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2024-04-30-accounts

SOFT UK Accounts - 30th April 2024

SOFT UK

Charity number: 1002918

Accounts – 30 April 2024

INDEX

SOFT UK

REPORT OF THE TRUSTEES for the year ended 30th April 2024

The Trustees of SOFT UK are pleased to present their annual report and financial statements of the charity for the year ended 30th April 2024 and confirm they comply with the requirements of the Charities Act 2011, the SOFT UK trust deed and the Charities SORP (FRS 102).

The Financial Statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and complies with the Charity’s governing document, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice (second edition) and Financial Reporting Standard FRS 102.

Reference and Administration Details

The charity’s name is Soft UK.

Charity Registration Number: 1002918 OSCR: SC043341 Registered Address: 11 Newlands Road Uddington Glasgow G71 5QP Solicitors: Anthony Collins Solicitors, Birmingham Bankers: HSBC, Ross-on-Wye

Trustees

The Trustees and officers who served during the year and since the year end were as follows: Mrs J Fowler (Chair) Dr D Rees Mrs L Petrie Mrs E Egan (Treasurer) Dr A Pearson Mr G Glendinning (Resigned October 2024) Mrs M Graham (Resigned September 2023) Mrs D Kadum Mr C O’Toole (Appointed May 2024) Mrs S Wilson (Appointed May 2024) Mrs B Wirth

Objects and Activities

SOFT UK operates under a Trust Deed dated 26th April 1991, updated by means of a Deed of Variation in 2011 and 2018 which includes the regulations for appointment of trustees.

The principle aims and objectives of SOFT UK are to provide support, assistance and information to families having a child with a chromosome abnormality, specifically Edwards’ Syndrome (Trisomy 18) or Patau’s Syndrome (Trisomy 13) and their related disorders of partial Trisomy, Mosaicism and Deletions.

SOFT UK provides information and support at all stages of the trisomy experience - following a prenatal higher chance screening result or prenatal diagnosis (irrespective of the families’ decision making regarding their pregnancy), post-natal diagnosis, care of a living child, bereavement following the loss of a child or ending a pregnancy. With the objective that families feel supported and connected at whatever point they are in their Trisomy experience.

Families can share their experiences through the SOFT UK website, newsletter, social media groups, podcasts, SOFT UK YouTube channel regular family days, and other events. Support is offered to all members of the family, including siblings of the affected child, for as long as is required. This may be delivered via our trained support volunteers who offer peer support, accessed via our Support Service or via our virtual meetings and social media groups. All support services are provided free of charge.

SOFT UK

REPORT OF THE TRUSTEES for the year ended 30th April 2024

Objects and Activities (continued)

For more than 30 years, SOFT UK has built networks with many professionals, including healthcare professionals, geneticists, social care workers and hospice staff. Our information is evidence based and experiential. Developed in collaboration with our professional advisors and our community of families, it is always given to enhance the advice of clinical teams who care for individual families. In line with our charitable mission, we do not offer medical advice. Through our association with, and membership of complimentary organisations, including Genetic Alliance UK, Together for Short Lives, Rare Disease networks, Antenatal Results and Choices, Children’s Hospices, the Fetal Anomaly Screening Programmes of Public Health England, Wales and NHS Scotland, we seek to advocate on behalf of our families, improve services for all affected families and raise awareness of Patau’s and Edwards’ Syndromes and their associated conditions.

The SOFT UK website social media accounts and our YouTube channel provides families and healthcare professionals access to our information and sources of support, including downloadable information resources, films, podcasts, research and links to other relevant websites.

Key elements of support for families is provided via our Support Service, accessed via email, a dedicated helpline or our social media channels. The Support Service is provided by a team of dedicated, trained volunteers. Families can be referred to the service by healthcare professionals or can self-refer. Our volunteers, all of whom are parents with experience of Trisomy themselves, offer support, empathy, evidence-based information resources and signposting to sources of support appropriate to individual families.

Support can also be accessed via a range of closed Families Facebook groups where families can obtain peer support and shared experience from others who have the lived experience of trisomy. A regular programme of themed virtual calls is run via an online platform.

Written information is provided via booklets available in print or electronic copy, developed with medical professional advisors, who use their expertise to support SOFT UK in its objectives.

E-Newsletters are produced at least twice per year. These newsletters provide an opportunity for our families to share their experiences and personal stories as well as being an additional source of information.

Achievements and Performance

Engagement:

SOFT UK Podcast Series Continued with our own podcast releases of family stories.

Family Events Increased our presence across the UK, hosting a number of regional events:

Facebook Support Groups Continuing to grow and monitor our Facebook support groups.

Rarebinars:

Produced our first Rarebinars with professional partners

Good attendance and plans to expand this offering to healthcare professionals in 2025.

