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2022-03-31-accounts

REGISTERED COMPANY NUMBER: 02613993 (England and Wales) REGISTERED CHARITY NUMBER: 1003317

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022

HPCA Limited Chartered Accountants Station House Connaught Road Brookwood Woking Surrey GU24 0ER

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

CONTENTS OF THE FINANCIAL STATEMENTS for the year ended 31 March 2022

Page
Report of the Trustees 1 to 7
Independent Examiner's Report 8
Statement of Financial Activities 9
Balance Sheet 10 to 11
Notes to the Financial Statements 12 to 23
Detailed Statement of Financial Activities 24 to 25

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

REPORT OF THE TRUSTEES for the year ended 31 March 2022

The trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 March 2022. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

Tourette Syndrome (UK) Association trading as Tourettes Action is a charity formed in 1981 to provide support to people living with the neurological disorder known as Gilles de la Tourette Syndrome and their families and operates as Tourettes Action.

The Charity was incorporated in 1991, although the head office of the charity is in Farnborough, staff are located throughout the UK and as such provide support to people throughout England, Wales and Northern Ireland. Tourettes Action (TA) also has links with other Tourette Syndrome Societies throughout the UK, Europe, the United States and Canada.

OBJECTIVES AND ACTIVITIES

Mission and objectives

Tourettes Action provides support to those living with and affected by Gilles de la Tourette Syndrome through a wide range of support services.

What is Gilles de la Tourette Syndrome?

Gilles de la Tourette Syndrome, known more commonly as Tourette Syndrome (TS or Tourette’s) typically starts around the age of 6/7 years and tends to peak around early adolescence. It is a complex, genetically determined neurological condition of which the key features are tics, which are involuntary movements or sounds. A large number of people with the condition will also experience co-occurring features and conditions. Tourette’s is a life-long condition, however around 50% of adults report that their symptoms have reduced following adolescence but will wax and wane (come and go) throughout their life.

Research shows that 1% of the school age population has TS to some degree, and that at least 300,000 children and adults require support for their condition. A major issue for many is to receive a firm diagnosis that they do indeed have TS, and a major activity for the future is to increase knowledge so that a diagnosis can be given.

Tourette’s is perhaps the most publicly misunderstood of all the neurological conditions, many people think Tourette’s is a swearing condition that is behavioural. Although it is true that ‘coprolalia’ – the clinical term for involuntary swearing – is a symptom of TS, it doesn't affect everyone and it is NOT a criteria for diagnosis. It can however be one of the most difficult tics to manage. Many people see Tourette's as comical and not that serious, when in reality it can be an extremely debilitating condition.

People with TS have both involuntary vocal (sounds) and motor (movements) tics, which often cause embarrassment and great pain depending on the severity of the tic. A small number of people cause themselves significant physical harm as a consequence of their tics. There is no specific medication for the cure or total control of TS. Treatments use a variety of drugs to minimise the worst effects with varying degrees of success, and for a very few Deep Brain Stimulation may prove useful. Psychological treatments including CBiT (Comprehensive Behaviour Intervention for Tics) is a tool that helps people with Tourette’s manage their tics.

Page 1

What is Tourettes Action?

Tourettes Action works in England, Wales and Northern Ireland and is the leading support and research charity for people with Tourette Syndrome and their families.

Tourettes Action want people with Tourette Syndrome to receive the practical support and social acceptance they need to help them live their lives to the full.

Covid-19 pandemic

The impact of covid continued throughout this financial year, with many face-to-face events continuing to run virtually. Our priority was to ensure that our services continued or adapted where necessary, in-line with covid restrictions. The following measures were put in place to support this:

Our Main Activities

All of these activities are carried out in accordance with Charity Commission's guidance on public benefit and are designed to ensure that we continue to operate for the Public Benefit.

Page 2

ACHIEVEMENT AND PERFORMANCE

SUZANNE DOBSON, Chief Executive 2009-2021

Suzanne Dobson, the CEO for more than a decade, sadly died on 21[st] July 2021 after a short illness. Suzanne led the charity through a remarkable period of transformation and growth for which not only the trustees but countless people with TS across the UK are very grateful. During this sad and difficult period, the charity continued to run without a CEO, relying heavily on the trustees to steer the charity, until a new CEO, Emma McNally, was appointed at the end of January 2022.

Charitable activities

Since 1981 Tourettes Action's main aim has been to support people living with TS from pre diagnosis through the diagnosis, treatment and management of the condition. Despite working to reduce the stigma surrounding TS, those living with the condition are aware that it is still one of the most stigmatised of the neurological conditions bringing distress to those with the condition as well as their family and friends. In all that we do, we aim to increase awareness and bring about acceptance for those living with TS, hoping to one day eradicate this stigma.

