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2021-03-31-accounts

Endometriosis UK Annual Report for year ended 31 March 2021

Endometriosis UK

Annual report and financial statements for the year ended 31 March 2021

Company no. 2912853 Charity no. 1035810

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Endometriosis UK Annual Report for year ended 31 March 2021

CONTENTS

For the year ended 31 March 2021

This Trustee and Directors’ report provides an overview of performance in relation to our key objectives and of future plans. It includes key performance data and the stories of some of those Endometriosis UK has helped, in addition to financial summaries and analysis.

Page
Reference and administrative information 3
Trustees’ annual report 5
Independent auditor’s report 24
Statement of financial activities (incorporating an income and expenditure account) 28
Balance sheet 29
Statement of cash flows 30
Notes to the Financial Statements 31

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Endometriosis UK Annual Report for year ended 31 March 2021

REFERENCE AND ADMINISTRATIVE INFORMATION

For the year ended 31 March 2021

Endometriosis UK is a company limited by guarantee and a registered charity.

Company number 2912853 Country of incorporation United Kingdom Charity Number 1035810 Country of registration England & Wales

Registered office and operational address 10 – 18 Union Street, London SE1 1SZ

Trustees Trustees, who are also directors under company law, who served during the year and up to the date of this report were as follows:

Liz Campbell Chair (appointed April 2020) Angela Style Chair (stepped down April 2020) Melissa Longley Vice Chair (stepped down June 2020) Amanda Collier BA ACA Treasurer (stepped down June 2020) Tracey Hammonds Treasurer (appointed June 2020) Sanchia Alasia (appointed June 2020) Sarah Atkinson Anna Cooper (appointed June 2020) Andy Glyde Andrew Horne Sera Miller Dr Veena Rao Cassia Rowland (appointed June 2020) Arvind Vashisht

Endometriosis UK has a skills-based Board of Trustees and trustees are recruited in order to ensure that the board has the right mix of skills and knowledge to provide effective governance. The Board of Trustees has a range of skills and experience including voluntary sector management, fundraising, financial management, primary and secondary health care and of living with endometriosis. Trustees are elected each year at the Annual General Meeting. The higher of three or one third of trustees are asked to retire each year and may offer themselves for re-election.

Company Secretary Emma Cox, CEO Endometriosis UK

Key management personnel Emma Cox

Bankers CAF Bank Limited PO Box 289 Kings Hill West Malling Kent ME19 4TA

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Endometriosis UK Annual Report for year ended 31 March 2021

Solicitors Bates Wells and Braithwaite 10 Queen Street Place London EC4R 1BE

Auditor Sayer Vincent LLP Chartered Accountants and Statutory Auditor Invicta House 108-114 Golden Lane London EC1Y 0TL

Medical Advisory Panel

Arvind Vashisht, Consultant Gynaecologist, University College London Hospital

Kirana Arambage, Consultant Gynaecologist, John Radcliffe Hospital, Oxford

Professor Christian Becker, Consultant Gynaecologist, John Radcliffe Hospital, Oxford

Professor Andrew Horne, Professor of Gynaecology and Reproductive Sciences, Edinburgh University Shaheen Khazali, Consultant Gynaecologist, Ashford & St Peter’s NHS Foundation Trust

Dr Uma Marthi, General Practitioner with special interest in women’s health, Rochdale Dr Veena Rao, General Practitioner with special interest in women’s health, Cumbria

Fevzi Shakir, Consultant Gynaecologist, Royal Free Hospital

Dr Katy Vincent, Associate Professor, Senior Fellow in Pain in Women, John Radcliffe Hospital, Oxford

The trustees present their report and the audited financial statements for the year ended 31 March 2021.

Reference and administrative information set out on pages 3 and 4 forms part of this report. The financial statements comply with current statutory requirements, the memorandum and articles of association, the requirements of a directors’ report as required under company law, and the Statement of Recommended Practice – Accounting and Reporting by Charities: SORP applicable to charities preparing their accounts in accordance with FRS102.

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Endometriosis UK Annual Report for year ended 31 March 2021

ABOUT ENDOMETRIOSIS

Endometriosis is a gynaecological condition where tissue similar to the lining of the womb (the endometrium) grows in other areas of the body, most commonly within the pelvic cavity. This tissue responds to the hormonal cycle in the same way as the lining of the womb, but unlike the lining of the womb there is no way for it to exit the body. It remains within the body where the bleeding forms lesions, cysts and scar tissue (adhesions). An estimated 1.5 million women and those assigned female at birth in the UK have endometriosis - that’s 1 in 10 from puberty to menopause who suffer from this disease, although the impact may be felt for life. We do not know the percentage severely disabled by it. We currently do not know what causes the disease and there is no cure.

Endometriosis can result in inflammation, scar tissue, severe pain, painful sexual intercourse, infertility, bowel and digestive problems, bladder problems and a wide range of other symptoms. None of the symptoms are exclusive to endometriosis and, despite being the second most common gynaecological disease, diagnosis can take a long time often with multiple visits to healthcare practitioners. Currently surgery is the only way of diagnosing it definitively. Endometriosis UK's own patient surveys have found that on average it takes 8 years from first symptoms to being diagnosed (March 2020). This figure has not changed in a decade, and is still unacceptably long. Additionally, there is a general lack of awareness about endometriosis: fewer than 50% of people asked in a survey (March 2020) were aware of the condition and even fewer knew what it was.

There is no wholly satisfactory drug therapy and often the treatment is surgery, although for many this has to be repeated. The repercussions can be enormous: it can affect every aspect of life, from work, ability to conceive, to relationships and overall quality of life. Since the condition is hard to see and problematic to diagnose, it can feel very isolating - coping with persistent pain, infertility and other unpleasant symptoms can also lead to depression.

Endometriosis can also have a huge effect on partners, family members and personal relationships, and all those affected may need support. This is evident from the number of partners and family members who contact the charity. Although in the past it was considered a disease of the over 30’s, increasing numbers are reporting that they are experiencing troublesome symptoms as early as their first period and sometimes even before this. There is no evidence to suggest that this is due to an increase in occurrence of endometriosis, but rather is due to the realisation at an earlier age that severe period pain is not normal. Help is therefore being sought at an earlier age - something for which the charity's campaigns over many years should take credit. However, without improved diagnosis and treatment the negative outcomes for women of persistent pain, debilitating symptoms and potential infertility still remain.

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Endometriosis UK Annual Report for year ended 31 March 2021

FOREWORD

We’re proud to share with you our annual report to highlight what you have helped us achieve this year, and to set out our plans for the future. It is thanks to our incredible volunteers, medical advisors, fundraisers, partners and supporters that we are able to be here for people when they need us, and drive real change for all those affected by endometriosis in the UK.

