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2022-03-31-accounts

Endometriosis UK Annual Report for year ended 31 March 2022

Endometriosis UK

Annual report and financial statements for the year ended 31 March 2022

Company no. 2912853

Charity no. 1035810 OSCR no. SC051651

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Endometriosis UK Annual Report for year ended 31 March 2022

Contents

For the year ended 31 March 2022

This Trustee and Directors’ report provides an overview of performance in relation to our key objectives and of future plans. It includes key performance data and the stories of some of those Endometriosis UK has helped, in addition to financial summaries and analysis.

Page
Reference and administrative information 3
Trustees’ annual report 5
Independent auditor’s report 26
Statement of financial activities (incorporating an income and expenditure account) 30
Balance sheet 31
Statement of cash flows 32
Notes to the Financial Statements 33

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Endometriosis UK Annual Report for year ended 31 March 2022

Reference and administrative information

For the year ended 31 March 2022

Endometriosis UK is a company limited by guarantee and a registered charity.

Company number 2912853 Country of incorporation United Kingdom Country of registration England & Wales Charity Number 1035810 Country of registration Scotland Charity Number SC051651

Registered office and operational address 10 – 18 Union Street, London SE1 1SZ

Trustees Trustees, who are also directors under company law, who served during the year and up to the date of this report were as follows:

Liz Campbell Chair Tracey Hammonds Treasurer Sanchia Alasia Sarah Atkinson Anna Cooper Andy Glyde Andrew Horne Sera Miller Dr Veena Rao Cassia Rowland Arvind Vashisht

Endometriosis UK has a skills-based Board of Trustees and trustees are recruited in order to ensure that the board has the right mix of skills and knowledge to provide effective governance. The Board of Trustees has a range of skills and experience including voluntary sector management, fundraising, financial management, primary and secondary health care and of living with endometriosis. Trustees are elected each year at the Annual General Meeting. The higher of three or one third of trustees are asked to retire each year and may offer themselves for re-election.

Company Secretary Emma Cox, CEO Endometriosis UK Key management personnel Emma Cox Bankers CAF Bank Limited PO Box 289 Kings Hill West Malling Kent ME19 4TA Solicitors Bates Wells and Braithwaite 10 Queen Street Place London EC4R 1BE

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Endometriosis UK Annual Report for year ended 31 March 2022

Auditor

Sayer Vincent LLP Chartered Accountants and Statutory Auditor Invicta House 108-114 Golden Lane London EC1Y 0TL

Medical Advisory Panel

Arvind Vashisht, Consultant Gynaecologist, University College London Hospital

Kirana Arambage, Consultant Gynaecologist, John Radcliffe Hospital, Oxford

Professor Christian Becker, Senior Clinical Research Fellow, John Radcliffe Hospital, Oxford

Professor Andrew Horne, Professor of Gynaecology and Reproductive Sciences, Edinburgh University Shaheen Khazali, Consultant Gynaecologist, Ashford & St Peter’s NHS Foundation Trust

Dr Uma Marthi, General Practitioner with special interest in women’s health, Rochdale

Dr Veena Rao, General Practitioner with special interest in women’s health, Cumbria

Fevzi Shakir, Consultant Gynaecologist, Royal Free Hospital

Dr Katy Vincent, Associate Professor, Senior Fellow in Pain in Women, John Radcliffe Hospital, Oxford

The Trustees present their report and the audited financial statements for the year ended 31 March 2022.

Reference and administrative information set out on pages 3 and 4 forms part of this report. The financial statements comply with current statutory requirements, the memorandum and articles of association, the requirements of a directors’ report as required under company law, and the Statement of Recommended Practice – Accounting and Reporting by Charities: SORP applicable to charities preparing their accounts in accordance with FRS102.

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Endometriosis UK Annual Report for year ended 31 March 2022

About endometriosis

Endometriosis is a gynaecological condition where tissue similar to the lining of the womb (the endometrium) grows in other areas of the body, most commonly within the pelvic cavity. This tissue responds to the hormonal cycle in the same way as the lining of the womb, but unlike the lining of the womb there is no way for it to exit the body. It remains within the body where the bleeding forms lesions, cysts and scar tissue (adhesions). An estimated 1.5 million women and those assigned female at birth in the UK have endometriosis - that’s 1 in 10 from puberty to menopause who suffer from this disease, although the impact may be felt for life. We do not know the percentage severely disabled by it. We currently do not know what causes the disease and there is no cure.

Endometriosis can result in inflammation, scar tissue, severe pain, painful sexual intercourse, infertility, bowel and digestive problems, bladder problems and a wide range of other symptoms. None of the symptoms are exclusive to endometriosis and diagnosis can take a long time often with multiple visits to healthcare practitioners. Currently surgery with biopsy is the only way of diagnosing it definitively. Endometriosis UK's own patient surveys have found that on average it takes 8 years from first symptoms to being diagnosed (March 2020). This figure has not changed in a decade, and is still unacceptably long. Additionally, there is a general lack of awareness about endometriosis: fewer than 50% of people asked in a survey (March 2020) were aware of the condition and even fewer knew what it was.

There is no wholly satisfactory drug therapy and often the treatment is surgery, although for many this has to be repeated. The repercussions of endometriosis can be enormous: it can affect every aspect of life, from work, ability to conceive, to relationships and overall quality of life. Since the condition is hard to see and problematic to diagnose, it can feel very isolating - coping with persistent pain, infertility and other unpleasant symptoms can also lead to depression.

Endometriosis can also have a huge effect on partners, family members and personal relationships, and all those affected may need support. This is evident from the number of partners and family members who contact the charity. Although in the past it was considered a disease of the over 30’s, increasing numbers are reporting that they are experiencing troublesome symptoms as early as their first period and sometimes even before this. There is no evidence to suggest that this is due to an increase in occurrence of endometriosis, but rather is due to the realisation at an earlier age that severe period pain is not normal. Hence help is being sought at an earlier age - something for which the charity's campaigns over many years should take credit. However, without improved diagnosis and treatment the negative outcomes of persistent pain, debilitating symptoms and potential infertility still remain.

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Endometriosis UK Annual Report for year ended 31 March 2022

Foreword

We’re proud to share with you our annual report to highlight what you have helped us achieve this year, and to set out our plans for the future. It is thanks to our incredible volunteers, medical advisors, fundraisers, partners and supporters that we are able to be here for people when they need us, and drive real change for all those affected by endometriosis in the UK.

Covid 19 continued to have a significant impact on the endometriosis community. Many found themselves still waiting for appointments or surgery cancelled, with little support from the NHS due to pandemic pressures. With no appointments, others were not able to get a diagnosis nor access the treatment they need. Waiting lists continued to rise, with gynaecology waiting lists increasing by the highest percent of all medical areas. We have taken all opportunities to raise our concerns with governments, NHS, healthcare practitioner organisations and decision makers. We have continued to ensure we are at the heart of conversations around how endometriosis care can be improved and delivered across the UK, lobbying parliamentarians in England, Northern Ireland, Scotland and Wales to ensure that governments, the NHS and society recognise the significant impact endometriosis may have on all aspects of life.

We worked hard to fill in the gaps where we could, working with our Medical Advisory Panel and healthcare practitioners to provide information and guidance, and deliver virtual support services. Our Support Group leaders supported virtual meetings, and started to return to face to face meetings when appropriate. We delivered a webinar programme in partnerships with specialist endometriosis centres across the UK, expanded our helpline and launched a new web chat service.

We have been very proud of the amazing work done by volunteers in our support network, working hard to increase our helpline support, and Support Groups moving to balancing virtual and face to face meetings. Our volunteer network has grown significantly, and thanks to our team of over 180 trained volunteers, Endometriosis UK continues to be there for those with endometriosis when they need it most. March saw the launch of a new webchat service, developed following research that identified the need. Our dedicated Medical Advisory Panel, despite being on the frontline of dealing with Covid 19 and the backlog from the pandemic, found the time to help us update guidance and provide the information that was most needed, especially for those whose surgery, appointment or treatments were delayed or cancelled, along with the newly diagnosed. We hosted webinars, made videos, and organised online panels and discussions to provide our community with information on managing their symptoms, and insights into how endometriosis care may resume.

