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2025-03-31-accounts

REGISTERED COMPANY NUMBER: 02613993 (England and Wales) REGISTERED CHARITY NUMBER: 1003317

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

UNAUDITED FINANCIAL STATEMENTS

FOR THE YEAR ENDED 31 MARCH 2025

Shaw Gibbs Limited Wey Court West Union Road Farnham Surrey GU9 7PT

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

CONTENTS OF THE FINANCIAL STATEMENTS for the year ended 31 March 2025

Page
Report of the Trustees 1 to 14
Independent Examiner's Report 15
Statement of Financial Activities 16
Balance Sheet 17 to 18
Cash Flow Statement 19
Notes to the Cash Flow Statement 20
Notes to the Financial Statements 21 to 33
Detailed Statement of Financial Activities 34 to 35

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

REPORT OF THE TRUSTEES for the year ended 31 March 2025

The trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 March 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

Tourette Syndrome (UK) Association trading as Tourettes Action is a charity formed in 1981 to provide support to people living with the neurological disorder known as Gilles de la Tourette Syndrome and their families and operates as Tourettes Action.

The Charity was incorporated in 1991.The head office of the charity is in Farnborough, with staff located throughout the UK, providing support to people throughout England, Wales and Northern Ireland. Tourettes Action (TA) also has links with other Tourette Syndrome Societies throughout the UK, Europe, the United States and Canada.

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TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

REPORT OF THE TRUSTEES for the year ended 31 March 2025

OBJECTIVES AND ACTIVITIES

Our Vision

We envision a world where people with Gilles de la Tourette syndrome are accepted, supported, and embraced and a world that removes barriers and empowers individuals with the condition to reach their full potential.

Understanding Gilles de la Tourette syndrome

Gilles de la Tourette syndrome, known more commonly as Tourette syndrome (TS or Tourette's) is a complex, lifelong neurological condition that typically begins between the ages of 4 and 7, often peaking in early adolescence. It is genetically determined and characterised primarily by tics, which are involuntary movements or sounds.

Many individuals with TS also experience co-occurring conditions such as ADHD, OCD, autism spectrum disorder, anxiety, depression, sensory processing differences, and challenges with executive functioning (e.g., planning, organisation, decision-making).

While symptoms may lessen for around half of adults after adolescence, Tourette syndrome is a life-long condition and tics will wax and wane (come and go) throughout their lifetime.

Despite affecting approximately 1% of school-aged children, with over 300,000 children and adults in the UK needing support for the condition, Tourette syndrome still remains widely misunderstood. Misconceptions, especially around involuntary swearing (coprolalia), contribute to stigma, trivialisation and unwanted humour. These symptoms affect only 10-30% of people with TS and are not part of the diagnostic criteria. It is important to recognise that those who experience these symptoms, often find them deeply distressing and difficult to manage.

Individuals with Tourette syndrome can also experience tics that present challenges, including embarrassment, pain, injury and physical limitations, depending on their severity. This is compounded by limited public understanding and inadequate NHS support services, often leading to barriers in education, employment, and social exclusion. Some individuals also face bullying, isolation and mental health challenges because of their tics. Sadly, research indicates that individuals with TS are four times more likely to die by suicide in adulthood compared to the general population.

There is no cure for TS. Treatments range from psychological therapies to medication and Botox and, in rare cases, neurosurgery in the form of Deep Brain Stimulation. Comprehensive Behavioural Intervention for Tics (CBiT) is a promising psychological treatment, but, sadly, it is not widely available across the UK. Many individuals have no access to local treatment options, something the charity is actively campaigning to change. NICE recently completed an early value assessment looking at digital therapy for chronic tic disorders and Tourette syndrome that looked into recommending two digital therapies: ORBIT and Neupulse, more info here. This work may potentially improve access to services.

Despite our efforts to raise awareness, Tourette syndrome is still frequently perceived as humorous or insignificant. In reality, it can have a profound impact on the quality of life of the person living with Tourette syndrome and their family. The combination of neurological complexity, stigma, and lack of services highlights the urgent need for greater understanding, compassion, and support.

About Tourettes Action

Tourettes Action is the UK's only national charity dedicated to supporting individuals with Tourette syndrome and their families. All our staff, volunteers and supporters are engaged and energised in driving forward our mission. Everything we do is grounded in our community's needs and informed by both the voices of our community and scientific and researchbased evidence.

Our Mission

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Strategic Goals

Our five strategic goals were shaped by surveys within the Tourette’s community, which identified a lack of awareness across all parts of society as the most significant barrier to progress.

1. To raise awareness of Tourette syndrome and reduce the stigma associated with it :

Objective: Increase public awareness and understanding about the reality of Tourette’s, and what it means to live with it.

Activities:

2. To reduce health inequalities for people living with Tourette syndrome :

Objective: Campaign so that everyone with Tourette syndrome can have access to an appropriate NHS healthcare provision, regardless of their location, ethical or cultural background or social status.

Activities:

3. To ensure that no-one with Tourette syndrome feels alone :

Objective: Build a network of support for people with Tourette syndrome and their families, ensuring that no one living with, or affected by the condition, feels alone.

Activities:

4. To enable people with Tourette syndrome to thrive :

Objective: Provide accessible support, advice and training, to individuals and their families, and professionals, helping people living with the condition to flourish at home, in education and in employment

Activities:

5. To support research into Tourette syndrome:

Objective: Promote and assist research into the causes, treatments, and impact of Tourette syndrome, with a view to improving the lives of people with the condition.

Activities:

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ACHIEVEMENT AND PERFORMANCE

Charitable activities

Since 1981 Tourettes Action's main aim has been to support people living with or waiting for a diagnosis for Tourette syndrome. Despite working to reduce the stigma surrounding TS, those living with the condition are aware that it is still one of the most stigmatised and misunderstood of all the neurological conditions, bringing distress to those with the condition as well as their family and friends. In all that we do, we aim to increase awareness and bring about acceptance for those living with TS, hoping to one day eradicate this stigma and bring true acceptance to those living with it.

Over the past 12 months, we have seen continued growth in engagement and visibility. We are proud of our achievements, which range from providing direct support to individuals and families, to campaigning for improved services and greater public awareness of TS.

Our reach has expanded significantly, with our message resonating across a broader audience, including educators, healthcare professionals, employers, public services, and customer-facing industries. This increased visibility ensures that the voices of those with TS are being heard and their needs better understood.

All of our activities are carried out in accordance with the Charity Commission’s guidance on public benefit, and are designed to ensure that we continue to operate for the benefit of the public.

