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2021-03-31-accounts

Myaware Report of the Trustees and Financial Statements For the Year Ended 31st March 2021

Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company SUPPORTING PEOPLE AFFECTED BY MYASTHENIA Page 1 Limited by Guarantee No. 3038358 (England & Wales)

Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

Contents

• Chairman’s Report 1
• CEO’s Report 2
• Report of the Trustees 3 - 15
• Report of the Independent Auditors 16 - 19
• Statement of Financial Activities 20
• Balance Sheet 21
• Cash Flow Statement 22
• Notes to the Cash Flow Statement 23
• Notes to the Financial Statements 24 - 36
• Detailed Statement of Financial Activities 37- 38

Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

Chairman’s Report - Trevor Ranson

This financial year has been like no other in the history of myaware as we have all strived to adjust to the impacts of the Covid-19 pandemic. We began the financial year amidst a national lockdown which resulted in drastic changes to the support services that myaware could continue to deliver to our members. As the year went on, we all attempted to adapt to a new way of living and working whilst abiding by the government guidelines to limit the infection rates. Despite great adversity our members worked with us to maximise the support services which were implemented to replace the once face-to-face support group meetings and regional conferences.

Myaware previously operated across nine regions of the UK providing face-to-face support to those with long term diagnoses and also to those who were recently diagnosed. During this financial year, this service was replaced with regional online support groups delivered via Zoom and our dedicated support and head office team continued to respond to member enquiries via telephone, email, website and social media pages and groups.

Our age and condition specific support services for kids, those aged 18 – 39 and those diagnosed with more rare forms of myasthenia such as LEMS and CMS were also modified to enable online delivery. Although this was a new way of working our staff rose to the challenge and our members maximised their newly acquired online skills to access this support. Our social media groups have been a particularly helpful lifeline for those of all ages and type of myasthenia diagnosis. Social media has provided platforms on which to share thoughts feelings and valuable information, thus reducing feelings of isolation during highly uncertain times.

Raising awareness during this financial year has been more challenging than ever given the limitations imposed upon us. We look forward to representing our members at national GP and nurse conferences as soon as Covid-19 restrictions reduce and conferences resume.

It will come as no surprise that our research projects have been equally affected by the negative impacts of Covid-19. With limited access to research labs, some projects have had to be paused until further notice and just like everyone else our research project leaders have had to safeguard their own health.

Sadly, I must acknowledge the losses that we have all experienced during this time. I send my sincere condolences to all myaware members who have lost someone close to them, either during or as a result of this pandemic. Our thoughts are with you all and myaware continues to be here to support you.

Despite the challenges we have all faced since the pandemic began, I’m delighted to say that myaware has supported around 3000 members during this time. I believe that we have all adjusted as best we could to ensure that we can continue to provide vital support to one another. We are continually humbled by the ability that our members have displayed to adjust and adapt to the changes we have all faced over the past twelve months. I would like to thank each and every one of our members for their resilience and co-operation during this time. Myaware is exceptionally grateful to every individual and organisation that has supported us via donations or fundraising initiatives this year, it is your support and generosity which enables myaware to continue in these unprecedented and changeable times.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

CEO’s Report - Sarah Cuthell

This financial year has been highly challenging for all charities and myaware is no different. We started the year with 2764 active members to support throughout the Covid-19 pandemic with just 25 members of staff and by April 2021 active member numbers had increased by 4% to 2863. During this financial year myaware obtained 598 brand new members but unfortunately 499 members lapsed within this period. Retention of members has been a challenge for myaware since 2018 when GDPR was introduced, as some members don’t realise that without their annual membership renewal and express consent, myaware cannot continue to contact them.

Our figures show that this year the number of members registered with myaware who have not been formally diagnosed has reduced by 34% which is very encouraging. Swift and clear diagnosis is of the highest importance and ensures effective treatment can be given and relevant support can be accessed to improve quality of life.

Membership age range Membership type of myasthenia

----- Start of picture text -----
Unknown 0 – 18 19 – 29 30 – 39
40 – 49 50 – 59 60 – 69 70 – 79
80 – 89 90 – 99 100+
----- End of picture text -----

----- Start of picture text -----
Myasthenia Gravis Ocular myasthenia LEMS
CMS Unknown RelaHves
Other
----- End of picture text -----

The demand for myaware’s Benefits and Welfare advice service has increased by 29% since last year as our member’s situations have been affected by the pandemic. Notable increases in type of enquiry were in the areas of general, driving, employment and Blue Badge. Myaware has been actively promoting this service on myaware social media as well as featuring more focused articles on education and employment in our quarterly newsletter.

Our emotional support service provided by our in-house Counsellor has also continued to be in high demand this year. Our counselling service is totally confidential and free of charge to all myaware members. The value of this service has increased during such difficult and unpredictable times as the pandemic has created an increased sense of isolation, worry and mental health difficulties.

Following Covid-19 related lockdowns and restrictions, myaware shifted its focus from face-to-face support services to online support sessions delivered via Zoom. The planning around this involved research into security, technology, and best communication practices. Our support team delivered 97 Zoom sessions with an estimated 841 participants. In a poll taken after each session, participants consistently reported that they benefitted from hearing from professionals and others living with myasthenia.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Introduction

The trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 March 2021 which are also prepared to meet requirements of the directors’ reports and accounts for the Companies Act purposes.

The financial statements comply with the Charities Act 2011, The Companies Act 2006, the Charities and Trustee Investment (Scotland) Act 2005, the Articles of Association and Accounting and reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES OF THE CHARITY

We support people affected by myasthenia and related conditions, raise awareness about the conditions and fund research to find new therapies to reduce their impact and ultimately find a cure.

We provide the following core support services:

We raise vital awareness of myasthenia in the following ways:

Myaware is committed to effectively and responsibly funding research projects in the following areas:

In relation to myasthenia and related conditions.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

To support these aims we undertake fundraising activities and as always are hugely grateful to the many people who have supported us financially and of course, our team of volunteers who assist us with support and fundraising activities. As always, the challenge is to raise more unrestricted funds that can be used to finance the day to day running of the charity – postage, telephone, printing, online services and other core costs and we are particularly grateful to those who donate money that can be used in this way.

Grant Making Policy

The Charity may award grants to scientific research, specialist myasthenia nurses and training fellowships in support of its objective and activities.

Grants are awarded by the Board of Trustees when funds become available, and only when the reserves position of the charity mitigates the risk committing funds to projects running across several years.

Research grants are awarded following a rigorous peer review process under the control and supervision of the myaware Medical Committee.

Public Benefit

The charitable company has referred to the guidance contained in the Charity Commission’s general guidance on public benefit when reviewing its aims and objectives and in planning it’s future activities. In particular, the trustees always consider how planned activities will contribute to the aims and objectives they have set.

