**REGISTERED COMPANY NUMBER: 02613993 (England and Wales) REGISTERED CHARITY NUMBER: 1003317** **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **UNAUDITED FINANCIAL STATEMENTS** **FOR THE YEAR ENDED 31 MARCH 2024** Shaw Gibbs Limited Wey Court West Union Road Farnham Surrey GU9 7PT **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **CONTENTS OF THE FINANCIAL STATEMENTS** ## **for the year ended 31 March 2024** |||**Page**|| |---|---|---|---| |**Report of the Trustees**|1|to|11| |**Independent Examiner's Report**||12|| |**Statement of Financial Activities**||13|| |**Balance Sheet**|14|to|15| |**Cash Flow Statement**||16|| |**Notes to the Cash Flow Statement**||17|| |**Notes to the Financial Statements**|18|to|30| |**Detailed Statement of Financial Activities**|31|to|32| ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **REPORT OF THE TRUSTEES for the year ended 31 March 2024** The trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 March 2024. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019). Tourette Syndrome (UK) Association trading as Tourettes Action is a charity formed in 1981 to provide support to people living with the neurological disorder known as Gilles de la Tourette Syndrome and their families and operates as Tourettes Action. The Charity was incorporated in 1991, although the head office of the charity is in Farnborough, staff are located throughout the UK and as such provide support to people throughout England, Wales and Northern Ireland. Tourettes Action (TA) also has links with other Tourette Syndrome Societies throughout the UK, Europe, the United States and Canada. Page 1 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **REPORT OF THE TRUSTEES for the year ended 31 March 2024** ## **OBJECTIVES AND ACTIVITIES** ## **Our Vision** We want a world where people with Gilles de la Tourette Syndrome are: **accepted** , **supported** and **embraced** . This is a world which doesn’t raise barriers but enables people with the condition to reach their full potential. ## **What is Gilles de la Tourette Syndrome?** Gilles de la Tourette Syndrome, known more commonly as Tourette syndrome (TS or Tourette's) typically starts around the age of 4 to 7 years and tends to peak around early adolescence. It is a complex, genetically determined neurological condition of which the key features are tics, which are involuntary movements or sounds. A large number of people with the condition will also experience co-occurring features and conditions such as ADHD, OCD, ASD, anxiety, depression, sensory differences, attention difficulties and problems with their executive function, such as planning, organisation and decision making. Tourette's is a life-long condition, however around 50% of adults report that their symptoms have reduced following adolescence but will wax and wane (come and go) throughout their life. Research shows that 1% of the school age population has TS to some degree, and that at least 300,000 children and adults require support for their condition. A major issue for many is to receive a firm diagnosis that they do indeed have TS due to lack of NHS service coverage. Tourette's is a condition which is often misunderstood and associated with stereotypes, particularly regarding involuntary swearing and socially inappropriate behaviour. Whilst these symptoms can occur, they do not affect everyone with the condition and are not part of the diagnostic criteria. It is important to recognise that those who experience these symptoms often find managing their tics quite challenging. Individuals with Tourette syndrome can also experience tics that present challenges, including embarrassment, pain, injury and physical limitations, depending on their severity. Additionally, a limited understanding of Tourette syndrome can create barriers for adults in the workplace and can hinder educational success for children and young people. Some may also encounter bullying and victimisation, which can affect their mental health. Sadly, research indicates that individuals with Tourette's are at a higher risk for mental health issues, being four times more likely to die by suicide in adulthood compared to the general population. Despite our ongoing efforts to raise awareness, Tourette’s is still often perceived as humorous or trivial. In reality, it can actually lead to social isolation and significant challenges for those affected. The complexities of the condition, combined with the stigma and misunderstandings surrounding it, highlight the urgent need for increased support and understanding to foster a more compassionate environment that promotes well-being and success. There is no specific treatment for the cure or total control of TS. Treatments range from psychological therapy to medication and Botox, which all aim to minimise the worst effects of TS with varying degrees of success. For a very few with the most severe tics, neurosurgery in the form of Deep Brain Stimulation may prove useful. Psychological treatments including CBiT (Comprehensive Behaviour Intervention for Tics) is a tool that helps people with Tourette's manage their tics but this is not widely available throughout the UK. Many people with Tourette syndrome are provided with no treatment options local to them. ## **What is Tourettes Action?** Tourettes Action works in England, Wales and Northern Ireland and is the UK’s only national charity dedicated to supporting individuals with Tourette syndrome and their families. All our staff, volunteers and supporters are engaged and energised in driving forward our mission. Everything we do is grounded in our community’s needs and informed by both the voices of our community and scientific and research-based evidence. ## **Our Mission** - We will support and empower people living with Tourette syndrome, and their loved ones, through comprehensive advice and support. - We will campaign to improve services, raise awareness and understanding of Tourette syndrome, whilst stamping out the stigma associated with it. - We will assist and promote essential research into Tourette syndrome. Page 2 ## **Our Main Activities** Tourettes Action has five strategic goals that are aligned with our mission and are at the forefront of everything we do, they are grounded in our community’s needs and informed by their voices. 1. **To enable people with Tourette syndrome to thrive** : _Providing accessible support, advice and training, to individuals and their families and professionals, helping people living with Tourette’s to flourish at home, in education and in employment._ 2. **To raise awareness of Tourette syndrome and reduce the stigma associated with it** : _Increasing public awareness and understanding about the reality of Tourette syndrome, and what it means to live with it_ . _3._ **To reduce health inequalities for those living with Tourette syndrome** : _Campaigning so that everyone with Tourette syndrome can have access to an appropriate NHS healthcare provision, regardless of their location, ethnic or cultural background or social status._ 4. **To ensure that no-one with Tourette syndrome feels alone:** _Building a network of support for people with Tourette’s and their families, ensuring that no one living with or affected by Tourette syndrome feels alone._ 5. **To support research into Tourette syndrome:** _Informed by the views of our community, we will assist and promote research that examines the causes, the treatments, and the impact of Tourette syndrome, with a view to improving the lives of people with the condition._ These goals were established in response to surveys undertaken within the Tourette's community who identified the main obstacle as an overall lack of awareness of Tourette's within all parts of society. In keeping with these goals, this financial year, our main activities were: - Delivering a nationwide awareness campaign to truly reflect the voices of the Tourette’s community, aiming to increase public awareness and understanding about the reality of Tourette syndrome, and what it means to live with it. - Running