Covid-19 meant that the last year has been tough for everyone. For many with endometriosis it was even tougher. The pandemic has led to cancelled surgeries and appointments, and a rise in waiting lists. We worked hard to fill in the gaps where we could, working with our Medical Advisory Panel and healthcare practitioners to provide information and guidance, and deliver virtual support services. Our Support Group leaders supported virtual meetings, and we delivered a webinar programme in partnerships with specialist endometriosis centres across the UK.

We have been very proud of the amazing work done by volunteers in our support network in the face of Covid19, working hard to increase our helpline support, and Support Groups moving to meetings online. Thanks to our team of over 100 volunteers, Endometriosis UK continues to be there for those with endometriosis when they need it most. Our dedicated Medical Advisory Panel, despite being on the frontline of dealing with Covid19, found the time to help us update guidance and provide the information that was most needed, especially for those whose surgery, appointment or treatments were suddenly cancelled. We hosted webinars, made videos, and organised online panels and discussions to provide our community with information on managing their symptoms, and insights into how endometriosis care may resume.

We were overwhelmed by the support for our Walk for Endo and 1 in 10 Challenge fundraising events and their success has enabled us to increase our work to raise awareness of endometriosis and increase our campaigning. We have welcomed new staff who have immediately had a positive impact on our support network, our fundraising and our policy campaigning.

Despite the challenges and implications presented to us by Covid-19, we have continued to ensure we are at the heart of conversations around how endometriosis care can be improved and delivered. We have continued our work with the APPG on Endometriosis, in October supporting the launch of the report Endometriosis in the UK: Time for change . We have lobbied parliamentarians in England, Northern Ireland, Scotland and Wales to ensure that governments, the NHS and society recognise the significant impact endometriosis may have on all aspects of life.

With the advocacy of our volunteers and supporters we have been able to raise the profile of our Endometriosis Friendly Employer Scheme ensuring that even more organisations are aware of the challenges of endometriosis for their staff and provide better support.

For Awareness Month in March this year, we published findings that revealed over half of people in the UK (54%) do not know what endometriosis is. This is despite the fact that this disease affects 1 in 10 women and those assigned female at birth. The survey found 56% of people cannot name any symptoms of endometriosis, and even for those that have heard of endometriosis, 35% cannot name any symptoms. The results revealed a widespread lack of awareness for the condition and for its symptoms. We believe this must change.

There remains much work for us as a charity to do, and we have bold and ambitious plans for the future. We have welcomed new trustees and integrated them into a committed team. The Board has launched a programme to improve our awareness of diversity and inclusion and ensure all of our work meets the highest standards in this regard. New relationships have been formed, training organised across the organisation, and a Board sub committee are overseeing a programme of work. There is still much to do but we are committed to ensuring we are an open, fair and equal organisation in all that we do and importantly that all voices are heard and reflected in our policy and our campaigns. Later this year we will be launching a new strategy for the next 5 years, strengthening our ambitions and resolve to ensure everyone living with endometriosis has a prompt diagnosis, the best care and the support they need.

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Endometriosis UK Annual Report for year ended 31 March 2021

There are challenging times ahead, and our commitment to support those with endometriosis remains strong. We know the need for our charity and the work we do is greater now more than ever before, and are determined to be here to deliver for the endometriosis community.

We would like to thank everyone who has helped us in the past year, our Board and our wonderful staff and volunteer team.

Liz Campbell (Chair)

Emma Cox (CEO)

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Endometriosis UK Annual Report for year ended 31 March 2021

OBJECTIVES AND ACTIVITIES

Purposes and aims

The trustees’ review the aims, objectives and activities of the charity each year. This report looks at what the charity has achieved and the outcomes of its work in the reporting period. The trustees report the success of each key activity and the benefits the charity has brought to those groups of people that it is set up to help. The review also helps the trustees ensure the charity's aims, objectives and activities remained focused on its stated purposes.

The trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives and in planning its future activities. In particular, the trustees consider how planned activities will contribute to the aims and objectives that have been set.

Achievements and performance

The charity's key activities and who it tries to help are described below. All its charitable activities are undertaken to further Endometriosis UK’s charitable purposes for the public benefit, and focus on:

The following outcomes for the next 5 years have been agreed:

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Endometriosis UK Annual Report for year ended 31 March 2021

KEY ACHIEVEMENTS

Despite 2020/2021 being a difficult year, we achieved several long-term objectives, focusing on supporting those with endometriosis, reducing diagnosis times, and improving access to treatments. We have highlighted a few of these below, with more details of our activities on following pages.

🗸 SUPPORT FOR PEOPLE LIVING WITH ENDOMETRIOSIS

Offering support for those living with endometriosis is at the heart of everything we do. We continue to be there for people with endometriosis, with our fantastic team of over 100 trained volunteers providing direct support through our Support Groups (held virtually throughout the year), telephone Helpline and Health Unlocked online forum. Responding to need, we ran a programme of webinars, working in partnership with BSGE centres across the UK.

We were pleased to be invited to take part in the development of the Women’s Health Plan for Scotland, and to be commissioned by the Scottish Government to undertake a review of the implementation of the NICE Guideline on Endometriosis in Scotland.

🗸 INFORMATION AND RESEARCH

Access to accurate information is essential for those with endometriosis, never more so than this year when the pandemic posed a significant worry for everyone, particularly where medical care was postponed or cancelled. We responded by working with our Medical Advisory Panel and partners including the RCOG to create a Covid Impact Hub containing information and resources on Covid-19 and endometriosis, accessing treatments and strategies for the management of symptoms with limited access to healthcare practitioners.

We know that research is at the core of improving the lives of those with endometriosis. We’re delighted to have been involved in numerous research projects this year that are working towards improving treatment options.

🗸 AWARENESS AND CAMPAIGNING

We have continued to work with governments across the UK to raise awareness and push for greater support for those with endometriosis. Working with the All Party Parliamentary Group (APPG) on endometriosis in Westminster, we supported their Inquiry and published a report and recommendations in October 2020, generating significant media coverage.

Our work to raise awareness with healthcare practitioners has continued through the year, including work with the Royal College of GPs (RCGP) on their spotlight project on menstrual wellbeing. We have also worked with the Royal College of Obstetricians and Gynaecologists, British Society for Gynaecological Endoscopy, and Royal College of Nursing (RCN).

Awareness Month in March again showed the creativity and enthusiasm of the endometriosis community, with a raft of virtual events and activities, including the World Wide Endo March being held virtually for the second year. And our new covid-compliant challenges, Walk for Endo in summer 2020 and the 1 in 10 Challenge in March 2021, saw over 1,500 supporters raise both awareness of endometriosis and funds for the charity.

