2025-03-31-accounts - United Kingdom Haemophilia Centre Doctors Organisation

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UKHCDO

Registered Charity Number 1032606

Accounts for the Year Ended 31 March 2025

UKHCDO

Registered Charity Number 1032606

Accounts for the Year Ended 31 March 2025

1 Report of the Trustees
2 Report of the Trustees - Continued
3 Report of the Trustees - Continued
4 Report of the Trustees - Continued
5 Independent Examiner's Report
6 Statement of Financial Activities
7 Balance Sheet
8 Notes to the Accounts
9 Notes to the Accounts - Continued
10 Notes to the Accounts - Continued
11 Notes to the Accounts - Continued
12 Notes to the Accounts - Continued
13 Notes to the Accounts - Continued
14 Notes to the Accounts - Continued

UKHCDO

Trustees' Report for the Year Ended 31 March 2025

The Trustees present their report together with the financial statements of the Charity for the year ended 31 March 2025.

Reference and Administrative Details

Registered Charity Number

The registered charity number in England and Wales is 1032606 and in Scotland is SC037794.

Principal Address

The principal address of the Charity is:-

UK Haemophilia Centre Doctors' Organisation Suite 1 Part 2nd Floor of Anchorage One Anchorage Quay Salford Quays M50 3YJ

Trustees

The Trustees in office during the year have been as follows:-

Dr. K. Talks Prof. P. Chowdary Dr. G.M. Benson Dr. M. Mathias

Accountants

John A. Porter & Co. 74 Dickenson Road Manchester M14 5HF

Independent Examiner

Peter Howard A.C.A. Lower Stone Ridge Green Lane Disley Cheshire SK12 2AL

UKHCDO

Trustees' Report for the Year Ended 31 March 2025 - Continued

Structure, Governance and Management

Governing Document

The Trust is an unincorporated trust, constituted under a Trust Deed dated 1 October 1993 as amended on 30 September 1994, 29 September 1995 and 30 September 1998. It is a registered charity No. 1032606.

Recruitment and appointment of new Trustees

The Trustees keep the skill requirements for the Trustee Body under review and in the event that a Trustee permanently retires or additional new trustees are required, the Board sets up a nominations sub-committee to recruit new trustees. New trustees may be sought by open advertisement or through dialogue with the major institutions with which the Charity engages.

Trustees' Responsibilities

The Trustees are responsible for preparing the Trustees’ Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). Charity law requires the Trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the Charity and of the incoming resources and application of resources, including income and expenditure, of the Charity for that year. In preparing these financial statements, the Trustees are required to:

select suitable accounting policies and then apply them on a consistent basis, making judgements that are prudent and reasonable;
observe the methods and principles in the Charities SORP;
state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements; and
prepare the financial statements on a going concern basis unless it is inappropriate to presume that the Charity will continue in operation.

The Trustees are required to act in accordance with the Trust Deed of the Charity, within the framework of trust law and are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the Charity. The Trustees are also responsible for safeguarding the assets of the Charity and for taking reasonable steps for the prevention and detection of fraud and other irregularities.

UKHCDO Limited

UKHCDO owns all the issued share capital of UKHCDO Limited. UKHCDO Limited is therefore wholly controlled by the Trustees of UKHCDO. Funds for the activities undertaken by the Charity are principally derived from monies provided by UKHCDO Limited by way of gift, which this year amounted to £xxxxx (2024 £50,000).

UKHCDO Limited runs meetings sponsored by pharmaceutical firms on behalf of UKHCDO.

UKHCDO Limited also exists to make available the contents of the National Haemophilia Database and Haemophilia Information System throughout the NHS.

UKHCDO

Trustees' Report for the Year Ended 31 March 2025 - Continued

UKHCDO Limited - Continued

The accounts of UKHCDO Limited for the year ended 31 March 2025 report a net (loss) after taxation of £(35,799 (2024 £(92,009) and total net assets of £2,467,304 (2024 £2,503,103).

Risk Management

In line with the requirement for Trustees to undertake a risk assessment, the Trustees have identified and reviewed the major risks to which the Charity is exposed and systems have been established to mitigate those risks. The Trustees have identified five main areas where risks may occur. These are:

Governance and Management
Operational including Health and Safety
Financial
Reputational
Legal and Regulatory Compliance

Investments

An Investment Committee was established in September 2018. Castlefield Investment Partners LLP have been selected as external Investment managers and will have discretionary authority to construct an ethically – screened portfolio. An initial sum of £100,000 has been allocated for investment subject to stable market conditions following the Covid-19 pandemic. Whilst the Trustees recognise the significant rebound in equity markets since the initial outbreak, the Trustees are still not persuaded that market conditions are stable so the investment policy development remains stalled. The Trustees are continuing to keep the matter under close review.