In August 2021, the Scottish Government launched its first Women’s Health Plan. We were very pleased to see that many of our messages had been taken on board, including commitments to drive down diagnosis times, improve endometriosis care, fund research, improve healthcare practitioner knowledge and develop menstrual health education in schools. We look forward to continuing to work with the Scottish Government to make the plan a reality. In March 2022, the Welsh Government funded the appointment of Endometriosis Specialist Nurses in each of the 7 health boards, aiming to improve diagnosis, access to treatment and awareness. We await the publication of the Women’s Health Plan for England, and have continued to lobby for improved care, targets to reduce diagnoses time and investment in research throughout the delay in publishing, as well as supporting debates in Parliament to raise the profile of endometriosis.

In October 2021, we were deeply shocked and saddened by the death of Sir David Amess. Sir David was founder and chair of the All Party Parliamentary Group (APPG) on Endometriosis, and a great supporter of the endometriosis community and Endometriosis UK. He will be sorely missed. We are grateful to those MPs who ensured the continuation of the APPG at a difficult time, especially Emma Hardy MP and Hannah Bardell MP for becoming joint chairs.

We were once again overwhelmed by the support for our Walk for Endo and 1 in 10 Challenge. Fundraising events and their success have enabled us to increase our work to raise awareness of endometriosis and increase our campaigning.

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Endometriosis UK Annual Report foryear ended 31 March 2022 We have welcomed new staff who have immediately had a positive impact on our support network including launching our new webchat service and our first dedicated staff member in Scot5and, our fundraising and our policy campaigning. In the year ahead, further investment will result in increase and improvement of our information provision and awareness raisin8. We dropped Awareness Month in March thi5 year- instead we had Action Monthl Awareness is important, but we want to see actions too, and we promoted a range ol actions including campaigning for MPS to update and improve the guidelines on endometriosis,. for healthcare practitioners to learn more about endometri0s15: and lobbying for more money to be invested in endometriosis research. Our survey work showed that there has been arb increase in awareness about endometriosis but it IS Still low especially for men, with only 31% of men175% of women) able to identify endometriosis as a gynaecological condition from a list of optlons, demonstrating how much more we need to do. Durlng the year we launched a new logo and brand for the charity. responding to all the feedback from volunteers and supporters. We heard loud and clear that the endometrlosis community wanted the charity to look stron& determlned to achieve change. and to be there to support and advocote for everyone with endometri05i5. We believe our new look delivers thls. There remains much work for us as a charlty to do, and we have bold and ambitlous plans for the future wlth a new 5-year strategic plan launched during the year. Strengthening our ambitlons and resolve to ensure everyone living Wlth endometriosis has a prompt diagnosis. the best care and the support they need. The Board sub committee on Oiverslty and Inclusion is overseeing our programme of work to improve our awarene55 of diversity and inclusion and ensure all of our work meets the highest standards in this regard. There is still much to do but we are commltted to ensuring we are an open, fair and equal organisation in all that we do and importantly that all voices are heard and reflerted in our policy and our campalgns. Wlth the Impact of the pandemic still being felt In the NHS and the cost of livlng crlsls, we know there are challenglng tlmes ahead, and our commitment to support those with endometriosis remains strong. The need for our charity and the work we do Is greater now more than ever before. and we are determined to be here to deliver more for the endometriosis community. We would like to thank everyone who has helped us in the past year, our Board, our Advisors, osjr funder5 and our wonderful staff and volunteer team.

Endometriosis UK Annual Report for year ended 31 March 2022

Tribute to Sir David Amess MP, Chair of the APPG on Endometriosis

Everyone at Endometriosis UK, and so many people in the endometriosis community, were devastated by the tragic death of Sir David Amess, MP for Southend West, on October 15, 2021.

Sir David had been Chair of the All-Party Parliamentary Group (APPG) on Endometriosis ever since he launched it in 2018, working tirelessly to raise awareness and improve services for those with the condition.

He had first become interested in endometriosis after a constituent approached him in 2016 describing her experiences struggling to get a diagnosis and appropriate treatment to deal with the condition.

Sir David, who had served on the Health Select Committee from 1998 to 2008, decided he had to do something about it. In Sir David’s time as chair, the APPG on Endometriosis undertook a far-reaching inquiry on the state of endometriosis in the UK leading to the publication in October 2020 of a ground-breaking report with many recommendations on how to improve care and support.

The APPG also held a number of public events, often led by Sir David himself, to raise awareness of the condition, the most recent taking place virtually, in a Covid 19 compliant manner, during Endometriosis Awareness Month in March 2021. Most recently, he had successfully expanded the group’s members to include a number of fellow MPs from different parties.

Emma Cox, CEO of Endometriosis UK, said: “Sir David Amess worked tirelessly to raise awareness of endometriosis, and to improve services for those living with the condition. His support was key to ensuring increased public awareness and understanding of the condition.”

“Long before his senseless, tragic death, many individuals and families affected by endometriosis had expressed their gratitude to Sir David for making them feel that they were being listened to and believed – many of them have otherwise been ignored or misunderstood. We will never forget his achievements and support.”

Sir David Amess was born in Plaistow, East London in 1958. He was first elected as MP for Basildon in 1983. He was subsequently the MP for Southend West from 1997, most recently re-elected in 2019. He received a knighthood for political and public service in 2015.

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Endometriosis UK Annual Report for year ended 31 March 2022

Objectives and activities

Purposes and aims

The trustees review the aims, objectives and activities of the charity each year. This report looks at what the charity has achieved and the outcomes of its work in the reporting period. The trustees report the success of each key activity and the benefits the charity has brought to those groups of people that it is set up to help. The review also helps the trustees ensure the charity's aims, objectives and activities remained focused on its stated purposes.

The trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives and in planning its future activities. In particular, the trustees consider how planned activities will contribute to the aims and objectives that have been set.

Achievements and performance

The charity's key activities and who it tries to help are described below. All its charitable activities are undertaken to further Endometriosis UK’s charitable purposes for the public benefit, and focus on:

The following outcomes for the next 5 years have been agreed:

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Endometriosis UK Annual Report for year ended 31 March 2022

Key achievements

Despite the continuation of the challenges posed by Covid 19 in 2021/2022, we achieved several long-term objectives, focused on supporting those with endometriosis, reducing diagnosis times, and improving access to treatments. We have highlighted a few of these below, with more details of our activities on following pages.

Support for people living with endometriosis

Offering support for those living with endometriosis is at the heart of everything we do. We continue to be there for people with endometriosis, with our fantastic team of over 181 trained volunteers providing direct support through our Support Groups, telephone Helpline, Health Unlocked online forum. In addition, we launched our new webchat support service and trained a cohort of new volunteers to facilitate this service. We have built on the success of our previous years’ webinar programme, working in partnership with BSGE centres across the UK.

We were pleased to be invited by the Scottish Government to take part in the development of the first Women’s Health Plan for Scotland, and delighted to see that the published plan included many of our requirements, including commitments to drive down diagnosis times, improve endometriosis care, fund research, improve healthcare practitioner knowledge and develop menstrual health education in schools. Our report, commissioned by the Scottish Government, Analysis of Endometriosis Service Provision in Scotland , identified the provision of, gaps in, and barriers to, care for endometriosis in Scotland which also fed into the Women’s Health Plan. The Scottish Government also provided funding for Endometriosis UK to deliver information and awareness events for the newly diagnosed, recognising the difficulties of accessing care due to the pandemic. We look forward to continuing to work with the Scottish Government on the implementation of the Plan.

Information & research

Access to accurate information is essential for those with endometriosis. The Covid 19 pandemic has continued to impact on those with endometriosis, with appointments delayed or cancelled and long waiting times. Worryingly, gynaecology waiting times have increased by a greater percent than any other area, and has meant our information provision is more important than ever. Through expanding our partnerships with endometriosis specialists and centres, we increased our webinar, support and information provision to ensure that those impacted by backlogs in treatment received up to date information

We know that research is at the core of improving the lives of those with endometriosis. We are involved in a wide range of research activities, aiming to ensure the views of those with endometriosis are always considered in research. We worked with Verity, the PCOS charity, to support a debate in the UK Parliament on increasing research funding for endometriosis and PCOS, as well as being a partner in clinical trials, helping with PPI (public and patient involvement) to ensure input from patients, reviewing patient materials and helping to recruit study participants.

Awareness and Campaigning

Our policy and campaigns work in 2021 included campaigning for endometriosis services to be restarted and reduce waiting times, responding to public consultations on health, involvement in the Women’s Health Plan in Scotland, engaging with parliamentarians and governments across the UK including continuing to support the All Party Parliamentary Group on Endometriosis, and a public campaign to update and improve the NICE guidelines on endometriosis.