weekend residential events for families, teenagers and adults with Tourette’s, giving them a chance to meet and connect with others living with Tourette’s, to build personal confidence, resilience and a sense of community. - Developing and distributing comprehensive resource guides and factsheets that are accessible in both digital and written formats to improve knowledge and understanding of TS. - Advocating for those living with TS e.g. for access and adaptions in schools and the workplace and within health services, together with advocacy through the press and other media. - Providing educational support and advice for people with TS who are attending schools, colleges and universities to make the education journey, for those with TS, as smooth as possible. - Provision of a help desk providing information and one to one support to people with TS and to their families, many of whom are in crisis. - Holding face to face workshops and online seminars on topics of interest for people with TS and their families, to keep our community updated on the latest advice from experts. - Conducting educational online training and face to face training workshops for education, workplace and healthcare professionals. - Providing support in the daily lives for people living with and affected by Tourette syndrome by facilitating online support groups to provide fellowship both for themselves and their families - Helping to facilitate face to face support groups around the country, giving those with TS a chance to meet up regularly with those in the local area for mutual support and friendship - Offering small grants to individuals for the purchase of equipment and other items which will ameliorate the effects of TS. - Through our website, sharing accurate information based on lived experience, and current scientific and research evidence about Tourette’s. - Supporting and facilitating researchers in their studies, providing insights into the lived experience of Tourette’s, and ensuring the patient voice is heard. - Disseminating findings of research in accessible formats to the community and stakeholders. - Liaising with medical specialists in the TS field and offering advice to people living with TS as to the availability of specialist clinics, consultants and therapists. - Bringing our community together to push for health service improvements and supporting them in lobbying parliament and health campaigning. - Participating in relevant coalitions and steering groups who work together to push for improvements in health provisions for those with TS. - Our funded programme has remained suspended for this financial year due to funding restrictions, however we continue to support, and monitor the progress and report on grants awarded in prior year funding rounds. All of these activities are carried out in accordance with Charity Commission's guidance on public benefit and are designed to ensure that we continue to operate for the Public Benefit. Page 3 ## **ACHIEVEMENT AND PERFORMANCE** ## **Charitable activities** Since 1981 Tourettes Action's main aim has been to support people living with, or waiting for a diagnosis for Tourette syndrome. Despite working to reduce the stigma surrounding TS, those living with the condition are aware that it is still one of the most stigmatised and misunderstood of all the neurological conditions, bringing distress to those with the condition as well as their family and friends. In all that we do, we aim to increase awareness and bring about acceptance for those living with TS, hoping to one day eradicate this stigma and bring true acceptance to those living with it. ## **Raising Awareness and Reducing Stigma** ## Tourette’s Awareness Month This financial year, for the second year running, we delivered a nationwide awareness campaign during Tourette's Awareness Month, which ran from 15th May to 15th June. The campaign was called #ItsWhatsMakesMeTic, and it aimed to raise awareness of TS and educate the public on what Tourette’s is really like, whilst reaching as many people as possible. This campaign involved recruiting 5 ambassadors with TS who all had an individual story to tell, with different levels and complexities of the condition. They shared their stories of living with TS throughout awareness month on our TikTok channel. Our aim was that everyone in our community could relate in some way to at least one of the ambassadors. This message was further amplified by creating posters and animations of the ambassadors which was shared across social channels and on a touring digivan. On Tourettes’s awareness day, the 7[th] June, buildings were encouraged to turn green and also share our awareness campaign on their social media channels. We saw a huge amount of engagement from the community, with lots of people supporting us in getting the message out there: The campaign achieved tremendous success, garnering enthusiastic feedback from our community while significantly bolstering growth and involvement across all facets of the charity. ## Website Our website continues to be a major source of information for people and we continue to update the site and improve the content on a regular basis. During this period our website received over 77,000 views. It is continually cited as the main source of reliable information about TS and its associated conditions. We strive constantly to ensure that information is up to date and, although we don't give medical advice, we ensure that the options which might be offered at a clinic visit are fully explained. All of the information is freely downloadable and we continue to believe that this access to information is vital. The website also provides an important platform for the TS community by way of a Blog page and YouTube video channel, where people can share their personal stories, giving inspiration to those on a similar journey. We regularly receive feedback that our website has been "a one stop shop" and has provided individuals with valuable information about the condition and has very often been the only form of information they have received. ## eLearning Our free CPD eLearning module, called Understanding Tourette Syndrome, continues to be widely used and this financial year it was completed by over 2000 individuals, many of those being in the education and health sectors. This was a 139% increase on last year completion rate. Our eLearning module is also the only Tourette syndrome module on the NHS Learning Hub and we are pleased to be featured on many Local Authority learning management systems in both English Page 4 ## and Welsh, enabling us to further spread the message. ## Socials We continue to promote our website content, along with research news, fundraising campaigns, events, webinars and training through our social media platforms and our monthly newsletter. As of March 2024, we had just over 9000 newsletter subscribers, a 15% increase over the prior year. During this period, we maintained our focus on our social media channels, which led to an increase in followers and engagement across all platforms. Our Facebook saw a 31% increase in followers to 14,250, Twitter saw a 5% increase to 6,250 followers and Instagram saw a 37% increase to 7,500 followers. We continued this year to work on our LinkedIn network and at the end of March 2024 we had nearly 1,400 followers, which was a 60% growth rate. This year also saw us reach a new demographic of people with our TikTok channel. At the end of this financial year we had 16,900 followers. ## Media The awareness raising from our campaign, website, eLearning module, social channels and training was further enhanced by the heart-wrenching performance of Lewis Capaldi at Glastonbury. The subsequent discussions that followed resulted in Tourettes Action being asked to comment and provide more information about Tourette syndrome to many organisations. This saw Tourettes Action and Tourette syndrome featuring on broadcast, printed and online media multiple times, which shone a light on the condition and for the first time in years brought a greater