# SOFT UK

## Details

- **Country:** England & Wales
- **Charity number:** 1002918
- **Other names:** SUPPORT ORGANISATION FOR TRISOMY 13 & 18 AND RELATED DISORDERS
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** May 15, 1991
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1002918


## Contact

- **Address:** 11 Newlands Road, Uddingston, GLASGOW
- **Postcode:** G71 5QP
- **Phone:** 07748772061
- **Email:** enquiries@soft.org.uk
- **Website:** www.soft.org.uk



## Activities

**Objects:** TO RELIEVE THE SICKNESS OF CHILDREN WITH CHROMOSOMATIC ABNORMALITY AND OTHER RARE MEDICAL CONDITIONS (FOR FURTHER DETAILS SEE CLAUSE 2 OF DECLARATION OF TRUST

**Activities:** SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Other Charitable Activities
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 30, 2025 | £69838 | £66507 | — | — |
| April 30, 2024 | £80300 | £54936 | — | — |
| April 30, 2023 | £45407 | £67147 | — | — |
| April 30, 2022 | £74260 | £59374 | — | — |
| April 30, 2021 | £62948 | £32898 | — | — |



## Trustees

- **MRS J FOWLER** (Chair) — appointed April 21, 2011
- ALISON PEARSON — appointed March 5, 2016
- DR D ROBBINS — appointed Nov. 26, 2011
- Deborah Louise Kadum — appointed July 1, 2022
- John Christopher O'Toole — appointed June 20, 2024
- Larry Crofton — appointed May 1, 2025
- Laura Petrie — appointed Dec. 6, 2020
- MRS L EGAN — appointed May 4, 2014
- Rebecca Margaret Wirth — appointed March 28, 2021