ACHIEVEMENT AND PERFORMANCE

How we spend our money

Support £635,542
Research £326,043
Awareness £80,503
Fundraising £10,329

Support Research Awareness Fundraising

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Support of Members

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Research

During this financial year myaware has funded four main research projects relating to myasthenia:

Deep Phenotyping Study

Professor Paul Maddison, Prof Sarosh Irani, Dr Phil Ambrose (Nottingham and Oxford University Hospitals NHS Trust):

This study looks at the detailed clinical and immunological phenotyping in MG from a new, large prospective study. Dr Ambrose has currently been unable to return to Oxford and remained in Nottingham, where he has been working in both Neurology and general medicine departments for the NHS, where demand is high for physicians to assist with Covid-19 patients. His myaware research grant has been suspended but will restart when the pandemic restrictions reduce and the research laboratories in Oxford can reopen. Myaware has subsequently approved a project extension due to these extenuating circumstances, Dr Ambrose will complete the Deep Phenotyping of MG project twelve months after he is able to restart.

The Ocular Myasthenia prospective study.

Dr Sui Wong (Moorfields Eye Hospital NHS Foundation Trust):

This study seeks to follow patients who present with purely ocular myasthenia to see if they progress to generalised myasthenia. Dr Wong has completed the recruitment for this project and looks forward to the second year follow up review to be completed in 2021. Thankfully this study has not been impacted at all by the pandemic.

Supersynapse project

Professor David Beeson and Mirela Panea (Oxford University Hospitals NHS Trust): With the March 2020 'lock down' all research experiments were stopped at short notice. The research team continued to analyse data working from home but clearly this delayed ongoing research. Work slowly resumed but only after extensive modification of laboratory layout and stringent social distancing; full occupation of the laboratory was only achieved in September 20. Despite the return of the undergraduate students to Oxford no cases of Covid have occurred among the 500 Institute researchers. The supersynapse project funded by myaware was obviously delayed but as all experimental work had finished Mirela Panae was able to analyse data and write her thesis. The team in Oxford is now looking at options for how to progress gene therapy for myasthenia, and a new NHS-funded Congenital Myasthenic Syndrome fellow will be taking this forward in the future.

The establishment and use of a UK database for myasthenic disorders

Dr Isabel Leite (Oxford ): started in January 2021 with the appointment of Dr Mohammad Asghraghi, on a three-year fellowship. Recruitment of patients has now started.

Dr Sui Wong (Moorfields) has also been awarded a small grant for one year, looking into “Understanding the pathophysiology of Ocular Myasthenia Gravis through Video Oculography”.

Future Project:

Myaware has recently awarded a research grant which due to the Covid pandemic has yet been able to start. Dr Saiju Jacob and Professor Wraith (Birmingham) will begin a project around “Developing antigen specific Immunotherapy in Myasthenia Gravis” which is likely to start in Summer 2021 and will run for three years and include the appointment of a clinical fellow.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Awareness

Myaware continues to work with umbrella organisations such as Neurological Alliance and Rare Disease UK to ensure that our member’s views and needs are represented. This year our Rare Disease Day appeal in February 2021 raised £4570. This appeal raised the awareness of the challenges faced by carers of those living with myasthenia and shared the story of Georgina who cares for her Husband Peter.

Unfortunately, we were unable to hold what should have been our second ‘My Awareness Month in May 2020 due to the impacts of the pandemic on our service delivery. We look forward to reinstating this in May 2021. However, our appeal in the month of May raised £2275. This raised awareness of the impacts of the pandemic on those living with myasthenia including feelings of vulnerability, isolation and the risk of job loss impacts on household finances.

Myaware continues to raise awareness of the myasthenias amongst healthcare professionals by providing information packs to neurology clinics across the UK.

In the absence of face-to-face meetings this year, our website and social media pages have become the most effective way in which to raise awareness of the myasthenia’s. With this in mind, myaware began a review of over 100 web pages on our national site, these are accessed by members, general public and healthcare professionals alike. Myaware also reviewed and modified our social media groups to ensure the highest security possible when seeking peer support.

As and when pandemic restrictions reduce, we look forward to once again attending annual conferences such as Omniamed, Royal College of GP events to raise much needed awareness amongst healthcare professionals.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Review of Fundraising Activities How we raised the money

Total £992,799

2020-21 was a universally challenging year for fundraisers across the sector, with events cancelled, personal financial circumstances impacted by COVID-19 and an inability to undertake public fundraising. However, the myaware Fundraising Team rose to the challenge early on to release restricted funds, adapt to digital ways of working and to innovate with new ideas.

Fundraising priorities altered throughout the year to adapt to the ever-changing global situation and to help the Fundraising Team to maximise opportunities in its midst.

During the year we were grateful to 20 people who remembered myaware in their wills. These bequests total £519,560.

Donations have dropped by 47% since last year to £83,601, thought to be a direct impact of the pandemic and the limited affordability of donors during uncertain times. This includes £8,532.78 received by regular givers over the course of the year. Also included is Facebook fundraising which has raised £13,841.53 in total, an increase of 17% from 2019-20.

Corporate donations and affinity programmes have raised £7688 during the period.

Trusts and grants income rose by 65% this year to £226,775. We continue to be very grateful for grants awarded by trusts and grant making bodies including the National Lottery Community fund which donated £106,773 from it’s Covid-19 impact fund.

Income received via events totalled £45,488. This includes £1773.53 raised by Lee and Noah’s 24 Christmas songs fundraiser which gained media coverage via Radio 5 Live.

A challenge arose at the end of 2020-21, when the Gambling Commission advised myaware that the McPherson Club needed to operate as a small society lottery. This involved changes to the way the McPherson Club operates, the work for which began in March 2021. The changes may impact participation in 2021-22, but it is hoped that the Club will be just as successful as during 2020-21.

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Myaware report of the Trustees and Financial Statements Year Ended 31 Myaware Report of the Trustees and Financial Statements for Year Ended 31st March 2019 [st] March 2021

REPORT OF THE TRUSTEES

Impact and Value

Myasthenia means muscle weakness. It affects the muscles that let you move but not the automatic ones like your heart that you don’t have to think about. Your brain tells your muscles to work, but the message doesn’t get through. Symptoms of myasthenia include muscle weakness which makes day to day activities like walking, smiling and talking very difficult. When swallowing and breathing are affected, this can lead to a medical emergency.

Myaware works tirelessly to provide accessible support services and information to everyone who receives a myasthenia diagnosis. We think there are approximately 12,000 people in the UK with myasthenia but there are currently no accurate published figures. Myaware supports approximately 25% of those who have received a myasthenia diagnosis and our aim is to raise more awareness to ensure that everyone who receives a diagnosis can access the support that they need to live well with myasthenia.

A myasthenia diagnosis can be life-changing and we aim to make life easier for these people and their families in the following ways:

Myaware is also committed to training clinicians of the future in the field of myasthenia and effectively communicating outcomes regarding current and future research opportunities with transparency.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

FUTURE DEVELOPMENTS, AMBITIONS AND LONG TERM STRATEGIES

Meeting increasing demands of support from people affected by myasthenia requires the charity to maintain its tight focus on cost control.

During the financial year myaware has been continuing to work hard to comply with the General Data Protection Regulations (GDPR).

In light of pandemic impacts on face-to-face support delivery, myaware has had to implement alternative support delivery method via online platforms such as Zoom. Myaware is committed to seeking member feedback regarding if and when to resume face-to-face support.