SOFT UK

REPORT OF THE TRUSTEES for the year ended 30th April 2024 ( Continued)

Achievements and Performance (continued)

Health Professional Awareness:

NHS Pregnancy Screening Programmes Continue to work with Public Health England, NHS Scotland and NHS Wales in support of their evaluation of the NIPT addition to the prenatal screening programmes.

Staffing:

Trisomy Advocate role (2[nd] year) Role has evolved in line with community requirements. Leading to significant development of online resources for our community and support for contacts via the Support Line.

Database:

Introduced new database management tool Monday.com which has enabled us to better manage our audience information and update how we support families.

This tool has allowed us to begin building a robust database, and allows us to access data including how many people we support annually, the different reasons they come to SOFT UK, and more.

Website:

The website continues to evolve, with new resources being added on a regular basis. The website allows for us to identify search terms that people are searching for, and map where they then land on our website. This has aided us in writing new resources to better match their search query, driving the value of the information we have.

Fundraising:

We now have a new fundraising Trustee to support us with our fundraising strategy.

Finance Group continues to meet regularly to review detail of finances. Clear budgeting in place and fundraising plan developed annually.

Future Developments

A Strategy Planning Event took place in October 2024, leading to the development of a clear forward strategy for the organisation. The charity continues the current overarching strategy of maintaining and developing SOFT UK as the organisation of first contact for families and healthcare professionals working with families affected by Patau’s or Edwards’ syndromes. The primary focus of which will continue to be directing families to the best information and support for them and their circumstance. And increasing awareness of Patau’s and Edwards’ syndromes within health professionals and the public.

Our future plans will be influenced by, and in line with the needs of families affected by Patau’s and Edwards’ syndromes, as expressed by family user feedback and research findings. Developments will be financed from grant income achieved for specific projects, fundraising and donation income and our reserves. The Trustees will maintain an equitable balance ensuring our current families benefit whilst, at the same time, ensuring a sound infrastructure and financial base are preserved for future families needs.

Future Planned Development Projects include:

Delivering the objectives set out in our newly revised Forward Strategy :

Training we will develop and roll out our Rarebinars programme of bespoke films and live webinar presentations. Based on the lived experience of our families and the expertise of our Professional Experts – creating training and awareness programmes for health and social care audiences.

SOFT UK

REPORT OF THE TRUSTEES for the year ended 30th April 2024 ( Continued)

Achievements and Performance (continued)

Fundraising Continued focus to be placed on fundraising. Developing a clear fundraising plan which includes grant applications for specific projects and support for individual fundraisers. The appointment of a Trustee with specific focus on fundraising will provide experience to this area of work.

Website rollout will continue to ensure our support is easily accessible to families and healthcare professionals. Focus on improving specific areas of support – bereavement, healthcare professionals’ information.

New Database Continue to establish Monday.com CRM database to improve data collection and recording. Using the system to provide regular reporting on the activities of the charity.

Financial Review

The total income for the year was £80,300 (2023: £45,407) and total expenditure for the year was £54,936 (2023: £67,147) leaving a surplus of £25,364 for the year.

Reserves Policy

SOFT UK has a reserves policy which requires it to hold a minimum of 12 months running costs. This is to ensure that the charity has sufficient funds to meet employment responsibilities, pay outstanding creditors and ensure stakeholder commitments are dealt with in a managed way, should the charity cease to be viable going concern.

For the year 2024-25 the reserves required are at a level of £70k

The Reserves Policy is reviewed annually by the Board of Trustees.

Structure, Governance and Management

The Charity is constituted by way of a Trust Deed dated 26th April 1991, updated by means of a Deed of Variation in 2011 and 2018, is registered with the Charity Commission under Number 1002918. The Trust Deed regularises the informal arrangements which had been in force since 22nd June 1990.

SOFT UK is a cross border charity and registered with OSCR the Scottish Charity Regulator under the Number SC043341. As a cross border charity SOFT UK operates under the Charities and Trustee Investment (Scotland) Act 2005 and the Charities Accounts (Scotland) Regulations 2006.

SOFT UK is governed by its Trustee board, which is responsible for setting the strategic direction of the organisation and the policy of the charity. The Trustees carry the ultimate responsibility for the conduct of SOFT UK and for ensuring that the charity satisfies its legal and contractual obligations. Trustees meet quarterly as a minimum.