Our helpdesk is our main method of personal support, offering guidance and sign posting to people with TS and those supporting them. The LiveChat service continues to be the most popular method of supporting people, with over 1,200 LiveChat conversations throughout this financial year. In addition to this, we also had more than 900 people contacting us via our call back service, emails, and social platforms. We are very grateful for the efforts of our small but dedicated group of volunteers who help to run these services along with staff members.

Covid-19 restrictions remained in place for a lot of the year and many feeling uneasy about meeting face to face, we continued supporting our service users with online groups and webinars. Even when restrictions started to ease, the need for these groups and services remained high.

A range of online groups were held for teens with TS, adults with TS, parents of children with TS, and for dads and male role models of those with TS. We facilitated 174 online groups during this period, with many people reattending weekly for support and fellowship.

We held a series of informative and educational webinars during the year, which were attended by almost 700 people.

Our website continues to be a major source of information for people and we continue to update the site and improve the content. During this period our website was visited 182,480 times, compared to 176,495 in the previous financial year. The website continues to be cited as the main source of reliable information about TS and its associated conditions. We strive constantly to ensure that information is up to date and, although we don't give medical advice, we ensure that the options which might be offered at a clinic visit are fully explained. All of the information is freely downloadable and we continue to believe that this access to information is vital. The website also provides an important platform for the TS community by way of a Blog page and YouTube video channel, where people can share their personal stories, giving inspiration to those on a similar journey.

We continue to promote our website content, along with research news, fundraising campaigns, events, webinars and training, through our social media platforms and our monthly newsletter. As of March 2022, our newsletter subscribers totalled 4716, in comparison to 3636 subscribers at the end of March 2021. During this period, we put a lot of effort into our social media channels and as of March 2022 we had 9187 followers on Facebook, 5255 followers on Twitter and 3532 followers on Instagram, a large increase from the previous year, enabling us to reach a new demographic of people.

The need for information and support for students in school is as high as ever. Schools continued to experience a high incidence of pupils presenting with the sudden onset of severe tics and many also reported that anxiety following the pandemic was causing heightened tics for many within the TS community. Our Education Manager has spent many hours helping teachers and parents to support children struggling within school. During this period, we were contacted 1167 times from schools and 996 from parents regarding support around education and how best to support those with TS in the school environment.

Our support around TS and reasonable adjustments that can help has also been requested from children’s homes, community centres, wellbeing centres, social services, sports clubs and behaviour support units. This is great news as we are now getting support to children with TS in all settings, not just schools.

Page 3

We have continued to develop new content for the website including a free online teacher training presentation. Individualised training is also provided to schools, during this period we have delivered 37 bespoke school training sessions.

Our Tourettes ID cards are still very popular, we issued 220 this financial year. Users often told us that the cards gave them confidence to go out and travel alone.

We were pleased that this year we were able to reinstate our residential weekend events to support people with TS and their families following them previously being cancelled due to the pandemic.

We delivered 8 events:

All our residential events allow the individuals to fully relax and associate with others in a similar situation, providing exciting physical challenges with some quieter activities as well as some psychosocial education sessions.

Of all the events we run, the fest events continue to impact positively on participants lives. 85% of children attending the TICfest events state they had made significant progress in improving relationships with their peers following the fest event and 94% stating that their confidence has increased since attending.

We are very grateful to all of our regular donors who continue to support us with financial contributions, even during these times of economic pressures. We were especially grateful for a substantial multi-year donation from the Hofmeyr family, which will enable us both to increase the scope and impact of our campaigning as well as substantially expand and improve our offering of weekend residential events.

As some of the restrictions of the pandemic eased, we were able to focus more on our fundraising channels and as such a little over £68,000 was raised by our amazing fundraisers at our fundraising events. Our fundraising activities included: The London Marathon, the Virtual Marathon, LLHM, Festival of Gaming, Move for Tourettes and Facebook birthday fundraisers.

During the year, we received grants and donations for more than £146,000 from a variety of trusts and funders including BBC Children in Need, The National Lottery Community Fund, Garfield Weston Foundation, Rushmoor Borough Council, Sir Jules Thorn Charitable Trust, Speedomick Foundation, 29th May 1961 Charity, Marsh Charitable Trust, James Tudor Foundation, Annie Tranmer Charitable Trust, Masonic Charitable Foundation, Lillie Johnson Charitable Trust, Grocers Charity, Hospital Saturday Fund, TK Maxx and Homesense Foundation, D’Oyly Carte Charitable Trust and St James’s Place Foundation.

Due to the ongoing support of a very generous benefactor, we continue to be able to offer small grants for items, which help people to manage their TS. During this period we issued 6 grants for things such as mixing decks, singing lessons, an iPad and pen and a trampoline, all of which helped the individuals manage the symptoms of TS.