🗸 RESOURCING

Our team of over 100 volunteers deliver our direct support services. We adapted our training for volunteers to go online, and have continued volunteer recruitment and training through the year.

The second year of our two-year partnership with Standard Life saw the expansion of the Endometriosis Friendly Employer Scheme , designed to help drive positive change in the work place and work with employers to better understand what simple adjustments can be made to support those with endometriosis. We are very grateful to Standard Life for choosing us as their corporate partner, and their dedication to champion invisible illnesses and work with us to help achieve our long-term organisational goals.

A grant from the National Lottery Community Fund supported us to develop a webinar series and suite of downloadable materials to support people with the self-management of their endometriosis symptoms whilst NHS services were impacted due to Covid-19.

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Endometriosis UK Annual Report for year ended 31 March 2021

SUPPORT FOR THOSE LIVING WITH ENDOMETRIOSIS

Highlights

Future Plans

A big THANK YOU to all of our amazing volunteers!

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Endometriosis UK Annual Report for year ended 31 March 2021

TESTIMONIALS FROM THOSE WITH ENDOMETRIOSIS WE HAVE SUPPORTED

Comments on our Helpline

“I spoke to the most lovely person on Monday on the helpline. She was really kind and knowledgeable. Thank you for all you’re doing as the charity at this moment”

“I called this morning and spoke to a really lovely lady. It's really what I needed, been having the worse couple of days. Made me feel so much better that I could talk to someone who understood! Thank you”

“Thank you so much for listening. That’s all I needed, a safe space to offload and know I am not crazy. I feel so much better and able to carry on advocating for myself for a while longer.”

Feedback for online support groups and webinars

“Went to the support meeting tonight and I’ve never ever experienced that level of help. I’m beyond grateful! Thank you!”

“The last one was so super helpful! I have made so many changes and I am so grateful to you.”

“One of the attendees unmuted herself specially to tell everyone how much our support services have helped her, particularly the Helpline, which she described as “a miracle” and told everyone how our Helpline volunteers have supported her numerous times, helping her feel understood and navigate the challenges of the disease”.

Examples of feedback from people we have supported

“I just wanted to say a huge thank you for the support you provide, particularly through your website. I was finally diagnosed with endometriosis yesterday after years of talking to dismissive GPs and not being believed about how bad my symptoms were. From the start of this process I used your resources such as the symptoms grid and then right up to the laparoscopy with what to expect. Without your info, I would have felt clueless going into it so THANK YOU!”

“I am lucky to have only had a few bad years in my late 40s with endometriosis, but my 21 year old daughter has had it since she was 16. So I wanted to support your ongoing support for her, and all the other women suffering. Your charity does such a good job and I wish you all the best in these strange and difficult times.”

“Endometriosis UK helped me at when I was at my lowest. I was able to get diagnosed through the GP, to find access to a specialist centre and the treatment I needed. I am so grateful”

“My whole life has been a fight with endometriosis and sharing my story gives me that little bit of hope. Thank you Endometriosis UK”

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Endometriosis UK Annual Report for year ended 31 March 2021

INFORMATION AND RESEARCH

Highlights

We recognised that the Covid-19 pandemic posed a significant worry, particularly where medical care was postponed or cancelled. We responded to this by working with our partners including the Royal College of Obstetricians and Gynaecologists to create a Covid Impact Hub containing the latest information and resources available on Covid-19 and endometriosis with regards to some of the current recommendations on medical treatments and some strategies for the management of associated symptoms. As part of our Endometriosis Friendly Employer scheme, we published new resources on law, rights at work and best practice for both employers and employees on endometriosis at work. We’ve been delighted to see a growing number of UK employers joining the Endometriosis Friendly Employer Scheme, with over 70 employers having made the pledge to develop a work environment and culture that enables employees with endometriosis to thrive. Joining early adopters Standard Life, News Scotland and BBC Scotland, organisations of different sizes have chosen to participate, including Johnson & Johnson, Santander, Mitie and Adobe. In December, Merseyside Police became the first constabulary to join the scheme, with nine more UK Police Forces subsequently joining during the year.

Through the Endometriosis Friendly Employer scheme, organisations have begun to make great progress for employees with endometriosis; by holding events to raise awareness of the disease and the impact it can have, developing guidance and policies to better-support those with endometriosis at work, working with Endometriosis UK to deliver training for staff and nominating workplace Endometriosis Champions to increase awareness and sign-post.

We are pleased to be involved in a range of research projects, including the following clinical trials:

DIAMOND: Deep infiltrating endometriosis: management by medical treatment versus early surgery

ESPriT2: The effectiveness of laparoscopic treatment of isolated superficial peritoneal endometriosis for managing chronic pelvic pain in women: a randomised controlled feasibility trial

REGAL: Recurrence of Endometriosis: A randomised controlled trial of clinical and cost-effectiveness of Gonadotrophin Releasing Hormone Analogues with add-back hormone replacement therapy versus repeat Laparoscopic surgery

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2021

AWARENESS AND CAMPAIGNING

Highlights

We supported the APPG on Endometriosis Inquiry, which published a report and recommendations in October 2020, gaining significant media coverage. We have continued to provide the Secretariat to the APPG on Endometriosis.

Our campaign to get Menstrual Wellbeing included in the school curriculum is ongoing in Wales and Scotland, and we are identifying ways to move this forward in Northern Ireland.

We contributed to a report developed by the Women and Work All Party Parliamentary Group (APPG) on Women's Wellbeing At Work. The report's outcomes focussed on ways to improve menstrual policies in the workplace, including references to our Endometriosis Friendly Employer scheme and the need to support those with endometriosis. We are supporting the calls of the Women and Work APPG regarding flexible working policies following Covid-19, the need for employers to learn from the pandemic and the importance of flexible working, especially for those with chronic health conditions.

This year, the Endo March teams in London, Leeds, Scotland, Wales and Northern Ireland came together for the second virtual World Wide Endo March, raising awareness of endometriosis. Thousands of people took part, and it was amazing to see social media turn yellow.

We worked closely with the BBC’s EastEnders team on a storyline about endometriosis. It’s a big step forward to see EastEnders tackle endometriosis head on, a UK soap first that will help raise awareness and reduce the stigma associated with the disease.

We were pleased to host an online screening of the award winning short film End-O: a (very funny) short film about Endometriosis along with a panel discussion with the writer Elaine Gracie and director Alice Seabright. If you haven’t seen it yet you should – over 18’s only, available free online.

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2021

RESOURCING

Highlights

With the onset of Covid-19, at the beginning of year we undertook detailed risk assessments, financial reforecasts and reviewed our scenario planning, to ensure we were in the best position we could be to make decisions through the year. This work has delayed the launch of our new strategy, now scheduled for later this year.