Myaware will continue to develop the support and information provided via our website and social media pages and groups.

Myaware aims to improve the awareness of our personal wellbeing services such as counselling and benefits & welfare advice to ensure our members are able to access with ease.

Myaware will continue to be committed to effective communication and engagement with our members.

Myaware will increase its work relating to raising awareness with healthcare professionals to improve accurate and timely diagnosis.

Myaware continues to be committed to representing our members at national forums such as Neurological Alliance and Rare Disease and to feedback updates and outcomes to our members.

Myaware is committed to effectively and responsibly utilising restricted research funding to support projects in the areas of cause, cure, prevention, treatment and general improvement of quality of life, in relation to myasthenia and related conditions.

REFERENCE AND ADMINISTRATIVE DETAILS

Myaware is a company limited by guarantee Registered Company Number in England and Wales: 3038358 Registered Charity Number in England and Wales: 1046443 Registered Charity Number in Scotland: SC044744

Registered Office

The College Business Centre Uttoxeter New Road Derby DE22 3WZ

Auditors

Johnson Tidsall Limited Chartered Accountants 81 Burton Road, Derby DE1 1TJ

Chief Executive Officer

Ms Sarah Cuthell

Bankers

Yorkshire Bank 28 St Peter’s Square, Derby, DE1 1SL

Company Secretary

Andrew Lutley A J Lutley also acts as solicitors to the charity: A J Lutley Solicitors, Springfield Rookery Hill, Ashtead Park, Ashtead KT21 1HY

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Trustees

Trevor Ranson – Chairman Andrew Robinson – Treasurer Bruce McColl Liz McSheehy Saiju Jacob Prof Bethan Peach Jon Rio

Maria Isabel Leite Penny Henrion Stuart Mann Rashmi Rungta (appointed 01.11.20) Huw Simmonds (appointed 01.11.20)

More information regarding Trustees can be found at: www.myaware.org/Pages/FAQs/Category/meet-the-board

STRUCTURE, GOVERNANCE AND MANAGEMENT

Myaware is company limited by guarantee, incorporated on 27[th] March 1995 (number 3038358), a registered charity in England and Wales (number 1046443) and a charity registered in Scotland (number SCO44744). It is governed by its Memorandum and Articles of Association adopted on 27[th] March 1995 and amended on 29[th] March 2018.

Subject to the provisions of the Companies Act 2006, the articles and to any directions given by special resolution, the business of the Company is managed by the trustees who may exercise all the powers of the Company. No alteration of the articles and no such direction shall invalidate any prior act of the trustees which would have been valid if that alteration had not been made or that direction had not been given. The powers given by this article shall not be limited by any special power given to the trustees by the articles and a meeting of trustees at which a quorum is present may exercise all the powers exercisable by the trustees.

The pay and remuneration of the senior managers of myaware is considered annually by the Trustees. The board of Trustees meets during the budget setting process to review salary levels, increment payments and inflation rises. The Trustees consider benchmark information relating to similar posts in similar organisations with the charity sector to assist with their decision.

We continue to work in partnership with other organisations with shared interest, including Neurological Alliance and Rare Disease UK.

Fundraising and Data Protection

Myaware operates within a strict fundraising policy and never uses telephone cold-calling; purchase address lists to write unsolicited letters, share the membership list to third parties or use any other methods or approaches that may be deemed as harassing or pressurising the recipient. We always respect the privacy of those who share their personal information with us.

Recruitment, appointment, induction and training of new trustees

Only members of the charity may become Trustees.

The Articles of Association allow the Trustees to appoint candidates to become a Trustee (and Director), either to fill a vacancy, or to strengthen the Board. Candidates become known to the Board through the personal knowledge or research of existing Trustees, by interested members of the organisation volunteering their services or, occasionally, as a result of advertising by the Board.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Before appointing a new Trustee, the Board will consider any perceived weaknesses in the current Board in terms of special abilities or experience which they believe to be lacking. A potential candidate will then be approached by the Chairman. Where possible the candidate will be invited to attend one or more meetings of the Board as a nonvoting observer. The candidate may then be appointed as a Trustee by a formal motion of the Board.

At present the Board does not operate a formal scheme for the training of Trustees. The Chairman takes care to ensure that they receive personal guidance on their responsibilities under the Charity’s Articles, and Charity and Company law. They may also seek advice and assistance from the Treasurer and the Company Secretary. The Board will keep under review the need for a formal training process, which must be consistent with the Charity’s financial and personal resources.

Medical Committee:

Finance Committee:

Prof Bethan Peach Andrew Robinson (Treasurer) Saiju Jacob Bruce McColl Maria Isabel Leite Jon Rio Liz McSheehy Stuart Mann Sarah Cuthell (CEO) Sarah Cuthell (CEO)

The Chief Executive Officer (CEO) is appointed by the Trustees to manage the day-to-day operations of the charity. The CEO reports to the Chair as her line manager.

RISK MANAGEMENT

A risk review of the overall organisation takes place annually. The review took place in October 2020 when the trustees assessed the major risks. Subsequently, systems and procedures have been established to manage those risks.

An annual budget proposal covering anticipated income and expenditure is created by the CEO and Finance Committee and reviewed by the Trustees. Once agreed, this forms the basis of the financial reserve held by the charity to ensure that commitments can be met. The Finance Committee review performance against the agreed budget on a monthly basis and the full Board considers this quarterly.

The board consider any variation to budget and if necessary, implement changes to mitigate any risks identified.

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

FINANCIAL REVIEW

Financial Position

The organisation reported a total net deficit of £23,835 compared with a total net surplus of £455,013 in the previous year.

Unrestricted funds were increased by £340,937 to £1,640,760

Restricted funds decreased by £364,772 to £1,062,289

Incoming Resources

Resources Expended

Total resources expended increased by £135,340 to £1,052,417.

Research costs were increased by £253,205 to £326,043 of which £271,537 was from restricted funds. The trustees have commenced the effective commitment of the significant legacy gift of £1.1 million from 2018 which is restricted to research.

Support costs were £79,977 down on previous year to £635,542 of which £203,147 was restricted.

Awareness costs reduced by £24,127 to £80,503. All costs were unrestricted.

Fundraising costs were reduced by £13,761 to £10,329.

Total funds stand at £2,703,049 compared with £2,726,884 last year.

Funds at the year-end were made up of unrestricted funds of £1,640,760 (2020: £1,299,823) and restricted funds of £1,062,289 (2020: £1,427,061).

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Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

REPORT OF THE TRUSTEES

Reserves Policy

Reserves are held to ensure that planned and committed expenditure over the next five years can be met. Unrestricted funds not invested in tangible and intangible fixed assets (the free reserves) are held to meet a minimum of six months budgeted expenditure and to enable the charity to fulfil its planned and committed expenditure over the next five years, which are not covered by restricted funds.

As of 31[st] March 2021, the six month’s budgeted unrestricted expenditure equates to £385,942 and the free reserves, which amount to £1,227,680 leave a surplus of £841,738 available for future expenditure. The surplus reflects legacies bequeathed. The charity cannot predict its legacy income year on year, and this can vary significantly. 2021 was a good year for legacies and this followed an exceptional year in 2020. The surplus on funds generated is helping to fund our current year.