Page 4

Research Grants

Our research support programme remains suspended for new applications due to lack of funding, but we continue to support and monitor progress on research projects previously committed

We have however continued to promote research studies on our website and social media to engage participants. This period we promoted 8 such studies:

We are particularly excited about a project that TA has part-funded, led by Professor Stephen Jackson at Nottingham University to develop a wrist-worn device providing an imperceptible electrical stimulation that can have the effect of significantly reducing tics in the wearer. The prototype consumer device has been designed and will be taken through trials and, if successful, produced for use by Neurotherapeutics Ltd, a spin-out company at the University of Nottingham.

What next?

We surveyed our service users at the start of 2022, when our new CEO joined us and we have used this feedback to clarify our areas of focus going forward as the following:

These four things will be at the forefront of all that we do going forward.

To deliver these effectively we will need to bring in new initiatives and new staff members to support these and part of these will be financed from existing reserves.

FINANCIAL REVIEW

Reserves policy

During the year Unrestricted funds increased by £91,954 to £402,174 mainly due to reductions in all areas of expenditure and the absence of a CEO for a period of 6 months, whilst there was an increase of £105,194 to £210,798 in Restricted funds.

As mentioned above with the new initiatives we are planning the current level of unrestricted funds will reduce in the coming years.

We still continue to hold a minimum of six months expenditure as reserves as we continue to have a high reliance on the generous support of a small number of donors.

Preparation of the accounts on a Going concern basis

The Trustees are confident that Tourettes Action has sufficient funding to enable it to undertake all of its activities over the next year and on that basis the charity is a going concern.

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

Tourettes Syndrome (UK) Association, trading as Tourettes Action, ('the charity' or 'TA'), is a company limited by guarantee and as such is governed by its Memorandum and Articles. It was incorporated on 23 May 1991.

Page 5

STRUCTURE, GOVERNANCE AND MANAGEMENT Trustee Board

The charity is governed by the Trustee Board, which sets the strategy of the charity, ensures compliance with its charitable objectives, approves the business plan and budget annually and monitors the ongoing operational and financial performance of the charity.

Trustees are appointed after a formal recruitment process, as vacancies arise, by vote of the full Trustee Board at the AGM. Trustees are appointed for a three-year term that may be renewed twice by approval of the Board.

Recruitment of trustees is carried out with an explicit view to optimising the balance of skills and experience available to the Board. In particular, the Board seeks to ensure it has representation from people living with TS and/or their families; people with a clinical or scientific interest and expertise in TS, as well as people with business, strategic, financial and other functional skills.

The Trustee Board meets at least four times annually.

Board Committees

The board maintains two sub-committees. The Financial and General Purpose Committee (F & GP) that meets with greater frequency than the full Trustee Board. The Research Sub-committee (RSC) that meets only to consider the grant applications.

Finance and General Purposes Committee (F&GP)

The F&GP is chaired by the Hon.Treasurer and meets ahead of Board meetings, and at other times, and operates a delegated mandate to assist the Chief Executive in preparing budgets; to monitor financial performance by detailed review of monthly management accounts; to assist the Chief Executive in arranging and facilitating the annual independent examination and preparation and publication of statutory accounts.

The F&GP also supports the work of the Chief Executive in a wide range of operational areas including, but not limited to, HR and staffing issues, administration issues and office moves.

Research Sub-Committee (RSC)

TA's annual research funding programme was suspended during the last financial year due to an unforeseen downturn in funding and as yet has not been restarted. Proposals for funding of clinical, academic scientific or social scientific work towards the understanding, management and potential cure of TS are solicited annually. To assist the Trustee Board in determining which proposals should be funded by TA, the RSC, chaired by a trustee, operates a delegated mandate to make recommendations to the Trustee Board after evaluating proposals by peer review and by reference to an expert external committee of scientific advisors, the Science Advisory Board (SAB). The RSC meets at key stages of the funding round to ensure that research proposals are fully evaluated in time for the Board to allocate grants.

TA monitors the ongoing performance and outcomes of the projects in which it has invested.

Advisers

In addition to the SAB (above), TA is in the process of establishing an external advisory panel of experts in a range of areas who support the aims of TA and who are willing to place their expertise at the disposal of TA from time to time without becoming members of the formal governance structure of the charity. Appointment to this advisory group will be made from time to time by the Trustee Board.

Risk Management

Risk management is a central responsibility of the Trustee Board.

TA adopts a structured formal approach to the identification and management of risk. A Risk Register is prepared by the CEO and reviewed, updated as necessary, and approved by the Trustee Board annually. It identifies risks under a range of key headings including: Governance, Operations, Finance, Funding, Management, Legal, and Reputation.