With the cancellation of all events we were expecting a significant loss of income, and have kept expenditure to a minimum. However, through developing new covid-compliant engagement activities and thanks to the magnificent response of the endometriosis community, we have achieved a higher income than last year.

We moved to working virtually and have done all year. Our cloud-based IT and phone systems meant we were able to do this relatively smoothly, with thanks to team members who squeezed an office into their homes. We have since closed the office, and have now secured new and more cost effective office accommodation from the Autumn.

Income:

Fundraising - 43% Donations - 41% Grants - 9% Legacy Donations - 7%

Expenditure:

Helpline & Support Services - 46% Information Services - 27% Raising Funds - 24% Research - 3%

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2021

SUPPORTERS

When Covid-19 regulations resulted in the cancellation of all the events, challenges and activities we had planned, we thought there might be no fundraising for the year. But our amazing supporters got creative and did a remarkable range of covid-compliant awareness and fundraising, from holding cake sales to doing sponsored activities.

An amazing 879 people signed up for our new Walk for Endo challenge in summer 2020, to show their support for those with endometriosis, raising awareness and funds. A really big thanks to you all. A special shout out to the Chelsea & Westminster Hospital Endometriosis Centre team for fitting in a Walk for Endo despite all you were doing working on the front line fighting Covid-19.

For Awareness Month in March we launched another new challenge, 1 in 10 . We were delighted that 1,022 supporters took part, from running or cycling 10k, to 24 hour live streams and delicious cake baking.

We have been immensely touched by all the effort our supporters have gone to in what would otherwise have been a very difficult year for the charity. Thanks to you, we ended the year a stronger organisation and able to undertake more work, at a time we feared we might have had to cut back what we were doing. Going forward we will be able to provide more support and raise awareness. We are determined to continue to grow to do all we can for those with endometriosis.

During the year, we came to the end of our two-year partnership with Standard Life, our first major corporate sponsor. We’ve been delighted to work with Standard Life to raise awareness of endometriosis, reduce diagnosis time and tackle stigma at work. During this second year, our partnership focused on tackling stigma at work, further developing and expanding the Endometriosis Friendly Employer scheme. We are very grateful to the team at Standard Life for all their support, and for really championing those with endometriosis in the workplace – a lasting legacy.

Future plans

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Endometriosis UK Annual Report for year ended 31 March 2021

Beneficiaries of our services

Our beneficiaries include all those with or impacted by endometriosis.

We know that there are additional complexities in accessing healthcare and support for those from Black, Asian and minority ethnic communities, and for the LGBTQ+ community. From survey work undertaken November 2019 - March 2020, we identified that we were not reaching these communities as we would like. Endometriosis UK is committed to supporting and advocating for everyone affected by endometriosis regardless of race, gender, sex, gender identity, class, sexual orientation or disability and ensuring diversity. Everyone affected by endometriosis needs to be acknowledged, and we know that we must do more to identify the needs of all those affected by endometriosis, develop, maintain and evaluate our work to meet those needs and advocate for necessary change and ensure all voices are heard.

We are taking steps to actively ensure we drive change for those from under-represented groups and the Board have established a Diversity & Inclusion Group to ensure we take this work forward. Our first priority is ensuring that we understand the needs of all those with endometriosis including those from underrepresented groups, which will inform our priorities. We would like to thank our friends Cysters, a grassroots charity championing diverse and marginalised communities, who are helping us with our diversity and inclusion work.

Financial review

The Trustee Board oversees the charity’s finances. To support the Board, a Finance Committee meets regularly, chaired by our Treasurer.

The year 2020/21 generated a surplus of £516,246. At the onset of the pandemic, following risk assessments and income reforecasting, we reduced our expenditure as much as we could. We were able to post a surplus as a result of careful management of costs, plus an amazing level of fundraising from our supporters. Planned investment was postponed at the beginning of the year, however as the financial situation over the year became more certain this was reviewed and carefully recommenced. Further expansion is planned over the next year, including development of a new web-chat service. The trustees were keen to secure income streams to ensure that we are in a place to develop our plans – ambitious plans for a small charity. Through both managing costs and developing our fundraising, the trustees carefully monitored finances over the year to ensure the year ended with unrestricted reserves that comfortably met our reserves policy. The trustees, and Finance Committee working closely with the CEO, will continue to look for opportunities to develop further fundraising opportunities.

Following a period with low reserves and a deficit budget, the charity has delivered a planned surplus for this and the prior two years as we grew reserves to enable a period of growth in 2021/22. This has placed us in a good position to survive the impact of Covid-19. The Board will undertake a review of resources prior to launching the new strategy.

Principal risks and uncertainties

The charity reviewed risk during 2020-21, covering the key aspects of our work including finance, governance and management, operational and external factors. Material risks were identified, reviewed and mitigated by the trustees and this will continue in the year ahead.

In April 2020, a detailed Covid-19 risk assessment was produced, reviewed by the Board through the year. Given the uncertainty of the situation, a range of 5-year scenarios and financial modelling was undertaken to enable the trustees to plan how to manage the charity, monitor progress and mitigate against the impact of Covid-19. From April to October, the Finance Committee, a sub committee of the Board, increased frequency of meetings to monthly, ensuring close monitoring of risk, and clear and prompt oversight of the financial

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Endometriosis UK Annual Report for year ended 31 March 2021

position and cashflow. Expenditure was reduced and carefully monitored given uncertainty about fundraising income in the new environment.

Reserves policy and going concern

Our reserves policy is to hold unrestricted reserves equivalent to at least 6 months’ operating costs. Free reserves level at March 2021 were around 12 months total operating costs. We started the year in a good financial position, having worked hard over the prior 3 years to build reserves in order to expand our activities. Planned expansion of activities and appointment of new staff in spring 2020 were put on hold and expenditure minimised whilst we ascertained the impact of the pandemic.

We received a great response to the new fundraising plans developed in the face of the pandemic, and would like to thank all the fundraisers and donors who were so generous over the year. This has helped us invest in new areas of work to support the endometriosis community, and to plan for further activities and support in the year head.

At the year end, the charity has unrestricted reserves totalling £891,492. Staff and trustees reviewed the reserves policy in March 2021 and continue to carefully monitor the cash flow position and reserves. Having sufficient reserves allows us to plan for and deliver future projects, with a focus on decreasing diagnosis times, raising awareness and supporting those with endometriosis. It also enables us to leverage further income, for example some funders are happier to part fund activities where the organisation has already raised some money. Having sufficient reserves allows us to make the most of these opportunities.

