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2024-03-31-accounts

ANNUAL REPORT AND ACCOUNTS 31 March 2024

Company Registration Number 02908933 Charity Registration Number 1040650

Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

Contents Page
Charity information 1
Trustees’ Annual Report 2
Statement of directors’ responsibilities 12
Independent Examiner Report 14
Funds Statements:-
Statement of Financial Activities Statement of Financial Activities 16
Prior Year statement 17
Statement of total recognised
gains and losses 18
Income and Expenditure account 19
Balance sheet 20
Notes to the accounts 22

Charity information

The Trustees present their Report and Accounts for the year ended 31 March 2024, which also comprises the Directors’ Report required by the Companies Act 2006.

The charity name

The legal name of the charity is:Bath Institute for Rheumatic Diseases. The charity is also known by its operating name, BIRD.

The charity’s areas of operation and UK charitable registration.

The charity is registered in England & Wales with the Charity Commission in England & Wales (CCEW) with charity number 1040650. The charity does not operate in any overseas jurisdictions.

Legal structure of the charity

The charity is constituted as a company limited by guarantee, registered under the Companies Acts. The governing document of the charity is the Memorandum and Articles of Association establishing the company under company legislation.

The governing document is dated 24 November 2020.

There are no restrictions in the governing documents on the operation of the Charity or on its investment powers other than those imposed by Charity Law.

By operation of law all trustees are directors under the Companies Act 2006 and all directors are trustees under Charities legislation and have responsibilities, as such, under both company and charity legislation. The trustees are all individuals.

The principal operating address, telephone number, email and web addresses of the charity are:- Department D1

Wolfson Building, Royal United Hospital Bath, BA1 3NG

Telephone 01225 336363

BIRD@birdbath.org.uk www.birdbath.org.uk

The registered office of the charity for Companies Act purposes is the same as the operating address shown above.

The Trustees in office for the period covered by the report:

Chris Johns Dr Amanda Mackenzie Prof Neil McHugh Prof Bernie Morley emeritus - Chair Shane O’Reilly Prof Raj Sengupta Jim Sherwin Linda Snelus Dr William Tillett

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Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

Objects and activities of the charity

Bath Institute for Rheumatic Diseases (BIRD) is an incorporated charity. Its objectives, as set out in the Memorandum and Articles of Association, are to relieve sickness and to promote and advance medical knowledge with particular reference to rheumatic diseases; and to undertake research in relation thereto and to publish the useful results of such research. BIRD funds research and education into all areas of rheumatology and all types of bone and joint disorder.

Strategy

We continue to follow our new strategy with the central purpose of balancing reliance on investment performance over the long term with more grant and donor fundraising, which in turn requires a raised profile and clearer articulation of impact.

A recent stakeholders survey highlighted the progress we have made with comments such as “BIRD is now more outgoing and focused on engagement and education of staff and patients” and “overall I think that the organisation now reaches far more people than in the past and the number research grants given has increased”.

Highlights

We finish the financial year with £1,791,638 in funds, up from £1,676,599 at the same point last year, reflecting good growth in BIRD’s investment funds since income totalled £106,886 but expenditure £238,682. In total BIRD awarded £66,406 in grants and bursaries to clinician researchers and early career researchers and spent £59,054 on patient and public engagement.

Grants awarded for research In total, £63,551 for research was BIRD funds research projects in rheumatic awarded diseases which:

We hope this project will improve the identification of cardiovascular disease in rheumatology patients. It will use existing CT scans from lupus and scleroderma patients, and measure inflammation on these scans. This project will then see whether it can identifiy increased cardiovascular risk using existing tools. It will also use a large national database of scans, to see whether rheumatology patients are more likely to have this inflammation.

The focus is on pump prime funding for smaller projects, undertaken in or from Bath for the benefit of patients worldwide.

The guideline for grant amounts is up to £20,000 (but greater amounts may be considered) that would be ideally suited to pilot studies, preliminary research, tests of clinical effectiveness or would enable other grants to be made for research.

£19,953 to Dr Amanda Mackenzie for a project promoting the regression of angiogenesis in the pathology of rheumatoid arthritis. Rheumatoid arthritis is a common disease, affecting more than 400.000 in the UK. Blood vessels grow into joints during the progression of the disease. This growth makes the damaging inflammation worse and increases joint pian. This project aims to improve treatments for patients with rheumatoid arthritis and promote collaboration between clinical and research scientists.

It aims to promote and advance medical science, pump-priming research, help researchers in the early stages of their careers, help clinicians to be research active, encourage collaborations between clinicians and research scientists, and ensure patients are involved in research.

Projects funded by BIRD are often highly collaborative, with researchers and clinicians working together to address challenges in rheumatic diseases.

£2720 to Fionnula McMorrow For knowledge exchange of IP-MS method at KU Leuven. As part of a PhD this project involves using and adapting highly specialised laboratory techniques to try and find new autoantibodies in the blood of children with rare rheumatic diseases called myositis and systemic sclerosis,

Since 2016 BIRD has funded over 26 projects, with over 600 patients involved in a meaningful way, helping to advance medical science, with grants generating at least 20 academic publications so far.

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Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

£20,000 to Dr Joseph Page for assessing the Vascular Endothelium in Systemic sclerosis associated Pulmonary hypertension to improve Early and Rapid diagnosis (VESPER)

Pulmonary arterial hypertension (PAH) and progressive fibrotic interstitial lung disease (ILD) are common and sadly fatal complications of Systemic Sclerosis. The study will invite patients with and without systemic sclerosis to provide a blood test. The researchers will compare the results between patients with and without systemic sclerosis. It will also look to see whether these tests match with right heart catheterisation results in patients who have this test done as part of their routine care. If we can improve our understanding of blood vessel damage in systemic sclerosis, it may help us to predict which patients are more at risk of developing PAH, and commence timely treatment. It may help provide more accurate non-invasive tests to detect PAH.

£928 to the RNHRD Research Nurses for a Laptop

Bursaries

Building on the recent success of early career researchers BIRD awarded £2755 for bursaries to attend BSR and EULAR, and the World Congress on Osteoporosis in early 2024.

This is to encourage health professionals based in the Royal National Hospital for Rheumatic Diseases (RNHRD) to attend these key national and international conferences as part of BIRD’s mission is to encourage clinical staff to be research-active and to maintain the RNHRD’s reputation for research excellence.

“The Bristish Society for Rhuematology (BSR) conference, is a key event in my work calendar. Every year I meet new people and develop contacts with colleagues around the UK. Lots of action points and things for us to review and develop further in our service here in Rheumatology Therapies”.

“Thanks so much for BIRD support to attend my first BSR meeting. It was great to hear from leading clinicians and researchers in the field of AxSpA and axial PsA, and also be able to attend other sessions covering a range of the rheumatology field. Quite mind-blowing at times”.

My experience at BSR was fabulous. I was able to discuss complex cases with my colleagues and also saw many interesting educational abstracts. This gave me further ideas on how to innovate our system but also enabled me to enhance my research work’’.

For the second time BIRD took a stand at the annual British Society for Rheumatology Conference in Manchester to showcase the Patient Engagement programme. This was to promote and network for further patient engagement opportunities.