We were pleased to launch our logo and brand, following a number of consultations, workshops and surveys. The response to these changes was overwhelmingly positive and we’re excited that our brand now reflects who we are as an organisation.

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Endometriosis UK Annual Report for year ended 31 March 2022

We renamed this years’ Awareness Month as Action Month. This change reflected our commitment to being proactive in calling for improvements in the experience of those living with endometriosis, and was really well received by the community. Action Month posed the opportunity to do something , rather than be passive, and we were certainly busy throughout the month with a number of campaign actions, media opportunities, presentations and awareness activities taking place. Action Month exhibited the creativity and enthusiasm of the endometriosis community, with a raft of events and activities, including the 9[th] World Wide Endo March being held.

Resourcing

Our team of 181 trained volunteers deliver our direct support services. We have continued to facilitate virtual training for volunteers, and have continued volunteer recruitment through the year.

Our staff team grew over the last year, with new roles to increase and diversify the work we do, improving capacity and expertise within different project areas. New appointments were a Scottish Development Coordinator enabling us to better support volunteers and lead on projects throughout Scotland; a Head of Resources to lead our Governance, HR and Facilities work and lead on new projects; an Executive Assistant to the CEO & Office Manager to support the CEO, manage the office, and coordinate activities across the team; and an Administration Assistant to support finance and fundraising administration. We appointed a Specialist Advisor (part time) who started in May 2022, an Endometriosis Specialist Nurse, to develop our information provision and provide clinical expertise to support our volunteers. During the year, we also appointed two Kickstart positions, 6-month posts, a scheme funded by the Government to create jobs for 16 to 24 year olds on Universal Credit.

We were delighted to receive grants from several funders for our work in Scotland, the Health and Social Care Alliance, the National Lottery Community Fund, and the Scottish Government, which helped us provide resources for Support Groups, training for volunteers, and deliver information and awareness raising activities for those recently diagnosed with endometriosis in Scotland.

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Endometriosis UK Annual Report for year ended 31 March 2022

Support for those living with endometriosis

Our volunteer-led support services continue to be a core part of how we support the endometriosis community. Despite the ongoing challenges of living with the Covid 19 pandemic in accessing support and treatment, we have continued to diversify the support for those living with endometriosis. A key achievement this year has been the launch of our new webchat service, facilitated by a team of newly trained volunteers.

Our new Scottish Development Coordinator role enables us to better support volunteers throughout Scotland and lead on projects specific to that nation. We look forward to seeing the impact of the role in improving the lives of those with endometriosis in Scotland.

We have continued to recruit and train volunteers virtually, with 56 new volunteers trained over the year, increasing our total number of active volunteers to 181. This has meant a substantial increase in our capacity to support those in the endometriosis community through our services.

Highlights

Future Plans

"I just wanted to say a big thank you for offering the bowel endometriosis webinar. It was so interesting and I "| just wanted to say a big thank you for offering the bowel endometriosis webinar. It was so interesting and | appreciated the time the doctors took out of their busy schedules to share their knowledge. They both appreciated the time the doctors took out of their busy schedules to share their knowledge. They both expressed passion and care for the topic, and came across so comprehensively. Thank you to Endometriosis expressed passion and care for the topic, and came across so comprehensively. Thank you to Endometriosis UK for taking the time, and allowing us to have free access to such valuable information. Endometriosis UK UK for taking the time, and allowing us to have free access to such valuable information. Endometriosis UK make such a difference to us endometriosis sufferers, so I am extremely grateful for everything you do." make such a difference to us endometriosis sufferers, so | am extremely grateful for everything you do."

A big THANK YOU to all of our amazing volunteers!

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Endometriosis UK Annual Report for year ended 31 March 2022

Testimonials from those with endometriosis we have supported

Comments on our Helpline

“I spoke to the most lovely person on Monday on the helpline. She was really kind and knowledgeable. Thank you for all you’re doing as the charity at this moment”

“I called this morning and spoke to a really lovely lady. It's really what I needed, been having the worse couple of days. Made me feel so much better that I could talk to someone who understood! Thank you”

“Thank you so much for listening. That’s all I needed, a safe space to offload and know I am not crazy. I feel so much better and able to carry on advocating for myself for a while longer.”

Feedback for online support groups and webinars

“Went to the support meeting tonight and I’ve never ever experienced that level of help. I’m beyond grateful! Thank you!”

“The last one was so super helpful! I have made so many changes and I am so grateful to you.”

“One of the attendees unmuted herself specially to tell everyone how much our support services have helped her, particularly the Helpline, which she described as “a miracle” and told everyone how our Helpline volunteers have supported her numerous times, helping her feel understood and navigate the challenges of the disease”.

Examples of feedback from people we have supported

“I just wanted to say a huge thank you for the support you provide, particularly through your website. I was finally diagnosed with endometriosis yesterday after years of talking to dismissive GPs and not being believed about how bad my symptoms were. From the start of this process I used your resources such as the symptoms grid and then right up to the laparoscopy with what to expect. Without your info, I would have felt clueless going into it so THANK YOU!”

“I am lucky to have only had a few bad years in my late 40s with endometriosis, but my 21 year old daughter has had it since she was 16. So I wanted to support your ongoing support for her, and all the other women suffering. Your charity does such a good job and I wish you all the best in these strange and difficult times.”

“Endometriosis UK helped me at when I was at my lowest. I was able to get diagnosed through the GP, to find access to a specialist centre and the treatment I needed. I am so grateful”

“My whole life has been a fight with endometriosis and sharing my story gives me that little bit of hope. Thank you Endometriosis UK”

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Endometriosis UK Annual Report for year ended 31 March 2022

Information & research

Highlights

Our Endometriosis Friendly Employer Scheme continued to grow, with 90 members at the end of March. These workplaces have taken action through the Endometriosis Friendly Employer scheme, to ensure employees with endometriosis and menstrual health conditions are supported and enabled to thrive at work. During 2021 HSBC, Southeastern Railway and NHS Digital were amongst those that pledged to be Endometriosis Friendly Employers , and we were pleased to hear about the important progress made by organisations who joined in prior years, including Severn Trent Water and many UK police forces.

During our Action Month in March in particular, we presented at a number of Lunch and Learn and Wellbeing sessions for employers, providing information about endometriosis, the impact it can have on an individuals work life and how employers can provide support in the workplace. Through the Endometriosis Friendly Employer scheme, organisations have begun to make great progress for employees with endometriosis; by holding events to raise awareness of the disease and the impact it can have, developing guidance and policies to better-support those with endometriosis at work, working with Endometriosis UK to deliver training for staff and nominating workplace Endometriosis Champions to increase awareness and signpost.

Behind the scenes, our information was reviewed as part of the regular review process. We worked with a team of MSc students to assess the usability of our website and improvements that could be made, and started developing a new site to deliver these.

We are pleased to be involved in a range of research projects. Research into endometriosis is vital to find out more about the disease. Only through research will we find out more about the cause of endometriosis, how to better treat and manage it, the support people might need and, one day, a cure. We have partnered with university researchers and clinical trials teams to aid recruitment and participation in a number of research projects aimed at improving the lives of those living with endometriosis, including the following clinical trials:

DIAMOND: Deep infiltrating endometriosis: management by medical treatment versus early surgery

ESPriT2: The effectiveness of laparoscopic treatment of isolated superficial peritoneal endometriosis for managing chronic pelvic pain in women: a randomised controlled feasibility trial

REGAL: Recurrence of Endometriosis: A randomised controlled trial of clinical and cost-effectiveness of Gonadotrophin Releasing Hormone Analogues with add-back hormone replacement therapy versus repeat Laparoscopic surgery

ADVANTAGE – Advanced Discovery of Visceral Analgesics via Neuroimmune Targets and the Genetics of Extreme Human Phenotype - The ADVANTAGE consortium aims to improve how we treat people with visceral pain from a variety of diseases, such as endometriosis; focusing on their pain rather than just their underlying disease. We are a member of the Patient and Charities Advisory Board of the consortium.

In November, MPs attended a debate in Westminster Hall to discuss research into endometriosis and polycystic ovary disease (PCOS). Working with Verity, the charity for PCOS, our campaigning meant almost 6000 people wrote to their local MPs to ask them to attend, with each of the UK’s 650 MPs being contacted about the issue.