Each risk is assessed for Probability and Impact to produce a Gross Risk Score. Each risk is subject to mitigation and controls. The effect of mitigation and control is formally assessed and applied to the Gross Risk Score producing the Net Risk Position for each identified risk.

Page 6

REFERENCE A]¥D ADMINISTRATIVE DETAILS Registered Company number 02613993 {England and Wales) Registered Charity Dumber 1003317 Regi￿tred offiee The Meads Business Centre 19 Kingsmead rARNBOROUGH Harnpshire GU14 7SR Trnslees A Bbandari G Jackson Professor E Joy¢¢ Dr E R PaltRer P R Paxton Chairnlan Dr J Stern Honorary Medical Director l R Ayr¢5 Treasurer D M&sters {resign¢d 12.9.21) G Barnett A Pape M Shao M Lewis Company Secretsries l R Ayre5 (resigned 13.3.221 E M¢Nally {appoint¢d I1.222} Independent Examiner HPCA Limited Chartered Accountants Ststion Hou5¢ Connaught Road Brookwood Woking Surrey GU24 OER Solicitors Bate5 Welles & BrJithwait¢ London LLP 2-6 Cannon Streei London EC4M 6Y BaDk¢rs Lloy¢l% Banking Group 25 Gresham Streei London EC2V 7HN Approved by Order of the Eoard of ￿st¢eS on ... - and signed on its behalf by.. l R Ayres- Trustee Page 7

INDEPENDKNT EXAMIiYLR'S RF.PORT TO THE TRUSTEES OF TOURETTE 8I7qDRnME UK ASSOLIATION "rRADING AS TOUIiET'I'ES ACTIO lThitptndent 2xmlDer'8 TrEport to the trv&ttes of Tourette S>mdrome (Ll() Agso¢latlon Tradillx th$ Tourettei Atrfon ('the Company'l I rcwn kn tb¢ thariry IT￿let5 ott my eXami￿tIon of the acCo￿)ts of the CompsDy for the year ende4 31 March 2022. R¢5POrtslbiiities and bx5i$ of report As th¢ chariil5 tntsltts of th¢ Cojnpany {and a160 118 dir¢ttors for the Plfposes of conyany law) yots are responsibl¢ for the preparation of Ihe a¢L￿UniS in accordaD¢¢ Thryth the T¥quirctllcnis of th¢ C4Jmpatsie5 Act 2￿61'the 2(b06 Act). Ilavillgsatisfied myself thèt the ac¢(punLq of the Company are r¢qiiiied 10 be aiHliled undtrPari 16 of th¢ 2006 kn.t aDd arc cligiblc lor sndttndcnL eXFllllltkatioty I report in Tcspccl of D]y examination of your charitys accounis as carria oul linder Section 145 of Ihe Chari12eg Act 201 I I'ihc 2011 Abt'l. In carrying oui my exami￿atIOn I h&vc lollow¢d the D￿eCtiOnS givett by the ChaTiEy CommissioD nder S￿tion 145151 Ib) of the 2011 ACL Ihdependent examitttr'5 Statem¢nt Since your ch2riWs gross incorne Bxteede4J £25O,(KKI )Y)ur ULamin¢r mu8tb¢ a m¢tnb¢r of a lis￿ body. I cthn eonfirni that l qLwlifi¢d to ulldcrtllke tbe examintitioll because I Im a r¢giste￿d memher of ACA, FCCA which 1$ one of th¢ lisi¢d bodttt. I have ¢omplcled my examinaiioTr I ronfm lh￿ no mAtt¢15 have come to my atteniion ￿ collnection with the examingtlQD giving me c4use to believe.. accountlDg rccoxds wcre Dot kept m ￿SpeCt of the Cowy as required by Section 18fi of the 21X)6 Act., or Ik a£counts do noi acwrd with thosc r¢oirds,' o the accouDts do not cDmply with (he accounlinB requiremenL4 ol SeLlion 396 <)f thc 20￿ Aci 011￿[ thAfL mly TwUirE]￿nt rhat ihe accounts BIVC a trn¢ and ra￿T view which is Dot a JnatterconsideTed pan of an indcpendenl exdTninaiion: or Ihc accounts havt nLTri bctn pr¢p￿¢{S in acGordanGe th¢ mcihods and principleg of th¢ gtateTnent of Recoiwn¢nded Prncrict for accouniing and reporting by charilitr (applicable ￿ Charities Preparing their accounts itl at¢ord3we ￿￿th Ihe Financilll Reporti￿￿ Standard appliL%ble in the UK Bnd Republic of Ireland IFRS I D211. I have nn Cor￿¢￿￿ an(1 have coJJJt acros$ rn other m&ttcrs in co1￿c¢110n with the exaDJinatiO￿ to which attention slLould be dTaVrn in this rt in onler 10 ¢o3ble a pryo riinder%thndingof the be reathed. Ltsnce ACA, FCCA HPLA Limiied Chartcrcd Accounta Slaliollllouse Connaiighi Road Elrookwood Wokillg .%iittey (iU24 DER Page 8

