17 April 2024 ## Annual Report. The GEM Appeal Charity Number 1040083 Annual report for the year 01/01/2023 – 31/12/2023. The Royal Manchester Children’s Hospital Genetic Trust (GEM Appeal) is constituted by deed of trust and is a registered charity, no 1040083. Its address is 6 Yealand Close, Bamford Rochdale OL11 4DL. The charity trustees at the start of the year were as follows: Mrs Karen Johnson (Chair) Mrs Katie Duxbury (Vice Chair) Mr Garry Whitworth (Treasurer) Mrs Wendy Mills (Secretary) Mr Peter Johnson Mrs Joy Whitworth Mr David Howles Mrs Lynn Howles Mrs Judith Paraschack Mr Robert Rawsthorne Mr Mario Burian. Due to time restrictions the charity was unable to hold the AGM until February and at the AGM the trustees reflected and analysed the past year and what it meant for the charity. The officers and trustees were re-elected and at this point Mr Mario Burian proffered his resignation for personal reasons. Whilst all the trustees were sorry that Mario was leaving they all understood and thanked Mario for his support and service to the charity. In return Mario did say that he would continue to support the charity where and when he could. It was also decided that Mario would not be replaced as we would now be back to our original number of trustees (ten) something we said we would do when we originally upped our number to allow Katie Duxbury to become a trustee. We ran our annual events as usual and it was noted that whilst we no longer had the problem of the Covid pandemic the cost of living crisis was biting hard and had an adverse effect on our events. It has to be said that none of the events made a loss, however, the profit margin was reduced on most of the events. We as a charity were grateful that people turned up and despite not being able to support us with as much cash as in previous times, still enabled us to make a profit at each event. The sponsorship deals we enjoyed in the past also did not emerge during 2023 and this had an adverse effect on our Winter Ball which showed quite a large drop in profits when compered to previous years but nevertheless still was our biggest earner of the year. On top of this the company we used to help set up the event ceased to exist at 31 December 2023 which meant we had to find another company for the 2024 winter ball. We were lucky that the person who originally owned the company and then sold it came back in to the picture and started again by taking on our event for November 2024. As stated in previous reports the monies we raise were being used to fund a research scientist at the Willink unit and the scientist was put in to place during 2023. The unit asked us to continue raising funds to extend the contract of the scientist for another year and if sufficient funds were available, another eighteen months. All the trustees were in agreement that this should be our aim and we have raised enough funds to extend the contract for twelve months. We are presenting the cheque to the unit on 17 April and this then takes the contract of the scientist through to June 2025 and we intend to continue our fund raising with a view to funding a further six months as per the unit’s request. As can be seen from the above statement the aims of the charity remain the same: Funding to provide research into incurable genetic diseases in children, treatments and potential cures. Provision of equipment to improve treatment and help with the above. As always the AGM ended with the recognition of the time donated and the efforts put in by everyone associated with the charity and the fact that everybody involved is a volunteer and does not receive any form of reward for their time and efforts 0ooooojooooo￿oooo OQOOONC*OOOOOOOOO (ti￿01r￿0￿0OLnoooN0oWIriO 000 000 mooNLn oS¢NN Ja ozz Z500È2eE. 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Salford, M6 5JA RMCH GENETICS TRUST (GEM APPEAL) Report of the Trustees for the year ended 31 December 2023 The Trustees present their report and financial statements for the year ended 31 December 2023. The charity is registered, No. 1040083. with the Charity Commission in England and Wales. ObJ•ctives and activities for the publlc benefft The Gem Appeal was established in 1994 wrth the purpose of providing relief to children and young people SLrffering rnetabolic disease. The charrty's goveming document is its deed dated 8 August 1994 which gives the trustees the power to apply the funds in such a manner as they think fft for the benefit of any charitable objective or purpose. The aim of the charity is to fund research and support at the Manchester Children's Hospital and as such the charty does not make grants to people or organisations whom apply speculakn'vely. To meet this aim the charity hosts a number of charTtable fundraising events throughout the year. The Winter Ball is the most significant in the charty's calendar, which is held with celebrrty patrons. The trustees confirm that they have referred to the