Public Benefit

The Charity Commission requires charities to make a statement in their Trustees report about the benefit they provide to the public.

The Objectives and Activities section of the Trustees' Report describes in detail the activities undertaken by UKHCDO. To summarise, UKHCDO promotes education and research of haemophilia and other bleeding disorders and shares this information with medical professionals, professions allied to medicine and the general public.

UKHCDO

Trustees' Report for the Year Ended 31 March 2025 - Continued

Objectives and Activities

Objectives and aims

UKHCDO is established:

to preserve, protect and relieve persons suffering from haemophilia and other inherited bleeding disorders;
to advance the education of the medical profession, the nursing profession, professions allied to medicine and the general public in the knowledge of haemophilia and other inherited bleeding disorders and their treatments;
to promote or assist in the promotion of audit and research into the causes, prevention, alleviation and management of haemophilia and other bleeding disorders and to disseminate the useful results of such research.
Applications to analyse and report data held by the National Haemophilia Database (NHD) including Haemtrack can be made by Chairs of UKHCDO working parties and UKHCDO members and groups external to UKHCDO including Departments of Health, Commissioners, academic groups and commercial agencies and others. Requests are considered by the Data Analysis Group (DAG) which is a subgroup of the Data Management Working Party (DMWP) with a multiprofessional membership including patient representatives. Decisions are based on ethical and data governance considerations, scientific merit and availability of resources and cost implications.

Significant activities

The main activity of the Charity has been to support the Advisory Committee and Working Parties in carrying out the aims and objectives of the UKHCDO.

Financial Review

A company, UKHCDO Limited, has been set up by the Trustees to undertake trading activities. Any surpluses generated by that Company are available to transfer to UKHCDO by way of gift.

Unrestricted incoming resources of £50,080 (2024 £50,080) less resources expended of £35,430 (2024 £617) resulted in a surplus for the year of £14,650 (2024 £49,463).

Approved by the Trustees on 30 October 2025 and signed on their behalf by

...............................................................................Dr. G.M. Benson

UKHCDO

Report of the Examiner to the Trustees of UKHCDO

Independent Examiner's Report to the Trustees of UKHCDO Trust

I report on the accounts of the Charity for the year ended 31 March 2025, which are set out on pages 6 to 14.

Respective Responsibilities of Trustees and Examiner

The Charity's Trustees are responsible for the preparation of the accounts in accordance with the Charities Act 2011 ("the Act"). The Charity's Trustees consider that an audit is not required for this year under section 144 the Act or under Regulation 10(1)(a) to (c) of the Charities Accounts (Scotland) Regulations 2006 (the 2006 Regulations) and that an independent examination is needed. The Charity is preparing accrued accounts and I am qualified to undertake the examination by being a qualified member of ICAEW.

It is my responsibility to:

examine the accounts under section 145 of the Charities Act and under section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 (the 2005 Act);
to follow the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act; and
to state whether particular matters have come to my attention.

Basis of Independent Examiner's Report

My examination was carried out in accordance with the general Directions given by the Charity Commission and is in accordance with Regulation 11 of the Charities Accounts (Scotland) Regulations 2006. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as Trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion is given as to whether the accounts present a 'true and fair view' and the report is limited to those matters set out in the statement below.

Independent Examiner's Statement

In connection with my examination, no material matters have come to my attention which gives me cause to believe that in, any material respect:

the accounting records were not kept in accordance with section 130 of the Charities Act and section 44(1)(a) of the 2005 Act and Regulation 4 of the 2006 Accounts Regulations; or
the accounts did not accord with the accounting records; or
the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 or of the 2005 Act and Regulation 8 of the 2006 Accounts Regulations other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Peter Howard A.C.A.

ICAEW Lower Stone Ridge Green Lane, Disley Cheshire, SK12 2AL

30 October 2025

UKHCDO

Statement of Financial Activities for the Year Ended 31 March 2025

Note Unrestricted Funds £ Incoming Resources Incoming resources from generated funds Voluntary Income (2) 50080 Investment Income (3) - Total Incoming Resources 50080 Resources Expended Charitable activities Relief of Haemophilia (4) 34855 Governance costs 575 Total Resources Expended 35430 Net Incoming/(Outgoing) Resources and net movement in funds 14650 Reconciliation of Funds Total Funds Brought Forward 320850 Total Funds Carried Forward 335500	Restricted Funds £ - - - - - - - - -	2025 2024 Total Total Funds Funds £ £ 50080 50080 - - 50080 50080 34855 617 575 - 35430 617 14650 49463 320850 271387 335500 320850