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2022

Unrestricted
Restricted
funds
funds
Notes
£
£
INCOME AND ENDOWMENTS FROM
Donations and legacies
2
201,895
227,364
Other trading activities
3
58,179
2,782
Investment income
4
3,278
-
Total
263,352
230,146
EXPENDITURE ON
Raising funds
5
23,017
3,867
Charitable activities
6
Tourettes Support
148,381
121,085
Total
171,398
124,952
NET INCOME
91,954
105,194
RECONCILIATION OF FUNDS
Total funds brought forward
310,220
105,604
TOTAL FUNDS CARRIED FORWARD
402,174
210,798		 2022
Total
funds
£
429,259
60,961
3,278
493,498
26,884
269,466
296,350
197,148
415,824
612,972		 2021
Total
funds
£
356,068
52,948
3,413
412,429
22,502
275,410
297,912
114,517
301,307
415,824

Page 9

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

BALANCE SHEET 31 March 2022

Unrestricted
Restricted
funds
funds
Notes
£
£
FIXED ASSETS
Tangible assets
12
2,636
-
CURRENT ASSETS
Stocks
13
3,314
-
Debtors
14
11,563
10,869
Cash at bank
432,284
199,929
447,161
210,798
CREDITORS
Amounts falling due within one year
15
(47,623)
-
NET CURRENT ASSETS
399,538
210,798
TOTAL ASSETS LESS CURRENT LIABILITIES
402,174
210,798
NET ASSETS
402,174
210,798
FUNDS
16
Unrestricted funds
Restricted funds
TOTAL FUNDS		 2022
Total
funds
£
2,636
3,314
22,432
632,213
657,959
(47,623)
610,336
612,972
612,972
402,174
210,798
612,972		 2021
Total
funds
£
4,522
-
8,541
516,083
524,624
(113,322)
411,302
415,824
415,824
310,220
105,604
415,824

The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 31 March 2022.

The members have not required the company to obtain an audit of its financial statements for the year ended 31 March 2022 in accordance with Section 476 of the Companies Act 2006.

The trustees acknowledge their responsibilities for

The notes form part of these financial statements

continued...

Page 10

The notes form part of these financial statements

Page 11

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS for the year ended 31 March 2022

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Raising funds

These comprise fundraising and marketing expenditure. Charitable activities expenditure includes services to beneficiaries.

Governance costs

Comprise the costs of compliance and organisational administration, constitutional and statutory requirements and include independent reviewers cost and legal and professional fees.

Allocation and apportionment of costs

Costs of generating funds comprise fundraising and marketing expenditure.

Charitable activities expenditure includes services to beneficiaries.

Support costs include those costs connected with the management of the charity's assets, organisational management and administration and compliance with constitutional and statutory requirements.

Tangible fixed assets

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Plant and machinery - 25% on cost
Computer equipment - 25% on cost

The charity does not capitalise smaller assets of less than £500. These are included in the Statement of Financial Activities when incurred.

Stocks

Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.

Taxation

The charity is exempt from corporation tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

continued...

Page 12

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

1. ACCOUNTING POLICIES - continued

Pension costs and other post-retirement benefits

The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.

Leasing commitments

Rentals paid under operating leases are charged to the profit and loss on a straight line basis over the period of the lease.

2.

DONATIONS AND LEGACIES

DONATIONS AND LEGACIES
Donations
Gift aid
Grants		 2022
£
264,548
17,929
146,782
429,259		 2021
£
173,118
16,508
166,442
356,068

Grants received, included in the above, are as follows:

Children In Need
Tudor Trust
Garfield Weston
The Hospital Saturday Fund
Boshier Hintion Foundation
Michael & Anna Wix Charitable Trust
Sobell Foundation
St James Place Foundation
Vandervell Foundation
The National Lottery
Rushmoor Borough Council
D'Oylycarte Charitable Trust
Job Retention Scheme
Ashroder
29th May 1961 Charity
Grocers Charity
Speedomick Foundation
Sir Jules Thorn Charitable Trust
Annie Tranmer Charitable Trsut
Lille C Johnson Charitable Trust
Masonic Charitable Foundation
TK Maxx
Marsh Charitable Trust		 2022
£
15,000
3,200
30,000
2,000
-
-
-
2,500
-
67,510
2,572
3,500
-
-
4,000
5,000
3,000
1,250
1,000
250
5,000
500
500
146,782		 2021
£
30,000
-
20,000
-
848
200
5,000
-
1,000
67,106
10,336
3,000
19,952
5,000
4,000
-
-
-
-
-
-
-
-
166,442

continued...

