,647 |
| ~ | ~ |
| Research Support Awareness |
Direct Costs(see note 8) £ 347,451 407,124 781472 833,047 |
Support costs (see note9) Totals £ £ 19,137 366,588 133,709 540,833 26i761 1051233 179,607 1,012,654 |
|
|---|---|---|---|
| Staffcosts Medical research Medical care Travel and miscellaneous MyNews &membercommunications Meetings and conferences |
2022 2021 £ £ 528,511 580,867 291,025 267,677 1,529 6,829 5,600 4,098 7,158 11055 1427 833,047 862,729 |
|---|---|
| Commitmentsasat1 April 2021 Commitments made intheyear Commitments released intheyear Grants paid during theyear Commitmentsasat31 March 2022 |
2022 2021 £ £ 421,705 184,343 323,919 275,772 (32,894) (8,095) (212,284) (30,315) 500,446 421,705 |
|---|---|
| Research Support Awareness Management £ 17,568 123,158 241623 165,349 |
Governance costs Totals £ £ 1,569 19,137 10,551 133,709 21138 261761 ~~14,258~~ 179,607 |
|---|---|
| Rentalofpremises Utilities and insurance Office equipment Printing, postage and stationery Photocopier costs Support website ITsupport & software HRcosts General expenses Bank charges Amortisationofintangible fixed assets Depreciationoftangible fixed assets Governancecosts Trustees' expenses Auditors' remuneration Legalandprofessional fees NET INCOME/(EXPENDITURE) Net income/(expenditure) is stated Auditors' remuneration Depreciation - owned assets Computer software amortisation |
Research Support £ £ 2,613 17,579 1,999 13,451 3,845 1,097 7,383 143 961 2,633 17,710 4,982 34,642 1,140 7,663 751 5,050 165 1,108 1,707 11,489 338 2,277 17,568 123,158 Research Support £ £ 26 172 800 5,379 743 5,000 ~~ after charging/(crediting): |
Support £ 17,579 13,451 3,845 7,383 961 17,710 34,642 7,663 5,050 1,108 11,489 2,277 123,158 |
2022 2021 Total Total Awareness activities activities £ £ £ 3,563 23,755 23,760 2,727 18,177 17,255 3,845 2,315 1,497 9,977 11,680 195 1,299 1,009 3,590 23,933 30,461 7,460 47,084 38,773 1,553 10,356 5,044 1,024 6,825 1,131 224 1,497 1,573 2,329 15,525 25,363 461 31076 61280 24,623 165,349 164,644 2022 2021 Total Total Awareness activities activities £ £ £ 35 233 1,089 7,268 7,941 1,014 6,757 6,774 ~~~ 2022 2021 £ £ 7,268 7,941 3,076 6,280 ~~ |
|---|---|---|---|
| Trustees'expenses | ||
|---|---|---|
| 2022 | 2021 | |
| £ | £ | |
| Trustees' expenses | 233 - |
| 2022 £ Wages and salaries 463,558 Social security costs 34,490 Other pension costs 30,463 528,511 |
2021 £ 509,640 36,906 34,321 580,867 |
|---|---|
| The average monthly numberofemployees during theyearwas | as follows: | |
|---|---|---|
| 2022 | 2021 | |
| Fundraising, support and awareness | 15 | 20 |
| Managementandoperationsofthecharity | 4 | 4 |
| 19 | 24 |
| 2022 | 2021 | |||
|---|---|---|---|---|
| £60,001 | - | £70,000 | 1 |
| 13. COMPARATIVESFORTHESTATEMENTOFFINANCIAL ACTIVITIES Unrestricted fund £ INCOMEANDENDOWMENTSFROM Donations and legacies 673,194 Othertrading activities 125,725 Investment income 10,060 Total 808,979 EXPENDITUREON Raising funds 10,329 Charitable activities Research 54,506 Support 432,395 Awareness 80,503 Total 577,733 Netgainson investments 35,783 NETINCOME/(EXPENDITURE) 267,029 Transfersbetweenfunds 73,908 Netmovementinfunds 340,937 RECONCILIATIONOFFUNDS Totalfundsbroughtforward 1,299,823 TOTALFUNDSCARRIEDFORWARD 1,640,760 |
Restricted funds £ 2,627 181,193 |
Total funds £ 675,821 306,918 10,060 992,799 10,329 326,043 635,542 80,503 1,052,417 35,783 (23,835) (23,835) 2,726,884 2,703,049 |
|---|---|---|
| 183,820 271,537 203,147 |
||