understanding. November also saw us featuring on the Children in Need programme, where a wonderful young boy called Shay shared his story of living with Tourette Syndrome. CIN Shay’s Story: https://www.youtube.com/watch?v=6yt3BVHWVCU This also led to multiple TV broadcasts, further extended the reach of our message. ## Training This financial year, we expanded on our workshop offering and hosted 3 events: a day-long workshop in Wrexham for parents and carers of children with TS along with two multi-day workshops in Swansea and Halton. The multiday workshops saw us expand our training to health and social care staff and educational professionals. The first day of the workshop focused on health, social care and education staff, while the second day was dedicated to parents and carers. The workshops aimed to equip the attendees with the knowledge to better support those with TS at home and in the educational and healthcare settings, giving them a thorough understanding on how TS affects those with the condition and the hidden barriers they face daily. In total, we supported 85 parents, 72 health and social care professionals, and 21 education staff during these events. We have continued to provide individualised training sessions via Zoom during this financial year, the need for this has continued to grow. This year we delivered 104 sessions with over 7,500 attendees being present over the sessions, a 40% increase over prior year. We also found that many other organisations were asking for training to better support those with TS, not only within education but also within the workplace and health setting. This led to bespoke training sessions being delivered to 4 community groups, 18 corporate organisations, 15 Health and Social Care teams and 67 education establishments. ## **Reducing health inequalities** Due to the struggles people face in accessing a timely diagnosis and follow-on care and treatment following a diagnosis, one of the main priorities of the charity has been to campaign for health improvements. We have been making really positive progress in our campaign for health service improvements. One of the most significant developments has been our involvement with the NICE Committee as part of their technology assessment to look at Digitally-enabled therapy for chronic tic disorders and Tourette syndrome. This is a great step forward for the TS community, we are finally on the radar of NICE. Our CEO was accepted as a professional expert on the NICE committee and two Tourettes Action board members were accepted as specialist committee members. This combination has ensured that the voices of the community are heard and represented as the work is completed. There however still remains significant regional disparities in accessing medical support for TS, with substantial differences noted across the country. Approximately only about 10% of individuals with Tourette's are able to access Behavioural Therapy for Tics through the NHS. Furthermore, outside of London, there are minimal provisions available for those with TS, compounded by the absence of NICE clinical guidelines for the condition. To address this issue, we have assisted the community in advocating for change by encouraging them to write to their Members of Parliament. Consequently, this financial year, 215 individuals utilised our templates to communicate with their MPs, resulting in the tabling of 12 questions in Parliament aimed at addressing these concerns. As the voice of the community grows stronger and more MPs become involved, commissioners are increasingly Page 5 compelled to take action, leading many to consider implementing Tourette's services and pathways at the local level. We have collaborated with several Integrated Care Boards (ICBs) as they explore the establishment of pathways, advising on current best practice. We are an active participant in a number of pressure and advocacy groups to broaden our impact and influence including the Nottingham Tourette’s Steering Group, NDMAG in Wales and the Neurological Alliance. The Nottingham Tourette’s steering group is a group of academics, healthcare and educational professionals, charity representatives, and lived experience advocates, who are committed to improving access to services and support for children, young people and adults with Tourette syndrome. The NDMAG (Neurodevelopmental Conditions Ministerial Advisory Group) is a group in Wales whose aim is to assist Welsh Ministers with the direction, implementation and future evaluation of their neurodevelopmental service improvement programme. The group will assess emerging policies, strategies and legislation for their impact on neurodivergent people, their families and carers. Being an active member of these groups ensure that the voices of the TS community is counted and recognised. The Nottingham Steering Group started their NIHR funded project, in November 2023. The aim of the project was to develop a recommended service model for children and young people with tics. Our CEO manages the PPI arm of this research project, ensuring that the patient voice is front and foremost and instrumental in the final model. ## **Ensuring no one with Tourette syndrome feels alone** ## Helpdesk Our helpdesk remains our main method of personal one to one support, offering guidance and sign posting to people with TS and those supporting them. This financial year we saw a large rise in the number of people contacting us for support. The call for support continues to rise year on year and this year we provided guidance to just over 3,700 individual queries via email, social media platforms or via phone, and LiveChat. Our Helpdesk is managed and run by 2 members of Tourettes Action staff and a dedicated group of volunteers. We are very grateful to our team of volunteers for their efforts. ## Residential Events This year we delivered our usual TICfest, TEENfest and AdultFest weekends but for the first time ever we delivered a 1- day TICfest event. Each year our fest events are oversubscribed and unfortunately, we can never meet demands, the 1- day Fest enabled us to bridge this gap. It allowed previous fest participants to meet up again and also allowed people who were unsure of the fest events to try something out. Of all the events we run, these provide the greatest positive impact on participants lives. All our residential events allow participants to feel safe, accepted and have fun and form friendships providing exciting physical challenges with some quieter activities as well as some psychosocial education sessions. The concept is simple, but the impact is huge as this is often one of the few occasions that individuals can feel part of the crowd rather than the odd one out. Participants feel able to join in, be themselves and feel free associating with others in a similar situation. This year we delivered: - Four TICfests: Residential weekends for children with Tourette Syndrome and family members. These were held in Somerset, Derbyshire, Sussex and Norfolk and attended by 377 people. - Two TEENfests: Residential weekends for teens with Tourette Syndrome. These were held in Worcestershire and West Yorkshire, each able to accommodate 20 teens. - One Adult weekend: Attended by 53 adults with Tourette Syndrome and a partner/carer. - One 1-day TICfest: Delivered in December in the West Midlands, enabling anyone from the Tourette’s community to come together for a day to learn and share, feel accepted and part of a wider community. This proved very popular despite terrible weather on the day with 167 attendees. The feedback we receive shows how essential these events are for our community. _“I cannot sum up into words what tic fest means to us as a family. It goes above and beyond an adventure weekend for the children. It is a place that has no judgment and even though most of the other people there are complete strangers you get a real sense of community and understanding as we travel on our TS journey.”