# HAEMOCHROMATOSIS UK

## Details

- **Country:** England & Wales
- **Charity number:** 1001307
- **Other names:** THE HAEMOCHROMATOSIS SOCIETY, HAEMOCHROMATOSIS UK, HUK
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Dec. 17, 1990
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1001307


## Contact

- **Address:** The Flaxmill, Flaxmill Lane, Pinchbeck, Spalding, Lincolnshire
- **Postcode:** PE11 3YP
- **Phone:** 03030401101
- **Email:** office@huk.org.uk
- **Website:** http://www.haemochromatosis.org.uk



## Activities

**Objects:** 1)TO PROVIDE FOR PERSONS WITH HEREDITARY HAEMOCHROMATOSIS OR ASSOCIATED DISEASES HELP WITH THOSE PROBLEMS(INCLUDING BUT NOT LIMITED TO DIAGNOSIS,MEDICAL CARE,TREATMENT & FINANCIAL BURDEN) RESULTING FROM THE DISEASES & TO PROVIDE SUCH OTHERS CHARITABLE RELIEF AS THE SOCIETY MAY THINK FIT.2.)TO UNDERTAKE FOR THE PUBLIC BENEFIT RESEARCH INTO THE DISEASES & TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH. 3.)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC & THE MEDICAL PROFESSION INTO THE CAUSES OF:(A) INCREASING THE PROPORTION OF HAEMOCHROMATOTICS DIAGNOSED AS SUCH (B) PROMOTING DIAGNOSIS AT AN EARLY STAGE BEFORE THE ONSET OF IRREVERSIBLE ORGAN DAMAGE.

**Activities:** To SUPPORT and inform people with genetic haemochromatosis.  To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Organisations, Provides Other Finance, Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £575107 | £622646 | £358402 | 7 |
| Dec. 31, 2023 | £423698 | £394085 | — | — |
| Dec. 31, 2022 | £436806 | £457303 | — | — |
| Dec. 31, 2021 | £366138 | £326020 | — | — |
| Dec. 31, 2020 | £317667 | £229432 | — | — |



## Trustees

- Aaron Venables — appointed Feb. 28, 2025
- Dieter Krapp — appointed June 28, 2024
- Guillaume Fillias — appointed Feb. 28, 2025
- Pippa Randolph — appointed June 28, 2024
- Sarah Vousden — appointed June 28, 2024