BIRD led and organised the RNHRD’s second Research Showcase Event at the Bath Royal Literary and Scientific Institute in March 2024 together with Royal United Hospital Bath, and the University of Bath.

Five Consultants and early career researchers from the RNHRD gave talks on their research and showed 10 research posters for 60 members of the general public. The feedback was again very positive and BIRD plan to make the Research Showcase an annual event.

“All of the talks were engaging. It is wonderful to listen to our doctors so full of passion for their specialism and wanting to provide the best for their patients”.

“I found the talks all very informative, very interesting and very beautifully presented by the professionals. I am very grateful to have attended and would love to come to other similar events. I hope that there will be more”.

“We really enjoyed the speakers and their enthusiasm into their specialist research. It was wonderful to see their passion and desire to find out more around their specialism and their desire to pass on their findings for those in their care now and in the future”.

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Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

BIRD’s education programme for Healthcare Professionals

BIRD organised a wide-ranging programme for the continued education and training of healthcare professionals, working closely with a range of health and education providers, including the Royal United Hospital for Rheumatic Diseases, the University of Bath and the Bath GP Education and Research Trust. The programme was attended by Consultants, Clinical Staff, Academic and Clinical Researchers, GPs, Nurse Practitioners and Primary Care Healthcare Professionals.

BIRD provided the administration support including the accreditation and sponsorship where necessary, for educational events reaching 415 healthcare professionals Each of the training sessions was approved for accreditation by either the Royal College of Physicians or the Bath GP Education & Research Trust (depending on whether the attendees came from primary or secondary care) which enabled them to gain continuing professional development credits.

The programme for 2023/24 included the following events:

One Rheumatology Research @ Bath meeting was held, bringing together researchers at the University and clinicians at the hospital to update one another on two new projects at a time.

Two Bath & Bristol Bone meetings were held in May and November 2023 for consultants and clinical staff.

The South West Axial Spondyloarthritis Group was held in November 2023 for consultants and clinical staff.

Two South West CTD & Vasculitis meetings

were held in March & September 2023 for consultants and clinical staff.

Two Primary Care Rheumatology Update

afternoons were held in April 2023 and March 2024 for GPs, Nurse Practitioners and Primary Care Healthcare Professionals.

Knowledge Exchange with Stoke UHNM

NHS Trust & RNHRD – BIRD provided the organisation and admin support for the Stoke visit to Bath. Over the two-day event each Trust shared their practices and procedures for the Management of Spondyloarthritis.

Qualitative feedback collected from some of the sessions showed that participants rated talks either ‘excellent’ or ‘good’ with most comments finding the training “helpful” and a useful update;

“The hybrid option for meetings is really valuable and great to see so many attendees online. Great selection of speakers at these events, with fantastic external speakers. Good to see some younger investigators given chance to present and raise their profiles within the region.”

“These are always great meetings - all presentations excellent and very useful discussion. The meeting was very well organised and chaired.”

The Education Programme was led by Dr Andrew Allard, consultant rheumatologist, and Fran Staples, Senior Administrator BIRD.

The Patient and Public Engagement Programme

The Programme vision is to help more patients to be involved in research and deepen their understanding of Rheumatic Diseases, the latest research and treatment. With the twin aims of:

1. Patients have a deeper knowledge of

Rheumatic Diseases, helping to lessen anxiety and increase confidence to self-manage and communicate with their healthcare professionals

2. Patients are involved in research, helping to inform and share the patient perspective with researchers to ensure the aims are true to need

Led by patient engagement expert Mel Brooke and supported by Fran Carroll, the programme has continuously evolved and developed around patient audience needs . It provides opportunities for them to connect, learn and share through a flexible and innovative mix of media.

Podcasts - covering a range of rheumatology conditions, these now reach thousands of patients and their families, across the country (and beyond) which we promote heavily on social media.

Over the year Mel Brooke produced another 10 new podcasts bringing the library to 58 and achieving an amazing total of 23,559 listens .

New topics covered were Gout, Myositis, new BSR guidelines, Psoriatic Arthritis (PsA), updated NICE guidelines on Osteo Arthritis Nutrition, Pain and Mental Health

Webinars - were developed, providing l ive events online that give patients access to consultants and experts’ presentations and the opportunity to ask questions. 577 patients attended six webinars on Axial Spondyloarthritis, PsA and Osteoporosis.

“A very useful webinar covering a great deal of research explained in a digestible way.”

“I’ve learnt some things today which have completely changed my view on my disease activity and care alongside that.”

“So grateful for these webinars, the knowledge shared, and opportunity to ask questions.

100% of patients who attended the Osteoporosis webinar would recommend others to attend.

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Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

Research - patients tell us they are keen to ‘give back’ and get involved in research, mainly through taking part in surveys and questionnaires circulated but also through focus groups, workshops and other participation. Over 188 patients were involved in research during the year.

Patient Research Panel28 committed enthusiasts provided feedback on survey design and research opportunities to academic and clinical researchers during the year

Some highlights of the work involving patients in research over the last year include

• helping share an opportunity for people with PsA to participate in a project aimed at helping improve the patient and public engagement in clinical trials.

• helping to find patients to participate in workshops about PIFU (Patient Initiated Follow Up)

Awareness raising

The reach of BIRD continued to expand through ongoing investment in Facebook, Instagram, X and LinkedIn, with over 334,000 people getting the opportunity to see a BIRD advertisement for podcasts. BIRD’s subscriber database grew by 34% across Twitter, Facebook, Mailchimp and LinkedIn.

Particular success was achieved in celebrating the 20,000 listens to podcasts milestone, achieving good coverage in local press and BBC radio. This led to BIRD being nominated in the South West Business awards as Charity of the year.

BIRD also produced six information videos to be used in the reception at the RNHRD

–these covered various topics including an introduction to the RNHRD, Biologics and a short introduction to the research department’s work.

BIRD was also delighted to be placed on the Chancellors Roll of Honour at the University of Bath, this recognises the support BIRD has given the University over the years.

grants from Effort spent in seeking to attract pharmaceutical companies for the Patient Engagement programme was rewarded with £22,000 in grants and sponsorship from Eli Lily and Company and UCB. This was largely due to the excellent performance of the podcasts and advertising them widely on social media, which attracted thousands of listeners.

The following people and trusts gave for which significant donations and legacies BIRD is very grateful , and their n ames were added to the Benefactors Board , recently moved to the entrance of the Royal National Hospital for Rheumatic Diseases

Erika Wiesenmueller-Potter and Barry Potter Mary Dixon Medlock Charitable Trust Hospital Saturday Fund Renishaw

Many others made donations to BIRD over the year, often after reading news or research and developments in BIRD’s newsletter. Thank you to all for the vital support.

The main achievements and performance of the charity in terms of public benefit

The total amount of grants and bursaries awarded for research into rheumatic diseases was £66,406

415 professionals attended BIRD

training sessions, meetings and events for consultants, clinicians, healthcare professionals, researchers and academics.

100% of patients who attended the Osteoporosis webinar would recommend others to attend future webinars

15 opportunities to participate in research,

26 members of the were offered to patients, patient research panel responded to 5 new research opportunities.