Goal 1: To raise awareness of Tourette syndrome and reduce the stigma associated with it :

Nationwide Awareness Campaign

For the third year running, we embarked on a major campaign during Tourette’s Awareness Month, which ran from 15th May to 15th June. We used an external agency to manage the campaign creation, marketing and advertising. The campaign was called #TourettesHurts and its aim was to highlight the impact Tourette’s can have on those with the condition and those around them. The campaign wasn’t just about raising awareness of Tourette’s it was about challenging misconceptions.

The campaign was informed by the views of members of the community who wanted a campaign which would help people understand the truth of the condition – and just how painful it can be both from a physical and emotional aspect. They wanted to showcase the realities of the condition but to also show that with the right support, and the understanding of the general public, the condition would be that little bit easier to live with.

This project involved designing 5 poster themes and recruiting 5 members of the TS community to appear in the posters. Each of the posters shared a different message about why #TourettesHurts: Exhaustion, Physical Pain, Lack of Medical Provision, Suppression, Social Exclusion.

The powerful poster campaign captured the imagination of the UK public. It was built from compelling headlines and visuals, whilst shining a light on real members of the Tourette’s community.

The idea was to dramatize the pain of daily tics by quantifying it with bold language that everyone could understand. We landed on headlines such as:

We photographed the members and put the headlines at an angle, as if colliding with the person, amplifying the sense of discomfort.

The campaign content could not be ignored. The dark backgrounds and angled lighting added drama that threw the real expressions of pain very much into the spotlight. It challenged misconceptions and led to greater understanding of the condition that is, sadly, very much mocked and misunderstood. It gave a voice to people for whom medical provisions and research is lacking, who are ignored, mocked and often isolated. It’s changed preconceptions, and in doing so, it brought about empathy and understanding to those with the condition.

The campaign reached over 2 million views through paid ads in 82 London train stations during Tourette’s Awareness Month. During this time, we also successfully secured significant free advertising space across 89 high-traffic locations,

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including: Piccadilly Circus, Westfield London, Nelson Street Glasgow, Bond Street Leeds, Snowhill Birmingham, Westminster Towers, Chiswick Towers, Liverpool Towers, Manchester Trinity Way and 76 cinemas throughout the UK.

We further amplified our message with a video featuring community members and 8 celebrities (Eddie Marsan, Aidy Smith, Daniel Mays, Omid Djalili, Matt Lucas, Sally Hawkins, David Morrissey, Izzy Judd) who each read lines from the poster messaging. The video was viewed over 221,000 times during the campaign.

It can be viewed here: https://www.youtube.com/watch?v=_Y8KOC863bs

The campaign was picked up by 12 media outlets, including BBC National News and BBC Breakfast.

During the awareness month we saw a huge amount of engagement from the community, with lots of people supporting us in getting the message out there:

During awareness month our website saw nearly 13,000 visitors, and social engagement peaked at 1.1 million — far surpassing typical months.

Media

As the voice of the charity has got louder over the years, we have found that we have been able to reach new people and also gain the interest of celebrities. This year saw us recruit our first celebrity patron to the charity, Eddie Marsan. Eddie has a son with Tourette syndrome, which made his connection even more fitting. Latest news on TS - New Charity Patron

Eddie’s recruitment as a patron coincided with this year’s awareness campaign, which then led to multiple TV broadcasts, further enhancing our message.

Website

Our website continues to be a major source of information for people and we continue to update the site and improve the content on a regular basis. Almost 64,000 people visited our website during this period. It is continually cited as the main source of reliable information about TS and its associated conditions. We strive constantly to ensure that information is up to date and, although we don't give medical advice, we ensure that the options which might be offered at a clinic visit are fully explained. All of the information is freely downloadable and we continue to believe that this access to information is vital. The website also provides an important platform for the TS community by way of a Blog page, where people can share their personal stories, giving inspiration to those on a similar journey. We regularly receive feedback that our website has been "a one stop shop" and has provided individuals with valuable information about the condition and has very often been the only form of information they have received. Our factsheets provide research-based facts on all areas of the condition, very often giving the community the answers they need.

eLearning

Our free CPD eLearning module, called Understanding Tourette syndrome, continues to be widely used and this financial year it was completed by over 2,000 individuals, many of those being in the education and health sectors. Our eLearning module is also the only Tourette syndrome module on the NHS Learning Hub and we are pleased to be featured on many Local Authority learning management systems in both English and Welsh, enabling us to further spread the message.

Socials

We continue to promote our website content, along with research news, fundraising campaigns, events, webinars and training through our social media platforms and our monthly newsletter. As of March 2025, we had almost 11,000 newsletter subscribers, a 20% increase over the prior year. During this period, we maintained our focus on our social media channels, which led to an increase in followers and engagement across all platforms. We saw an increase of just over 2,500 followers across our social platforms, with the biggest increase on Instagram and LinkedIn.

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Training

This financial year, we hosted 2 workshop events: a day-long workshop in Haywards Heath for parents and carers of children with TS and a multi-day workshop in Birmingham for both health, social care and education staff, as well as parents and carers. The workshops aimed to equip the attendees with the knowledge to better support those with TS at home and in the educational and healthcare settings, giving them a thorough understanding on how TS affects those with the condition and the hidden barriers they face daily. In total, 65 individuals attended the events with 100% of attendees saying they would implement new strategies learnt from the workshop.

We have continued to provide individualised training sessions via Zoom during this financial year as the need for this has remained high. This year we delivered 97 sessions with over 7,500 attendees being present over the sessions. Training sessions were delivered to 9 community groups, 15 corporate organisations, 13 Health and Social Care teams and 60 educational establishments.

Goal 2: To reduce health inequalities for people living with Tourette syndrome

The challenges in accessing a timely diagnosis and subsequent care and treatment continue to persist. As a result, advocating for improvements in healthcare has been one of the charity's primary focuses this financial year.

NICE

We’ve made significant strides in our campaign for health service improvements, with one of the most notable advancements being our involvement with the NICE Committee, which began in 2023.

Our work with the NICE committee continued this year as we worked with them on the NICE Early Value Assessment: Digital therapy for chronic tic disorders and Tourette syndrome . Our CEO, along with two Tourettes Action board members, served on the specialist committee, ensuring that the lived experiences and voices of the TS community were central to the process.

As part of this work, our CEO worked with NICE to design and distribute a community-wide survey to better understand the challenges faced in accessing healthcare. The results were both revealing and concerning:

These findings underscore the urgent need for systemic change. Many respondents reported stark regional disparities in access to medical support, highlighting inconsistencies across the country.

To further amplify these concerns, we submitted a comprehensive response to the NHS 10-Year Change Plan and formally proposed a new topic to NICE: the development of clinical guidelines for the diagnosis and management of Tourette syndrome.

Clinical Understanding and Interest

We frequently hear from our service users that medical professionals often lack understanding, with outdated views, like the belief that “You can’t have Tourette’s if you don’t swear,” still being common. We’re committed to challenging these misconceptions and, in doing so, hopefully sparking greater awareness and interest in the condition.