The Trustee Board requires breadth and depth of experience to carry out is duties effectively. New Trustees are appointed by the existing Board of Trustees, interview and selection being undertaken by a minimum of 3 Trustees, including the Chair. When recruiting new trustees, the essential attribute is an empathy and understanding for families affected by Edwards’ and Patau’s syndromes. We advertise via our own networks and invite appropriate professionals to consider joining our Board. Where possible we consider that the skills of the Board should comprise the following:

SOFT UK

REPORT OF THE TRUSTEES for the year ended 30th April 2024 ( Continued)

Structure, Governance and Management (continued)

SOFT UK employs three permanent members of staff, all of whom work on a part time basis. A Charity Director, who is responsible for the leadership and operational activities of the charity. A Communications Officer, to support the communications of the charity. An Engagement Officer, who is responsible for ensuring effective engagement with our community. A fixed term (2yr) Trisomy Advocate post was appointed to in 2022, with a contract end in early 2025.

The Trustee Board delegates operational responsibilities for the charity to the Charity Director, who works under the supervision of the Trustees. The Director, Engagement Officer and Communications Officer are supported by a small group of volunteers.

SOFT UK receives the majority of its funds via fundraising activities, donations and grant funding. The charity’s activities expose it to a number of financial risks. The management of these risks is governed by the charity’s policies approved by the board of trustees, which provide written principles and practices of financial management of the charities finances. The Board of Trustees has overall responsibility for finances and financial risk management. A Finance subcommittee of the Board provide detailed, regular review of finances, reporting into the Board.

Approved by the trustees on 24th January 2025 and signed on its behalf by:

J Fowler

………………………………….. Trustee

Uddington, Glasgow

SOFT UK

INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES

I report to the trustees on my examination of the accounts of Soft UK for the year ended 30th April 2024.

Responsibilities and Basis of Report

As the charity’s trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent Examiner’s Statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the charity as required by section 130 of the Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

A P Williams FCCA CTA A J Carter & Co Chartered Accountants

22b High Street Witney Oxon OX28 6RB

24th January 2025

SOFT UK

STATEMENT OF FINANCIAL ACTIVITIES

(including an income and expenditure account) for the year ended 30th April 2024

Note
Income from:
Donations and legacies
3
Investments
4
Total incoming resources
Expenditure on:
Charitable activities
5
Total expenditure
Net income/(expenditure) and net
movement in funds for the year
Transfer between funds
Net movement in funds
Reconciliation of funds
Total funds brought forward
Total funds carried forward		 Unrestricted Restricted
Total
Funds
Funds
Funds
2024
£
£
£
54,712
23,321
78,033
2,267
-
2,267
56,979
23,321
80,300
37,446
17,490
54,936
37,446
17,490
54,936
19,533
5,831
25,364
-
-
-
19,533
5,831
25,364
102,598
16,571
119,169
£122,131
£22,402
£144,533		 Total
Funds
2023
£
44,664
743
45,407
67,147
67,147
(21,740)
-
(21,740)
140,909
£119,169

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derives from continuing activities.

The notes on pages 9 to 13 form part of these financial statements

SOFT UK

BALANCE SHEET as at 30th April 2024

Note
Fixed assets
Tangible assets
Total fixed assets
Current assets
Debtors
10
Cash at bank and in hand
Total current assets
Liabilities
Creditors falling due within one year
11
Net current assets
Total assets less current liabilities
Creditors:falling due after more than 1 year
Provisions for liabilities
Total net assets
13
The funds of the Charity
Restricted income funds
13
Unrestricted income funds
13
Revaluation reserve
Total unrestricted funds
Total charity funds		 2024
£
-
-
2,880
142,603
145,483
950
144,533
144,533
-
£144,533
22,402
122,131
-
122,131
£144,533		 2023
£
-
-
-
120,179
120,179
1,010
119,169
119,169
-
£119,169
16,571
102,598
-
102,598
£119,169

These accounts were approved by the Trustees and authorised for issue on: 24th January 2025 and are signed on their behalf by:

J Fowler

...................................................... Trustee

The notes on pages 9 to 13 form part of these financial statements

SOFT UK

NOTES TO THE ACCOUNTS

for the year ended 30th April 2024

1. Accounting Policies

The principal accounting policies adopted, judgments and key sources of estimation uncertainty in the preparation of the financial statements are as follows:

a) Basis of Preparation

The financial statements have been prepared in accordance with the second edition of the Charities Statement of Recommended Practice issued in October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011.

b) Public Benefit Entity

Soft UK meets the definition of a public benefit entity under FRS102.

c) Going Concern

The Trustees consider that there are no material uncertainties about the Charity’s ability to continue as a going concern.

d) Income Recognition Policies

Items of income are recognised and included in the accounts when all of the following criteria are met:

Income received in advance of a specific performance or provision of other specified service is deferred until the criteria for income recognition are met.

e) Donated Services and Facilities

Donated services or facilities are recognised as income when the charity has control over the item, any conditions associated with a donated item have been met, the receipt of economic benefit from the use by the Charity of the item is probable and that economic benefit can be measured reliably. On receipt, donated services and facilities are recognised on the basis of the value of the gift to the Charity which is the amount the charity would have been willing to pay to obtain services or facilities of equivalent economic benefit on the open market; a corresponding amount is then recognised in expenditure in the period of receipt.