| 474,684 (290,864) {73,908) |
||
| (364,772) 1,427,061 1,062,289 |
| INTANGIBLE FIXED ASSETS | |
|---|---|
| Computer | |
| software | |
| £ | |
| COST | |
| At1 April2021 | 95,736 |
| Disposals | ~) |
| At31March 2022 | 95,007 |
| AMORTISATION | |
| At1 April2021 | 72,259 |
| Charge foryear | 15,525 |
| Eliminated on disposal | ~) |
| At31March 2022 | 87,298 |
| NETBOOKVALUE | |
| At31March 2022 | 7,709 |
| - | |
| At31March 2021 | ~ |
| Fixtures | |||
|---|---|---|---|
| and | Computer | ||
| fittings | equipment | Totals | |
| £ | £ | £ | |
| COST | |||
| At1 April 2021 | 13,247 | 41,763 | 55,010 |
| Additions | 3,445 | 3,445 | |
| At31March 2022 | 13,247 | 45,208 | 58,455 |
| DEPRECIATION | |||
| At1 April 2021 Charge for year |
13,247. -- |
38,102 3,076 |
51,349 3,076 |
| At31March 2022 | 13,247 | 41,178 | 54,425 |
| NET BOOK VALUE | |||
| At31March 2022 | ~ | ~ | |
| At31March 2021 | ~ | ~ | |
| FIXED ASSET INVESTMENTS | |||
| Listed | |||
| investments | |||
| £ | |||
| MARKET VALUE | |||
| At1 April 2021 | 211,304 | ||
| Revaluations | 18,493 | ||
| At31March 2022 | 229,797 | ||
| NETBOOKVALUE | |||
| At31March 2022 | 229,797 | ||
| At31March 2021 | 211,304 |
| Finished goods 18. DEBTORS: AMOUNTSFALLINGDUE WITHIN ONEYEAR Other debtors Prepayments and accrued income 19. CREDITORS: AMOUNTS FALLINGDUEWITHINONEYEAR Other creditors Committed grants Accruals and deferred income 20. CREDITORS: AMOUNTS FALLING DUE AFTER MORETHANONE YEAR Committed grants |
2022 £ ~ 2022 £ 568,640 8,959 577,599 |
2021 £ 2,138 - 2021 £ 848,353 11,242 859,595 2021 £ 6,864 257,805 8,731 273,400 2021 £ 163,900 |
|
|---|---|---|---|
| 2022 £ 1,039 200,690 8,751 210,480 2022 £ 299,756 |
| 21. MOVEMENT IN FUNDS Unrestrictedfunds General fund Restrictedfunds Research Support Awareness TOTAL FUNDS |
At1/4/21 £ 1,640,760 860,312 198,440 3,537 1,062,289 |
Net movement infunds £ 70,522 (287,494) (79,992) 208 {367,278) !296,756) Transfers between At funds 31/3/22 £ £ 16,715 1,727,997 572,818 (16,715) 101,733 3,745 {16,715) 678,296 2,406,293 |
|
|---|---|---|---|
| 2,703,049 |
| Unrestrictedfunds General fund Restrictedfunds Research Support Awareness TOTAL FUNDS Comparativesformovementinfunds Unrestrictedfunds General fund Restrictedfunds Research Support Awareness TOTALFUNDS |
Incoming resources £ 762,070 3,531 (59,697) 1,000 (55~~1~~166) 706,904 At1/4/20 £ 1,299,823 1,204,757 220,117 2,187 1,427,061 |
Resources expended £ (710,041) (291,025) (20,295) (792) (3121112) !1,022,153) Net movement in funds £ 267,029 (270,537) (21,677) 1,350 (290,864) |
Gains and Movement losses infunds £ £ 18,493 70,522 (287,494) (79,992) 208 (3671278) 18,493 !296,756) Transfers between At funds 31/3/21 £ £ 73,908 1,640,760 (73,908) 860,312 198,440 3,537 (73,908) 1,062,289 2,703,049 |
|
|---|---|---|---|---|
| 2,726,884 | (23,835) |
| Comparative net movementinfunds, included in the above areasfollows: | ed in the above areasfollows: | ed in the above areasfollows: | ed in the above areasfollows: | ||
|---|---|---|---|---|---|
| Incoming Resources resources expended £ £ Unrestrictedfunds General fund 808,979 (577,733) Restrictedfunds Research 1,000 (271,537) Support 181,470 (203,147) Awareness 1,350 183,820 (474,684) TOTAL FUNDS 992,799 p ,052,417) A current year 12 months and prior year12months combined position is as follows: Net movement At1/4/20 in funds £ £ Unrestrictedfunds General fund 1,299,823 337,551 Restrictedfunds Research 1,204,757 (558,031) Support 220,117 (101 ,669) Awareness 2 187 1,558 1,427,061 (658,142) TOTAL FUNDS 2,726,884 !320,591) Gains and Movement losses in funds £ £ 35,783 267,029 (270,537) (21,677) 1,350 (290,864) 35,783 !23,835) Transfers between At funds 31/3/22 £ £ 90,623 1,727,997 (73,908) 572,818 (16,715) 101,733 3,745 (90,623) 678,296 2,406,293 A current year 12 months and prior year 12 months combinednetmovement in funds, included in the above are as follows: |