Page 13

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2022
3.
OTHER TRADING ACTIVITIES
2022
£
Fundraising events
51,676
Sales
9,285
60,961
4.
INVESTMENT INCOME
2022
£
Deposit account interest
3,278
5.
RAISING FUNDS
Raising donations and legacies
2022
£
Fundraising costs
26,884
6.
CHARITABLE ACTIVITIES COSTS
Support
Direct
costs (see
Costs
note 7)
£
£
Tourettes Support
214,736
54,730
7.
SUPPORT COSTS
Governance
Management
Finance
costs
£
£
£
Tourettes Support
47,749
364
6,617
Support costs, included in the above, are as follows:
Management
2022
Tourettes
Support
£
Premises expenses
13,800
Insurance
1,746
Telephone
2,637
Postage and stationery
2,547
Travel & Subsistence
6,014
Website costs
1,574
Computer expenses
14,662
Accountancy
-
General repairs & renewals
364
Carried forward
43,344		 2021
£
46,896
6,052
52,948
2021
£
3,413
2021
£
22,502
Totals
£
269,466
Totals
£
54,730
2021
Total
activities
£
15,086
1,962
3,190
2,449
414
1,690
9,019
(38)
347
34,119

continued...

Page 14

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

7. SUPPORT COSTS - continued

Management - continued

8.

2022 2021
Tourettes Total
Support activities
£ £
Brought forward 43,344 34,119
Subscriptions 1,221 1,644
Depreciation of tangible and heritage assets 3,184 3,208
47,749 38,971
Finance
2022 2021
Tourettes Total
Support activities
£ £
Bank charges 364 292
Governance costs
2022 2021
Tourettes Total
Support activities
£ £
Legal fees 771 720
Board meeting costs 1,114 600
Independent examination 4,732 4,180
6,617 5,500
NET INCOME/(EXPENDITURE)
Net income/(expenditure) is stated after charging/(crediting):
2022 2021
£ £
Depreciation - owned assets 3,184 3,208

9. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 31 March 2022 nor for the year ended 31 March 2021.

Trustees' expenses

There were no trustees' expenses paid for the year ended 31 March 2022 nor for the year ended 31 March 2021.

Page 15

continued...

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2022

10. STAFF COSTS

Wages and salaries
Social security costs
Other pension costs
The average monthly number of employees during the year was as follows:
Management, administration & counsellors		 2022
£
159,766
7,529
5,064
172,359
2022
10		 2021
£
197,757
12,690
2,477
212,924
2021
8

The number of employees whose employee benefits (excluding employer pension costs) exceeded £60,000 was:

£60,001 - £70,000

2022 2021
- 1

Staff costs have been restated to show recruitment and other staff costs as a separate expense.

The key management personnel of the charity are the trustees and chief executive. The total employment costs of key management personnel total £25,096 (2021: £68,524). It should be noted that from July 2021 to January 2022 the charity did not have a chief executive in place and this role was covered by trustees.

11. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES

Unrestricted
Restricted
funds
funds
£
£
INCOME AND ENDOWMENTS FROM
Donations and legacies
228,914
127,154
Other trading activities
51,789
1,159
Investment income
3,413
-
Total
284,116
128,313
EXPENDITURE ON
Raising funds
21,502
1,000
Charitable activities
Tourettes Support
178,515
96,895
Total
200,017
97,895
NET INCOME
84,099
30,418
RECONCILIATION OF FUNDS
Total funds brought forward
226,121
75,186		 Total
funds
£
356,068
52,948
3,413
412,429
22,502
275,410
297,912
114,517
301,307

Page 16

continued...

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

11.
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - continued
Unrestricted
Restricted
funds
funds
£
£
TOTAL FUNDS CARRIED FORWARD
310,220
105,604
12.
TANGIBLE FIXED ASSETS
Plant and
Computer
machinery
equipment
£
£
COST
At 1 April 2021
1,732
43,225
Additions
-
1,298
At 31 March 2022
1,732
44,523
DEPRECIATION
At 1 April 2021
1,592
38,843
Charge for year
67
3,117
At 31 March 2022
1,659
41,960
NET BOOK VALUE
At 31 March 2022
73
2,563
At 31 March 2021
140
4,382
13.
STOCKS
2022
£
Stocks
3,314
14.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2022
£
Other debtors
2,842
Prepayments and accrued income
19,590
22,432		 Total
funds
£
415,824
Totals
£
44,957
1,298
46,255
40,435
3,184
43,619
2,636
4,522
2021
£
-
2021
£
940
7,601
8,541

continued...