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2022

Awareness & Campaigning

Highlights

A key area for our awareness, campaigning and policy work over the year has been to raise the issue of long waiting times those with endometriosis are facing. The pandemic put significant pressure on the NHS resulting in growing waiting lists, and worryingly gynaecology waiting lists have increase by the highest percentage of all areas of care. We have been campaigning so that those with endometriosis are given due priority and receive the care and treatment they need. Our activities have included lobbying governments and NHS trusts across the UK, raising with journalists and working with organisations such as the Royal College of Obstetrics and Gynaecology.

We were involved in the development of the Women’s Health Plan in Scotland which included commitments to drive down diagnosis time and improve care. Following several years of campaigning, along with other charities, the Welsh Government agreed menstrual wellbeing education would be included in the new Welsh RSE code and we successfully persuaded the Welsh Senedd Health and Social Care Committee to make Women’s Health one of their priorities. Our Scottish Parliament and Welsh Senedd election outreach campaign encouraged MSPs and MSs to be Endometriosis Champions. In England, endometriosis was identified as a priority area for action in the Vision for the Women’s Health Strategy.

To ensure the voice of the endometriosis community was heard in shaping policy, we responded to a number of key government consultations, and have been involved in a number of initiatives with other organisations to further campaign for those with endometriosis, for example the Menstrual Health Coalition and the Association of Fertility Patient Organisations, as well as a coalition of over 40 charities in Wales which developed a Quality Statement for women and girl’s health. We continue to be the Secretariat to the UK Parliament All Party Parliamentary Group (APPG) on Endometriosis.

Key campaigning highlights included:

Media work

During the year, Endometriosis UK has raised public awareness and understanding of the disease through a wide range of media coverage, including:

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Endometriosis UK Annual Report for year ended 31 March 2022

Awareness Activities

This year saw the 9[th] Worldwide EndoMarch taking place, with five of our support groups taking part in the global virtual event as well as some marches able to resume as in person events - Aberdeen, London, Merseyside Mid Wales, Oxford and North Highlands. A big thank you to the volunteer teams for all your work to raise awareness.

Following a wealth of input from volunteers and supporters, through focus groups and surveys, we developed a new logo and brand identify for the charity. We’re really grateful to everyone who took part in the process – all feedback received helped improve our understanding of what Endometriosis UK means to our audiences. We heard loud and clear that the endometriosis community want the charity to look strong, determined to achieve change, and to be there to support and advocate for everyone with endometriosis. Central to the new brand is highlighting the ‘End’ in endometriosis, to reflect our desire to end so much about the current challenges those with endometriosis face and the detrimental impact on lives endometriosis can have: to end the taboos, end the ignorance, end the isolation and end the pain it can cause. We’re pleased that the new logo has received overwhelmingly positive feedback since its launch in November.

During Endometriosis Action Month, we tried new ways to help raise awareness, including digital billboards and having our logo lit up on buildings, provided to Endometriosis UK free of charge.

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2022

Resourcing

Highlights

We launched our new 5-year strategic plan, strengthening our ambitions and resolve to ensure everyone living with endometriosis has a prompt diagnosis, the best care and the support they need. Our Chair and CEO held virtual drop-in sessions for volunteers to discuss the charity’s strategy and ambitions.

We continued to work remotely in line with government guidance at different points throughout the year. Having closed our previous office, in September we moved into new office accommodation within the Royal College of Obstetricians and Gynaecology (RCOG) allowing for hybrid working. Our staff team grew further this year, with four new permanent roles, and during the year we also hosted two six-month Kickstarter placements, entry-level roles funded by the Government. We recruited a Specialist Advisor role at the end of the financial year, who started in May. As new staff settle in, we look forward to being able to deliver more for the endometriosis community in the year ahead.

We continued to see success through our fundraising, despite the ongoing concerns around Covid 19 and resultant large waiting lists, and cost of living challenges; ensuring in person events were safely managed in line with guidance.

Income

Expenditure

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----- Start of picture text -----
Fundraising - 44%
Donations - 43%
Grants - 9%
Helpline & Support Services - 60%
Information Services - 14%
Raising Funds - 19%
Research - 7%
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Future plans

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Endometriosis UK Annual Report for year ended 31 March 2022

Supporters

Supporters across the UK were integral to our work in 2022 with 1,217 supporters signing up for our Walk for Endo and 1in10 fundraising challenges, and we were delighted to see many new participants as well as those coming back to support us. Over 350 individuals, workplaces and groups separately took on challenges, organised events and found creative ways to fundraise for our work.

As Covid 19 restrictions eased, we were pleased to be able to cheer on our supporters at challenge events once again, including the Asics 10k and Brighton and London Marathons, and look forward to seeing more of our supporters take on challenges at events in the future.

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2022

Beneficiaries of our services

Our beneficiaries include all those with or impacted by endometriosis.

Endometriosis UK is committed to supporting and advocating for everyone affected by endometriosis regardless of race, gender, sex, gender identity, class, sexual orientation or disability and ensuring diversity. Everyone affected by endometriosis needs to be acknowledged, and we know that we must do more to identify the needs of all those affected by endometriosis, develop, maintain, and evaluate our work to meet those needs and advocate for necessary change and ensure all voices are heard. We know that there are additional complexities in accessing healthcare and support for those from Black, Asian and minority ethnic communities, and for the LGBTQ+ community. From survey work undertaken in 2019 and 2020, we identified that we were not reaching these communities as we would like, and are taking steps to actively ensure we drive change for those from under-represented groups.

The Board have established a Diversity & Inclusion Group to take this work forward, and having undertaken training for all our volunteers, trustees and staff, we are working to ensure we understand the needs of all those with endometriosis including those from under-represented groups, which will inform our priorities. We have engaged a research agency to partner with us to address this area of development and are excited to progress this work further in coming months.

Financial review

The Trustee Board oversees the charity’s finances. To support the Board, a Finance Committee meets regularly, chaired by our Treasurer.

For the financial year 2021/22 we significantly increased our expenditure so we could deliver more, and generated a surplus of £288,430. We were able to both raise expenditure and achieve a surplus as a result of careful management of costs, plus an amazing level of fundraising from our supporters. Planned investment was undertaken as the financial situation over the year became more certain, with expenditure regularly reviewed and carefully monitored. Investments included developing a new Web Chat service and improving our Helpline; increased support and activity in Scotland including the appointment of our first staff member in Scotland; undertaking a rebrand; growing our Diversity & Inclusion activities; increasing our administrative and finance processing staff capacity and moving to a new office. Our new home is within the Royal College of Obstetricians and Gynaecologists building, as part of a hub for small, women’s health charities. Further expansion of our work is planned over the next year, including development of our information provision, expanding our support network, and increasing our campaigning and awareness work.

The Trustees are keen to secure diverse income streams to ensure that we can achieve our objectives – we have ambitious plans for a small charity. Through both managing costs and developing our fundraising, the trustees carefully monitored finances over the year to ensure the year ended with unrestricted reserves that comfortably met our reviewed reserves policy. The Trustees, and Finance Committee working closely with the CEO, will continue to look for opportunities to develop further fundraising opportunities along with how best to spend our income to deliver the most for those with endometriosis.

The charity has delivered a surplus for this and the prior three years as we grew reserves to enable a period of growth going forward. This placed us in a good position to survive the impact of Covid 19, and has allowed our growth, even during the pandemic. The Board undertook a review of resources prior to launching the new strategic plan, alongside an operational plan to deliver our ambitious strategy.

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Endometriosis UK Annual Report for year ended 31 March 2022

Principal risks and uncertainties

The charity reviewed risk during 2021-22, covering the key aspects of our work including finance, governance and management, operational and external factors. Material risks were identified, reviewed and mitigated by the trustees and this will continue in the year ahead.

A detailed Covid 19 risk assessment had been produced at the onset of the pandemic, and this was reviewed by the Board regularly. As we moved to ‘living with Covid 19’ this was integrated into the risk register, and the risk statement reviewed and updated, and the risk register reviewed on a regular basis by staff and trustees. Given the uncertainty of the situation, a range of 5-year scenarios and financial modelling was undertaken to enable the Trustees to plan how to manage the charity, monitor progress and mitigate against the impact of Covid 19 and other risks. Expenditure continues to be carefully monitored given uncertainty about fundraising income in the challenging economic climate.