UKHCDO

Balance Sheet as at 31 March 2025

Note £ Fixed Assets Tangible Assets (5) Investments (6) Current Assets Debtors (7) - Cash at Bank & in Hand 336038 336038 Creditors Amounts due within one year (8) 540 Net Current Assets Total Assets less Current Liabilities Creditors Amounts due after one year Total Net Assets Represented By Funds: Unrestricted Funds (9) Restricted Funds (10) Total Charity Funds	2025 £ £ 1 1 2 - 321640 321640 792 335498 335500 - 335500 335500 - 335500	2024 £ 1 1
		2 320848
		320850 -
		320850
		320850 -
		320850

The financial statements were approved by the Board of Trustees on 30 October 2025 and were signed on its behalf by:

Dr. G.M. Benson

Trustee

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025

1. Accounting Policies

The principal accounting policies adopted, judgements and key sources of estimation uncertainty in the preparation of the accounts are laid out below.

(a) Basis of preparation:

The accounts have been prepared in accordance with the Charity's governing document and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (as amended for accounting periods commencing from 1 January 2016). The Charity is a Public Benefit Entity as defined by FRS 102. The accounts have departed from the Charities (Accounts and Reports) Regulations 2008 only to the extent required to provide a true and fair view. This departure has involved following the Statement of Recommended Practice for charities applying FRS 102 rather than the version of the Statement of Recommended Practice which is referred to in the Regulations but which has since been withdrawn. The accounts are prepared in sterling, which is the functional currency of the Charity. Monetary amounts in these financial statements are rounded to the nearest £. The accounts have been prepared under the historical cost convention except as disclosed in the accounting policies certain items are shown at fair value. The principal accounting policies adopted are set out below.

(b) Critical accounting estimates and areas of judgement:

Preparation of the accounts requires the Trustees to make significant judgements and estimates. The items in the accounts where these judgements and estimates have been made include:

estimating the useful economic life of tangible fixed assets
apportionment of support and governance costs between charitable activities

(c) Assessment of going concern:

The Trustees have assessed whether the use of the going concern assumption is appropriate in preparing these accounts. The Trustees have made this assessment in respect to a period of one year from the date of approval of these accounts. The Trustees have concluded that there are no material uncertainties related to events or conditions that may cast significant doubt on the ability of the Charity to continue as a going concern. The Trustees are of the opinion that the Charity will have sufficient resources to meet its liabilities as they fall due.

(d) Income Recognition:

Income is recognised when the Charity has entitlement to the funds, any performance conditions attached to the item(s) of income have been met, it is probable that the income will be received and the amount can be measured reliably.

Donations are recognised when the Charity has been notified in writing of both the amount and settlement date.

Annual membership fees are recorded as income in the accounting year in which they are received.

In accordance with the Charities SORP FRS102, volunteer time is not recognised.

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025 - Continued

(e) Expenditure Recognition:

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably. Expenditure is classified under the following activity headings:

Expenditure on raising funds includes all expenditure associated with raising funds for the Charity. This includes investment management fees.
Expenditure on charitable activities includes the costs of running the Charity's convents as well as all other costs associated with furthering the charitable purposes of the Charity through the provisions of its charitable activities. These costs comprise charitable grants and donations, direct and support costs in respect to the support of members of the Congregation and their ministry. It also includes governance costs.

Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.

(f) Support and Governance Costs:

Support costs represent indirect charitable expenditure. In order to carry out the primary purposes of the Charity, it is necessary to provide support in the form of personnel development, financial procedures, provision of office services and equipment and a suitable working environment.

Governance costs comprise the costs involving the public accountability of the Charity (including audit costs) and costs in respect to its compliance with regulation and good practice.

(g) Tangible Fixed Assets:

Tangible Fixed Assets are stated at cost less accumulated depreciation. Depreciation is provided on reducing balance basis at the following annual rates in order to write off each asset over its estimated useful life.

Fixtures & Equipment 15% Reducing Balance

No depreciation is charged in the year of acquisition.

(h) Debtors:

Debtors are recognised at the settlement amount due. Prepayments are valued at the amount prepaid.

(i) Cash at Bank and in Hand:

Cash at bank and in hand includes cash and short term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account. Deposits for more than three months and up to one year have been disclosed as short term deposits. Cash placed on deposit for more than one year is disclosed as a fixed asset investment.

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025 - Continued

(j) Creditors and Provisions:

Creditors and provisions are recognised where the Charity has an obligation at the balance sheet date as a result of a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any discounts that may be due.