This year we expanded our eLearning offering, creating a new module specifically for GPs. It was created in the hope that we could educate GPs on the condition, removing many of the outdated views, which can often hinder referral and diagnosis, causing delays for many years. We are grateful to Dr Kate Szymankiewicz for giving her time to help create this.

In November, our CEO was invited to present at the National Psychiatry and Intellectual Disability Conference, where she discussed the lack of nationwide provisions for individuals with Tourette syndrome. Clinicians in attendance were keen to learn more about the condition and explore ways to improve access to support across the UK.

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Advocacy

This year, we have continued to support the community in advocating for change by encouraging them to reach out to their Members of Parliament. As a result, 95 individuals used our templates to contact their MPs, leading to the submission of 7 questions in Parliament aimed at addressing these issues.

As the voice of the community grows stronger and more MPs become involved, commissioners are increasingly compelled to take action, leading many to consider implementing Tourette's services and pathways at the local level. We have collaborated with several Integrated Care Boards (ICBs) as they explore the establishment of pathways, advising on current best practice.

This year we have continued to be an active participant in a number of pressure and advocacy groups to broaden our impact and influence including the Nottingham Tourette’s Steering Group, Neurodevelopmental Conditions Ministerial Advisory Group in Wales and the Neurological Alliance.

The Nottingham Tourette's steering group is a group of academics, healthcare and educational professionals, charity representatives, and lived experience advocates, who are committed to improving access to services and support for children, young people and adults with Tourette syndrome.

The NDMAG (Neurodevelopmental Conditions Ministerial Advisory Group) is a group in Wales whose aim is to assist Welsh Ministers with the direction, implementation and future evaluation of their neurodevelopmental service improvement programme. The group will assess emerging policies, strategies and legislation for their impact on neurodivergent people, their families and carers.

Being an active member of these groups ensures that the voices of the TS community are counted and recognised.

The Nottingham Steering Group started their NIHR (National Institute for Health and Care Research) funded project, in November 2023, and this project continued throughout this financial year. The aim of the project is to develop a recommended service model for children and young people with tics. Oue CEO managed the Patient and Public Involvement arm of this research project, ensuring that the patient voice is front and foremost and instrumental in the final model.

In April 2024 our CEO was invited to parliament, along with other charity representatives and advocates to hear the reading of Matt Hancock’s “Neurodivergent Conditions Screening Bill”. She highlighted that early diagnosis is good, but it is imperative that treatment pathways are in place to support these children once a diagnosis is made.

In previous years, Tourette syndrome was very much the ‘forgotten ’ neuro condition but we are increasingly being offered a seat at the table, which we believe is due to campaigning from both the charity and our service users.

Goal 3: To ensure that no-one with Tourette syndrome feels alone :

Helpdesk

Our helpdesk remains our main method of personal one to one support, offering guidance and signposting to people with TS and those supporting them. This financial year we saw a notable increase in the complexity of queries received. Many people told us they felt we were their only source of hope – having spent years seeking a diagnosis or having been discharged from medical services without ongoing support.

Demand for our Helpdesk services continues to grow year on year. During this financial period, we responded to over 4,600 individual queries via email, social media platforms, phone, and LiveChat.

The Helpdesk is run by 2 members of Tourettes Action staff and supported by a dedicated group of volunteers. We are deeply grateful to our volunteers for their time, compassion, and invaluable contributions.

Residential Events

In 2024 we delivered 8 ‘Fest’ events, to support people with TS and their families.

Of all the events we run, these provide the greatest positive impact on participant’s lives. They create an environment where participants feel safe, accepted, and empowered to have fun, form meaningful friendships, and take on exciting physical challenges alongside more tranquil activities and impactful psychosocial education. While the concept is simple, the impact is profound. For many, it’s one of the rare opportunities to truly belong, to feel like part of the group, not an outsider. Participants are encouraged to be themselves, connect with others in similar situations, and experience a sense of freedom

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and belonging.

We delivered our usual TICfest, TEENfest and AdultFest weekends and for the second year running we delivered a 1-day TicFete event to allow families who hadn’t been able to access a weekend fest event the chance to meet up. The following events ran last year:

The feedback we receive shows how essential these events are for our community.

“I was blown away with what an experience TICfest was for our whole family. We came with my daughter and her 2 younger brothers and even for them it was a fantastic weekend. My daughter has never had an opportunity before this event to meet other children with Tourette’s and similar struggles to her. This weekend made us feel like we had our daughter back, we haven't seen or heard her laugh and smile like she did at this weekend for a long time. The staff are all amazing and we were made to feel welcome from the moment we arrived. Her confidence was sky high after the event, she made new friends who she has kept in contact with. From this event we will have lifelong memories of us being able to enjoy family time and having fun without any worries. This is not something we regularly get to do now.” TICfest parent.

87% of children attending the TICfest events state they felt happier and less anxious as they experienced what it is like to be accepted and that they are not the only ones to have Tourette's. 84% stated that their confidence has increased since attending and they now felt more able to talk and explain to people about their condition and will have a better understanding of it themselves. 89% said they were able to make friends with people who understand them, helping them to feel less isolated and alone.

Support Groups

The need for our online groups has remained high this financial year and as such we continued to support our service users providing a regular online support offering.

A wide range of online groups were held during this period. We had groups for teens with TS, adults with TS, parents of children with TS, and groups specifically for dads and male role models of those with TS, along with family groups. We facilitated 147 online groups with 671 attendees during this period, with many people reattending weekly for support and fellowship.

91% of people who attended the online groups said that since attending the group they felt more supported and less on their own, 88% said they felt part of a community and 84.5% said the group had given them and their family a network of support that they can now call on for support to help them cope in challenging times.

This year we have put substantial effort into growing our national network of face-to-face support groups that are facilitated by a wonderful group of dedicated volunteers. These groups make a significant positive impact on the Tourette syndrome community. Having these support groups creates a platform for individuals with TS, their families, and caregivers to connect, share experiences, offer mutual support, and foster a sense of belonging and understanding. There are 8 established face-to-face support groups around the country, each meeting on a monthly basis to support the TS community.

89% of people attending the face-to-face groups said that since attending the group they felt more supported and less alone, 78% said they felt more confident about their future than before they joined the group and 89% said they felt the group had given them and their family a network of support that they can now call on for support to help them cope in challenging times.

During this period, we facilitated seven music workshops at our face-to-face support groups, funded 5 Christmas parties and 4 activity sessions in the Spring. These sessions ranged from beatboxing, animal therapy, laser tag and wild science. Feedback from the group members was positive, feeling these activities give them the chance to bond as a team.