Our key risks, and our mitigations for these are:

Reserves policy and going concern

Our reserves policy is to hold unrestricted reserves equivalent to at least 6 months’ operating costs. We hold financial reserves for practical reasons, including:

Free reserves level at March 2022 were £906,177, 19 months total operating costs for the financial year 21/22, however with expansion of our work, commitments to further expenditure including designated funds, and development work for the financial year 2022/23, this equates to 11 months of operating costs for the current financial year. £51,763 of restricted funds was carried forward. We started the year in a good financial position, having worked hard over the prior 4 years to build reserves in order to expand our activities. Initially, planned expansion of activities and appointment of new staff 2021/22 were delayed and expenditure minimised whilst we ascertained the impact of the pandemic, and we cautiously expanded to ensure sustainability . The reserves level achieved is based on meeting our reserves policy over the next two years as the charity grows.

We received a great response to our new fundraising plans and the move for a lot of the year to virtual events and activities, and would like to thank all the fundraisers and donors who were so generous over the year.

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Endometriosis UK Annual Report for year ended 31 March 2022

This has helped us invest in new areas of work to support the endometriosis community, and to plan for further activities and support in the year head.

At the year end, the charity has unrestricted reserves totalling £1,139,959. Staff and Trustees reviewed the reserves policy in March 2022 and continue to carefully monitor the cash flow position and reserves. Having sufficient reserves allows us to plan for and deliver future projects, with a focus on decreasing diagnosis times, raising awareness and supporting those with endometriosis. It also enables us to leverage further income, for example some funders are happier to part fund activities where the organisation has already raised some money. Having sufficient reserves allows us to make the most of opportunities.

Structure, governance and management

Endometriosis UK is a charitable company limited by guarantee, incorporated on 25th March 1994 and registered as a charity on 29th March 1994. The company was established under a Memorandum of Association which established the objects and powers of the charitable company and is governed under its Articles of Association. In March 2021, we registered with OSCR- the Scottish Charity Regulator.

All trustees give their time voluntarily and receive no benefits from the charity. Any expenses reclaimed from the charity are set out in note 6 to the accounts.

Trustee induction and training

The recruitment of Trustees is led by an audit of the skills held by the members of the Board, who are appointed by an open recruitment process using both search and advertisement as appropriate, against an agreed person profile and job specification. Shortlisted candidates are interviewed by a Nominations Committee of the Board who make a recommendation to the Board. The AGM of the Charity confirms all appointments.

New Trustees undergo a formal induction process covering, governance, risk management, financial systems and agreed procedures.

The Board hold an annual away day to consider strategy and review the performance of the Board. Diversity and Inclusion training was undertaken by Board members, and opportunities for training and knowledge development are raised with the Board, for example the training offered by our auditors.

With two trustees reaching their six-year term of office in 2023, we will be recruiting for new trustees in 2023, and encourage all those interested to consider applying – please look out on social media and our website for further information in due course.

Risk Management

The Trustees have a Risk Policy and a Risk Register. Each Board Meeting assesses whether new risks have emerged or whether any of the identified risks have changed in severity. The whole register is reviewed at the September Board meeting. Trustees consider that the formulated plans to deal with such risks are appropriate at present.

Statement of responsibilities of the trustees

The trustees (who are also directors of Endometriosis UK for the purposes of company law) are responsible for preparing the trustees’ annual report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

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Endometriosis UK Annual Report for year ended 31 March 2022

The law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the trustees are required to:

The Trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006, the Charities and Trustee Investment (Scotland) Act 2005 and the Charities Accounts (Scotland) Regulations 2006 (as amended). They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

In so far as the trustees are aware:

Members of the charity guarantee to contribute an amount not exceeding £1 to the assets of the charity in the event of winding up. The total number of such guarantees at 31 March 2022 was 998 (2021: 1,071). The trustees are members of the charity but this entitles them only to voting rights. The trustees have no beneficial interest in the charity.

Auditor

Sayer Vincent LLP was re-appointed as the charitable company's auditor during the year and has expressed its willingness to continue in that capacity.

The Directors annual report has been prepared in accordance with the special provisions applicable to companies subject to the small companies' regime.

The trustees’ annual report has been approved by the trustees on 12 September 2022 and signed on their behalf by

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Endometriosis UK Annual Report for year ended 31 March 2022

Acknowledgements

We could not do the work we do without the time and knowledge kindly offered to us by our volunteers, fundraisers, speakers, health experts and medical advisors. Without them we would not be able to reach and support the people we do. We would like to thank them all for their on-going support and generosity.

All those volunteers who have given up their time to support people affected by endometriosis - through the Helpline, Support Groups, Webchat, Health Unlocked - receive a special vote of thanks. Huge thanks as well to everyone involved in running an event and everyone who baked cakes or ran or walked or gave up chocolate (or sponsored others for doing so) or were involved in other fundraising projects to raise money to support the charity.

And a very heartfelt thank you to those who told their stories to the media to raise awareness, which can be such a hard and emotional thing to do yet is vital in raising awareness and helping others.

As always, all of our work will be a team effort. Our staff, volunteers, members, trustees, those with endometriosis in our wider community, their friends and family, healthcare professionals, researchers – all of those who work so tirelessly as part of Team Endo are making a huge difference where it is so desperately needed. We are grateful to those organisations who have provided expertise and support to help us raise awareness very generously free of charge, with special thanks to the team at Come the Glorious Day, and to Clear Channel for supplying our first digital billboards.

As well as our funders below, we would like to thank each and every person who has made a donation this year or encouraged other people to donate. We would also like to thank our small and dedicated staff team.

The National Lottery Community Fund The Health and Social Care Alliance, Scotland The Scottish Government Time Of The Month Cecil Pilkington Charitable Trust

Endometriosis UK is committed to fundraising in an honest and transparent way. All staff, volunteers, contractors and partner organisations fundraising for Endometriosis UK are required to adhere to our high standards of ethical fundraising and comply with the code of the Fundraising Regulator. As well as hundreds of community fundraising supporters generously giving their time to raise money for the charity, Endometriosis UK has commercial participator agreements in place with TOTM and WUKA, who fundraised through perproduct donations during the year.

The charity established commercial participator agreements with all sole traders and businesses known to be fundraising for Endometriosis UK, and monitored the activities of those fundraising by reviewing proposed messaging and products, and social media monitoring. There were no known failures to comply with the code of the Fundraising Regulator, and no complaints were received regarding staff, volunteers or individuals fundraising for Endometriosis UK. All staff and volunteers are required to adhere to Endometriosis UK’s safeguarding policy, which aims to protect vulnerable people across all aspects of our work, including fundraising.

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Endometriosis UK Annual Report for year ended 31 March 2022

About Us

Meet the Endometriosis UK governance and staff team

How to get involved

The more people working together the stronger we are and the louder our voice. We have a range of ways you can get involved, for more information please check out our website: www.endometriosis-uk.org/get-involved

If you would like to hear what we are up to throughout the year, sign up for our regular e-update.

Contact

Endometriosis UK 10 -18 Union Street, London SE1 1SZ Tel: 020 7222 2781 Helpline: 0808 808 2227 www.endometriosis-uk.org/contact-us

Twitter @EndometriosisUK Instagram endometriosis.uk Facebook www.facebook.com/endometriosis.uk.org

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Endometriosis UK Annual Report for year ended 31 March 2022

Independent auditor’s report to the members of Endometriosis UK

Opinion

We have audited the financial statements of Endometriosis UK (the ‘charitable company’) for the year ended 31 March 2022 which comprise the statement of financial activities, balance sheet, statement of cash flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including FRS 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on Endometriosis UK's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

Other Information

The other information comprises the information included in the trustees’ annual report other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated.

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Endometriosis UK Annual Report for year ended 31 March 2022

If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the trustees’ annual report.

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and the Charities Accounts (Scotland) Regulations 2006 (as amended) require us to report to you if, in our opinion:

Responsibilities of trustees

As explained more fully in the statement of trustees’ responsibilities set out in the trustees’ annual report, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

We have been appointed as auditor under section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 and under the Companies Act 2006 and report in accordance with regulations made under those Acts.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion.

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Endometriosis UK Annual Report for year ended 31 March 2022

Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud are set out below.

Capability of the audit in detecting irregularities

In identifying and assessing risks of material misstatement in respect of irregularities, including fraud and noncompliance with laws and regulations, our procedures included the following:

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities . This description forms part of our auditor’s report.

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Endometriosis UK Annual Report for year ended 31 March 2022

Use of our report

This report is made solely to the charitable company's members as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006 and section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005. Our audit work has been undertaken so that we might state to the charitable company's members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's members as a body, for our audit work, for this report, or for the opinions we have formed.