90% of the 60 attendees to the Research Showcase said they were more likely to get involved in research.

188 Patients involved in research

Awareness raising continued to grow through advertising, e-newsletter engagement and stakeholder relations with the University and the Hospital.

34% growth in subscibers

BIRD recruited new committee members to the finance and research committees.

Overall, the charity’s beneficiaries: scientific academia and patients, carers and their families benefitted from better understanding of rheumatic diseases and their treatment, thereby contributing to the alleviation of suffering.

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Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

Structure, governance and management of the charity

Bankers

Unity Trust Bank, 9 Brindley Place, Birmingham B1 2HB

The governing body is the Council of Management made up of 9 trustees. The chair is now Professor Bernie Morley emeritus, the Council of Management meets triannually.

CCLA Investment Management Ltd, COIF Charity Funds, 1 Angel Lane, London EC4R 3AB

Three committees report to the Council of Management.

Solicitors

Stone King, 13 Queen Square, Bath BA1 2HJ

There are the triannual Finance Committee , chaired by Jim Sherwin, members are Dr Linda McHugh, Chris Johns, Linda Snelus and new member Bernard Fairhurst; the biannual Research Committee, chaired by Professor Bernie Morley emeritus, members are Ben Hutchinson, Dr Amanda MacKenzie, Professor Neil McHugh, Dr Sarah Skeoch, Dr Paula Smith-resigned and has been replaced by Dr Abbie Jordan , Dr Theresa Smith, Frank Sweeting and Dr Sarah Tansley; and the triannual Education & Engagement Committee, chaired by Shane O’Reilly, members are Dr Andrew Allard, Patricia Mattinson and Jessie Naish. All committees are supported by relevant contract staff in attendance.

Accountants

DR Hicks, Chartered Accountants, 107 Penn Hill Road, Bath BA1 3RU

Financial review

The financial position of the charity at 31 March 2024 and comparatives for the prior period, as more fully detailed in the accounts, can be summarised as follows:-

2024 2023
£ £
Net income 115,039 (142,906)
Unrestricted Revenue Funds available for the
general purposes of the charity 1,754,967 1,631,034
Designated Revenue Funds 18,478 26,886
Total Unrestricted Funds ~~1,773,445~~ ~~1,657,920~~
Restricted Revenue Funds 18,193 18,679
~~Total Funds~~ ~~1,791,638~~ ~~1,676,599~~

The Finance Committee, on behalf of Council ensured BIRD’s investments maximised the funds available for furthering BIRD’s charitable objectives. To this end costs were scrutinised and investment performance was reviewed quarterly alongside the operational management accounts.

BIRD’s reserves policy is to

The board of trustees is satisfied that the charity’s assets in each fund are available and adequate to fulfil its obligations in respect of each fund.

The aim of the investment strategy is to provide

sufficient income and capital growth to provide a total return above the rate of inflation, over time, such that a proportion can be used for research or to support the charitable aims, whilst at the same time maintaining the real value of the portfolio. The objective is a ‘balanced’ return between income and capital, at medium risk over a time horizon of ten years plus.

Both capital and income may be used at any time for the furtherance of the charity’s aims and therefore the portfolio is managed on a total return basis.

Ethical considerations: The ethical policy broadly follows that of the University of Bath. The trustees have precluded direct investment in tobacco. The trustees reserve the right to exclude companies that carry out activities contrary to their aims or from holding particular investments which damage the Charity’s reputation.

The objectives are to be achieved by investing prudently in a broad range of equities, fixed interest securities and collective vehicles (like unit trusts) which are appropriately authorised.

Dividends and interest are paid away on a quarterly basis.

Summary of plans for the future

BIRD remains committed to funding research into rheumatic diseases, through pump-prime funding of around £80,000, depending on the quality of applications received. It will encourage clinicians to undertake research and early stage career researchers with their development through enhanced numbers of bursaries for conference attendance.

BIRD will continue to maintain and develop the education programme for healthcare professionals.

The Patient Engagement programme will continue to evolve, as digital offerings develop and ways to help patients get involved in research develop. The programme will also seek to help researchers to work with patients. Ongoing evaluation and patient input will shape the programme, through the patient research panel, the patient listening panel and through surveys and feedback.

The long-term intention reamins to balance reliance on investment performance with more grant and donor fundraising, which itself requires a raised profile and clearer articulation of impact. BIRD will work on a strategy to achieve that during the year ahead.

Next year BIRD will undertake a recruitment exercise for new Trustees and committee members as part of good succession planning.

As part of its 50th Anniversary in 2025 BIRD will maximise engagement with the public, patients and stakeholders.

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Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

Details of The Independent Examiner

Tom Case

Member of The Institute of Chartered Accountants in England and Wales 20 Goodwood Way Cepen Park South Chippenham Wiltshire SN14 0SY

Statement of the Directors’ and Trustees’ Responsibilities

The charity’s trustees are responsible for the preparation of the accounts in accordance with the terms of the Companies Act 2006, the Charities Act 2011 and the Charities (Accounts and Reports) Regulations 2008. Notwithstanding the explicit requirement in the extant statutory regulations,the Charities (Accounts and Reports) Regulations 2008, to prepare the financial statements in accordance with the SORP 2005, in view of the fact that the SORP 2005 has been withdrawn, the Trustees determined to interpret this responsibility as requiring them to follow current best practice and prepare the accounts according to the FRS 102 SORP (Statement of Recommended Practice for Accounting and Reporting by Charities) 2015, (as amended by the Bulletin issued in October 2018 and applicable to all accounting periods beginning on or after 1st January 2019), (The SORP), .

In particular, the Companies Act 2006 and charity law require the Board of Trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity as at the end of the financial year and of the surplus or deficit of the charity. In preparing those financial statements the Board is required to :-

The law requires that the trustees must not approve the accounts unless they are satisfied that they give a true and fair view of the state of affairs of the charity and of the surplus or deficit of the charity for the year.

The Trustees are also responsible for maintaining adequate accounting records which disclose with reasonable accuracy at any time the financial position of the charity and which are sufficient to show and explain the charity’s transactions and enable them to ensure that the financial statements comply with the Companies Act 2006 and comply with regulations made under the Charities Act. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

The Trustees are also responsible for the contents of the Trustees’ report, and the statutory responsibility of the Independent Examiner in relation to the Trustees’ report is limited to examining the report and ensuring that , on the face of the report, there are no material inconsistencies with the figures disclosed in the financial statements.

Method of preparation of accounts - Small company provisions.The financial statements are set out on pages 16 to 35.

The financial statements have been prepared implementing the FRS 102 SORP (Statement of Recommended Practice for Accounting and Reporting by Charities) 2015, (as amended by the Bulletin issued in October 2018 and applicable to all accounting periods beginning on or after 1st January 2019), (The SORP), and in accordance with the Financial Reporting Standard 102, (effective 1st January 2016)

These financial statements have been prepared in accordance with the provisions in Part 15 of the Companies Act 2006. applicable to companies subject to the small companies regime.

This report was approved by the board of trustees on 20 September 2024.

