# MYAWARE

## Details

- **Country:** England & Wales
- **Charity number:** 1046443
- **Other names:** MYASTHENIA GRAVIS ASSOCIATION, MYAWARE
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** May 19, 1995
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1046443


## Contact

- **Address:** myaware, College Business Centre, The College, Uttoxeter New Road, DERBY
- **Postcode:** DE22 3WZ
- **Phone:** 01332290219
- **Email:** info@myaware.org
- **Website:** www.myaware.org



## Activities

**Objects:** TO PROMOTE ANY CHARITABLE PURPOSES FOR THE BENEFIT OF THOSE PERSONS WHO SUFFER FROM MYASTHENIA GRAVIS, AND IN PARTICULAR BUT WITHOUT LIMITATION TO RELIEVE SICKNESS, HARDSHIP AND DISTRESS AND PROVIDE COMFORT AND SUPPORT TO PEOPLE SUFFERING FROM MYASTHENIA GRAVIS AND TO PROMOTE AND ENCOURAGE EDUCATION AND RESEARCH INTO MYASTHENIA GRAVIS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.

**Activities:** The charity provides local and national support, advice and information for people affected by myasthenic syndromes (Myasthenia Gravis; Ocular Myasthenia Gravis; Congenital Myasthenic Syndromes and Lambert Eaton Myasthenic Syndrome) and their families.  It raises medical and public awareness of these conditions and funds research to reduce their impact and ultimately a find cure.

**Area of benefit:** IN PRACTICE, UNITED KINGDOM AND REPUBLIC OF IRELAND




## Classification

- **How:** Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £449135 | £1054088 | — | — |
| March 31, 2024 | £1178400 | £1068135 | £2140950 | 18 |
| March 31, 2023 | £329444 | £716633 | — | — |
| March 31, 2022 | £706904 | £1022153 | £2406293 | 19 |
| March 31, 2021 | £992799 | £1052417 | £2703049 | 24 |



## Trustees

- ANDREW JOHN ROBINSON
- Claire Wen — appointed Feb. 19, 2024
- DR Bethan Lang — appointed Dec. 10, 2013
- Dr Channa Hewamadduma — appointed July 24, 2024
- Dr Katherine Dodd — appointed July 25, 2025
- Dr SAIJU JACOB — appointed March 29, 2018
- Jon Rio — appointed Sept. 1, 2016
- Rashmi Rungta — appointed Nov. 1, 2020
- Sara Jones — appointed May 8, 2024