Page 17

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

15. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

Trade creditors
Social security and other taxes
Accruals and deferred income		 2022
£
5,681
5,571
36,371
47,623		 2021
£
11,721
3,205
98,396
113,322

16. MOVEMENT IN FUNDS

MOVEMENT IN FUNDS
Net Transfers
movement between At
At 1.4.21 in funds funds 31.3.22
£ £ £ £
Unrestricted funds
General fund 310,220 91,954 - 402,174
Restricted funds
Daniel Katz 40,604 (22,853) - 17,751
TLC 2,986 - - 2,986
BBC Children In Need 34,059 (26,969) (7,090) -
NE Group 854 - - 854
Tudor Trust 651 - - 651
Manchester Group 1,834 (1,277) - 557
Kent Group 1,869 (200) - 1,669
Community Foundation for Surrey 846 (581) - 265
Doris Field Charitable Trust 747 - - 747
West Midlands Group 341 107 - 448
CHK Charities Limited 1,353 - (1,353) -
Hull Group 39 - - 39
Essex group 178 902 - 1,080
TNL Community Fund - 2,127 - 2,127
TNL Teacher Training - 724 - 724
TNL Adult Weekends 5,188 (5,188) - -
Teenfest - 673 1,353 2,026
A4A Tourettes Champions 9,561 - - 9,561
Ticfest - 42,819 7,090 49,909
Sussex Group 446 (223) - 223
Music Therapy 2,048 3,500 - 5,548
D'Oylycarte Chaitable Trust 2,000 (2,000) - -
TNL Parent WS - 3,738 - 3,738
The Hofmeyr family - 105,000 - 105,000
Hospital Saturday Fund - 1,822 - 1,822
Oxford Group - 418 - 418
Suzanne Dobson Award - 1,655 - 1,655
Cycling Jerseys - 1,000 - 1,000
105,604 105,194 - 210,798
TOTAL FUNDS 415,824 197,148 - 612,972

continued...

Page 18

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

16. MOVEMENT IN FUNDS - continued

Net movement in funds, included in the above are as follows:

Incoming Resources Movement
resources expended in funds
£ £ £
Unrestricted funds
General fund 263,352 (171,398) 91,954
Restricted funds
Daniel Katz (20,001) (2,852) (22,853)
BBC Children In Need 15,000 (41,969) (26,969)
Tudor Trust 3,200 (3,200) -
Manchester Group 1,569 (2,846) (1,277)
Kent Group - (200) (200)
Community Foundation for Surrey - (581) (581)
West Midlands Group 124 (17) 107
Essex group 902 - 902
TNL Community Fund 32,710 (30,583) 2,127
TNL Teacher Training 5,200 (4,476) 724
TNL Adult Weekends 14,000 (19,188) (5,188)
Teenfest 5,500 (4,827) 673
Ticfest 43,000 (181) 42,819
Sussex Group - (223) (223)
Music Therapy 3,500 - 3,500
D'Oylycarte Chaitable Trust - (2,000) (2,000)
TNL Parent WS 15,600 (11,862) 3,738
The Hofmeyr family 105,000 - 105,000
Hospital Saturday Fund 2,000 (178) 1,822
Oxford Group 187 231 418
Suzanne Dobson Award 1,655 - 1,655
Cycling Jerseys 1,000 - 1,000
230,146 (124,952) 105,194
TOTAL FUNDS 493,498 (296,350) 197,148

continued...

Page 19

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

16. MOVEMENT IN FUNDS - continued

Comparatives for movement in funds

Net Transfers
movement between At
At 1.4.20 in funds funds 31.3.21
£ £ £ £
Unrestricted funds
General fund 226,121 84,099 - 310,220
Restricted funds
Daniel Katz 25,039 15,565 - 40,604
Awards for All 1 (1) - -
TLC 2,986 - - 2,986
BBC Children In Need 4,157 29,902 - 34,059
NE Group 854 - - 854
Tudor Trust 651 - - 651
Manchester Group 1,610 224 - 1,834
Sobell Foundation 5,000 (5,000) - -
Kent Group 2,013 (144) - 1,869
Community Foundation for Surrey 817 29 - 846
Doris Field Charitable Trust 747 - - 747
West Midlands Group 341 - - 341
CHK Charities Limited 1,353 - - 1,353
Hull Group 39 - - 39
Essex group 178 - - 178
TNL Community Fund 1,883 (1,883) - -
TNL Teacher Training (864) - 864 -
TNL Diagnosed 5,309 (4,445) (864) -
TNL Adult Weekends 13,115 (7,927) - 5,188
A4A Tourettes Champions 9,561 - - 9,561
Sussex Group 396 50 - 446
Music Therapy - 2,048 - 2,048
D'Oylycarte Chaitable Trust - 2,000 - 2,000
75,186 30,418 - 105,604
TOTAL FUNDS 301,307 114,517 - 415,824

continued...