guidance contained in the Charity Commission's general guidance on public benefft when reviewing the chanty's aims and objectives, in planning future activrties and setting the policies for the year. Structure, governance and managemont The charity deed now provides for a minimum of 5 and a maximum of 11 trustees. Where there is a ￿quIrernent for new trustees, these would be identrfied and appointed by the remaining trustees. The trustees used the Powers of Amendment in Sects'on 6 of the Trust Deed to vary the maximurn numter of trustees to 11. The chair of the trustees is ￿spOnSible for the induction of any new trustee. This involves awareness of a trustee's responsibilities, the goveming document, administralive procedures. the history and philosophical approach of the charty. Achlevements and perforniance During the year the chanty has generated funds of £49.135 (2022 £65,889). Total costs in generating these funds amounted to £38,647 (2022 - £35,803) resulb'ng in a surplus of £10,487 (2022 - £30,085). The charity has been able to continue its support of the Manchester Children's Hospital. The support of Manchester Children's Hosprtal ￿MaInS the focus of the ongoing work of trustees. RMCH GENETICS TRUST (GEM APPEAL) Report of the Trustses for the year ended 31 December 20231continued) Reserves Policy The trustees aim to secure sufficient regular income and a reserve balance to be able to meet its objectives. Financial risk management objectives and policies The charity makes Irttle use of financial instruments other than operational bank accounts with reputable banks, so rts exposure to price risK credrt risk, liquidty risk and cash flow risk is not material for the assessment of the assets, liabilities. financial position and net movement of funds of the charty. Plans for the future The trustees are committed to continue providing support to the Manchester Children, Hospital and in particular placing emphasis on providing further donations for new capital expenditure and vital research to the Wllink Unrt. Statsment of Tn￿tees, responsibilities Law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the charity's financial activities during the year and of Its financial position at the end of the year. In preparing financial statements giving a true and fair view, the trustees should follow best practice and.. select suitable accounting policies and then apply them consistently,. make judgements and estimates that are reasonable and prudent., state whether applicable accounting standards and statements recommended practice have been followed, subject to any material departure disclosed and explained in the financial statements. and prepare the financial statements on the going concem basis unless it 18 inappropriate to presume that the charrty will continue in operation. The trustees are responsible for keeping accounting records which disclose with reasonable accuracy the financial posrtion of the charrty, which enable them to ascertain the financial position of the charity, and which enable them to ensure that the financial statements comply wrth the Charrties Act 2011 and the Charity (Accounts and Reports) Regulations 2008. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and breaches of law and regulations. RMCH GENETICS TRUST (GEM APPEAL) Report of the Trustses for the year ended 31 Decernber 2023 (continued) The trustees are responsib￿ for the Maintenan￿ and integrity of the corporate and financial information induded on the chanty's webstte. Legislation in the United Kingdom goveming the preparation and dissemination of financial ststements may differ from legislation in other Junsdictions. y order of the Board of Trustses K Johnson Chalrperson Dats: 10 Aprfl 2024 RMCH GENETICS TRUST (GEM APPEAL) Independent Examinerfs report to the Trustees of RMCH GENETICS TRUST (GEM APPEAL) l ￿pOrt to the trustees on my examination of the accounts of the above Trust for the year ended 31 December 2023. Responsibilities and basis of report As the charity's trustees. you a￿ responsible for the preparatj'on of the accounts in accordance with the requirements of the Chanties Act 2011 (the Act) I report in respect of my examinats'on of the Trust's account carried out under section 145 of the 2011 Act and in carrying out my examination. I have followed all the all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. Independent examinof s statement I have completed my examination. I confimi that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect: the accounting records were not kept in accordance with section 130 of the Charities Ad; or the accounts did not accord wrth the accounting records.. or the accounts did not comply with the applicable requirements conceming the fom and content of accounts set out in Chanties (Accounts and Report) Regulations 2008 other than any requirement that the accounts give a true and faiff view which is not a matter considered as part of an independent examination. I