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Goal 4: To enable people with Tourette syndrome to thrive :

Educational and Workplace Support and Advocacy

The need for information and support for students in school is as high as ever. Our Education Manager has spent many hours helping teachers and parents to support children struggling within education. During this period, we responded to over 900 enquiries from schools and 829 parents' enquiries regarding support around education and how best to support those with TS in the education environment.

This period we continued to receive requests for support around TS and reasonable adjustments from children's homes, community centres, wellbeing centres, social services, sports clubs and behaviour support units.

We have had more requests this year to support our Adults with TS in the workplace. During this period, we had 119 enquiries from employers wanting to understand how they can better support their workforce. We also held 50 advocacy sessions with adults with TS discussing access to work, support in the workplace, and disability and access rights, ultimately providing them with the tools to advocate for themselves in the working world. This was a 66% increase from the previous financial year

Supporting Documents

Our Tourette’s ID cards are still very popular; we issued 94 this financial year. Users often tell us that the cards give them confidence to go out and travel alone – the card can explain their condition, when they are not able to.

We have had our TS passports for a number of years now, enabling people with TS to list their support needs. They are a great asset for those in education and the workplace. These were really popular this year with just over 1300 passports issued or downloaded.

Educational Seminars

We held 14 informative and educational webinars during this financial year, covering topics such as: Managing transition and change, The Neupulse Device, Autism in Girls, Educational Support, Employment and TS, Sleep, Managing Anxiety, Evidence Based Treatments, TS and FND, Anxiety and TS. These webinars were very popular and were attended by 413 people. 73% of people said they would implement new strategies learned from the webinar and 78% said they felt more informed about TS, its impact and tic management following the webinar. 71% felt more empowered and confident to seek support or make choices about their health or their family member’s health following the webinar.

Factsheets

This period we also began work on expanding and updating our factsheet resources that are freely available on our website.

Small Support Grants

Due to the ongoing support of a very generous benefactor, we continue to be able to offer small grants for items, which help people to manage their TS. During this period we issued 6 grants for things such as a supporting bed and mattress, Rubik’s Cubes, a tablet, a sofa bed, a shower rail and shower equipment, and a Polyphonic Analogue Synthesizer, all of which helped the individuals manage their symptoms of TS.

Goal 5: Supporting research into Tourette syndrome:

Our funded research support programme remains suspended for new applications due to lack of funding, but we continue to support and monitor progress on research projects previously committed. We do however support researchers with their studies, helping to promote and disseminate findings.

This financial year we noted a large increase of researchers studying Tourette syndrome and we supported 20 researchers in their studies, promoting their studies on our website and social media to engage participants, helping to provide insights into the lived experience of Tourette's. The promoted studies included:

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There are several long-term projects we’ve supported that are now delivering exciting results:

Fundraising

This year, we were delighted to welcome two new charity partners, LSP and GS1UK. Their support has significantly strengthened our efforts to raise awareness of both the condition and the charity’s mission.

Our incredible fundraisers once again showed unwavering commitment and energy. Highlights from this year’s fundraising activities included participation in the London, Manchester, and Hamburg Marathons, the Bristol Half Marathon, Tough Mudder, the London Landmarks Half Marathon (LLHM), Move for Tourettes, Facebook birthday fundraisers, and our Tea for Tourette’s events.

Despite a 10% drop in donations, amounting to nearly £20,000, likely due to the ongoing cost of living crisis, our fundraising efforts rose to the challenge. We saw an increase of £24,460 compared to previous years, helping to offset the shortfall. We believe this uplift in fundraising engagement is a direct result of our expanded awareness initiatives and the growing recognition of our cause.

During the year, we received grants and donations for just over £182,000 from a variety of trusts and funders including BBC Children in Need, The National Lottery Community Fund - RC England Wide, The National Lottery Community Fund - Awards for All England, the Angus Lawson Memorial Trust, D’Oyly Carte Charitable Trust, Marsh Charitable Trust, Forvis Mazars Foundation UK, De Brye Charitable Trust, Hospital Saturday Fund, RSA Match funding, Miller Homes, Florence Turner Trust and CHK Foundation.

This year for the first year we took part in The BIG Give Christmas Challenge, which enabled us to double our donations during 1 week in December. We raised just over £30,000 during this campaign, with funds raised going to the running of our Helpdesk.

Looking Back

As we reflect on the last 12 months, we know we have achieved a great deal from just "being there" to campaigning for improved services for people with Tourette syndrome and better understanding of the condition. We can see that we are making progress at reaching a wider audience, such as teachers, health professionals, employers, public services and customer-facing industries, and getting our voice heard.

We are very grateful to all of our regular donors and fundraisers who continue to support us with financial contributions, even during these times of economic pressures.

There is however still so much to do to achieve transformative clinical support providing help when needed, and without social stigma so that our community are truly able to live their lives to the full.

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Looking Forward

Our 5 strategic goals - to enable people with Tourette syndrome to thrive, to raise awareness of Tourette syndrome and reduce the stigma associated with it, to reduce health inequalities for those living with Tourette syndrome, to ensure that no one with Tourette syndrome feels alone, to support research into Tourette syndrome - remain and will remain at the forefront of all that we do this coming financial year.

Awareness will be key, as will pushing for health service improvements.

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FINANCIAL REVIEW

Reserves policy

During the year Unrestricted funds increased by £7,363 to £502,415. There was a decrease of £109,075 to £107,474 in Restricted funds.

We still continue to hold a minimum of at least six months expenditure in reserves as we continue to have a high reliance on the generous support of a small number of donors.

To ensure that we can provide continuity in meeting our strategic priorities, for at least the next 12 months, the Trustees have designated specific funding totally £160,000 to cover the following areas of expenditure in the short to medium term:

Preparation of the accounts on a Going concern basis

The Trustees are confident that Tourettes Action has sufficient funding to enable it to undertake all of its activities over the next year and on that basis the charity is a going concern.

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

Tourettes Syndrome (UK) Association trading as Tourettes Action, ('the charity' or 'TA'), is a company limited by guarantee and as such is governed by its Memorandum and Articles. It was incorporated on 23 May 1991.

Trustee Board

The charity is governed by the Trustee Board, which sets the strategy of the charity, ensures compliance with its charitable objectives, approves the business plan and budget annually and monitors the ongoing operational and financial performance of the charity.

Trustees are appointed after a formal recruitment process, as vacancies arise, by vote of the full Trustee Board at the AGM. Trustees are appointed for a three-year term that may be renewed twice by approval of the Board.

Recruitment of trustees is carried out with an explicit view to optimising the balance of skills and experience available to the Board. In particular, the Board seeks to ensure it has representation from people living with TS and/or their families; people with a clinical or scientific interest and expertise in TS, as well as people with business, strategic, financial and other functional skills.