Professor Bernie Morley emeritus Chair

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Report of the Independent Examiner to the Trustees of the charitable company on the accounts for the year ended 31 March 2024

Report of the Independent Examiner to the Trustees of the charitable company on the accounts for the year ended 31 March 2024

I report to the Trustees on my examination of the financial statements of the charitable company on pages 15 to 34 for the year ended 31 March 2024 which have been prepared in accordance with the Charities Act 2011 (the Act) and with the Financial Reporting Standard 102, (effective 1st January 2016) as modified by FRS 102 SORP (Statement of Recommended Practice for Accounting and Reporting by Charities) 2015, (as amended by the Bulletin issued in October 2018 and applicable to all accounting periods beginning on or after 1st January 2019), (The SORP), published by the Charity Commission in England & Wales (CCEW) , and under the historical cost convention and the accounting policies set out on page 21.

Respective responsibilities of the Trustees and the Independent Examiner and the basis of the report

As described on page 11, you, the charitable company’s Trustees, who are also the Directors of the Company for the purposes of Company law, are responsible for the preparation of the financial statements in accordance with the Companies Act 2006, the Charities Act 2011 and all other applicable law and with United Kingdom Generally Accepted Accounting Practice, applicable to smaller entities, and for being satisfied that the financial statements give a true and fair view.

The Trustees consider that the audit

requirement of Section 144(1) of the Charities Act 2011 (the Act) does not apply, and that there is no requirement in the memorandum and articles of the charity for the conducting of an audit, and that the accounts do not require an audit in accordance with Part 16 of the Companies Act 2006 and that no member or members have requested an audit pursuant to Section 476 of the Companies Act 2006. As a consequence, the Trustees have elected that the financial statements be subject to independent examination.

Having satisfied myself that the financial statements are not required to be audited under any legal provision, or otherwise, and are eligible for independent examination, it is my responsibility to:- a) examine the financial statements of the charity under Section 145 of the Act;

b) follow the applicable procedures in the Directions given by the Charity Commission under section 145(5)(b) of the Act.

Basis of Independent Examiner’s Statement and scope of work undertaken

I report in respect of my examination of the charity’s financial statements carried out under s145 of the Act. In carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act setting out the duties of an independent examiner in relation to the conducting of an independent examination. An independent examination includes a review of the accounting records kept by the charitable company and of the accounting systems employed by the charitable company and a comparison of the financial statements presented with those records. It also includes consideration of any unusual items or disclosures in the financial statements, and seeking explanations from you, as Trustees, concerning such matters. The purpose of the examination is to establish as far as possible that there have been no breaches of charity legislation and that, on a test basis of evidence relevant to the amounts and disclosures made, the financial statements comply with the SORP.

The procedures undertaken do not provide all the evidence that would be required in an audit, and information supplied by the Trustees in the course of the examination is not subjected to audit tests or enquiries and does not cover all the matters that an auditor would consider

in arriving at an opinion. The planning and conduct of an audit goes beyond the limited assurance that an independent examination can provide.

Consequently, I do not express an audit opinion on the view given by the financial statements, and in particular, I express no opinion as to whether the financial statements give a true and fair view of the affairs of the charity, and my report is limited to the matters set out in the statement below.

I planned and performed my examination so as to satisfy myself that the objectives of the independent examination are achieved and before finalising the report I obtained written assurances from the Trustees of all material matters.

Independent Examiner’s Statement, Report and Opinion

Subject to the limitations upon the scope of my work as detailed above, I have completed my examination: and can confirm that:-

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.

Signed:-

Tom Case - Independent Examiner

The Institute of Chartered Accountants in England and Wales

20 Goodwood Way Cepen Park South Chippenham Wiltshire SN14 0SY

This report was signed on 20 September 2024.

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Statement of Financial Activities for the year ended 31 March 2024

Statement of Financial Activities for the year ended 31 March 2024

SORP Current Current Current Prior
Ref Unrestricted Restricted Total Funds Total Funds
Funds Funds
2024 2024 2024 2023
£ £ £ £
Income & Endowments from:
Donations & Legacies A1 38,464 - 38,464 52,340
Charitable activities A2 24,550 75 24,625 66,645
Investments A4 43,797 - 43,797 44,462
~~Total income~~ ~~A~~ ~~106,811~~ ~~75~~ ~~106,886~~ ~~163,447~~
Expenditure on:
Charitable activities B2 238,208 472 238,680 244,037
~~Total expenditure~~ ~~B~~ ~~238,208~~ ~~472~~ ~~238,680~~ ~~244,037~~
Net gains/(losses) on investments Net gains/(losses) on investments
B4
246,833 - 246,833 (62,316)
Net income for the year 115,436 (397) 115,039 (142,906)
Transfers between funds C 89 (89) - -
Net income after transfers A-B-C 115,525 (486) 115,039 (142,906)
Net movement in funds 115,525 (486) 115,039 (142,906)
Reconciliation of funds:- E
Total funds brought forward 1,657,920 18,679 1,676,599 1,819,505
~~Total funds carried forward~~ ~~1,773,445~~ ~~18,193~~ ~~1,791,638~~ ~~1,676,599~~

The ‘SORP Ref’ indicated above is the classification of income set out in the formal SORP documents. As required by paragraph 4.60 of the SORP, the brought forward and carried forward funds above have been agreed to the Balance Sheet.

A Statement of Total Recognised Gains and Losses is included as a primary statement in these accounts. All activities derive from continuing operations

The notes attached on pages 22 to 35 form an integral part of these accounts.

Analysis of prior year total funds as required by paragraph 4.2 of the SORP

SORP Prior Year Prior Year Prior Year Prior Year
Ref Unrestricted Restricted Total Funds Total Funds
Funds Funds
2023 2023 2023
£ £ £
Income & Endowments from:
Donations & Legacies A1 52,340 - 52,340 52,340
Charitable activities A2 66,495 150 66,645 66,645
Other trading activities A3 - - - -
Investments A4 44,462 - 44,462 44,462
Other A5 - - - -
~~Total income~~ ~~A~~ ~~163,297~~ ~~150~~ ~~163,447~~
Expenditure on:
Raising funds B1 - - - -
Charitable activities B2 243,443 594 244,037 244,037
Other B3 - - - -
Tax on surplus on ordinary activities B3 Tax on surplus on ordinary activities B3 - - - -
Other taxation B3 - - - -
~~Total expenditure~~ ~~B~~ ~~243,443~~ ~~594~~ ~~244,037~~
Net gains/(losses) on investments B4 (62,316) - (62,316)
Net income for the year (142,462) (444) (142,906)
Transfers between funds C 2,085 (2,085) - -
Net income after transfers (140,377) (2,529) (142,906)
Net movement in funds (140,377) (2,529) (142,906)
Reconciliation of funds:- E
Total funds brought forward 1,799,804 19,701 1,819,505
~~Total funds carried forward~~ ~~1,659,427~~ ~~17,172~~ ~~1,676,599~~

All activities derive from continuing operations

A Statement of Total Recognised Gains and Losses is included in these accounts as a separate primary statement

The notes attached on pages 22 to 35 form an integral part of these accounts.