(k) Fund Accounting:

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the Trustees.

Restricted funds can be used for particular restricted purposes within the objects of the Charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

2. Voluntary Income

Membership Fees Gifts from UKHCDO Limited Other Gifts	2025 2024 £ £ 80 80 50000 50000 - - 50080 50080

Annual membership fees are recorded as income in the accounting year in which they are received. Membership fees are voluntary.

3. Investment Income

Deposit account interest Money Market interest	2025 2024 £ £ - - - - - -

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025 - Continued

4. Trustees' Remuneration, Benefits and Expenses

There were no Trustees' remuneration payable or other benefits for the year ended 31 March 2025 (2024 £Nil).

The Trustees claimed a total of £2,153 (2024 £180) for reimbursement of travel and other expenses.

5. Tangible Fixed Assets (a) Cost As at 1 April 2024 Additions Disposals As at 31 March 2025 (b) Depreciation As at 1 April 2024 On disposals Charge for the year As at 31 March 2025 (c) Written Down Value As at 31 March 2025 As at 31 March 2024	Fixtures & Equipment £ 7657 - -
	7657
	7656 - -
	7656
	1
	1

(d) Capital Expenditure

Capital Expenditure authorised or contracted for before the year end date for which no provision has been made in the accounts is £Nil.

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025 - Continued

6. Fixed Asset Investments

The fixed asset investment relates to an investment in UKHCDO Limited of 1 £1 Ordinary Share this being the only share in issue. UKHCDO Limited is therefore wholly controlled by the Trustees of UKHCDO. The investment is incorporated at cost.

7. Debtors

Trade Debtors Other Debtors	2025 2024 £ £ - - - - - -

8 Creditors: Amounts Due Within One Year

Accruals Other Creditors	2025 2024 £ £ 540 402 - 390 540 792

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025 - Continued

9. Movement in Funds - Unrestricted Funds At 1 April 2024 Net Movement in Funds As at 31 March 2025 Incoming Resources Resources Expended Net Movement in Funds	2025 £ 320850 14650 335500 2025 £ 50080 (35430) 14650	2024 £ 271387 49463
		320850
		2024 £ 50080 (617)
		49463

10. Movement in Funds - Restricted Funds

There have been no restricted incoming resources or expenditure in the year. There was no balance of restricted funds at the start of the year, nor at the end of the year, so there has been no movement.

UKHCDO

Notes to the Accounts for the Year Ended 31 March 2025 - Continued

11. Analysis of Net Assets Between Funds

Fund balances at 31 March 2023 are represented by: Tangible Assets Investments Current Assets Balances between funds Creditors amounts falling due within one year	2025 General Fund £ 1 1 2 336038 - (540) 335500	2025 Restricted Fund £ - - - - - - -	2024 2024 General Restricted Fund Fund £ £ 1 - 1 - 2 - 321640 - - - (792) - 320850 -

12. Taxation

The Charity is not liable to taxation on income and gains derived from its charitable activities, as they fall within the various exemptions available to registered charities.

For the Year Ended 31 March 2025

UKHCDO

The following pages are not part of the statutory accounts and are provided for information only.

UKHCDO

Detailed Statement of Financial Activities for the Year Ended 31 March 2025

Unrestricted Funds £ Incoming Resources Voluntary Income Gifts - Gift Aid - Corporate Donations 50000 Grants - Annual Reports - Membership Fees 80 50080 Investment Income Deposit account interest - Money Market interest - - Total Incoming Resources 50080 Resources Expended Charitable activities Research & Development 8039 Charitable Donation - Travelling & Expenses 6898 Room Hire & Meals 19918 Peer Review Expenses - Bank Charges - Sundries - 34855 Governance Costs Accountancy 540 Other Expenses 35 575 Total Resources Expended 35430 Net Incoming Resources 14650	Restricted Funds £ - - - - - - - - - - - - - - - - - - - - - - - -	2025 2024 Total Total Funds Funds £ £ - - - - 50000 50000 - - - - 80 80 50080 50080 - - - - - - 50080 50080 8039 - - - 6898 180 19918 - - - - - - - 34855 180 540 402 35 35 575 437 35430 617 14650 49463

UKHCDO

Detailed Analysis of Travelling & Expenses and Room Hire & Meals

For the Year Ended 31 March 2025

Travelling & Expenses and Room Hire & Meals AGM Meeting Expenses Stategy Day 2024 Strategy Day 2025 Other Travelling & Expenses Room Hire & Meals	2025 £ 5504 18620 2692 - 26816 6898 19918 26816	2024 £ - - - 180
		180
		180 -
		180