The Trustee Board meets at least four times annually.

Board Committees

The board maintains three sub-committees as described below.

Finance and General Purposes Committee (F&GP)

The F&GP is chaired by the Hon.Treasurer and meets ahead of Board meetings, and at other times, and operates a delegated mandate to assist the Chief Executive in preparing budgets; to monitor financial performance by detailed review of monthly management accounts; to assist the Chief Executive in arranging and facilitating the annual independent examination and preparation and publication of statutory accounts.

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The F&GP also supports the work of the Chief Executive in a wide range of operational areas including, but not limited to, HR and staffing issues, premises, administration issues and oversight of the TA's operational risks.

Research Sub-Committee (RSC)

TA's annual research funding programme remained suspended this financial year due to an unforeseen downturn in funding and as yet has not been restarted. Proposals for funding of clinical, academic scientific or social scientific work towards the understanding, management and potential cure of TS are solicited annually. To assist the Trustee Board in determining which proposals should be funded by TA, the RSC, chaired by a trustee, operates a delegated mandate to make recommendations to the Trustee Board after evaluating proposals by peer review and by reference to an expert external committee of scientific advisors, the Science Advisory Board (SAB). The RSC meets at key stages of the funding round to ensure that research proposals are fully evaluated in time for the Board to allocate grants.

The RSC continues to monitor the ongoing performance and outcomes of the projects in which it has invested.

Safeguarding and Services Sub-Committee (S&S)

The S&S Committee is chaired by a trustee and oversees and monitor's TA's core service user facing provision. Trustee members include the Trustee Safeguarding Lead as well as other trustees with experience relevant to the committee's oversight responsibilities. The subcommittee is tasked with overseeing the quality and effectiveness of TA's services, ensuring that the scope of each activity remains appropriate and meets the needs of service users on an ongoing basis and that any new initiatives are established with appropriate checks and safeguards. The subcommittee is also responsible for overseeing approval, review, and compliance with all Safeguarding and related policies and monitoring Safeguarding issues on an ongoing basis. The subcommittee meets prior to quarterly Board meetings and on an ad-hoc basis if required.

Risk management

Risk management is a central responsibility of the Trustee Board.

TA adopts a structured formal approach to the identification and management of risk. A Risk Register is prepared by the CEO and reviewed, updated as necessary, and approved by the Trustee Board annually. It identifies TA's key areas of risk including: Governance, Operations, Finance, Funding, Management, Legal, and Reputation.

Each risk is assessed for Probability and Impact to produce a Gross Risk Score. Each risk is subject to mitigation and controls. The effect of mitigation and control is formally assessed and applied to the Gross Risk Score producing the Net Risk Position for each identified risk.

Advisers

In addition to the SAB (above), TA has established an external advisory panel, the TA Advisory Panel. This group (currently comprising six adults with TS) support the aims of TA and work in collaboration with the charity staff, trustees and subject experts to help TA evolve and meet the needs of our service users. Appointments to this advisory group will be made from time to time by the Chief Executive in consultation with the Board of Trustees.

Page 13

REFERENCE AND ADMINISTRATIVE DETAILS Registered Company number 02613993 (England and Wales)

Registered Charity number 1003317

Registered office

The Meads Business Centre 19 Kingsmead FARNBOROUGH GU14 7SR

Trustees

A Bhandari (resigned 21.12.24) Professor E Joyce Dr E R Palmer Dr J Stern (Honorary Medical Director) I R Ayres (Treasurer) G Barnett A Pape M Lewis (Chairman) S Dhuashia S White F Peckitt T Murphy Company Secretary E McNally

Independent Examiner Shaw Gibbs Limited Wey Court West Union Road Farnham Surrey. GU9 7PT

Solicitors

Bates Welles & Braithwaite London LLP 2-6 Cannon Street London. EC4M 6Y

Bankers

Barclays Bank plc 7-8 High Street Ryde Isle of Wight. PO33 2PN

Lloyds Bank PLC 120 Lewisham Street London. SE13 6JG

I R Ayres - Trustee

Page 14

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

Independent examiner's report to the trustees of Tourette Syndrome (UK) Association Trading as Tourettes Action ('the Company')

I report to the charity trustees on my examination of the accounts of the Company for the year ended 31 March 2025.

Responsibilities and basis of report

As the charity's trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act').

Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts as carried out under Section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under Section 145(5) (b) of the 2011 Act.

Independent examiner's statement

Since your charity's gross income exceeded £250,000 your examiner must be a member of a listed body. I can confirm that I am qualified to undertake the examination because I am a member of the Institute of Chartered Accountants in England and Wales, which is one of the listed bodies.

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:

  1. accounting records were not kept in respect of the Company as required by Section 386 of the 2006 Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the accounting requirements of Section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination; or

  4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities (applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)).

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Lance Redman

Shaw Gibbs Limited Wey Court West Union Road Farnham Surrey GU9 7PT

Date: .............................................

Page 15

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2025

Unrestricted
Restricted
funds
funds
Notes
£
£
INCOME AND ENDOWMENTS FROM
Donations and legacies
2
274,639
174,049
Other trading activities
3
98,623
31,292
Investment income
4
20,540
-
Total
393,802
205,341
EXPENDITURE ON
Raising funds
5
33,945
3,388
Charitable activities
6
Tourettes Support
352,494
311,028
Total
386,439
314,416
NET INCOME/(EXPENDITURE)
7,363
(109,075)
RECONCILIATION OF FUNDS
Total funds brought forward
495,052
216,549
TOTAL FUNDS CARRIED FORWARD
502,415
107,474		 2025
Total
funds
£
448,688
129,915
20,540
599,143
37,333
663,522
700,855
(101,712)
711,601
609,889		 2024
Total
funds
£
518,246
105,485
15,887
639,618
35,260
587,967
623,227
16,391
695,210
711,601

The notes form part of these financial statements

Page 16

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

BALANCE SHEET

31 March 2025

Unrestricted
Restricted
funds
funds
Notes
£
£
FIXED ASSETS
Tangible assets
12
3,022
-
CURRENT ASSETS
Stocks
13
11,145
-
Debtors
14
71,724
-
Cash at bank
463,941
107,474
546,810
107,474
CREDITORS
Amounts falling due within one year
15
(47,417)
-
NET CURRENT ASSETS
499,393
107,474
TOTAL ASSETS LESS CURRENT
LIABILITIES
502,415
107,474
NET ASSETS
502,415
107,474
FUNDS
16
Unrestricted funds
Restricted funds
TOTAL FUNDS		 2025
Total
funds
£
3,022
11,145
71,724
571,415
654,284
(47,417)
606,867
609,889
609,889
502,415
107,474
609,889		 2024
Total
funds
£
2,750
13,560
16,705
742,676
772,941
(64,090)
708,851
711,601
711,601
495,052
216,549
711,601

The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 March 2025.