_ 95% of children attending the TICfest events state they felt happier and less anxious as they experienced what it is like to be accepted and that they are not the only ones to have Tourette’s. 84% stated that their confidence has increased since attending and they now felt more able to talk and explain to people about their condition and will have a better understanding of it themselves. Page 6 ## Support Groups The need for our online groups has remained high this financial year and as such we continued to support our service users providing a regular online support offering. A wide range of online groups were held during this period. We had groups for teens with TS, adults with TS, parents of children with TS, and groups specifically for dads and male role models of those with TS. We facilitated 126 online groups with 554 attendees during this period, with many people reattending weekly for support and fellowship. This year we have put substantial effort into growing our national network of face-to-face support groups that are facilitated by a wonderful group of dedicated volunteers. These groups make a significant positive impact on the Tourette syndrome community. Having these support groups creates a platform for individuals with TS, their families, and caregivers to connect, share experiences, offer mutual support, and foster a sense of belonging and understanding. There are 9 established face-to-face support groups around the country, each meeting on a monthly basis to support the TS community. We facilitated two courses of music therapy in Reading this financial year, the had a positive impact on those that attended, giving them relief from tics in a safe creative place around like-minded people. ## **Enabling people with Tourette syndrome to thrive** ## Educational and Workplace Support, and Advocacy The need for information and support for students in school is as high as ever. Schools continued to experience a high incidence of pupils presenting with the sudden onset of severe tics and many also reported that anxiety following the pandemic has continued and is causing heightened tics for many within the TS community. Our Education Manager has spent many hours helping teachers and parents to support children struggling within education. During this period, we responded to 1,437 enquiries from schools and 1,044 parents’ enquiries regarding support around education and how best to support those with TS in the education environment, a staggering 18% increase from the previous year. This period we also received just over 220 requests for support around TS and reasonable adjustments from children's homes, community centres, wellbeing centres, social services, sports clubs and behaviour support units. This is great news as we are now getting support to children with TS in all settings, not just educational settings. We have had more requests this year to support our Adults with TS in the workplace. During this period we had 25 enquires from adults with TS and 141 enquires from employees wanting to understand how they can better support their workforce. We also held 75 advocacy sessions with adults with TS discussing access to work, support in the workplace, accessing work, disability and access rights, ultimately providing them with the tools to advocate for themselves in the working world. ## Supporting Documents Our Tourettes ID cards are still very popular, we issued 165 this financial year. Users often tell us that the cards give them confidence to go out and travel alone. We have had our TS passports for a number of years now, enabling people with TS to list their support needs. They are a great asset for those in education and the workplace. These were really popular this year, with nearly 2,000 passports issued or downloaded, a, 115% increase on last year. ## Webinars We held a series of informative and educational webinars during this financial year, covering topics such as: Tourette’s and employment; How the sensory system can impact on tics; How to support those with Tourette's within school; Sleep issues in those with TS; Functional Tics and their impact; Therapy techniques for tic management. These webinars were very popular and were attended by 385 people. This period we also began work on expanding and updating our factsheet resources that are freely available on our website. ## **Fundraising** Our amazing fundraisers came out in full force again this year for which we are very grateful. Our fundraising activities included: The London Marathon, the Virtual Marathon, LLHM, Move for Tourettes, Facebook birthday fundraisers and this year we held a new campaign in October called Tea for Tourettes, raising both funds and boosting awareness of the condition. This year, we experienced an increase of just over £20k in donations to the charity, from the previous year, which we attribute primarily to our heightened efforts in raising awareness and campaigning. During the year, we received grants and donations for almost £300,000 from a variety of trusts and funders including Page 7 BBC Children in Need, The National Lottery Community Fund – RC England Wide, The National Lottery Community Fund - Awards for All Wales, Sir Jules Thorn, Michael Cornish Charitable Trust, Anton Jurgens Charitable Trust, Masonic Charitable Foundation and the Angus Lawson Memorial Trust. Due to the ongoing support of a very generous benefactor, we continue to be able to offer small grants for items, which help people to manage their TS. During this period we issued 4 grants for things such as a desk, a computer chair, a VR headset and a digital drum kit, all of which helped the individuals manage their symptoms of TS. ## **Supporting research into Tourette syndrome** Our research support programme remains suspended for new applications due to lack of funding, but we continue to support and monitor progress on research projects previously committed. This financial year we supported 7 researchers in their studies, promoting their studies on our website and social media to engage participants, helping to provide insights into the lived experience of Tourette’s. The promoted studies were: - Experiences of a functional tics diagnosis in adolescents, and their caregivers - Exploring the nature of anxiety in children and adolescents with and without Tic disorder - Evaluating healthcare professionals’ experiences of assessing and treating tics in children and young people in the UK - Tourette Syndrome and self-stigma - A research study examining internalisation, social support, self-esteem, and quality of life - SATURN - Stimulant medication for ADHD and Tics – Understanding Response versus Non-stimulants- Welsh Government’s Neurodivergence and Learning Disability Team Research - Understanding the expression of everyday vocal and motor tics in adults We continue to support the project led by Professor Stephen Jackson at Nottingham University to develop a wrist-worn device providing an imperceptible electrical stimulation that can have the effect of significantly reducing tics in the wearer and are excited about the results following the trials of the prototype device. ## **Looking Back** As we reflect on the last 12 months, we know we have achieved a great deal from just “being there” to campaigning for improved services for people with Tourette syndrome and better understanding of the condition. We can see that we are making progress at reaching a wider audience, such as teachers, health professionals, employers, public services and customer-facing industries, and getting our voice heard. We are very grateful to all of our regular donors who continue to support us with financial contributions, even during these times of economic pressures. We are especially grateful for a substantial multi-year donation from the Hofmeyr family, which has enabled us both to increase the scope and impact of our campaigning as well as substantially expand and improve our offering of weekend residential events. There is however still so much to do to achieve transformative clinical support providing help when needed, and without social stigma so that our community are truly able to live their lives to the