have no concems and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper unders nding of the accounts to be reached. Carl Umiston (ACA) Thompson Jones Business Solutions Limited 2 Heap Bridge Bury Lancashiro BL9 7HR Date: 10 April 2024 RMCH GENETICS TRUST (GEM APPEAL) Statement of Financial Activities for the year ended 31 December 2023 Not88 Total Funds 2023 Total Fund8 2022 Incoming rnsources Incomlng rosourcos from genernted funds: Voluntary income Activities for generating funds 3,466 45.668 3,990 61,899 Total Incomlng resourc88 49,134 R680urce8 expended Cost of activities generating funds Cost of generating voluntary income Charitable activities Governance costs 35,803 274 33,332 62 66,384 2,410 2,570 Totsl r•8ource8 expended 38,647 102 188 Net movement in fund8 10,487 136,299) Fund balances brought fomard at 1 January 2023 83,731 Fund balances carrfed forward at 31 December 2023 No activity was disconb'nued during the year ended 31 De¢ember 2023. There were no gains or losses other than those reported above. All the above represent unrestricted funds. The notes on pages 8 to 11 form part of these financial statements. RMCH GENETICS TRUST (GEM APPEAL) Balance sheet at 31 December 2023 Notes 2023 2022 Current Assets Debtors Cash at bank 4.500 55,989 29.036 20,836 49.872 49,872 Credltorg: Amounts falllng due within one year (2,570) 12,440) Total assets 57.919 Funded by: Unrostricted lunds 57.919 The financial statements on pages 6 to 11 were approved and authorised for issue by the Trustees on 10 April 2024 K Johnson Trustee G Whitworth Trustee The notes on page 8 to 12 form part of these financial ststements. RMCH GENETICS TRUST (GEM APPEAL) Notes fomilng part of tho flnancial statements for the year ended 31 Decembor 2023 Accountlng policies Basis of Accounting The financial statements have been prepared under the htstorical cost convenbon and in accordance wrth Accounting and Reporting by Charities: Statement of Recommended Practice applicable to chanties prepanng accounts in accordance with the Financial Reporting Standard applicable in the UK {FRS102} (effective 1 January 2015). The principal accounting policies adopted in the preparation of the financiai statements are set out below. Incoming Resources All incoming resources are recognised once the charty has entitlement to the resources, rt is certain that the reSoUr￿S will be recerved and the monetary value of incoming reSoUr￿S can be measured with sufficient reliability. Income from donations and other &milar incoming resources are included in the year in which they a￿ receivable. Donatlon8 Oonations are accounted for when approved for payment by the trustees. Resourc￿ exponded Liabilities are recognised as expended as soon as there is a legal or constructs've obligation committs'ng the chanty to the expendrture. All expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to that category. The costs of generating funds in relation to charrtable aCtsVrt￿S include all those resources incurred by the chanty in undertaking ts WOTk to meet those chantable activities. Such costs include the direct costs of the charitable actNty together with those support costs incurred to enable those acbvibes to be undertaken. Govemance costs include the costs of arrangements which ￿late to the general running of the charity as opposed to the direct management fvnthons inherent in generab.ng funds RMCH GENETICS TRUST (GEM APPEAL) Notss fornilng part of the financial ststements for the year ended 31 December 2023 Fund accounting Unrestncted funds are available for use at the discretion of the trustees in fijrtherdnce of the general objectives of the chanty. Restricted fijnds a￿ funds subject to specific reslnth've conditions imposed by donors. The pennitted use of the restricted funds is set out in the notes to the financial ststements Voluntsry labour The charity beneffts from the many hours of voluntary labour donated by its supporters in relation to fundraising and administration. The value of these gLJxls has not been evaluated. Voluntary Incoma 2023 2022 Donations and gifts Actfvitles for generatlng funds 2023 2022 Event fundraising RMCH GENETICS TRUST (GEM APPEAL) Notes fomilng part of the financlal statements for the year ended 31 Decem￿1 2023 Trustee remuneratlon Trustees received no remuneration {2022 - £Nil). Debtors 2023 2022 FUndra￿Ing debtors All arrnunts shown as debtors frdll due for payment within one year. Crodltors: amounts falllng duo wlthln ono year 2023 2022 Accruals and deferred income Tru8toe8 Indomnlty insurance The charty does not pay any indemnty insurance on behalf of the trustees. 10 Contlngent Ilabllltie• There are no conkn'ngent liabilib'es of a m*nal amount for which provision has not been made in the financial ststements. 11 Capltal commltments There were no capitsl comm[ln￿nts at 31 December 202312022 - £Nil). Uttlmat8 controlllng party 12 The charty's ultimats controlling paty is ils board of trustees. 11