The members have not required the company to obtain an audit of its financial statements for the year ended 31 March 2025 in accordance with Section 476 of the Companies Act 2006.

The trustees acknowledge their responsibilities for

The notes form part of these financial statements

continued...

Page 17

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

BALANCE SHEET - continued 31 March 2025

These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.

I R Ayres - Trustee

The notes form part of these financial statements

Page 18

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

CASH FLOW STATEMENT
for the year ended 31 March 2025
2025
Notes
£
Cash flows from operating activities
Cash generated from operations
1
(190,385)
Net cash (used in)/provided by operating activities
(190,385)
Cash flows from investing activities
Purchase of tangible fixed assets
(1,416)
Interest received
20,540
Net cash provided by investing activities
19,124
Change in cash and cash equivalents in the
reporting period
(171,261)
Cash and cash equivalents at the beginning
of the reporting period
742,676
Cash and cash equivalents at the end of the
reporting period
571,415		 2024
£
16,505
16,505
(1,852)
15,887
14,035
30,540
712,136
742,676

The notes form part of these financial statements

Page 19

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE CASH FLOW STATEMENT for the year ended 31 March 2025

1. RECONCILIATION OF NET (EXPENDITURE)/INCOME TO NET CASH FLOW FROM OPERATING ACTIVITIES

Net (expenditure)/income for the reporting period (as per the Statement
of Financial Activities)
Adjustments for:
Depreciation charges
Interest received
Decrease/(increase) in stocks
(Increase)/decrease in debtors
(Decrease)/increase in creditors
Net cash (used in)/provided by operations		 2025
£
(101,712)
1,144
(20,540)
2,415
(55,019)
(16,673)
(190,385)		 2024
£
16,391
1,353
(15,887)
(7,503)
7,184
14,967
16,505

2. ANALYSIS OF CHANGES IN NET FUNDS

At 1.4.24 Cash flow At 31.3.25
£ £ £
Net cash
Cash at bank 742,676 (171,261) 571,415
742,676 (171,261) 571,415
Total 742,676 (171,261) 571,415

The notes form part of these financial statements

Page 20

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS for the year ended 31 March 2025

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Raising funds

These comprise fundraising and marketing expenditure. Charitable activities expenditure includes services to beneficiaries.

Governance costs

Comprise the costs of compliance and organisational administration, constitutional and statutory requirements and include independent reviewer’s cost and legal and professional fees.

Allocation and apportionment of costs

Costs of generating funds comprise fundraising and marketing expenditure.

Charitable activities expenditure includes services to beneficiaries.

Support costs include those costs connected with the management of the charity's assets, organisational management and administration and compliance with constitutional and statutory requirements.

Tangible fixed assets

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Plant and machinery - 25% on cost Computer equipment - 25% on cost

The charity does not capitalise smaller assets of less than £500. These are included in the Statement of Financial Activities when incurred.

Stocks

Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.

Taxation

The charity is exempt from corporation tax on its charitable activities.

continued...

Page 21

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

1. ACCOUNTING POLICIES - continued

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

Pension costs and other post-retirement benefits

The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.

Leasing commitments

Rentals paid under operating leases are charged to the statement of financial activities on a straight line basis over the period of the lease.

2. DONATIONS AND LEGACIES

DONATIONS AND LEGACIES
Donations
Gift aid
Grants		 2025
£
176,673
89,656
182,359
448,688		 2024
£
196,827
21,482
299,937
518,246

continued...

Page 22

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

2. DONATIONS AND LEGACIES - continued

Grants received, included in the above, are as follows:

BBC Children In Need
Basil Samuel Charitable Trust
Big Lottery
Vandervell Foundation
D'Oyly Carte Charitable Trust
William Allen Young Charitable Trust
Hofmeyr Family
Sir Jules Thorn Charitable Trust
Masonic Charitable Foundation
Marsh Charitable Trust
The National Lottery Community Fund - Awards for All Wales
The National Lottery Community Fund - Awards for All England
Michael Cornish Charitable Trust
Angus Lawson Memorial Trust
TCLF
WCC grant
Forvis Mazars Foundation UK
The National Lottery Community Fund – RC England Wide
De Brye Charitable Trust
Hospital Saturday Fund
RSA Match funding
Miller Homes
Florence Turner Trust
CHK Foundation
3.
OTHER TRADING ACTIVITIES
Fundraising events
Sales
Webinars
Training income
Fest income		 2025
£
30,000
-
-
-
4,000
3,000
-
-
-
800
-
19,175
-
19,915
-
-
7,753
85,916
3,000
2,000
300
1,000
500
5,000
182,359
2025
£
82,110
13,757
1,865
16,323
15,860
129,915		 2024
£
30,000
10,000
74,743
1,000
-
2,000
135,000
3,000
5,000
700
16,818
-
3,200
15,393
2,000
684
399
-
-
-
-
-
-
-
299,937
2024
£
58,343
14,517
1,920
16,375
14,330
105,485

continued...

Page 23

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2025

4.
INVESTMENT INCOME
Deposit account interest
5.
RAISING FUNDS
Raising donations and legacies
Fundraising costs
6.
CHARITABLE ACTIVITIES COSTS
Tourettes Support
7.
SUPPORT COSTS
Management
£
Tourettes Support
70,229
Support costs, included in the above, are as follows:
Management
Premises expenses
Insurance
Telephone
Postage and stationery
Travel & Subsistence
Website costs
Computer expenses
General repairs & renewals
Subscriptions
Depreciation of tangible assets		 2025
£
20,540
2025
£
37,333
Support
Direct
costs (see
Costs
note 7)
£
£
585,141
78,381
Governance
Finance
costs
£
£
432
7,720
2025
Tourettes
Support
£
13,800
2,669
1,788
2,977
19,315
1,457
23,066
721
3,292
1,144
70,229

continued...

Page 24

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2025

7. SUPPORT COSTS - continued Finance

SUPPORT COSTS - continued
Finance
2025 2024
Tourettes Total
Support activities
£ £
Bank charges 432 459
Governance costs
2025 2024
Tourettes Total
Support activities
£ £
Board meeting costs 2,240 2,122
Independent examination 5,480 5,200
7,720 7,322

8. NET INCOME/(EXPENDITURE)

Net income/(expenditure) is stated after charging/(crediting):

2025 2024
£ £
Depreciation - owned assets 1,144 1,353

9. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 31 March 2025 nor for the year ended 31 March 2024.

Trustees' expenses

There were no trustees' expenses paid for the year ended 31 March 2025 nor for the year ended 31 March 2024.