full. ## **Looking Forward** Our 5 strategic goals – to enable people with Tourette syndrome to thrive, to raise awareness of Tourette syndrome and reduce the stigma associated with it, to reduce health inequalities for those living with Tourette syndrome, to ensure that no one with Tourette syndrome feels alone, to support research into Tourette syndrome – remain and will remain at the forefront of all that we do this coming financial year. Page 8 ## **FINANCIAL REVIEW** ## **Reserves policy** During the year Unrestricted funds increased by £20,229 to £495,052. There was a decrease of £3,838 to £216,549 in Restricted funds. We still continue to hold a minimum of six months expenditure as reserves as we continue to have a high reliance on the generous support of a small number of donors. To ensure that we can provide continuity in meeting our strategic priorities, for at least the next 12 months, the Trustees have designated specific funding totally £160,000 to cover the following areas of expenditure in the short to medium term: - Provision of helpdesk and support services for a 12-month period - Support in education for children and young people with TS in schools, and supporting adults with TS in the workplace for a 12-month period - Improvement to the website to facilitate better access to resources and information by service users, including a website upgrade, with associated IT infrastructure updates and improvements, which has been deferred from the 2023/24 financial year for operational reasons. - A provision for follow on expenditure on any research projects already supported and funded by the charity ## **Preparation of the accounts on a Going concern basis** The Trustees are confident that Tourettes Action has sufficient funding to enable it to undertake all of its activities over the next year and on that basis the charity is a going concern. ## **STRUCTURE, GOVERNANCE AND MANAGEMENT** ## **Governing document** Tourettes Syndrome (UK) Association trading as Tourettes Action, ('the charity' or 'TA'), is a company limited by guarantee and as such is governed by its Memorandum and Articles. It was incorporated on 23 May 1991. ## **Trustee Board** The charity is governed by the Trustee Board, which sets the strategy of the charity, ensures compliance with its charitable objectives, approves the business plan and budget annually and monitors the ongoing operational and financial performance of the charity. Trustees are appointed after a formal recruitment process, as vacancies arise, by vote of the full Trustee Board at the AGM. Trustees are appointed for a three-year term that may be renewed twice by approval of the Board. Recruitment of trustees is carried out with an explicit view to optimising the balance of skills and experience available to the Board. In particular, the Board seeks to ensure it has representation from people living with TS and/or their families; people with a clinical or scientific interest and expertise in TS, as well as people with business, strategic, financial and other functional skills. The Trustee Board meets at least four times annually. ## **Board Committees** The board maintains three sub-committees as described below.. ## **Finance and General Purposes Committee (F&GP)** The F&GP is chaired by the Hon.Treasurer and meets ahead of Board meetings, and at other times, and operates a delegated mandate to assist the Chief Executive in preparing budgets; to monitor financial performance by detailed review of monthly management accounts; to assist the Chief Executive in arranging and facilitating the annual independent examination and preparation and publication of statutory accounts. The F&GP also supports the work of the Chief Executive in a wide range of operational areas including, but not limited to, HR and staffing issues, premises, administration issues and oversight of the TA's operational risks. Page 9 ## **Research Sub-Committee (RSC)** TA's annual research funding programme remained suspended this financial year due to an unforeseen downturn in funding and as yet has not been restarted. Proposals for funding of clinical, academic scientific or social scientific work towards the understanding, management and potential cure of TS are solicited annually. To assist the Trustee Board in determining which proposals should be funded by TA, the RSC, chaired by a trustee, operates a delegated mandate to make recommendations to the Trustee Board after evaluating proposals by peer review and by reference to an expert external committee of scientific advisors, the Science Advisory Board (SAB). The RSC meets at key stages of the funding round to ensure that research proposals are fully evaluated in time for the Board to allocate grants. The RSC continues to monitor the ongoing performance and outcomes of the projects in which it has invested. ## **Safeguarding and Services Sub-Committee (S&S)** The S&S Committee is chaired by a trustee and oversees and monitor's TA's core service user facing provision. Trustee members include the Trustee Safeguarding Lead as well as other trustees with experience relevant to the committee's oversight responsibilities. The subcommittee is tasked with overseeing the quality and effectiveness of TA's services, ensuring that the scope of each activity remains appropriate and meets the needs of service users on an ongoing basis and that any new initiatives are established with appropriate checks and safeguards. The subcommittee is also responsible for overseeing approval, review, and compliance with all Safeguarding and related policies and monitoring Safeguarding issues on an ongoing basis. The subcommittee meets prior to quarterly Board meetings and on an ad-hoc basis if required. ## **Risk management** Risk management is a central responsibility of the Trustee Board. TA adopts a structured formal approach to the identification and management of risk. A Risk Register is prepared by the CEO and reviewed, updated as necessary, and approved by the Trustee Board annually. It identifies TA's key areas of risk including: Governance, Operations, Finance, Funding, Management, Legal, and Reputation. Each risk is assessed for Probability and Impact to produce a Gross Risk Score. Each risk is subject to mitigation and controls. The effect of mitigation and control is formally assessed and applied to the Gross Risk Score producing the Net Risk Position for each identified risk. ## **Advisers** In addition to the SAB (above), TA has established an external advisory panel, the TA Advisory Panel. This group (currently comprising five adults with TS) support the aims of TA and work in collaboration with the charity staff, trustees and subject experts to help TA evolve and meet the needs of our service users. Appointments to this advisory group will be made from time to time by the Chief Executive in consultation with the Board of Trustees. Page 10 RF.f+ r.RENcf. AND ADMINISTRATIVE DF.TAILS liegis*erod Company number 026134)93 (Englatid lind Wales) R¢iylslered Cliarlty number 100.3.117 R¢x5itereil oWi¢e -I'hL Meuds IliJ%inc%s CLnlrc 19 Kiiigysmcad I.-ARN130R()LICIFI 14wnpsliirL' C¥lJ14 '7.%R 'I'ruslLt¥ Prof￿15￿r E, JoycL Dr L R P31ni¢r t)r J .SILrn (Flipii¢)rilry McdiLal l)Ireeior) 11 Ayres ('frea5urer) Ci Ilanioli M l.Lwis IC.'hiÉ irnian 5inco 4 1)ec 2022) l)liulu%lii47 % WliilL 'I' Miirphy C()iiip#ny So¢rLbt¥ry r. McNlllly Independcnt Ii'x8mlner haw (iibiKs1.iiiiit¢d Wtiy L.i)url Wesi Ui)i¢)ii Itnad (iljl) 7VI" Solicitnr9 ljiili's W¢llLs &, Ilrdiil)wailL London l.l.P 24p (.'aniion Sts'cL￿1 Li)iidon I.,;L'4M OY IlxnkorN Ilarcliiy% Ilaiik plc 7-81 ligh SirL'ei RYLIL. IslL' of Wight PO.I'12PN Lloyd.g tlajik PLC 120 1.¢Yi¥liam st￿￿{ IATrndon %L13 6JG Appr¢ived by order of the board of1rustL￿ on .......-...... and.