Structure, governance and management

The organisation is a charitable company limited by guarantee, incorporated on 25[th] March 1994 and registered as a charity on 29[th] March 1994

The company was established under a memorandum of association which established the objects and powers of the charitable company and is governed under its articles of association.

All trustees give their time voluntarily and receive no benefits from the charity. Any expenses reclaimed from the charity are set out in note 6 to the accounts.

Appointment of trustees

Four trustees reached their maximum 6-year length of service during the year. A recruitment programme was planned and undertaken, focusing on improving the diversity of the Board. Extensive advertising and promotion of the vacancies resulted in over 60 applicants, with 5 new trustees being recruited, including a new Chair and Treasurer.

Trustee induction and training

All new trustees have participated in an online induction programme and the Chair and Treasurer a more extensive induction with their predecessors. The Board hold an annual away day to consider strategy and review the performance of the Board.

Statement of responsibilities of the trustees

The trustees (who are also directors of Endometriosis UK for the purposes of company law) are responsible for preparing the trustees’ annual report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of

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Endometriosis UK Annual Report for year ended 31 March 2021

resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the trustees are required to:

The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

In so far as the trustees are aware:

The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company's website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Members of the charity guarantee to contribute an amount not exceeding £1 to the assets of the charity in the event of winding up. The total number of such guarantees at 31 March 2021 was 1,071 (2020: 894). The trustees are members of the charity but this entitles them only to voting rights. The trustees have no beneficial interest in the charity.

Auditor

Sayer Vincent LLP was appointed as the charitable company's auditor during the year and has expressed its willingness to continue in that capacity. The directors’ annual report has been prepared in accordance with the special provisions applicable to companies subject to the small companies' regime.

The trustees’ annual report has been approved by the trustees on the 11 September 2021 and signed on their behalf by

Liz Campbell (Chair)

Tracey Hammonds (Treasurer)

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Endometriosis UK Annual Report for year ended 31 March 2021

ACKNOWLEDGEMENTS

We could not do the work we do without the time and knowledge kindly offered to us by our volunteers, fundraisers, speakers, health experts and medical advisors. Without them we would not be able to reach and support the people we do. We would like to thank them all for their on-going support and generosity.

All those volunteers who have given up their time to support people affected by endometriosis - through the Helpline, Support Groups, Health Unlocked moderators - receive a special vote of thanks. Huge thanks as well to everyone involved in running an event and everyone who baked cakes or ran or walked or gave up chocolate (or sponsored others for doing so) or were involved in other fundraising projects to raise money to support the charity.

And a very heartfelt thank you to those who told their stories to the media to raise awareness, which can be such a hard and emotional thing to do yet is vital in raising awareness and helping others.

As always, all of our work will be a team effort. Our staff, volunteers, members, trustees, those with endometriosis in our wider community, their friends and family, healthcare professionals, researchers – all of those who work so tirelessly as part of Team Endo are making a huge difference where it is so desperately needed.

A special thank you to Wendy-Rae Mitchell, who stepped down from the Medical Advisory Panel this year. Wendy has done a huge amount for the charity over many years, including as a support group leader, speaker, trainer and fundraiser. Wendy’s work as a Clinical Nurse Specialist in endometriosis at the Royal Surrey Hospital, championing training for endometriosis specialist nurses, and long-term involvement in the Guildford Endometriosis UK Support Group has provided a huge amount of essential support for many.

As well as our funders below, we would like to thank each and every person who has made a donation this year or encouraged other people to donate. We would also like to thank our small and dedicated staff team.

Standard Life, our first major Corporate Partner

The National Lottery Community Fund

Scottish Government, who provided a grant for the analysis of care for endometriosis in Scotland

Hologic

Takeda

TOTM

Westminster Council, who provided a Covid-19 small business grant

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Endometriosis UK Annual Report for year ended 31 March 2021

ABOUT US

Meet the Endometriosis UK governance and staff team

Emma Tegala, Support Network Manager, and Faye Farthing, Communication & Campaigns Manager, are currently on maternity leave

How to get involved

The more people working together the stronger we are and the louder our voice. We have a range of ways you can get involved, for more information please check out our website: www.endometriosisuk.org/get-involved

If you would like to hear what we are up to throughout the year, sign up for our regular e-update.

Contact

Endometriosis UK 10 -18 Union Street, London SE1 1SZ

Tel: 020 7222 2781 Helpline: 0808 808 2227

www.endometriosis-uk.org/contact-us

Twitter @EndometriosisUK Instagram endometriosis.uk Facebook www.facebook.com/endometriosis.uk.org

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Endometriosis UK Annual Report for year ended 31 March 2021

INDEPENDENT AUDITOR’S REPORT TO THE MEMBERS OF ENDOMETRIOSIS UK

Opinion

We have audited the financial statements of Endometriosis UK (the ‘charitable company’) for the year ended 31 March 2021 which comprise the statement of financial activities, balance sheet, statement of cash flows and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including FRS 102 The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on Endometriosis UK's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

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Endometriosis UK Annual Report for year ended 31 March 2021

Other Information

The other information comprises the information included in the trustees’ annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit, or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.

We have nothing to report in this regard.

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the trustees’ annual report. We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion:

The directors were not entitled to prepare the financial statements in accordance with the small companies regime and take advantage of the small companies’ exemptions in preparing the trustees’ annual report and from the requirement to prepare a strategic report.

Responsibilities of trustees

As explained more fully in the statement of trustees’ responsibilities set out in the trustees’ annual report, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

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Endometriosis UK Annual Report for year ended 31 March 2021

Auditor’s responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud are set out below.

Capability of the audit in detecting irregularities

In identifying and assessing risks of material misstatement in respect of irregularities, including fraud and noncompliance with laws and regulations, our procedures included the following:

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Endometriosis UK Annual Report for year ended 31 March 2021

Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance.

The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.

A further description of our responsibilities is available on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities . This description forms part of our auditor’s report.

Use of our report

This report is made solely to the charitable company's members as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company's members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's members as a body, for our audit work, for this report, or for the opinions we have formed.