Incoming Resources resources expended £ £ 808,979 (577,733) 1,000 (271,537) 181,470 (203,147) 1,350 |
Gains and losses £ 35,783 |
Movement in funds £ 267,029 (270,537) (21,677) 1,350 |
||
| 183,820 (474,684) |
(290,864) | ||||
| 992,799 p ,052,417) |
!23,835) At 31/3/22 £ 1,727,997 572,818 101,733 3,745 678,296 |
||||
| 2,726,884 | !320,591) | 2,406,293 |
as follows: |
|
|---|---|
| Unrestrictedfunds General fund Restrictedfunds Research Support Awareness TOTAL FUNDS |
Incoming Resources Gains and Movement resources expended losses in funds £ £ £ £ 1,571,049 (1,287,774) 54,276 337,551 4,531 (562,562) (558,031) 121,773 (223,442) (101 ,669) 2,350 (792) 1,558 |
| 128,654 (786,796) (658,142) |
|
| 1,699,703 !2,074,570) 54,276 !320,591) |
| 2022 | 2021 | |
|---|---|---|
| £ | £ | |
| INCOME AND ENDOWMENTS | ||
| Donations and legacies | ||
| Donations | 95,583 | 83,601 |
| Legacies | 490,115 | 519,560 |
| Grants | 9,218 | 29,355 |
| In Memoriam | 46,050 | 43,305 |
| 640,966 | 675,821 | |
| Othertradingactivities | ||
| Affinity programmes | 1,890 | 623 |
| Appeals | 7,370 | 15,978 |
| Collections | 468 | 921 |
| Corporate | 7,339 | 7,065 |
| Grants | (53,847) | 140,428 |
| Lotteries | 4,334 | 5,382 |
| National events | 17,906 | 9,225 |
| Regional events | 36,813 | 36,263 |
| Salesofmerchandise | 4,928 | 4,686 |
| Trusts | 30,905 | 86,347 |
| 58,106 | 306,918 | |
| Investmentincome | ||
| Deposit account interest | 908 | 3,815 |
| Current account interest | 538 | 150 |
| Dividendsonshares and other investments | 6,386 | 6,095 |
| 7,832 | 10,060 | |
| Totalincomingresources | 706,904 | 992,799 |
| EXPENDITURE | ||
| Raisingdonationsand legacies | ||
| Merchandise | 2,173 | 2,976 |
| Events | 3,098 | 3,357 |
| Appeal mailings | 996 | 349 |
| Lottery | 3,232 | 3647 |
| 9,499 | 10,329 | |
| Charitable activities | ||
| Wages | 463,558 | 509,640 |
| Social security | 34,490 | 36,906 |
| Pensions | 30,463 | 34,321 |
| Medical research | 291,025 | 267,677 |
| Medical care | 1,529 | |
| Travel and miscellaneous | 6,829 | 5,600 |
| Carried forward | 827,894 | 854,144 |
| 2022 £ Charitableactivities Brought forward 827,894 MyNews&member communications 4,098 Meetings and conferences 1,055 833,047 Supportcosts Management Rentalofpremises 23,755 Utilities and insurance 18,177 Office equipment 3,845 Printing, postage and stationery 9,977 Photocopiercosts 1,299 Support website 23,933 ITsupport&software 47,084 HRcosts 10,356 General expenses 6,825 Bank charges 1,497 Amortisationofintangible fixed assets 15,525 Depreciationoftangible fixed assets 3,076 165,349 Governancecosts Trustees' expenses 233 Auditors' remuneration 7,268 Legal and professional fees 6,757 14,258 Total resources expended 1,022,153 Netexpenditurebeforegainsandlosses (315,249) Realisedrecognisedgainsandlosses Realised gains/(losses) on fixedasset investments 18,493 Netexpenditure (296,756) |
2021 £ 854,144 7,158 1,427 |
|---|---|
| 862,729 23,760 17,255 2,315 11,680 1,009 30,461 38,773 5,044 1,131 1,573 25,363 6,280 164,644 7,941 6,774 14,715 1,052,41 7 (59,618) 35,783 (23,835) |