%1￿)ed i)n 115 [￿haIrbY.. yr¢'.4- 'frus1e' Pag¢ I INDEPENDENT EXAMINER'S REPORT TO THE TRLSTEES OF TOURErrE SYNDROME UK ASSOCIATION TRADllN'G AS TOURETTES ACTIO,N Independent exaininer's report to the tru5tee5 of Tourelt¢ Syndrome (UK) A￿0t1￿liOn Trading fis Tourettes ALtion {'the Compmny,) I I'epon 10 the charity trustees on my examination of die accounts of the Company for the year ended 31 Marcl) 2024. Respoiisibilities and bayis of report As IhL Lhill'ity's li'ust¢LS ol- Ilie Company (and also its directors for th¢ purposes of cumpany la￿) you are responsible for the prepa17tion ot.the accoun15 in accordance with the requirements of the Compallie5 Act 2006 ('the 2006 ALI'}. Having sa(isfiLd myself thal the accounts of the Company are not required to be audiied under I'art 16 of tlie 2006 Acl lind al'e eliLTible for independent examinalion. I report in respeci of my examinaiion of your charity's accounts &8 carried oiit ijnder SeLiiOii 145 ot the Charities Act 2011 I'ihc 201 l Act.). In carryi1)¥ oui my ¢xamination I have followed tlie l)ireclii)n¥ gjiven by Ihe Charity Commission under Section 145(5) (b) of the ?0 I l Act. Independent examiner's statement iiiLL your charity's &Tf058 income exceeded £250,000 your exarniner must be a member of a listed body. I can confinn Illal l am qualified 10 undcrtake the extuninaiion because l arn a rnember of (he Insiiiuie of Chartered A¢LOUlltanis ii) Liiglai)d (Iiid W¢iles, which is one of the listed bodies. I have ¢omplL&ted niy examination. I confimi ihat no matters have come io my attenlion in conneciion with the ¢xaminalii)ii giiviiig me cause to b¢li¢ve-. aLLounling records were not kept in respect of the Company as required by Section 3116 of the 2006 Act. or the Restricted
funds
funds
Notes
£
£
**INCOME AND ENDOWMENTS FROM**
Donations and legacies
2
283,475
234,771
Other trading activities
3
104,609
876
Investment income
4
15,887
-
**Total**
403,971
235,647
**EXPENDITURE ON**
Raising funds
5
31,752
3,508
**Charitable activities**
6
Tourettes Support
352,641
235,326
**Total**
384,393
238,834
**NET INCOME/(EXPENDITURE)**
19,578
(3,187)
**Transfers between funds**
16
651
(651)
**Net movement in funds**
20,229
(3,838)
**RECONCILIATION OF FUNDS**
Total funds brought forward
474,823
220,387
**TOTAL FUNDS CARRIED FORWARD**
495,052
216,549|2024
Total
funds
£
518,246
105,485
15,887
639,618
35,260
587,967
623,227
16,391
-
16,391
695,210
711,601|2023
Total
funds
£
534,607
90,582
7,353| |---|---|---| |||632,542| |||32,308
517,995| |||550,303| |||82,239
-| |||82,239
612,971| |||695,210| The notes form part of these financial statements Page 13 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **BALANCE SHEET** ## **31 March 2024** |Unrestricted
Restricted
funds
funds
Notes
£
£
**FIXED ASSETS**
Tangible assets
12
2,750
-
**CURRENT ASSETS**
Stocks
13
13,560
-
Debtors
14
16,705
-
Cash at bank
526,127
216,549
556,392
216,549
**CREDITORS**
Amounts falling due within one year
15
(64,090)
-
**NET CURRENT ASSETS**
492,302
216,549
**TOTAL ASSETS LESS CURRENT**
**LIABILITIES**
495,052
216,549
**NET ASSETS**
495,052
216,549
**FUNDS**
16
Unrestricted funds
Restricted funds
**TOTAL FUNDS**|2024
Total
funds
£
2,750
13,560
16,705
742,676
772,941
(64,090)
708,851
711,601
711,601
495,052
216,549
711,601|2023
Total
funds
£
2,251
6,057
23,889
712,136
742,082
(49,123)
692,959
695,210
695,210
474,823
220,387
695,210| |---|---|---| The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 March 2024. The members have not required the company to obtain an audit of its financial statements for the year ended 31 March 2024 in accordance with Section 476 of the Companies Act 2006. The trustees acknowledge their responsibilities for - (a) ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and - (b) preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company. The notes form part of these financial statements continued... Page 14 SYNDROME ASSOCtATION TRADJN S TOURETTES A ION BALLYCfi SHEKf- colltillued 31M Thes? fin8n¢tal Stat￿￿￿nts hove b¢on prepAred li accordance with the pmvisions appli¢abl6 to cliarithblo ¢ompRnlos subj¢ct to Ihe small companN regiin Tlie fin￿01￿[ statsm¢nts were approved by Ilie B￿rd ofTrustees andauthorised forissue on ..-.. and were $i8ned on its behalf by. iIIAyres-T Tr notes forni part of these fiftan¢ial statemeiits Page 15 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **CASH FLOW STATEMENT for the year ended 31 March 2024** |Notes
**Cash flows from operating activities**
Cash generated from operations
1
Net cash provided by operating activities
**Cash flows from investing activities**
Purchase of tangible fixed assets
Interest received
Net cash provided by investing activities
**Change in cash and cash equivalents in**
**the reporting period**
**Cash and cash equivalents at the**
**beginning of the reporting period**
**Cash and cash equivalents at the end of**
**the reporting period**|2024
£
16,505
16,505
(1,852)
15,887
14,035
30,540
712,136
742,676|2023
£
62,828
62,828
(1,127)
7,353
6,226
69,054
643,082
712,136| |---|---|---| The notes form part of these financial statements Page 16 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE CASH FLOW STATEMENT for the year ended 31 March 2024** ## **1. RECONCILIATION OF NET INCOME TO NET CASH FLOW FROM OPERATING ACTIVITIES** |**ACTIVITIES**||| |---|---|---| |**Net income for the reporting period (as per the Statement of Financial**
**Activities)**
**Adjustments for:**
Depreciation charges
Interest received
Increase in stocks
Decrease/(increase) in debtors
Increase in creditors
**Net cash provided by operations**|2024
£
16,391
1,353
(15,887)
(7,503)
7,184
14,967
16,505|2023
£
82,239
1,512
(7,353)
(2,743)
(12,327)
1,500| |||62,828| **2. ANALYSIS OF CHANGES IN NET FUNDS** ||At 1.4.23|Cash flow|At 31.3.24| |---|---|---|---| ||£|£|£| |**Net cash**|||| |Cash at bank|712,136|30,540|742,676| ||712,136|30,540|742,676| |**Total**|712,136|30,540|742,676| The notes form part of these financial statements Page 17 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS for the year ended 31 March 2024** ## **1. ACCOUNTING POLICIES** ## **Basis of preparing the financial statements** The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention. ## **Income** All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably. ## **Expenditure** Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources. ## **Raising funds** These comprise fundraising and marketing expenditure. Charitable activities expenditure includes services to beneficiaries. ## **Governance costs** Comprise the costs of compliance and organisational administration, constitutional and statutory requirements and include independent reviewers cost and legal and professional fees. ## **Allocation and apportionment of costs** Costs of generating funds comprise fundraising and marketing expenditure. Charitable activities expenditure includes services to beneficiaries. Support costs include those costs connected with the management of the charity's assets, organisational management and administration and compliance with constitutional and statutory requirements. ## **Tangible fixed assets** Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life. Plant and machinery - 25% on cost Computer equipment - 25% on cost The charity does not capitalise smaller assets of less than £500. These are included in the Statement of Financial Activities when incurred. ## **Stocks** Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items. ## **Taxation** The charity is exempt from corporation tax on its charitable activities. continued... Page 18 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **1. ACCOUNTING POLICIES - continued** ## **Fund accounting** Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees. Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes. Further explanation of the nature and purpose of each fund is included in the notes to the financial statements. ## **Pension costs and other post-retirement benefits** The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate. ## **Leasing commitments** Rentals paid under operating leases are charged to the profit and loss on a straight line basis over the period of the lease. ## **2. DONATIONS AND LEGACIES** |**DONATIONS AND LEGACIES**||| |---|---|---| |Donations
Gift aid
Grants|2024
£
196,827
21,482
299,937
518,246|2023
£
174,212
41,827