Board meeting travel costs were reimbursed to the following Trustees

2025 2024 £ £ F Peckitt 106 - E Joyce 72 - T Murphy 109 - 287 -

continued...

Page 25

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2025

10. STAFF COSTS

2025
2024
£
£
Wages and salaries
345,247
309,833
Social security costs
23,642
21,270
Other pension costs
11,543
8,410
380,432
339,513
The average monthly number of employees during the year was as follows:
2025
2024
Management, administration & counsellors
16
14
The number of employees whose employee benefits (excluding employer pension costs) exceeded £60,000 was:
2025
2024
£60,001 - £70,000
1
1		 2024
£
309,833
21,270
8,410
339,513

Staff costs have been restated to show recruitment and other staff costs as a separate expense.

The key management personnel of the charity are the trustees and chief executive. The key management personnel of the charity are the trustees and chief executive. The total employment costs of The total employment costs of
key management personnel total £67,750 (2024: £64,464)
11. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
Unrestricted Restricted Total
funds funds funds
£ £ £
INCOME AND ENDOWMENTS FROM
Donations and legacies 283,475 234,771 518,246
Other trading activities 104,609 876 105,485
Investment income 15,887 - 15,887
Total 403,971 235,647 639,618
EXPENDITURE ON
Raising funds 31,752 3,508 35,260
Charitable activities
Tourettes Support 352,641 235,326 587,967
Total 384,393 238,834 623,227
NET INCOME/(EXPENDITURE) 19,578 (3,187) 16,391
Transfers between funds 651 (651) -
Net movement in funds 20,229 (3,838) 16,391

continued...

Page 26

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

11.
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - continued
Unrestricted
Restricted
funds
funds
£
£
RECONCILIATION OF FUNDS
Total funds brought forward
474,823
220,387
TOTAL FUNDS CARRIED FORWARD
495,052
216,549
12.
TANGIBLE FIXED ASSETS
Plant and
Computer
machinery
equipment
£
£
COST
At 1 April 2024
1,732
47,502
Additions
-
1,416
At 31 March 2025
1,732
48,918
DEPRECIATION
At 1 April 2024
1,732
44,752
Charge for year
-
1,144
At 31 March 2025
1,732
45,896
NET BOOK VALUE
At 31 March 2025
-
3,022
At 31 March 2024
-
2,750
13.
STOCKS
2025
£
Stocks
11,145		 Total
funds
£
695,210
711,601
Totals
£
49,234
1,416
50,650
46,484
1,144
47,628
3,022
2,750
2024
£
13,560

continued...

Page 27

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

14. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Trade debtors
Other debtors
Prepayments and accrued income
CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
Trade creditors
Social security and other taxes
Accruals and deferred income		 2025
£
915
17,809
53,000
71,724
2025
£
2,188
5,258
39,971
47,417		 2024
£
800
5,040
10,865
16,705
2024
£
17,903
6,815
39,372
64,090

15. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

16. MOVEMENT IN FUNDS

Unrestricted funds
General fund
Restricted funds
Daniel Katz
A4A Wales
Kent Group
Community Foundation for Surrey
West Midlands Group
TEENfest
A4A Tourettes Champions
TICfest
Sussex Group
Music Therapy Charity Trust
Cycling Jerseys
Adult Fests
New groups
Training Angus Lawson
Hofmeyr Campaigning
Hofmeyr 2023 Fest
Hofmeyr 2024 Fest
Hofmeyr 2024 Campaigning
Helpdesk
TOTAL FUNDS		 Net
movement
At 1.4.24
in funds
£
£
495,052
7,363
14,009
(1,974)
16,518
(16,518)
228
-
711
728
1,006
(195)
7,393
(7,393)
2,408
(251)
1,001
(1,001)
707
-
3,840
(3,840)
784
-
4,659
341
4,146
(481)
2,000
14,265
18,379
(18,379)
10,219
(108)
83,635
(54,171)
44,906
(44,906)
-
24,808
216,549
(109,075)
711,601
(101,712)		 At
31.3.25
£
502,415
12,035
-
228
1,439
811
-
2,157
-
707
-
784
5,000
3,665
16,265
-
10,111
29,464
-
24,808
107,474
609,889

continued...

Page 28

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

16. MOVEMENT IN FUNDS - continued

Net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Daniel Katz
BBC Children In Need
A4A Wales
Community Foundation for Surrey
West Midlands Group
TNL Community Fund
TEENfest
A4A Tourettes Champions
TICfest
Music Therapy Charity Trust
Adult Fests
New groups
Training Angus Lawson
Hofmeyr Campaigning
Hofmeyr 2023 Fest
Hofmeyr 2024 Fest
Hofmeyr 2024 Campaigning
Helpdesk
A4A Adult Fest
TOTAL FUNDS		 Incoming
Resources
Movement
resources
expended
in funds
£
£
£
393,802
(386,439)
7,363
-
(1,974)
(1,974)
30,000
(30,000)
-
-
(16,518)
(16,518)
960
(232)
728
-
(195)
(195)
85,916
(85,916)
-
753
(8,146)
(7,393)
-
(251)
(251)
10,165
(11,166)
(1,001)
-
(3,840)
(3,840)
-
341
341
-
(481)
(481)
19,915
(5,650)
14,265
-
(18,379)
(18,379)
-
(108)
(108)
-
(54,171)
(54,171)
-
(44,906)
(44,906)
38,457
(13,649)
24,808
19,175
(19,175)
-
205,341
(314,416)
(109,075)
599,143
(700,855)
(101,712)

continued...

Page 29

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

16. MOVEMENT IN FUNDS - continued

Comparatives for movement in funds

Unrestricted funds
General fund
Restricted funds
Daniel Katz
BBC Children In Need
NE Group
James Tudor Trust
A4A Wales
Kent Group
Community Foundation for Surrey
Doris Field Charitable Trust
West Midlands Group
Hull Group
Essex group
TEENfest
A4A Tourettes Champions
TICfest
Sussex Group
Music Therapy Charity Trust
Hofmeyr 2022
Cycling Jerseys
Adult Fests
Accredited CPD Training
New groups
Training Angus Lawson
Hofmeyr Campaigning
Hofmeyr 2023 Fest
Hofmeyr 2024 Fest
TOTAL FUNDS		 Net
movement
At 1.4.23
in funds
£
£
474,823
19,578
15,430
(1,421)
1,000
(1,000)
854
(854)
651
-
5,777
10,741
394
(166)
125
586
1,165
-
459
547
39
(39)
1,080
(1,080)
5,359
10,034
6,200
(3,792)
1,727
(726)
707
-
7,932
(4,092)
160,503
(7,124)
784
-
3,447
1,212
5,384
(5,384)
1,370
1,611
-
(6,000)
-
(5,094)
-
(74,781)
-
83,635
220,387
(3,187)
695,210
16,391		 Transfers
between
funds
£
651
-
-
-
(651)
-
-
-
(1,165)
-
-
-
(8,000)
-
-
-
-
(135,000)
-
-
-
1,165
8,000
50,000
85,000
-
(651)
-		 At
31.3.24
£
495,052
14,009
-
-
-
16,518
228
711
-
1,006
-
-
7,393
2,408
1,001
707
3,840
18,379
784
4,659
-
4,146
2,000
44,906
10,219
83,635
216,549
711,601

continued...