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Statement of Financial Activities for the year ended 31 March 2024

Statement of Financial Activities for the year ended 31 March 2024

Statement of Total Recognised Gains and Losses for the year ended 31 March 2024

2024 2023
£ £
(Deficit)/Surplus for the year :-
Net excess of income over expenditure from operations before tax Net excess of income over expenditure from operations before tax (131,794) (80,590)
Income from operations before tax in the Statement of Financial Activites (131,794) (131,794) (80,590)
Realised (losses)/gains on investments Realised (losses)/gains on investments - (710)
Surplus as shown in the Income and Expenditure account (131,794) (81,300)
Unrealised (losses)/gains on investments 246,833 (61,606)
Net Movement in funds before taxation 115,039 (142,906)
~~Funds generated in the year as shown on Statement of Financial Activities 115,039~~ ~~Funds generated in the year as shown on Statement of Financial Activities 115,039~~ ~~(142,906)~~

Income and Expenditure Account for the year ended 31 March 2024 as required by the Companies Act 2006

Income and Expenditure Account for the year ended 31 March 2024 as required by
the Companies Act 2006
Income and Expenditure Account for the year ended 31 March 2024 as required by Income and Expenditure Account for the year ended 31 March 2024 as required by
2024 2023
£ £
Income
Income from operations 63,089 118,985
Realised gains/(losses) on investments - (710)
Investment income
Income from investments, other than interest receivable 43,797 44,462
Gross income in the year before exceptional items 106,886 162,737
~~Gross income in the year including exceptional items~~ ~~106,886~~ ~~162,737~~
Expenditure
Charitable expenditure, excluding depreciation and amortisation 237,788 243,311
Depreciation and amortisation 430 276
Governance costs 462 450
~~Total expenditure in the year~~ ~~238,680~~ ~~244,037~~
Net income before tax in the financial year (131,794) (81,300)
Tax on surplus on ordinary activities - -
Net income after tax in the financial year (131,794) (81,300)
~~Retained surplus for the f~~i~~nancial year~~ ~~(131,794)~~ ~~(81,300)~~

All activities derive from continuing operations

In accordance with the provisions of the Companies Act 2006, the headings and subheadings used in the Income and Expenditure account have been adapted to reflect the special nature of the charity’s activities.

The notes attached on pages 21 to 34 form an integral part of these accounts.

18

19

Balance Sheet as at 31 March 2024

Balance Sheet as at 31 March 2024

Balance Sheet as at 31 March 2024

Note SORP 2024 2023
Ref £ £
Fixed assets A
Tangible assets
Investments held as fixed assets
9
10
A2
A4
1,786
1,871,796
667
1,674,963
Total fixed assets
Current assets
B 1,873,582 1,675,630
Debtors 12 B2 5,774 9,628
Cash at bank and in hand B4 44,602 48,995
Total current assets 50,376 58,623
Creditors: amounts falling due within one year 13 C1 (132,320) (57,654)
Net current assets (81,944) 969
~~The total net assets of the charity~~ ~~1,791,638~~ ~~1,676,599~~
The total net assets of the charity are funded by the funds of the charity, as follows:- The total net assets of the charity are funded by the funds of the charity, as follows:- The total net assets of the charity are funded by the funds of the charity, as follows:-
Restricted funds
Restricted Revenue Funds 17 D2 18,193 18,679
Unrestricted Funds
Unrestricted Revenue Funds 17 D3 1,754,967 1,631,034
Designated Funds
Designated Revenue Funds 17 D3 18,478 26,886
~~Total charity funds~~ ~~1,791,638~~ ~~1,676,599~~

The ‘SORP Ref’ indicated above is the classification of Balance Sheet items as set out in the formal SORP documents. As required by paragraph 4.60 of the SORP, the brought forward and carried forward funds above have been agreed to the SOFA..

The directors are satisfied that the company is entitled to exemption from the requirement to obtain an audit under section 477 of the Companies Act 2006.

The members have not required the company to obtain an audit in accordance with section 476 of the Act.

The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of accounts.

The charity is subject to Independent Examination under charity legislation, and the report of the Independent Examiner is on page 14.

The financial statements have been prepared in accordance with the provisions in Part 15 of the Companies Act 2006. applicable to companies subject to the small companies regime.

James Sherwin

Trustee and Chair of the Finance Committee Approved by the board of trustees on 20 September 2024

The notes attached on pages 22 to 35 form an integral part of these accounts.

20

21

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

1 Accounting policies

Policies relating to the production of the accounts.

Basis of preparation and accounting convention

The accounts have been prepared on the accruals basis, under the historical cost convention, and in accordance with the Financial Reporting Standard 102, (effective 1st January 2016) and ‘FRS 102 SORP (Statement of Recommended Practice for Accounting and Reporting by Charities) 2015, (as amended by the Bulletin issued in October 2018 and applicable to all accounting periods beginning on or after 1st January 2019), (The SORP), published by the Charity Commission in England & Wales (CCEW) , effective January 2016, , and in accordance with all applicable law in the charity’s jurisdiction of registration, except that the charity has prepared the financial statements in accordance with the FRS 102 SORP (Statement of Recommended Practice for Accounting and Reporting by Charities) 2015, (as amended by the Bulletin issued in October 2018 and applicable to all accounting periods beginning on or after 1st January 2019), (The SORP), in preference to the previous SORP, the SORP 2005, which has been withdrawn, notwithstanding the fact that the extant statutory regulations, the Charities (Accounts and Reports) Regulations 2008 refer explicitly to the SORP 2005. This has been done to accord with current best practice.

Going Concern

The Trustees are satisfied that, at the time of approving the financial statements, it is appropriate to adopt the going concern basis in preparing the financial statements. The Trustees are not aware of any material uncertainites about the charity’s ability to continue as a going concern.

Risks and future assumptions

BIRD meets the definition of a public benefit entity under FRS102. Assets and liabiltities are initially recognised at historical cost or transaction value unless stated in the relevant accounting policy note(s).

Policies relating to categories of income and income recognition.

Nature of income

Gross income represents the value, net of value added tax and discounts, of goods provided to customers and work carried out in respect of services provided to customers.

Categories of Income

Income is categorised as income from exchange transactions (contract income) and income from non-exchange transactions (gifts), investment income and other income.

Income from exchange transactions is

received by the charity for goods or services supplied under contract or where entitlement is subject to fulfilling performance related conditions. The income the charity receives is approximately equal in value to the goods or services supplied by the charity to the purchaser.

Income from a non-exchange transaction is where the charity receives value from the donor without providing equal value in exchange, and includes donations of money, goods and services freely given without giving equal value in exchange.

Income recognition

Income, whether from exchange or non exchange transactions, is recognised in the statement of financial activities (SOFA) on a receivable basis, when a transaction or other event results in an increase in the charity’s assets or a reduction in its liabilities and only

when the charity has legal entitlement, the income is probable and can be measured reliably.

Dividends are accrued when the shareholder’s right to receive payment is established.

Income subject to terms and conditions which must be met before the charity is entitled to the resources is not recognised until the conditions have been met.

Income from legacies

Income from legacies is recognised when the charity has sufficient evidence that a gift has been left to them, that where required, probate has been granted, the executor is satisfied that the property in question will not be required to satisfy claims in the estate, that it is probable that the amount will be received by the charity, and the amount to be received can be estimated with sufficient accuracy, and that any conditions attached to the legacy are either within the control of the charity or have been met.