318,568| |||534,607| continued... Page 19 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **2. DONATIONS AND LEGACIES - continued** Grants received, included in the above, are as follows: ## **3.** |Children In Need
Garfield Weston Foundation
The National Lottery Community Fund – RC England Wide
St James Place Foundation
Shanly Foundation
Music Therapy Charity
Schroder Charity Trust
Hofmeyr Family
Sir Jules Thorn
Masonic Charitable Foundation
Marsh Charitable Trust
The National Lottery Community Fund - Awards for All Wales
The National Lottery Community Fund - Awards for All England
Radcliffe Trust
RG Hills Charitable Trust
Batchworth Trust
Michael Cornish Charitable Trust
Angus Lawson Memorial Trust
Anton Jurgens Charitable Trust
WCC grant
Mazars Charitable Trust
Other Trusts
**OTHER TRADING ACTIVITIES**
Fundraising events
Sales
Webinars
Training income
Fest income|2024
£
30,000
-
74,743
-
-
-
-
135,000
3,000
5,000
700
16,818
-
-
-
-
3,200
15,393
2,000
684
399
13,000
299,937
2024
£
58,343
14,517
1,920
16,375
14,330
105,485|2023
£
30,500
20,000
74,108
1,250
2,160
1,500
10,000
135,000
-
5,000
600
9,000
9,950
3,000
1,500
15,000
-
-
-
-
-
-| |---|---|---| |||318,568| |||2023
£
65,174
12,832
2,051
10,525
-| |||90,582| ## **OTHER TRADING ACTIVITIES** continued... Page 20 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **4. INVESTMENT INCOME** |Deposit account interest
**5.**
**RAISING FUNDS**
**Raising donations and legacies**
Fundraising costs
**6.**
**CHARITABLE ACTIVITIES COSTS**
Tourettes Support
**7.**
**SUPPORT COSTS**
Management
£
Tourettes Support
57,237
Support costs, included in the above, are as follows:
**Management**
Premises expenses
Insurance
Telephone
Postage and stationery
Sundries
Travel & Subsistence
Website costs
Computer expenses
General repairs & renewals
Subscriptions
Depreciation of tangible and heritage assets|2024
£
15,887
2024
£
35,260
Support
Direct
costs (see
Costs
note 7)
£
£
522,949
65,018
Governance
Finance
costs
£
£
459
7,322
2024
Tourettes
Support
£
13,800
1,896
1,694
1,747
-
15,302
1,530
17,673
549
1,693
1,353
57,237|| |---|---|---| continued... Page 21 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **7. SUPPORT COSTS - continued Finance** |**SUPPORT COSTS - continued**
**Finance**||| |---|---|---| ||2024|2023| ||Tourettes|Total| ||Support|activities| ||£|£| |Bank charges|459|450| |**Governance costs**||| ||2024|2023| ||Tourettes|Total| ||Support|activities| ||£|£| |Board meeting costs|2,122|240| |Independent examination|5,200|5,608| ||7,322|5,848| |**NET INCOME/(EXPENDITURE)**||| |Net income/(expenditure) is stated after charging/(crediting):||| ||2024|2023| ||£|£| |Depreciation - owned assets|1,353|1,512| ## **8. NET INCOME/(EXPENDITURE)** ## **9. TRUSTEES' REMUNERATION AND BENEFITS** There were no trustees' remuneration or other benefits for the year ended 31 March 2024 nor for the year ended 31 March 2023. ## **Trustees' expenses** There were no trustees' expenses paid for the year ended 31 March 2024 nor for the year ended 31 March 2023. ## **10. STAFF COSTS** |Wages and salaries
Social security costs
Other pension costs
The average monthly number of employees during the year was as follows:
Management, administration & counsellors||2024
£
309,833
21,270
8,410||2023
£
251,928
15,485
4,466| |---|---|---|---|---| |||339,513
2024
14||271,879| |||||2023
11| continued... Page 22 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **10. STAFF COSTS - continued** The number of employees whose employee benefits (excluding employer pension costs) exceeded £60,000 was: |£60,001 - £70,000|2024
1|2023
-| |---|---|---| Staff costs have been restated to show recruitment and other staff costs as a separate expense. The key management personnel of the charity are the trustees and the Chief Executives. The total employment costs of key management personnel total £64,464 (2023: £60,881) |**11.**
**COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES**
Unrestricted
Restricted
funds
funds
£
£
**INCOME AND ENDOWMENTS FROM**
Donations and legacies
246,733
287,874
Other trading activities
88,833
1,749
Investment income
7,353
-
**Total**
342,919
289,623
**EXPENDITURE ON**
Raising funds
26,061
6,247
**Charitable activities**
Tourettes Support
244,208
273,787
**Total**
270,269
280,034
**NET INCOME**
72,650
9,589
**RECONCILIATION OF FUNDS**
Total funds brought forward
402,173
210,798
**TOTAL FUNDS CARRIED FORWARD**
474,823
220,387|Total
funds
£
534,607
90,582
7,353| |---|---| ||632,542| ||32,308
517,995| ||550,303| ||82,239
612,971| ||695,210| continued... Page 23 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **12. TANGIBLE FIXED ASSETS** |Plant and
Computer
machinery
equipment
£
£
**COST**
At 1 April 2023
1,732
45,650
Additions
-
1,852
At 31 March 2024
1,732
47,502
**DEPRECIATION**
At 1 April 2023
1,726
43,405
Charge for year
6
1,347
At 31 March 2024
1,732
44,752
**NET BOOK VALUE**
At 31 March 2024
-
2,750
At 31 March 2023
6
2,245
**13.**
**STOCKS**
2024
£
Stocks
13,560
**14.**
**DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR**
2024
£
Trade debtors
800
Other debtors
5,040
Prepayments and accrued income
10,865
16,705|Totals
£
47,382
1,852
49,234
45,131
1,353
46,484
2,750
2,251
2023
£
6,057| |---|---| ||2023
£
400
6,089
17,400| ||23,889| continued... Page 24 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **15. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR** |Trade creditors
Social security and other taxes
Accruals and deferred income|2024
£
17,903
6,815
39,372
64,090|2023
£
11,316
6,306
31,501| |---|---|---| |||49,123| ## **16. MOVEMENT IN FUNDS** |**Unrestricted funds**
General fund
**Restricted funds**
Daniel Katz
BBC Children In Need
NE Group
James Tudor Trust
TNL A4A Wales
Kent Group
Community Foundation for Surrey
Doris Field Charitable Trust
West Midlands Group
Hull Group
Essex group
Teenfest
TNL A4A Tourettes Champions
Ticfest
Sussex Group
Music Therapy Charity Trust
Hofmeyr 2022
Cycling Jerseys
Adult Fests
Accredited CPD Training
New groups
Training Angus Lawson Memorial Trust
Hofmeyr Campaigning
Hofmeyr 2023 Fest
Hofmeyr 2024 Fest
**TOTAL FUNDS**|Net
movement
At 1.4.23
in funds
£
£
474,823
19,578
15,430
(1,421)
1,000
(1,000)
854
(854)
651
-
5,777
10,741
394
(166)
125
586
1,165
-
459
547
39
(39)
1,080
(1,080)
5,359
10,034
6,200
(3,792)
1,727
(726)
707
-
7,932
(4,092)
160,503
(7,124)
784
-
3,447
1,212
5,384
(5,384)
1,370
1,611
-
(6,000)
-
(5,094)
-
(74,781)
-
83,635
220,387
(3,187)
695,210
16,391|Transfers
between
funds
£
651
-
-
-
(651)
-
-
-
(1,165)
-
-
-
(8,000)
-
-
-
-
(135,000)
-
-
-
1,165
8,000
50,000
85,000
-
(651)
-|At
31.3.24
£
495,052
14,009
-
-
-
16,518
228
711
-
1,006
-
-
7,393
2,408
1,001
707
3,840
18,379
784
4,659
-
4,146
2,000
44,906
10,219
83,635
216,549
711,601| |---|---|---|---| continued... Page 25 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **16. MOVEMENT IN FUNDS - continued** Net movement in funds, included in the above are as follows: |**Unrestricted funds**
General fund
**Restricted funds**
Daniel Katz
BBC Children In Need
NE Group
TNL A4A Wales
Kent Group
Community Foundation for Surrey
West Midlands Group
Hull Group
Essex group
TNL Community Fund
TNL Adult Weekends
Teenfest
TNL A4A Tourettes Champions
Ticfest
Music Therapy Charity Trust
Hofmeyr 2022
Adult Fests
Accredited CPD Training
New groups
Training Angus Lawson Memorial Trust
Hofmeyr Campaigning
Hofmeyr 2023 Fest
Hofmeyr 2024 Fest
**TOTAL FUNDS**|Incoming
Resources
Movement
resources
expended
in funds
£
£
£
403,971
(384,393)
19,578
-
(1,421)
(1,421)
30,000
(31,000)
(1,000)
-
(854)
(854)
16,818
(6,077)
10,741
-
(166)
(166)
713
(127)
586
847
(300)
547
-
(39)
(39)
-
(1,080)
(1,080)
59,243
(59,243)
-
15,500
(15,500)
-
22,393
(12,359)
10,034
-
(3,792)
(3,792)
3,200
(3,926)
(726)
-
(4,092)
(4,092)
-
(7,124)
(7,124)
-
1,212
1,212
-
(5,384)
(5,384)
1,933
(322)
1,611
-
(6,000)
(6,000)
-
(5,094)
(5,094)
-
(74,781)
(74,781)
85,000
(1,365)
83,635
235,647
(238,834)
(3,187)
639,618
(623,227)
16,391| |---|---| continued... Page 26 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **16. MOVEMENT IN FUNDS - continued** ## **Comparatives for movement in funds** |**Unrestricted funds**