SOFT UK

NOTES TO THE ACCOUNTS

for the year ended 30th April 2024 (continued)

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably.

Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.

2. Legal Status of the Charity

The Charity is constituted by way of a Trust Deed dated 26 April 1991, updated by means of a Deed of Variation in 2011 and 2018, is registered with the Charity Commission under number 1002918. Soft UK is a cross border charity and registered with OSCR the Scottish Charity Regulator under number SC043341.

3. Income from donations

Gifts and donations 2024
£
78,033
£78,033		 2023
£
44,664
£44,664

Of the £78,033 received in 2024 (2023: £44,664) £23,321 was restricted funds (2023: £8,500) and £54,712 (2023: £36,164) unrestricted funds.

4. Investment income

All of the Charity investment income arises from money held in a HSBC account.

SOFT UK

NOTES TO THE ACCOUNTS

for the year ended 30th April 2024 (continued)

5. Analysis of expenditure on charitable activities

Unrestricted Restricted
£
£
Insurance
230
-
Salaries
29,614
8,788
Travel and conference meetings
4,062
8,702
Printing, postage and stationery
-
-
Computer and internet
215
-
Miscellaneous
868
-
Promotion materials
-
-
Subscriptions
1,103
-
Bank fees
84
-
Professional fees
340
-
Governance costs
930
-
Total
£37,446
£17,490
Net income/(expenditure) for the year
This is stated after charging:
Independent examiner's fee
Analysis of staff costs and trustee remuneration and expenses
Salaries and wages
Pension costs		 Unrestricted Restricted
£
£
230
-
29,614
8,788
4,062
8,702
-
-
215
-
868
-
-
-
1,103
-
84
-
340
-
930
-
2024
Total
£

230

38,402

12,764

-

215

868

-

1,103

84

340
930
£54,936
2024
£
930
2024
£
37,965
437
£38,402		 2023
Total
£
230
32,868
28,508
92
2,275
14
488
1,131
143
498
900
£37,446
£17,490		 £67,147
2023
£
900
2023
£
32,336
532
£32,868

6. Net income/(expenditure) for the year

7. Analysis of staff costs and trustee remuneration and expenses

No employees had emoluments in excess of £60,000 (2023: Nil).

No charity trustees were paid or received any other benefits from employment with the charity in the year (2023 £Nil) neither were they reimbursed expenses during the year (2023: £Nil). No charity trustee received payment for professional or other services supplied to the charity (2023: £Nil).

8. Staff numbers

The average monthly number of employees during the year was as follows:

2024 2023
Number Number
3 3

SOFT UK

NOTES TO THE ACCOUNTS

for the year ended 30th April 2024 (continued)

9. Corporation tax

The charity is exempt from tax on income and gains falling within section 505 of the Taxes Act 1988 or section 252 of the Taxation of Chargeable Gains Act 1992 to the extent that these are applied to its charitable objects.

10. Debtors

PAYE
Prepayments		 2024
£
2,880
-
£2,880		 2023
£
-
-
£-

11. Creditors: amounts falling due within one year

Accounts payable
PAYE
Accruals
Analysis of net assets between funds
Cash at bank and in hand
Other net current assets/(liabilities)
Creditors of more than one year
Total		 General
Designated
Fund
Funds
£
£
120,201
-
1,930
-
-
-		 2024
£
-
-
950
£950
Restricted
Funds
£

22,402

-

-		 2023
£
-
110
900
£1,010
Total
£
142,603
1,930
-
£122,131
£-
£22,402		 £144,533

12. Analysis of net assets between funds

13. Analysis of charitable funds

Analysis of movements in restricted funds

Family Events
Trisomy Advocate Fund
Total		 Balance
Incoming
Resources
Funds
01.05.2023
resources
expended
Transfers
30.04.2024
£
£
£
£
£
10,117
14,821
(8,702)
-
16,236
6,454
8,500
(8,788)
-
6,166
£16,571
£23,321
£(17,490)
£-
£22,402

SOFT UK

NOTES TO THE ACCOUNTS

for the year ended 30th April 2024 (continued)

13. Analysis of charitable funds (continued)

Analysis of movements in unrestricted funds

General fund
Total
Name of unrestricted fund
General fund		 Balance
Incoming
Resources
Funds
01.05.2023
resources
expended
Transfers
30.04.2024
£
£
£
£
£
102,598
56,979
(37,446)
-
122,131
£102,598
£56,979£(37,446)
£-
£122,131
Description, nature and purposes of the fund
The 'free reserves' after allowing for all designated funds.