Where a payment is received from an estate or is notified as receivable by the executors after the reporting date and before the accounts are authorised for issue but it is clear that the payment had been agreed by the executors prior to the end of the reporting period, then the amount concerned is treated as an adjusting event and accrued as income in the accounting period if receipt is probable.

Where the charity has established entitlement to a legacy but there is uncertainty as to the amount of the payment, details of the legacy are disclosed as a contingent asset until the criteria for income recognition are met. Where a legacy is subject to the interest of a life tenant, the legacy is not recognised as income until the death of the life tenant.

If it is doubtful that full settlement of a legacy debtor will be received, then an adjustment is made to reduce the amount of the legacy debtor and legacy income rather than charging the adjustment as expenditure in the Statement of Financial Activities

Policies relating to expenditure on goods and services provided to the charity.

Recognition of liabilities and expenditure

A liability, and the related expenditure, is recognised when a legal or constructive obligation exists as a result of a past event, and when it is more likely than not that a transfer of economic benefits will be required in settlement, and when the amount of the obligation can be measured or reliably estimated..

Liabilities arising from future funding commitments and constructive obligations, including performance related grants, where the timing or the amount of the future expenditure required to settle the obligation are uncertain, give rise to a provision in the accounts, which is reviewed at the accounting year end. The provision is increased to reflect any increases in liabilities, and is decreased by the utilisation of any provision within the period, and reversed if any provision is no longer required. These movements are charged or credited to the respective funds and activities to which the provision relates.

Policies relating to assets, liabilities and provisions and other matters.

Fixed Asset Investments

Fixed asset investments in quoted shares, traded bonds, investment properties and similar investments are shown initially at cost upon acquisition and at their market value at the balance sheet date at the end of the

22

23

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

financial period. Investment properties are not depreciated.

Fixed asset investments in unlisted equities are shown at the balance sheet date at the best estimate of their market value, where practicable. Where valuation techniques are considered unreliable or where, in the opinion of the trustees, the costs outweigh the benefits to the users of the accounts, the investment is included at cost, and a review is undertaken at each year end as to whether the asset should be written down.

All gains on fixed asset investments, whether realised or unrealised, are included in row B4 of the Statement of Financial Activities.

Tangible fixed assets

Tangible fixed assets are measured at their original cost value, or subsequent revaluation, or if donated, as described above. Cost value includes all costs expended in bringing the asset into its intended working condition.

Depreciation has been provided at the following rates in order to write off the assets to their anticipated residual value over their estimated useful lives.

Plant and machinery 20 % reducing balance

Stocks and work in progress

Stock is valued at the lower of cost and net realisable value.

Debtors

Debtors are measured at their recoverable amounts at the balance sheet date.

Creditors and provisions

Liabilities are recognised on the accruals basis in accordance with normal accounting principals, modified where necessary in

accordance with the guidance given in the SORP.

Financial instruments including cash and

bank balances

Cash held by the charity is included at the amount actually held and counted at the year end. Bank balances, whether in credit or overdrawn, are shown at the amounts properly reconciled to the bank statements.

Fund Accounting

Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity.

Designated funds are unrestricted funds earmarked by the Trustees for particular purposes.

Restricted funds are subjected to restrictions on their expenditure imposed by the donor or through the terms of an appeal or as implied by law.

There are no endowment funds.

2 Liability to taxation

The Trustees consider that the charity satisfies the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 for UK corporation tax purposes. Accordingly, the Charity is potentially exempt from taxation in respect of income or capital gains received within categories covered by chapter 3 part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively on the specific charitable objects of the charity and for no other purpose. Value Added Tax is not recoverable by the charity, and is therefore included in the relevant costs in the Statement of Financial Activities.

5 Net surplus before tax in the financial year

3 Winding up or dissolution of the charity

The net surplus before tax in the financial year is stated after charging:-

If upon winding up or dissolution of the charity there remain any assets, after the satisfaction of all debts and liabilities, the assets represented by the accumulated fund shall be transferred to some other charitable body or bodies having similar objects to the charity.

represented by the accumulated fund shall be Depreciation of owned fixed assets: transferred to some other charitable body or 2024 2023 bodies having similar objects to the charity. £ £ £430 £ 276 4 Significance of financial instruments to the charity’s position

There are no significant implications of financial instruments to the charity’s financial position or performance.

24

25

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

6 Investment gains

6 Investment gains
Current year Current year Current year Current year
Prior Year
Unrestricted Restricted Total Funds Total Funds
Total Funds
Funds Funds
2024 2024 2024 2024
Realised gains/(losses)
Listed investments - - - -
(710)
Unrealised gains /(losses) and writing
down of carrying values
Listed investments - Unrealised 246,833 - 246,833 (61,606)
~~Total unrealised gains/(losses) etc~~ ~~246,833~~ ~~-~~ ~~246,833~~ ~~246,833~~
~~(61,606)~~
Total realised and unrealised gains 246,833 - 246,833 246,833
(62,316)
All the gains and losses in the prior year was unrestricted.
Prior year
Prior Year Prior Year Prior Year
Unrestricted Restricted Total
Funds Funds Funds
2023 2023 2023
£ £ £
Realised gains/(losses)
Listed investments (710) - (710)
~~Total realised gains/(losses)~~ ~~(710)~~ ~~-~~ ~~(710)~~
Unrealised gains /(losses) and writing down Unrealised gains /(losses) and writing down
of carrying values
Listed investments - Unrealised (61,606) - (61,606)
~~Total unrealised gains/(losses) etc~~ ~~(61,606)~~ ~~-~~ ~~(61,606)~~
Total realised and unrealised gains (62,316) - (62,316)

7 Staff costs and emoluments

7 Staff costs and emoluments
Labour costs 2024 2023
£ £
Gross salaries, labour and related costs 133,060 119,611
~~133,060~~ ~~119,611~~

Neither the trustees nor any persons connected with them have received any remuneration from the charity or any related entity, either in the current or prior year.

No employees received emoluments (excluding pension costs) in excess of £60,000 per annum.

8 Remuneration and payments to Trustees and persons connected with them

No trustees or persons connected with them received any remuneration from the charity, or any related entity.

9 Tangible fixed assets

9 Tangible fixed assets
Current Year Plant & Motor Total
Machinery Vehicles
£ £ £
Cost
At 1 April 2023 11,940 - 11,940
Additions 1,549 - 1,549
~~At 31 March 2024~~ ~~13,489~~ ~~-~~ ~~13,489~~
Depreciation
At 1 April 2023 11,273 - 11,273
Charge for the year 430 - 430
~~At 31 March 2024~~ ~~11,703~~ ~~-~~ ~~11,703~~
Net book value
At 31 March 2024 1,786 - 1,786
~~At 31 March 2023~~ ~~667~~ ~~-~~ ~~667~~

26

27

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

10 Investments held as fixed assets

Investments in Listed Other Classes Other Classes
Total
subsidiaries Investments of Investment
£ £ £ £
Carrying values of investments
At 1 April 2023 2 1,674,961 - 1,674,963
Revaluation at 31 March 2024 - 246,833 - 246,833
Disposals - (50,000) - (50,000)
~~At 31 March 2024~~ ~~2~~ ~~1,871,794~~ ~~-~~ ~~1,871,796~~

11 Subsidiary companies

The name of the subsidiary undertaking is Bath Institute for Rheumatic Diseases Trading Limited, registered in England & Wales with company number 2602509.