Page 20

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

16. MOVEMENT IN FUNDS - continued

Comparative net movement in funds, included in the above are as follows:

Incoming Resources Movement
resources expended in funds
£ £ £
Unrestricted funds
General fund 284,116 (200,017) 84,099
Restricted funds
Daniel Katz 20,000 (4,435) 15,565
Awards for All - (1) (1)
BBC Children In Need 30,000 (98) 29,902
Manchester Group 889 (665) 224
Sobell Foundation 5,000 (10,000) (5,000)
Kent Group - (144) (144)
Community Foundation for Surrey 220 (191) 29
TNL Community Fund 32,306 (34,189) (1,883)
TNL Teacher Training 5,200 (5,200) -
TNL Diagnosed 15,600 (20,045) (4,445)
TNL Adult Weekends 14,000 (21,927) (7,927)
Sussex Group 50 - 50
Music Therapy 2,048 - 2,048
D'Oylycarte Chaitable Trust 3,000 (1,000) 2,000
128,313 (97,895) 30,418
TOTAL FUNDS 412,429 (297,912) 114,517

continued...

Page 21

17. RELATED PARTY DISCLOSURES

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued for the year ended 31 March 2022

16. MOVEMENT IN FUNDS - continued

Transfers between funds

Transfers were made from restricted funds to unrestricted funds to cover certain costs paid out of expenses.

There were no related party transactions for the year ended 31 March 2022.

continued...

Page 22

19. SHARE CAPITAL

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

NOTES TO THE FINANCIAL STATEMENTS - continued

for the year ended 31 March 2022

18. DESIGNATED FUNDS

In 2016/17 the Trustees agreed to designate £210,000 towards the treatment and management of Tourette Syndrome. The balance remaining at the commencement of the year was £96,102 and, during the current year £45,850 has been spent and £38,577 was released as the researcher did not reapply for the grant after covid 19 lock down. There remains a balance £11,675 which will be spent in 2022/23.

A subcommittee of the Board, The Research Sub Committee, evaluate recommendations from the Scientific Advisory Board which are then presented to the Board of Trustees for a decision as to which applications to fund.

The Scientific Advisory Board comprises of senior professionals with a background in Tourette Syndrome and a patient representative.

The company is limited by guarantee and does not have a share capital.

Page 23

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

DETAILED STATEMENT OF FINANCIAL ACTIVITIES for the year ended 31 March 2022

2022 2021
£ £
INCOME AND ENDOWMENTS
Donations and legacies
Donations 264,548 173,118
Gift aid 17,929 16,508
Grants 146,782 166,442
429,259 356,068
Other trading activities
Fundraising events 51,676 46,896
Sales 9,285 6,052
60,961 52,948
Investment income
Deposit account interest 3,278 3,413
Total incoming resources 493,498 412,429
EXPENDITURE
Raising donations and legacies
Fundraising costs 26,884 22,502
Charitable activities
Wages 159,766 197,757
Social security 7,529 12,690
Pensions 5,064 2,477
Research (38,577) (1,380)
Workshops 64,054 4,930
Cost of Sales 1,232 2,715
Advocacy 718 2,301
Benevolent grants 2,852 4,435
Staff Recruitment & other costs 9,812 3,985
Support Services 408 626
Publicity, PR & Advertising 1,878 111
214,736 230,647
Support costs
Management
Premises expenses 13,800 15,086
Insurance 1,746 1,962
Telephone 2,637 3,190
Postage and stationery 2,547 2,449
Travel & Subsistence 6,014 414
Website costs 1,574 1,690
Carried forward 28,318 24,791

This page does not form part of the statutory financial statements

Page 24

TOURETTE SYNDROME (UK) ASSOCIATION TRADING AS TOURETTES ACTION

Management
Brought forward
Computer expenses
Accountancy
General repairs & renewals
Subscriptions
Fixtures and fittings
Computer equipment
Finance
Bank charges
Governance costs
Legal fees
Board meeting costs
Independent examination
Total resources expended
Net income		 DETAILED STATEMENT OF FINANCIAL ACTIVITIES
for the year ended 31 March 2022
2022
2021
£
£
28,318
24,791
14,662
9,019
-
(38)
364
347
1,221
1,644
67
67
3,117
3,141
47,749
38,971
364
292
771
720
1,114
600
4,732
4,180
6,617
5,500
296,350
297,912
197,148
114,517

This page does not form part of the statutory financial statements

Page 25

This page does not form part of the statutory financial statements

Page 25