# THE TUBEROUS SCLEROSIS ASSOCIATION

## Details

- **Country:** England & Wales
- **Charity number:** 1039549
- **Other names:** TSA
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Sept. 14, 1994
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1039549


## Contact

- **Address:** The TSA, Courtenay House, Pynes Hill, EXETER
- **Postcode:** EX2 5AZ
- **Phone:** 0300 222 5737
- **Email:** admin@tuberous-sclerosis.org
- **Website:** www.tuberous-sclerosis.org



## Activities

**Objects:** TO PROMOTE THE CARE WELFARE  TREATMENT INTEREST  EDUCATION AND ADVANCEMENT OF PERSONS SUFFERING FROM TUBEROUS SCLEROSIS AND RESEARCH INTO ITS CAUSE AND CURE INCLUDING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

**Activities:** The TSA:-supports individuals affected by Tuberous Sclerosis Complex(TSC), together with their families and carers;-encourages and supports research into the causes and management of TSC; and-provides education, publicity and information to promote awareness of the problems caused by TSC.

**Area of benefit:** NOT DEFINED (IN PRACTICE GREAT BRITAIN AND NORTHERN IRELAND)




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £656551 | £468469 | £1299561 | 9 |
| Dec. 31, 2023 | £361627 | £325334 | — | — |
| Dec. 31, 2022 | £284640 | £359049 | — | — |
| Dec. 31, 2021 | £443454 | £476367 | — | — |
| Dec. 31, 2020 | £418746 | £614314 | — | — |



## Trustees

- **Dr Frances Elmslie** (Chair) — appointed June 8, 2019
- Annemarie Cotton — appointed June 8, 2019
- DR CHRIS KINGSWOOD
- Jane Rogers — appointed June 8, 2019
- Sanjay Sethi — appointed Nov. 10, 2018
- Simon John James — appointed Nov. 28, 2023
- Stacey Louise Rose — appointed Nov. 18, 2024