Fleur Holden (Senior statutory auditor) Date 18 October 2021

for and on behalf of Sayer Vincent LLP, Statutory Auditor

Invicta House, 108-114 Golden Lane, LONDON, EC1Y 0TL

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Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometri05is UK Statement of financial activitie5 (incorporating an incorne and expenditure account) For the ear ended 31 March 2021 2021 Total Unrestricted 2020 Total Unrestricted Restricted Restricted Nore Income from= Grants and donarions Other trading activitie5 Interest Other 406,545 366,889 143 20,511 78,279 484,824 366,889 143 20,51 273.557 180,550 367 2,024 47.800 321,357 180,550 367 2,024 Total income 794,088 78,279 872,367 456.498 47,800 504.298 Expenditure on- Raising fund5 Charitable activities Helpline and support Services Information services Research 84,429 84,429 90,235 90,235 83,736 97,707 78,279 162,015 97,707 11,971 111,682 92.496 10.365 53.888 165,570 92,496 10.365 Total expenditure 277,842 78,279 356.121 304,778 53,888 358,666 Net income for the year 516,246 516,246 151,720 16,0881 145,632 Transfers between funds Net movement in funds 516,246 516,246 151,720 16,0881 145,632 Reconciliation of funds.. Total funds brought forward 375,246 1,800 387.046 223.526 17.888 241.414 Total fund5 carried forward 891,492 11,800 903,292 375,246 11,800 387,046 All of Ihe above results are derived from continuing aciivities. There wer& no other recognised gain5 or10sse5 Other than rhose slated above. ovements in funds are digclosed In Note 15a to the flnancial siatements. 28

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometriosis UK Balance sheet Company no. 02912853 As at 31 March 2021 2021 2020 Note Flxed assets: Property, plant and equipment 9,183 7,910 Current assets- Debtors Cash at bank and in hand 95,944 818,404 22,831 374,713 914,348 397,544 Liabilitie5'. Creditors.. amounts falling due within one year 120.2391 118,4081 Net current assets 894,109 379.136 Total asset5 less current liabilities 903,292 387,046 Total net assets 903.292 387,046 The funds of the charity- Restricted funds Unrestricted funds.. General reserve 15a 11.800 11,800 891,492 375.246 Total unrestricted funds 891.492 375,246 Total charity funds 903,292 387.046 Approved by the trustees on I I September 2021 and signed on their behalf by Liz Campbell Director Tracey Hammonds Director 29

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endomerrlosls UK Statement of cash flows For the ear ended 31 March 2021 2021 2020 Cash flows from operatlng actlvitles Net income for the reporting period las per the statement of financial activities) Depreciation charges Increase in debtors Increase in creditors 516,246 14S,632 2,181 (73,113) 1,831 2.284 (9,777) (4,617) Net cash provlded by operatlng actlvltles Cash flows from Investing activltles.. Purchase of property, plant and equipment 447,145 133,522 (3.454) (2,637) Net cash used In Investlng actlvltles (3,454) 12.637) Change In cash and cash equlvalents In the year Cash and cash equivalents at the beginning of the year 443,691 130.885 374,713 243.828 Cash and cash equlvalents at the end of the year 818.404 374.713 30

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosls UK Notes to the flnanclal statements For the ear ended 31 March 2021 l Accountlng pollcles a) Statutory Informatlon Endometriosis UK is a charitable company limited by guarantee and is incorporated in the UK. The registered office address is l 0-18 Union Street, London, SEI I SZ. bl Basls of preparatlon The flnancial statements have been prepared In accordance with Accounting and Reporting by Charitles.. Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021- (Charities SORP FRS 1021, The Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021 and the Companies Act 2006. In accordance with the Charities SORP, the parent charity does not prepare consolidated financial statements on the basis that the annual gross income of the group does not exceed £ I million. Assets and liabilities are initially recognised at historical cost or transactlon value unless otherwlse stated in the relevant accounting policy or note. In applying the financial reporting framework. the trustees have made a number of subjective jLtdgement5. for example in respect of significant accounting estimates. Estimates and judgements are continually evaluated and are based on historical experience and other factors, Includlng expectatlons of future events that are believed to be reasonable under the circumstances. The nature of the estimation means the actual outcomes could differ from those estimates. Any significant estimates and judgements affecting these financial statements are detailed within the relevant accounting policy below. c} Publlc beneflt entlty The charity meets the definition of a public benefit entity under FRS 102. dl Golng concern The trustees consider that there are no material uncertainties about the Charity's ability to continue as a going concern. At the start of the Covid-19 pandemic, the trustees reviewed income and expenditure and undertook a risk analysis. resulting in recasting the budget to reduce expenditure. and looking to identify and maximise income opportunitie5. Expenditure was kept down through the year, and a focus on developing new income sources has resulted in a strong income level for the year. 31

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosls UK Notes to the flnanclal statements For the ear ended 31 March 2021 l Accountlng pollcles Icontlnuedl e) Income Income is recognised when the charity has entitlement to the funds. any performance conditions attached to the income have been met, It is probable that the income wlll be received and that the amount can be measured reliably. Income from government and other grants. whether 'capital' grants or 'revenue' grants. is recognised when the charity has entitlement to the funds, any performance conditions attached to the grants have been met, It is probable that the income will be received and the amount can be measured reliably and is not deferred. For legacies, entitlement is taken as the earlier of the date on which either.. the charity is aware that probate has been granted, the estate ha5 been finali5ed and notification ha5 been made by the executorl51 to the charity that a distribution will be made, or when a distribution is received from the estate. Receipt of a legacy. in whole or in part, is only considered probable when the amount can be measured reliably and rhe chariry has been notified of the executor's intention to make a distribution. Where legacies have been notified to the charity, or the charity 15 aware of the granting of probate, and the criteria for income recognition have not been met, then the legacy 15 a treated as a contingent asset and disclosed if material. Income received in advance of the provision of a specified Service 15 deferred until the criteria for income recognition are met. n Donatlons of glfts, setvlces and facllltles Donated profe55ional services and donated facS1itles are recognlsed as Sncome when the tharity has control over the item or received the service. any conditions associated with the donation have been met. the receipt of economic benefit from the use by the chariry of the item is probable and rhat economic benefir can be measured reliably. In accordance with the Charitbes SORP IFRS 1021, volunteer tlme is not recognised $0 refer to the trustees. annual report for more information about their contribution. On recelpt, donated gifts, professional services and donated facillties are recognised on the basis of the value of the gift to the charity which is the amount the charity would have been willing to pay to obtain services or facilitie5 of equivalent economic benefit on the open market.. a corresponding amount is then recognised in expenditure in the period of recelpt. gl Interest recelvable Interest on funds held on deposlt Is Included when recelvable and the amount can be measured rellably by the charity., this is normally upon notification of the interest paid or payable by the bank. h) Fund accountlng Restricred funds are to be used for specific purposes as laid down by the donor. Expenditure which meets these crlterba Is charged to the fund. Unrestricted fund5 are donation5 and other incoming resources received or generated for the charitable purposes. Designated fund5 are unrestricted funds earmarked by the trustees for particular purposes. 32