The aggregate amount of the holding company’s investment in its subsidiary is £2, which represents 100% of the issued ordinary share capital of the subsidiary. The subsidiary is controlled by the holding company by virtue of the power to appoint directors to the board of the subsidiary.

The subsidiary’s activities relate to those of the holding company in that the subsidiary is a trading enterprise engaging in trades similar to the charitable activities of the holding company, and donates its entire taxable trading profit to the holding company by way of gift aid. The subsidiary has been dormant for the nine years ending 31st March 2024.

A summary of the unaudited financial statements of the subsidiary is :-

12 Debtors

12 Debtors
2024 2023
£ £
Trade Debtors 5,513 8,767
Payments and accrued income 261 861
~~5,774~~ ~~9,628~~
13 Creditors: amounts falling due within one year
2024 2023
£ £
Trade creditors 42,542 14,325
Accruals 9,900 6,600
Other creditors 79,878 36,729
~~132,320~~ ~~57,654~~
14 Income and Expenditure account summary
2024 2023
£ £
At 1 April 2023
1,738,205
1,819,505
Surplus after tax for the year (131,794) (81,300)
~~At 31 March 2024~~
~~1,606,411~~
~~1,738,205~~

15 No related party transactions

There were no transactions with related parties in the year.

A summary of the unaudited financial statements of the subsidiary is :-
2024 2023
£ £
Assets and Funds
Aggregate amount of assets (231) (231)
Aggregate amounts of liabilities (316) (316)
~~Aggregate amount of funds~~ ~~(547)~~ ~~(547)~~
Profit and Loss
Net profit for the year before tax - -
~~Net prof~~i~~t for the year after tax and Gift Aid~~ ~~-~~ ~~-~~
Funds retained within charitable subsidiaries
2024 2023
£ £
The funds retained within the trading subsidiary and included
within the restricted funds in the notes to these accounts are:- - -

28

29

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

16 Particulars of how particular funds are represented by assets and liabilities

At 31 March 2024 Unrestricted Designated Restricted Total
Funds Funds Funds Funds
£ £ £ £
Tangible Fixed Assets 1,786 - - 1,786
Investments at valuation:-
Fixed asset investments 1,871,796 - - 1,871,796
Current Assets 13,705 18,478 18,193 50,376
Current Liabilities (132,320) - - (132,320)
~~1,754,967~~ ~~18,478~~ ~~18,193~~ ~~1,791,638~~
At 1 April 2023 Unrestricted Designated Restricted Total
Funds Funds Funds Funds
£ £ £ £
Tangible Fixed Assets 667 - - 667
Investments at valuation:-
Fixed asset investments 1,674,963 - - 1,674,963
Current Assets 13,058 26,886 18,679 58,623
Current Liabilities (57,654) - - (57,654)
~~1,631,034~~ ~~26,886~~ ~~18,679~~ ~~1,676,599~~

17 Change in total funds over the year as shown in Note 16 , analysed by individual funds

17 Change in total funds over the year as shown in Note 16 , analysed by individual
funds
17 Change in total funds over the year as shown in Note 16 , analysed by individual 17 Change in total funds over the year as shown in Note 16 , analysed by individual 17 Change in total funds over the year as shown in Note 16 , analysed by individual 17 Change in total funds over the year as shown in Note 16 , analysed by individual
Funds brought Movement in Funds brought Movement in Funds brought Movement in
Transfers Funds carried
Transfers Funds carried
forward from funds in between forward to
2023 2024 funds in 2024 funds in 2024
2025
See Note 18 See Note 19 See Note 18 See Note 19
£ £ £ £
Unrestricted and designated funds:-
Unrestricted Revenue Funds 1,631,034 115,436 8,497 1,754,967
Designated Revenue Funds 26,886 - (8,408) 18,478
~~Total unrestricted and designated funds~~ ~~1,657,920~~ ~~115,436~~ ~~89~~ ~~1,773,445~~
Restricted funds:-
Restricted - CRPS Conference 1,121 - - 1,121
Restricted - Bone and Joint 14,145 - - 14,145
Restricted - Arthritis Grand Challenge 67 - (67) -
Restricted - Metabolic Bone Disease 3,346 (397) (22) 2,927
~~Total restricted funds~~ ~~18,679~~ ~~(397)~~ ~~(89)~~ ~~18,193~~
~~Total charity funds~~ ~~1,676,599~~ ~~115,039~~ ~~-~~ ~~1,791,638~~

18 Analysis of movements in funds over the year as shown in Note 17

Other
Income Expenditure Gains & Movement
Losses in funds
2024 2024 2024 2024
£ £ £ £
Unrestricted and designated funds:-
Unrestricted Revenue Funds 106,811 (238,208) 246,833 115,436
Restricted funds:-
Restricted - Metabolic Bone Disease 75 (472) - (397)
~~106,886~~ ~~(238,680)~~ ~~246,833~~ ~~115,039~~

19 Details of transfers between

19 Details of transfers between
The transfers shown in note 17 above are:- 2024
£
To/(from) Unrestricted Revenue Funds in accordance with
the accounting policy ‘Accounting for capital grants and
fixed asset funds’. 8,497
To/(from) Designated Revenue Funds (8,408)
To/(from) Restricted Revenue Funds (89)
~~Net transfers~~ ~~-~~

20 The purposes for which the funds

Unrestricted and designated funds:-

Unrestricted Revenue Funds These funds are held for the meeting the objectives of the charity, and to provide
reserves for future activities, and , subject to charity legislation, are free from all
restrictions on their use.
Designated Revenue Funds Funds specific for this purpose.
Restricted funds:-
Restricted Revenue Funds Funds specific for this purpose.

21 Ultimate controlling party

The charity is under the control of its legal members.

Every member of the charity is obliged to contribute such amount as may be required not exceeding £1 to the assets of the company in the event of its being wound up while he or she is a member, or within one year after he or she ceases to be a member.

30

31

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

22 Donations, Grants and Legacies

22 Donations, Grants and Legacies
Current year Current year Current year Prior Year Current year Current year Current year Prior Year Current year Current year Current year Prior Year Current year Current year Current year Prior Year
Unrestricted Unrestricted
Restricted
Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Donations and gifts from individuals
Donations 38,462 - 38,462 52,301
~~Total donations and gifts from individuals~~ ~~38,462~~ ~~-~~ ~~38,462~~ ~~52,301~~
Legacies receivable
Legacies receivable 2 - 2 39
~~Total legacies receivable~~ ~~2~~ ~~-~~ ~~2~~ ~~39~~
Total Donations, Grants and Legacies
~~Total Donations, Grants and Legacies A1~~ ~~38,464~~ ~~-~~ ~~38,464~~ ~~52,430~~

Notified of a share of the estate of Hedley John Stephens yet to be realised.