Going concern

COVID-19

The current pandemic has had a negative effect on the charitable sector, and myaware is no exception to this. The Trustees have set a realistic budget for 2021/22 with a net deficit on unrestricted funds of £419,729. This has been calculated on a reduction in giving and no legacies receivable in the year.

To date the charity is operating within budget and has managed its administrative costs with office staff based at home until further release of restrictions.

The charity can utilise the surplus on unrestricted funds referred to in the above reserves policy. The liquidity position is monitored by the trustees on a monthly basis and the charity is continuing to operate within its reserves policy. On this basis the trustees consider the going concern basis for the preparation of these financial statements to be appropriate.

Principal Funding Sources

The charity benefitted during the year from a number of generous legacies amounting in total to £519,560.

Charitable trusts and grant making bodies provided £226,775, donations amounted to £83,601 and events generated £45,488.

Investment Policy and Objectives

Trustees agree on investments in compliance with the Articles of Association. The return on investment for the year was 0.5% (2020 0.9%). If the change in value of investments is included, the return is 2.4% (2020 0.6%). Note that these figures do not include interest earned on bank current accounts – such interest is identified in a line item in the notes to the accounts. The Trustees consider these results to be satisfactory in the current investment climate but aim to keep this under regular review.

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Myaware Report of the Trustees and Financial Statements for Year Ended 31st March 2020

REPORT OF THE TRUSTEES

Statement of Trustees Responsibilities

The Trustees (who are also the directors of Myaware Company Limited by Guarantee for the purposes of company law) are responsible for preparing the Report of the Trustees and the financial statements in accordance with the applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice) including Financial Reporting Standard 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland.

Company law requires the Trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application resources, including the income and expenditure of the charitable company for that period. In preparing those financial statements, the trustees are required to:

The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and to enable them to ensure that the financial statements comply with the Companies Act 2006, The Charities and Trustees Investment Act (Scotland) 2005 and The Charities Accounts (Scotland) Regulations 2006 (as amended). They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

In so far as the Trustees are aware:

The Trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

The report has been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies.

ON BEHALF OF THE BOARD:

Approved by order of the Board of Trustees on ___ and signed on it’s behalf by:

Mr Trevor Ranson – Chairman of the Board of Trustees

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REPORT OF THE INDEPENDENT AUDITORS TO THE MEMBERS OF MYAWARE COMPANY LIMITED BY GUARANTEE

Opinion

We have audited the financial statements of Myaware Company Limited by Guarantee (the 'charitable company') for the year ended 31 March 2021 which comprise the Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice), including Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland'.

In our opinion the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditors' responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC's Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

Other information

The trustees are responsible for the other information. The other information comprises the information included in the Annual Report, other than the financial statements and our Report of the Independent Auditors thereon.

Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

In connection with our audit of the financial statements, our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements, or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard.

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

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REPORT OF THE INDEPENDENT AUDITORS TO THE MEMBERS OF MYAWARE COMPANY LIMITED BY GUARANTEE

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the Report of the Trustees.

We have nothing to report in respect of the following matters where the Companies Act 2006 requires us to report to you if, in our opinion:

Responsibilities of trustees

As explained more fully in the Statement of Trustees' Responsibilities, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

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REPORT OF THE INDEPENDENT AUDITORS TO THE MEMBERS OF MYAWARE COMPANY LIMITED BY GUARANTEE

Our responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue a Report of the Independent Auditors that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below:

In identifying and assessing the risks of material misstatement in respect of irregularities, including fraud and noncompliance with laws and regulations, we considered the following:

-The nature and control environment of the charity

-Our discussions with management and governance including whether they had knowledge of any actual, suspected or alleged fraud

-The internal controls to mitigate the risks of fraud

Following our review, we have identified the following areas which are deemed to have the highest potential for fraud or material misstatement within the financial statements:

We also considered any laws and regulations that were central to the operation of the charity including charity law, employment law and health and safety.

The following procedures were undertaken in respect of the risks where we identified the potential for material misstatement:

Income from donations and legacies was considered a risk due to the volume and nature of these transactions. Income may be pledged but there may be a timing difference between commitment and receipt. The overall income of the charity could be materially understated.

Income transaction testing was preformed to ensure completeness of income. Post year end donations and legacies were reviewed to ensure that income was recognised in the correct accounting period in accordance with the charity's accounting policy.

In respect of legacies, we also tested the accuracy of estimates by reviewing correspondence obtained from solicitors and executors which included the wills and statements of assets and liabilities of the deceased person's estate and where possible agreed to receipts after date.

Restricted funds in respect of income were tested donor correspondence to ensure that the restrictions imposed were adhered to by the charity in expending those funds. This included vouching a sample of expenditure. In addition, we tested unrestricted income mindful of any non-recognition of restricted funds.

The testing of committed expenditure in relation to grants awarded by the charity in respect of research was tested by obtaining copies of the formal grant offer and agreeing the terms to the creditor provision in the financial statements. Trustees' board meeting minutes were reviewed, and all commitments noted in the year were agreed to the financial statements to ensure completeness.

A sample of journal entries were tested for appropriateness and enquiries made of management as to the procedures in place for posting journal entries. During our audit we considered any large, unusual journals or transactions outside the normal course of business which were highlighted as a result of our testing.

Page 18

REPORT OF THE INDEPENDENT AUDITORS TO THE MEMBERS OF MYAWARE COMPANY LIMITED BY GUARANTEE

We reviewed the minutes of trustees' board meetings and controls put in place by the board of trustees including a review of their risk assessment.

At the planning stage we discussed with management any laws and regulations which were central to the operation of the charity.

The financial statements were reviewed alongside our disclosure checklists to identify any unusual or unexpected relationships or any areas of non-compliance. Discussions were held with management where it was considered additional disclosures were required.

We remained alert to any indications of fraud, material misstatement or non-compliance with laws and regulations throughout the audit including those relating to the financial statements.

A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council's website at www.frc.org.uk/auditorsresponsibilities. This description forms part of our Report of the Independent Auditors.

Use of our report

This report is made solely to the charitable company's members, as a body, in accordance with Chapter 3 of Part 16 of the ���������������������������������������������������� rustees, as a body, in accordance with section 44 (1) (c) of the Charities and Trustee Investment Scotland Act 2005 and regulation 10 of the Charities Accounts (Scotland Regulations 2006 (as amended). Our audit work has been undertaken so that we might state to the charitable company's members those matters we are required to state to them in an auditors' report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's members as a body, for our audit work, for this report, or for the opinions we have formed.

David Mellor FCA (Senior Statutory Auditor) for and on behalf of Johnson Tidsall Limited Chartered Accountants & Statutory Auditor 81 Burton Road Derby Derbyshire DE1 1TJ Date: .............................................