Fleur Holden (Senior statutory auditor)

25 October 2022

for and on behalf of Sayer Vincent LLP, Statutory Auditor

Invicta House, 108-114 Golden Lane, LONDON, EC1Y 0TL

Sayer Vincent LLP is eligible to act as auditor in terms of section 1212 of the Companies Act 2006

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Endometriosis UK Annual Report for ye3r ended 31 March 2022 ststernnt of flnwlal xttthtlts lincorp)iating an income and expenditur atcountl F¢r th• •nd•d Yl 2022 2022 Trtal Unrestritted 2021 Total Unrestritted Restricted Restrirted Note Inc•rne frorn: Grant5 and donations Orher trading activitie5 396.101 383,372 127 9.694 79,576 475.677 383.3n 127 9.694 406,545 366,889 143 20,511 78.279 484,824 366,889 143 20,511 Other T￿11 Incomè 789,294 79.576 86&870 794,088 78,279 872,367 Evpendltyre w: Raising funds Charitable activitles Helpline and support servlces Information servicès Research 125.707 125.707 84,429 84,429 267.714 132,398 15.008 39,613 307.327 132.398 I S.008 83,736 97,707 78.279 162.01 S 97,707 11,971 Tottl eX￿ndliurl 540.827 39,613 580840 277,843 78.279 356.122 N¢t Income forth• 248.467 39,963 28V30 516,246 Sl 6.246 TTan5fer5 between funds Ntt movtmtnt In fvnds 248.467 39,963 2M450 S16,246 516,246 R•ronclllatton of funds: Total funds broughr forward Totsl fund5 rarrled fThrd 891.492 11,800 903.292 375,246 11.800 387,046 1,139,959 51,763 1.191.722 891,492 11.800 903,292 All of the abth fesults are derlved from cantlnuin9 acri￿rIes. Théit wefe no other re<ognised oains or lossÈs oiher rhath rhose siaied above. Movemenis In fvnds are d15c105ed In Note 15a io the finantlal statements. 30

Endometriosi5 UK Annual Report for year ended 31 March 2022 Endometriosls UK ance sheet Company no. 02912853 2022 2021 Note Flx¢d assets: Property. plant and equipment 17.782 9.183 Current assets: Debtor5 Cash at bank and In hand 114.576 1.093.329 9S,944 818.404 1,207.905 914.348 Uabllltles: CieditQf5.' arnounts falllng due wlthln one yeaf (33.965) 120.2 39) P4et currnnt us•ts 1.173,940 894,109 Total •ss•ts lus curr•n¢ ljknllltl ,191,722 903,292 Total nrt assets 1.191,722 903,292 Th• funds of the charlty. Restricted funds Unresiilcted funds.. Deslgnated funds Geneial iesevve Isa 51,763 11.800 216.000 923.959 891,492 Total unresirlaed funds 1.139.959 891.492 TfJt4J charlty fvnds 1.191,722 903,292 Approved by the irustees on 12 September 2022 and signed on thelr behalf by 31

Endometriosis UK Annual Report for ye3r ended 31 March 2022 Endom•trlosls UK Ststement of cash 2022 2021 Cash Iltms from operntlng actt¥ftl•s Net Income for the reporting period las per the statement of financial actNltiesl Deprecation charges Increase in debtors Increase in creditors 28&430 516,246 3.914 (18.632) 13.726 2.181 173,1131 1,831 Net Cash provldld ty operatTng aetMII•$ Cash flow5 from Inv•stlng actlvltls: Purchase of properEy, plant and equipment 287,438 447.145 (12.513) {3.4541 Net cash Used In In¥utlw acrmdes (12.513) 13.4541 Chang• In cash and cash •qulvalents Sn th• y•ar Cash and cash ourvalents at the b9lnnlng of the ￿ar 274,925 443,691 818,404 3 74,713 Cash and ash equl¥*l¢nts at th¢ ¢nd of th¢ 1.093.329 818.404 32

Endometriosis UK Annual Report for ye3r ended 31 March 2022 For the ended l Marth 2022 I kcoundrwj polkl•s 41 Statutthy Informatl¢)n Endometriosis UK is a charitable company Ilmlted by guarantee and Is incorporated in the UK. The feg15tered office addre55 15 10-18 Union Street. London. SEI I SZ. b) of pvepw*lon The financtal statements have been prepared in accordance with Accounting and Reponing by Charities.. Siatement of Reiommended PTa(tice applicable to charities preparin9 Iheir accoun15 in aicordance wilh the Finaniial Reportin9 Standard applicable in the UK and Republic of Ireland IFRS 1021- ICharitle5 SORP FRS 1021. The Finaniial Reporting Standard applicablÈ in the UK and Republii of Ireland IFRS 1021 and the Companies Act 2006. In accordance with the Charitses SORP, the parent charity does not prepare consolidated ftnancial statements on the basis thai the annual gross income of the group does not exceed £ I million. A55ets and liabilitie5 are initially retogni5ed at historic￿ lost or tran5artion value unlÈss otherwise stated in the relevant accounting policy or note. In applying rhe financial reporting frarnework, rhe irusiee5 have made a number of subjeaive jud9emen15, for example In respect of significant accounring estimates. E5timate5 and jud9ements are continually evaluated and are based on historical experience and other fartors, iniludin9 expectation5 of future event5 that are belbeved to be reasonable under the circumstances. The nature of the esiimation means the attual outcomes could differ from those estimates. Any significant estimates and jud9ements affecting these financial siatemenis are detailed within the relevani accouniin9 policy below. c) Publlc bomfft afi The charity meets ihe definltlon of a public benefit entity under FRS 102. d) Golng conc•rn The Iiu5tee5 conslder that there are no matèrial untertaintios about thè Charlty's ability to continue as a wlng concern. At the start of the Covid-19 pandemic, the tfustees feviewed income and expenditure and undertook a risk analysis. fesulting in recasting ihe budgei to reduce expenditure, and looking io identify and maximise income opportunities. Expenditure was kept down through the year, and a focus on developing new income source5 ha5 resulied in a stron9 income level for the year. 33

Endometriosis UK Annual Report for ye3r ended 31 March 2022 •nd•d Jl Mw¢h 2022 I Acoxniir4J polldes Iconiim IrKom• Income is recognlsed when the charity ha5 entitlement to the funds. any perfomiance conditions attached to the tncome havt been wnet, 11 IS PfDbable that the Trniome will be reteived and that the amDunt can be rnEa5ured reliably. Income from 9Obtrnment and other yiants. whether'iapital. grants or'rebtnut. giarits, is recognistd when th chariry ha5 entitlement ro the funds. any performance condition5 atiached to the granis have been met. 11 15 probable that the income will be received and the amount can be measured rdiabty and is not deferred. For legaci25. onrirlement 15 taken as ihe eadier of the dale on which either.. the charity is aware ihat wobate ha5 been granted, the estaie ha5 been finalised and notificaiion has been made by rhe executotlsl to the charsty that a distrtbuiion will be made. or when a distribution is re(etved from the estate. Receipt of a legacy. in whole or in part. Is only considered probable when the amount ian be measured reliab￿ and the Ihartty ha5 been noiified of rhe executor'5 intention to rnake a distribution. Where legacies have been notified to the charity, or ihe charity 15 aware of the granting of probate, and the criteria for income recognition have not been met. then ihe legacy is a treated as a cOn￿n9ent asset and disclosed If material. Income received in advance of the provlsioft of a specified Se￿Ce is deferTed until the CTlterfa for Income recognition are rnet. 0 Donallons of xr¥lees Ind f•JllUos Donated professional services and donated facilitie5 arE recognised a5 income when the charity has control ovor tht em or received the semce, any conditions associated wirh the dMatJon have been me¢, the receipt of economic benefi't from the use by the charity of the iteTn is probable and that economic btnefsr can be measured reliably. In accordance wilh the Charitie5 SORP (FRS 102). volunteer lime 15 not recognised 50 refer to the trustees, annual le[￿rt for more informatKJn about ihebr contribuiion. On recelpt. donaied glfts. professlonal seryices and donated facllitles are ￿￿nISed on the b3sIs of the value of rhe gift 10 the thariry which 15 the amount ihe charity would have been willing to pay lo obtain 5ervice5 or faciliiie5 of equtvalent economic benefit on the open market.. a corresponding amount is then recognised in expEnditure in ihe period of receipt. Interes1 on funds held on deposit is included when receivable and the amount can be measured reliably by the charity. (h*s is normally notifjcation of the interest paid or payable by ihe bank. h) Fund accoundTrJ Resiricted fvnd5 are to be used for specific purposes as laid down by the donor. Expendtture which meets these criteria b5 charged to the fund. Llnrestricted funds are donatlons and other Sncomlng resources ieceived or 9enerated for the charitable pUl￿$eS. Dt5ignated fund5 are unrostricted fund5 eannarked by thE trv5ttt5 for particular purposes. 34