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosls UK Notes to the flnanclal statements For the ear ended 31 March 2021 Accountlng pollcles Icontlnued) 11 Expendlture and Irrecoverable VAT Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party. it is probable rhat settlement will be required and the amount of Ihe obligation can be measured reliably. Expenditure is classified under the followlng actlvlty headlngs.. Costs of ralsing funds relate to the costs Incurred by the charity In Induclng third partles to make voluntary contributions to it, a5 well as the cost of any activitie5 Wlth a fundraising purpose Expenditure on charitable activities includes the costs of delivering seNices undertaken to further the purposes of the charity and their associated support costs, to include.. Helpline and support services providing services for the relief of endometriosis Informatlon servlces - relatlng to advancing the educatlon of those with the dlsease, the general public and health profe5siona15 regarding endometri051S Research activities to support research into endometriosi5 to improve understanding, treatment and management of the disease. Other expenditure represents those items not falling into any other heading Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred. J) Allocatlon of support costs Resource5 expended are allocated to the particular attivity where the cost relates directly to that activity. However, the c05t of overall direction and administration of each activity, comprising the salary and overhead costs of the central function, is apportioned on the following basis which are an estimate, based on staff time. of the amount altributable to each activity. Where information about rhe aims, objectives and projects of the charity is provided to potential beneficiaries, the costs assoclated with thls publicity are allocated to charltable expendlture. Where such information about the aim5, objectives and projects of the charity is also provided to potential donors, activity costs are apportioned between fundraising and charitable activities on the basis of area of literature occupied by each activity. Raising funds Helpline & Support SeNices Information Services Research 25% Governance costs are the costs assocbated with the governance arrangements of the charity. These costs are associated with constitutional and statutory requirement5 and include any costs a550ciated with the strategic management of the charity's activities. kl Operatlng leases Rental charges are charged on a straSght Ilne basls over the term of the lease. 33

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosls UK Notes to the flnanclal statements For the ear ended 31 March 2021 l Accountlng pollcles (contlnuedl 1> Tanglble flxed assets Items of equipment are capitalised where the purchase price exceed5 £200. Depreciation costs are allocated to activities on the basis of the use of the related assets in rhose activities. Assets are reviewed for impairment if circumstance5 indicate their carrying value may exceed their net reali5able value and value in use. Where fixed assets have been revalued, any excess between the revalued amount and the historic cost of the asset will be shown a5 a revaluation reserve in the balance sheet. Depreciation is provided at rates calculated to write down the cost of each asset to its estimated residual value over it5 expected useful life. The depreciation rate5 in use are as follow5.. Office equiptment 4 years m) Debtors Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due. n) Cash at bank and In hand Cash at bank and cash in hand includes cash and short term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account. o) Credltors and provlslon5 Creditors and provision5 are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amoLtnt due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due. p) Penslons The charity contributes to workplace pension schemes for its employees. Contributions are charged to the Statement of Financial Activitie5 in the period to which they relate. 2 Income from grants and donatlons 2027 Total Unrestricted 2020 Total Unrestricted Restricted Restricted Hologic Wellcome Trust Lottery Community Funding Scottish Government Endometri05is UK Trading Ltd Other donations Legacy donations 30,000 2,800 30,000 2,800 53,279 25,000 53.279 25,000 i 00,000 251.545 55.000 5,000 15.000 98,000 175,557 i 00,000 251,545 55,000 98,000 175,557 406, 545 78,279 484.824 273,557 47,800 321,357 Income received from Endometri05is UK Trading Ltd is the distribution of profits under gift aid. 34

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosi5 UK Notes to the flnanclal statements For the ear ended 31 March 2021 3 Income from other tradlng acrlvltles 2021 Total Unrestricted 2020 Total Unrestricted Restricted Restricted Challenge events Membership fees Publications and events Other fundraising activities 261,067 24,931 261,067 24,931 54,324 14,535 4,097 107,594 54,324 14,535 4,097 107,594 80,891 80,891 366,889 366,889 180,550 180,550 Other fundraising activities represent members and supportes raising funds on behalf of the charity. 35

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlos15 UK Notes to the flnanclal sratemenis For the ear ended 31 March 2021 4a Anatysls of expendlture Icurreni yearl Ine an support Information 5ervice5 serwces Raising funds Governance cost5 Supports Costs 2021 Total 2020 Total Research Staff cosis (Noie 61 Information MeTnbeiship EFE Fundiaising & Challenge Event5 Office costs Premises costs Professlonal Fee5 Helpline & Volunteer Expenses Other c05tS 40,316 82.606 53.755 15,403 5,005 6,547 204.390 15.403 192.727 15.926 15,091 15,091 61,972 28.625 25,524 2,562 2,403 17,760 32,204 30,295 18.435 47.172 4,147 19,813 5.332 36,827 28,625 25,524 2,562 70 2,333 55,407 105,132 74,490 5,005 6,617 109,470 356,121 358,666 Jpwrt iosrs 27,368 53.640 21.893 6,568 1109,4701 Governance costs 1,654 3,242 ,324 397 Total expendlture 2021 84,429 162,015 97,707 11,971 356,121 Total expenditure 2020 90,235 165,570 92,496 10,365 358,666 36

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometri05is UK Draft.. 22 September 2021 15.'00 Notes to the financial statements For the ar ended 31 March 2021 4b Analysis of expenditure (prior yearl Charirable activities Ine an support Information services services Raising funds Governance costs Support costs Research 2020 Total Staff costs (Note 61 Inform3tion Fundraising & Challenge Events Office c05t5 -emises Costs Professional Fees Helpline & Volunteei Expenses Other c05tS 47,990 70,408 56,982 15,926 4,488 4,487 8.372 192.727 15,926 17,760 32.204 30,295 18,435 47.172 4,147 17,760 32.204 30,295 18,435 47,172 1,793 2,354 65,750 117,580 72,908 4,488 6,280 91,660 358,666 Support Costs 22,915 44,913 18,332 5,500 191.6601 Governance cosrs 1,570 3,077 1,256 377 16,2801 Total expenditu￿ 2020 90.235 165.570 92.496 10.365 358.666 37

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometriosis UK Draft.. 22 September 2021 15.'00 Notes to the financial statements For the ear ended 31 March 2021 Ner income for the year This is stated after charging I (crediting).. 2021 2020 Depreciation Operating lease rentals payable.. Property Orher Auditor's remuneration (excluding VAT).. Audit 2,181 2,284 25,735 1,006 25.592 1 ,006 6,500 2,100 Analysis of staff costs, trustee remuneration and expenses, and the cost of key management personnel Staff c05t5 were as follows.. 2021 2020 Salarie5 and wages Social security costs Employer's contribution to defined contribution pension schemes 187.790 12,977 3.623 173.591 15,505 3.631 204.390 192,727 No employee earned more than £60,000 during the year12020.' nil). The total employee benefits (including pension contribution5 and employer'5 national insurance) of the key management personnel were £45,05412020: £40,455). The charity trustees were neither paid nor received any other benefits from employment with the charity in the year12020.' £nil). No charity trustee received payment for professional or other services supplied to the charity12020.' £nil). Trustee expenses represents the payment or reimbursement of travel and subsistence costs totalling nil 12020.. £1 .793) incurred by nil 12020.. 31 members relating to attendance at meetings of the trustees. 38