Page 19

MYAWARE COMPANY LIMITED BY GUARANTEE

STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING AN INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 31 MARCH 2021

Notes
INCOME AND ENDOWMENTS FROM
Donations and legacies
3
Other trading activities
4
Investment income
5
Total
EXPENDITURE ON
Raising funds
6
Charitable activities
7
Research
Support
Awareness
Total
Net gains/(losses) on investments
NET INCOME/(EXPENDITURE)
Transfers between funds
21
Net movement in funds
RECONCILIATION OF FUNDS
Total funds brought forward
TOTAL FUNDS CARRIED FORWARD		 Unrestricted
fund
£
673,194
125,725
10,060
808,979
10,329
54,506
432,395
80,503
577,733
35,783
267,029
73,908
340,937
1,299,823
1,640,760		 Restricted
funds
£
2,627
181,193
-
183,820
-
271,537
203,147
-
474,684
-
(290,864)
(73,908)
(364,772)
1,427,061
1,062,289		 2021
Total
funds
£
675,821
306,918
10,060
992,799
10,329
326,043
635,542
80,503
1,052,417
35,783
(23,835)
-
(23,835)
2,726,884
2,703,049		 2020
Total
funds
£
1,074,981
284,096
19,354
1,378,431
24,090
72,838
715,519
104,630
917,077
(6,341)
455,013
-
455,013
2,271,871
2,726,884

Page 20

MYAWARE COMPANY LIMITED BY GUARANTEE COMPANY NUMBER 03038358 BALANCE SHEET

31 MARCH 2021

Notes
FIXED ASSETS
Intangible assets
14
Tangible assets
15
Investments
16
CURRENT ASSETS
Stocks
17
Debtors
18
Cash at bank and in hand
CREDITORS
Amounts falling due within one year
19
NET CURRENT ASSETS
TOTAL ASSETS LESS CURRENT LIABILITIES
CREDITORS
Amounts falling due after more than one year
20
NET ASSETS
FUNDS
21
Unrestricted funds
Restricted funds
TOTAL FUNDS		 Unrestricted
fund
£
23,477
3,661
211,304
238,442
2,138
859,595
556,180
1,417,913
(15,595)
1,402,318
1,640,760
-
1,640,760		 Restricted
funds
£
-
-
-
-
-
-
1,483,994
1,483,994
(257,805)
1,226,189
1,226,189
(163,900)
1,062,289		 2021
Total
funds
£
23,477
3,661
211,304
238,442
2,138
859,595
2,040,174
2,901,907
(273,400)
2,628,507
2,866,949
(163,900)
2,703,049
1,640,760
1,062,289
2,703,049		 2020
Total
funds
£
34,081
7,173
175,521
216,775
3,629
863,397
1,852,504
2,719,530
(190,708)
2,528,822
2,745,597
(18,713)
2,726,884
1,299,823
1,427,061
2,726,884

These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.

The financial statements were approved by the Board of Trustees and authorised for issue on ............................................. and were signed on its behalf by:

----- Start of picture text -----
.............................................
Mr T Ranson - Trustee
----- End of picture text -----

Page 21

MYAWARE COMPANY LIMITED BY GUARANTEE

CASH FLOW STATEMENT FOR THE YEAR ENDED 31 MARCH 2021

Notes
Cash flows from operating activities
Cash generated from operations
1
Net cash provided by/(used in) operating activities
Cash flows from investing activities
Purchase of intangible fixed assets
Purchase of tangible fixed assets
Interest received
Net cash (used in)/provided by investing activities
Change in cash and cash equivalents in
the reporting period
Cash and cash equivalents at the
beginning of the reporting period
Cash and cash equivalents at the end of
the reporting period		 2021
£
195,137
195,137
(14,759)
(2,768)
10,060
(7,467)
187,670
1,852,504
2,040,174		 2020
£
(264,411)
(264,411)
-
(3,353)
19,354
16,001
(248,410)
2,100,914
1,852,504

Page 22

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE CASH FLOW STATEMENT FOR THE YEAR ENDED 31 MARCH 2021

1. RECONCILIATION OF NET (EXPENDITURE)/INCOME TO NET CASH FLOW FROM OPERATING ACTIVITIES

Net (expenditure)/income for the reporting period (as per the
Statement of Financial Activities)
Adjustments for:
Depreciation charges
(Gain)/losses on investments
Interest received
Decrease in stocks
Decrease/(increase) in debtors
Increase/(decrease) in creditors
Net cash provided by/(used in) operations		 2021
£
(23,835)
31,643
(35,783)
(10,060)
1,491
3,802
227,879
**195,137 **		 2020
£
455,013
33,930
6,341
(19,354)
3,752
(659,943)
(84,150)
(264,411)

2. ANALYSIS OF CHANGES IN NET FUNDS

Net cash
Cash at bank and in hand
Total		 At 1/4/20
£
1,852,504
1,852,504
1,852,504		 Cash flow
£
187,670
187,670
187,670		 At 31/3/21
£
2,040,174
2,040,174
2,040,174

Page 23

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

1. STATUTORY INFORMATION

Myaware is a charitable company, registered in England and Wales and Scotland. The charitable company's registered company number, registered charity numbers, registered office address and business address can be found in the reference and administrative details of the Report of the Trustees.

2. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' ,the Companies Act 2006 and the Charities and Trustee Investment (Scotland) Act 2005. The financial statements have been prepared under the historical cost convention, with the exception of investments which are included at market value, as modified by the revaluation of certain assets.

The currency basis for the preparation of these financial statements is pound sterling (£).

Going concern

The trustees regularly monitor the charity's reserves policy and risk assessment. The adverse effects of the Coronavirus in 2020/21 have been evaluated by the trustees and a realistic budget for 2021/22 has been prepared. Liquid funds and cash flow are monitored on a monthly basis. To date, no material uncertainties exist that would affect the preparation of the financial statements on a going concern basis.

Significant judgements and estimates

The following judgements (apart from those involving estimates) have been made in the process of applying the charitable company's accounting policies that have had the most significant effect on amounts recognised in the financial statements:

Legacies - when calculating amounts due on legacies, management considers the wills of the deceased, executors accounts and notifications received from executors.

Grants - when calculating grant commitments, management considers the nature of the grants as being within the charity's objectives and the possible future benefits for people affected by myasthenia.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received, and the amount can be measured reliably.

Donated services and goods are recognised as income when the charity has control over them, the economic benefit is probable and can be measured reliably. In accordance with the Charities SORP (FRS102), the volunteer time of Support Groups is not recognised. Information about their contribution is provided in the Trustees' Annual Report.

For donations to be recognised the charity will have been notified of the amounts and the settlement date. If there are conditions attached to the donation and this requires a level of performance before entitlement can be obtained, then income is deferred until those conditions are fully met or the fulfilment of those conditions is within the control of the charity, and it is probable that they will be fulfilled.

For legacies, entitlement is the earlier of the charity being notified of an impending distribution or the legacy being received. At this point income is recognised.

Income from trading activities includes income earned from fundraising events and trading activities to raise funds for the charity. Income is received in exchange for supplying goods and services in order to raise funds and is recognised when entitlement has occurred.