Endometriosis UK Annual Report for ye3r ended 31 March 2022 Endom•ithis UK F¢r th• •ndqd 31 IA•r¢h 2022 l Accountlng polldes (conllnued) D Ey•ndltuv• Irr•cowth VAT Expenditure is recognised once ihere 15 a legal or constructive obllgation ro make a payment to a thlrd pany. it is probable rhat 5ettlemeni will be requlred and the amount of the obltgation can be measured reliably. Expenditure is classSfled under the following aciNity headings". Costs ol ralsing funds rÈlate to thÈ costs Incurred by the charSty in inducing third parties to make voluniary contributions 10 it, as well as the cost of any activiiie5 With a fundraislng PUfPOSe Expenditure on charitable aciivities includes the costs of dellvering services undertaken to funher ihe purposes of the chariry and their associared support c05lS, to include.. Helpline and support seThices - providing seNlces for the relief of endometrios15 Information services - relating to advancing the education of those with the disease, Ihe 9eneral p¥Jbllc and health professionals regarding endometri0s15 Research aCiiv5tiÈs to stspport research Into endometrlosis to Improve undefStandin9. Ireatment and management of rhe disease. Other expendlture repre5entS those items not falling into any other headlng Irrecoverable VAT 15 charged a5 a cost agalnst the activity for whlch the expenditure wa5 IncuTTed. 11 Allocatkn of sUPPOrt costs Resources expended are allocared to the particular activiry where the cosi relate5 direaly io ihat activity. However, the cost of overall dlrettion and adminlstration of each activily. comprising the salary and overhead costs of the central fLbnCtion, is apportioned on the following basis which are an estimate, based on staff lime, of the amount attributable to each activiiy. Where Informat40n about the alms. objectives and projects of the charlty is provlded to potential beneficlaries. the Costs associated wlth this publlclty are allocated to charitable expenditure. Where such Informatlon &bout the alms, objectives and projects of the charity Is also provlded to poteniial donors. activity cosis are appoftioned beThveen lundiaising and charitable attivities on the basis of area of literaiure occupied by each activiry. 2022 2021 Raising funds HÈlpllne & Support Servlces Informaiion Services Research 25% 14% 6% Governance cost5 are rhe c05rs a550clated wirh rhe governance arrangements of rhe chariry. These cosrs are assoclated wlth Constitution￿ aftd sratuiory requlrements and IncludÈ any cosis associated wlth the strategic managemeni of the charity's artlvltles. k) OpT4tlng I••Ms Renial charges are charged on a straight Ilrie basis over ihe temi of the lease. 35

Endometriosis UK Annual Report for ye3r ended 31 March 2022 For th• •nd•d 31 Mvth 2022 l Ixcounilng polth <c•ntlw• D T4nglbl• fixed •5sets Item5 of equipment are capitali5ed whete the PUTcha5e prite exceeds £200. Depreciation costs are allocated to attivities on the basis of the use of the related assets in those actiwties. Assets are reviewed for impairment If circumstances indicate iheir carrying value may exceed their net realisable value and value in use. Depreciation is provrded at rate5 calculated to write down rhe c05t of each asset io it5 e51imated residual value over its experted useful life. The dep￿CiatIon rates in use are as follov4s". Office equipment 4 years Tiade and other debtofs are recognlsed at the settlement amount due ft) Cath ¥4 bknk knd lft h•nd Cash at bank and cash in hand include5 cash and Shon terrn highly liquid investment5 wirh a short maturity of three months or le55 from the date of aroui51tion or openTrng of the dep051t or 511Tiilar account. Creditors and pro¥ision5 are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a ihird parry arbd ihe arnounr due to settle the obligation can be measured or ests"mated Teliably. Cieditors and wovislons are normally i¢cognised at their settlement amount after allowing for any trade di510unis due. p) PonsloAs The charity conirtbuie5 10 workplace pension schemes for irs ernployee5. Contributions are tharged to ihe Statement of Financial Attivities in the penod to which they relate. 36

Endometriosis UK Annual Report for ye3r ended 31 March 2022 For th• •thd•d 31 Mvth 2022 2 Incom• fmm and +)Jwd 2022 2021 Total Unrestrbcted Restrfcted Tot•1 Unro51riC￿d Restdcted Alliance - sco1￿5￿ Grant Lottery Communlty Funding Scottish Government Endomeiriosis UK Tradino Ltd Other donat￿￿5 Legacy dollations 30,000 34,576 15,000 34,576 15.(K#) 2&717 340.428 24956 53.279 25.000 53.279 25,000 100.oTr) 25?,545 55.000 26,717 340,428 28,956 i 00.000 251,545 55,000 396.101 79,576 475,677 406.545 78.279 484.824 Income receNed from Endometfi05iS UK TFatling Ltd ss the distrib￿1{}￿ of piofits under gift aFd. 2022 2021 Total UnrestrTrrted Restricted Tot1 UnrEStricied Restricted Challenge ebrnts Membership fee5 Other tundfaising aCti￿tieS 193,195 27,624 162,553 193,195 27.624 161.553 261.067 24,931 BO.B91 261.067 24.931 80.891 383,372 383.jn 366,889 366.889 Other fundTrising aCti￿lieS reprtsent memben and supporters ra5sing fund5 on behalf of the charity. 37

Endometriosis UK Annual Report for ye3r ended 31 March 2022 EndllmEtknls UK Ncths tothe fln•MthI statements Forth• •nded 31 Marth 2022 Helpline and support Information 5etViCE5 5etvice5 Goh*rnance (0515 Supports CD515 20Z2 2021 Total funds Research stsff costs (Note 61 58.469 160,863 44,484 42.584 4,781 9.902 42,505 321,004 42.584 231 29,833 108.439 29,201 35,413 8.614 5,121 204,390 1 5,403 Membership EFE Fundraising & Challenge Event5 Office costs Premises costs Profe5510nal Fee5 Helpline & Volunteer Expen5e5 Olher cosis 231 29.633 g,oa8 15,091 61,972 28,625 25.524 2.562 2,403 s2,091 120 396 21,677 29.201 35.413 8.614 1,305 855 1,545 98.756 2E3,104 4.901 130.341 580,440 356,121 Support costs 24.827 77.584 18.620 9.310 Covernance costs 2.124 6,639 797 Totsl •wndlwr• 2022 125.707 307.327 132.398 15.004 580.440 Total expendlture 2021 84.430 162.014 97.707 11.970 35&121 38

Endometriosis UK Annual Report for ye3r ended 31 March 2022 22 4b ali 0f•xWnd￿14 (w10r￿1 Helpline and support Information services services Governance costs Support5 Costs funds Research 2021 Totsl Suff cosrs (Nok 61 Informatlon Membershlp EFE Fundralslng & Challtngo EvÈnts Office cost5 Premises costs Professienal Fees Helpline & Volunteer Exponsos her costs 40,316 82,606 S3.755 15,403 s.oos 6.547 16.161 204.390 15.403 15,091 1 S.091 61.972 28.625 25.524 2.562 2M03 19,813 5.332 36,827 28,625 25.524 2,562 70 2,333 55.407 105,132 74,490 S,CK)5 6.617 109.470 356.121 Support C051S 27,369 53,640 21.893 6.568 1109,4701 Governance costs 1.654 3.242 1,324 397 16,61n Totsl •xp•ndiwr• 2021 84.430 162,014 97,n17 17,970 356.121 39

