## **Annual Report The GEM Appeal Charity Number 1040083** 08 May 2025 Annual report for the year 01/01/2024 – 31/12/2024 The Royal Manchester Childrens Hospital Genetic Trust (GEM Appeal) is constituted by Deed of Trust and is a registered charity, number 1040083. Its address is 6 Yealand Close, Bamford, Rochdale. OL11 4DL. The charity trustees at the start and end of the year were as follows: Mrs Karen Johnson (Chairperson) Mrs Katie Duxbury (Vice Chairperson) Mr Garry Whitworth (Treasurer) Mrs Wendy Mills (Secretary) Mr Peter Johnson Mrs Joy Whitworth Mr David Howles Mrs Lynn Howles Mrs Judith Paraschack Mr Robert Rawsthorne As usual our AGM was held in January (2025) and reviewed the previous year’s activity. Fund raising went ahead with our usual events all taking place and included the following: 10k Sponsored Walk The Strawberry Sparkle Ladies Lunch The Annual Winter Ball hosted by Denise Welch The Welders Ball The Christmas Afternoon Tea. We also managed to arrange another Ladies Fashion Show which this year was by Fizz Fashions and a quiz which proved so popular that we are hoping to make it an annual event. The year 2024 was a special year for the charity as it was its 30 year anniversary and in view of that it was decided to bring back the previously popular summer ball. This coincided with the reopening of the newly refurbished Rochdale Town hall and became one of the first events to take place in the newly revamped building and despite the extremely hard work needed to facilitate the event it proved to be yet another great success. The one thing that came as a setback to the charity was that after the Winter Ball in November, Denise Welch, our patron, decided that she was unable to continue to host the winter ball and be involved with the charity in the way that she had in the past. This was as a result of a serious illness she had had and was actually unable to attend the ball on the night. As our biggest and best fundraiser this is a big setback and despite discussions at the AGM and many subsequent conversations we are unable to find somebody willing or capable of doing what Denise did for the charity and in view of the timescale for booking rooms venues etc it was decided that for now the Winter Ball would not go ahead. This does not mean that if we find a replacement for Denise we won’t consider reinstating the event in future years. The unit asked again if we could look at raising further funds to extend the contract of the research scientist and we paid over £48k to fund her ongoing employment. The year of 2024 proved to be one of our better ones and with the money raised we were able to continue with the funding as requested and carry over around £20k to kick off the 2025 fundraising effort. The aims of the charity will again remain the same and are as follows: Funding to provide research into incurable genetic diseases and potential cures Provision of equipment to improve treatment and help with the above. All of our trustees wished to remain in post and the same officers as in 2024 were voted in for 2025. 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Salford Shopping Centre, 10-12 Hankinson Way, Salford, M6 5JA RMCH GENETICS TRUST (GEM APPEAL) Report of the Trustees for the year ended 31 December 2024 The Trustees present their report and financial statements for the year ended 31 December 2024. The charity is registered, No. 1040083. with the Charity Commission in England and Wales. Objectives and activitles for the public beneflt The Gem Appeal was established in 1994 with the purpose of providing relief to children and young people suffering metabolic disease. The charity's governing document is its deed dated 8 August 1994 which gives the trustees the power to apply the funds in such a manner as they think fit for the benefit of any charitable objective or purpose. The aim of the charity is to fund research and support at the Manchester Children's Hospital and as such the charity does not make grants to people or organisations whom apply speculatively. To meet this aim the charity hosts a number of charitable fundraising events throughout the year. The Winter Ball is the most significant in the charity's calendar, which is held with celebrity patrons. The trustees confimi that they have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives. in planning future activities and setting the policies for the year. Structure, governance and management The charity deed now provides for a minimum of 5 and a maximum of 11 trustees. Where there is a requirement for new trustees, these would be identified and appointed by the remaining trustees. The trustees used the Powers of Amendment in Section 6 of the Trusl Deed to vary the maximum number of trustees to 11. The chair of the trustees is responsible for the induction of any new trustee. This involves awareness of a trustee's responsibilities, the goveming document, administrative procedures, the history and philosophical approach of the charity- Achievements and perfonnance During the year the charity has generated funds of £107,806 (2023 - £49,134). Total costs in generating these funds amounted to £89,613 (2023 £38.647) resulting in a surplus of £18,193 (2023 - £10.487) The charity has been able to continue its support of the Manchester Children's Hospital. The support of Manchester Children's Hospital remains the focus of the ongoing work of trustees. RMCH GENETICS TRUST (GEM APPEAL) Report of the Trustees for the year ended 31 December 2024 (continued) Reserves Pollcy The trustees aim to secure sufficient regular income and a reserve balance to be able to meet its objectives. Flnanclal rfsk management objectlves and pollcles The charity makes little use of financial instruments other than operational bank accounts with reputable banks, so its exposure to price risk, credit risk, liquidity risk and cash flow risk is not material for the assessment of the assets, liabilities, financial position and net movement of funds of the charity. Plans for the future The trustees are committed to continue providing support to the Manchester Children's Hospital and in particular placing emphasis on providing further donations for new capital expenditure and vital research to the Willink Unit. Statement of Trustees. responslbllltles Law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the charity's financial activities during the year and of its financial position at the end of the year. In preparing financial statements giving a true and fair view, the trustees should follow best practice and: select suitable accounting policies and then apply them consistently. make judgements and estimates that are reasonable and prudent; state whether applicable accounting standards and statements of recommended practice have been followed, subject to any material departure disclosed and explained in the financial statements., and prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation. The trustees are responsible for keeping accounting records which disclose with reasonable accuracy the financial position of the charity, which enable them to ascertain the financial position of the charity, and which enable them to ensure that the financi81 statements comply wilh the Charities Act 2011 and the Charity (Accounts and Reports) Regulations 2008. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and breaches of law and regulations. RMCH GENETICS TRUST (GEM APPEAL) Report of the Trustees for the year ended 31 Decembkr 2024 (contlnued) The Iruslees are responsible for Ihe ma1ntenan￿ and integrity of the corpor81e and financial infurmalion Includod on Ihe charity's website. Legislalion in Ihe Uniled Kingdom goveming the preparation and disseTninalion ol financial slalements may differ from legislation in other lurfsdictlons. By order of the 808rd of Trustees K Johnso Chairperson Oate., 28 Aprll 2025 RMCH GENETICS TRUST (GEM APPEAL) Independent Examiner's report to the Trustees of RMCH GENETICS TRUST (GEM APPEAL) I report to the trustees on my examination of the accounts of the above Trust for the year ended 31 De￿mber 2024. Responsibilities and basis of report As the charity's trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (the Act). I report in respect of my examination of the Trust's account carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. Independent examiner's statement I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in. any material respect: the accounting records were not kept in accordance with section 130 of the Charities Act; or the accounts did not accord with the accounting records., or the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in Charities (Accounts and Report) Regulations 2008 other than any requirement that the accounts give a 'true and fair, view which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. Slmon Gretton Watson Thompson Jones Business Solutions Limited 2 Heap Bridge Bury Lancashire BL9 7HR Date: 28 April 2025 RMCH GENETICS TRUST (GEM APPEAL) statement of Financial Activities for the year ended 31 December 2024 Notes Total Funds 2024 Total Funds 2023 Incoming resources Incoming resources from generated funds: Voluntsry income Activities for generating funds 4,639 103,167 3,466 45,668 Total incoming resources 107,806 49.134 Resources expended Cost of activitses generating funds Cost of generating voluntary income Charitsble activities Govemance costs 37.872 1,084 48,147 2,510 35.803 274 2.570 Total resources expended 89,613 38.647 Net movement In funds 18.193 10,487 Fund balances broughl forward at 1 January2024 57,919 47,432 Fund balances carrled fonvard at 31 December 2024 76,112 57,919 No activity was discontinued during the year ended 31 December 2024. There were no gains or losses other than those reported above. All the above represent unrestricted funds. The notes on pages 8 to 11 form part of these financial statements. RMCH GENEfics TRUST (GEM APPEAL) Balance shèot at 31 Decembor 2024 2024 2f23 current￿$￿ts Ddbto Cash at bank 313 78,619 4. 55,989 78.S32 60,489 Cr8dltor8: knounts fallirtg du• wilhin on• year 12.8201 12.5701 Totrl •$$¢ts 76,112 57.919 Funded by. Unrestrlcted funds 57,919 The financial slaternents on pages 6 to 11 were approved and authoiised for issue by the Tfustees on K Johnson Trustee G Whrtworth Trustee The note5 on page 8 to 11 fomi part of these ffinancial ststemerrts. RMCH GENETICS TRUST (GEM APPEAL) Notes forming part of the financlal statements for the year ended 31 December 2024 Accounting policies Basis of Accounting The financial statements have been prepared under the historical cost convention and in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing accounts in accordance with the Financial Reporting Standard applicable in the UK (FRS102) (effective 1 January 2015). The principal accounting policies adopted in the preparation of the financial statements are set out below. Incoming Resources All incoming resources are recognised once the charity has entitlement to the resources, it is certain that the resources will be received and the monetary value of incoming resources can be measured with sufficient reliability. Income from donations and other similar incoming resources are included in the year in which they are receivable. Donations Donations are accounted for when approved for payment by the trustees. Resources expended Liabilities are recognised as expended as soon as there is a legal or constructive obligation committing the charity to the expenditure. All expenditure is accounted for on an accnjals basis and has been classified under hesdings that aggregate all costs related to that category. The costs of generating funds in relation to charitable activities include all those resources incurred by the charity in undertaking its work to meet those charitable activities. Such costs include the direct costs of the charitable activity together with those support costs incurred to enable those activities to be undertaken. Governance costs include the costs of arrangements which relate to the general running of the charity as opposed to the direct management functions inherent in generating funds. RMCH GENETICS TRUST (GEM APPEAL) Notes fomiing part of the financial statements for the year ended 31 December 2024 Fund accounting Unrestricted funds are available for use at the discretion of the trustees in fijrtherance of the general objectives of the charity. Restricted funds are funds subject to specific restrictive conditions imposed by donors. The permitted use of the restricted funds is set out in the notes to the financial statements. Voluntary labour The charity benefits from the many hours of voluntary labour donated by its supporters in relation to fundraising and administration. The value of these goods has not been evaluated. Voluntary Income 2024 2023 Donations and gifts 4,639 3,466 Activities for generatlng funds 2024 2023 Event fundraising 103,167 45,668 RMCH GENETICS TRUST (GEM APPEAL) Notes forming part of the financial statements for the year ended 31 December 2024 Trustee remuneratlon Trustees received no remuneration (2023 - £Nil). Debtors 2024 2023 Fundraising debtors Prepaymenls 4,500 313 313 4,500 Creditors: amounts falling due wlthln one year 2024 2023 Accruals and deferred income Trade creditors 2.640 180 2,570 2,820 2,570 Trustees Indemnlty Insurance The charity does not pay any indemnity insurance on behalf of the trustees. Contlngent Ilabllltles There are no contingent liabilities of a material amount for which provision has not been made in the financial statements. 11 Capital commitments There were no capital commÉtments at 31 December 2024 (2023 - £Nil). 12 Ultlmate controlllng party The charity's ultimate controlling paty is its board of trustees.