Investment income is earned through holding assets for investment purposes such as shares and bank deposit accounts. It includes dividends and interest. It is included when the amount can be measured reliably.

Page 24

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

2. ACCOUNTING POLICIES - continued

Grants

Government grants are recognised at the fair value of the asset received or receivable when there is reasonable assurance that the charity will comply with conditions attaching to them and the grants will be received using the accrual model.

Debtors

Other debtors are recognised at the settlement amount due. Prepayments are valued at the amount prepaid.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings, they have been allocated to activities on a basis consistent with the use of resources.

Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.

Allocation and apportionment of support costs and governance

Resources expended are allocated to the particular activity where the cost relates directly to that activity. However, the cost of overall direction and administration on each activity, including the salary and overhead costs of the general office and regional staff, is apportioned on the following bases which are an estimate, based on staff time, of the amount attributable to each activity:

Percentage
allocation
Research 11%
Support 74%
Awareness 15%

Intangible fixed assets

Amortisation is calculated so as to write off the cost of an asset, less its estimated residual value, over the useful economic life of that asset as follows:

Computer software - over 3 years straight line

Tangible fixed assets

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Fixtures and fittings - 20% on cost
Computer equipment - 33% on cost

Tangible fixed assets are stated at cost or deemed costs less accumulated depreciation. Cost includes costs directly attributable to making the asset capable of operating as intended.

Individual fixed assets costing £500 or more are capitalised at cost.

Investments

Investments are valued at market value which is deemed to be fair value. Movements in market value are reflected in the statement of financial activities as a net gain/(loss).

Stocks

Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.

Stock is valued on a first in first out basis.

Taxation

The charity is exempt from corporation tax on its charitable activities.

Page 25

Myaware Report of the Trustees and Financial Statements for Year Ended 31st March 2020

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

2. ACCOUNTING POLICIES - continued

Fund accounting

The charitable company has both restricted and unrestricted funds. All funds are used to benefit and promote its charitable objects.

Restricted funds are those donated for use in a particular area or for specific purposes, the use of which is restricted to that area or purpose and the restriction means that the funds can only be used for specific projects or activities.

When donors specify that donations and grants are for particular purposes which do not amount to pre-conditions regarding entitlement, this income is included in incoming resources of restricted funds when receivable. The relevant expenditure is then matched as restricted expenditure.

Unrestricted funds are general funds that are available for use at the trustees' discretion in furtherance of any objectives of the charity.

Designated funds are unrestricted funds set aside at the discretion of the trustees for specific purposes.

Pension costs and other post-retirement benefits

The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.

Operating lease agreements

Rentals applicable to operating leases where substantially all of the benefits and risks of ownership remain with the lessor are charged to the SOFA on a straight line basis over the period of the lease.

Reserves

The charitable company maintains a level of reserves required to fulfil its objectives. The trustees monitor reserves at regular meetings.

Financial instruments

Financial instruments are classified and accounted for, according to the substance of the contractual arrangement, as either financial assets, financial liabilities or equity instruments. An equity instrument is any contract that evidences a residual interest in the assets of the company after deducting all of its liabilities.

3. DONATIONS AND LEGACIES

DONATIONS AND LEGACIES
Donations
Legacies
Grants
In Memoriam		 2021
£
83,601
519,560
29,355
43,305
675,821		 2020
£
157,906
888,879
-
28,196
1,074,981

The charity benefits greatly from the involvement of many helpers and volunteers, details of which are given in our annual report. In accordance with FRS102 and the Charities SORP (FRS102), the economic contribution of volunteers is not recognised in these financial statements.

Grants received, included in the above, are as follows:

Job retention scheme
Coronavirus retention scheme		 2021
£
29,355		 2020
£
-

Page 2 46

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

4. OTHER TRADING ACTIVITIES

Affinity programmes
Appeals
Collections
Corporate
Grants
Lotteries
National events
Regional events
Sales of merchandise
Trusts		 2021
£
623
15,978
921
7,065
140,428
5,382
9,225
36,263
4,686
86,347
306,918		 2020
£
190
9,127
4,609
6,915
63,831
18,763
17,567
81,973
7,223
73,898
284,096

5. INVESTMENT INCOME

Deposit account interest
Current account interest
Dividends on shares and other investments
RAISING FUNDS
Raising donations and legacies
Merchandise
Events
Appeal mailings
Lottery		 2021
£
3,815
150
6,095
10,060
2021
£
2,976
3,357
349
3,647
10,329		 2020
£
11,971
690
6,693
19,354
2020
£
4,768
6,160
1,410
11,752
24,090

6. RAISING FUNDS

Raising donations and legacies

7. CHARITABLE ACTIVITIES COSTS

Research
Support
Awareness		 Direct
Costs (see
note 8)
£
308,259
498,220
56,250
862,729		 Support
costs (see
note 9)
£
17,784
137,322
24,253
179,359		 Totals
£
326,043
635,542
80,503
1,042,088

Page 27

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

8. DIRECT COSTS OF CHARITABLE ACTIVITIES

Staff costs
Medical research
Myaware Kids
Travel and miscellaneous
MyNews & member communications
Meetings and conferences
Medical education programme		 2021
£
580,867
267,677
-
5,600
7,158
1,427
-
862,729		 2020
£
533,944
(590)
27,530
71,222
14,007
51,294
750
698,157

Grants payable during the year were as follows:

2021
£
Commitments as at 1 April 2020
184,343
Commitments made in the year
275,772
Commitments released in the year
(8,095)
Grants paid during the year
(30,315)
Commitments as at 31 March 2021
421,705
SUPPORT COSTS
Governance
Management
costs
£
£
Research
16,166
1,618
Support
126,433
10,889
Awareness
22,045
2,208
164,644
14,715		 2020
£
254,013
-
(590)
(69,080)
184,343
Totals
£
17,784
137,322
24,253
179,359

9. SUPPORT COSTS

Support costs, included in the above, are as follows:

Management

Rental of premises
Utilities and insurance
Office equipment
Printing, postage and
stationery
Photocopier costs
Support website
IT support & software
H R costs
General expenses
Bank charges
Amortisation of intangible
fixed assets
Carried forward		 Research
£
1,789
1,880
221
1,285
111
3,351
3,197
555
124
173
2,789
15,475		 Support
Awareness
£
£
19,532
2,439
12,811
2,564
1,793
301
8,643
1,752
747
151
22,541
4,569
31,216
4,360
3,733
756
837
170
1,164
236
18,769
3,805
121,786
21,103		 2021
Total
activities
£
23,760
17,255
2,315
11,680
1,009
30,461
38,773
5,044
1,131
1,573
25,363
158,364		 2020
Total
activities
£
23,796
13,249
3,338
19,228
1,596
18,322
49,421
6,045
1,291
2,709
26,971
165,966

Page 28

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

9. SUPPORT COSTS - continued

Management - continued

Brought forward
Depreciation of tangible
fixed assets
Governance costs
Trustees' expenses
Auditors' remuneration
Legal and professional fees		 Research
£
15,475
691
16,166
Research
£
-
873
745
1,618		 Support
Awareness
£
£
121,786
21,103
4,647
942
126,433
22,045
Support
Awareness
£
£
-
-
5,876
1,192
5,013
1,016
10,889
2,208		 2021
Total
activities
£
158,364
6,280
164,644
2021
Total
activities
£
-
7,941
6,774
14,715		 2020
Total
activities
£
165,966
6,959
172,925
2020
Total
activities
£
2,624
7,224
12,057
21,905		 2020
Total
activities
£
165,966
6,959
172,925
2020
Total
activities
£
2,624
7,224
12,057
21,905
21,905

Governance costs

10. NET INCOME/(EXPENDITURE)

Net income/(expenditure) is stated after charging/(crediting):

Auditors' remuneration
Depreciation - owned assets
Computer software amortisation		 2021
£
7,941
6,280
25,363		 2020
£
7,224
6,959
26,971

11. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 31 March 2021 nor for the year ended 31 March 2020.