Endometriosis UK Annual Report for ye3r ended 31 March 2022 Endometrfosls UK Notts to th• finandal stat•m•nts For the ar ended 31 Marth 2022 Net Incom* for the yeaf Thls Is stated after charging l {credltlngl'. 2022 2021 Depreclation Operating lease rentals payable.. Property Other Auditor's remuneration (excluding VAD.. Audlt 3,914 2.181 22.984 1.328 25.735 1,006 6.825 6,500 Analysls of staff costs. trustee remuneratlon and expons•s, and the cost of k•y management personnel Staff costs were as follows.. 2022 2021 Salaries and wages Social security costs Employer's contribution to defined contribution pension schemes 292.155 22,965 187,790 12,977 3,623 321.004 204,390 No employee earned more than £60,000 during the year 12021.. nill. The total employee benefit5 lincluding pensbon contributions and employe¢s natlonal insurance) of the key management personnel were £45.76812021- £45.0541. The charity trustees were neither pald nor recelved any other benefits from employment wlth the charity In the year12021.' £nill. No charity trustee received payment for professional or other services supplied to the charity 12021 .' £nill. Trustee expenses represents the payment or reimbursement of travel and subsistence costs totalllng £62 1202 1." £nill incurred by one 12021.. £nill member relatin9 to atten(lance at meetings of the trustees. 40

Endometriosis UK Annual Report for ye3r ended 31 March 2022 For the end•d 31 M￿h 2022 The average num￿1 of em￿oYeeS (head count based on number of staff employed) durlng the year was 13 12021., 111. 8 employees worked full tlme. wlth 9 employees working part tlme. The CEO is part Ilme, 3 or 4 days per week. Staff are spllt across the actlvltles of the charlty as follows (full tlme eoulvaleni basls).. 2022 2021 Ralslng funds Helpllne and support servlces Informaiion ser¥lces Reseaich Governance 13.0 Endometriosis UK recekved donatlofts totalllrtg £9,511 12021: £6631 from I I trustees 12021 . 91. The trustees receive no benent from the donailons made to the charity. Durln9 ihe financial year part of consultancy services totalllng £1200.00 (2021: £3,332.50} were provided by the skster of one of the Endometrlosis UK trusiees. Andrew Glyde. 41

Endometriosis UK Annual Report for ye3r ended 31 March 2022 Endom•1￿llS UK Nths to th• fin￿￿•1 stthm•nts For th• •nded 31 Ilarth 2022 Sub￿dIary undertrklng Endometriosis UK Trading LlmitÈd was Incorporated in the UK as a wholly owned subsidiary of Endometriosls UK on 2 June 2006 (Company No.. 058360071. with an issued share 13piEal of £1. The company siarted iradin9 in the prewou5 financial year. A summary of the ￿$￿It$ of the subsidiary is shown below.. 2022 2027 Turnover 11.849 11.849 <896) 12,818 Gr05s profftl(loss) Admlnisirative expenses 12,818 12.5301 Profftl(loss) on ordlTh￿ actmtles beforn Interest Ind tsxatlon Taxation on profit on ordinary aciiviiies 10,953 10.288 10.953 10.288 R•ialn•d •wnlrrfJs Total retained earnings brou9hi forward Total comprehensive income Distribution under Gift Aid to parent charity ii,oio 10.953 Q6,717) 100.721 10.288 li 00.0001 Total r•tsined •arnlrfj$ carrfed fovward (4,754) 11.009 The aggregate of the assets, liabilities and reserves was.. Asse15 Liabilities 3.167 (7,921) 18.320 17.3 10) (4,754) 11.010 10 T•x The charity is exempi from corporatlon tax as all Its income is charltable and 15 applied for charltable purposes. 42

Endometriosis UK Annual Report for ye3r ended 31 March 2022 ended 31 2022 I l TwvJSblt flx•d offi.ce equipment Total At the start of the year Additions tn year 16,058 12,513 16.058 12,513 At the end of the year 28,571 28,571 At the starr of the year Charge for the year 6,875 3,914 6.875 3,914 At the end of the year Net bookv•lue Attheendrfthe 10,789 10.789 17,782 17,782 At the Starr of the year 9.183 9.183 All of the above assets are used for chariiable purposes. 12 D•btors 2022 2021 Prepaymen15 Accrued income Orher debtor5 5ub5idiary 76,550 69,287 3,216 2.290 2.436 5.581 T 14,576 95,944 13 Credltors: falllno Thlthln on• 2022 2021 Taxation and socSal security Other creditors Accr¥als 6.330 6,165 7,744 17,955 6,670 20,239 43

Endometriosis UK Annual Report for ye3r ended 31 March 2022 Geneial unresiricted Restrlrted Totsl Tangible fixed assets Net citlTent a55et5 17.782 .122.177 17.782 1,173.940 5T,763 14tt •M•ts at 31 2022 1.1 39.959 51,763 1.191.722 General unrestriaed Re51ritted Tangible fixed asset5 Net ctsrrent assets 9.183 882.309 9.183 894.109 IT,800 Il•t •sJ•ts •t 31 2021 891,492 11,800 903292 Isa MrhYmert8 ITh fvndi I￿￿4n1 At l April Incorne and Expenditure zozi yain5 aNt1055es 31 IA•Yth 2022 Trnnsfers Takeda Lottery Community Fund Alliance- Scottish Grart Scoui5h Govemrneni 11.81Y) 11,7501 17,4701 115,393) 115,0001 ioJ)so 27.106 14A)7 34.576 30.000 15,000 11.800 79.576 139.6131 51.763 Oe5ignated fvnd5". Webchat and Helpline expansion Addtrional Scottish Projecr Diversity & Inclusion aciivities 140,000 40,000 36,000 140JX TO1￿ desionated funds 216,000 276.or#) General fund5 891.492 789.294 1540,82n 1216.000) 923.959 891.492 789.294 1540,827) 1,139,959 903,29Z B68.870 1580.4401 1.1g1,n2 The narTrtive to explain the purpose of each fund is given at the foot of the note below.

Endometriosis UK Annual Report for ye3r ended 31 March 2022 202 At31 March Income and Expenditure 2020 yaifbs and lossos Trnnsfews Z021 Takeda Lottery Communlty Fund Scottish Cowernment 11.800 53.279 25,000 153.2791 125,CKIOI 11.800 78.279 178.2791 General fund5 375.246 794,088 1277.8421 891 h92 375.246 794.088 1277.8421 891 h92 387.046 872,367 13S6.1211 K43892 ResLfKied funds repFeseni donatlofis aThl 9tants r￿StrICt￿ fr>r us on particular axeas of charit￿5 WDrk. Oui lunding from Takeda is io Upda￿ Lfving wlth Endometrsosls booklet. whlch Is ￿ing ur￿led and wlll be publkshed in 2022. Scottk5h Government Pr￿KIed a grant for the lollrrt¥ing progrnmmes: • IMp￿￿[￿g the mental I￿lIbeing of ihose wilh endomeirlos15 • Impmvtllg the Support for people with care need5 • Improving the qualiTr of healthcare expersence The Health and Social CaTÈ Allianc• in Scotland prcmded a grant to sypport • LauTrchini w Suppcrt Grrwr6 th ScoflaThJ • DelopinE mlofmation rnater415 • Supp￿'bn&I￿ re5UrnptsL￿ ol ta[&t￿late 5￿POrt Group fflee¢ry5 • Delryenng volunteer trairy The National LottEry Community Fund prowded A grant to supp)rt EXPandb￿ and ￿rengthen1r Support Groups in kotI￿d trea51nÉ the awareness and a¥ailalx"lrtyof our Helplin?, Web(hat ar￿ reswr£e5 Scrrtland-bastd statl mèmbÈT to thE abo¥e 45

Endometriosis UK Annual Report for ye3r ended 31 March 2022 22 1 S Mmm•nu In fvnds (￿mIN•d) I￿￿05• of d•s1W*￿ fvnds To fund the set up. development and support for a new Webchar seThlce. plus expanslon of our Helpllne. This Is In addiiion io ihe Alliance Projeci and Scoitlsh Government 9rants, allowlng us to recrult a full time staff member and undenake addltlonal acU¥llles In Scotalnd. We had Identlfled ihat we had less ￿ach wlthin certain communEtes. noiably those from black. Aslan and mlnoflty ethin£ and LGBTQ+ commufiity. Additlonal funding was allocated. over and above what was already In the budget, to underiake research and dellvei Improved reach. Thè charlty's total futvre minlmum lèase paymènts under non-cancÈllable tspÈratlng lÈasès Is as follows for each ol the followlng period5 Propertv 2022 Olher 2021 2022 2021 Less than one yea¥ One to flve years Ovei five years 6.175 4,320 172 6.175 4.320 172 17 Lopl strtU5 af the chvlty The charliy 15 a iompany limited by 9uarantte and has no share capltal. The Ilablllty of each member In the e¥ent of wlnding up is limlted to £ l. 46