General fund
**Restricted funds**
Daniel Katz
TLC
BBC Children In Need
NE Group
James Tudor Trust
Manchester Group
TNL A4A Wales
Kent Group
Community Foundation for Surrey
Doris Field Charitable Trust
West Midlands Group
Hull Group
Essex group
TNL Community Fund
TNL Teacher Training
Teenfest
TNL A4A Tourettes Champions
Ticfest
Sussex Group
Music Therapy Charity Trust
TNL Parent WS
Hofmeyr 2022
Hospital Saturday Fund
Oxford Group
Sir Jules Thorn
Cycling Jerseys
Adult Fests
Accredited CPD Training
New groups
**TOTAL FUNDS**|Net
movement
At 1.4.22
in funds
£
£
402,173
72,650
17,751
(2,321)
2,986
(2,986)
-
1,000
854
-
651
-
556
(556)
-
5,777
1,669
(1,275)
265
(140)
747
(747)
448
11
39
-
1,080
-
2,127
(2,127)
725
(725)
2,026
3,333
9,561
(3,361)
49,909
(48,182)
223
484
5,548
2,384
3,738
(3,738)
105,000
55,503
1,822
(1,822)
418
747
1,655
(1,655)
1,000
(216)
-
3,447
-
5,384
-
1,370
210,798
9,589
612,971
82,239|At
31.3.23
£
474,823
15,430
-
1,000
854
651
-
5,777
394
125
-
459
39
1,080
-
-
5,359
6,200
1,727
707
7,932
-
160,503
-
1,165
-
784
3,447
5,384
1,370
220,387
695,210| |---|---|---| continued... Page 27 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **16. MOVEMENT IN FUNDS - continued** Comparative net movement in funds, included in the above are as follows: |**Unrestricted funds**
General fund
**Restricted funds**
Daniel Katz
TLC
BBC Children In Need
Manchester Group
TNL A4A Wales
Kent Group
Community Foundation for Surrey
Doris Field Charitable Trust
West Midlands Group
TNL Community Fund
TNL Teacher Training
TNL Adult Weekends
Teenfest
TNL A4A Tourettes Champions
Ticfest
Sussex Group
Music Therapy Charity Trust
TNL Parent WS
Hofmeyr 2022
Hospital Saturday Fund
Oxford Group
Sir Jules Thorn
Cycling Jerseys
DBS & Safeguarding
Adult Fests
Accredited CPD Training
New groups
**TOTAL FUNDS**|Incoming
Resources
Movement
resources
expended
in funds
£
£
£
342,919
(270,269)
72,650
1
(2,322)
(2,321)
1,015
(4,001)
(2,986)
30,500
(29,500)
1,000
-
(556)
(556)
9,000
(3,223)
5,777
-
(1,275)
(1,275)
-
(140)
(140)
-
(747)
(747)
250
(239)
11
32,108
(34,235)
(2,127)
1,626
(2,351)
(725)
15,500
(15,500)
-
11,249
(7,916)
3,333
-
(3,361)
(3,361)
-
(48,182)
(48,182)
484
-
484
6,660
(4,276)
2,384
21,021
(24,759)
(3,738)
135,000
(79,497)
55,503
-
(1,822)
(1,822)
-
747
747
-
(1,655)
(1,655)
-
(216)
(216)
3,853
(3,853)
-
10,000
(6,553)
3,447
9,950
(4,566)
5,384
1,406
(36)
1,370
289,623
(280,034)
9,589
632,542
(550,303)
82,239| |---|---| continued... Page 28 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **16. MOVEMENT IN FUNDS - continued** Daniel Katz - Providing grants to improve the quality of life for people with Tourette Syndrome BBC Children in Need - Part of a multi year grant to support Ticfest - To ensure that Tourettes Action's support is accessible to people living in the NE Group North East Tudor Trust - CIBIT training places for clinicians Manchester - Funds held on behalf of the Tourettes Action Manchester Group Awards for All Wales - Workshops in Wales Kent Group - Funds for the support of people living in Kent with Tourette Syndrome Community Foundation - Contribution towards work to support people with Tourette Syndrome living in for Surrey Surrey Doris Field charitable - Contribution towards work to support people with Tourette Syndrome living in Trust Oxfordshire CHK Charities Ltd - To support the work of Tourettes Action Hull Group - To ensure that Tourettes Action's support is accessible to people living in Hull West Midlands Group - To ensure that Tourettes Action's support is accessible to people living in West Midlands Essex group To ensure that Tourettes Action's support is accessible to people living in Essex The National Lottery - National Lottery grant to fund a range of activities Teenfest - Residential weekends for teens with Tourettes Syndrome TNL A4A Tourettes - Funding for the TS Champion programme Champions Ticfest - Restricted grants for ticfest plus designated funds allocated to ticfest Sussex Group - To ensure that Tourettes Action's support is accessible to people living in Sussex Music Therapy Charity - Music therapy project to support people with Tourette Syndrome Trust - To support the planning and running of ticfests and public and political Hofmeyr campaigning Oxford Group - To ensure that Tourettes Action's support is accessible to people living in Oxford Cycling Jerseys - Donation to fund cycling jerseys for fundraisers - 5 year grant to support a range of activities to support people with Tourettes TNL Community Fund Syndrome and those around them ## **Transfers between funds** A donation of £135,000 was received from Hofmeyr and £50,000 has been reallocated to campaigning with the remaining £85,000 to festivals which will be spent next year. A grant of £10,000 was received from Angus Lawson Memorial Trust during the year for teenagers and £8,000 from this grant has been assigned to teenage training. The remaining funds in the Oxford group from Doris Field Charitable Trust of £1,165 has been reallocated to New Groups. continued... Page 29 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2024** ## **17. RELATED PARTY DISCLOSURES** There were no related party transactions for the year ended 31 March 2024. ## **18. DESIGNATED FUNDS** The Trustees have designated specific funding totalling (£160,000) to cover the following areas of expenditure in the short to medium term. These designated reserves will ensure we can provide continuity in meeting the charity's objectives in supporting people with Tourettes Syndrome for at least the next 12 months. The areas covered are: - Provision of helpdesk and support services for a 12-month period Support in education for children and teenagers with TS in schools, and supporting adults with TS in the workplace for a 12-month period A website upgrade, with associated IT infrastructure updates and improvements A provision for follow on expenditure on any research projects already supported by the charity ## **19. SHARE CAPITAL** The company is limited by guarantee and does not have a share capital. Page 30 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **DETAILED STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2024** |**INCOME AND ENDOWMENTS**
**Donations and legacies**
Donations
Gift aid
Grants
**Other trading activities**
Fundraising events
Sales
Webinars
Training income
Fest income
**Investment income**
Deposit account interest
**Total incoming resources**
**EXPENDITURE**
**Raising donations and legacies**
Fundraising costs
**Charitable activities**
Wages
Social security
Pensions
TA Camps
Research
Workshops
Cost of Sales
Advocacy
Benevolent grants
Staff Recruitment & other costs
Support Services
Publicity, PR & Advertising
**Support costs**
**Management**
Premises expenses
Carried forward|2024
£
196,827
21,482
299,937|2023
£
174,212
41,827
318,568
534,607
65,174
12,832
2,051
10,525
-
90,582
7,353
632,542
32,308
251,928
15,485
4,466
11,250
250
97,801
10,121
1,294
2,668
17,724
79
22,528
435,594
13,800
13,800| |---|---|---| ||518,246
58,343
14,517
1,920
16,375
14,330
105,485
15,887
639,618
35,260
309,833
21,270
8,410
-
250
114,051
9,899
616
1,421
15,550
-
41,649|| ||522,949
13,800
13,800|| This page does not form part of the statutory financial statements Page 31 ## **TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION** ## **DETAILED STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2024** |**Management**
Brought forward
Insurance
Telephone
Postage and stationery
Sundries
Travel & Subsistence
Website costs
Computer expenses
General repairs & renewals
Subscriptions
Fixtures and fittings
Computer equipment
**Finance**
Bank charges
**Governance costs**
Board meeting costs
Independent examination
Total resources expended
**Net income**|2024
£
13,800
1,896
1,694
1,747
-
15,302
1,530
17,673
549
1,693
6
1,347
57,237
459
2,122
5,200
7,322
623,227
16,391|2023
£
13,800
1,831
2,071
7,541
61
7,331
9,228
27,673
3,410
1,645
67
1,445
76,103
450
240
5,608
5,848
550,303
82,239| |---|---|---| This page does not form part of the statutory financial statements Page 32