Trustees' expenses

Trustees' expenses
2021 2020
£ £
Trustees' expenses - 2,624

During the year no trustee (2020: 11) received reimbursement of their expenses for attending meetings.

Page 29

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

12. STAFF COSTS

Wages and salaries
Social security costs
Other pension costs		 2021
£
509,640
36,906
34,321
580,867		 2020
£
468,190
34,846
30,908
533,944

The average number of full time equivalent employees during the year was 19 (2020: 17).

The average monthly number of employees during the year was as follows:

Fundraising, support and awareness
Management and operations of the charity		 2021
20
4
24		 2020
18
4
22

No employees received emoluments in excess of £60,000.

The key management personnel of the charity comprise the Chief Executive Officer. The total employee benefits of the key management personnel of the charity amounted to £61,158 including pension contributions (2020: £58,207).

13. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES

INCOME AND ENDOWMENTS FROM
Donations and legacies
Other trading activities
Investment income
Total
EXPENDITURE ON
Raising funds
Charitable activities
Research
Support
Awareness
Total
Net gains/(losses) on investments
NET INCOME/(EXPENDITURE)
RECONCILIATION OF FUNDS
Total funds brought forward		 Unrestricted
fund
£
1,013,425
175,014
19,354
1,207,793
23,484
72,690
532,971
95,776
724,921
(6,341)
476,531
823,292		 Restricted
funds
£
61,556
109,082
-
170,638
606
148
182,548
8,854
192,156
-
(21,518)
1,448,579		 Total
funds
£
1,074,981
284,096
19,354
1,378,431
24,090
72,838
715,519
104,630
917,077
(6,341)
455,013
2,271,871

Page 30

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

13.
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - continued
Unrestricted
Restricted
fund
funds
£
£
TOTAL FUNDS CARRIED FORWARD
1,299,823
1,427,061
14.
INTANGIBLE FIXED ASSETS
COST
At 1 April 2020
Additions
At 31 March 2021
AMORTISATION
At 1 April 2020
Charge for year
At 31 March 2021
NET BOOK VALUE
At 31 March 2021
At 31 March 2020
15.
TANGIBLE FIXED ASSETS
Fixtures
and
Computer
fittings
equipment
£
£
COST
At 1 April 2020
13,247
38,995
Additions
-
2,768
At 31 March 2021
13,247
41,763
DEPRECIATION
At 1 April 2020
12,930
32,139
Charge for year
317
5,963
At 31 March 2021
13,247
38,102
NET BOOK VALUE
At 31 March 2021
-
3,661
At 31 March 2020
317
6,856		 Total
funds
£
2,726,884
Computer
software
£
80,977
14,759
95,736
46,896
25,363
72,259
23,477
34,081
Totals
£
52,242
2,768
55,010
45,069
6,280
51,349
3,661
7,173

Page 31

MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

16. FIXED ASSET INVESTMENTS

FIXED ASSET INVESTMENTS
Listed
investments
£
MARKET VALUE
At 1 April 2020 175,521
Revaluations 35,783
At 31 March 2021 **211,304 **
NET BOOK VALUE
At 31 March 2021 **211,304 **
At 31 March 2020 175,521

There were no investment assets outside the UK.

The historical cost of fixed asset investments as at 31 March 2021 was £89,858 (2020: £89,858).

17. STOCKS

Finished goods
18.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Other debtors
Prepayments and accrued income		 2021
£
2,138
2021
£
848,353
11,242
859,595		 2020
£
3,629
2020
£
850,225
13,172
863,397

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MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

19. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

Other creditors
Committed grants
Accruals and deferred income
CREDITORS: AMOUNTS FALLING DUE AFTER MORE THAN ONE YEAR
Committed grants
MOVEMENT IN FUNDS
Net
movement
At 1/4/20
in funds
£
£
Unrestricted funds
General fund
1,299,823
267,029
Restricted funds
Research
1,204,757
(270,537)
Support
220,117
(21,677)
Awareness
2,187
1,350
1,427,061
(290,864)
TOTAL FUNDS
2,726,884
**(23,835) **		 2021
£
6,864
257,805
8,731
273,400
2021
£
163,900
Transfers
between
funds
£
73,908
(73,908)
-
-
(73,908)
-		 2020
£
5,604
165,630
19,474
190,708
2020
£
18,713
At
31/3/21
£
1,640,760
860,312
198,440
3,537
1,062,289
2,703,049

20. CREDITORS: AMOUNTS FALLING DUE AFTER MORE THAN ONE YEAR

21. MOVEMENT IN FUNDS

Net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Research
Support
Awareness
TOTAL FUNDS		 Incoming
resources
£
808,979
1,000
181,470
1,350
183,820
992,799		 Resources
expended
£
(577,733)
(271,537)
(203,147)
-
(474,684)
(1,052,417)		 Gains and
losses
£
35,783
-
-
-
-
35,783		 Movement
in funds
£
267,029
(270,537)
(21,677)
1,350
(290,864)
**(23,835) **

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MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

21. MOVEMENT IN FUNDS - continued

Comparatives for movement in funds

Unrestricted funds
General fund
Restricted funds
Research
Support
Awareness
TOTAL FUNDS		 At 1/4/19
£
823,292
1,157,446
272,731
18,402
1,448,579
2,271,871		 Net
movement
in funds
£
476,531
47,311
(52,614)
(16,215)
(21,518)
455,013		 At
31/3/20
£
1,299,823
1,204,757
220,117
2,187
1,427,061
2,726,884

Comparative net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Research
Support
Awareness
TOTAL FUNDS		 Incoming
resources
£
1,207,793
47,459
130,540
(7,361)
170,638
1,378,431		 Resources
expended
£
(724,921)
(148)
(183,154)
(8,854)
(192,156)
(917,077)		 Gains and
losses
£
(6,341)
-
-
-
-
(6,341)		 Movement
in funds
£
476,531
47,311
(52,614)
(16,215)
(21,518)
455,013

A current year 12 months and prior year 12 months combined position is as follows:

Unrestricted funds
General fund
Restricted funds
Research
Support
Awareness
TOTAL FUNDS		 At 1/4/19
£
823,292
1,157,446
272,731
18,402
1,448,579
2,271,871		 Net
movement
in funds
£
743,560
(223,226)
(74,291)
(14,865)
(312,382)
431,178		 Transfers
between
funds
£
73,908
(73,908)
-
-
(73,908)
-		 At
31/3/21
£
1,640,760
860,312
198,440
3,537
1,062,289
2,703,049