23 Income from charitable activities - Trading Activities

Current year Current year Current year Current year Prior Year Current year Current year Current year Prior Year Current year Current year Current year Prior Year Current year Current year Current year Prior Year
Unrestricted Unrestricted
Restricted
Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Primary purpose and ancillary trading
Education income 1,923 75 1,998 43,287
Other and recharged income 105 - 105 1,139
Service charges - BGPERT 17,558 - 17,558 17,561
Service charges - BRIT PACT 4,964 - 4,964 4,658
~~Total Primary purpose and ancillary trading~~ ~~24,550~~ ~~75~~ ~~24,625~~ ~~66,645~~

24 Total Income from charitable activities

Current year Current year Current year Prior Year Current year Current year Current year Prior Year Current year Current year Current year Prior Year Current year Current year Current year Prior Year
Current year Unrestricted Unrestricted
Restricted
Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Total income from charitable trading 24,550 75 24,625 66,645
~~Total from charitable activities A2~~ ~~24,550~~ ~~75~~ ~~24,625~~ ~~66,645~~
Not all the income in the prior year was unrestricted.
Income from charitable activities - Prior Year analysis
Prior year Prior year Prior Year Prior Year
Unrestricted Restricted Total Funds
Prior Year Funds Funds
2023 2023 2023
£ £ £
Total income from charitable trading 66,495 150 66,645
~~66,495~~ ~~150~~ ~~66,645~~
25 Investment income
Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year
Prior Year
Unrestricted Restricted Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Dividend Income 43,797 - 43,797 44,462
~~Total investment income A4~~ ~~43,797~~ ~~-~~ ~~43,797~~ ~~44,462~~

26 Expenditure on charitable activities - Direct spending

Not all the trading activities in the prior year were unrestricted

Prior Year Prior year Prior Year Prior Year
Unrestricted Restricted Total Funds
Funds Funds
2023 2023 2023
£ £ £
Primary purpose and ancillary trading
Education income 43,287 - 43,287
Other and recharged income 989 150 1,139
Service charges - BGPERT 17,561 - 17,561
Service charges - BRIT PACT 4,658 - 4,658
~~Total Primary purpose and ancillary trading~~ ~~66,495~~ ~~150~~ ~~66,645~~
Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year Prior Year
Unrestricted Restricted Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Labour costs - charitable activities 133,060 - 133,060 119,611
Education costs 7,269 472 7,741 42,273
PPE Project costs 2,344 - 2,344 8,545
~~Total direct spending B2a~~ ~~142,673~~ ~~472~~ ~~143,145~~ ~~170,429~~

Not all the expenditure in the prior year was unrestricted.

32

33

Notes to the Accounts for the year ended 31 March 2024

Notes to the Accounts for the year ended 31 March 2024

27 Expenditure on charitable activities- Grant funding of activities

Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year Prior Year
Current Year Unrestricted Restricted Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Grants made to individuals 63,776 - 63,776 49,739
~~Total grantmaking costs B2c~~ ~~63,776~~ ~~-~~ ~~63,776~~ ~~49,739~~

28 Support costs for charitable activities

~~Total grantmaking costs B2c~~
28 Support costs for charitable activities
~~63,776~~
~~-~~
28 Support costs for charitable activities
~~63,776~~
~~-~~
28 Support costs for charitable activities
~~63,776~~ ~~63,776~~ ~~49,739~~
Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year
Prior Year
Current Year Unrestricted Restricted Total Total Total
Funds Funds Funds Funds Funds
2024 2024 2024 2024 2023
£ £ £ £
Premises Expenses
Rent 3,300 - 3,300 3,300 6,000
Administrative overheads
Telephone, fax and internet 1,034 - 1,034 1,034 760
Stationery and printing 1,151 - 1,151 1,151 423
Marketing and promotion 14,926 - 14,926 14,926 5,307
Registration and licensing 1,622 - 1,622 1,622 1,068
IT support costs 2,380 - 2,380 2,380 1,867
Sundry expenses - - - - 720
Recharged expenses 72 - 72 72 1,189
Insurance 547 - 547 547 440
Trustees costs 177 - 177 177 -
Hospitality 472 - 472 472 -
Travel 20 - 20 20 67
Professional fees paid to advisors other than the auditor or examiner
Accountancy fees other than
examination or audit fees 4,033 - 4,033 4,033 3,660
Other legal and professional 1,017 - 1,017 1,017 1,526
Financial costs
Bank charges 116 - 116 116 116
Depreciation 430 - 430 430 276
~~Total support costs~~ ~~31,297~~ ~~-~~ ~~31,297~~ ~~31,297~~ ~~23,419~~
Current year Current year Current year Current year
Prior Year
Unrestricted Restricted Total Funds
Funds Funds
2024 2024 2023
£ £ £
Recharged expenses
Support costs before reallocation
595
22,825
594
594
1,189
23,419
~~Total support costs - Prior Year~~ ~~22,825~~ ~~594~~ ~~23,419~~ ~~23,419~~

29 Other Expenditure - Governance costs

Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year Prior Year
Current Year Unrestricted Restricted Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Independent Examiner’s fees 462 - 462 450
~~Total Governance costs~~ ~~462~~ ~~-~~ ~~462~~ ~~450~~

All the expenditure in the prior year was unrestricted.

30 Total Charitable expenditure

Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year Current year Current year Current Year
Prior Year
Current Year Unrestricted Restricted Total Total
Funds Funds Funds Funds
2024 2024 2024 2023
£ £ £ £
Total direct spending B2a 142,673 472 143,145 170,429
Total grantmaking costs B2c 63,776 - 63,776 49,739
Total support costs B2d 31,297 - 31,297 23,419
Total Governance costs B2e 462 - 462 450
~~Total charitable expenditure~~ ~~B2~~ ~~238,208~~ ~~472~~ ~~238,680~~ ~~244,037~~
Prior year Prior Year Prior Year
Unrestricted Restricted Total Funds
Prior Year Funds Funds
2023 2023 2023
£ £ £
Total direct spending B2a 170,429 - 170,429
Total grantmaking costs B2c 49,739 - 49,739
Total support costs B2d 22,825 594 23,419
Total Governance costs B2e 450 - 450
~~Total charitable expenditure~~ ~~B2~~ ~~243,443~~ ~~594~~ ~~244,037~~

34

35

Trustees’ Annual Report for the year ended 31 March 2024

Trustees’ Annual Report for the year ended 31 March 2024

415 2s GRANTS AWARDED \ 7] HEALTH FOR RESEARCH PROFESSIONALS ATTENDING 7@ £63,551 TRAINING | SESSIONS

90% OF THOSE15 ATTENDING THE OPPORTUNITIES RESEARCH TO PARTICIPATE IN SHOWCASE SAID RESEARCH THEY WERE MORE OFFERED TO LIKELY TO GET PATIENTS INVOLVED IN eww RESEARCH

20,000 LISTENS TO PODCASTS

Overall, the charity’s beneficiaries: scientific academia and patients, carers and their families benefitted from better understanding of rheumatic diseases and their treatment, thereby contributing to the alleviation of suffering.

36

37

ANNUAL REPORT AND ACCOUNTS 31 March 2024

Company Registration Number 0290893338 Charity Registration Number 1040650