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosls UK Draft: 22 September 2021 15'.00 Note5 to the financlal staternents For the ear ended 31 March 2021 Staff numbers The average number of employees Ihead count based on number of staff employed) during the year was 11 (2020.. 8). 3 employees worked full time. with 8 employees working part time. The CEO is part time, 3 or 4 days per week. Staff are split across the activities of the chariry as follows (full time equivalent basis1= 2021 No. 2020 No. Raising funds Helpline and support services Information services Research Governance Related party transactions Endometriosis UK received donations totalling £663 12020.. £450) from nine trustee5 12020- six). The trustee5 receive no benefit from the donations made to the charity. During the financial year consultancy seNices totalling £3.332. 5012020.. £nill were provided by the sister of one of the Endometriosis UK trustees, Andrew Glyde. Of this amount, £1 ,140 is due to be paid at the year end. 39

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometriosis UK Draft: 22 September 2021 15:00 Notes to the financlal statements For the ear ended 31 March 2021 Subsidiary undertaking Endometriosis UK Trading Limited was incorporated in the UK as a wholly owned subsidiary of Endometriosis UK on 2 June 2006 (Company No.. 058360071. with an issued share capital of £ l . The company started trading in the previous financial year. A summary of the results of the subsidiary is shown below= 2021 2020 Turnover 12,818 ioo,000 Gross profitl(loss) Administrative expenses 12.818 ioo,000 12,530) 13411 Profitl(loss) on ordinary actlvitie5 before Interest and taxation Taxation on profit on ordinary activities 10.288 99,659 1249) Total comprehensive income 10,288 99,410 Retained earnings Total retained earnings brought fO￿ard Total comprehensive income Distribution under Gift Aid to parent charity 100,721 10.288 (i 00,000) 99,311 99,410 198,000) Total retained earnings carried forward 11,009 100,721 The aggregate of the assets, liabilities and reserves was.. Asset5 Liabilities 18,320 {7,310) 103,007 12,2851 Reseries ii,oio 100,722 l O Taxation The charity is exempt from corporation tax as all its income is charitable and is applied for charitable purposes. 40

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometriosis UK Draft.. 22 September 2021 15:00 Notes to the financial statements For the ear ended 31 March 2021 I l Tangible fixed assets Office equipment Total Cost At the start of the year Additions in year 12,604 3,454 12,604 3.454 At the end of the year 16.058 16.058 Depreciation At the start of the year Charge for the year 4,694 2,181 4.694 2.181 At the end of the year Net book value At the end of the year 6,875 6,875 9.183 9,183 At the start of the year 7,910 7,910 All of the above a55ets are used for charitable purposes. 12 Debrors 2021 2020 Prepayment5 Accrued income Other debtors Inter-company balance 21.151 69.287 3,216 2.290 10.181 10,614 2.036 95.944 22.831 13 Creditors: amounts falling due within one year 2021 2020 Taxation and social security Other creditors Accruals 6.330 6,165 7.744 6.818 9,490 2.100 20,239 18,408 41

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometriosis UK Draft.. 22 September 2021 15:00 Notes to the financial 5tatement5 For the ear ended 31 March 2021 14a Analysls of net assets between funds (current year) General unrestricted Restricted Total funds Tangible fixed assets Net current assets 9,183 493,006 9.183 504.806 11,800 Net assets at 31 March 2021 502,189 11,800 513.989 14b Analysls of net assets between funds Iprlor year) General unrestricted Restricted Total funds Tangible fixed assets Net current assets 7,910 367,336 7,910 379.136 11,800 Net assets at 31 March 2020 375,246 11,800 387,046 15a Movernents in funds {current year) At31 March 2021 At l April Income and Expenditure 2020 gains and losses Transfers Restricted funds- Takeda Lottery Community Fund Scottish Government 11,800 11,800 53,279 25.000 (53,2791 125,0001 Total restrlcted funds 11,800 78,279 178,2791 11.800 Unrestrlcted funds.. General funds 375,246 794.088 1277,8421 891.492 Total unrestrlcted funds 375.246 794.088 1277.8421 891,492 Total funds 387.046 872.367 1356,1211 903,292 The narrative to explain the purpose of each fund is given at the foot of the note below. 42

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometriosis UK Draft- 22 September 2021 15'.00 Notes to the flnanclal statements For the ear ended 31 March 2021 15b Movements In funds (prlor year) At31 March 2020 At l April Income and Expenditure 2019 gains and losses Transfers Restricted funds: Takeda Hologic Wellcome Trust Scottish Government 11.800 11,800 30,000 2,800 15,000 130,0001 18,8881 115,0001 6.088 Total restricted funds 17.888 47,800 (53,8881 11,800 Unrestricted funds- General funds 223,526 456,498 1304,7781 375,246 Total unrestricted funds 223.526 456,498 1304.7781 375,246 Total funds 241,414 504,298 1358,6661 387.046 15 Movements In funds (contlnued) Purposes of restricted funds Restricted funds represent donations and grants restricted for use on particular areas of the charity's work. rakeda Our funding from Takeda is to update the Living with Endometriosis booklet. which is being updated and will be published in 2021 Hologlc A grant was received from Hologic to support our partnership project with the Royal College of GPS (RCGPI on Menstrual Wellbeing. The Wellcome Trusr The Wellcome Trust provided a grant towards our Research Endometri0515 Now.1 conference and work to 5UPPOrt those with the disease to understand research. Scott15h Government Scottish Government provided a grant for the following programmes.. Improving the mental wellbeing of those with endometri0515 Improving the support for people with care needs Improving the quality of healthcare experience 43

Endometriosis UK Annu31 Report for year ended 31 March 2021 Endometrlosl$ UK Draft: 14 Ortober 2021 15'.27 Notes to the financlal statements 16 Operatlng lease commltments payable as a lessee The chariws total furure minimum lease payments under non-cancellable operating lease5 15 a5 follow5 for each of the following periods Property 2021 Other 2021 2020 2020 Less rhan one year One to five years 4,320 4,320 172 826 413 4,320 4.320 172 1.239 17 Legal status of the charlty The charity is a company limiied by 9uarantee and has no share capital. The liability of each member In the event of winding up is limited io £ l. 44