Page 34

MYAWARE COMPANY LIMITED BY GUARANTEE NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

21. MOVEMENT IN FUNDS - continued

A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Research
Support
Awareness
TOTAL FUNDS		 Incoming
resources
£
2,016,772
48,459
312,010
(6,011)
354,458
2,371,230		 Resources
expended
£
(1,302,654)
(271,685)
(386,301)
(8,854)
(666,840)
(1,969,494)		 Gains and
losses
£
29,442
-
-
-
-
29,442		 Movement
in funds
£
743,560
(223,226)
(74,291)
(14,865)
(312,382)
431,178

Restricted funds

Restricted funds comprise:

Research

Restricted funds in this class will be applied to:

a. Scientific and clinical research into the causes, disease mechanisms, diagnosis and epidemiology of Myasthenia Gravis, Lambert-Eaton Myasthenic Syndrome, Congenital Myasthenic Syndrome and other similar disorders of the Neuro-Muscular Junction.

b. The provision of equipment and facilities to support (a).

c. Provision of specialist medical facilities (including staff) where the Trustees consider that such provision has a significant impact on the effectiveness of (a).

Support

Restricted funds in this class will be applied to:

d. Development of new support groups of the charity, to foster the health and welfare of myasthenics and their families and carers.

e. Organisation of Regional Conferences to encourage mutual support between members, myasthenics, and support groups.

f. In exceptional circumstances - provision of specialist medical facilities (including staff) where the Trustees consider that such provision would have a major impact on the health and welfare of myasthenics, and alternative funding cannot be obtained.

Awareness

Restricted funds in this class will be applied to:

g. Preparation, publication and distribution of information about Myasthenia Gravis, Lambert-Eaton Myasthenic Syndrome, Congenital Myasthenic Syndrome and other similar disorders of the Neuro-Muscular Junction. (Including information on their causes, diagnosis and treatment, and issues concerning the lifestyle and quality-oflife of patients with these disorders). Publication and distribution includes development and maintenance of the ��������������������������������

h. Publicity and promotion of events to foster awareness, in the general public, national and local government, and other bodies, of these disorders, and the problems experienced by patients and their families and carers.

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MYAWARE COMPANY LIMITED BY GUARANTEE

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 31 MARCH 2021

21. MOVEMENT IN FUNDS - continued

i. Activities to foster awareness in the medical profession of these disorders, and the problems experienced by patients and their families and carers.

j. Activities to foster awareness in the medical profession of the current state of best medical practice in the diagnosis and treatment of these disorders.

k. Regional and national events to disseminate information about these disorders to myasthenics, their families and carers (including information about current and planned future medical and scientific research).

For presentation purposes all restricted income receivable is allocated to one of the above three categories that best describes its restriction.

A detailed breakdown of the income and expenditure allocated to these categories is available on request.

Transfers between funds

During the year the trustees sanctioned the use of restricted funds for research project Deep Phenotyping and Immune Profiling in Myasthenia Gravis. The project had originally been committed from unrestricted funds. A transfer of £73,908 has been made from restricted to unrestricted funds being the creditor balance on the project as at 31 March 202. as at 31 March 2021.

22. EMPLOYEE BENEFIT OBLIGATIONS

The total contribution paid to Personal Pension Plans in the year for certain employees amounted to £34,321 (2020: £30,908).

23. OTHER FINANCIAL COMMITMENTS

At the year end the charity had financial commitments in respect of rent amounting to £23,760 (2020: £23,760) and other leases amounting to £5,016 (2020: £119).

24. RELATED PARTY DISCLOSURES

During the year the charity paid £2,425 (2020: £2,276) for legal services performed by Andrew Lutley, Company Secretary.

The amount donated by trustees in the year in respect of travel claims amounted to £nil. (2020: £922). (2020: £922).

25. ULTIMATE CONTROLLING PARTY

The charity is controlled by its Board of Trustees.

Page 36

MYAWARE COMPANY LIMITED BY GUARANTEE

DETAILED STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MARCH 2021

INCOME AND ENDOWMENTS
Donations and legacies
Donations
Legacies
Grants
In Memoriam
Other trading activities
Affinity programmes
Appeals
Collections
Corporate
Grants
Lotteries
National events
Regional events
Sales of merchandise
Trusts
Investment income
Deposit account interest
Current account interest
Dividends on shares and other investments
Total incoming resources
EXPENDITURE		 2021
£
83,601
519,560
29,355
43,305
675,821
623
15,978
921
7,065
140,428
5,382
9,225
36,263
4,686
86,347
306,918
3,815
150
6,095
10,060
992,799
2,976
3,357
349
3,647
10,329
509,640
36,906
34,321
267,677
-
5,600
854,144		 2020
£
157,906
888,879
-
28,196
1,074,981
190
9,127
4,609
6,915
63,831
18,763
17,567
81,973
7,223
73,898
284,096
11,971
690
6,693
19,354
1,378,431
4,768
6,160
1,410
11,752
24,090
468,190
34,846
30,908
(590)
27,530
71,222
632,106
Raising donations and legacies
Raising donations and legacies

Merchandise

Merchandise
Events
Events
Appeal mailings
Appeal mailings

Lottery
Lottery
Charitable activities
Wages
Social security
Pensions
Medical research
Myaware Kids
Travel and miscellaneous
Carried forward

Page 37

MYAWARE COMPANY LIMITED BY GUARANTEE

DETAILED STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MARCH 2021

Charitable activities
Brought forward
MyNews & member communications
Meetings and conferences
Medical education programme
Support costs
Management
Rental of premises
Utilities and insurance
Office equipment
Printing, postage and stationery
Photocopier costs
Support website
IT support & software
H R costs
General expenses
Bank charges
Amortisation of intangible fixed assets
Depreciation of tangible fixed assets
Governance costs
Trustees' expenses
Auditors' remuneration
Legal and professional fees
Total resources expended
Net (expenditure)/income before gains and
losses
Realised recognised gains and losses
Realised gains/(losses) on fixed asset
investments
Net (expenditure)/income		 2021
£
854,144
7,158
1,427
-
862,729
23,760
17,255
2,315
11,680
1,009
30,461
38,773
5,044
1,131
1,573
25,363
6,280
164,644
-
7,941
6,774
14,715
1,052,417
(59,618)
35,783
**(23,835) **		 2020
£
632,106
14,007
51,294
750
698,157
23,796
13,249
3,338
19,228
1,596
18,322
49,421
6,045
1,291
2,709
26,971
6,959
172,925
2,624
7,224
12,057
21,905
917,077
461,354
(6,341)
455,013

Page 38

Myaware report of the Trustees and Financial Statements Year Ended 31[st] March 2021

The College Business Centre Uttoxeter New Road, Derby DE22 3WZ Tel: 01332 290219 Email: info@myaware.org Web: www.myaware.org

Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England & Wales)

Page 41