Page 30

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2025

16. MOVEMENT IN FUNDS - continued

Comparative net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Restricted funds
Daniel Katz
BBC Children In Need
NE Group
A4A Wales
Kent Group
Community Foundation for Surrey
West Midlands Group
Hull Group
Essex group
TNL Community Fund
TNL Adult Weekends
TEENfest
A4A Tourettes Champions
TICfest
Music Therapy Charity Trust
Hofmeyr 2022
Adult Fests
Accredited CPD Training
New groups
Training Angus Lawson
Hofmeyr Campaigning
Hofmeyr 2023 Fest
Hofmeyr 2024 Fest
TOTAL FUNDS		 Incoming
Resources
Movement
resources
expended
in funds
£
£
£
403,971
(384,393)
19,578
-
(1,421)
(1,421)
30,000
(31,000)
(1,000)
-
(854)
(854)
16,818
(6,077)
10,741
-
(166)
(166)
713
(127)
586
847
(300)
547
-
(39)
(39)
-
(1,080)
(1,080)
59,243
(59,243)
-
15,500
(15,500)
-
22,393
(12,359)
10,034
-
(3,792)
(3,792)
3,200
(3,926)
(726)
-
(4,092)
(4,092)
-
(7,124)
(7,124)
-
1,212
1,212
-
(5,384)
(5,384)
1,933
(322)
1,611
-
(6,000)
(6,000)
-
(5,094)
(5,094)
-
(74,781)
(74,781)
85,000
(1,365)
83,635
235,647
(238,834)
(3,187)
639,618
(623,227)
16,391

continued...

Page 31

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2025

16. MOVEMENT IN FUNDS - continued

Daniel Katz - Providing grants to improve the quality of life for people living with Tourette - syndrome BBC Children in Need - Part of a multi year grant to support TICfest NE Group - To ensure that Tourettes Action's support is accessible to people living in the North East Awards for All Wales - Workshops in Wales Kent Group - Funds for the support of people living in Kent with Tourette syndrome Community Foundation for - Contribution towards work to support people with Tourette syndrome living in Surrey Surrey Doris Field charitable Trust - Contribution towards work to support people with Tourette syndrome living in Oxfordshire Hull Group - To ensure that Tourettes Action's support is accessible to people living in Hull West Midlands Group - To ensure that Tourettes Action's support is accessible to people living in West Midlands Essex group To ensure that Tourettes Action's support is accessible to people living in Essex The National Lottery - National Lottery grant to fund a range of activities TEENfest - Residential weekends for teens with Tourettes syndrome A4A Tourette’s Champions - Funding for the TS Champion programme TICfest - Residential weekends for children with Tourette's and their families Adult Fests - Residential weekends for adults with Tourette’s Sussex Group - To ensure that Tourettes Action's support is accessible to people living in Sussex Music therapy - Music therapy project to support people with Tourette syndrome Hofmeyr - To support the planning and running of TICfests and public and political campaigning New Groups To ensure that Tourettes Action's support is accessible to people in various locations Cycling Jerseys - Donation to fund cycling jerseys for fundraisers TNL Community Fund - 5 year grant to support a range of activities to support people with Tourette syndrome and those around them - To support annual TEENfest, delivery of training to 40 schools/educational Angus Lawson Training establishments where children and young people are in need of support and updating online resources available to all - Funding given to support the running of Tourettes Action's helpdesk that offers Help desk confidential and impartial support to those living with Tourettes syndrome, their friends and family as well as others seeking information such as teachers and employers

continued...

Page 32

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2025

17. RELATED PARTY DISCLOSURES

There were no related party transactions for the year ended 31 March 2025.

18. DESIGNATED FUNDS

The Trustees have designated specific funding totalling (£160,000) to cover the following areas of expenditure in the short to medium term. These designated reserves will ensure we can provide continuity in meeting the charity's objectives in supporting people with Tourettes Syndrome for at least the next 12 months. The areas covered are: -

Provision of helpdesk and support services for a 12-month period

Support in education for children and teenagers with TS in schools, and supporting adults with TS in the workplace for a 12-month period

A website upgrade, with associated IT infrastructure updates and improvements

A provision for follow on expenditure on any research projects already supported by the charity

19. SHARE CAPITAL

The company is limited by guarantee and does not have a share capital.

Page 33

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

DETAILED STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2025

INCOME AND ENDOWMENTS
Donations and legacies
Donations
Gift aid
Grants
Other trading activities
Fundraising events
Sales
Webinars
Training income
Fest income
Investment income
Deposit account interest
Total incoming resources
EXPENDITURE
Raising donations and legacies
Fundraising costs
Charitable activities
Wages
Social security
Pensions
Research
Workshops
Cost of Sales
Advocacy
Benevolent grants
Staff Recruitment & other costs
Publicity, PR & Advertising
Exhibitions		 2025
£
176,673
89,656
182,359
448,688
82,110
13,757
1,865
16,323
15,860
129,915
20,540
599,143
37,333
345,247
23,642
11,543
250
105,938
13,738
474
1,974
15,039
66,096
1,200
585,141		 2024
£
196,827
21,482
299,937
518,246
58,343
14,517
1,920
16,375
14,330
105,485
15,887
639,618
35,260
309,833
21,270
8,410
250
114,051
9,899
616
1,421
15,550
41,649
-
522,949

Support costs

This page does not form part of the statutory financial statements

Page 34

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

DETAILED STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2025

Support costs
Management
Premises expenses
Insurance
Telephone
Postage and stationery
Travel & Subsistence
Website costs
Computer expenses
General repairs & renewals
Subscriptions
Fixtures and fittings
Computer equipment
Finance
Bank charges
Governance costs
Board meeting costs
Independent examination
Total resources expended
Net (expenditure)/income		 2025
£
13,800
2,669
1,788
2,977
19,315
1,457
23,066
721
3,292
-
1,144
70,229
432
2,240
5,480
7,720
700,855
(101,712)		 2024
£
13,800
1,896
1,694
1,747
15,302
1,530
17,673
549
1,693
6
1,347
57,237
459
2,122
5,200
7,322
623,227
16,391

This page does not form part of the statutory financial statements

Page 35